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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
Being an 'active citizen' involves exercising social rights and duties, enjoying choice and autonomy, and participating in political decision-making processes which are of importance for one's life. Amid the new challenges facing contemporary welfare states, debate over just how 'active' citizens can and ought to be has redoubled. Presenting research from the first major comparative and cross-national study of active citizenship and disability in Europe, this book analyses the consequences of ongoing changes in Europe - what opportunities do persons with disabilities have to exercise Active Citizenship? The Changing Disability Policy System: Active Citizenship and Disability in Europe Volume 1 approaches the conditions for Active Citizenship from a macro perspective in order to capture the impact of the overall disability policy system. This system takes diverse and changing forms in the nine European countries under study. Central to the analysis are issues of coherence and coordination between three subsystems of the disability policy system, and between levels of governance. This book identifies the implications and policy lessons of the findings for future disability policy in Europe and beyond. It will appeal to policymakers and policy officials, as well as to researchers and students of disability studies, comparative social policy, international disability law and qualitative research methods.
Social work practitioners active among those most directly involved with persons with AIDS/HIV need guidance and support. This volume offers both in a balanced analysis of key issues relating to their practice. The authors clearly and authoritatively establish that the demographics of the AIDS/HIV crisis are undergoing change rapidly and alarmingly. Although there have been significant advances in education about AIDS and modifications in sexual practices among gay men resulting in a lowered rate of new infection, other groups are shown to be evidencing explosive levels of infection. Not only are the population parameters of AIDS defined, but the fundamental issues of social service delivery are addressed as are the special needs of the newly at-risk groups. Women, adolescents, substance abusers, minorities, and the mentally ill are all in the demographic patterns describing AIDS/HIV diffusion. The most compelling AIDS care issues are directly focused on and practical guidance is given to social work practitioners. AIDS/HIV poses a sometimes daunting challenge threatening to overwhelm service providers. This book will be of value due to its sensitive, insightful, experience-based guidance at the level of practice. It will also prove a useful resource for all in the caring professions who will appreciate its timely explanation of the complexities involved in framing effective responses to current and emerging needs associated with AIDS/HIV.
First published in 1972, A History of the Mental Health Services is a revised and abridged version of both Lunacy, Law and Conscience and Mental Health and Social Policy, rewriting the material from the end of the Second World War to the passing of the Mental Health Act 1959, and adding a new section which runs from 1959 to the Social Services Act 1970. The story starts with the first legislative mention of the 'furiously and dangerously mad' as a class for whom some treatment should be provided, traces the development of reform and experiment in the nineteenth century, and the creation of the asylum system, and ends in the age of Goffman and Laing and Szasz with the virtual disappearance of the system. The book will be of interest to students of mental health, sociology, social policy, health policy and law.
First published in 1984, Ideas on Institution is a review of the major English-language literature of the past two decades on the experience of living in institutions - hospitals, mental hospitals, prisons. The survey opens with a consideration of the writings of Erving Goffman, Michael Foucault, and Thomas Szasz. They shattered the liberal consensus that the purpose of imprisonment was to reform. Instead, their work argued that the purpose of prisons and mental hospitals was social control, and that prisons created criminals, and mental facilities created mental illness. Part II looks at four British studies : Russell Barton's Institutional Neurosis which suggested the existence of a new disease entity; Peter Townsend's The Last Refuge, a study of old people in residential care; The Morrisses' Pentonville, a study of a London prison which became a classic in criminology; and Sans Everything, a symposium which paved the way for a series of official hospital enquiries in the 1970s. Part III examines David Rothman's two historical studies on how and why the U.S. constructed institutions, and how and why reform movements failed; N.N. Kittrie's The Right to be Different, a wide-ranging attack on the compulsory treatment of a variety of 'deviants', including the mentally ill, juvenile delinquents and drug abusers; Cohen and Taylor's Psychological survival, a disturbing analysis of the lives of long-term prisoners in a maximum security wing; Zimbardo's Stanford Prison Experiment on the malignant effects of prison conditions on the personalities of both prisoners and their guards; and King and Elliott's study of Albany Prison, showing how a promising therapeutic experiment went wrong. This book will be of interest to students of history, gerontology, sociology, social policy, penology, psychology and political science.
