When a harrowing heart attack and cardiac arrest robbed Alan's brain of vital oxygen, he lost his abilities to read, write, walk, talk, think, and remember. In a flash, Alan went from being a successful physics professor to a brain injury survivor fighting to relearn everything he once knew. So began seven years of intensive rehabilitation, re-creation, and redefining priorities and goals. Alan also faced the huge challenge of shaping a new identity and life. Above all, our book is the story of a marriage that transforms and triumphs, but is never defeated by catastrophic illness. In a memoir brimming with information, Janet explores the mysteries and miracles of their new world from her perspective as Alan's wife, Interpreter of the World, and rehab partner. Alan shares his eloquent tour of the shattered and healing universe inside his brain as few people can. "Professor Cromer Learns to Read" shows that it is possible for a person with an injured brain to continue to heal and improve for years with the right treatment. It is possible for love to thrive and adapt to challenging circumstances. It is possible to build a life with meaning and gusto even with a devastating illness. Our process of gracefully and grudgingly accepting the roles of chronically ill person and caregiver will resonate with many families. The universality of our situation transcends diagnosis and age to salute the human spirit. Please visit www.janetcromer.com to read advance praise for the book.

Long Lives Are for the Rich is the title of a silent ominous program that affects the lives of millions of people. In all developed countries disadvantaged and, especially, poor people die much earlier than the most advantaged. During these shorter lives they suffer ten to twenty years longer from disabilities or chronic disease. This does not happen accidentally: health inequalities – including those between healthy and unhealthy life styles – are mainly caused by social inequalities that are reproduced over the life course. This crucial function of the life course has become painfully visible during its neoliberal reorganization since the early 1980s. Studies about aging over the life course, from birth to death, show the inhumane consequences as people get older. In spite of the enormous wealth that has been piled up in the US for a dwindling percentage of the population, there has been growing public indifference about the needs of those in jobs with low pay and high stress, but also about citizens from a broad middle class who can hardly afford high quality education or healthcare. However, this ominous program affects all: recent mortality rates show that all Americans, including the rich, are unhealthier and dying earlier than citizens of other developed countries. Moreover, the underlying social inequalities are tearing the population apart with nasty consequences for all citizens, including the rich. Although the public awareness of the consequences has been growing, neoliberal policies remain tempting for the economic and political elites of the developed world because of the enormous wealth that is flowing to the top. All this poses urgent questions of social justice. Unfortunately, the predominant studies of social justice along the life course help to reproduce these inequalities by neglecting them. This book analyzes the main dynamics of social inequality over the life course and proposes a theory of social justice that sketches a way forward for a country that is willing to invest in its greatest resource: the creative potential of its population.

Drawing on new empirical research with disabled people in the UK, and considering the work of theorists such as Berlin, Habermas and Mouffe, Ellison's ideas of proactive and defensive engagement and Turner's 'sociology of the body', Angharad Beckett proposes a new model of 'active' citizenship that rests upon an understanding of 'vulnerable personhood'.

Performances in hospices and on beaches; cross-cultural myth making in Wales, New Zealand and the US; communal poetry among mental health system survivors: this book, now in paperback, presents a senior practitioner/critic's exploration of arts-based research processes sustained over more than a decade - a subtle engagement with disability culture.

In a readable and highly accessible ethnographic account that is shaped by the stories of families and the voices of parents, De Wolfe examines how parents of children with autism navigate the educational and medical systems, understand their own and their children's bodies, and support and educate one another.

This collection brings together scholarship and creative writing that brings together two of the most innovative fields to emerge from critical and cultural studies in the past few decades: Disability studies and performance studies. It draws on writings about such media as live performance art, photography, silent film, dance, personal narrative and theatre, using such diverse perspectives and methods as queer theory, gender, feminist, and masculinity studies, dance studies, as well as providing first publication of creative writings by award-winning poets and playwrights.

This book was based on a special issue of Text and Performance Quarterly.

Leutz and his colleagues offer the most practice-oriented and realistic assessment of how chronically ill elders are being served at the community level. They analyze options and opportunities open to policy makers and practitioners relative to long-term care in the community environment where so many elders want to be. In the process, the authors evaluate the range of needs, the importance of gender and cultural differences, and the effectiveness of Medicare and Medicaid as entitlement strategies.

