This book is a sequel to The Color Red, a mother's account of her head-long plunge into the world of autism. Believing strongly in the need for research, funding, and--most of all--connecting with others who are traveling this bewildering path or, as she describes a certain milestone, figuratively scaling Mt. Everest, Julie Jurgens-Shimek speaks to the hearts of all who live with autism. Autism Is a Four Letter Word - Love reflects not only Michael's growth but also the myriad adjustments--well made--by his immediate and extended family, how all have moved from chaos to order. Writing her account of this journey is Julie's way of reaching beyond her world into the worlds of parents, teachers, politicians, counselors, and more to plead her case, Michael's case, all autistics' cases for proper care and compassion. Julie doesn't just talk the talk-- she walks the walk--and invites you to join her as she introduces "Mike Shimek," regales you with a heart-warming account of where an autistic would wash custard cups, admonishes you to keep close tabs on presumably trustworthy professionals, testifies compassionately for safety devices, answers FAQs, counsels the bewildered, describes her personal transformation, and honors her mother--her "rock"--with space for a grandmother's chapter. In The Color Red, we saw fear and bewilderment but through the chaos, unconditional love. In this book, we see that same unconditional love, embellished with courage, faith, determination, stubbornness, stamina, and trust. This is a must read if you or a loved one is dealing with autism. The message is strong and will help carry you the distance.

Now students, general readers, advocates, rehabilitation professionals, and others seeking to learn more about the history and progress of the disability rights movement can turn to a valuable new reference book, The ABC-CLIO Companion to the Disability Rights Movement. The book is designed as a general introduction to the many varied influences on the growth of this movement, including notable individuals, some of whom will be familiar to general readers, while others remain virtually unknown outside of the communities they have affected. Here, through fascinating biographical narratives, their contributions are highlighted. Nearly 500 alphabetically arranged entries explore landmark laws and court cases, prominent figures, historic events, issues, notable programs, key concepts, and centers of disability culture and education. With a detailed chronology, extensive cross-referencing, illustrations, and a subject index, this volume is an exceptionally useful reference for anyone seeking to better understand the people and events shaping the American disability rights movement.

This is a provocative look at writing by and about people with illness or disability--in particular HIV/AIDS, breast cancer, deafness, and paralysis--who challenge the stigmas attached to their conditions by telling their lives in their own ways and on their own terms. Discussing memoirs, diaries, collaborative narratives, photo documentaries, essays, and other forms of life writing, G. Thomas Couser shows that these books are not primarily records of medical conditions; they are a means for individuals to recover their bodies (or those of loved ones) from marginalization and impersonal medical discourse.
Responding to the recent growth of illness and disability narratives in the United States--such works as Juliet Wittman's "Breast Cancer Journal," John Hockenberry's "Moving Violations," Paul Monette's "Borrowed Time: An AIDS Memoir," and Lou Ann Walker's "A Loss for Words: The Story of Deafness in a Family"--Couser addresses questions of both poetics and politics. He examines why and under what circumstances individuals choose to write about illness or disability; what role plot plays in such narratives; how and whether closure is achieved; who assumes the prerogative of narration; which conditions are most often represented; and which literary conventions lend themselves to representing particular conditions. By tracing the development of new subgenres of personal narrative in our time, this book explores how explicit consideration of illness and disability has enriched the repertoire of life writing. In addition, Couser's discussion of medical discourse joins the current debate about whether the biomedical model is entirely conducive to humane care for ill and disabledpeople.
With its sympathetic critique of the testimony of those most affected by these conditions, "Recovering Bodies" contributes to an understanding of the relations among bodily dysfunction, cultural conventions, and identity in contemporary America.

This project draws together the diverse strands of the debate regarding disability in a way never before combined in a single volume. After providing a representative sampling of competing philosophical approaches to the conceptualization of disability as such, the volume goes on to address such themes as the complex interplay between disability and quality of life, questions of social justice as it relates to disability, and the personal dimensions of the disability experience.

By explicitly locating the discussion of various applied ethical questions within the broader theoretical context of how disability is best conceptualized, the volume seeks to bridge the gap between abstract philosophical musings about the nature of disease, illness and disability found in much of the philosophy of medicine literature, on the one hand, and the comparatively concrete but less philosophical discourse frequently encountered in much of the disability studies literature. It also critically examines various claims advanced by disability advocates, as well as those of their critics.

