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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
This elegantly written book offers an unexpected and unprecedented account of blindness and sight. Legally blind since the age of eleven, Georgina Kleege draws on her experiences to offer a detailed testimony of visual, impairment -- both her own view of the world and the worlds view of the blind. "I hope to turn the reader's gaze outward, to say, not only Heres what I see but also 'Here's what you see, to show both what's unique and what's universal", Kleege writes. Kleege describes the negative social status of the blind, analyzes stereotypes of the blind that have been perpetuated by movies, and discusses how blindness has been portrayed in literature. She vividly conveys the visual experience of someone with severely impaired sight and explains what she can see and what she cannot (and how her inability to achieve eye contact -- in a society that prizes that form of connection -- has affected her). Finally she tells of the various ways she reads, and the freedom she felt when she stopped concealing her blindness and acquired skills, such as reading braille, as part of a new, blind identity. Without sentimentality or cliches, Kleege offers us the opportunity to imagine life without sight.
Drawing from work in a wide range of fields, this book presents novel approaches to key debates in thinking about and defining disability. Differing from other works in Critical Disability Studies, it crucially demonstrates the consequences of radically rethinking the roles of language and perspective in constructing identities.
Dreams of pregnancy include the expectation that nine months of waiting will end with a joyous event. But, each year, a "shattered dream" occurs for thousands of couples who receive the news that their child will have a disabling condition severe enough that they may question if they are the best parents for their child. Societal expectation is that parents will raise their child or, if the condition of the child is detected prenatally, abortion is offered as an alternative. Parents who explore other options face scrutiny and, sometimes, condemnation--"lonely choices." Joanne Finnegan shares her personal experience and that of several families she interviewed who, like herself, explored options other than raising their child with a disability. Parents express with candor the overwhelming pain they felt when receiving "the news," the frustration when searching for options, the "no-win" feeling of decision making, the resolve with a final decision, and finally, life after the decision. Parent quotes also address issues such as spiritual dilemmas and interactions with friends, family, their other children, and medical professionals. Words of advice for new parents include how to build support systems and gather information, how to search for an adoptive family, and arranging the details of communication between adoptive and birth parents. Interviews with adoptive parents, poetry, and extensive resource lists complete the book. Written as a gift for other parents to help them cope with the pain and loneliness of decision making, this book will also be a valuable resource for medical professionals, adoption and social workers, counselors and spiritual advisors, and friends and family of theparents. It is a helpful as well as a deeply therapeutic book, providing a strong lesson in how to manage during this stressful time, from receiving "the news" about the baby's condition and prognosis, to weighing the factors involved in the various decisions. Should one take the baby home from the hospital? If not home, then where? Foster care, respite care, guardianship, and other forms of substitute care are mentioned. The author also examines decisions about finances and support services, family issues, finalizing an adoption plan, living with the decision, regrets, and future pregnancies.
This collection is a serious attempt to explore the relationship between cultural content and the form AIDS takes in different cultural settings. Written mostly by anthropologists, these essays examine different cultural areas and AIDS: central Africa (Rwanda), New York City, Houston, and London. In addition, articles address topics such as stigmatization of AIDS victims by the press; language and AIDS; class variations in the delivery of social services as experienced by gay and bisexual men in New York City; and homophobia and AIDS. The volume is a valuable addition to the social-anthropological literature on AIDS and should be useful to professionals and for graduate and advanced undergraduate courses dealing with sociocultural aspects of AIDS. "Choice" AIDS has become a pandemic with major implications for the future vitality of humankind, according to this powerful new book compiled by the editor of the widely acclaimed The Social Dimensions of AIDS. As a cultural phenomenon the social patterning of AIDS can be explained and its direction largely predicted. Culture and AIDS is written almost entirely by anthropologists and represents the interest of dozens of anthropologists and represents the anthropologists' interest in AIDS related research and activities. Thirteen essays explore the social and cultural context of AIDS related behavior and clarify key domains in AIDS and the social sciences. This volume seeks to broaden its readers' understanding of how AIDS is changing our lives as it redirects human experience. "Culture and AIDS" is not intended as an introduction to AIDS. It looks at AIDS as a cultural phenomenon. It includes an introduction and postscript by its editor, Douglas A Feldman. Eleven essays explore: AIDS in Rwanda (Central Africa); A Haitian village handling AIDS; possible cofactors in HIV transmission; social service needs of gay men with AIDS in NYC; psychological factors influencing adjustment among HIV-infected gay men in Houston; social behavior of female prostitutes in London; social effects of AIDS on minority women; AIDS-related stigma in the press; language and AIDS; and other AIDS related areas.
