This edited collection of contributions from media scholars, film practitioners and film historians connects the vibrant fields of documentary and disability studies. Documentary film has not only played an historical role in the social construction of disability but continues to be a strong force for expression, inclusion and activism. Offering essays on the interpretation and conception of a wide variety of documentary formats, Documentary and Disability reveals a rich set of resources on subjects as diverse as Thomas Quasthoff's opera performances, Tourette syndrome in the developing world, queer approaches to sexual functionality, Channel 4 disability sports broadcasting, the political meaning of cochlear implant activation, and Christoph's Schlingensief's celebrated Freakstars 3000.

Disability and Academic Exclusion interrogates obstacles the disabled have encountered in education, from a historical perspective that begins with the denial of literacy to minorities in the colonial era to the later centuries' subsequent intolerance of writing, orality, and literacy mastered by former slaves, women, and the disabled. The text then questions where we stand today in regards to the university-wide rhetoric on promoting diversity and accomodating disability in the classroom. Brief studies on the devaluation of authenticity and literacy in the works of Sojourner Truth, Phillis Wheatley, and Helen Keller serve to demonstrate how earlier cultural viewpoints undermined the teachability of women, the disabled, and people of color, and to question if these viewpoints have been redressed or whether they are maintained in the academy's discursive relationship to educating the disabled. The guiding questions ask if colleges today recognize the exclusionary practices inherent in the category of disability, whether the delineation of disability in the classroom parallels earlier isolating minority categories across intersectional subjectivities and, accepting disability as a category that is necessary in order to protect civil rights, whether disability can be incorporated more inclusively in what I have termed a constellation of student learners. The text concludes that the academy must confront the persistent historical situating of disability as one of deficiency in order to bring disability into the classroom, and at the same time it must engage with a humanistic and humanizing vocabulary, allowing for more voices to be heard from the embodied, subjective experiences of the disabled student body.

Naming Adult Autism is one of the first critiques of cultural and medical narratives of Autism to be authored by an adult diagnosed with this condition. Autism is a 'social disorder', defined by interactions and lifestyle. Yet, the expectations of normalcy against which Autism is defined have too rarely been questioned. This book demonstrates the value of the Humanities towards developing fuller understandings of Autistic adulthood, adapting theory from Adorno, Foucault and Butler. The chapters expose serious scientific limitations of medical assumptions that Autistic people are gifted at maths but indifferent to fiction. After interrogating such cliches in literature, cinema and television, James McGrath also explores more radical depictions of Autism via novels by Douglas Coupland, Margaret Atwood, Clare Morrall and Meg Wolitzer, plus poems by Les Murray and Joanne Limburg. Follow this link to see James McGrath in conversation with Kelly-Anne Watson at Leeds Beckett University: https://www.youtube.com/watch?v=xQOotRZRzv4 Follow this link to view a content breakdown of the above interview: https://www.academia.edu/36406389/Naming_Adult_Autism_A_Conversation_winter_2017_ Follow this link to read a 'Seeking Sara' blog interview with James: https://seekingsara174.wordpress.com/2018/08/19/639/

This book has been a work in progress. In the spring of 2000 I started this project and began to collect data and conduct interviews. I copied every article I could find in the Journal of Visual Impairment and Blindness and its predecessors Outlook for the Blind and New Outlook for the Blind. I was fortunate to locate Blindness the annual publication of the American Association of Workers for the Blind. One of the greatest finds was the library at the American Foundation for the Blind. The library contains dozens of volumes related to orientation and mobility. Within two years I had amassed a considerable collection of resources. I began working through the materials and along the way prepared some papers for various conferences. A dramatic increase in administrative responsibilities, as well as the tyranny of meeting grant deadlines, diverted me from giving concentrated effort to this book. All that changed as I reduced my workload in order to devote almost all my efforts over the past nine months to this project.

This book examines how intellectual disability is affected by stigma and how this stigma has developed. Around two per cent of the world's population have an intellectual disability but their low visibility in many places bears witness to their continuing exclusion from society. This prejudice has an impact on the family of those with an intellectual disability as well as the individual themselves and affects the well-being and life chances of all those involved. This book provides a framework for tackling intellectual disability stigma in institutional processes, media representations and other, less overt, settings. It also highlights the anti-stigma interventions which are already in place and the central role that self-advocacy must play.

