First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation. With a poet's devotion to truth and an activist's demand for justice, Clare deftly unspools the multiple histories from which our ever-evolving sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home: home as place, community, bodies, identity, and activism. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare's exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone. With heart and hammer, Exile and Pride pries open a window onto a world where our whole selves, in all their complexity, can be realized, loved, and embraced.

Without access to a public social welfare system in parts of China, some families face invidious decisions about the lives of their children with disabilities. In other places, children with disabilities can now expect to participate in their families and communities with the same aspirations as other children. Understanding how Chinese policy has changed in the places that have addressed these stark situations is vital for the rights of the children and their families who still struggle to find the support they need. This book examines family experiences of child disability policy in China, and is the first to compile research on this area. It applies a child disability rights framework in four domains - care and protection, economic security, development and participation - to investigate families' experiences of the effectiveness of support to fulfil their children's rights. Questioning how families experience the interrelationships between these rights, it also considers what the further implications of the policy are. It includes vivid case studies of families' experiences, and combines these with national data to draw out the likely future policy directions to which the Chinese government has said it is committed. Bringing together a wealth of statistical and qualitative data on children with disabilities, this book will be of great interest to students and scholars of Chinese social welfare, social policy, society and children's studies, as well as policy-makers and NGOs alike.

There are more opportunities than ever before for young people with disabilities to participate in sport and adapted physical education. For example, there are more than 3.7 million athletes worldwide aligned to the Special Olympics organisation, with national associations active in more than 200 countries worldwide. Despite this rapid growth, all too often coaches and teachers lack adequate knowledge of the particular challenges faced by people with intellectual disabilities. The principal aim of this book is to improve the understanding and professional skills of coaches, teachers, practitioners and researchers, to promote awareness of successful programmes addressing the needs of such young people, and to challenge the prevailing myths and stereotypes surrounding their abilities. With contributions from leading researchers and practitioners around the world, this book is the first to explore in depth the topic of sport and intellectual disability from a coaching perspective. Including both theoretical discussion and empirical case-studies, the book covers a full range of contemporary issues and themes, including training and coaching, family support, perceptions of disability, athlete motivation, positive sport experiences, motor development programmes, and social and cultural aspects of disability. Sport Coaching and Intellectual Disability is important reading for any student, researcher, coach, teacher, manager or policy maker with an interest in disability sport, physical education, coaching, or mainstream disability studies.

Since the 1970s, the international disability rights movement, the United Nations and national governments across the world have attempted to ameliorate the status of the disabled population through a range of legislative and policy measures primarily in the areas of health, education, employment, accessible environments and social security. While the discourse in the disability sector in India has shifted from charity and welfare to human rights and entitlements, disability studies - as an interdisciplinary academic terrain that focuses on the contributions, experiences, history and culture of persons with disabilities - has not yet taken root. This volume collates some of the most recent pioneering work on disability studies from across the country. The essays presented here engage with the concept of disability from a variety of disciplinary positions, sociocultural contexts and subjective experiences within the overarching framework of the Indian reality. The contributors - including some with disabilities themselves - provide a well-rounded perspective, in shifting focus from disability as a medical condition only needing clinical intervention to giving it due social and academic legitimacy. This book outlines key issues that would be germane to any disability studies endeavour in India and South Asia, and will appeal to academics, activists, institutions, laypersons and professionals involved in social welfare, sociology, disability studies, women's studies, psychiatry, rehabilitation, and social and preventive medicine.

For too long, disabled people in Britain have been denied access to employment. Now paid work is being presented as the only route out of poverty and dependence on the state. What is the reality? Working for a living? asks: Does paid work bring disabled people the benefits they are led to expect, or does it have hidden disadvantages? Can disabled people who are not able to work expect to enjoy a good standard of living? The author compares the welfare states of Sweden, Germany and Britain on the basis of social policy provision for disabled people of working age, particularly in the area of income maintenance and employment policy, and uses survey data to analyse the living standards of disabled people both in and out of work. Working for a living? shows that both employment and welfare policies have a vital role to play in securing a good standard of living. The report brings together policy and outcomes in all three countries, and examines the implications for policy in Britain.

