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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
What are the unconscious fantasies circulating in representations of disability? What role do these fantasies play in defining the condition of disability? What can these fantasies teach us about human vulnerability writ large? The Fantasy of Disability explores how popular culture texts, such as Degrassi: The Next Generation and Glee, fantasize about what life with a physical disability must be like, while at the same time exerting tremendous pressure on disabled individuals to conform their identity and behaviour to fit within the margins of these societally perpetuated archetypes. Rather than merely engaging with how disability is represented, though, this text investigates how representations of disability reveal their nondisabled producers to be perpetually anxious subjects, doomed to fear not just the disabled subject but the very reality of disability lurking within. Situated at the nexus of disability studies, media studies and psychology, this text presents an innovative way of analyzing representations of disability in popular culture, inverting the psychoanalytic gaze back upon the nondisabled to investigate how disability can become a lens through which to interrogate the normate subject.
Social media is popularly seen as an important media for people with disability in terms of communication, exchange and activism. These sites potentially increase both employment and leisure opportunities for one of the most traditionally isolated groups in society. However, the offline inaccessible environment has, to a certain degree, been replicated online and particularly in social networking sites. Social media is becoming an increasingly important part of our lives yet the impact on people with disabilities has gone largely unscrutinised. Similarly, while social media and disability are often both observed through a focus on the Western, developed and English-speaking world, different global perspectives are often overlooked. This collection explores the opportunities and challenges social media represents for the social inclusion of people with disabilities from a variety of different global perspectives that include Africa, Arabia and Asia along with European, American and Australasian perspectives and experiences.
The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter * Presents a unique, pan-disciplinary overview of this growing field of study * Offers a human rights approach to disability and family life * Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) * Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability
Hotly contested, normality remains a powerful, complex category in contemporary law and culture. What is little realized are the ways in which disability underpins and shapes the operation of norms and the power dynamics of normalization. This pioneering collection explores the place of law in political, social, scientific and biomedical developments relating to disability and other categories of 'abnormality'. The contributors show how law produces cultural meanings, norms, representations, artefacts and expressions of disability, abnormality and normality, as well as how law responds to and is constituted by cultures of disability. The collection traverses a range of contemporary legal and political issues including human rights, mercy killing, reproductive technologies, hate crime, policing, immigration and disability housing. It also explores the impact and ongoing legacies of historical practices such as eugenics and deinstitutionalization. Of interest to a wide range of scholars working on normality and law, the book also creates an opening for critical scholars and activists engaged with other marginalized and denigrated categories, notably contesting institutional violence in the context of settler colonialism, neoliberalism and imperialism, to engage more richly and politically with disability. This book was originally published as a special issue of the Continuum journal.
This title was first published in 2003. During the last twenty years, the longer-term sustainability of social insurance systems has become a major issue in all European countries. Analysts and governments are increasingly alarmed at the growth in the number of disability benefit recipients, and the expansion of disability benefit schemes via increasing benefits, broadening coverage and easing access. While policy measures differ widely, policy goals tend to converge. This book analyses and compares the often controversial disability benefit policies in eleven European countries, examining their rationale, impact and outcome, and the direction of reform in the future. It will make fundamental reading for specialists in disability, social protection and public economics, and for Social Policy academics, researchers and students generally.
Difference is something that we all have known or felt. It is not necessarily cause for negative experiences, hostility, or rejection. However, when people assert that they feel different it is usually a statement that they feel bad, lonely, or isolated. Role expectation and role behavior can materialize in negative ways, especially when combined with differences. This is what is faced by people with disabilities who are often stereotyped as incapable. Condeluci explores the painful experience of being different and offers solutions for society to heal itself and for individuals within that society to grow beyond difference. A combination of personal stories and professional experiences, Beyond Difference is a profound study of the rightful place of all persons within the society in which they live. Either people with differences are included into groups and association of community or they are not. In many ways, Condeluci suggests our specialties, jargon, and professionalism have gotten in the way. He faces this fact head on in Beyond Difference and provides a compelling argument for change in how the disabled are perceived and devalued and, because of their differences, fall prey to exclusion from society. Beyond Difference is perfect for professionals in any field related to human services, rehabilitation, education. Ideal for college-level counseling, human services, and disability-related courses, as well as libraries, associations, and families.
Establishing a critical and interdisciplinary dialogue, this text engages with the typically disparate fields of social gerontology and disability studies. It investigates the subjective experiences of two groups rarely considered together in research - people ageing with long-standing disability and people first experiencing disability with ageing. This book challenges assumptions about impairment in later life and the residual nature of the 'fourth age'. It proposes that the experience of 'disability' in older age reaches beyond the bodily context and can involve not only a challenge to a sense of value and meaning in life, but also ongoing efforts in response.