This is the first detailed assessment of the development and implementation of social policy to deal with the problem of the `mentally deficient' in Britain between 1870 and 1959. Mathew Thomson analyses all the factors involved in the policy-making process, beginning with the politics of the legislature and showing how the demands of central government were interpreted by local authorities, resulting in a wide and varied distribution of medical, institutional, and community care in different parts of the country. The efforts of health professionals, voluntary organizations and the families themselves are considered, alongside questions about the influence of changing concepts of class, gender, and citizenship. The author queries the belief that the policy of segregation was largely unsuccessful, and reveals a hitherto unrecognized system of care in the community. He reframes our understanding of the campaign for sterilization and examines why British policy-makers avoided extremist measures such as the compulsory sterilization introduced in Germany and parts of the US during this period. Thomson shows that the problem of mental deficiency cannot be understood simply in terms of eugenics but must also be considered as part of the process of adjusting to democracy in the twentieth century.

Nearly twenty percent of Americans live today with some sort of disability, and this number will grow in coming decades as the population ages. Despite this, the U.S. health care system is not set up to provide care comfortably, safely, and efficiently to persons with disabilities. Individuals with disabilities can therefore face significant barriers to obtaining high quality health care. Some barriers result from obvious impediments, such as doors without automatic openers and examining tables that are too high. Other barriers arise from faulty communication between patients and health care professionals, including misconceptions among clinicians about the daily lives, preferences, values, and abilities of persons with disabilities. Yet additional barriers relate to health insurance limits on items and services essential to maximizing health and independence. This book examines the health care experiences of persons who are blind, deaf, hard of hearing, or who have difficulties using their legs, arms, or hands. The book then outlines strategies for overcoming or circumventing barriers to care, starting by just asking persons with disabilities about workable solutions. Creating safe and accessible health care for persons with disabilities will likely benefit everyone at some point. This book has three parts. The first part looks at the historical roots of healthcare access for persons with disabilities in the United States. The second part discusses the current situation and the special challenges for those with disabilities. The third part looks forward to discuss the ways in which healthcare quality and access can improve.

Childhood disabilities, particularly cognitive disabilities, are on the rise yet social programs and services to help US families respond to disabilities are not. Many families turn to grandparents for assistance juggling work, family responsibilities, and specialized therapies. This book is based on in-depth interviews with grandparents who are providing at least some care to grandchildren with disabilities. The analyses will help to better understand (1) under what conditions grandparents provide care and support, (2) what types and intensities of care and support grandparents provide, and (3) the impact of that care and support on grandparents' social, emotional, physical, and financial wellbeing. In this fascinating and provocative book, Madonna Harrington Meyer and Ynesse Abdul-Malak take readers on a deep dive into the complex lives of grandparents who care for their disabled grandchildren. In Grandparenting Children with Disabilities, their interviews reveal the joy, meaning, and purpose grandparents find in caregiving, the challenges and frustrations they encounter, and the many ways they compromise their own health and well-being for the sake of their grandchildren. Drawing from theories of cumulative inequality and from their deep knowledge of the US policy context, the authors lay bare the systemic failures that leave families of children with disabilities without adequate support and that place the most vulnerable among them at grave physical, emotional, and financial risk... Jane McLeod, Provost Professor, Indiana University Grandparents in the U.S. already take on far more parenting responsibilities as compared to their peers in other countries. Grandparenting Children with Disabilities demonstrates that the intensity of these responsibilities is compounded for those whose grandchildren have disabilities given limited policy supports and a society still largely unaccommodating to those with disabilities. This book beautifully navigates the tension between the love these grandparents have for their grandchildren and the challenges they face caring for them. Pamela Herd, Professor, Georgetown University Grandparenting Children with Disabilities offers important insights about the lived experience of older adults who care for and care about their grandchildren...The authors skillfully integrate the stories they tell with consideration of macro social structural influences and life course perspectives... I recommend it highly! Eva Kahana, Distinguished University Professor, Case Western Reserve

Disability and spirituality have traditionally been understood as two distinct spheres: disability is physical and thus belongs to health care professionals, while spirituality is religious and belongs to the church, synagogue, or mosque and their theologians, clergy, rabbis, and imams. This division leads to stunted theoretical understanding, limited collaboration, and segregated practices, all of which contribute to a lack of capacity to see people with disabilities as whole human beings and full members of a diverse human family. Contesting the assumptions that separate disability and spirituality, William Gaventa argues for the integration of these two worlds. As Gaventa shows, the quest to understand disability inevitably leads from historical and scientific models into the world of spiritualityato the ways that values, attitudes, and beliefs shape our understanding of the meaning of disability. The reverse is also true. The path to understanding spirituality is a journey that leads to disabilityato experiences of limitation and vulnerability, where the core questions of what it means to be human are often starkly and profoundly clear. In Disability and Spirituality Gaventa constructs this whole and human path before turning to examine spirituality in the lives of those individuals with disabilities, their families and those providing care, their friends and extended relationships, and finally the communities to which we all belong. At each point Gaventa shows that disability and spirituality are part of one another from the very beginning of creation. Recovering wholeness encompasses their reunionaa cohesion that changes our vision and enables us to everyone as fully human.

