Two cogent arguments about end-of-life careand carefully reasoned responses from experts End-of-Life Care: Bridging Disability and Aging with Person Centered Care features two primary papers on the controversial issue of end-of-life care within the disabled and aging populations. Each paper explainsclearly and honestlythe multitude of issues involved in using person centered care. The first is from a father and nationally known advocate for the disabledRud Turnbullspeaking from a disability perspective about his disabled son. The second is from respected theologian M. J. Iozzio speaking from the aging perspective about her father's Alzheimer's disease. Responses from experts in the field follow, thoughtfully raising further points to consider about policies, ethics, quality of life, and consent. The two central papers from End-of-Life Care focus on person centered, interdependent care using the personal reflections of two close family members and their views about end-of-life care. The responses that follow each are direct, thoughtful, and concentrate on the issues in end-of-life planning using person centered care. This difficult and important issue is discussed in detail by lawyers, theologians, clinical practitioners, and professional service providers, and includes several revealing personal stories about end-of-life experiences. Helpful resources for both policy and practice are also presented to assist the reader to learn more. End-of-Life Care discusses: who, how, and on what grounds end-of-life decisions should be made for the developmentally/intellectually disabled best practices information from Volunteers of America's Last Passages project the unique challenges faced by individuals with disabilities and their families when confronting issues of death and dying the protection of the rights of the disabled from discrimination person centered care for the aging with complicating health conditions like Alzheimer's Disease helping all people to clearly communicate their end-of-life wishes End-of-Life Care explores explores policy, theological, and personal dimensions of end of life care, and the ways that person centered care can bridge the fields of aging and disabilty.

The Paralympic Games is the second largest multi-sport festival on earth and an event which poses profound and challenging questions about the nature of sport, disability and society. The Paralympic Games Explained is the first complete introduction to the Paralympic phenomenon, exploring every key aspect and issue, from the history and development of the Paralympic movement to the economic and social impact of the contemporary Games. Now in a fully revised and updated second edition, it includes new material on hosting and legacy, Vancouver 2010 to Rio 2016, sport for development, and case studies of an additional ten Paralympic nations. Drawing on a range of international examples, it discusses key issues such as: * how societal attitudes influence disability sport * the governance of Paralympic and elite disability sport * the relationship between the Paralympics and the Olympics * drugs and technology in disability sport * classification in disability sport. Containing useful features including review questions, study activities, web links and guides to further reading throughout, The Paralympic Games Explained is the most accessible and comprehensive guide to the Paralympics currently available. It is essential reading for all students with an interest in disability sport, sporting mega-events, the politics of sport, or disability in society.

The mapping, control and subjugation of the human body and mind were core features of the colonial conquest. This book draws together a rich collection of diverse, yet rigorous, papers that aim to expose the presence and significance of disability within colonialism, and how disability remains present in the establishment, maintenance and continuation of colonial structures of power. Disability as a site of historical analysis has become critically important to understanding colonial relations of power and the ways in which gender and identity are defined through colonial categorisations of the body. Thus, there is a growing prominence of disability within the historical literature. Yet, there are few international anthologies that traverse a critical level of depth on the subject domain. This book fills a critical gap in the historical literature and is likely to become a core reader for post graduate studies within disability studies, postcolonial studies and more broadly across the humanities. The chapters in this book were originally published as articles in Social Identities: Journal for the Study of Race, Nation and Culture.

In After War Zoe H. Wool explores how the American soldiers most severely injured in the Iraq and Afghanistan wars struggle to build some kind of ordinary life while recovering at Walter Reed Army Medical Center from grievous injuries like lost limbs and traumatic brain injury. Between 2007 and 2008, Wool spent time with many of these mostly male soldiers and their families and loved ones in an effort to understand what it's like to be blown up and then pulled toward an ideal and ordinary civilian life in a place where the possibilities of such a life are called into question. Contextualizing these soldiers within a broader political and moral framework, Wool considers the soldier body as a historically, politically, and morally laden national icon of normative masculinity. She shows how injury, disability, and the reality of soldiers' experiences and lives unsettle this icon and disrupt the all-too-common narrative of the heroic wounded veteran as the embodiment of patriotic self-sacrifice. For these soldiers, the uncanny ordinariness of seemingly extraordinary everyday circumstances and practices at Walter Reed create a reality that will never be normal.

