This book explores the series of issues that emerge at the intersection of disability, care and family law. Disability studies is an area of increasing academic interest. In addition to a subject in its own right, there has been growing concern to ensure that mainstream subjects diversify and include marginalised voices, including those of disabled people. Family law in modern times is often based on an "able-bodied autonomous norm" but can fit less well with the complexities of living with disability. In response, this book addresses a range of important and highly topical issues: whether care proceedings are used too often in cases where parents have disabilities; how the law should respond to children who care for disabled parents - and the care of older family members with disabilities. It also considers the challenges posed by the UN Convention on the Rights of Persons with Disabilities, particularly around the different institutional and state responsibilities captured in the Convention, and around decision-making for both disabled adults and children. This interdisciplinary collection - with contributors from law, criminology, sociology and social policy as well as from policy and activist backgrounds - will appeal to academic family lawyers and disability scholars as well as students interested in issues around family law, disability and care.

Comedy and humour have frequently played a key role in disabled people's lives, for better or for worse. Comedy has also played a crucial part in constructing cultural representations of disability and impairments, contributing to the formation and maintenance of cultural attitudes towards disabled people, and potentially shaping disabled people's images of themselves. As a complex and often polysemic form of communication, there is a need for greater understanding of the way we make meanings from comedy. This is the first book which explores the specific role of comedic film genres in representations of disability and impairment. Wilde argues that there is a need to explore different ways to synthesise Critical/Disability Studies with Film Studies approaches, and that a better understanding of genre conventions is necessary if we are to understand the conditions of possibility for new representational forms and challenges to ableism. After a discussion of the possibilities of a 'fusion' between Disability Studies and Film Studies, and a consideration of the relationships of comedy to disability, Wilde undertakes analysis of contemporary films from the romantic comedy, satire, and gross-out genres. Analysis is focused upon the place of disabled and non-disabled people in particular films, considering visual, audio, and narrative dimensions of representation and the ways they might shape the expectations of film audiences. This book is of particular value to those in Film and Media Studies, and Critical/Disability Studies, especially for those who are investigating more inclusive practices in cultural representation.

Without access to a public social welfare system in parts of China, some families face invidious decisions about the lives of their children with disabilities. In other places, children with disabilities can now expect to participate in their families and communities with the same aspirations as other children. Understanding how Chinese policy has changed in the places that have addressed these stark situations is vital for the rights of the children and their families who still struggle to find the support they need. This book examines family experiences of child disability policy in China, and is the first to compile research on this area. It applies a child disability rights framework in four domains - care and protection, economic security, development and participation - to investigate families' experiences of the effectiveness of support to fulfil their children's rights. Questioning how families experience the interrelationships between these rights, it also considers what the further implications of the policy are. It includes vivid case studies of families' experiences, and combines these with national data to draw out the likely future policy directions to which the Chinese government has said it is committed. Bringing together a wealth of statistical and qualitative data on children with disabilities, this book will be of great interest to students and scholars of Chinese social welfare, social policy, society and children's studies, as well as policy-makers and NGOs alike.

Over recent decades an increasing amount of attention has been paid to identifying and meeting the individual support needs of mental health service users and people with physical impairments in the UK. Evidence of this can be seen within the literature that considers mental health and physical impairment from a wide range of perspectives, as well as the increased range of service provision for individuals within both categories. However, the support needs of individuals who fall into both categories have largely been overlooked by social care and health service providers, practitioners, and organisations for whom the main focus is either mental health or physical impairment. The lack of attention that has been given in theory and in practice to the mental health support needs of disabled women who experience mental distress has resulted in an insufficient knowledge base of how to support disabled women who may require some form of mental health support. For this group of women this has meant that their needs have arguably continued to be neglected and subsequently left unmet. Writing from her position as both a social worker and a service user, Julia Smith has written an innovative and important text which both discusses a neglected area of personal experience and makes an original contribution to knowledge with regard to both policy and practice.

First published in 1999, this volume explores how the principle of normalisation informs British learning disability services by instructing them to help service users acquire behaviours and characteristics which are as 'culturally normative as possible'. While many studies have attempted to assess the efficacy of this approach, their measurement criteria are usually based on levels of competence and participation - values themselves derived from the principle of normalisation. The case study in this volume compares services in London to services in Milan, Northern Italy,where the concept of deinstitutionalisation has been interpreted differently. Recommendations are made for increasing good practice in certain aspects of British provision. A key suggestion is that consistent, legislated training for support staff in British learning disability services might contribute towards ameliorating current difficulties described by much of the contemporary research.