This book brings together research relating to the economics of disability in Ireland. It addresses a range of issues of relevance to the economic circumstances of people with disabilities, considering topics such as social inclusion, poverty, the labour market, living standards and public policy. It also considers issues of specific relevance to children, working-age adults and older people with disabilities, providing important evidence that can help improve disability policies, services and supports. Each chapter presents a clear and relatively non-technical treatment of the specific topic under consideration, making it accessible to a greater number of interested readers. In doing so, it provides an important addition to our knowledge and understanding of the economics of disability and will serve as a useful and up-to-date resource for a range of interested parties both in Ireland and internationally. -- .
Tools for Disabled People from a Disabled PersonLauren "Lolo'' Spencer provides a candid and real inside look into the life of being a disabled person. This disability advocate embarks on the importance of visibility for the disabled community because representation matters! Words from someone doing the work. Lolo Spencer gained popularity as a YouTube personality. On her platform, Sitting Pretty, she encourages viewers to achieve their dreams through making strong choices. Lolo shares how she navigates daily life with Amyotrophic Lateral Sclerosis (ALS). You are more than your limits. Choosing to see herself as more than a wheelchair handicapped disabled person, Lolo chooses to live a bold and courageous life now because representation matters. She created this intersectional guide to provide tools for disabled people to thrive in personal growth, independence, and community building. Add this guide to your list of inclusion books! Inside, you'll find: An intersectional guide on how to grow personally and professionally Tools for disabled people to live a full life despite limitations and expectations Words from the inspiring Lauren "Lolo" Spencer, your favorite disability advocate If you're looking for gifts for disabled people to get encouraged like Disability Visibility, Demystifying Disability, or Rolling Warrior, you'll love Rolling Pretty.
During the early nineteenth century, schools for the deaf appeared in the United States for the first time. These schools were committed to the use of the sign language to educate deaf students. Manual education made the growth of the deaf community possible, for it gathered deaf people together in sizable numbers for the first time in American history. It also fueled the emergence of Deaf culture, as the schools became agents of cultural transformations. Just as the Deaf community began to be recognized as a minority culture, in the 1850s, a powerful movement arose to undo it, namely oral education. Advocates of oral education, deeply influenced by the writings of public school pioneer Horace Mann, argued that deaf students should stop signing and should start speaking in the hope that the Deaf community would be abandoned, and its language and culture would vanish. In this revisionist history, Words Made Flesh explores the educational battles of the nineteenth century from both hearing and deaf points of view. It places the growth of the Deaf community at the heart of the story of deaf education and explains how the unexpected emergence of Deafness provoked the pedagogical battles that dominated the field of deaf education in the nineteenth century, and still reverberate today.
Diversity, Inclusion, and Representation in Contemporary Dramaturgy offers fresh perspectives on how dramaturgs can support a production beyond rigid disciplinary expectations about what information and ideas are useful and how they should be shared. The sixteen contributors to this volume offer personal windows into dramaturgy practice, encouraging theater practitioners, students, and general theater-lovers to imagine themselves as dramaturgs newly inspired by the encounters and enquiries that are the juice of contemporary theater. Each case study is written by a dramaturg whose body of work explores important issues of race, cultural equity, and culturally-specific practices within a wide range of conventions, venues, and communities. The contributors demonstrate the unique capacity of their craft to straddle the ravine between stage and stalls, intention and impact. By unpacking, in the most up-to-date ways, the central question of "Why this play, at this time, for this audience?," this collection provides valuable insights and dramaturgy tools for scholars and students of Dramaturgy, Directing, and Theater Studies.
When Nancy was in her late twenties, she began having blinding headaches, tunnel vision, and dizziness, which led to the discovery of an abnormality on her brain stem. Complications during surgery caused serious brain damage, resulting in partial paralysis of the left side of her body and memory and cognitive problems. Although she was constantly evaluated by her doctors, Nancy's own questions and her distress got little attention in the hospital. Later, despite excellent job performance post-injury, her physical impairments were regarded as an embarrassment to the "perfect" and "beautiful" corporate image of her employer. Many conversations about brain injury are deficit-focused: those with disabilities are typically spoken about by others, as being a problem about which something must be done. In Living with Brain Injury, J. Eric Stewart takes a new approach, offering narratives which highlight those with brain injury as agents of recovery and change in their own lives. Stewart draws on in-depth interviews with ten women with acquired brain injuries to offer an evocative, multi-voiced account of the women's strategies for resisting marginalization and of their process of making sense of new relationships to self, to family and friends, to work, and to community. Bridging psychology, disability studies, and medical sociology, Living with Brain Injury showcases how-and on what terms-the women come to re-author identity, community, and meaning post-injury.