What was it like to be disabled in the Middle Ages? How did people become disabled? Did welfare support exist? This book discusses social and cultural factors affecting the lives of medieval crippled, deaf, mute and blind people, those nowadays collectively called "disabled." Although the word did not exist then, many of the experiences disabled people might have today can already be traced back to medieval social institutions and cultural attitudes. This volume informs our knowledge of the topic by investigating the impact medieval laws had on the social position of disabled people, and conversely, how people might become disabled through judicial actions; ideas of work and how work could both cause disability through industrial accidents but also provide continued ability to earn a living through occupational support networks; the disabling effects of old age and associated physical deteriorations; and the changing nature of attitudes towards welfare provision for the disabled and the ambivalent role of medieval institutions and charity in the support and care of disabled people.

There is a growing concern about the social exclusion of a range of minority groups, including people with learning difficulties. Lifelong learning is seen as one of the central means of challenging the exclusion of this group, but also of enhancing their economic status. This book demonstrates that policy based on human capital premises has produced forms of lifelong learning which exacerbate the marginalisation of people with learning difficulties. The Learning Society and people with learning difficulties: reviews the range of policy fields which increasingly intervene in the lifelong learning arena; maps the agencies involved in service delivery and describes their (sometimes conflicting) ethos; provides in-depth accounts of the lived experiences of individuals with learning difficulties as they navigate lifelong learning options. Its exploration of the links between community care, education, training, employment, housing and benefits policies in the context of lifelong learning is unique. This book makes a significant contribution to debates about how people with learning difficulties may achieve social inclusion, and the part which lifelong learning may play in this. It is therefore invaluable reading for policy makers, practitioners and academics interested in these issues.

"A most welcome contribution to the burgeoning field of Deaf Studies. The book performs a vital service to readers by providing them with a comprehensive collection of sources that narrate the struggles, accomplishments and aspirations of our nation's deaf community."
"--I. King Jordan, President, Gallaudet University"

"This is one of those marvelous initiatives that, when you see it, leads you to say, 'Why didn't I think of that?' A very valuable resource not only for the growing numbers of students in Deaf Studies but for everyone who seeks to understand the world of culturally Deaf people.""
"--Harlan Lane, University Distinguished Professor, Northeastern University"

"A landmark in the history of Deaf studies. Bragg has assembled an astonishingly balanced selection of historical sources, personal memoirs, and critical essays to give readers a rich and varied panaroma of perspectives."
"--Yerker Andersson, Professor Emeritus of Sociology and former Chair of Deaf Studies, Gallaudet University"

To many who hear, the deaf world is as foreign as a country never visited.

Deaf World thus concerns itself less with the perspectives of the hearing and more with what Deaf people themselves think and do. Editor Lois Bragg asserts that English is for many signing people a second, infrequently used language and that Deaf culture is the socially transmitted pattern of behavior, values, beliefs, and expression of those who use American Sign Language. She has assembled an astonishing array of historical sources, political writings, and personal memoirs, from classic 19th-century manifestos to contemporary policy papers, on everything from eugenics to speech and lipreading, theright to work and marry, and the never-ending controversy over separation vs. social integration. At the heart of many of the selections lies the belief that Deaf Americans have long constituted an internal colony of sorts in the United States.

While not attempting to speak for Deaf people en masse, this ambitious platform anthology places the Deaf on center stage, offering them an opportunity to represent the world--theirs as well as the hearing world--from a Deaf perspective. For Deaf readers, the book will be welcomed as a gift, both a companion to be savored and, as often, an opponent to be engaged and debated. And for the hearing, it serves as an unprecedented guide to a world and a culture so often overlooked.