This book presents an international research-based framework that has empowered parents of children with autism spectrum disorder (ASD) to become critical decision makers to actively guide their child's learning and self-advocacy. Parents can use this framework to identify their child's vision and dreams, and to work with educators and service providers to establish specific learning goals and to implement effective interventions and programs that enable their child to achieve those goals and realise their vision for the future. The book begins by reviewing available research on evidence-based practice for children with ASD and outlining the Cycle of Learning decision-making framework for parents and professionals. Throughout the remainder of the book, case studies are presented to illustrate the ways in which different parents have successfully utilised this framework to develop effective plans for their child and to advocate for learning and education programs for both their child and other children with ASD in school and community settings. In addition, it highlights concrete examples of how parents have used the framework to empower their children with ASD to develop their self-awareness and self-determination, and to be able to self-advocate as they move through adolescence and into adult life.
In Reflections of Helen, Gary explains how the words and wisdom of Helen Keller have helped him in his life. More importantly, he hopes this book will help you in your life. As Helen Keller overcame her limitations, Gary shows you how to overcome challenges in your life. In this book, Gary will help you find the magic that is within you. Reflections of Helen will help you feel healthier and happier about your life. As Gary says, "We don't need sight to move in a positive direction - We need insight. The key to unlock the door to your future is inside you." This book can be a key to that door.
Gender and Mental Health provides a critical introduction to the ways in which gender affects mental health experiences and mental health service use. The volume is unique in including a policy perspective and an overview-including a look at crime, the law, and service structures-of society's responses to mental disorders. Recent research has challenged basic assumptions that women are more prone than men to mental disorders, and has highlighted the increasing visibility of men in psychiatric statistics in the twentieth century. Yet, gender differences continue to be intertwined with risk factors in socioeconomic conditions and in biased approaches to diagnosis and treatment. Prior here examines the individual experiences of mental disorders for both men and women and explores a range of mental health policy issues including concepts of normality, trends in mental health care legislation and service delivery, the differing impacts of national mental health policies on women and on men, and changing views of disorders linked with sexual identity and orientation. Based on up-to-date information from both the United States and Europe, this volume will be useful to a broad range of scholars and professionals in psychology, sociology, social policy, gender studies, social work, medicine, and law.
Unlike most histories of the medical profession between 1750 and 1850, which focus on a small handful of famous doctors and their discoveries, this book concentrates on the neglected but far larger group of rank and file practitioners: the surgeon-apothecaries of the late 18th century and the general practitioners of the early 19th century. Delving into an array of manuscript sources, Loudon examines their social and economic status, their background and training, their scientific methods and medical challenges, and their patients and pay-scales. He demonstrates that they actually faced unparalleled intraprofessional rivalry in an overcrowded profession during these years -- the effects of which are still seen in the structure of Britain's medical establishment today.