An Introduction to Audio Description is the first comprehensive, user-friendly student guide to the theory and practice of audio description, or media narration, providing readers with the skills needed for the effective translation of images into words for the blind and partially-sighted. A wide range of examples - from film to multimedia events and touch tours in theatre, along with comments throughout from audio description users, serve to illustrate the following key themes: the history of audio description the audience the legal background how to write, prepare and deliver a script. Covering the key genres of audio description and supplemented with exercises and discussion points throughout, this is the essential textbook for all students and translators involved in the practice of audio description. Accompanying film clips are also available at: https://www.routledge.com/products/9781138848177 and on the Routledge Translation Studies Portal: http://cw.routledge.com/textbooks/translationstudies/.

There are over thirty million disabled people in Russia and Eastern Europe, yet their voices are rarely heard in scholarly studies of life and well-being in the region. This book brings together new research by internationally recognised local and non-native scholars in a range of countries in Eastern Europe and the former Soviet Union. It covers, historically, the origins of legacies that continue to affect well-being and policy in the region today. Discussions of disability in culture and society highlight the broader conditions in which disabled people must build their identities and well-being whilst in-depth biographical profiles outline what living with disabilities in the region is like. Chapters on policy interventions, including international influences, examine recent reforms and the difficulties of implementing inclusive, community-based care. The book will be of interest both to regional specialists, for whom well-being, equality and human rights are crucial concerns, and to scholars of disability and social policy internationally.

In The Family Fund, first published in 1980, Bradshaw discusses the introduction of The Family Fund- a grant given to families in response of the discovery of the damages caused by the Thalidomide drug. He examines all aspects of the Fund including its origins, aims, publicity and its future. This text is ideal for students of sociology.

Disability & Justice: The Capabilities Approach in Practice examines the capabilities approach and how, as a matter of justice, the experience of disability is accounted for. It suggests that the capabilities approach is first, unable to properly diagnose both those who are in need as well as the extent to which assistance is required. Furthermore, it is suggested that counterfactually, if this approach to justice were capable of assessing need, that it would fail to be as stigma-sensitive as other approaches of justice. That is to say, the capabilities approach would have the possibility of further stigmatizing those requiring accommodation. Finally, Disability & Justice argues that health and the absence of disability belong in a category of functionings that are of special moral importance-a fact the Capabilities Approach fails to recognize.

Few people these days would oppose making the public realm of space, social services and jobs accessible to women and men with disabilities. But what about access to the private realm of desire and sexuality? How can one also facilitate access to that, in ways that respect the integrity of disabled adults, and also of those people who work with and care for them? Loneliness and Its Opposite documents how two countries generally imagined to be progressive engage with these questions in very different ways. Denmark and Sweden are both liberal welfare states, but they diverge dramatically when it comes to sexuality and disability. In Denmark, the erotic lives of people with disabilities are acknowledged and facilitated. In Sweden, they are denied and blocked. Why do these differences exist, and how do both facilitation and hindrance play out in practice? Loneliness and Its Opposite charts complex boundaries between private and public, love and sex, work and intimacy, and affection and abuse. It shows how providing disabled adults with access to sexual lives is not just crucial for a life with dignity. It is an issue of fundamental social justice with far reaching consequences for everyone.

The United Nations Convention on the Rights of Persons with Disabilities is the only UN treaty to date in which the people who are its target, that is disabled people, were actively involved in its drafting and the only one which requires the active participation of disabled people in its implementation. This does not, of course, automatically guarantee the direct participation of all disabled people. This is especially so for children with disabilities, whose status as legal minors may inhibit them from participating in decisions affecting their lives. This book focuses on the participation rights of the disabled child with regard to health, education, homelife and relationships, highlighting ways in which these rights are safeguarded and promoted throughout the EU, as well as exploring the factors that put these rights at risk. Finally, this groundbreaking text analyses whether disabled children's needs for assistance in order to realise their participation rights results in fewer opportunities to participate or in an increase in support in order for them to be able to do so.