Comprising a judicious mix of published pieces and original essays solicited specifically for this volume, Deaf World marks a major contribution.

Literature and Disability introduces readers to the field of disability studies and the ways in which a focus on issues of impairment and the representation of disability can provide new approaches to reading and writing about literary texts. Disability plays a central role in much of the most celebrated literature, yet it is only in recent years that literary criticism has begun to consider the aesthetic, ethical and literary challenges that this poses. The author explores: key debates and issues in disability studies today different forms of impairment, with the aim of showing the diversity and ambiguity of the term "disability" the intersection between literary critical approaches to disability and feminist, post-colonial, and autobiographical writing genre and representations of disability in relation to literary forms including novels, short stories, poems, plays and life writing This volume provides students and academics with an accessible overview of literary critical approaches to disability representation.

Mental health policy in the United States has involved varying approaches, often reflecting the social and economic conditions of the times. The compelling needs of individuals, however, have consistently demanded attention and some form of public policy response has been necessary, even since the early days. Societal reaction has moved in many differing directions--from institutionalization and deinstitutionalization to the care and costs borne at public expense to the current emphasis on increasing privatization.

Dorwart and Epstein stress that the mental health system must be seen as a system within two other systems--health care and social service--if it is to be effective. They have written an authoritative, comprehensive, and practical analysis of the mental health policy area, offering sound policy recommendations.

Few people these days would oppose making the public realm of space, social services and jobs accessible to women and men with disabilities. But what about access to the private realm of desire and sexuality? How can one also facilitate access to that, in ways that respect the integrity of disabled adults, and also of those people who work with and care for them? Loneliness and Its Opposite documents how two countries generally imagined to be progressive engage with these questions in very different ways. Denmark and Sweden are both liberal welfare states, but they diverge dramatically when it comes to sexuality and disability. In Denmark, the erotic lives of people with disabilities are acknowledged and facilitated. In Sweden, they are denied and blocked. Why do these differences exist, and how do both facilitation and hindrance play out in practice? Loneliness and Its Opposite charts complex boundaries between private and public, love and sex, work and intimacy, and affection and abuse. It shows how providing disabled adults with access to sexual lives is not just crucial for a life with dignity. It is an issue of fundamental social justice with far reaching consequences for everyone.

Giving Voice to Profound Disability is devoted to exploring the lives of people with profound and multiple learning difficulties and disabilities, and brings together the voices of those best placed to speak about the rewards and challenges of living with, supporting and teaching this group of vulnerable and dependent people - including parents, carers and teachers. Along with their personal insights the book offers philosophical reflections on the status, role and treatment of profoundly disabled people, and the subjects discussed include: Respect and human dignity Dependency Freedom and human capabilities Rights, equality and citizenship Valuing people Caring for others The experience and reflections presented in this book illustrate the progress and achievements in supporting and teaching people with profound disabilities, but they also reveal the challenges involved in enabling them to develop their full potential. It is suggested, also, that these challenges apply not only to this group, but also to people who, through sickness, accident and old age, face equivalent levels of dependency and disability. Giving Voice to Profound Disability will be of interest to all those involved in the lives of severely and profoundly disabled people, including parents, carers, teachers, nurses, therapists, academics, researchers, students and policymakers.

Giving Voice to Profound Disability is devoted to exploring the lives of people with profound and multiple learning difficulties and disabilities, and brings together the voices of those best placed to speak about the rewards and challenges of living with, supporting and teaching this group of vulnerable and dependent people - including parents, carers and teachers. Along with their personal insights the book offers philosophical reflections on the status, role and treatment of profoundly disabled people, and the subjects discussed include: Respect and human dignity Dependency Freedom and human capabilities Rights, equality and citizenship Valuing people Caring for others The experience and reflections presented in this book illustrate the progress and achievements in supporting and teaching people with profound disabilities, but they also reveal the challenges involved in enabling them to develop their full potential. It is suggested, also, that these challenges apply not only to this group, but also to people who, through sickness, accident and old age, face equivalent levels of dependency and disability. Giving Voice to Profound Disability will be of interest to all those involved in the lives of severely and profoundly disabled people, including parents, carers, teachers, nurses, therapists, academics, researchers, students and policymakers.