This book brings together legal scholars engaging with vulnerability theory to explore the implications and challenges for law of understanding vulnerability as generative and a source of connection and development. The book is structured into five sections that cover fields of law where there is already significant recourse to the concept of vulnerability. These sections include a main chapter by a legal theorist who has previously examined the creative potential of vulnerability and responses from scholars working in the same field. This is designed to draw out some of the central debates concerning how vulnerability is conceptualised in law. Several contributors highlight the need to re-focus on some of these more positive aspects of vulnerability to counter the way law is being used enable persons to escape the stigma associated with vulnerability by concealing that condition. They seek to explore how law might embrace vulnerability, rather than conceal it. The book also includes contributions that seek to bring vulnerability into a non-binary relationship with other core legal concepts, such as autonomy and dignity. Rather than discarding these legal concepts in favour of vulnerability, these contributions highlight how vulnerability can be entwined with relational autonomy and embodied dignity. This book is essential reading for both students studying legal theory and practitioners interested in vulnerability.
Disability can be either an ascribed status or an achieved status and its combination with other statuses will affect the person's social experiences. The term intersectionality has been used most often to discuss the ways in which the dual and simultaneous statuses of 'black' and "female' exist as facets of social structure and culture, interact in both those spheres, and affect individuals in ways which neither one does separately. Little attention has been paid to disability in this context, despite the many parallels to race and gender. This volume challenges critical thinking about the interrelationships with disability. It questions if the concepts and methods of intersectionality can be applied to disability at all or if they can be applied in the same way. The authors debate whether different conception of intersectionality would fit the disability context better and if there are methodologies which could be used to examine it. A variety of empirical evidence about situations in which disability intersects with other roles are also examined.
Making Rights a Reality? explores the way in which disability activists in the United Kingdom and Canada have transformed their aspirations into legal claims in their quest for equality. It unpacks shifting conceptualizations of the political identity of disability and the role of a rights discourse in these dynamics. In doing so, it delves into the diffusion of disability rights among grassroots organizations and the traditional disability charities. It then shows how the diffusion of this rights model of disability can explain how and why disability activists have deployed legal strategies in pursuit of their goals. The book draws on a wealth of primary sources including court records and campaign documents and encompassing interviews with more than sixty activists and legal experts. While showing that the disability rights movement has had a significant impact on equality jurisprudence in two countries, the book also demonstrates that the act of mobilizing rights can have consequences, both intended and unintended, for social movements themselves.
Setting a case study of deaf people's leisure practices in north-west England within a wider examination of communal deaf leisure across Britain, this book offers new insights into a misunderstood and misrepresented community. Available for the first time in paperback, the book provides a detailed analysis of deaf people's leisure during the second half of the twentieth century, which questions perceptions of deafness as a disability, investigates the importance of shared leisure in community formation more generally and examines the ways in which changing patterns of socialisation are affecting British society. Although focusing on the British deaf community, the concepts and principles explored in this book can be applied across a wide range of social, cultural and ethnic groups. This book draws upon a wide range of subject areas and will consequently be of interest to students and academics working in the fields of disability, history, community and cultural minority studies, sport, leisure and regional studies. -- .
Many people are shocked upon discovering that tens of thousands of innocent persons in the United States were involuntarily sterilized, forced into institutions, and otherwise maltreated within the course of the eugenic movement (1900-30). Such social control efforts are easier to understand when we consider the variety of dehumanizing and fear-inducing rhetoric propagandists invoke to frame their potential victims. This book, now available in paperback, details the major rhetorical themes employed within the context of eugenic propaganda, drawing largely on original sources of the period. Early in the twentieth century the term 'moron' was developed to describe the primary targets of eugenic control. This book demonstrates how the image of moronity in the United States was shaped by eugenicists. This book will be of interest not only to disability and eugenics scholars and historians, but to anyone who wants to explore the means by which pejorative metaphors are used to support social control efforts against vulnerable community groups. -- .
