Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change. The structure of care, Nishida writes, is deeply embedded in and embodies the cruel social order-based on disability, race, gender, migration status, and wealth-that determines who survives or deteriorates. Simultaneously, many marginalized communities treat care as the foundation of activism. Using interviews, focus groups, and participant observation with care workers and people with disabilities, Just Care looks into lives unfolding in the assemblage of Medicaid long-term care programs, community-based care collectives, and bed activism. Just Care identifies what care does, and asks: How can we activate care justice or just care where people feel cared affirmatively and care being used for the wellbeing of community and for just world making?

This is the first book to explore how far disability challenges dominant understandings of rurality, identity, gender and belonging within the rural literature. The book focuses particularly on the ways disabled people give, and are given, meaning and value in relation to ethical rural considerations of place, physical strength, productivity and social reciprocity. A range of different perspectives to the issues of living rurally with a disability inform this work. It includes the lived experience of people with disabilities through the use of life history methodologies, rich qualitative accounts and theoretical perspectives. It goes beyond conventional notions of rurality, grounding its analysis in a range of disability spaces and places and including the work of disability sociologists, geographers, cultural theorists and policy analysts. This interdisciplinary focus reveals the contradictory and competing relations of rurality for disabled people and the resultant impacts and effects upon disabled people and their communities materially, discursively and symbolically. Of interest to all scholars of disability, rural studies, social work and welfare, this book provides a critical intervention into the growing scholarship of rurality that has bypassed the pivotal role of disability in understanding the lived experience of rural landscapes.

Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change. The structure of care, Nishida writes, is deeply embedded in and embodies the cruel social order-based on disability, race, gender, migration status, and wealth-that determines who survives or deteriorates. Simultaneously, many marginalized communities treat care as the foundation of activism. Using interviews, focus groups, and participant observation with care workers and people with disabilities, Just Care looks into lives unfolding in the assemblage of Medicaid long-term care programs, community-based care collectives, and bed activism. Just Care identifies what care does, and asks: How can we activate care justice or just care where people feel cared affirmatively and care being used for the wellbeing of community and for just world making?

In this innovative and important study, Heather Tilley examines the huge shifts that took place in the experience and conceptualisation of blindness during the nineteenth century, and demonstrates how new writing technologies for blind people had transformative effects on literary culture. Considering the ways in which visually-impaired people used textual means to shape their own identities, the book argues that blindness was also a significant trope through which writers reflected on the act of crafting literary form. Supported by an illuminating range of archival material (including unpublished letters from Wordsworth's circle, early ophthalmologic texts, embossed books, and autobiographies) this is a rich account of blind people's experience, and reveals the close, and often surprising personal engagement that canonical writers had with visual impairment. Drawing on the insights of disability studies and cultural phenomenology, Tilley highlights the importance of attending to embodied experience in the production and consumption of texts.

The Open Access version of this book, available at https://www.taylorfrancis.com/books/9780429352775 has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license. No city environment reflects the meaning of urban life better than a public place. A public place, whatever its nature-a park, a mall, a train platform or a street corner-is where people pass by, meet each other and at times become a victim of crime. With this book, we submit that crime and safety in public places are not issues that can be easily dealt with within the boundaries of a single discipline. The book aims to illustrate the complexity of patterns of crime and fear in public places with examples of studies on these topics contextualized in different cities and countries around the world. This is achieved by tackling five cross-cutting themes: the nature of the city's environment as a backdrop for crime and fear; the dynamics of individuals' daily routines and their transit safety; the safety perceptions experienced by those who are most in fear in public places; the metrics of crime and fear; and, finally, examples of current practices in promoting safety. All these original chapters contribute to our quest for safer, more inclusive, resilient, equitable and sustainable cities and human settlements aligned to the Global 2030 Agenda for Sustainable Development.

