Performances in hospices and on beaches; cross-cultural myth making in Wales, New Zealand and the US; communal poetry among mental health system survivors: this book, now in paperback, presents a senior practitioner/critic's exploration of arts-based research processes sustained over more than a decade - a subtle engagement with disability culture.

This comprehensive, interdisciplinary collection, examines disability from a theoretical perspective, challenging views of disability that dominate mainstream thinking. Throughout, social theories of disability intersect with ideas associated with sex/gender, race/ethnicity, class and nation.

In a readable and highly accessible ethnographic account that is shaped by the stories of families and the voices of parents, De Wolfe examines how parents of children with autism navigate the educational and medical systems, understand their own and their children's bodies, and support and educate one another.

Leutz and his colleagues offer the most practice-oriented and realistic assessment of how chronically ill elders are being served at the community level. They analyze options and opportunities open to policy makers and practitioners relative to long-term care in the community environment where so many elders want to be. In the process, the authors evaluate the range of needs, the importance of gender and cultural differences, and the effectiveness of Medicare and Medicaid as entitlement strategies.

Community care constitutes a major gap in the nation's health-care system. The authors show that there are many persuasive reasons to build, staff, manage, and pay for high quality community-care systems. Such programs are demonstrated to be affordable and to meet better the needs of a large percentage of elders who require long-term care. The authors set forth goals for community-care systems and criteria for assessment. This timely analysis, coupled with practical, socially compelling recommendations, responds effectively to the realities of an aging population and the great public policy and related fiscal concerns.

This volume addresses a range of philosophical and ethical issues in adapted physical activity and disability sports participation more broadly. It is comprised of a range of essays by international scholars whose backgrounds embrace different traditions of philosophy, pedagogy and adapted physical activity.

The principal aim of the symposium was to open up and critically explore a range of conceptual and ethical issues and perspectives that have arisen with respect to the engagement of persons with dis/abilities in a range of physical activity contexts including, but not exclusively located in, mainstream sporting activities.

This book was published as a special issue in Sport, Ethics and Philosophy.

This volume offers a comprehensive examination of current theory, research, and practice concerning people with serious mental illness and their families. There are presently many exciting developments under way, as professional practice is reformulated to emphasize the contributions of psychologists to the treatment of mental illness and the satisfactions that can accompany clinical work with the population. The current era is a transitional one in many respects, with significant changes in mental health policies and priorities, and in clinical training and practice. This work charts these new developments and explores their implications for mental health professionals.

"Presenting a cartographic journey into the world of the production(s) of disability, this book examines embodiment, transhumanism, subjectivity, technology and jurisprudence. It concerns matters of order/disorder and the normal and pathological, and explores the way stories about wholeness, health, enhancement and perfection are told"--Provided by publisher.

Hoop Dreams on Wheels is a life-history study of wheelchair athletes associated with a premier collegiate wheelchair basketball program. The book, which grapples with the intersection of biography and history in society, situates the study in broader context with background on the history and sociology of disability and disability sports. It documents the development and evolution of the basketball program and tells the individual life stories of the athletes, highlighting the formative interpersonal and institutional experiences that influenced their agentive actions and that helped them achieve success in wheelchair sports. It also examines divisions within the disability community that reveal both empowering and disempowering aspects of competitive wheelchair athletics, and it explores some of the complexities and dilemmas of disability identity in contemporary society. The book is intended to be read by a general audience as well as by students in college courses on disability, sports, social problems, deviance, medical sociology and anthropology, and introductory sociology. It also will be of interest to scholars in the sociology of disability, sociology of sports, and medical humanities, as well as life-history researchers and professionals in the fields of physical education, therapeutic recreation, and rehabilitative counseling.