Published in 1999. Contemporary organizations are faced with increasingly rapid and dramatic change within their political, cultural and technological environments. Institutions in Turbulent Environments critically examines the way organizations respond to these changes,with a particular focus upon the institutional disability sector. The book examines available theory concerning organizational contingency, adaptation and population ecology. It utilizes a framework developed from this theory to examine the ways in which a major institution for the intellectually disabled responded to the turbulence within its environment. It uses this data to re-examine theory and to propose changes to the way organization/environment relationships are understood.

Disability, Obesity and Ageing offers an engaging account of a new area of pressing concern, analysing the way in which 'spurned' identities are depicted and reacted to in televisual genres and online forums. Examining the symbolic power of the media, this book presents case studies from drama, situation comedies, reality and documentary television programmes popular in the UK, USA and Australia to shed light on the representation of disability, obesity and ageing, and the manner in which their status as unwanted and unwelcome identities is perpetuated. A theoretically sophisticated exploration of television as a translator of identity, and the exploration of identity categories in allied virtual spaces, this book will be of interest to sociologists, as well as scholars of popular culture, and cultural and media studies.

The role of disability and deafness in art Distressing Language is full of mistakes-errors of hearing, speaking, writing, and understanding. Michael Davidson engages the role of disability and deafness in contemporary aesthetics, exploring how physical and intellectual differences challenge our understanding of art and poetry. Where hearing and speaking are considered normative conditions of the human, what happens when words are misheard and misspoken? How have writers and artists, both disabled and non-disabled, used error as generative elements in contesting the presumed value of "sounding good"? Distressing Language grows out of the author's experience of hearing loss in which misunderstandings have become a daily occurrence. Davidson maintains that verbal confusions are less an aberration in understanding than a component of new knowledge. Davidson discusses a range of sites, from captioning errors and Bad Lip Reads on YouTube, to the deaf artist Christine Sun Kim's audiovisual installations, and a poetic reinterpretation of the Biblical Shibboleth responding to the atrocities of the Holocaust. Deafness becomes a guide in each chapter of Distressing Language, giving us a closer look at a range of artistic mediums and how artists are working with the axiom of "error" to produce novel subjecthoods and possibilities.

Building on David M. Engel and Frank W. Munger's work analyzing the narratives of people with physical and learning disabilities, this book examines the life stories of twelve physically disabled Canadian adults through the prism of the social model of disablement. Using a grounded theory approach and with extensive reporting of the thoughts of the participants in their own words, the book uses narratives to explore whether an advocacy identity helps or hinders dealings with systemic barriers for disabled people in education, employment, and transportation. The book underscores how both physical and attitudinal barriers by educators, employers and service providers complicate the lives of disabled people. The book places a particular focus on the importance of political economy and the changes to the labour market for understanding the marginalization and oppression of people with disabilities. By melding socio-legal approaches with insights from feminist, critical race, and queer legal theory, Ravi Malhotra and Morgan Rowe ask if we need to reconsider the social model of disablement, and proposes avenues for inclusive legal reform.

Examining representations of speech disorders in works of literature, this first collection of its kind founds a new multidisciplinary subfield related but not limited to the emerging fields of disability studies and medical humanities. The scope is wide-ranging both in terms of national literatures and historical periods considered, engaging with theoretical discussions in poststructuralism, disability studies, cultural studies, new historicism, gender studies, sociolinguistics, trauma studies, and medical humanities. The book's main focus is on the development of an awareness of speech pathology in the literary imaginary from the late-eighteenth century to the present, studying the novel, drama, epic poetry, lyric poetry, autobiography and autopathography, and clinical case studies and guidebooks on speech therapy. The volume addresses a growing interest, both in popular culture and the humanities, regarding the portrayal of conditions such as stuttering, aphasia and mutism, along with the status of the self in relation to those conditions. Since speech pathologies are neither illnesses nor outwardly physical disabilities, critical studies of their representation have tended to occupy a liminal position in relation to other discourses such as literary and cultural theory, and even disability studies. One of the primary aims of this collection is to address this marginalization, and to position a cultural criticism of speech pathology within literary studies.

