This book has been a work in progress. In the spring of 2000 I started this project and began to collect data and conduct interviews. I copied every article I could find in the Journal of Visual Impairment and Blindness and its predecessors Outlook for the Blind and New Outlook for the Blind. I was fortunate to locate Blindness the annual publication of the American Association of Workers for the Blind. One of the greatest finds was the library at the American Foundation for the Blind. The library contains dozens of volumes related to orientation and mobility. Within two years I had amassed a considerable collection of resources. I began working through the materials and along the way prepared some papers for various conferences. A dramatic increase in administrative responsibilities, as well as the tyranny of meeting grant deadlines, diverted me from giving concentrated effort to this book. All that changed as I reduced my workload in order to devote almost all my efforts over the past nine months to this project.

This is the first detailed assessment of the development and implementation of social policy to deal with the problem of the `mentally deficient' in Britain between 1870 and 1959. Mathew Thomson analyses all the factors involved in the policy-making process, beginning with the politics of the legislature and showing how the demands of central government were interpreted by local authorities, resulting in a wide and varied distribution of medical, institutional, and community care in different parts of the country. The efforts of health professionals, voluntary organizations and the families themselves are considered, alongside questions about the influence of changing concepts of class, gender, and citizenship. The author queries the belief that the policy of segregation was largely unsuccessful, and reveals a hitherto unrecognized system of care in the community. He reframes our understanding of the campaign for sterilization and examines why British policy-makers avoided extremist measures such as the compulsory sterilization introduced in Germany and parts of the US during this period. Thomson shows that the problem of mental deficiency cannot be understood simply in terms of eugenics but must also be considered as part of the process of adjusting to democracy in the twentieth century.

Nearly twenty percent of Americans live today with some sort of disability, and this number will grow in coming decades as the population ages. Despite this, the U.S. health care system is not set up to provide care comfortably, safely, and efficiently to persons with disabilities. Individuals with disabilities can therefore face significant barriers to obtaining high quality health care. Some barriers result from obvious impediments, such as doors without automatic openers and examining tables that are too high. Other barriers arise from faulty communication between patients and health care professionals, including misconceptions among clinicians about the daily lives, preferences, values, and abilities of persons with disabilities. Yet additional barriers relate to health insurance limits on items and services essential to maximizing health and independence. This book examines the health care experiences of persons who are blind, deaf, hard of hearing, or who have difficulties using their legs, arms, or hands. The book then outlines strategies for overcoming or circumventing barriers to care, starting by just asking persons with disabilities about workable solutions. Creating safe and accessible health care for persons with disabilities will likely benefit everyone at some point. This book has three parts. The first part looks at the historical roots of healthcare access for persons with disabilities in the United States. The second part discusses the current situation and the special challenges for those with disabilities. The third part looks forward to discuss the ways in which healthcare quality and access can improve.

In this probing exploration of what it means to be deaf, Brenda Brueggemann goes beyond any simple notion of identity politics to explore the very nature of identity itself. Looking at a variety of cultural texts, she brings her fascination with borders and between-places to expose and enrich our understanding of how deafness embodies itself in the world, in the visual, and in language.

Taking on the creation of the modern deaf subject, Brueggemann ranges from the intersections of gender and deafness in the work of photographers Mary and Frances Allen at the turn of the last century, to the state of the field of Deaf Studies at the beginning of our new century. She explores the power and potential of American Sign Language--wedged, as she sees it, between letter-bound language and visual ways of learning--and argues for a rhetorical approach and digital future for ASL literature.

The narration of deaf lives through writing becomes a pivot around which to imagine how digital media and documentary can be used to convey deaf life stories. Finally, she expands our notion of diversity within the deaf identity itself, takes on the complex relationship between deaf and hearing people, and offers compelling illustrations of the intertwined, and sometimes knotted, nature of individual and collective identities within Deaf culture.

In addition to advising judicial decision-makers by assessing such issues as pre-trial competency, insanity, and dangerousness, mental health professionals working in criminal justice system settings manage and treat mentally ill and substance abusing offenders on a daily basis. This work may involve either institutional treatments or community-based programs. The purpose of this bibliography is to collect the professional literature from numerous disciplines, including psychology, psychiatry, nursing, education, and social work, that addresses the theoretical, empirical, and practice-related issues encountered by mental health researchers and practitioners in developing and providing services to mentally ill and substance abusing offenders in criminal justice system settings. There are over 1250 annotated citations and author and subject indexes to facilitate access to the resources listed.

