From the critique of the medical model of disability undertaken during the early and mid-1990s, a social model emerged, particularly in the caring professions and those trying to shape policy and practice for people with disability. In education and schooling, it was a period of cementing inclusive practices and the integration and inclusion of disability into mainstream . What was lacking in the debates around the social model, however, were the challenges to abledness that were being grappled with in the routine and pragmatics of self-care by people with disabilities, their families, carers and caseworkers. Outside the academy, new forms of activity and new questions were circulating. Challenges to abledness flourished in the arts and constituted the lived experience of many disability activists.

Disability Matters engages with the cultural politics of the body, exploring this fascinating and dynamic topic through the arts, teaching, research and varied encounters with disability ranging from the very personal to the professional. Chapters in this collection are drawn from scholars responding in various registers and contexts to questions of disability, pedagogy, affect, sensation and education. Questions of embodiment, affect and disability are woven throughout these contributions, and the diverse ways in which these concepts appear emphasize both the utility of these ideas and the timeliness of their application.

This book was originally published as a special issue of Discourse: Studies in the Cultural Politics of Education."

What challenges are posed by changing transnational trends, agendas and movements that affect disabled people's lives, and what can disabled people, their representative organisations and their governments do to advance the agenda for self-determination and inclusion? This book draws together the writing of academics and activists to depict the experience and perspective of disabled people in relation to a range of contemporary social changes, with a focus firmly on ways in which disabled people and their allies can act to counter disabling policies and practices. Throughout the book there is an emphasis on disabled people's own voices and activism as the critical driver of theoretical critique and practical change. Chapters address a wide range of cultural, institutional and personal arenas to explore and contest the boundaries that disabled people seek to move beyond, from cross-border labour movements in Korea to experience of day services in England, from continuing and long-lasting realities of wars in Lebanon, Cambodia and Somalia to the beauty of harmony in Navajo traditions for understanding disability, from collective activism to individual participation in the Olympics. This book is recommended reading for students, researchers and activists interested in Disability Studies and is directly relevant to policy makers and practitioners in a position to reshape rights, spaces and innovations in response to the priorities disabled people feel and articulate are important for their lives. It was originally published as a special issue of Disability & Society.

This book provides a comprehensive and interdisciplinary examination of disability, hate crime and violence, exploring its emergence on the policy agenda. Engaging with the latest debates in criminology, disability and violence studies, it goes beyond conventional notions of hate crime to look at violences in their myriad forms as they are seen to impact upon disabled people s lives.

Despite a raft of relevant policy and legislation, few have attempted to draw together research on the disabled as victims of hate crime and violence. This innovative volume conceptualizes issues of disability, hate crime and violence and connects empirical research with theoretical insights. Making links between criminal justice policy, social care and welfare, it highlights areas of best practice and makes suggestions for policy and legislative reform. Disability, Hate Crime and Violence is written in accessible language, with minimal jargon and an international focus. Each chapter is grounded in research and practice, with relevant policy and legislation clearly signposted throughout.

Disability, Hate Crime and Violence provides a much needed theoretical and practical investigation of the key issues around disabled hate crime and violence. It is an important work for students and academics researching and studying in disability studies, criminology, social policy and sociology, as well as those with an interest in domestic violence studies and broader historical and philosophical constructions of disability, violence and social harms."

Whilst legislation may have progressed internationally and nationally for disabled people, barriers continue to exist, of which one of the most pervasive and ingrained is attitudinal. Social attitudes are often rooted in a lack of knowledge and are perpetuated through erroneous stereotypes, and ultimately these legal and policy changes are ineffectual without a corresponding attitudinal change. This unique book provides a much needed, multifaceted exploration of changing social attitudes toward disability. Adopting a tripartite approach to examining disability, the book looks at historical, cultural, and education studies, broadly conceived, in order to provide a multidisciplinary and interdisciplinary approach to the documentation and endorsement of changing social attitudes toward disability. Written by a selection of established and emerging scholars in the field, the book aims to break down some of the unhelpful boundaries between disciplines so that disability is recognised as an issue for all of us across all aspects of society, and to encourage readers to recognise disability in all its forms and within all its contexts. This truly multidimensional approach to changing social attitudes will be important reading for students and researchers of disability from education, cultural and disability studies, and all those interested in the questions and issues surrounding attitudes toward disability.