Supporting Families of Children with Developmental Disabilities: Evidence-based and Emerging Practices provides a comprehensive review of the empirical evidence on interventions for families of individuals - ranging from post-preschool age to adulthood - with developmental disabilities. The book presents both narrative and meta-analytic syntheses of a large body of research to evaluate which interventions meet contemporary standards as evidence based practices. The body of studies reviewed in the book has not previously been gathered into one volume, nor evaluated as a whole for the quality and extent of the evidence. The research is presented in the context of contemporary social policy and practices aimed at maximizing the development of children with disabilities while increasing the quality of life of their families. The criteria and procedures followed for identifying, reviewing, evaluating, and categorizing the studies are articulated in line with other major professional standards. Individual chapters focus on several different schools of practice, including: group psycho-educational interventions, behavioral parent training, multiple component interventions, supportive interventions for families of children with autism, home- and school-based practices, self-help groups, and advocacy programs. Supporting Families of Children with Developmental Disabilities is an important tool for moving the disability field forward for future research, practice, and social policy.
Examining representations of speech disorders in works of literature, this first collection of its kind founds a new multidisciplinary subfield related but not limited to the emerging fields of disability studies and medical humanities. The scope is wide-ranging both in terms of national literatures and historical periods considered, engaging with theoretical discussions in poststructuralism, disability studies, cultural studies, new historicism, gender studies, sociolinguistics, trauma studies, and medical humanities. The book's main focus is on the development of an awareness of speech pathology in the literary imaginary from the late-eighteenth century to the present, studying the novel, drama, epic poetry, lyric poetry, autobiography and autopathography, and clinical case studies and guidebooks on speech therapy. The volume addresses a growing interest, both in popular culture and the humanities, regarding the portrayal of conditions such as stuttering, aphasia and mutism, along with the status of the self in relation to those conditions. Since speech pathologies are neither illnesses nor outwardly physical disabilities, critical studies of their representation have tended to occupy a liminal position in relation to other discourses such as literary and cultural theory, and even disability studies. One of the primary aims of this collection is to address this marginalization, and to position a cultural criticism of speech pathology within literary studies.
This is the first study to examine the representation of illness, disability, and cultural pathologies in modern and contemporary Iberian and Latin American literature. Innovative and interdisciplinary, the collection situates medicine as an important and largely overlooked discourse in these literatures, while also considering the social, political, religious, symbolic, and metaphysical dimensions underpinning illness. Investigating how Hispanic and Lusophone writers have reflected on the personal and cultural effects of illness, it raises central questions about how medical discourses, cultural pathologies, and the art of healing in general are represented. Essays pay particular attention to the ways in which these interdisciplinary dialogues chart new directions in the study of Hispanic and Lusophone cultures, and emerging disciplines such as the medical humanities. Addressing a wide range of themes and subjects including bioethics, neuroscience, psychosurgery, medical technologies, Darwinian evolution, indigenous herbal medicine, the rising genre of the pathography, and the 'illness as metaphor' trope, the collection engages with the discourses of cultural studies, gender studies, disability studies, comparative literature, and the medical humanities. This book enriches and stimulates scholarship in these areas by showing how much we still have to gain from interdisciplinary studies working at the intersections between the humanities and the sciences.
The Christian gospel compels humanity to embrace deeper ways of being human together that will overcome false divisions and exclusions in search of flourishing and graced communities. Presenting both short narratives emerging out of theological reflection on experience and analytical essays arising from engagement in scholarly conversations Theology and the Experience of Disability is a conscious attempt to develop theology by and with people with disabilities instead of theology about people with disabilities. A mixture of academic, professional, practical, and/or lived experience is brought to the topic in search of constructive multi-disciplinary proposals for church and society. The result is an interdisciplinary engagement with the constructive possibilities that emerge from a distinctly Christian understanding of disability as lived experience.
Examining the ways in which societies treat their most vulnerable members has long been regarded as revealing of the bedrock beliefs and values that guide the social order. However, academic research about the post-war welfare state is often focused on mainstream arrangements or on one social group. With its focus on different marginalized groups: migrants and people with disabilities, this volume offers novel perspectives on the national and international dimensions of the post-war welfare state in Western Europe and North America.