From two-time National Book Award nominee Melissa Fay Greene comes a profound and surprising account of dogs on the front lines of rescuing both children and adults from the trenches of grief, emotional, physical, and cognitive disability, and post-traumatic stress disorder. The Underdogs tells the story of Karen Shirk, felled at age twenty-four by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled." Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life. "How many people are stranded like I was," she wondered, "who would lead productive lives if only they had a dog?" A thousand state-of-the-art dogs later, Karen Shirk's service dog academy, 4 Paws for Ability, is restoring broken children and their families to life. Long shunned by scientists as a manmade, synthetic species, and oft- referred to as "Man's Best Friend" almost patronizingly, dogs are finally paid respectful attention by a new generation of neuroscientists and animal behaviorists. Melissa Fay Greene weaves the latest scientific discoveries about our co-evolution with dogs with Karen's story and a few exquisitely rendered stories of suffering children and their heartbroken families. Written with characteristic insight, humanity, humor, and irrepressible joy, what could have been merely touching is a penetrating, compassionate exploration of larger questions: about our attachment to dogs, what constitutes a productive life, and what can be accomplished with unconditional love.

Disability and spirituality have traditionally been understood as two distinct spheres: disability is physical and thus belongs to health care professionals, while spirituality is religious and belongs to the church, synagogue, or mosque and their theologians, clergy, rabbis, and imams. This division leads to stunted theoretical understanding, limited collaboration, and segregated practices, all of which contribute to a lack of capacity to see people with disabilities as whole human beings and full members of a diverse human family. Contesting the assumptions that separate disability and spirituality, William Gaventa argues for the integration of these two worlds. As Gaventa shows, the quest to understand disability inevitably leads from historical and scientific models into the world of spiritualityato the ways that values, attitudes, and beliefs shape our understanding of the meaning of disability. The reverse is also true. The path to understanding spirituality is a journey that leads to disabilityato experiences of limitation and vulnerability, where the core questions of what it means to be human are often starkly and profoundly clear. In Disability and Spirituality Gaventa constructs this whole and human path before turning to examine spirituality in the lives of those individuals with disabilities, their families and those providing care, their friends and extended relationships, and finally the communities to which we all belong. At each point Gaventa shows that disability and spirituality are part of one another from the very beginning of creation. Recovering wholeness encompasses their reunionaa cohesion that changes our vision and enables us to everyone as fully human.

This elegantly written book offers an unexpected and unprecedented account of blindness and sight. Legally blind since the age of eleven, Georgina Kleege draws on her experiences to offer a detailed testimony of visual, impairment -- both her own view of the world and the worlds view of the blind. "I hope to turn the reader's gaze outward, to say, not only Heres what I see but also 'Here's what you see, to show both what's unique and what's universal", Kleege writes.

Kleege describes the negative social status of the blind, analyzes stereotypes of the blind that have been perpetuated by movies, and discusses how blindness has been portrayed in literature. She vividly conveys the visual experience of someone with severely impaired sight and explains what she can see and what she cannot (and how her inability to achieve eye contact -- in a society that prizes that form of connection -- has affected her). Finally she tells of the various ways she reads, and the freedom she felt when she stopped concealing her blindness and acquired skills, such as reading braille, as part of a new, blind identity. Without sentimentality or cliches, Kleege offers us the opportunity to imagine life without sight.

This book presents an international research-based framework that has empowered parents of children with autism spectrum disorder (ASD) to become critical decision makers to actively guide their child's learning and self-advocacy. Parents can use this framework to identify their child's vision and dreams, and to work with educators and service providers to establish specific learning goals and to implement effective interventions and programs that enable their child to achieve those goals and realise their vision for the future. The book begins by reviewing available research on evidence-based practice for children with ASD and outlining the Cycle of Learning decision-making framework for parents and professionals. Throughout the remainder of the book, case studies are presented to illustrate the ways in which different parents have successfully utilised this framework to develop effective plans for their child and to advocate for learning and education programs for both their child and other children with ASD in school and community settings. In addition, it highlights concrete examples of how parents have used the framework to empower their children with ASD to develop their self-awareness and self-determination, and to be able to self-advocate as they move through adolescence and into adult life.