Over the past fifty years, design and branding have become omnipotent in the market and have made their way to other domains as well. Given their potential to divide humans into categories and label their worth and value, design and branding can wield immense but currently unharnessed powers of social change. Groups designed as devalued can be undesigned, redesigned and rebranded to seamlessly and equivalently participate in community, work and civic life. This innovative book argues that disability as a concept and category is created, reified, and segregated through current design and branding that begs for creative change. Transcending models of disability that locate it either as an embodied medical condition or as a socially constructed entity, this book challenges the very existence and usefulness of the category itself. Proposing and illustrating creative and responsible design, DePoy and Gilson include thinking and action strategies that are useful and potent for "undesigning", redesigning, and rebranding to meet the full range of human needs and to enhance full participation in local through global communities. Divided into two parts, the first section presents a critical examination of disability as a designed and branded phenomenon, exploring what exactly is being designed and branded and how. The second part investigates the redesign of disability and provides principles for redesign and rebranding illustrated with examples from high-tech to place-based sustainable strategies. The book provides a unique and contemporary framework for thinking about disability as well as providing relevant design and branding guidance to designers and engineers interested in embodiment issues.

Geographies of disability have become a key research priority for many disability scholars and geographers. This edited collection, incorporating the work of leading international disability researchers, seeks to expand the current geographical frame operating within the realm of disability. Providing a critical and comprehensive examination of disability and spatial processes of exclusion and inclusion for disabled people, the book uniquely brings together insights from disability studies, spatial geographies and social policy with the purpose of exploring how spatial factors shape, limit or enhance policy towards, and the experiences of, disabled people. Divided into two parts, the first section explores the key concepts to have emerged within the field of disability geographies, and their relationship to new policy regimes. New and emerging concepts within the field are critically explored for their significance in conceptually framing disability. The second section provides an in-depth examination of disabled people's experience of changing landscapes within the onset of emerging disability policy regimes. It deals with how the various actors and stakeholders, such as governments, social care agencies, families and disabled people traverse these landscapes under the new conditions laid out by changing policy regimes. Crucially, the chapters examine the lived meaning of changing spatial relations for disabled people. Grounded in recent empirical research, and with a global focus, each of the chapters reveal how social policy domains are challenged or undermined by the spatial realities faced by disabled people, and expands existing understandings of disability. In turn, the book supports readers to grasp future policy directions and processes that enable disabled people's choices, rights and participation. This important work will be invaluable reading for students and researchers involved in disability, geography and social policy.

In Feminist, Queer, Crip Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world.

Disability studies scholars and activists have long criticized and critiqued so-termed 'charitable' approaches to disability where the capitalization of individual disabled bodies to invoke pity are historically, socially, and politically circumscribed by paternalism. Disabled individuals have long advocated for civil and human rights in various locations throughout the globe, yet contemporary human rights discourses problematically co-opt disabled bodies as 'evidence' of harms done under capitalism, war, and other forms of conflict, while humanitarian non-governmental organizations often use disabled bodies to generate resources for their humanitarian projects. It is the connection between civil rights and human rights, and this concomitant relationship between national and global, which foregrounds this groundbreaking book's contention that disability studies productively challenge such human rights paradigms, which troublingly eschew disability rights in favor of exclusionary humanitarianism. It relocates disability from the margins to the center of academic and activist debates over the vexed relationship between human rights and humanitarianism. These considerations thus productively destabilize able-bodied assumptions that undergird definitions of personhood in civil rights and human rights by highlighting intersections between disability, race, gender ethnicity, and sexuality as a way to interrogate the possibilities (and limitations) of human rights as a politicized regime.

There are more opportunities than ever before for young people with disabilities to participate in sport and adapted physical education. For example, there are more than 3.7 million athletes worldwide aligned to the Special Olympics organisation, with national associations active in more than 200 countries worldwide. Despite this rapid growth, all too often coaches and teachers lack adequate knowledge of the particular challenges faced by people with intellectual disabilities. The principal aim of this book is to improve the understanding and professional skills of coaches, teachers, practitioners and researchers, to promote awareness of successful programmes addressing the needs of such young people, and to challenge the prevailing myths and stereotypes surrounding their abilities. With contributions from leading researchers and practitioners around the world, this book is the first to explore in depth the topic of sport and intellectual disability from a coaching perspective. Including both theoretical discussion and empirical case-studies, the book covers a full range of contemporary issues and themes, including training and coaching, family support, perceptions of disability, athlete motivation, positive sport experiences, motor development programmes, and social and cultural aspects of disability. Sport Coaching and Intellectual Disability is important reading for any student, researcher, coach, teacher, manager or policy maker with an interest in disability sport, physical education, coaching, or mainstream disability studies.