This ground-breaking volume considers what it means to make claims of disability membership in view of the robust Disability Rights movement, the rich areas of academic inquiry into disability, increased philosophical attention to the nature and significance of disability, a vibrant disability culture and disability arts movement, and advances in biomedical science and technology. By focusing on the statement, "We are all disabled", the book explores the following questions: What are the philosophical, political, and practical implications of making this claim? What conceptions of disability underlie it? When, if ever, is this claim justified, and when or why might it be problematic or harmful? What are the implications of claiming "we are all disabled" amidst this global COVID-19 pandemic? These critical reflections on the boundaries of disability include perspectives from the humanities, social sciences, law, and the arts. In exploring the boundaries of disability, and the ways in which these lines are drawn theoretically, legally, medically, socially, and culturally, the authors in this volume challenge particular conceptions of disability, expand the meaning and significance of the term, and consider the implications of claiming disability as an identity. It will be of interest to a broad audience, including disability scholars, advocates and activists, philosophers and historians of disability, moral theorists, clinicians, legal scholars, and artists.

Sarah Merriman is just like any other urbane young woman in her twenties... She has a job in a Central London hotel, a boyfriend, commutes to work on the Tube, eats out, goes to films and theatre... This is all the more remarkable (though not to her) because Sarah was born with Down's Syndrome. Her parents having no prior inkling, it came as a huge shock to them that they now had a daughter with a disability. In 1999 her father Andy wrote a frank and moving book, A Minor Adjustment, about the challenge of her early years. The national publicity it gained saw it become a treasured resource for other families on a similar journey. Now he follows up with the inspirational story of how his daughter, whose favourite expression is `I love my life', has grown up, featured on Michel Roux's compelling Kitchen Impossible series, and is making a life of her own at a time when pre-natal testing is threatening the very existence of people with Down's syndrome. Sarah has contributed throughout.

This book addresses the ways in which individualised, market-based models of disability support provision have been mobilised in and across different countries through cross-national investigation of individualised funding (IF) as an object of neoliberal policy mobility. Combining rich theoretical and interdisciplinary perspectives with extensive empirical research, the book provides a timely examination of the policy processes and mechanisms driving the spread of IF amongst countries at the forefront of disability policy reform. It is argued that IF's mobility is not attributable to neoliberalism alone but to the complex intersections between neoliberal and emancipatory agendas and to the transnational networks that have blended the two agendas in new ways in different institutional contexts. The book shows how disability rights struggles have synchronised with neoliberal agendas, which explains IF's propensity to move and mutate between different jurisdictions. Featuring first-hand accounts of the activists and advocates engaged in these struggles, the book illuminates the consequences and risks of the dangerous liaisons and political trade-offs that seemed necessary to get individualised funding on the policy agenda for disabled people. It will be of interest to all scholars and students working in disability studies, social policy, sociology and political science more generally.

Since the 1970s, the international disability rights movement, the United Nations and national governments across the world have attempted to ameliorate the status of the disabled population through a range of legislative and policy measures primarily in the areas of health, education, employment, accessible environments and social security. While the discourse in the disability sector in India has shifted from charity and welfare to human rights and entitlements, disability studies as an interdisciplinary academic terrain that focuses on the contributions, experiences, history and culture of persons with disabilities has not yet taken root.

This volume collates some of the most recent pioneering work on disability studies from across the country. The essays presented here engage with the concept of disability from a variety of disciplinary positions, sociocultural contexts and subjective experiences within the overarching framework of the Indian reality. The contributors including some with disabilities themselves provide a well-rounded perspective, in shifting focus from disability as a medical condition only needing clinical intervention to giving it due social and academic legitimacy.

This book outlines key issues that would be germane to any disability studies endeavour in India and South Asia, and will appeal to academics, activists, institutions, laypersons and professionals involved in social welfare, sociology, disability studies, women s studies, psychiatry, rehabilitation, and social and preventive medicine.

Disability and chronic illness represents a special kind of cultural diversity, the "other" to "normal" able-bodiedness. Most studies of disability consider disability in North American or European contexts; and studies of diversity in Japan consider ethnic and cultural diversity, but not the differences arising from disability. This book therefore breaks new ground, both for scholars of disability studies and for Japanese studies scholars. It charts the history and nature of disability in Japan, discusses policy and law relating to disability, examines caregiving and accessibility, and explores how disability is viewed in Japan. Throughout the book highlights the tension between individual responsibility and state intervention, the issues concerning how care for disability is paid for, and the special problem of how Japan is providing care for its large and increasing population of elderly people.

