Whose lives count as fully human? The answer matters for everyone, disabled or not. The ancient Greek ideal linked physical wholeness to moral wholeness - the virtuous citizen was "beautiful and good." It's an ideal that has all too often turned deadly, casting those who do not measure up as less than human. In the pre-Christian era, infants with disabilities were left on the rocks; in modern times, they have been targeted by eugenics. Much has changed, thanks to the tenacious advocacy of the disability rights movement. Yesteryear's hellish institutions have given way to customized educational programs and assisted living centers. Public spaces have been reconfigured to improve access. Therapies and medical technology have advanced rapidly in sophistication and effectiveness. Protections for people with disabilities have been enshrined in many countries' antidiscrimination laws. But these victories, impressive as they are, mask other realities that collide awkwardly with society's avowals of equality. Why are parents choosing to abort a baby likely to have a disability? Why does Belgian law allow for euthanasia in cases of disability, even absent a terminal diagnosis or physical pain? Why, when ventilators were in short supply during the first Covid wave, did some states list disability as a reason to deny care? On this theme: - Heonju Lee tells how his son with Down syndrome saved another child's life. - Molly McCully Brown and Victoria Reynolds Farmer recount their personal experiences with disability. - Amy Julia Becker says meritocracies fail because they value the wrong things. - Maureen Swinger asks six mothers around the world about raising a child with disabilities. - Joe Keiderling documents the unfinished struggle for disability rights. - Isaac T. Soon wonders if Saint Paul's "thorn in the flesh" was a disability. - Leah Libresco Sargeant reviews What Can a Body Do? and Making Disability Modern. - Sarah C. Williams says testing for fetal abnormalities is not a neutral practice. Also in the issue: - Ross Douthat is brought low by intractable Lyme disease. - Edwidge Danticat flees an active shooter in a packed mall. - Eugene Vodolazkin finds comic relief at funerals, including his own father's. - Kelsey Osgood discovers that being an Orthodox Jew is strange, even in Brooklyn. - Christian Wiman pens three new poems. - Susannah Black profiles Flannery O'Conner. - Our writers review Eyal Press's Dirty Work, Steve Coll's Directorate S, and Millennial Nuns by the Daughters of Saint Paul. Plough Quarterly features stories, ideas, and culture for people eager to apply their faith to the challenges we face. Each issue includes in-depth articles, interviews, poetry, book reviews, and art.

What prenatal tests and down syndrome reveal about our reproductive choices When Alison Piepmeier-scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome-died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today's world. Piepmeier takes us inside her own daughter's life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.

Personalisation means people, their families and carers having choice and control over their support on a day-to-day basis. To deliver personalised services, professionals and carers need to do more than just hand over financial control: they need to know what is important to a person, the best way to support them, how they communicate and how they make decisions. This book will show how to deliver personalisation through simple, effective and evidence-based person-centred practice that changes people's lives and helps them achieve the outcomes they want. It covers why person-centred practice is relevant to the personalisation agenda and what person-centred thinking and person-centred reviews are, introducing the tools that can help you carry them out. It also explores the relationship between person-centred plans and support plans, and how person-centred practice can be used in the journey of support through adulthood - from prevention or the management of long-term health conditions to reablement, recovery, support in old age and at the end of life. There is also a chapter on taking a person-centred approach to risk. This is an essential guide for all staff in health and social care including service providers, managers, practitioners and students.

What if the things we most fear about our bodies-our vulnerability to illness and pain-are exactly the places where God meets us most fully? As Liuan Huska went through years of chronic pain, she wondered why God seemed absent and questioned some of the common assumptions about healing. What do we do when our bodies don't work the way they should? What is healing, when one has a chronic illness? Can we still be whole when our bodies suffer? The Christian story speaks to our experiences of pain and illness. In the embodiment of Jesus' life, we see an embrace of the body and all of the discomfort and sufferings of being human. Countering a Gnosticism that pits body against spirit, Huska takes us on a journey of exploring how healing is not an escape from the limits of the body, but becoming whole as souls in bodies and bodies with souls. As chronic pain forces us to pay attention to our bodies' vulnerability, we come to embrace the fullness of our broken yet beautiful bodies. She helps us redefine what it means to find healing and wholeness even in the midst of ongoing pain.