Zip Zip my brain harts is the result of collaboration between Buckland (a photographer) and HSRC researchers concerned with disability issues. There is a tendency for disability to be a secret. The challenges that face families of people with disabilities are also often hidden away. Part of the reason is that disability is still largely seen as a shame, a disgrace, and a source of stigma. Angie Buckland, the mother of a disabled child, Nikki, provides us with a personal account of how she has dealt with the challenge of disability. Some of the key issues considered are - what if disability was considered ordinary or everyday? What if disability were seen as just one among many differences that there already are between people? What if disability were defined not simply as a physical or mental medical state, but were understood to be a societal problem - in terms of the reaction of other people to disability, or how geographical and social spaces can be discriminatory? Zip Zip my brain harts hopes to open up a space for dialogue about the issue of disability and also to provide families and healthcare professionals with a compassionate, understanding and inspiring guide to ordinary people's real experiences.

Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities.

Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle.

This book was published as a two-part special issue in the Journal of Family Social Work.

Disability Studies is an area of study which examines social, political, cultural, and economic factors that define 'disability' and establish personal and collective responses to difference. This insightful new text will introduce readers to the discipline of Disability Studies and enable them to engage in the lively debates within the field. By offering an accessible yet rigorous approach to Disability Studies, the authors provide a critical analysis of key current issues and consider ways in which the subject can be studied through national and international perspectives, policies, culture and history. Key debates include: The relationship between activism and the academy Ways to study cultural and media representations of disability The importance of disability history and how societies can change National and international perspectives on children, childhood and education Political perspectives on disability and identity The place of the body in disability theory This text offers real-world examples of topics that are important to debates and offers a much needed truly international scope on the questions at hand. It is an essential read for any individual studying, practising or with an interest in Disability Studies.

Outlining the key developments of the Disability Hate Crime policy agenda, Seamus Taylor brings together a unique consideration of the theoretical and practical questions at its heart. This book analyses the contributions of activists, politicians, policymakers and criminal justice system practitioners to policy development, and critiques both the under-recognition of disability prejudice fuelled by ableism and the challenge of vulnerability in addressing disability hostility. Concluding that a critically reflective approach on the part of policymakers and practitioners can lead to progress, the author gives clear policy recommendations to address current challenges in the criminal justice system.

In The Terrible We Cameron Awkward-Rich thinks with the bad feelings and mad habits of thought that persist in both transphobic discourse and trans cultural production. Observing that trans studies was founded on a split from and disavowal of madness, illness, and disability, Awkward-Rich argues for and models a trans criticism that works against this disavowal. By tracing the coproduction of the categories of disabled and transgender in the United States at the turn of the twentieth century and analyzing transmasculine literature and theory by Eli Clare, Elliott DeLine, Dylan Scholinski, and others, Awkward-Rich suggests that thinking with maladjustment might provide new perspectives on the impasses arising from the conflicted relationships among trans, feminist, and queer. In so doing, he demonstrates that rather than only impeding or confining trans life, thought, and creativity, forms of maladjustment have also been and will continue to be central to their development. Duke University Press Scholars of Color First Book Award recipient

This edited volume provides a comprehensive analysis of deaf people as a culturally and linguistically distinct minority group within American society. Many educators, linguists, and researchers now favor this position, as opposed to that which states that a deaf person simply has an audiological disability. Contributors to this book include members of the deaf community, as well as prominent deaf and hearing educators and researchers. The text contains three sections, covering research on bilingualism and biculturalism, the impact of cultural and language diversity on the deaf experience, and first-hand accounts from deaf community members that highlight the emotional impact of living in the deaf and hearing worlds.