Challenging persistent geopolitical asymmetries in feminist knowledge production, this collection depicts collisions between concepts and lived experiences, between academic feminism and political activism, between the West as generalizable and the East as the concrete Other. Borderlands in European Gender Studies narrows the gap between cultural analysis and social theory, addressing feminist theory's epistemological foundations and its capacity to confront the legacies of colonialism and socialism. The contributions demonstrate the enduring worth of feminist concepts for critical analysis, conceptualize resistance to multiple forms of oppression, and identify the implications of the decoupling of cultural and social feminist critique for the analysis of gender relations in a postsocialist space. This book will be of import to activists and researchers in women's and gender studies, comparative gender politics and policy, political science, sociology, contemporary history, and European studies. It is suitable for use as a supplemental text for advanced undergraduate and graduate courses in a range of fields.
One of the perennial political/philosophical questions concerns whether it is ever justifiable for a third party to paternalistically restrict an adult's freedom to ensure their own, or society's, best interests are protected. Wherever one stands on this debate it remains the case that, unlike their non-impaired contemporaries, many intellectually disabled adults are subjected to a paternalistic regime of care. This is particularly the case regarding members of this population exercising more control of their sexuality. Utilizing rare empirical data, Foucault's theory of power and Kristeva's concept of abjection, this work shows that many non-disabled people - including family members - hold ambivalent attitudes towards people with visible disabilities expressing their sexuality. Through a careful examination of the autonomy/paternalism debate this is the first book to provide an original, provocative and philosophically compelling analysis to argue that where necessary, facilitated sex with prostitutes should be included as part of a new regime of care to ensure that sexual needs are met. Intellectual Disability and the Right to a Sexual Life is essential reading for scholars, students and policy-makers with an interest in philosophy, sociology, political theory, social work, disability studies and sex studies. It will also be of interest to anybody who is a parent or a sibling of an adult with an intellectual disability and those with an interest in human rights and disability more generally.
This book explores the diverse ways in which disability activism and advocacy are experienced and practised by people with disabilities and their allies. Contributors to the book explore the very different strategies and campaigns they have used to have their demands for respect, dignity and rights heard and acted upon by their communities, by national governments and the international community. The book, with its contemporary global focus, makes a significant contribution to the field of disability and social justice studies, particularly at a time of major social, political and cultural upheaval. Global Perspectives on Disability Activism and Advocacy offers a significant intervention within the field of disability at a time of major social upheaval where actors, advocates and activists are seeking to hold onto existing claims for rights, equality and disability justice.
Social Justice Journalism: A Cultural History of Social Movement Media from Abolition to #womensmarch argues that to better understand the evolution, impact, and future of digital social justice media we need to understand their connections to a venerable print culture of dissent. This cultural history seeks to deepen and contextualize knowledge about digital activist journalism by training the lens of social movement theory back on the nearly forgotten role of eight twentieth-century American social justice journals in effecting significant social change. The book deliberately conflates "social movement media" with newer and broader conceptions of "social justice journalism" to highlight changing definitions of journalism in the digital era. It uses framing theory, social movement theory, and theories about the power of facts and emotion in storytelling to show how social movement media practice journalism to mobilize collective action for their cause. After tracing the evolution and functions of each social justice movement's print culture, each chapter concludes with a comparison to its online counterparts to illuminate links with digital media. The book concludes that digital activist journalism, while in some ways unique, also shares continuities and commonalities with its print predecessors.
This book sets out to understand how students with disabilities experience higher education and the transition to the workplace. It foregrounds the voices of students and graduates in order to explore identity, inclusion, participation and success of youth with disabilities in higher education, as well as their transition from university to employment. The author proposes a new understanding of disability, considered in terms of a continuum of abilities, balancing empirical data, theory and policy analysis with specific regard to the interests of youth with disabilities, making a unique contribution to discussions on access, inclusion and success in higher education and employment. These discussions inform social development and educational policy planning and implementation, not only in South Africa, but also in countries with a similar context, particularly in terms of remedial courses of action that bring social justice to people with disabilities. Students with Disabilities and the Transition to Work will be of interest to all scholars and students working in the fields of disability studies, particularly those with a focus on critical disability studies and disability in the global south, as well as those working in higher education, sociology, development studies and social policy. |
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