Grouped around four central themes - illness and impairment, disabling processes, care and control, and communication and representations - this collection offers a fresh perspective on disability research, showing how theory and data can be brought together in new and exciting ways. Disability Research Today starts by showing how engaging with issues around illness and impairment is vital to a multidisciplinary understanding of disability as a social process. The second section explores factors that affect disabled people, such as homelessness, violence and unemployment. The third section turns to social care, and how disabled people are prevented from living with independence and dignity. Finally, the last section examines how different imagery and technology impacts our understandings of disability and deafness. Showcasing empirical work from a range of countries, including Japan, Norway, Italy, Australia, India, the UK, Turkey, Finland and Iceland, this collection shows how disability studies can be simultaneously sophisticated, accessible and policy-relevant. Disability Research Today is suitable for students and researchers in disability studies, sociology, social policy, social work, nursing and health studies.

Establishing a critical and interdisciplinary dialogue, this text engages with the typically disparate fields of social gerontology and disability studies. It investigates the subjective experiences of two groups rarely considered together in research - people ageing with long-standing disability and people first experiencing disability with ageing. This book challenges assumptions about impairment in later life and the residual nature of the 'fourth age'. It proposes that the experience of 'disability' in older age reaches beyond the bodily context and can involve not only a challenge to a sense of value and meaning in life, but also ongoing efforts in response.

In Feminist, Queer, Crip Alison Kafer imagines a different future for disability and disabled bodies. Challenging the ways in which ideas about the future and time have been deployed in the service of compulsory able-bodiedness and able-mindedness, Kafer rejects the idea of disability as a pre-determined limit. She juxtaposes theories, movements, and identities such as environmental justice, reproductive justice, cyborg theory, transgender politics, and disability that are typically discussed in isolation and envisions new possibilities for crip futures and feminist/queer/crip alliances. This bold book goes against the grain of normalization and promotes a political framework for a more just world. -- Indiana University Press

People with disabilities are among the most adversely affected during conflict situations or when natural disasters strike. They experience higher mortality rates, have fewer available resources and less access to help, especially in refugee camps, as well as in post-disaster environments. Already subject to severe discrimination in many societies, people with disabilities are often overlooked during emergency evacuation, relief, recovery and rebuilding efforts. Countries party to the UN Convention on the Rights of Persons with Disabilities must take all necessary measures to ensure the protection and safety of people with disabilities during situations of armed conflict, humanitarian emergencies, and natural disasters. Such aid should be designed to support preparedness, response, recovery and rebuilding. This book includes perspectives from around the globe and explores the implications at the policy, programme, and personal level, discussing issues such as: How can national laws, policies, and regulations provide guidance, methods and strategies to integrate and coordinate inclusive emergency management? What should people with disabilities know in order to be prepared for emergency situations? What lessons have we learned from past experiences? What are the current shortfalls (physical and cultural) that put people with disabilities at risk during emergencies and what can be done to improve these situations (e.g. through new technologies and disaster planning)? How does disability affect people's experiences as refugees and other displaced situations; what programmes and best practices are in place to protect and promote their rights during their period of displacement? How must disabled people with disabilities be factored in to the resettlement and rebuilding process; does an opportunity for ensuring universal access exist in the rebuilding process? What is the impact of disasters and conflicts on such special populations as disabled women, disabled children, and those with intellectual disabilities? Spotlighting a pressing issue that has long been neglected in emergency planning fields, this innovative book discusses how to meet the needs of people with disabilities in crises and conflict situations. It is an important reference for all those working in or researching disability and inclusion, and emergency and disaster management, both in developed and developing countries.

Solomon's startling proposition in "Far from the Tree" is that being exceptional is at the core of the human condition--that difference is what unites us. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, or multiple severe disabilities; with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, and Solomon documents triumphs of love over prejudice in every chapter.
All parenting turns on a crucial question: to what extent should parents accept their children for who they are, and to what extent they should help them become their best selves. Drawing on ten years of research and interviews with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges.
Elegantly reported by a spectacularly original and compassionate thinker, "Far from the Tree" explores how people who love each other must struggle to accept each other--a theme in every family's life.