The newly emerged interdisciplinary field of Disability Studies offers a sociopolitical analysis of disability, focusing on its social construction, and shifting attention from biology to culture. In the past fifteen years, disability-related scholarly work has been undertaken in a variety of disciplines, and disability now occupies a central place in cultural analysis, along with well-established categories like race/ethnicity, gender, sexuality, and class. The Oxford Handbook of Disability Studies represents a comprehensive "state of current research" for the field of Disability Studies and Music. The forty-two chapters in the book span a wide chronological and geographical range, from the biblical, the medieval, and the Elizabethan, through the canonical classics of the eighteenth and nineteenth centuries, up to modernist styles and contemporary musical theater and popular genres, with stops along the way in post-Civil War America, Ghana and the South Pacific, and many other interesting times and places. Disability is a broad, heterogeneous, and porous identity, and that diversity is reflected in the variety of bodily conditions under discussion here, including autism and intellectual disability, deafness, blindness, and mobility impairment often coupled with bodily deformity. Cultural Disability Studies has, from its inception, been oriented toward physical and sensory disabilities, and has generally been less effective in dealing with cognitive and intellectual impairments and with the sorts of emotions and behaviors that in our era are often medicalized as "mental illness." In that context, it is notable that so many of these essays are centrally concerned with madness, that broad and ever-shifting cultural category. There is also in impressive diversity of subject matter including YouTube videos, Ghanaian drumming, Cirque du Soleil, piano competitions, castrati, medieval smoking songs, and popular musicals. Amid this diversity of time, place, style, medium, and topic, the chapters share two core commitments. First, they are united in their theoretical and methodological connection to Disability Studies, especially its central idea that disability is a social and cultural construction. Disability both shapes and is shaped by culture, including musical culture. Second, these essays individually and collectively make the case that disability is not something at the periphery of culture and music, but something central to our art and to our humanity.

Praise for Serious Mental Illness and the Family "Serious Mental Illness and the Family is unique in building assessment, intervention, and collaborative strategies around specific types of clinical cases and life scenarios. The book will be an invaluable aid to mental health professionals working with severely ill clients and their families." —Harriet P. Lefley, PhD Professor of Psychiatry and Behavioral Sciences University of Miami School of Medicine "Dr. Marsh is very knowledgeable about families, yet is also very compassionate in her approach to the experience of families who are frequently traumatized by a mental illness in a family member. Professionals who work with families of people with mental illness will find [this] book extremely helpful in their work.…a rich source of information." —LeRoy Spaniol, PhD Executive Publisher, The Psychiatric Rehabilitation Journal "Dr. Diane Marsh has given the mental health field yet another brilliant resource.…any psychiatric service provider can pick up this book and immediately find useful strategies for commonly occurring communication difficulties in both the initial interview and ongoing therapeutic interactions." —Mary D. Moller, MSN, ARNP, CS CEO, Psychiatric Rehabilitation Nurses, Inc. "[A] timely and important work…enriched with dozens of case vignettes, useful strategies, and profound insight. The writing is crystal clear, approachable, and engaging with satisfying depth and detail. Dr. Marsh is able to translate contemporary family theory content and new ideas into meaningful principles of practice for helping the spouses and partners, children, siblings, and other family members of people with severe mental illness." —Kia J. Bentley, PhD, LCSW Associate Professor, School of Social Work Virginia Commonwealth University

Naming Adult Autism is one of the first critiques of cultural and medical narratives of Autism to be authored by an adult diagnosed with this condition. Autism is a 'social disorder', defined by interactions and lifestyle. Yet, the expectations of normalcy against which Autism is defined have too rarely been questioned. This book demonstrates the value of the Humanities towards developing fuller understandings of Autistic adulthood, adapting theory from Adorno, Foucault and Butler. The chapters expose serious scientific limitations of medical assumptions that Autistic people are gifted at maths but indifferent to fiction. After interrogating such cliches in literature, cinema and television, James McGrath also explores more radical depictions of Autism via novels by Douglas Coupland, Margaret Atwood, Clare Morrall and Meg Wolitzer, plus poems by Les Murray and Joanne Limburg. Follow this link to see James McGrath in conversation with Kelly-Anne Watson at Leeds Beckett University: https://www.youtube.com/watch?v=xQOotRZRzv4 Follow this link to view a content breakdown of the above interview: https://www.academia.edu/36406389/Naming_Adult_Autism_A_Conversation_winter_2017_ Follow this link to read a 'Seeking Sara' blog interview with James: https://seekingsara174.wordpress.com/2018/08/19/639/