This book focuses on two areas of substantial and growing importance to the human development and capability approach: health and disability. The research on disability, health and the capability approach has been diverse in the topics it covers, and the conceptual frameworks and methodologies it uses, beginning over a decade and a half ago in health and more than a decade ago in disability. This book shares a set of contributions in these two areas: the first set of chapters focusing on disability; and the second set focusing on health and the health capability paradigm (HCP), in particular. This book was originally published as a special issue of the Journal of Human Development and Capabilities.
'Prosthesis' denotes a rhetorical 'addition' to a pre-existing 'beginning', a 'replacement' for that which is 'defective or absent', a technological mode of 'correction' that reveals a history of corporeal and psychic discontent. Recent scholarship has given weight to these multiple meanings of 'prosthesis' as tools of analysis for literary and cultural criticism. The study of pre-modern prosthesis, however, often registers as an absence in contemporary critical discourse. This collection seeks to redress this omission, reconsidering the history of prosthesis and its implications for contemporary critical responses to, and uses of, it. The book demonstrates the significance of notions of prosthesis in medieval and early modern theological debate, Reformation controversy, and medical discourse and practice. It also tracks its importance for imaginings of community and of the relationship of self and other, as performed on the stage, expressed in poetry, charms, exemplary and devotional literature, and as fought over in the documents of religious and cultural change. Interdisciplinary in nature, the book engages with contemporary critical and cultural theory and philosophy, genre theory, literary history, disability studies, and medical humanities, establishing prosthesis as a richly productive analytical tool in the pre-modern, as well as the modern, context. This book was originally published as a special issue of the Textual Practice journal.
Increasingly, planners and practitioners are considering setting up a greater level of preventive mental health care at a local level. "Preventing Mental Illness in Practice" aims to inform their decisions by describing characteristics of "good practice", and identifying a number of promising approaches which are described in some detail. The review represents the second stage of a prevention research project set up by MIND (National Association for Mental Health). The criteria used for identifying good practice are that the project: is targetted towards people known to be at high resk of mental illness; makes maximum use of existing natural, voluntary of community support networks; and supports people in a way that enhances their capacity to control their own life circumstances. The projects selected cover the life stages - from pregnancy and early childhood to old age. They are discussed in the context of relevant research findings which give the rationale for the approach. Ten different projects or services are described: what is provided, how the target group is engaged, the resources required, management problems, and evidence of effectiveness.
This groundbreaking text makes an intervention on behalf of disability studies into the broad field of qualitative inquiry. Ronald Berger and Laura Lorenz introduce readers to a range of issues involved in doing qualitative research on disabilities by bringing together a collection of scholarly work that supplements their own contributions and covers a variety of qualitative methods: participant observation, interviewing and interview coding, focus groups, autoethnography, life history, narrative analysis, content analysis, and participatory visual methods. The chapters are framed in terms of the relevant methodological issues involved in the research, bringing in substantive findings to illustrate the fruits of the methods. In doing so, the book covers a range of physical, sensory, and cognitive impairments. This work resonates with themes in disability studies such as emancipatory research, which views research as a collaborative effort with research subjects whose lives are enhanced by the process and results of the work. It is a methodological approach that requires researchers to be on guard against exploiting informants for the purpose of professional aggrandizement and to engage in a process of ongoing self-reflection to clear themselves of personal and professional biases that may interfere with their ability to hear and empathize with others.
This edited collection brings together keynote articles from the journal Disability & Society to provide a comprehensive and though-provoking exploration of the place of technology in disabled people's lives, documenting and analysing the growing impact of technology on disability and society over recent decades. The authors explore theoretical, empirical and moral dilemmas that arise with the changing relationship between technological change and the lives, aspirations and possibilities of disabled people. The volume is organised into three parts which consider early foundational work connecting disability and technology; key empirical studies related to the optimum use of technologies for independence and inclusion; and new moral and social dynamics thrown up by technological developments for disabled people's lives.