Using data from more than 40,000 soldiers of the Union army, this book focuses on the experience of African Americans and immigrants with disabilities, investigating their decision to seek government assistance and their resulting treatment. Pension administrators treated these ex-soldiers differently from native-born whites, but the discrimination was far from seamless - biased evaluations of worthiness intensified in response to administrators' workload and nativists' late-nineteenth-century campaigns. This book finds a remarkable interplay of social concepts, historical context, bureaucratic expediency, and individual initiative. Examining how African Americans and immigrants weighed their circumstances in deciding when to request a pension, whether to employ a pension attorney, or if they should seek institutionalization, it contends that these veterans quietly asserted their right to benefits. Shedding new light on the long history of challenges faced by veterans with disabilities, the book underscores the persistence of these challenges in spite of the recent revolution in disability rights.

A comprehensive and practical resource for all speech and language therapists and students, this book covers all aspects of working with this client group. Written by the author of the hugely successful "Talkabout", each section gives the reader a theoretical background of the subject under discussion, practical suggestions and formats for assessment, a guide to intervention as well as a clear and worked-out example. In addition, the author addresses staff training, group therapy, accessing the criminal justice system and working with a multi-disciplinary team.

This fully revised and expanded second edition of the Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and arranged thematically, it surveys the state of the discipline, examining emerging and cutting-edge areas as well as core areas of contention. Divided in five parts, this comprehensive handbook covers: Different models and approaches to disability. How key impairment groups have engaged with disability studies and the writings within the discipline. Policy and legislation responses to disability studies and to disability activism. Disability studies and its interaction with other disciplines, such as history, philosophy, sport, and science and technology studies. Disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing 15 revised chapters and 12 new chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers, and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work. Chapter 6 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license at https://tandfbis.s3-us-west-2.amazonaws.com/rt-files/docs/Open+Access+Chapters/9781138365308_oachapter6.pdf.

Covering the period from Antiquity to Early Modernity, A Historical Sociology of Disability argues that disabled people have been treated in Western society as good to mistreat and - with the rise of Christianity - good to be good to. It examines the place and role of disabled people in the moral economy of the successive cultures that have constituted 'Western civilisation'. This book is the story of disability as it is imagined and re-imagined through the cultural lens of ableism. It is a story of invalidation; of the material habituations of culture and moral sentiment that paint pictures of disability as 'what not to be'. The author examines the forces of moral regulation that fall violently in behind the dehumanising, ontological fait accompli of disability invalidation, and explores the ways in which the normate community conceived of, narrated and acted in relation to disability. A Historical Sociology of Disability will be of interest to all scholars, students and activists working in the field of Disability Studies, as well as sociology, education, philosophy, theology and history. It will appeal to anyone who is interested in the past, present and future of the 'last civil rights movement'.

With contributions from distinguished authors in 14 countries across 5 continents, this book provides a unique transnational perspective on intellectual disability in the twentieth century. Each chapter outlines different policies and practices, and details real-life accounts from those living with intellectual disabilities to illustrate their impact of policies and practices on these people and their families. Bringing together accounts of how intellectual disability was viewed, managed and experienced in countries across the globe, the book examines the origins and nature of contemporary attitudes, policy and practice and sheds light on the challenges of implementing the UN Convention on the Rights of Persons with Disabilities (UNCPRD).

Few people these days would oppose making the public realm of space, social services and jobs accessible to women and men with disabilities. But what about access to the private realm of desire and sexuality? How can one also facilitate access to that, in ways that respect the integrity of disabled adults, and also of those people who work with and care for them? Loneliness and Its Opposite documents how two countries generally imagined to be progressive engage with these questions in very different ways. Denmark and Sweden are both liberal welfare states, but they diverge dramatically when it comes to sexuality and disability. In Denmark, the erotic lives of people with disabilities are acknowledged and facilitated. In Sweden, they are denied and blocked. Why do these differences exist, and how do both facilitation and hindrance play out in practice? Loneliness and Its Opposite charts complex boundaries between private and public, love and sex, work and intimacy, and affection and abuse. It shows how providing disabled adults with access to sexual lives is not just crucial for a life with dignity. It is an issue of fundamental social justice with far reaching consequences for everyone.