This is the first study to examine the representation of illness, disability, and cultural pathologies in modern and contemporary Iberian and Latin American literature. Innovative and interdisciplinary, the collection situates medicine as an important and largely overlooked discourse in these literatures, while also considering the social, political, religious, symbolic, and metaphysical dimensions underpinning illness. Investigating how Hispanic and Lusophone writers have reflected on the personal and cultural effects of illness, it raises central questions about how medical discourses, cultural pathologies, and the art of healing in general are represented. Essays pay particular attention to the ways in which these interdisciplinary dialogues chart new directions in the study of Hispanic and Lusophone cultures, and emerging disciplines such as the medical humanities. Addressing a wide range of themes and subjects including bioethics, neuroscience, psychosurgery, medical technologies, Darwinian evolution, indigenous herbal medicine, the rising genre of the pathography, and the 'illness as metaphor' trope, the collection engages with the discourses of cultural studies, gender studies, disability studies, comparative literature, and the medical humanities. This book enriches and stimulates scholarship in these areas by showing how much we still have to gain from interdisciplinary studies working at the intersections between the humanities and the sciences.

This book brings together research relating to the economics of disability in Ireland. It addresses a range of issues of relevance to the economic circumstances of people with disabilities, considering topics such as social inclusion, poverty, the labour market, living standards and public policy. It also considers issues of specific relevance to children, working-age adults and older people with disabilities, providing important evidence that can help improve disability policies, services and supports. Each chapter presents a clear and relatively non-technical treatment of the specific topic under consideration, making it accessible to a greater number of interested readers. In doing so, it provides an important addition to our knowledge and understanding of the economics of disability and will serve as a useful and up-to-date resource for a range of interested parties both in Ireland and internationally. -- .

Disabled people and employment is a review of research and development initiatives intended to help disabled people get or stay in work, which takes the views of disabled people themselves as a yardstick by which to assess good practice. Drawing on broad-based consultation, it pinpoints gaps in existing research, and highlights the varying requirements of disabled people, employers and service providers as users of research. It also identifies a need for the wide variety of development initiatives which exist to be more effectively targeted, more systematically evaluated, and brought to the attention of a much wider audience. The report is divided into three main parts. The first part explains why the review was carried out and what it covers; the second part considers research to date and existing research and development initiatives; and the final part draws together the themes and evaluates the prospects for future research and development in the areas identified as a priority by disabled people themselves. This report is essential reading for employers, policy makers, service providers, and everyone concerned with getting more disabled people into work.

Disability is often mentioned in discussions of slave health, mistreatment and abuse, but constructs of how "able" and "disabled" bodies influenced the institution of slavery has gone largely overlooked. This volume uncovers a history of disability in African American slavery from the primary record, analyzing how concepts of race, disability, and power converged in the United States in the first half of the nineteenth century. Slaves with physical and mental impairments often faced unique limitations and conditions in their diagnosis, treatment, and evaluation as property. Slaves with disabilities proved a significant challenge to white authority figures, torn between the desire to categorize them as different or defective and the practical need to incorporate their "disorderly" bodies into daily life. Being physically "unfit" could sometimes allow slaves to escape the limitations of bondage and oppression, and establish a measure of self-control. Furthermore, ideas about and reactions to disability-appearing as social construction, legal definition, medical phenomenon, metaphor, or masquerade-highlighted deep struggles over bodies in bondage in antebellum America.