What was it like to be disabled in the Middle Ages? How did people become disabled? Did welfare support exist? This book discusses social and cultural factors affecting the lives of medieval crippled, deaf, mute and blind people, those nowadays collectively called "disabled." Although the word did not exist then, many of the experiences disabled people might have today can already be traced back to medieval social institutions and cultural attitudes.

This volume informs our knowledge of the topic by investigating the impact medieval laws had on the social position of disabled people, and conversely, how people might become disabled through judicial actions; ideas of work and how work could both cause disability through industrial accidents but also provide continued ability to earn a living through occupational support networks; the disabling effects of old age and associated physical deteriorations; and the changing nature of attitudes towards welfare provision for the disabled and the ambivalent role of medieval institutions and charity in the support and care of disabled people.

Disability and New Media examines how digital design is triggering disability when it could be a solution. Video and animation now play a prominent role in the World Wide Web and new types of protocols have been developed to accommodate this increasing complexity. However, as this has happened, the potential for individual users to control how the content is displayed has been diminished. Accessibility choices are often portrayed as merely technical decisions but they are highly political and betray a disturbing trend of ableist assumption that serve to exclude people with disability. It has been argued that the Internet will not be fully accessible until disability is considered a cultural identity in the same way that class, gender and sexuality are. Kent and Ellis build on this notion using more recent Web 2.0 phenomena, social networking sites, virtual worlds and file sharing. Many of the studies on disability and the web have focused on the early web, prior to the development of social networking applications such as Facebook, YouTube and Second Life. This book discusses an array of such applications that have grown within and alongside Web 2.0, and analyzes how they both prevent and embrace the inclusion of people with disability.

How do you become an 'amputee', 'war-wounded', 'victim' or 'disabled' person? This book describes how an amputee and war-wounded community was created after a decade long conflict (1991-2002) in Sierra Leone. Beginning with a general socio-cultural and historical analysis of what is understood by impairment and disability, it also explains how disability was politically created both during the conflict and post-conflict, as violence became part of the everyday. Despite participating in the neoliberal rebuilding of the nation state, ex-combatants and the security of the nation were the government's main priorities, not amputee and war-wounded people. In order to survive, people had to form partnerships with NGOs and participate in new discourses and practices around disability and rights, thus accessing identities of 'disabled' or 'persons with disabilities'. NGOs, charities and religious organisations that understood impairment and disability were most successful at aiding this community of people. However, since discourse and practice on disability were mainly bureaucratic, top-down, and not democratic about mainstreaming disability, neoliberal organisations and INGOs have caused a new colonisation of consciousness, and amputee and war-wounded people have had to become skilled in negotiating these new forms of subjectivities to survive.

This volume presents a state of the art account of the clinical specialty of mental health care of deaf people. Drawing upon some of the leading clinicians, teachers, administrators, and researchers in this field from the United States and Great Britain, it addresses critical issues from this specialty such as Deaf/hearing cross cultural dynamics as they impact treatment organizations Clinical and interpreting work with deaf persons with widely varying language abilities Adaptations of best practices in inpatient, residential, trauma, and substance abuse treatment for deaf persons Overcoming administrative barriers to establishing statewide continua of care University training of clinical specialists The interplay of clinical and forensic responses to deaf people who commit crimes An agenda of priorities for Deaf mental health research Each chapter contains numerous clinical case studies and places a heavy emphasis on providing practical intervention strategies in an interesting, easy to read style. All mental health professionals who work with deaf individuals will find this to be an invaluable resource for creating and maintaining culturally affirmative treatment with this population.

Disability is often mentioned in discussions of slave health, mistreatment and abuse, but constructs of how "able" and "disabled" bodies influenced the institution of slavery has gone largely overlooked. This volume uncovers a history of disability in African American slavery from the primary record, analyzing how concepts of race, disability, and power converged in the United States in the first half of the nineteenth century. Slaves with physical and mental impairments often faced unique limitations and conditions in their diagnosis, treatment, and evaluation as property. Slaves with disabilities proved a significant challenge to white authority figures, torn between the desire to categorize them as different or defective and the practical need to incorporate their "disorderly" bodies into daily life. Being physically "unfit" could sometimes allow slaves to escape the limitations of bondage and oppression, and establish a measure of self-control. Furthermore, ideas about and reactions to disability-appearing as social construction, legal definition, medical phenomenon, metaphor, or masquerade-highlighted deep struggles over bodies in bondage in antebellum America.