The atonement-where God in Jesus Christ addresses sin and the whole of the human predicament-lies at the heart of the Christian faith and life. Its saving power is for all people, and yet a deep hesitancy has prevented meaningful discussion of the cross' relevance for people with disabilities. Speaking of disability and the multifaceted concept of the atonement has created an unresolvable tension, not least because sin and disability often seem to be associated within the biblical text. While work in disability theology has made great progress in developing a positive theological framework for disability as an integral part of human diversity, it has so far fallen short of grappling with this particular set of interpretive challenges presented by the cross.In Accessible Atonement, reflecting on his experience as both a pastor and a theologian, David McLachlan brings the themes and objectives of disability theology into close conversation with traditional ideas of the cross as Jesus' sacrifice, justice, and victory. From this conversation emerges an account of the atonement as God's deepest, once-for-all participation in both the moral and contingent risk of creation, where all that alienates us from God and each other is addressed. Such an atonement is inherently inclusive of all people and is not one that is extended to disability as a "special case." This approach to the atonement opens up space to address both the redemption of sin and the possibilities of spiritual and bodily healing. What McLachlan leads us to discover is that, when revisited in this way, the cross-perhaps surprisingly-becomes the cornerstone of Christian disability theology and the foundation of many of its arguments. Far from excluding those who find themselves physically or mentally outside of assumed "norms," the atoning death of Christ creates a vital space of inclusion and affirmation for such persons within the life of the church.

In Disability Alliances and Allies: Opportunities and Challenges, Allison Carey, Joan Ostrove and Tara Fannon have gathered an interdisciplinary team of leading experts, to offer nuanced analyses of the meaning and practice of being an ally and of building effective alliances that account for the structural, individual, and interpersonal challenges involved in amplifying disabled voices and centering the disability lived experience. The first section of this volume addresses cooperation and conflict in advocacy and activism across social movements, organizations, and institutions. It examines the formation of new alliances, what happens when interests collide, and the social and economic challenges of forming coherent unions. The second section engages issues of agency, autonomy, and identity in interpersonal relationships, highlighting the role of power and status, focusing on alliance dynamics between disabled and non-disabled people. For its breadth and depth of research, this volume of Research in Social Science and Disability is essential reading for researchers and students across the social sciences interested in disability, social movements, activism, and identity.

Albinism is one of the foremost disability and public health issues in Africa today. It often makes headlines in local, national and international medias and forms the basis for intense advocacy at all levels. This is primarily due to the harmful representations of persons with albinism deeply entrenched in African traditions. These deeply rooted ideologies about albinism in African thought have largely promoted the continuous discrimination, stigmatization, harming, killing, commodification and violation of the human rights of persons with albinism in African places. How has albinism emerged as a thick concept in African traditions? What are these deeply entrenched ideas about the ontology of albinism in African thought? What epistemic injustice has been done to persons with albinism in Africa places? Why do harmful beliefs about albinism still persist in modern African societies? How does the African communalistic ethic justify the harm done against persons with albinism? What is the duty to, and burden of, care for persons with albinism? What peculiar existential challenges do persons with albinism in general and females with albinism in particular face in African societies and how can they be overcome? What can be learnt from the education philosophy of reconstructionism and genetic engineering in improving the wellbeing of persons with albinism? African Philosophy and the Otherness of Albinism: White Skin, Black Race digs deep into these philosophical questions revealing fascinating but latent aspects of how albinism is understood in African places as a necessary step to take in improving the wellbeing and integrity of persons with albinism in Africa today. This book will be of interest to scholars and students of African philosophy, sociology, African studies and disability studies.

In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs' experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children's rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.

As the profile of disability sport has risen, so has the emphasis grown beyond participation to include the development of a high performance environment. This book is the first to take an in-depth look at the role of coaches and coaching in facilitating the professionalisation of disability sport, in raising performance standards, and as an important vector for the implementation of significant political, socio-cultural and technological change. Using in-depth case studies of elite disability sport coaches from around the world, the book offers a framework for critical reflection on coaching practice as well as the reader's own experiences of disability sport. The book also evaluates the vital role of the coach in raising the bar of performance in a variety of elite level disability sports, including athletics, basketball, boccia, equestrian sport, rowing, soccer, skiing, swimming and volleyball. Providing a valuable evidence-based learning resource to support coaches and students in developing their own practice, High Performance Disability Sport Coaching is essential reading for all those interested in disability sport, coaching practice, elite sport development and the Paralympic Games.