In recent years, disability studies has been driven by a model of disability which focuses on the social and economic oppression of disabled people. Although an important counterbalance to a pathologising medical model, the social model risks presenting an impoverished and disembodied view of disability, one that ignores the psychological nature of oppression and its effects. This innovative work argues that a psychological framework of disability is an essential part of developing a more cohesive disability movement. Brian Watermeyer introduces a new, integrative approach, using psychoanalysis to tackle the problem of conceptualising psychological aspects of life with disablism. Psychoanalytic ideas are applied to social responses to impairment, making sense of discrimination in its many forms, as well as problems in disability politics and research. The perspective explores individual psychological experience, whilst retaining a rigorous critique of social forces of oppression. The argument shows how it is possible to theorise the psychological processes and impressions of discriminatory society without pathologising disadvantaged individuals. Drawing on sociology, social anthropology, psychology and psychoanalysis - as well as clinical material - Towards a Contextual Psychology of Disablism shapes a view of disabled subjectivity which is embodied, internal, and political. Presenting a range of conceptual ideas which describe psychological dynamics and predicaments confronting disabled people in an exclusionary and prejudiced world, this volume is an important new contribution to the literature. It will interest students and researchers of disability studies, including those working within psychology, education, health and social work.

Disability, Obesity and Ageing offers an engaging account of a new area of pressing concern, analysing the way in which 'spurned' identities are depicted and reacted to in televisual genres and online forums. Examining the symbolic power of the media, this book presents case studies from drama, situation comedies, reality and documentary television programmes popular in the UK, USA and Australia to shed light on the representation of disability, obesity and ageing, and the manner in which their status as unwanted and unwelcome identities is perpetuated. A theoretically sophisticated exploration of television as a translator of identity, and the exploration of identity categories in allied virtual spaces, this book will be of interest to sociologists, as well as scholars of popular culture, and cultural and media studies.

* This anthology has been curated by a seasoned playwright, academic, director and actor who has lived experience of being deaf. * Would be recommended reading in deaf studies and deaf culture courses across the world. * This book is the first anthology of its kind.

There are over thirty million disabled people in Russia and Eastern Europe, yet their voices are rarely heard in scholarly studies of life and well-being in the region. This book brings together new research by internationally recognised local and non-native scholars in a range of countries in Eastern Europe and the former Soviet Union. It covers, historically, the origins of legacies that continue to affect well-being and policy in the region today. Discussions of disability in culture and society highlight the broader conditions in which disabled people must build their identities and well-being whilst in-depth biographical profiles outline what living with disabilities in the region is like. Chapters on policy interventions, including international influences, examine recent reforms and the difficulties of implementing inclusive, community-based care. The book will be of interest both to regional specialists, for whom well-being, equality and human rights are crucial concerns, and to scholars of disability and social policy internationally.

Building on David M. Engel and Frank W. Munger's work analyzing the narratives of people with physical and learning disabilities, this book examines the life stories of twelve physically disabled Canadian adults through the prism of the social model of disablement. Using a grounded theory approach and with extensive reporting of the thoughts of the participants in their own words, the book uses narratives to explore whether an advocacy identity helps or hinders dealings with systemic barriers for disabled people in education, employment, and transportation. The book underscores how both physical and attitudinal barriers by educators, employers and service providers complicate the lives of disabled people. The book places a particular focus on the importance of political economy and the changes to the labour market for understanding the marginalization and oppression of people with disabilities. By melding socio-legal approaches with insights from feminist, critical race, and queer legal theory, Ravi Malhotra and Morgan Rowe ask if we need to reconsider the social model of disablement, and proposes avenues for inclusive legal reform.

Examining representations of speech disorders in works of literature, this first collection of its kind founds a new multidisciplinary subfield related but not limited to the emerging fields of disability studies and medical humanities. The scope is wide-ranging both in terms of national literatures and historical periods considered, engaging with theoretical discussions in poststructuralism, disability studies, cultural studies, new historicism, gender studies, sociolinguistics, trauma studies, and medical humanities. The book's main focus is on the development of an awareness of speech pathology in the literary imaginary from the late-eighteenth century to the present, studying the novel, drama, epic poetry, lyric poetry, autobiography and autopathography, and clinical case studies and guidebooks on speech therapy. The volume addresses a growing interest, both in popular culture and the humanities, regarding the portrayal of conditions such as stuttering, aphasia and mutism, along with the status of the self in relation to those conditions. Since speech pathologies are neither illnesses nor outwardly physical disabilities, critical studies of their representation have tended to occupy a liminal position in relation to other discourses such as literary and cultural theory, and even disability studies. One of the primary aims of this collection is to address this marginalization, and to position a cultural criticism of speech pathology within literary studies.