In bringing together leading scholars in the fields of moral theory, bioethics, and disability studies, this volume makes a unique contribution to the scholarly literature, while also offering a valuable resource to instructors and students interested in a text that critically examines and assesses various approaches to some of the most vexing problems in contemporary social and political philosophy.

This book explores the intersection between motherhood and physical disability. It is based on a study that focused on the lived experiences of women with physical disabilities, mothers and non-mothers. What meaning does motherhood have for these women? What is it like for them? What messages do they receive about themselves as women, with or without children? What barriers do they foresee and/or come across? These issues are explored from the vantage point of disabled women with and without children.

Information Communication Technologies (ICT) have become an increasingly prevalent part of everyday life. Today, there are many cases in which ICT assist the elderly and people with disabilities to complete tasks once thought impossible. Enhancing the Human Experience through Assistive Technologies and E-Accessibility discusses trends in ICT in relation to assistive technologies and their impact on everyday tasks for those with disabilities. This reference work provides different perspectives on upcoming technologies and their impact on e-accessibility and e-inclusion, essential topics for researchers, businesses, and ICT product developers in the field of assistive technologies.

This book takes as its starting point the concept of 'the good life' and the challenge of ensuring people with intellectual disabilities are included in 'the good life.' The book explores the values underpinning current discourses of disability, analyzes their strengths and limitations, and proposes some alternative approaches to theory and practice. It deconstructs key concepts, theories, and practices within the learning disability field in the post institution era, and it identifies the values, strengths, and limits of these approaches. The book explores the boundaries around those included in the category 'disabled,' those on its margins, and those who move in and out of this category. It also proposes some alternative formulations to existing theories and practices, and explores their practical implications for the lives of people with intellectual disabilities. Using evidence from the UK, Australia, Bangladesh, and the Republic of Ireland, People with Intellectual Disabilities bu

Why do able-bodied characters fake disability in 40 early modern English plays? This book uncovers a previously unexamined theatrical tradition and explores the way counterfeit disability captivated the Renaissance stage. Through detailed case studies of both lesser-known and canonical plays (by Shakespeare, Jonson, Marston, and others), Lindsey Row-Heyveld demonstrates why counterfeit disability proved so useful to early modern playwrights. Changing approaches to almsgiving in the English Reformation led to increasing concerns about feigned disability. The theater capitalized on those concerns, using the counterfeit-disability tradition to explore issues of charity, epistemology, and spectatorship. By illuminating this neglected tradition, this book fills an important gap in both disability history and literary studies, and explores how fears of counterfeit disability created a feedback loop of performance and suspicion. The result is the still-pervasive insistence that even genuinely disabled people must perform in order to, paradoxically, prove the authenticity of their impairments.

Bringing together disability theorists and medical sociologists for the first time in this cutting-edge collection, contributors examine chronic illness and disability, disability theory, doctor-patient encounters, lifeworld issues and the new genetics.

Improving human characteristics goes beyond compensating for an impairment. This book explores the rich and complex relationship between enhancement and impairment, showing that the study of disability offers new ways of thinking about the social and ethical implications of improving the human condition.

Disability policy has become an increasingly important issue in countries around the world. More and more, as populations are exposed to war and civil conflicts, natural disasters, environmental poisons along with the effects of normal aging, accidents and poverty, disability has become a growing public health and civil rights problem. In order to develop reasonable policy solutions, countries need accurate, reliable estimates of the size and make up of their disabled population. Comparisons of policy solutions cross-nationally require that the data that is used as the basis for the policy decisions is comparable. At the same time that the world has determined an important need for data on populations with disability, the data that is available is still haphazard and not comparable.
The UN has begun to address this need with a publication, the "Guidelines and Principles for the Development of Disability Statistics in 2001," and through the authorization of the formation of the Washington Group, an informal, temporary organization in the mode of a City Group. As a voluntary organization of National Statistical Office representatives, the purpose of the Washington Group is to address selected problems in statistical methods associated with the measurement of disability internationally. The papers in this volume reflect a sampling of the work done to this point by the Washington Group to address this important public health problem. The collection describes the background of disability measurement as the work of the group started from an international perspective and identifies other work being done in this area. It also provides snapshots of the data that is currently available and inuse along with how the data is used in a variety of countries. Finally, a section on methodological issues identifies some insight as well as suggested solutions to key problems that will need to be addressed if the Group is to accomplish its task.
*Volume includes papers that examine the statistical problems associated with the measurement of disability internationally
*Looks at country specific issues as well as overarching methodologies
*An important contribution to disability and public policy