Phil Fennell's tightly argued study traces the history of treatment of mental disorder in Britain over the last 150 years. He focuses specifically on treatment of mental disorder without consent within psychiatric practice, and on the legal position which has allowed it. Treatment Without Consent examines many controversial areas: the use of high-strength drugs and Electro Convulsive Therapy, physical restraint and the vexed issue of the sterilisation of people with learning disabilities. Changing notions of consent are discussed, from the common perception that relatives are able to consent on behalf of the patient, to present-day statutory and common law rules, and recent Law Commission recommendations. This work brings a complex and intriguing area to life; it includes a table of legal sources and an extensive bibliography. It is essential reading for historians, lawyers and all those who are interested in the treatment of mental disorder.

The first book to explore food allergies in the United States from the perspective of disability and race Are food allergies disabilities? What structures and systems ensure the survival of some with food allergies and not others? Allergic Intimacies is a groundbreaking critical engagement with food allergies in their cultural representations, advocacy, law, and stories about personal experiences from a disability studies perspective. Author Michael Gill questions the predominantly individualized medical approaches to food allergies, pointing out that these approaches are particularly problematic where allergy testing and treatments are expensive, inconsistent, and inaccessible for many people of color. This thought-provoking book explores the multiple meanings of food allergies and eating in the United States, demonstrating how much more is at stake than we realize, at a critical time when food allergies are on the rise: An estimated 32 million Americans, including one in thirteen children, have food allergies. Diagnoses of food allergies in children have increased by 50 percent since 1997. Yet as the author makes clear, the whiteness of the food allergy community and single-identity disability theory is inherently limiting and insufficient to address the complex choices that those with food allergies make. Gill argues that racism and ableism create unique precarity for disabled people of color that food allergic communities are only beginning to address. There is a huge disparity in access to testing and treatment, with African American and Latinx children having higher risk of adverse outcomes than white children, including more rates of anaphylaxis. Food allergy professionals have a responsibility to move beyond individualized approaches to more robust coalitional efforts grounded in disability and racial justice to undo these patterns of exclusion. Allergic Intimacies celebrates the various creative ways food allergic communities are challenging historical and current practice of exclusion, while identifying the depth of work that still needs to be done to shift focus from a white allergic experience toward a more representative understanding of the racial, ethnic, religious, and economic diversity of those in the United States. Gill's book is a discerning and vital exploration of the key debates about risks, dangers, safety, representations, and political concerns affecting the lives of individuals with food allergies.

Sports are ubiquitous in American society, and given their prominence in the culture, it is easy to understand how most youth in the United States face pressure to participate in organized sports. But what does this mean for the hundreds of thousands of Americans who live with one or more physical disabilities and, in particular, those in powered wheelchairs? Located at the intersection of sports and disability, this book tells the story of power soccer - the first competitive team sport specifically designed for electric wheelchair users. Beginning in France in the 1970s, today, over sixty teams compete within the United States Power Soccer Association (USPSA) and the sport is actively played in over thirty countries. Using ethnographic research conducted while attending practices, games, and social functions of teams from across the nation, Jeffress builds a strong case that electric wheelchair users deserve more opportunity to play sports. They deserve it because they need the same physical and psychosocial benefits from participation as their peers, who have full use of their arms and legs. It challenges the social constructions and barriers that currently stand in the way. Most importantly, this book tells the story of some amazing power soccer athletes. It is a moving, first-hand account of what power soccer means to them and the implications this has for society.

Grouped around four central themes - illness and impairment, disabling processes, care and control, and communication and representations - this collection offers a fresh perspective on disability research, showing how theory and data can be brought together in new and exciting ways. Disability Research Today starts by showing how engaging with issues around illness and impairment is vital to a multidisciplinary understanding of disability as a social process. The second section explores factors that affect disabled people, such as homelessness, violence and unemployment. The third section turns to social care, and how disabled people are prevented from living with independence and dignity. Finally, the last section examines how different imagery and technology impacts our understandings of disability and deafness. Showcasing empirical work from a range of countries, including Japan, Norway, Italy, Australia, India, the UK, Turkey, Finland and Iceland, this collection shows how disability studies can be simultaneously sophisticated, accessible and policy-relevant. Disability Research Today is suitable for students and researchers in disability studies, sociology, social policy, social work, nursing and health studies.