The deaf world is a complex one, divided by the allegiance of some to Deaf Culture, which emphasizes communication by sign-language, and by others to oralism, which emphasizes speech as the primary means of communication, and still others to a program called Total Communication, which stresses both signing and speaking. Today, more and more deaf people, especially children, are choosing oralism because it helps them fit into mainstream society better. This work presents interviews with fourteen extraordinary oral deaf role models from diverse backgrounds and professions. Wall Street banker Ralph Marra, paralegal Kristin Buehl, 1984 Olympic gold medalist Jeff Float, percussionist Evelyn Glennie, engineer George Oberlander, university mathematics professor Dr. David James, law professor Bonnie Poitras Tucker, executive Carolyn Ginsburg, foundation head Mildred Oberkotter, architect Tom Fields, accountant and institute executive director Ken Levinson, finance manager Michael Janger, school administrator Kathleen Suffridge Treni, and teacher Karen Kirby tell of their experiences and stories, discuss what helped and what hindered them, and offer advice to parents of deaf children. Instructors considering this book for use in a course may request an examination copy here.

The United States is engaged in a critically important and contentious debate on how to overhaul the way it delivers and pays for long-term care. Most families that are confronted with caring for a disabled elderly relative are often guaranteed financial catastrophe. The authors of this book examine a wide range of financing approaches to reforming long-term care and the impacts they would have over the next twenty-five years. The central issues in the debate about reforming long-term care concerns the relative roles of the public and private sectors. The authors urge that private insurance be encouraged and predict it will grow. Nevertheless, they conclude, private insurance will probably play only a modest role in financing nursing home and at-home care. For that reason, careful attention must also be given to reforming public programs. They recommend a strategy that includes expanded social insurance covering more at-home care and some limited nursing home coverage, the liberalization of Medicaid eligibility requirements so that complete impoverishment is not required before benefits are given, and an enhanced role for private insurance to provide asset protection to the upper-middle- income and wealthy elderly. The authors examine the cost of public and private initiatives and who would pay for them. Their answers emerge from a large computer simulation model that the authors developed. This book is accessible to non-specialists and is essential reading for anyone interested in the future of American health care.

Solomon's startling proposition in "Far from the Tree" is that being exceptional is at the core of the human condition--that difference is what unites us. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.
All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.
Elegantly reported by a spectacularly original and compassionate thinker, "Far from the Tree" explores how people who love each other must struggle to accept each other--a theme in every family's life.

The Idea of Disability in the Eighteenth Century explores disabled people who lived in the eighteenth century. The first four essays consider philosophical writing dating between 1663 and 1788, when the understanding of disability altered dramatically. We begin with Margaret Cavendish, whose natural philosophy rejected ideas of superiority or inferiority between individuals based upon physical or mental difference. We then move to John Locke, the founder of empiricism in 1680, who believed that the basis of knowledge was observability, but who, faced with the lack of anything to observe, broke his own epistemological rules in his explanation of mental illness. Understanding the problems that empiricism set up, Anthony Ashley Cooper, Lord Shaftesbury, turned in 1711 to moral philosophy, but also founded his philosophy on a flaw. He believed in the harmony of "the aesthetic trinity of beauty, truth, and virtue" but he could not believe that a disabled friend, whom he knew to have been moral before his physical alteration, could change inside. Lastly, we explore Thomas Reid who in 1788 returned to the body as the ground of philosophical enquiry and saw the body as a whole-complete in itself and wanting nothing, be it missing a sense (Reid was deaf) or a physical or mental capacity. At the heart of the study of any historical artifact is the question of where to look for evidence, and when looking for evidence of disability, we have largely to rely upon texts. However, texts come in many forms, and the next two essays explore three types-the novel, the periodical and the pamphlet-which pour out their ideas of disability in different ways. Evidence of disabled people in the eighteenth century is sparse, and the lives the more evanescent. The last four essays bring to light little known disabled people, or people who are little known for their disability, giving various forms of biographical accounts of Susanna Harrison, Sarah Scott, Priscilla Poynton and Thomas Gills, who are all but forgotten in the academic world as well as to public consciousness.