In The Terrible We Cameron Awkward-Rich thinks with the bad feelings and mad habits of thought that persist in both transphobic discourse and trans cultural production. Observing that trans studies was founded on a split from and disavowal of madness, illness, and disability, Awkward-Rich argues for and models a trans criticism that works against this disavowal. By tracing the coproduction of the categories of disabled and transgender in the United States at the turn of the twentieth century and analyzing transmasculine literature and theory by Eli Clare, Elliott DeLine, Dylan Scholinski, and others, Awkward-Rich suggests that thinking with maladjustment might provide new perspectives on the impasses arising from the conflicted relationships among trans, feminist, and queer. In so doing, he demonstrates that rather than only impeding or confining trans life, thought, and creativity, forms of maladjustment have also been and will continue to be central to their development. Duke University Press Scholars of Color First Book Award recipient

When confronted with the large amount of research about the autism spectrum one can be forgiven for believing that every conceivable aspect has been studied. However, despite the abundance of research, there still remains several autism topics that are not yet comprehensively understood. Addressing Underserved Populations in Autism Spectrum Research: An Intersectional Approach highlights five areas of autism spectrum research that currently lack a substantial body of literature. These include, autistic seniors, autistic women, fathers raising autistic children, autistics with intellectual disabilities, and autistics from ethnic minorities. Bennett and Goodall explore each area, offering explanations for why they have been overlooked in the existing literature and recommendations and strategies for further research to help us better understand these parts of the autistic community. They also explore and address systemic racism within the autism research community and explain strategies that scholars can use to conduct research that is both respectful of autistics and methodologically rigorous. Readers will gain an understanding of some of the gaps in our knowledge about the autism spectrum and will obtain the tools needed to conduct robust and appropriate research that addresses these gaps.

This is the first book to offer a philosophical engagement with microaggressions. It aims to provide an intersectional analysis of microaggressions that cuts across multiple dimensions of oppression and marginalization, and to engage a variety of perspectives that have been sidelined within the discipline of philosophy. The volume gathers a diverse group of contributors: philosophers of color, philosophers with disabilities, philosophers of various nationalities and ethnicities, and philosophers of several gender identities. Their unique frames of analysis articulate both how the concept of microaggressions can be used to clarify and sharpen our understanding of subtler aspects of oppression and how analysis, expansion, and reconceiving the notion of a microaggression can deepen and extend its explanatory power. The essays in the volume seek to defend microaggressions from common critiques and to explain their impact beyond the context of college students. Some of the guiding questions that this volume explores include, but are not limited to, the following: Can microaggressions be established as a viable scientific concept? What roles do microaggressions play in other oppressive phenomena like transphobia, fat phobia, and abelism? How can epistemological challenges around microaggressions be addressed via feminist theory, critical race theory, disability theory, or epistemologies of ignorance? What insights can be gleaned from intersectional analyses of microaggressions? Are there domain-specific analyses of microaggressions that would give insight to features of that domain, i.e. microaggressions related to sexuality, athletics, immigration status, national origin, body type, or ability. Microaggressions and Philosophy features cutting-edge research on an important topic that will appeal to a wide range of students and scholars across disciplines. It includes perspectives from philosophy of psychology, empirically informed philosophy, feminist philosophy, critical race theory, disability theory, philosophy of language, philosophy of science, and social and political philosophy.

This book examines the relationship between contemporary cultural representations of disabled children on the one hand, and disability as a personal experience of internalised oppression on the other. In focalising this debate through an exploration of the politically and emotionally charged figure of the disabled child, Harriet Cooper raises questions both about what it means to 'speak for' the other and about what resistance means when one is unknowingly invested in one's own abjection. Drawing on both the author's personal experience of growing up with a physical impairment and on a range of critical theories and cultural objects - from Frances Hodgson Burnett's novel The Secret Garden to Judith Butler's work on injurious speech - the book theorises the making of disabled and 'rehabilitated' subjectivities. With a conceptual framework informed by both psychoanalysis and critical disability studies, it investigates the ways in which cultural anxieties about disability come to be embodied and lived by the disabled child. Posing new questions for disability studies and for identity politics about the relationships between lived experiences, cultural representations and dominant discourses - and demonstrating a new approach to the concept of 'internalised oppression' - this book will be of interest to scholars and students of disability studies, medical humanities, sociology and psychosocial studies, as well as to those with an interest in identity politics more generally.