Examining the issues of treatment, organizational planning, and research, this multidimensional study offers a critique of both the theoretical and programmatic aspects of providing mental health services to traditionally underserved populations. Focusing on minority groups, the book uses the case of Hispanics to illustrate the largely unaddressed need for services that are relevant to social groups with diverse cultural and linguistic backgrounds. Vega and Murphy maintain that the present service system is socially insensitive, that mental health services in the United States were never designed to serve a multicultural population, and that, in general, those who dominate the current mental health system from administrator-clinicians to bureaucrats and politicians do not know how to direct their services to minority groups. Calling for fundamental reconceptualization and change, the book argues for community-based planning and intervention as an enlightened and necessary alternative, and provides a detailed description of such a program in terms of both philosophy and method. The eight chapters offer a reassessment based on understanding not only the rationale for these necessary services, but also the important philosophical and pragmatic issues that have resulted in the current, inadequate system; they provide the new thinking necessary to reframe the objectives of mental health services for cultural minorities. The early chapters explore some of the critical junctures in the community mental health movement between 1946 and 1981, the development of theory in the movement's early days, and the thrust of community-based intervention--the culture-specific methodology that has not been well-understood or implemented. Chapters 4 and 5 focus on the relationship between medicalization and the degradation of culture and on the reconceptualization of knowledge, order, illness, and intervention. The last three chapters analyze an example of community-based intervention in operation, and citizen involvement and the political aspects of community-based policies are reviewed. This timely discussion of the requirements for a socially responsible and community-based services delivery program lays the theoretical foundation for a future public mental health system. As such, it will prove invaluable and important reading for advanced undergraduate and graduate students in the health and human services areas, including social work, clinical psychology, and medical sociology; it also has much to offer professional administrators and planners. Culture and the Restructuring of Community Mental Health has been designed to meet the needs of both academics and practitioners.
Developmental disabilities are the most numerous of disabilities, and they are exceptionally complex. This professional reference overviews developmental disabilities, discusses the information needs of people with developmental disabilities, and provides practical guidance to librarians and information professionals who serve them. Particular attention is given to the ramifications of the Americans with Disabilities Act for librarians. The first part of the book defines and describes developmental disabilities from perspectives relevant to librarians and information professionals. The second part examines key life issues that have a major impact on people with developmental disabilities. This section emphasizes the current trend toward the inclusion of people with developmental disabilities in mainstream society. References to related information sources are included throughout. The third part looks at disabilities from the perspective of the library or other information agency. An appendix lists organizations, agencies, businesses, and libraries that provide additional materials.
Readers' Choice Awards Honorable Mention Distinguished Honorable Mention, from Byron Borger, Hearts and Minds Bookstore "No matter how old you are or how many degrees you have or don't have-when grace takes you to school, you start in kindergarten." This was the experience of Reverend Glandion Carney when he was given the life-altering news that he has Parkinson's disease. He was plunged into denial and despair. This was not supposed to be his journey. How could he face it? With poignant vulnerability, The Way of Grace describes one man's journey into a new land of God's amazing grace. Both his honesty and his resilience will inspire and inform your own times of difficulty. In each chapter we are introduced to a spiritual practice that can carry us through difficult days: acceptance, relinquishment, community, simplicity and more. And a guide at the end of each chapter carries us into a brief and refreshing experience with each of the practices. God's unmerited grace saves us, strengthens us and sanctifies us. We too can experience lives full of grace and truth, courageously searching out God's wonders every day.
In a unique way this study probes the linguistic, sociological, religious and theological issues associated with being physically disabled in the ancient Near East. By examining the law collections, societal conventions and religious obligations towards individuals who were physically disabled Fiorello gives us an understanding of the world a disabled person would enter. He explores the connection between the literal use of disability language and the metaphorical use of this language made in biblical prophetic literature as a prophetic critique of Israel's dysfunctional relationship with God. COMMENDATIONS "In this well-researched volume Michael Fiorello has made a significant contribution to the study of disability in the Bible in the context of its ancient Near Eastern world. Fiorello's work needs to be taken seriously in the church, the academy, and the world." - Richard E. Averbeck, Trinity Evangelical Divinity School, USA
This unique contribution to the literature represents an important adjunct in developing comprehensive policies that will meet the health care needs of underserved communities in American society. The book is readable and contains useful documentation. Recommended as an important reference for all academic audiences interested in the politics and delivery of health care. Choice Editors Woodrow Jones, Jr., and Mitchell F. Rice present a thorough analysis of the problems of health and health care particular to black Americans. The contributors to this work analyze the factor of race as it influences the availability, accessibility, and quality of health care. They focus on barriers to health care encountered by blacks, and attempt to differentiate the problems of the black community from those of other disadvantaged groups. Using epidemiological data, the initial chapters evaluate the general health of the black population. In subsequent chapters, the contributors examine particular problems of groups within the black community, problems which are based both on behavior and environment. The work concludes by assessing the adequacy of governmental response to the problems identified.