Dreams of pregnancy include the expectation that nine months of waiting will end with a joyous event. But, each year, a "shattered dream" occurs for thousands of couples who receive the news that their child will have a disabling condition severe enough that they may question if they are the best parents for their child. Societal expectation is that parents will raise their child or, if the condition of the child is detected prenatally, abortion is offered as an alternative. Parents who explore other options face scrutiny and, sometimes, condemnation--"lonely choices." Joanne Finnegan shares her personal experience and that of several families she interviewed who, like herself, explored options other than raising their child with a disability. Parents express with candor the overwhelming pain they felt when receiving "the news," the frustration when searching for options, the "no-win" feeling of decision making, the resolve with a final decision, and finally, life after the decision. Parent quotes also address issues such as spiritual dilemmas and interactions with friends, family, their other children, and medical professionals. Words of advice for new parents include how to build support systems and gather information, how to search for an adoptive family, and arranging the details of communication between adoptive and birth parents. Interviews with adoptive parents, poetry, and extensive resource lists complete the book. Written as a gift for other parents to help them cope with the pain and loneliness of decision making, this book will also be a valuable resource for medical professionals, adoption and social workers, counselors and spiritual advisors, and friends and family of theparents. It is a helpful as well as a deeply therapeutic book, providing a strong lesson in how to manage during this stressful time, from receiving "the news" about the baby's condition and prognosis, to weighing the factors involved in the various decisions. Should one take the baby home from the hospital? If not home, then where? Foster care, respite care, guardianship, and other forms of substitute care are mentioned. The author also examines decisions about finances and support services, family issues, finalizing an adoption plan, living with the decision, regrets, and future pregnancies.

Drawing from work in a wide range of fields, this book presents novel approaches to key debates in thinking about and defining disability. Differing from other works in Critical Disability Studies, it crucially demonstrates the consequences of radically rethinking the roles of language and perspective in constructing identities.

This collection is a serious attempt to explore the relationship between cultural content and the form AIDS takes in different cultural settings. Written mostly by anthropologists, these essays examine different cultural areas and AIDS: central Africa (Rwanda), New York City, Houston, and London. In addition, articles address topics such as stigmatization of AIDS victims by the press; language and AIDS; class variations in the delivery of social services as experienced by gay and bisexual men in New York City; and homophobia and AIDS. The volume is a valuable addition to the social-anthropological literature on AIDS and should be useful to professionals and for graduate and advanced undergraduate courses dealing with sociocultural aspects of AIDS. "Choice"

AIDS has become a pandemic with major implications for the future vitality of humankind, according to this powerful new book compiled by the editor of the widely acclaimed The Social Dimensions of AIDS. As a cultural phenomenon the social patterning of AIDS can be explained and its direction largely predicted. Culture and AIDS is written almost entirely by anthropologists and represents the interest of dozens of anthropologists and represents the anthropologists' interest in AIDS related research and activities. Thirteen essays explore the social and cultural context of AIDS related behavior and clarify key domains in AIDS and the social sciences. This volume seeks to broaden its readers' understanding of how AIDS is changing our lives as it redirects human experience.

"Culture and AIDS" is not intended as an introduction to AIDS. It looks at AIDS as a cultural phenomenon. It includes an introduction and postscript by its editor, Douglas A Feldman. Eleven essays explore: AIDS in Rwanda (Central Africa); A Haitian village handling AIDS; possible cofactors in HIV transmission; social service needs of gay men with AIDS in NYC; psychological factors influencing adjustment among HIV-infected gay men in Houston; social behavior of female prostitutes in London; social effects of AIDS on minority women; AIDS-related stigma in the press; language and AIDS; and other AIDS related areas.