This book uses the tools of analytic philosophy and close readings of medieval Christian philosophical and theological texts in order to survey what these thinkers said about what today we call 'disability.' The chapters also compare what these medieval authors say with modern and contemporary philosophers and theologians of disability. This dual approach enriches our understanding of the history of disability in medieval Christian philosophy and theology and opens up new avenues of research for contemporary scholars working on disability. The volume is divided into three parts. Part One addresses theoretical frameworks regarding disability, particularly on questions about the definition(s) of 'disability' and how disability relates to well-being. The chapters are then divided into two further parts in order to reflect ways that medieval philosophers and theologians theorized about disability. Part Two is on disability in this life, and Part Three is on disability in the afterlife. Taken as a whole, these chapters support two general observations. First, these philosophical theologians sometimes resist Greco-Roman ableist views by means of theological and philosophical anti-ableist arguments and counterexamples. Here we find some surprising disability-positive perspectives that are built into different accounts of a happy human life. We also find equal dignity of all human beings no matter ability or disability. Second, some of the seeds for modern and contemporary ableist views were developed in medieval Christian philosophy and theology, especially with regard to personhood and rationality, an intellectualist interpretation of the imago Dei, and the identification of human dignity with the use of reason. This volume surveys disability across a wide range of medieval Christian writers from the time of Augustine up to Francisco Suarez. It will be of interest to scholars and graduate students working in medieval philosophy and theology, or disability studies.

A much-needed look at the growth of emergency media and its impact on our lives In an emergency, we often look to media: to contact authorities, to get help, to monitor evolving situations, or to reach out to our loved ones. Sometimes we aren't even aware of an emergency until we are notified by one of the countless alerts, alarms, notifications, sirens, text messages, or phone calls that permeate everyday life. Yet most people have only a partial understanding of how such systems make sense of and act upon an "emergency." In Case of Emergency argues that emergency media are profoundly cultural artifacts that shape the very definition of "emergency" as an opposite of "normal." Looking broadly across a range of contemporary emergency-related devices, practices, and services, Elizabeth Ellcessor illuminates the cultural and political underpinnings and socially differential effects of emergency media. By interweaving in-depth interviews with emergency-operation and app-development experts, archival materials, and discursive and technological readings of hardware and infrastructures, Ellcessor demonstrates that emergency media are powerful components of American life that are rarely, if ever, neutral. The normalization of ideologies produced and reinforced by emergency media result in unequal access to emergency services and discriminatory assumptions about who or what is a threat and who deserves care and protection. As emergency media undergo massive growth and transformation in response to digitization and attendant entrepreneurial cultures, Ellcessor asks where access, equity, and accountability fit in all of this. The first book to develop a typology of emergency media, In Case of Emergency opens a much-needed conversation around the larger cultural meanings of "emergency," and what an ethical and care-based approach to emergency could entail.

This special issue brings together explorations of crip temporality: the ways in which bodily and mental disabilities shape the experience of time. These include needing to use time-consuming adaptive technologies like screen readers, working slowly during a pain flare-up, or only being able to look at a screen for short periods. Through accessibly written essays, art, and poems, contributors explore both the confines of crip temporality and the freedoms it provides. They offer strategies and narratives for navigating the academy as a disabled person; reclaim self-care as a tool for personal survival instead of productivity; and illustrate how crip time is mobilized in service of biopolitical projects. More than just a space of loss and frustration, they argue, crip time also offers liberatory potential: the contributors imagine how justice, connection, and pleasure might emerge from temporalities that center compassion rather than productivity. Contributors Moya Bailey, Amanda Cachia, Maria Elena Cepeda, Eli Clare, Finn Enke, Elizabeth Freeman, Matt Huynh, Alison Kafer, Mimi Khuc, Christine Sun Kim, Jina B. Kim, Leah Lakshmi Piepzna-Samarasinha, Margaret Price, Jasbir Puar, Jake Pyne, Ellen Samuels, Sami Schalk, Michael Snediker