Over the past two decades, there has been increasing recognition of the ways in which disabled children and adults have been denied human and civil rights that others take for granted. In the year 2000, the Human Rights Act 1998 came into force. This book reviews the implications of the Act for disabled people. The book provides: an overview of key policy and legislative developments in the UK in relation to disabled children and adults in the post war period; an outline of the European Convention on Human Rights, The Human Rights Act 1998 and related procedures; an account of the ways in which disabled people's human rights have increasingly become a matter of concern and the implications of the Human Rights Act in relation to specific issues; a debate about the ways in which public bodies and practitioners within them can engage positively with the provisions of the Human Rights Act to develop better practice. Disabled people and human rights will be of interest to both disabled people themselves and organisations representing their interests, professionals whose work brings them into contact with disabled people, and students of social work, social care, disability studies and law.

In this wide-ranging and probing book Erin Manning extends her previous inquiries into the politics of movement to the concept of the minor gesture. The minor gesture, although it may pass almost unperceived, transforms the field of relations. More than a chance variation, less than a volition, it requires rethinking common assumptions about human agency and political action. To embrace the minor gesture's power to fashion relations, its capacity to open new modes of experience and manners of expression, is to challenge the ways in which the neurotypical image of the human devalues alternative ways of being moved by and moving through the world-in particular what Manning terms "autistic perception." Drawing on Deleuze and Guattari's schizoanalysis and Whitehead's speculative pragmatism, Manning's far-reaching analyses range from fashion to depression to the writings of autistics, in each case affirming the neurodiversity of the minor and the alternative politics it gestures toward.

Representing Youth with Disability on Television is a complex and multidimensional mainstream cultural discourse that examines specific stereotypes in fictional programming. The book draws attention to the group labeled as disabled, which is often marginalized, misrepresented, and misunderstood in the media, by analyzing the popular television programs Glee, Breaking Bad, and Parenthood. To obtain a more rigorous account of the way that youth (9-18 years of age) with disability are framed on television, this analysis examines the following issues: how research on popular culture is contextualized within social theory; the theoretical perspectives on representations of disability in popular culture; and the various contexts, genres, media, representations, and definitions of youth with disability in popular culture. The text also outlines the historical growth of disability, which is crucial for a discussion regarding the changing dimensions of popular culture. Critical hermeneutics, content analysis, and methodological bricolage are the melange of methodologies used to closely examine the dominant models of disability (social vs. medical) used in the portrayal of disabled youth on television today.

A crucial contemporary dynamic around children and young people in the Global North is the multiple ways that have emerged to monitor their development, behaviour and character. In particular disabled children or children with unusual developmental patterns can find themselves surrounded by multiple practices through which they are examined. This rich book draws on a wide range of qualitative research to look at how disabled children have been cared for, treated and categorised. Narrative and longitudinal interviews with children and their families, along with stories and images they have produced and notes from observations of different spaces in their lives - medical consultation rooms, cafes and leisure centres, homes, classrooms and playgrounds amongst others - all make a contribution. Bringing this wealth of empirical data together with conceptual ideas from disability studies, sociology of the body, childhood studies, symbolic interactionism and feminist critical theory, the authors explore the multiple ways in which monitoring occurs within childhood disability and its social effects. Their discussion includes examining the dynamics of differentiation via medicine, social interaction, and embodiment and the multiple actors - including children and young people themselves - involved. The book also investigates the practices that differentiate children into different categories and what this means for notions of normality, integration, belonging and citizenship. Scrutinising the multiple forms of monitoring around disabled children and the consequences they generate for how we think about childhood and what is 'normal', this volume sits at the intersection of disability studies and childhood studies.