This book examines new developments in provisions for people with learning disabilities. It establishes the current network of services as a base and reduces aspects of the NHS, Community Care Act (1990) and Disabled Persons Act (1986) to terminology accessible to professionals and others engaged in this area. Building on "Services for the Mentally Handicapped in Britain" (Malin, Race and Jones, 1980), it includes additional chapters such as advocacy/empowerment and recreation and leisure. Other parts of the book consider in more detail concepts engendered in the new legislation: care-management and assessment, quality and inspection, and inter-agency planning. The book aims to provide a broad review of material based on research and local developments in deinstitutionalization and community care, residential, day care, voluntary and educational services. It should be of interest to students and professional staff in psychology, teaching, medicine, nursing, social work and the voluntary sector concerned with people with learning disabilities.
Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.
This is the first book of its kind to feature interdisciplinary art history and disability studies scholarship. Art historians have traditionally written about images of figures with impairments and artworks by disabled artists, without integrating disability studies scholarship, while many disability studies scholars discuss works of art, but do not necessarily incorporate art historical research and methodology. The chapters in this volume emphasize a shift away from the medical model of disability that is often scrutinized in art history by considering the social model and representations of disabled figures from a range of styles and periods, mostly from the twentieth century. Topics addressed include visible versus invisible impairments; scientific, anthropological, and vernacular images of disability; and the theories and implications of looking/staring versus gazing. They also explore ways in which art responds to, envisions, and at times stereotypes and pathologizes disability. The insights offered in this book contextualize understanding of disability historically, as well as in terms of medicine, literature, and visual culture.
In the decades following the collapse of state socialism at the end of 1980s, disabled people in Central and Eastern Europe endured economic marginalisation, cultural devaluation and political disempowerment. Some of the mechanisms producing these injustices were inherited from state socialism, while others emerged with postsocialist neoliberalisation. State socialism promised social security guaranteed by the public, and postsocialist neoliberalisation promised independent living underpinned by the market. This book argues that both promises failed as far as disabled people were concerned, drawing on a wide range of scholarly reports and analyses, policy documents, legislation, and historical accounts, as well as on disability studies and social justice theory. Besides differences, the book also illuminates continuities between state socialism and postsocialist capitalism, providing on this basis a more general and historically grounded critique of contemporary neoliberalisation and its impact on individual and collective life. The book will appeal to anyone interested in disability studies and postsocialism, as well as social policy, social movements and critical theory. It will also be of interest to professionals involved in disability-related service provision, as well as to disability activists and policy makers.
This handbook provides a much-needed holistic overview of disability and sexuality research and scholarship. With authors from a wide range of disciplines and representing a diversity of nationalities, it provides a multi-perspectival view that fully captures the diversity of issues and outlooks. Organised into six parts, the contributors explore long-standing issues such as the psychological, interpersonal, social, political and cultural barriers to sexual access that disabled people face and their struggle for sexual rights and participation. The volume also engages issues that have been on the periphery of the discourse, such as sexual accommodations and support aimed at facilitating disabled people's sexual well-being; the socio-sexual tensions confronting disabled people with intersecting stigmatised identities such as LGBTBI or asexual; and the sexual concerns of disabled people in the Global South. It interrogates disability and sexuality from diverse perspectives, from more traditional psychological and sociological models, to various subversive and post-theoretical perspectives and queer theory. This handbook examines the cutting-edge, and sometimes ethically contentious, concerns that have been repressed in the field. With current, international and comprehensive content, this book is essential reading for students, academics and researchers in the areas of disability, gender and sexuality, as well as applied disciplines such as healthcare practitioners, counsellors, psychology trainees and social workers.
Educating students with disabilities is a team process. By federal law, parents must be involved in the development of their child's educational plan. Unfortunately, few parents (or regular educators) understand special education_its terms, philosophies, and processes. This book explains, in layperson terms, what special education is and how to make the special education process more successful for everyone involved. Chapters cover history and legalities of preparing children with disabilities for life, transition of families, preparation for employment, residential living, community adjustment, recreation, interpersonal relationships, life-long learning, and developing educational plans. Hundreds of additional resources for parents of children with disabilities including lists of professional organizations, useful websites, support groups, and other books for further learning on special education are also provided. While intended for parents and family members of children with disabilities, it will also be of interest to educators who are unfamiliar with special education as well as special educators who are new to the field.