John Swinton has indelibly shaped the discipline of practical theology not only in the United Kingdom but globally, and has been especially influential in the areas of disability theology, dementia, healthcare, and chaplaincy. Swinton presses one question with a special intensity: What does it mean to be human? The chapters in this volume display why this question unifies his wide-ranging corpus of work and show how Swinton has answered it in the various domains he has explored. The chapters range as widely as his work, from "Swintonian" practical theological methodology, to specific themes like friendship, peace, and belonging. Several chapters offer concrete testimonies of how Swinton's work has influenced scholars and practitioners alike. Contributors identify the pivotal moves in Swinton's work and draw together into a single volume an account of how these themes have been developed in different material discussions. Disciples and Friends, as a survey of John's key methodological and theological stances, will become an indispensable resource for students and scholars of practical theology, disability theology, mental health, dementia, and cognate fields. The volume brings together renowned scholars who know not only John Swinton's work but also him as a person. This knowledge enables contributors to insightfully link Swinton's work to the life he has lived and to suggest promising avenues for further development of his signature ideas. In compiling for the first time an accessible survey of and introduction to one of the most important voices to emerge in disability theology for many decades, Disciples and Friends represents a seminal scholarly undertaking and a fitting tribute to Swinton's legacy.

Almost fifteen per cent of the world's population today experiences some form of mental or physical disability and society tries to accommodate their needs. But what was the situation in the Roman world? Was there a concept of disability? How were the disabled treated? How did they manage in their daily lives? What answers did medical doctors, philosophers and patristic writers give for their problems? This, the first monograph on the subject in English, explores the medical and material contexts for disability in the ancient world, and discusses the chances of survival for those who were born with a handicap. It covers the various sorts of disability: mental problems, blindness, deafness and deaf-muteness, speech impairment and mobility impairment, and includes discussions of famous instances of disability from the ancient world, such as the madness of Emperor Caligula, the stuttering of Emperor Claudius and the blindness of Homer.

For people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumaci draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumaci shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls "activist affordances." Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumaci shows how disabled people's activist affordances present the potential for a more liveable and accessible world for all of us.

This book explores the sex lives of women with disabilities in Nepal, showing that many women suffer more than men despite prevailing disability policies that emphasize nondiscrimination against people with disabilities. It also argues that far from general perceptions of women as asexual, women with disabilities are capable of leading highly creative and fulfilling sexual lives. Using critical sexual theory and postcolonial studies as critical frameworks, the book investigates the narratives of authors with disabilities, exploring policy gaps and the need for supportive gender and sexual policies through the words of those affected. In particular, the book analyzes five female Nepali authors with disabilities: Radhika Dahal, Jhamak Ghimire, Sabitri Karki, Parijaat, and Mira Sahi, demonstrating the need for supportive gender policies to address the emotional and psychological needs of women with disabilities. Overall, the book argues that disciplinary discourses in practice often consider sex or sexuality as taboo, barely recognizing women in the context of marriage and family, and therefore creating gaps between policies and marginalized narratives. This book provides important insights into sex and disability within the context of the Global South, and as such will be of interest not only to researchers working on Nepal but also to scholars across gender studies, disability studies, international development, and postcolonialism.

This co-authored text critically explores the key findings of the Living Life to the Fullest project - a project that has explored the lives, thoughts, hopes and aspirations of disabled young people living with life-limiting and life-threatening conditions. Written by disabled young people and academic researchers, the book articulates ethical co-production in social research. The prolific contemporary political and theoretical debates about life, death and the human in an age of global precarity and austerity are explored in this book. Chapters draw upon key themes and co-researchers' priorities for writing about their lives: for example, the politics and potentials of co-production as a research method/ology; animal and human relationships; aging, time; sexuality and body image; politics, activism and disability arts and culture; and fragility, and death and dying.

'Seeing Voices is both a history of the deaf and an account of the development of an extraordinary and expressive language' - Evening Standard Imaginative and insightful, Seeing Voices by Oliver Sacks offers a way into a world that is, for many people, alien and unfamiliar - for to be profoundly deaf is not just to live in a world of silence, but also to live in a world where the visual is paramount. In this remarkable book, Sacks explores the consequences of this, including the different ways in which the deaf and the hearing impaired learn to categorize their respective worlds - and how they convey and communicate those experiences to others.

The United Nations Convention on the Rights of Persons with Disabilities is the only UN treaty to date in which the people who are its target, that is disabled people, were actively involved in its drafting and the only one which requires the active participation of disabled people in its implementation. This does not, of course, automatically guarantee the direct participation of all disabled people. This is especially so for children with disabilities, whose status as legal minors may inhibit them from participating in decisions affecting their lives. This book focuses on the participation rights of the disabled child with regard to health, education, homelife and relationships, highlighting ways in which these rights are safeguarded and promoted throughout the EU, as well as exploring the factors that put these rights at risk. Finally, this groundbreaking text analyses whether disabled children's needs for assistance in order to realise their participation rights results in fewer opportunities to participate or in an increase in support in order for them to be able to do so.