Community care constitutes a major gap in the nation's health-care system. The authors show that there are many persuasive reasons to build, staff, manage, and pay for high quality community-care systems. Such programs are demonstrated to be affordable and to meet better the needs of a large percentage of elders who require long-term care. The authors set forth goals for community-care systems and criteria for assessment. This timely analysis, coupled with practical, socially compelling recommendations, responds effectively to the realities of an aging population and the great public policy and related fiscal concerns.

This volume addresses a range of philosophical and ethical issues in adapted physical activity and disability sports participation more broadly. It is comprised of a range of essays by international scholars whose backgrounds embrace different traditions of philosophy, pedagogy and adapted physical activity.

The principal aim of the symposium was to open up and critically explore a range of conceptual and ethical issues and perspectives that have arisen with respect to the engagement of persons with dis/abilities in a range of physical activity contexts including, but not exclusively located in, mainstream sporting activities.

This book was published as a special issue in Sport, Ethics and Philosophy.

This volume offers a comprehensive examination of current theory, research, and practice concerning people with serious mental illness and their families. There are presently many exciting developments under way, as professional practice is reformulated to emphasize the contributions of psychologists to the treatment of mental illness and the satisfactions that can accompany clinical work with the population. The current era is a transitional one in many respects, with significant changes in mental health policies and priorities, and in clinical training and practice. This work charts these new developments and explores their implications for mental health professionals.

Hoop Dreams on Wheels is a life-history study of wheelchair athletes associated with a premier collegiate wheelchair basketball program. The book, which grapples with the intersection of biography and history in society, situates the study in broader context with background on the history and sociology of disability and disability sports. It documents the development and evolution of the basketball program and tells the individual life stories of the athletes, highlighting the formative interpersonal and institutional experiences that influenced their agentive actions and that helped them achieve success in wheelchair sports. It also examines divisions within the disability community that reveal both empowering and disempowering aspects of competitive wheelchair athletics, and it explores some of the complexities and dilemmas of disability identity in contemporary society. The book is intended to be read by a general audience as well as by students in college courses on disability, sports, social problems, deviance, medical sociology and anthropology, and introductory sociology. It also will be of interest to scholars in the sociology of disability, sociology of sports, and medical humanities, as well as life-history researchers and professionals in the fields of physical education, therapeutic recreation, and rehabilitative counseling.

Disability and Discourse applies and explains Conversation Analysis (CA), an established methodology for studying communication, to explore what happens during the everyday encounters of people with intellectual disabilities and the other people with whom they interact. * Explores conversations and encounters from the lives of people with intellectual disabilities * Introduces the established methodology of Conversation Analysis, making it accessible and useful to a wide range of students, researchers and practitioners * Adopts a discursive approach which looks at how people with intellectual disabilities use talk in real-life situations, while showing how such talk can be supported and developed * Follows people into the meetings and discussions that take place in self-advocacy and research contexts * Offers insights into how people with learning disabilities can have a voice in their own affairs, in policy-making, and in research

"Presenting a cartographic journey into the world of the production(s) of disability, this book examines embodiment, transhumanism, subjectivity, technology and jurisprudence. It concerns matters of order/disorder and the normal and pathological, and explores the way stories about wholeness, health, enhancement and perfection are told"--Provided by publisher.

In this remarkable and incisive work, Sharon Betcher analyzes our world and God's embodied presence in the light of her own disability and the insight it affords. She claims disablement as a site of powerful social and religious critique and reflection. With searing honesty, she reveals how our culture, only recently tolerant and supportive of disabled people, still fears them. The presence of disabled persons stands as a rebuke to our images of body and health, to the distorted values of our consumerist culture, and the globalized economy that embodies those values in unjust structures. Yet, Betcher claims, disablement has also revealed powerful alternative understandings of the body and body politic, in Scripture, in the actions of Jesus, in the healing work of the Spirit at work in a broken world. Brimming with insight, Betcher's work is a revelation and a bracing challenge to all Christians.

This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a provocative and thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged, deconstructive and critical treatment of dementia and the systems and structures that currently govern and frame it. The book is interdisciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition it proposes a new critical movement for the field of dementia studies and practice. The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development.

Families of children with special health needs frequently cite difficulties in their communications with physicians and other medical professionals. Indeed, parents of high-risk, chronically ill, and disabled infants often regard interactions with health care providers as one of the most stressful parts of their early experiences with their children.