This book traces the development of paid work for visually impaired people in the UK from the 18th century to the present day. It gives a voice to visually impaired people to talk about their working lives and documents the history of employment from their experience, an approach which is severely lacking in the current literature about visual impairment and employment. By analysing fifty in-depth face-to-face interviews with visually impaired people talking about their working lives (featuring those who have worked in traditional jobs such as telephony, physiotherapy and piano tuning, to those who have pursued more unusual occupations and professions), and grouping them according to occupation and framed by documentary, historical research, these stories can be situated in their broader political, economic, ideological and cultural contexts. The themes that emerge will help to inform present day policy and practice within a context of high unemployment amongst visually impaired people of working age. It is part of a growing literature which gives voice to disabled people about their own lives and which adds to the growing academic discipline of disability studies and the empowerment of disabled people.

What challenges are posed by changing transnational trends, agendas and movements that affect disabled people's lives, and what can disabled people, their representative organisations and their governments do to advance the agenda for self-determination and inclusion? This book draws together the writing of academics and activists to depict the experience and perspective of disabled people in relation to a range of contemporary social changes, with a focus firmly on ways in which disabled people and their allies can act to counter disabling policies and practices. Throughout the book there is an emphasis on disabled people's own voices and activism as the critical driver of theoretical critique and practical change. Chapters address a wide range of cultural, institutional and personal arenas to explore and contest the boundaries that disabled people seek to move beyond, from cross-border labour movements in Korea to experience of day services in England, from continuing and long-lasting realities of wars in Lebanon, Cambodia and Somalia to the beauty of harmony in Navajo traditions for understanding disability, from collective activism to individual participation in the Olympics. This book is recommended reading for students, researchers and activists interested in Disability Studies and is directly relevant to policy makers and practitioners in a position to reshape rights, spaces and innovations in response to the priorities disabled people feel and articulate are important for their lives. It was originally published as a special issue of Disability & Society.

This book on Relationality addresses our growing "crisis of connection" by foregrounding the multi-faceted ways in which we are interconnected with each other and the world in which we live. When Niobe Way and her collaborators first proclaimed such a "crisis" in their 2018 book The Crisis of Connection: Roots, Consequences, and Solutions, they could not have foreseen the extremes of isolation and disconnection that Covid-19 would unleash just a couple of years later. Importantly, what such experiences of impaired and compromised relationality impress upon us-now more powerfully than ever-is just how fundamentally we are intertwined with each other and the world we inhabit. The ten scholarly chapters assembled here, combined with ten specially commissioned poems, emphasise the significance of these relational entanglements. They draw on a range of thinkers (with Emmanuel Levinas playing a particularly prominent role) to bring relationality into conversation with an array of contemporary paradigms and areas of political concern: the Anthropocene, post-humanism, neoliberalism, disability studies, and postcolonialism (to name but a few). Tracing the various challenges and opportunities associated with our relational existence, they collectively consider the role relationality plays, or might play, in our increasingly less-than-relational lives. The chapters and poems in this book were originally published as a special issue of Angelaki.

Cultural Heritage, Ageing, Disability, and Identity examines the effects of disability and ageing on engagement with cultural heritage and associated cultural identity formation processes. Combining theory with detailed case study research, it unpicks both the current state of play and future directions. The book is based upon detailed case example research on both the self-reported individual experiences of people with disabilities engaging with cultural heritage, and the accessibility approaches of cultural heritage institutions themselves. Hayhoe grounds the analysis in a theoretical and historical overview of disability and inclusion. He interrogates the various ways in which identity is formed through interaction with cultural heritage, and considers the differences in engagement with cultural heritage amongst those who develop disabilities early in life compared to those who acquire disabilities later in life. His conclusions offer insights that can help improve the provision of cultural heritage engagement to all people, but particularly those with disabilities. Cultural Heritage, Ageing, Disability, and Identity is key reading for students and scholars of cultural heritage, visitor studies, and disability studies, and will also be of interest to other subject areas engaging with issues of accessibility. It should also be read by institutions looking to improve their accessibility strategy to engage broader audiences.

This text is a critical and empirically-based introduction to disability studies. It offers a comprehensive, book-length analysis of disability through the lens of Science and Technology Studies (STS), and presents a practice-oriented discussion of how bodies, senses and things are linked in everyday life and configure "enabling" and "disabling" scenarios. Relevant to a broad spectrum of medical practitioners and practicing social service workers, the book will also be essential reading in the fields of disability studies, sociology of the body/senses, medical sociology and STS.