Characters with disabilities are often overlooked in fiction, but many occupy central places in literature by celebrated authors like Chinua Achebe, Salman Rushdie, J. M. Coetzee, Anita Desai, Jhumpa Lahiri, Edwidge Danticat, and others. These authors deploy disability to do important cultural work, writes Christopher Krentz in his innovative study, Elusive Kinship. Such representations not only relate to the millions of disabled people in the global South, but also make more vivid such issues as the effects of colonialism, global capitalism, racism and sexism, war, and environmental disaster. Krentz is the first to put the fields of postcolonial studies, studies of human rights and literature, and literary disability in conversation with each other in a book-length study. He enhances our appreciation of key texts of Anglophone postcolonial literature of the global South, including Things Fall Apart and Midnight's Children. In addition, he uncovers the myriad ways fiction gains energy, vitality, and metaphoric force from characters with extraordinary bodies or minds. Depicting injustices faced by characters with disabilities is vital to raising awareness and achieving human rights. Elusive Kinship nudges us toward a fuller understanding of disability worldwide.

This Companion analyzes the representation of disability in literatures in English, including American and postcolonial writing, across all major time periods and through a variety of critical approaches. Through the alternative ideas of mind and embodiment generated by physiological and psychological impairments, an understanding of disability narrative changes the way we read literature. With contributions from major figures in literary disability studies, The Cambridge Companion to Literature and Disability covers a wide range of impairments, including cognitive difference, neurobehavioral conditions, and mental and chronic illnesses. This book shows how disability demands innovation in literary form and aesthetics, challenges the notion of a human 'norm' in the writing of character, and redraws the ways in which writing makes meaning of the broad spectrum of humanity. It will be a key resource for students and teachers of disability and literary studies.

Throughout the history of the United States, work-based social welfare practices have served to affirm the moral value of work. In the late nineteenth century this representational project came to be mediated by the printed word with the emergence of industrial print technologies, the expansion of literacy, and the rise of professionalization. In Work Requirements Todd Carmody asks how work, even the most debasing or unproductive labor, came to be seen as inherently meaningful during this era. He explores how the print culture of social welfare-produced by public administrators, by economic planners, by social scientists, and in literature and the arts-tasked people on the social and economic margins, specifically racial minorities, incarcerated people, and people with disabilities, with shoring up the fundamental dignity of work as such. He also outlines how disability itself became a tool of social discipline, defined by bureaucratized institutions as the inability to work. By interrogating the representational effort necessary to make work seem inherently meaningful, Carmody ultimately reveals a forgotten history of competing efforts to think social belonging beyond or even without work.

For many people with a disability, either visible or invisible, that experience is hard to navigate in the context of work. Champion change, for yourself and others, challenge stigma and become Positively Purple. Sharing a compelling personal story, Kate Nash offers practical advice for how employers can build environments of trust and support for those with disabilities, how employees with disabilities can advocate for themselves and flourish in the workplace and how those without disabilities can be true allies. Don't become guilty of the soft bigotry of low expectations when it comes to disabled colleagues, employees and customers. Build disability confidence and help create spaces where people with disabilities feel valued and included.

In this innovative and important study, Heather Tilley examines the huge shifts that took place in the experience and conceptualisation of blindness during the nineteenth century, and demonstrates how new writing technologies for blind people had transformative effects on literary culture. Considering the ways in which visually-impaired people used textual means to shape their own identities, the book argues that blindness was also a significant trope through which writers reflected on the act of crafting literary form. Supported by an illuminating range of archival material (including unpublished letters from Wordsworth's circle, early ophthalmologic texts, embossed books, and autobiographies) this is a rich account of blind people's experience, and reveals the close, and often surprising personal engagement that canonical writers had with visual impairment. Drawing on the insights of disability studies and cultural phenomenology, Tilley highlights the importance of attending to embodied experience in the production and consumption of texts.