In this probing exploration of what it means to be deaf, Brenda Brueggemann goes beyond any simple notion of identity politics to explore the very nature of identity itself. Looking at a variety of cultural texts, she brings her fascination with borders and between-places to expose and enrich our understanding of how deafness embodies itself in the world, in the visual, and in language.

Taking on the creation of the modern deaf subject, Brueggemann ranges from the intersections of gender and deafness in the work of photographers Mary and Frances Allen at the turn of the last century, to the state of the field of Deaf Studies at the beginning of our new century. She explores the power and potential of American Sign Language--wedged, as she sees it, between letter-bound language and visual ways of learning--and argues for a rhetorical approach and digital future for ASL literature.

The narration of deaf lives through writing becomes a pivot around which to imagine how digital media and documentary can be used to convey deaf life stories. Finally, she expands our notion of diversity within the deaf identity itself, takes on the complex relationship between deaf and hearing people, and offers compelling illustrations of the intertwined, and sometimes knotted, nature of individual and collective identities within Deaf culture.

This volume provides an informed review of the accomplishments of the Washington Group on Disability Statistics (WG) in the provision of international data and statistics on disability. It does so within the context of the UN Convention on the Rights of Persons with Disabilities. The volume includes a description of the development and testing of a short set of questions for Censuses, now used in approximately 29 countries and recommended in the U.N.'s Principles and Recommendations for Population and Housing Censuses: The 2020 Round, which includes disability as a core topic to be collected in censuses. It discusses the experiences of several countries on the use of the WG questions and how this has impacted on national agendas in the area of disability. It follows the development and testing of an extended set of questions for use in national surveys other than censuses and examines the challenges of translation and the importance of generating comparable question sets in different languages and within different cultures. It studies the examination of cognitive testing techniques in a variety of countries, and presents the results of the first round of censuses in 2010 in countries using the six question set. The volume includes discussions of the new development of question modules on a broad range of child disability and functioning, and the environmental contexts of participation that are part of the current work of the WG. In addition, it contains a reflection on the use of the WG's functionality approach to identifying disabilities by humanitarian agencies to identify disabilities in populations of displaced persons. A thoughtful conclusion addresses what the development of cross-nationally comparable data can mean for the improvement of circumstances for all persons with disabilities.

This handbook questions, debates and subverts commonly held assumptions about disability and citizenship in the global postcolonial context. Discourses of citizenship and human rights, so elemental to strategies for addressing disability-based inequality in wealthier nations, have vastly different ramifications in societies of the Global South, where resources for development are limited, democratic processes may be uncertain, and access to education, health, transport and other key services cannot be taken for granted. In a broad range of areas relevant to disability equity and transformation, an eclectic group of contributors critically consider whether, when and how citizenship may be used as a lever of change in circumstances far removed from UN boardrooms in New York or Geneva. Debate is polyvocal, with voices from the South engaging with those from the North, disabled people with nondisabled, and activists and politicians intersecting with researchers and theoreticians. Along the way, accepted wisdoms on a host of issues in disability and international development are enriched and problematized. The volume explores what life for disabled people in low and middle income countries tells us about subjects such as identity and intersectionality, labour and the global market, family life and intimate relationships, migration, climate change, access to the digital world, participation in sport and the performing arts, and much else.

In addition to advising judicial decision-makers by assessing such issues as pre-trial competency, insanity, and dangerousness, mental health professionals working in criminal justice system settings manage and treat mentally ill and substance abusing offenders on a daily basis. This work may involve either institutional treatments or community-based programs. The purpose of this bibliography is to collect the professional literature from numerous disciplines, including psychology, psychiatry, nursing, education, and social work, that addresses the theoretical, empirical, and practice-related issues encountered by mental health researchers and practitioners in developing and providing services to mentally ill and substance abusing offenders in criminal justice system settings. There are over 1250 annotated citations and author and subject indexes to facilitate access to the resources listed.

Leading ethicist and pastoral theologian Brian Brock reflects on the challenge of disability, refuting widely held misconceptions and helping readers respond well to the pastoral implications of disability. Brock, the father of a child with special needs, weaves together theological commentary with narrative reflection, offering rich theological wisdom for shepherding people with disabilities. He shows pastors and ministers-in-training that thinking more closely and theologically about disability is a doorway into a more vibrant and welcoming church life for all Christians.