What happens when a group traditionally defined as lacking the necessary capacities of citizenship is targeted by government programs that have made 'citizenship inclusion' their main goal? Combining theoretical perspectives of political philosophy, social theory, and disability studies, this book untangles the current state of Western intellectual disability politics following the replacement of state institutionalisation by independent and supported living, individual rights, and self-determination. Taking its cue from Foucault's conception of 'biopolitics', denoting the government of the individuals and the totality of the population, its overarching argument is that the ambiguous positioning of people with intellectual disabilities with respect to the ideals of citizenship results in a regime of government that simultaneously includes and excludes people of this group. On the one hand, its members are projected to become ideal-citizens via the cultivation of citizenship capacities. On the other, the right to live independently and by their own choices is curtailed as soon as they are seen as failing with respect to the ideals of reason and rationality. Therefore, coercion, restraints, and paternalism, which were all supposed to end with deinstitutionalisation, are still ingrained in services targeting the group. In equal parts a theoretical work, advancing debates of critical disability theory, social theory, and post-structural philosophy, as well as an empirical engagement with the history of intellectual disability politics and the ways in which present day politics target the group, this book will be of interest to all students and scholars of disability studies, disability politics, and political theory.
This book addresses the impact of genetic deafness/hearing impairment on people' s lives and those around them. It includes the perspectives of those who are deaf or hard of hearing as well as those working in the field. Professional topics include genetic counselling, social science, psychology, social work and - within medicine - audiological and ENT medical and audiological paediatrics. These practitioners are both hearing and hearing impaired. The impact of deafness on children, those of working age and elderly people is discussed highlighting the specific effect of genetic factors. In particular there are chapters on deafblindness and otosclerosis and NF2 (a potentially lethal condition). The Who definitions and ICF are used as a framework for considering the effect on people' s lives of impairment and their participation in society. This provides a bridge between the medical and social models of disability. Contributors write from both their professional and personal experience in order to try and address some of the issues raised by the real impact of genetic deafness on everyday life and how these can best be tackled by those working in the field.
Human variation has always existed, though it has been conceived of and responded to variably. Beholding Disability in Renaissance England interprets sixteenth- and seventeenth-century literature to explore the fraught distinctiveness of human bodyminds and the deliberate ways they were constructed in early modernity as able, and not. Hobgood examines early modern disability, ableism, and disability gain, purposefully employing these contemporary concepts to make clear how disability has historically been disavowed-and avowed too. Thus, this book models how modern ideas and terms make the weight of the past more visible as it marks the present, and cultivates dialogue in which early modern and contemporary theoretical models are mutually informative. Beholding Disability also uncovers crucial counterdiscourses circulating in the English Renaissance that opposed cultural fantasies of ability and had a keen sensibility toward non-normative embodiments. Hobgood reads impairments as varied as epilepsy, stuttering, disfigurement, deafness, chronic pain, blindness, and castration in order to understand not just powerful fictions of ability present during the Renaissance but also the somewhat paradoxical, surprising ways these ableist ideals provided creative fodder for many Renaissance writers and thinkers. Ultimately, Beholding Disability asks us to reconsider what we think we know about being human both in early modernity, and today.
Embodied Archive focuses on perceptions of disability and racial difference in Mexico's early post-revolutionary period, from the 1920s to the 1940s. In this period, Mexican state-sponsored institutions charged with the education and health of the population sought to strengthen and improve the future of the nation, and to forge a more racially homogeneous sense of collective identity and history. Influenced by regional and global movements in eugenics and hygiene, Mexican educators, writers, physicians, and statesmen argued for the widespread physical and cognitive testing and categorization of schoolchildren, so as to produce an accurate and complete picture of "the Mexican child," and to carefully monitor and control forms of unwanted difference, including disability and racialized characteristics. Differences were not generally marked for eradication-as would be the case in eugenics movements in the US, Canada, and parts of Europe-but instead represented possible influences from a historically distant or immediate reproductive past, or served as warnings of potential danger haunting individual or collective futures. Weaving between the historical context of Mexico's post-revolutionary period and our present-day world, Embodied Archive approaches literary and archival documents that include anti-alcohol and hygiene campaigns; projects in school architecture and psychopedagogy; biotypological studies of urban schoolchildren and indigenous populations; and literary approaches to futuristic utopias or violent pasts. It focuses in particular on the way disability is represented indirectly through factors that may have caused it in the past or may cause it in the future, or through perceptions and measurements that cannot fully capture it. In engaging with these narratives, the book proposes an archival encounter, a witnessing of past injustices and their implications for the disability of our present and future.
Publicity about neuroscientific research into the dementias spreads quickly compared to the advances made in the field of care-giving. In the absence of cures or treatments for dementia, improving the individual's experience of care and stimulating their capacity for happiness is a more realistic goal than improved cognition. In this comprehensive collection of contributions from America, Australia, Britain and other European countries, the reader can find up-to-date and practical information on research and the latest approaches to care-giving from a multidisciplinary and multiprofessional perspective. |
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