Today, healthy ageing and active, meaningful lives are core values and aims for international and national health policies. Health services are challenged to ensure that the recipients of their services are active participants in their own care and beyond. Participation allows patients to become less dependent on healthcare providers, increasing their control over their own treatment and health. Increasingly, the idea of 'participation' is shifting, from participation in services to participation in mainstream society. This book examines the concept of participation, as well as the different meanings it takes on in the context of health and welfare services. It asks how services can enable and stimulate participation outside of those services. The contributions in this volume particularly focus on participation as engagement in daily life and 'everyday life' in order to develop the field of participation beyond the sphere of health and social care services. This book will appeal to researchers in the fields of health and social care, social services, occupational therapy and the sociology of health and illness. It will be of interest to practitioners of health and welfare services.

This empirically-grounded text examines the policy, planning, development and implementation of disability sport events. It draws insights from a major international comparative study of different types of large multi-national sporting events: integrated events where able-bodied athletes and athletes with a disability compete alongside one another, and non-integrated events where athletes with a disability are separated by time but occurring in the same location. Guided by a critical disability studies perspective, the book highlights the strategic opportunity of sporting events to influence social change around community participation, and attitudes and awareness about disability more broadly. It also challenges assumptions about positive event legacies and suggests a need for a multi-lateral approach to planning. An important read for students, researchers and scholars in the fields of sport policy, sport development, disability sport, sport management, disability studies and event studies.

Language Deprivation and Deaf Mental Health explores the impact of the language deprivation that some deaf individuals experience by not being provided fully accessible language exposure during childhood. Leading experts in Deaf mental health care discuss the implications of language deprivation for a person's development, communication, cognitive abilities, behavior, and mental health. Beginning with a groundbreaking discussion of language deprivation syndrome, the chapters address the challenges of psychotherapy, interpreting, communication and forensic assessment, language and communication development with language-deprived persons, as well as whether cochlear implantation means deaf children should not receive rich sign language exposure. The book concludes with a discussion of the most effective advocacy strategies to prevent language deprivation. These issues, which draw on both cultural and disability perspectives, are central to the emerging clinical specialty of Deaf mental health.

This introductory text defines and describes disability, while providing concrete practice guidelines and recommendations for students in the fields of counseling, social work, and the helping professions. Various specialty areas are explored in detail, including marriage and family counseling, adolescent counseling, addictions counseling, LGBTQ concerns, multicultural counseling, and career counseling. The first three chapters lay the foundations by discussing the demand for counseling services by individuals with all types of disabilities; presenting clinical, legal, medical/biological, and personal definitions of disability; and describing physical, cognitive, and psychiatric disabilities. Next, author Julie Smart examines core beliefs about disability using a range of first-person accounts from experienced counselors. The last six chapters focus on practice guidelines for various aspects of disability-including ethical considerations, societal issues, social role demands, and individual responses-and consider new possibilities for disability counseling professions. With rich case studies woven throughout, as well as valuable information on client needs, disability categorizations, and key Models of Disability, this essential textbook will be useful not only to counseling students but also to professional counselors, social workers, and psychologists.

A comprehensive assessment of the field of Disability Studies that presents beyond the medical to dig into the meaning From public transportation and education to adequate access to buildings, the social impact of disability has been felt everywhere since the passage of the Americans with Disabilities Act in 1990. And a remarkable groundswell of activism and critical literature has followed in this wake. Claiming Disability is the first comprehensive examination of Disability Studies as a field of inquiry. Disability Studies is not simply about the variations that exist in human behavior, appearance, functioning, sensory acuity, and cognitive processing but the meaning we make of those variations. With vivid imagery and numerous examples, Simi Linton explores the divisions society creates-the normal versus the pathological, the competent citizen versus the ward of the state. Map and manifesto, Claiming Disability overturns medicalized versions of disability and establishes disabled people and their allies as the rightful claimants to this territory.