This collection explores the historical origins of our modern concepts of intellectual or learning disability. The essays, from some of the leading historians of ideas of intellectual disability, focus on British and European material from the Middle Ages to the late-nineteenth century and extend across legal, educational, literary, religious, philosophical and psychiatric histories. They investigate how precursor concepts and discourses were shaped by and interacted with their particular social, cultural and intellectual environments, eventually giving rise to contemporary ideas. Intellectual disability is essential reading for scholars interested in the history of intelligence, intellectual disability and related concepts, as well as in disability history generally. -- .

This book provides insight into the globally interlinked disability rights community and its political efforts today. By analysing what disability rights activism contributes to a global power apparatus of disability-related knowledge, it demonstrates how disability advocacy influences the way we categorise, classify, distribute, manipulate, and therefore transform knowledge. By unpacking the mutually constitutive relations between (practical) moral knowledge of international disability advocates and (formal) disability rights norms that are codified in international treaties such as the UN Convention on the Rights of Persons with Disabilities (CRPD), the author shows that the disability rights movement is largely critical of statements that attempt to streamline it. At the same time, cross-cultural disability rights advocacy requires images of uniformity to stabilise its global legitimacy among international stakeholders and retain a common meta-code that visibly identifies its means and aims. As an epistemic community, disability rights advocates simultaneously rely on and contest the authority of international human rights infrastructure and its language. Proving that disability rights advocates contribute immensely to a global culture that standardises what is considered morally and legally 'right' and 'wrong', thereby shaping the human body and the body politic, this book will be of interest to all scholars and students of critical disability studies, sociology of knowledge, legal and linguistic anthropology, social inequality, and social movements.

This fully revised and expanded second edition of the Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and arranged thematically, it surveys the state of the discipline, examining emerging and cutting-edge areas as well as core areas of contention. Divided in five parts, this comprehensive handbook covers: Different models and approaches to disability. How key impairment groups have engaged with disability studies and the writings within the discipline. Policy and legislation responses to disability studies and to disability activism. Disability studies and its interaction with other disciplines, such as history, philosophy, sport, and science and technology studies. Disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing 15 revised chapters and 12 new chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers, and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work. Chapter 6 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license at https://tandfbis.s3-us-west-2.amazonaws.com/rt-files/docs/Open+Access+Chapters/9781138365308_oachapter6.pdf.

This collection centres on the experiences of disabled children and young people and aims to develop theories about their childhoods. The powerful first-hand accounts by disabled children, family members and reflections by disabled adults are aimed to inspire the reader to think and, perhaps, act in positive and productive ways about all children's lives. The authors oppose the historical global imposition of problematic views of disability and childhood and offer open discussion of responsive and ethical research approaches. New ways of thinking about disabled children's childhoods in a global context demand poverty reduction and approaches that support families and communities to recognise the contributions disabled children make.

Families of children with special health needs frequently cite difficulties in their communications with physicians and other medical professionals. Indeed, parents of high-risk, chronically ill, and disabled infants often regard interactions with health care providers as one of the most stressful parts of their early experiences with their children.

This volume was designed to present a variety of medical education approaches used to overcome this problem. After providing an overview of some of the difficulties faced by physicians and families of children with special health needs in their interactions with one another, the volume examines a number of useful medical education models. The models and viewpoints presented include those of physicians, early intervention professionals, professionals with backgrounds in education, psychology, and sociology, and parents. This volume is invaluable to those involved in designing and evaluating medical education approaches, and those developing public policy for children and the family.

The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies-scholarship that spans the social sciences and humanities-and gives serious consideration to the history of disability activism.

Under the Americans with Disabilities Act, organizations that fail to provide reasonable accommodations to employees with mental disabilities may be subject to penalties and punitive damages. The Act does not, however, provide useful guidelines to help organizations comply--a gap that Dr. Fielder's book now fills. This manual shows that compliance is not difficult or expensive. In clear, concise language, it acquaints management with mental diagnoses, impairments, disabilities, the myths of mental illness and its affect on job performance, and provides samples of workplace accommodations and compliance plans. Practical and readable, the book is intended for management of organizations with 15 or more employees, their human resource staffs and employee assistance professionals, and legal counsel.