This book reinforces the need for understanding and support for children with dyslexia from parents and teachers, but also the importance of the children's own understanding of their strengths and weaknesses in order to fulfil their potential. It should be recommended reading for all those involved in dyslexia. - Professor Angela Fawcett, Director of the Centre for Child Research, Swansea University What is it like living with dyslexia on a day-to-day basis? Based on interviews with dyslexic children and their families, this insightful book presents first-hand accounts of how dyslexia affects the children themselves and the people around them. Living with Dyslexia, Second Edition places the original fascinating findings within the context of current research and practice in the UK, Europe, Australia and the USA. The author: examines issues of confidence and self-esteem; explores the coping strategies adopted by children and adults with dyslexia; investigates the concept of dyslexia-friendly schools; studies how children were first identified as having dyslexia, and the social and emotional difficulties they encountered; offers guidance on how teachers and parents can best support children with specific learning difficulties; considers the cognitive, educational, social and emotional perspectives in order for teachers and parents to gain a better understanding of dyslexia. This new edition provides an updated account of cognitive research and examines important changes in relation to Special Educational Needs policy and practice in the last ten years, including the Revised SEN Code of Practice (2001), Removing Barriers to Achievement (2004) and the National Literacy Strategy (2006). Living with Dyslexia recognises that the voices of children with dyslexia are increasingly important in developing good educational practice and makes an important contribution to the literature on dyslexia.

First published in 1999, the groundbreaking Exile and Pride is essential to the history and future of disability politics. Eli Clare's revelatory writing about his experiences as a white disabled genderqueer activist/writer established him as one of the leading writers on the intersections of queerness and disability and permanently changed the landscape of disability politics and queer liberation. With a poet's devotion to truth and an activist's demand for justice, Clare deftly unspools the multiple histories from which our ever-evolving sense of self unfolds. His essays weave together memoir, history, and political thinking to explore meanings and experiences of home: home as place, community, bodies, identity, and activism. Here readers will find an intersectional framework for understanding how we actually live with the daily hydraulics of oppression, power, and resistance. At the root of Clare's exploration of environmental destruction and capitalism, sexuality and institutional violence, gender and the body politic, is a call for social justice movements that are truly accessible to everyone. With heart and hammer, Exile and Pride pries open a window onto a world where our whole selves, in all their complexity, can be realized, loved, and embraced.

There are more opportunities than ever before for young people with disabilities to participate in sport and adapted physical education. For example, there are more than 3.7 million athletes worldwide aligned to the Special Olympics organisation, with national associations active in more than 200 countries worldwide. Despite this rapid growth, all too often coaches and teachers lack adequate knowledge of the particular challenges faced by people with intellectual disabilities. The principal aim of this book is to improve the understanding and professional skills of coaches, teachers, practitioners and researchers, to promote awareness of successful programmes addressing the needs of such young people, and to challenge the prevailing myths and stereotypes surrounding their abilities. With contributions from leading researchers and practitioners around the world, this book is the first to explore in depth the topic of sport and intellectual disability from a coaching perspective. Including both theoretical discussion and empirical case-studies, the book covers a full range of contemporary issues and themes, including training and coaching, family support, perceptions of disability, athlete motivation, positive sport experiences, motor development programmes, and social and cultural aspects of disability. Sport Coaching and Intellectual Disability is important reading for any student, researcher, coach, teacher, manager or policy maker with an interest in disability sport, physical education, coaching, or mainstream disability studies.

Since the 1970s, the international disability rights movement, the United Nations and national governments across the world have attempted to ameliorate the status of the disabled population through a range of legislative and policy measures primarily in the areas of health, education, employment, accessible environments and social security. While the discourse in the disability sector in India has shifted from charity and welfare to human rights and entitlements, disability studies - as an interdisciplinary academic terrain that focuses on the contributions, experiences, history and culture of persons with disabilities - has not yet taken root. This volume collates some of the most recent pioneering work on disability studies from across the country. The essays presented here engage with the concept of disability from a variety of disciplinary positions, sociocultural contexts and subjective experiences within the overarching framework of the Indian reality. The contributors - including some with disabilities themselves - provide a well-rounded perspective, in shifting focus from disability as a medical condition only needing clinical intervention to giving it due social and academic legitimacy. This book outlines key issues that would be germane to any disability studies endeavour in India and South Asia, and will appeal to academics, activists, institutions, laypersons and professionals involved in social welfare, sociology, disability studies, women's studies, psychiatry, rehabilitation, and social and preventive medicine.