This volume was designed to present a variety of medical education approaches used to overcome this problem. After providing an overview of some of the difficulties faced by physicians and families of children with special health needs in their interactions with one another, the volume examines a number of useful medical education models. The models and viewpoints presented include those of physicians, early intervention professionals, professionals with backgrounds in education, psychology, and sociology, and parents. This volume is invaluable to those involved in designing and evaluating medical education approaches, and those developing public policy for children and the family.

"Sir, your sons have been in a car accident. How quickly can you get here?" Join Pastor Jeremy Freeman as he shares how the harrowing phone call that no parent wants to receive would lead to a miraculous outcome that only God could deliver. When Jeremy and Emily Freeman's teenage son Caleb was in a devastating car accident, doctors gave him a 10 percent chance of survival. Fear of losing a child was all too fresh for the Freemans--their seven-year-old son, Trey, had died just four years earlier from a genetic immunodeficiency. But God had other plans. In #butGod, Jeremy shares the incredible story of Caleb's recovery, the darkness that nearly overtook their family in the waiting, and the #butGod movement that captured the prayers of Christians around the world. #butGod includes heartfelt excerpts from Emily's prayer journal and encouragement from Jeremy that goes beyond platitudes to a hard-won trust in God's goodness. The Freeman family's incredible story offers: Greater understanding of the beauty God can bring through suffering An honest glimpse of how one family grew closer together despite grief, tension, and doubt A powerful example of how God works through the prayers of His people Hope that only God can provide Whatever sorrow you're walking through, #butGod leads you to the sweetness found in trusting God with suffering--and the deeper faith that comes from seeing His purpose in the pain. Praise for #butGod: "Pastor Jeremy Freeman and his family have endured crushing disappointment and heartbreak, but they've also experienced the redemptive and healing power of God. If you are facing significant challenges, Pastor Jeremy's book #butGod will build your faith and equip you with the strength to overcome." --Craig Groeschel, founder and senior pastor of Life.Church and New York Times bestselling author "There are some books that when you start reading you cannot put them down. #butGod is one of those books. This is an amazing story that will captivate you. You will laugh and cry. You will weep for sorrow and weep for joy. And in it all, you will see the amazing grace of God and His sustaining power and love for His children." --Dr. Daniel L. Akin, President, Southeastern Baptist Theological Seminary, Wake Forest, North Carolina

Under the Americans with Disabilities Act, organizations that fail to provide reasonable accommodations to employees with mental disabilities may be subject to penalties and punitive damages. The Act does not, however, provide useful guidelines to help organizations comply--a gap that Dr. Fielder's book now fills. This manual shows that compliance is not difficult or expensive. In clear, concise language, it acquaints management with mental diagnoses, impairments, disabilities, the myths of mental illness and its affect on job performance, and provides samples of workplace accommodations and compliance plans. Practical and readable, the book is intended for management of organizations with 15 or more employees, their human resource staffs and employee assistance professionals, and legal counsel.

Traditional approaches to vocational rehabilitation, such as skills training classes, job clubs, and sheltered employment, have not been successful in helping people with severe mental illness gain competitive employment. Supported employment, in which clients are placed in jobs and then trained by on-site coaches, is a radically new conceptual approach to vocational rehabilitation designed for people with developmental disabilities. The Individual Placement and Support (IPS) method utilizes the supported employment concept, but modifies it for use with the severely mentally ill. It is the only approach that has a strong empirical research base: rates of competitive employment are 40% or more in IPS programs, compared to 15% in traditional mental health programs. The third volume in the Innovations in Practice and Service Delivery with Vulnerable Populations series, this will be extremely useful to students in psychiatric rehabilitation programs and social work classes dealing with the severely mentally ill, as well as to practitioners in the field.

Brantlinger discusses the current medical and legal trends in sterilization with special emphasis on people with disabilities. She explores the issues surrounding sterilization decisions from the perspectives of judges, lawyers, social workers, doctors, family planners, as well as the families and individuals themselves. Woven throughout the book are case studies of individuals ranging from mild to severe retardation.

Brantlinger discusses the current medical and legal trends in sterilization with special emphasis on people with disabilities. She explores the issues surrounding sterilization decisions from the perspectives of judges, lawyers, social workers, doctors, family planners, as well as the families and individuals themselves.

Woven throughout the book are case studies of individuals ranging from mild to severe retardation. She illustrates how ethical issues related to sterilization are framed and which moral values are called upon during decision-making. She ends with guidelines for decision-making. As the most comprehensive and up-to-date work on the subject, this book will be invaluable to professionals in the social services and mental health fields as well as researchers in law, special education, social work, and public health. Individuals confronting these concerns will find the volume instructive as well.