"A patient is standing in the middle of the river. He gazes across the water to the city and the mountain above where the sun is setting. His back is turned to the hospital. The nurses are waiting for him patiently on the river bank. He seems uncertain whether to cross the river or to return. There is no danger. He is on the edge, in an in-between space, as is the hospital where I have worked as a specialist psychiatrist for over twenty-five years."

For many of us, what lies beyond conventional portrayals of mental illness is often shrouded in mystery, misconception and fear. Dr Sean Baumann spent decades as a psychiatrist at Valkenberg Hospital and, through his personal engagement with patients’ various forms of psychosis, he describes the lived experiences of those who suffer from schizophrenia, depression, bipolar and other disorders.

The stories told are authentic, mysterious and compelling, representing both vivid expressions of minds in turmoil and the struggle to give form and meaning to distress. The author seeks to describe these encounters in a respectful way, believing that careless portrayals of madness cause further suffering and perpetuate the burden of stigma.

Baumann argues cogently for a more inclusive way of making sense of mental health. With sensitivity and empathy, his enquiries into the territories of art, psychology, consciousness, otherness, free will and theories of the self reveal how mental illness raises questions that affect us all.

Madness is illustrated by award-winning artist Fiona Moodie.

Brantlinger discusses the current medical and legal trends in sterilization with special emphasis on people with disabilities. She explores the issues surrounding sterilization decisions from the perspectives of judges, lawyers, social workers, doctors, family planners, as well as the families and individuals themselves. Woven throughout the book are case studies of individuals ranging from mild to severe retardation.

Brantlinger discusses the current medical and legal trends in sterilization with special emphasis on people with disabilities. She explores the issues surrounding sterilization decisions from the perspectives of judges, lawyers, social workers, doctors, family planners, as well as the families and individuals themselves.

Woven throughout the book are case studies of individuals ranging from mild to severe retardation. She illustrates how ethical issues related to sterilization are framed and which moral values are called upon during decision-making. She ends with guidelines for decision-making. As the most comprehensive and up-to-date work on the subject, this book will be invaluable to professionals in the social services and mental health fields as well as researchers in law, special education, social work, and public health. Individuals confronting these concerns will find the volume instructive as well.

This edited volume foregrounds Disability Critical Race Theory (DisCrit) as an intersectional framework that has informed scholarly analyses of racism and ableism from the personal to the global-offering important interventions into theory, practice, policy, and research. The authors offer deep personal explorations, innovative interventions aimed at transforming schools, communities, and research practices, and expansive engagements and global conversations around what it means for theory to travel beyond its original borders or concerns. The chapters in this book use DisCrit as a springboard for further thinking, illustrating its role in fostering transgressive, equity-based, and action-oriented scholarship. This book was originally published as a special issue of the journal, Race Ethnicity and Education.

Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and 'others', including dyslexics, autistics and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field - neurodiversity studies - will be of interest to people working in all these areas.

A unique manual for managers in health care facilities, this volume contains model policies and procedures found through experience to be useful in helping managers manage their work force while at the same time enhancing the employee relations atmosphere. The policies and procedures are designed so that they can be incorporated into company personnel policy manuals as is or modified and adapted to meet the needs of individual organizations. Included are guidelines for promoting fairness and consistency, as well as those aimed at enhancing employee morale and effectiveness. Throughout, the authors have written the manual with a view toward preventing potential legal problems before they begin.

The volume begins with a section explaining how to use the various sections of the manual, how to customize where necessary to reflect organizational goals, how to develop an employee handbook, and how to add additional information such as organization history and structure. There follow comprehensive sections that deal with virtually every aspect of employment policies, wages and overtime, benefits policies, the employee and his or her job, employee conduct, and safety and security. Included are policies to deal with such increasingly difficult problems as drugs and alcohol abuse, sexual harassment and discrimination, terminations and layoffs, insurance, and employment of minors as well as basic employment policies ranging from recruitment and hiring to vacations and sick leaves.