The first reference book written for the sight-impaired student and those who serve their needs, "A Field Guide for the Sight-Impaired Reader" explains how to locate, obtain, and integrate all forms of aid to construct a world of reading equal to that of the fully sighted reader. It profiles the major blind service organizations; explores specialized formats such as Braille, large print, and electronic texts; and shows what technology readers require and where to find it. It provides comprehensive lists of audio and large print publishers, a state-by-state listing of resource agencies for the blind, and valuable internet resources to assist students and their teachers and librarians in obtaining the texts they need to succeed in both academic and pleasure reading. Beginning with thorough coverage of the national organizations in place for visually handicapped readers and how they can assist both students and librarians, "A Field Guide for the Sight-Impaired Reader" outlines the types of technology available to readers and the companies that manufacture it. Available software, braille resources, large print resources, and internet web sites are all discussed in detail, with contact information. Also included are reading strategies for a variety of academic subject areas, a detailed listing of state resources with addresses, phone numbers, and web sites, an exhaustive list of audio publishers, and a list of books compiled from recommended reading lists such as the American Library Association's Outstanding Books for the College Bound. A discussion of the Americans with Disabilities Act and its impact on libraries is provided, as well as funding sources for librarians who want to provide more materials and technology for their sight-impaired patrons than their budgets might allow. With the encouragement and resources provided here, sight-impaired students who felt the world of reading was closed off to them can now create a reading life as rich as that of any fully sighted student.
The blind person who tries to make an online purchase. The young girl who cannot speak due to a cognitive disability. The man confined to his home due to permanent injury. The single mother with a long-term illness who struggles to feed her family. With one in seven people worldwide currently living with a disability, the term "outcast" covers numerous scenarios. Digital outcasts rely on technology for everyday services that many people take for granted. However, poorly designed products risk alienating this important (and growing) population. Through a "grass roots" approach to innovation, digital outcasts
are gradually taking action to transform their lives and
communities. This emerging trend provides exciting learning
opportunities for all of us. Citing real-world case studies from
healthcare to social science, this book examines the emerging legal
and cultural impact of inclusive design. Discover pitfalls and approaches to help you stay current in your UX practices Anticipate a future in which ambient benefit can be achieved for people of all abilities and backgrounds
This book offers an empowering approach to working with people with an acquired brain injury (ABI) based upon the views and perspectives of people with ABI themselves. Drawing upon Christine Durham's own ABI experience and Paul Ramcharan's engagement in disability research over a quarter of a century, this volume gives voice to 36 participants with ABI, as well as carers and other professionals from both urban and rural areas. This unique perspective provides a long-needed, empathic alternative to the deficit-based model of ABI that dominates medical literature and existing rehabilitation models. In Insight into Acquired Brain Injury, the authors use educational and learning principles together with Durham's extensive archive of experiential data to offer a reframing of the nature and experience of ABI and relevant a set of practical, real-world tools for practitioners. These ready-to-adopt-and-adapt scripts, guided interviews, research checklists, thinking tools and other innovative techniques are designed to engage with people and colleagues about brain injury as a means of supporting them to feel and fare better. With compassion and first-hand awareness, Insight into Acquired Brain Injury provides a much-needed perspective that deepens current understanding and translates the complicated life-worlds of people living with ABI in order to motivate, empower and increase their participation. |
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