This open access book introduces the human development model to define disability and map its links with health and wellbeing, based on Sen's capability approach. The author uses panel survey data with internationally comparable questions on disability for Ethiopia, Malawi, Tanzania and Uganda. It presents evidence on the prevalence of disability and its strong and consistent association with multidimensional poverty, mortality, economic insecurity and deprivations in education, morbidity and employment. It shows that disability needs to be considered from multiple angles including aging, gender, health and poverty. Ultimately, this study makes a call for inclusion and prevention interventions as solutions to the deprivations associated with impairments and health conditions.

Founded in 1893, the National League of the Blind was the first nationwide self-represented group of visually impaired people in Britain. This book explores its campaign to make the state solely responsible for providing training, employment and assistance for the visually impaired as a right, and its fight to abolish all charitable aid for them.

Since the defeat of the Nazi Third Reich and the end of its horrific eugenics policies, battles over the politics of life, sex, and death have continued and evolved. Dagmar Herzog documents how reproductive rights and disability rights, both latecomers to the postwar human rights canon, came to be seen as competing-with unexpected consequences. Bringing together the latest findings in Holocaust studies, the history of religion, and the history of sexuality in postwar-and now also postcommunist-Europe, Unlearning Eugenics shows how central the controversies over sexuality, reproduction, and disability have been to broader processes of secularization and religious renewal. Herzog also restores to the historical record a revelatory array of activists: from Catholic and Protestant theologians who defended abortion rights in the 1960s-70s to historians in the 1980s-90s who uncovered the long-suppressed connections between the mass murder of the disabled and the Holocaust of European Jewry; from feminists involved in the militant ""cripple movement"" of the 1980s to lawyers working for right-wing NGOs in the 2000s; and from a handful of pioneers in the 1940s-60s committed to living in intentional community with individuals with cognitive disability to present-day disability self-advocates.

Foundations of Disability Studies is a collection of eight essays by scholars who have published extensively within the disability studies literature, including Robert Bogdan and Doug Biklen, Tobin Siebers, David Connor and Beth Ferri, Brendan Gleeson, Licia Carlson, Susan Schweik, Ralph Savarese, and Nirmala Erevelles. This volume honors the scholars who have helped build the field, and represents their latest work and most current thinking.

This book brings together formally disparate literatures and debates on disability and technology in a way that captures the complex interplay between the two. Drawing on disability studies, technology studies and clinical studies, the book argues that interdisciplinary insights together provide a more nuanced and less stylized picture of the benefits and barriers in disability and technology. Drawing on a breadth of empirical studies from across the globe, a picture emerges of the complex and multi-directional interplay of technology and disability. Technology is neither inherently enabling or disabling but fundamentally shaped by the social dynamics that shape their design, use and impact.

In today's rapidly changing technological world, it is increasingly important that web and desktop applications be accessible to everyone, including those of us with special needs. However, the legal requirements for accessibility are often convoluted and diffucult to understand, making it impossible for most developers to comply with the laws. In the first book on the market to address the topic, Author John Paul Mueller leads you through the maze of Section 508the congressional law ensuring that all Americans have access to information technologyand offers comprehensive guidance on how to quickly and easily update your applications to conform to Section 508 requirements.

To begin, Mueller outlines the Section 508 requirements that are relevant to web and desktop application developers, and explains the laws in language you can understand. Using extensive and varied program examples, Mueller continues on to teach you to write web and desktop applications that not only conform to Section 508 standards, but look forward to ensure long-term universal accessibility for all types of computer users. Specific topics include writing accessible web applications and desktop applications using Visual Basic .NET and Visual C# .NET, developing special application capabilities, using Microsoft and other third-party tools to develop accessible features, developing accessible scripting solutions, and more. The book even includes a directory of helpful organizations, agencies, and resources to help you with any further accessibility concerns you may have.

Covering a diverse range of figures and issues from Jonathan Swifts pornographic poetry to Oscar Wildes famous cello-shaped coat this book collapses Irish studies into the critical perspective of disability studies: linking 'Irishness' and 'disability' together allows the emergence of a new critical perspective, an Irish disability studies.