Contributions by Cynthia Neese Bailes, Nina Batt, Lijun Bi, Helene Charderon, Stuart Ching, Helene Ehriander, Xiangshu Fang, Sara Kersten-Parish, Helen Kilpatrick, Jessica Kirkness, Sung-Ae Lee, Jann Pataray-Ching, Angela Schill, Josh Simpson, John Stephens, Corinne Walsh, Nerida Wayland, and Vivian Yenika-Agbaw Children, Deafness, and Deaf Cultures in Popular Media examines how creative works have depicted what it means to be a deaf or hard of hearing child in the modern world. In this collection of critical essays, scholars discuss works that cover wide-ranging subjects and themes: growing up deaf in a hearing world, stigmas associated with deafness, rival modes of communication, friendship and discrimination, intergenerational tensions between hearing and nonhearing family members, and the complications of establishing self-identity in increasingly complex societies. Contributors explore most of the major genres of children's literature and film, including realistic fiction, particularly young adult novels, as well as works that make deft use of humor and parody. Further, scholars consider the expressive power of multimodal forms such as graphic novel and film to depict experience from the perspective of children. Representation of the point of view of child characters is central to this body of work and to the intersections of deafness with discourses of diversity and social justice. The child point of view supports a subtle advocacy of a wider understanding of the multiple ways of being D/deaf and the capacity of D/deaf children to give meaning to their unique experiences, especially as they find themselves moving between hearing and Deaf communities. These essays will alert scholars of children's literature, as well as the reading public, to the many representations of deafness that, like deafness itself, pervade all cultures and are not limited to specific racial or sociocultural groups.

This fully revised and expanded second edition of the Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and arranged thematically, it surveys the state of the discipline, examining emerging and cutting-edge areas as well as core areas of contention. Divided in five parts, this comprehensive handbook covers: Different models and approaches to disability. How key impairment groups have engaged with disability studies and the writings within the discipline. Policy and legislation responses to disability studies and to disability activism. Disability studies and its interaction with other disciplines, such as history, philosophy, sport, and science and technology studies. Disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing 15 revised chapters and 12 new chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers, and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work. Chapter 6 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license at https://tandfbis.s3-us-west-2.amazonaws.com/rt-files/docs/Open+Access+Chapters/9781138365308_oachapter6.pdf.

A unique manual for managers in health care facilities, this volume contains model policies and procedures found through experience to be useful in helping managers manage their work force while at the same time enhancing the employee relations atmosphere. The policies and procedures are designed so that they can be incorporated into company personnel policy manuals as is or modified and adapted to meet the needs of individual organizations. Included are guidelines for promoting fairness and consistency, as well as those aimed at enhancing employee morale and effectiveness. Throughout, the authors have written the manual with a view toward preventing potential legal problems before they begin.

The volume begins with a section explaining how to use the various sections of the manual, how to customize where necessary to reflect organizational goals, how to develop an employee handbook, and how to add additional information such as organization history and structure. There follow comprehensive sections that deal with virtually every aspect of employment policies, wages and overtime, benefits policies, the employee and his or her job, employee conduct, and safety and security. Included are policies to deal with such increasingly difficult problems as drugs and alcohol abuse, sexual harassment and discrimination, terminations and layoffs, insurance, and employment of minors as well as basic employment policies ranging from recruitment and hiring to vacations and sick leaves.

At least one in seven people are thought to be neurodivergent. So what exactly is neurodiversity? What does 'executive functioning' mean? What are 'spiky profiles'? In this simple guide, expert speaker and trainer Daniel Aherne provides a clear introduction to neurodiversity and the four most common neurodivergent identities of autism, ADHD, dyslexia and dyspraxia. Using an analogy of a cactus needing a desert to grow in, he emphasises the importance of getting the environment right for neurodivergent people, rather than expecting them to adapt to the neurotypical world. Daniel, who himself has ADHD, also explains how neurodivergent people often have great strengths alongside areas of difficulty, and writes about the interplay between diagnoses, as well as unpacking tricky concepts such as working memory, sensory processing, communication differences and more. Busting common misconceptions and setting out simple tips and guidance for supporting the neurodivergent people around you, whether among your family, friends or at your school, college or workplace - or if you yourself are ND and want to improve the understanding of others - this essential guide will help us all celebrate neurodiversity and foster more inclusive communities.