Supporting Change in Autism Services explores the theoretical and practical dimensions of improving service provision for children, young people and adults with autism. The core aim of the book is to identify and critically examine some of the key factors that either facilitate or inhibit the implementation of good autism practice at both practitioner level and workplace level. It shows practitioners and students how to successfully translate autism theory into practice across service contexts and showcases a range of practitioner case studies throughout the text in order to illustrate effective implementation. Topics explored include: controversies and ambiguities in autism policy, theory and discourse; understanding autism in an inclusive context; enabling participation; making sense of behaviour; autism and interprofessionalism; strategic planning for autism friendly services; bridging the implementation gap. This book is essential reading for anyone interested in improving services for people with autism in the education, social care, health and voluntary sectors.

Tanzanian Women in Their Own Words is a compilation of oral histories by Tanzanian women living with disabilities or chronic illnesses. Beginning with their earliest childhood memories, the narrators weave their life stories through adulthood, telling of the hardships and support systems in their daily lives. A rich knowledge of Tanzanian culture is embedded in each story; for instance the pivotal role tribal affiliation, polygamy, and poverty play in society is addressed. HIV/AIDS, cancer, polio, female circumcision, and TB are just a few of the health issues covered; Feinstein and D'Errico make a concerted effort to include the major medical challenges facing this developing country, including an interview with an albino woman that introduces the little discussed atrocity of albinos being murdered for body parts to be used in ritual medicine practices. In spite of the abuse and exclusion many of the women suffer, eventually each learns to live in harmony with her reality. This makes their lives inspiring and gives perspective to those facing physical challenges. Tanzanian Women in Their Own Words encourages readers to consider issues of health care, transportation, ignorance, polygamy, gender discrimination, and rural isolation. Through learning about the health challenges faced by Tanzanian women, students are introduced to the lifeways and concerns of Tanzanian culture, the challenges faced by many developing countries, and the intimate and evocative level of detail that can only be discovered through intensive ethnographic fieldwork.

In The Terrible We Cameron Awkward-Rich thinks with the bad feelings and mad habits of thought that persist in both transphobic discourse and trans cultural production. Observing that trans studies was founded on a split from and disavowal of madness, illness, and disability, Awkward-Rich argues for and models a trans criticism that works against this disavowal. By tracing the coproduction of the categories of disabled and transgender in the United States at the turn of the twentieth century and analyzing transmasculine literature and theory by Eli Clare, Elliott DeLine, Dylan Scholinski, and others, Awkward-Rich suggests that thinking with maladjustment might provide new perspectives on the impasses arising from the conflicted relationships among trans, feminist, and queer. In so doing, he demonstrates that rather than only impeding or confining trans life, thought, and creativity, forms of maladjustment have also been and will continue to be central to their development. Duke University Press Scholars of Color First Book Award recipient

The London 2012 Paralympic Games - the biggest, most accessible and best-attended games in the Paralympics' 64-year history - came with an explicit aim to "transform the perception of disabled people in society," and use sport to contribute to "a better world for all people with a disability." This social agenda offered the potential to re-frame disability; to symbolically challenge "ableist" ideology and to offer a reinvention of the (dis)abled body and a redefinition of the possible. This edited collection investigates what has and is happening in relation to these ambitions. The book is structured around three key questions: 1. What were the predominant mediated narratives surrounding the Paralympics, and what are the associated meanings attached to them? 2. How were the Paralympics experienced by media audiences (both disabled and non-disabled)? 3. To what extent did the 2012 Paralympics inspire social change? Each section of this book is interspersed with authentic "voices" from outside academia: broadcasters, athletes and disabled schoolchildren.