Increase your awareness of the concerns facing the black disabled community! Disability and the Black Community addresses physical, mental, and learning disabilities experienced across age, gender, and ethics groups by the black race in the United States. This unique book works to increase understanding and awareness of those working with the disabled by mobilizing advocates, providing alternatives for successful intervention and planning, and encouraging research in disability and rehabilitation. A distinguished panel of researchers and practitioners provide commentary on topics that include selected physical disabilities, disabled children learning and program concerns, welfare reform, public housing issues, domestic violence, and disability curriculum contentall in accordance with the broadening of the definition of disability as supported by the American Disabilities Act. Disability and the Black Community raises the level of understanding and awareness of the complex and diverse concerns facing the disabled and their families in the community and the workplace. The book is at once motivational, influential, and empowering, examining social and political issues that compound the ordeals confronting the black disabled. Topics addressed include: learning disabilities, academic achievements, and mental health issues of children health disparities and access to care welfare reform, disability, and race practice, program, and curriculum models and much more! Disability and the Black Community is an essential resource for health professionals and advocates who work with the black disabled. The book keeps practitioners up to date on what is needed in terms of funding, facilities, and resources in order to keep the larger society and significant resource systems appraised of the needs of the disabled.

This is a comparative analysis of the micro and macro characteristics of self-help organizations of people with disabilities (SHOPs) in seven selected countries and territories in Asia, namely China Mainland, Hong Kong, Japan, the Philippines, Taiwan, Thailand, and Vietnam. Since the 1980s, SHOPs have prospered in this region and were given a major role in the United Nations' forum and the International Year of Disabled Persons in 1981. The analysis shows the differences among the SHOPs in terms of the complexity of their structure, government's affirmative policy, legislation, and leadership qualities. These differences are due to the complex interplay among factors at local, national, and international levels.

SHOPs in this region present a rather homogenous perception in their organization, leadership, social inclusion, and globalization, despite the marked differences in their societies. SHOPs tends to be domocratic and consensual in nature, and led by elected members with assistance from paid professional and clerical support. The self-help organizations are positively regarded in these countries.

This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people's quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. 'Quality of life' is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery - for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good 'quality of life' and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.

Long Lives Are for the Rich is the title of a silent ominous program that affects the lives of millions of people. In all developed countries disadvantaged and, especially, poor people die much earlier than the most advantaged. During these shorter lives they suffer ten to twenty years longer from disabilities or chronic disease. This does not happen accidentally: health inequalities – including those between healthy and unhealthy life styles – are mainly caused by social inequalities that are reproduced over the life course. This crucial function of the life course has become painfully visible during its neoliberal reorganization since the early 1980s. Studies about aging over the life course, from birth to death, show the inhumane consequences as people get older. In spite of the enormous wealth that has been piled up in the US for a dwindling percentage of the population, there has been growing public indifference about the needs of those in jobs with low pay and high stress, but also about citizens from a broad middle class who can hardly afford high quality education or healthcare. However, this ominous program affects all: recent mortality rates show that all Americans, including the rich, are unhealthier and dying earlier than citizens of other developed countries. Moreover, the underlying social inequalities are tearing the population apart with nasty consequences for all citizens, including the rich. Although the public awareness of the consequences has been growing, neoliberal policies remain tempting for the economic and political elites of the developed world because of the enormous wealth that is flowing to the top. All this poses urgent questions of social justice. Unfortunately, the predominant studies of social justice along the life course help to reproduce these inequalities by neglecting them. This book analyzes the main dynamics of social inequality over the life course and proposes a theory of social justice that sketches a way forward for a country that is willing to invest in its greatest resource: the creative potential of its population.