The remarkable and inspirational story of Oksana Masters, who was born with radiation-induced birth defects and suffered appalling abuse as an orphan, before being adopted and moving to the US, where she went on to triumph over her challenges to win seventeen Paralympic medals in four different sports. Oksana Masters was born in the shadow of Chernobyl, with one kidney, a partial stomach, six toes on each foot, webbed fingers, no right bicep and no thumbs. Her left leg was six inches shorter than her right, and she was missing both tibias. Relinquished to the orphanage system by birth parents daunted by the staggering cost of their child's medical care, Oksana encountered numerous abuses, some horrifying. Salvation came at the age of seven when Gay Masters, an unmarried American professor who saw a photo of the little girl and became haunted by her eyes, waged a two-year war against stubborn adoption authorities to rescue Oksana from her circumstances. In America, Oksana endured years of operations that included a double leg amputation. Still, how could she hope to fit in when there were so many things making her different? As it turned out, she would do much more than fit in. Determined to prove herself and fuelled by a drive to succeed that still smouldered from childhood, Oksana triumphed in not just one sport but four - winning against the world's best in rowing, biathlon, cross-country skiing and road cycling competitions. This is Oksana's astonishing story of journeying through a series of dark tunnels - and how, with her mother's love, she finally found her way into the light. Her message to anyone who doesn't fit in: you can find a place where you excel and where you have worth.

This book provides insight into the globally interlinked disability rights community and its political efforts today. By analysing what disability rights activism contributes to a global power apparatus of disability-related knowledge, it demonstrates how disability advocacy influences the way we categorise, classify, distribute, manipulate, and therefore transform knowledge. By unpacking the mutually constitutive relations between (practical) moral knowledge of international disability advocates and (formal) disability rights norms that are codified in international treaties such as the UN Convention on the Rights of Persons with Disabilities (CRPD), the author shows that the disability rights movement is largely critical of statements that attempt to streamline it. At the same time, cross-cultural disability rights advocacy requires images of uniformity to stabilise its global legitimacy among international stakeholders and retain a common meta-code that visibly identifies its means and aims. As an epistemic community, disability rights advocates simultaneously rely on and contest the authority of international human rights infrastructure and its language. Proving that disability rights advocates contribute immensely to a global culture that standardises what is considered morally and legally 'right' and 'wrong', thereby shaping the human body and the body politic, this book will be of interest to all scholars and students of critical disability studies, sociology of knowledge, legal and linguistic anthropology, social inequality, and social movements.

Many people find themselves without the experience or skills to deal with individuals with behaviour they do not like or find threatening. This much- needed new text provides insights and access to a range of therapeutic interventions. The book is divided into three sections. The first provides theoretical background, addresses legal and ethical issues, and raises questions about the language we use to describe behaviour we find difficult to understand. This is followed by the main part of the book and descriptions of seven different approaches and interventions. The third section of the book discusses the problematic nature of evidence for choosing particular interventions and therapies. Attractively presented, the book includes: case studies reader activities lists of resources, such as annotated bibliographies, addresses of organisations and website addresses This text will be of benefit to anyone working in health and social services, educational, and independent settings, as well as students, parents and carers. Written and edited by an interdisciplinary group of expert contributors, this book provides a unique resource that details a wide range of therapeutic interventions in one text.Accessible exploration of what constitutes behavioural distress Range of therapies covered includes arts therapies, gentle teaching, and behavioural interventionsUnique chapter on examining the evidence based for these therapies Colour plate sectionCase studies, reader activities and resource lists including web sites

This book addresses the development of our understanding of the abuse and neglect in the lives of children with disabilities. Disabilities in childhood uniquely dispose children for their abuse and neglect. Additionally, abuse and neglect dispose children for disabilities. The care and education of children with disabilities requires unique knowledge and skills and so does the consideration of their abuse and neglect. This book is based on data generated from an analysis of cases involving the abuse and neglect of children with disabilities as well as on an analysis of the data based literature in this area. Readers are provided with analysis and reflection exercises throughout the text so that they may analyze and reflect on their own awareness of the abuse and neglect of children with disabilities. Each chapter also contains a set of implications for research and practice. The final chapter focuses directly on prevention. Caregivers and professionals across disciplines will develop a new understanding of their roles in universal, secondary, and tertiary level prevention that is targeted, focused, data-based, and designed to prevent the abuse and neglect of children with disabilities in the first place.