The award-winning creators of Intensive Interaction bring this groundbreaking book up to date with new material covering inclusion and emotional literacy. The book also includes: a brand new section looking at the program's implementation in preschool settings the particular benefits of Intensive Interaction for children who have Autistic Spectrum Disorders a 'how to do it' chapter including ideas for assessment case studies to help practitioners get to grips with the realities of using Intensive Interaction. This book has been updated to include the new SEN Disability Act (SENDA), and developments in new technology.

First published in 1985, this book considers the financial consequences of parents and other relatives caring for severely disabled children at home. At the time of publication little reliable information was available on the costs incurred by 'informal carers', which this book set to rectify. The volume interweaves hard statistical material about money with the detailed personal responses of parents. It examines the claim that disablement in a child reduces parents' earnings while simultaneously creating an extra expense. The author compares the incomes and expenditure patterns of more than 500 families with disabled children and 700 control families of the time showing that the financial effects of disablement in a child can be far-reaching and pervasive. This book discusses contemporary policy implications of these findings in a chapter dealing with the rational for compensating families with disabled children, and in the final chapter. Although the book was original published in 1985, it references issues that are still important today and, whilst its main concern is families with disabled children, it will also be useful to anyone caring for other kinds of dependent people, such as the elderly.

First published in 1990, this book was the first informed study to focus on care within the voluntary sector. Written with the child in mind, it is a sensitive work which explores the administration, strategy, and problems facing carers in children's homes, at that time. Centring on small, community-based facilities, the authors discuss the processes involved in setting up and running such facilities. They examine the difficulties of evaluating progressive services that are influenced by the philosophy of normalisation, and highlight the lessons from which other providers of services are able to learn. Written by experienced researchers with contributions from service managers, Normalisation in Practice offers pragmatic advice on managing innovation efficiently without neglecting the needs of the child. Detailed interviews are combined with theoretical insight to provide an important guide for students and practitioners and a model for academics undertaking evaluative research. Although written at the start of the 1990s, this book contains discussions and material that are still very relevant to the subject today.

First published in 1986, this study explores the increased public concern with policies of 'community care' and their effects on informal carers, at that time. It looks at the widespread evidence that one particular group of informal carers- parents looking after their severely disabled child- lack information, advice and a co-ordinated pattern of supporting services. The author, who carried out research on disabled children and their families for a number of years, describes in detail a low-cost experimental project in which specialist social workers set out to remedy these shortcomings. Drawing on the results of this particular study, the author argues strongly for widespread assignment of 'key' social workers to this and other groups of informal carers. Despite being written in the mid-1980s, this book discusses topic that will still be of interest and use today.

First published in 1989, this book is about integrating or mainstreaming policies, looking specifically at how to improve circumstances for schoolchildren with disabilities or handicaps, and their teachers. The author draws on her experiences, both within and outside the academic institution, to conceptualise and theorise policy, so as to place this policy in a political framework and locate it in a wider model of social life. This model is then used to disentangle the nature and effects of policy practices surrounding integration and mainstreaming, looking at practice in various parts of Europe, the US and Australia, at that time. Although written at the end of the 1980s, this book discusses topics that are still relevant today.

First published in 1987, this book focuses on childhood disability within the family. It examines the very nature of disability itself, as well as many of the fundamental elements of families. The book was written at a time when the meaning level of disability and its effect on family and society were rapidly changing and people with disabilities were starting to benefit from opportunities to compensate for whatever disabilities they may have had. Modern technology and an affluent society afforded advantages to support many of its disabled members. Contributors examine the contemporary context of disability, the cost of disability to families, ethical, philosophical and social issues underlying the treatment and rehabilitation of children with severe disabilities, and the role of professionals, amongst other topics. This book will be of interest to those involved in teaching, research and direct care with families who have children with disabilities. Although written in the late 80s, the work discusses subjects that are still vital today.

First published in 1975, this book looks at the place of children with handicaps in society, at that time. It argues that in the thirty years previous, a great deal of progress was made in the field of rehabilitation but that the separation between handicapped people and the community was still a challenge. A strong range of contributors discuss approaches to the problem focusing on education, employment, and daily life. Topics covered include the social aspects of integration, through the problems of the multiple-handicapped child, to a survey of disabled students at universities and polytechnics in Great Britain.