In September 2018, Professor Sean Davison's peaceful life in the leafy suburbs of Pinelands, Cape Town is shattered. Arrested for the murder of Dr Anrich Burger, a once-fit athlete turned quadriplegic who begged Davison to assist him in ending his life in 2015, the unassuming academic and father of three now finds himself locked up in a prison cell.

Under investigation led by the Hawks, an additional two murders are added to the case for which he now faces a mandatory life prison sentence. Written in compelling detail, The Price of Mercy tracks the extraordinary journey that Davison embarks on to prepare for the gruelling legal challenge that lies ahead.

The desperate cries of many, begging for his assistance to help end their lives of suffering haunt him. Unwavering in his belief that we all have the right to die with dignity, Davison's selfless battle is made more bearable by his friendship with the late and great Archbishop Desmond Tutu.

A book that will change the way you see death.

Drawing from long term ethnographic work and practice in Guatemala, this incisive and interdisciplinary text brings in perspectives from critical disability studies, postcolonial theory and critical development to explore the various interactions and dynamics between disability and extreme poverty in rural areas.

Disability and Disaster adds disaster research to the expanding area of disability studies. The book includes writings by international scholars and first-hand narratives from individuals with disabilities affected by disasters around the globe. Hazards described in these narratives include earthquakes, hurricanes, floods, fires, and war.

This edited collection explores the intersectionality of childhood and disability. Whereas available scholarship tends to concentrate on care-giving, parenting, or supporting and teaching children and young people with special educational needs and disabilities, the contributors to this collection offer an engaging and accessible insight into childhoods that are impacted by disability and impairment. The discussions cut across traditional disciplinary divides and offer critical insights into the key issues that relate to disabled children and young people's lives, encouraging the exploration of both disability and childhoods in their broadest terms. Dis/abled Childhoods? will be of interest to students and scholars across a range of disciplines including Special Educational Needs; Childhood Studies; Disability Studies; Youth Studies; and Health and Social Care.

This book presents an ethnographic case study of the personal motivations, advocacy, and activation of social capital needed to create and sustain the Immortelle Children's Centre, a private school that has served children with disabilities in Trinidad/Tobago for four decades. Based on narratives by parents from the 1980's, current parents, teachers, community advocates, and the author, who was the founder of Immortelle in 1978, the study views the school within the context of a nation standing in a liminal space between developed and developing societies. It argues that the attainment of equity for children with disabilities will require an agenda that includes a legal mandate for education of all children, increased public funding for education, health and therapeutic services, and an on-going public awareness campaign. Relating this study to the global debate on inclusion, the author shows how the implementation of this agenda would have to be adapted to the social, cultural, and economic realities of the society.

The newly emerged interdisciplinary field of Disability Studies offers a sociopolitical analysis of disability, focusing on its social construction, and shifting attention from biology to culture. In the past fifteen years, disability-related scholarly work has been undertaken in a variety of disciplines, and disability now occupies a central place in cultural analysis, along with well-established categories like race/ethnicity, gender, sexuality, and class. The Oxford Handbook of Disability Studies represents a comprehensive "state of current research" for the field of Disability Studies and Music. The forty-two chapters in the book span a wide chronological and geographical range, from the biblical, the medieval, and the Elizabethan, through the canonical classics of the eighteenth and nineteenth centuries, up to modernist styles and contemporary musical theater and popular genres, with stops along the way in post-Civil War America, Ghana and the South Pacific, and many other interesting times and places. Disability is a broad, heterogeneous, and porous identity, and that diversity is reflected in the variety of bodily conditions under discussion here, including autism and intellectual disability, deafness, blindness, and mobility impairment often coupled with bodily deformity. Cultural Disability Studies has, from its inception, been oriented toward physical and sensory disabilities, and has generally been less effective in dealing with cognitive and intellectual impairments and with the sorts of emotions and behaviors that in our era are often medicalized as "mental illness." In that context, it is notable that so many of these essays are centrally concerned with madness, that broad and ever-shifting cultural category. There is also in impressive diversity of subject matter including YouTube videos, Ghanaian drumming, Cirque du Soleil, piano competitions, castrati, medieval smoking songs, and popular musicals. Amid this diversity of time, place, style, medium, and topic, the chapters share two core commitments. First, they are united in their theoretical and methodological connection to Disability Studies, especially its central idea that disability is a social and cultural construction. Disability both shapes and is shaped by culture, including musical culture. Second, these essays individually and collectively make the case that disability is not something at the periphery of culture and music, but something central to our art and to our humanity.

Drawing from work in a wide range of fields, this book presents novel approaches to key debates in thinking about and defining disability. Differing from other works in Critical Disability Studies, it crucially demonstrates the consequences of radically rethinking the roles of language and perspective in constructing identities.