One out of every seven working age African Americans has an impairment that affects functioning in activities of daily living. These statistics suggest that most African Americans are touched by disability. This book examines the psychosocial aspects of disability and chronic illness using a culturally congruent framework. Chapters address prevalance, health and rehabilitation utilization patterns, the role of culture, empirical research, and strategies for improving mental health and functional outcomes. This book will be useful to professionals who work with people with disabilities, policymakers, and consumers, as well as faculty and students in rehabilitation, health, and African American courses.

Disability and the Victorians brings together in one collection a range of topics, perspectives and experiences from the Victorian era that present a unique overview of the development and impact of attitudes and interventions towards those with impairments during this time. The collection also considers how the legacies of these actions can be seen to have continued throughout the twentieth century right up to the present day. Subjects addressed include deafness, blindness, language delay, substance dependency, imperialism and the representation of disabled characters in popular fiction. These varied topics illustrate how common themes can be found in how Victorian philanthropists and administrators responded to those under their care. Often character, morality and the chance to be restored to productivity and usefulness overrode medical need and this both influenced and reflected wider societal views of impairment and inability. -- .

At least one in seven people are thought to be neurodivergent. So what exactly is neurodiversity? What does 'executive functioning' mean? What are 'spiky profiles'? In this simple guide, expert speaker and trainer Daniel Aherne provides a clear introduction to neurodiversity and the four most common neurodivergent identities of autism, ADHD, dyslexia and dyspraxia. Using an analogy of a cactus needing a desert to grow in, he emphasises the importance of getting the environment right for neurodivergent people, rather than expecting them to adapt to the neurotypical world. Daniel, who himself has ADHD, also explains how neurodivergent people often have great strengths alongside areas of difficulty, and writes about the interplay between diagnoses, as well as unpacking tricky concepts such as working memory, sensory processing, communication differences and more. Busting common misconceptions and setting out simple tips and guidance for supporting the neurodivergent people around you, whether among your family, friends or at your school, college or workplace - or if you yourself are ND and want to improve the understanding of others - this essential guide will help us all celebrate neurodiversity and foster more inclusive communities.

Everyone can learn new or more effective coping skills and strategies to deal with times of loss, crisis, and disability. Being aware of possible options or of how others fare in coping with difficult situations is better than groping in the dark. It is hoped that the real life experiences and coping skills presented here will help others in dealing with similar issues and challenges.

This first person account of a clinical psychologist's work is a guide to the use of cognitive techniques with seriously mentally ill clients. Although it is written in nontechnical language accessible to the beginning therapist, it includes enough detailed material about the unusual thinking of seriously ill clients to expand the repertoire of the experienced therapist as well. It covers a wide range of possible applications--from individual sessions to alleviate the desperation of hospitalized patients, to the development of group preventive workshops and psychoeducational tools using interactive media.

This innovative and adventurous work, now in paperback, uses broadly feminist and postmodernist modes of analysis to explore what motivates damaging attitudes and practices towards disability. The book argues for the significance of the psycho-social imaginary and suggests a way forward in disability's queering of normative paradigms.

This book describes the course of social and emotional development in children and adults with mental retardation. Based on empirical research exploring the effect of cognitive delays and socialization for incompetence on normal developmental milestones, the text is supplemented and enriched by the reflections of individuals with mental retardation. Castles begins with an overview of social and emotional development in intellectually normal persons and a discussion of how this process is affected by the experience of mental retardation. Subsequent chapters deal with changing relationships between persons with retardation and their families throughout their lifespans; friendships and social skills; self-esteem, coping skills, and stigmas; and major issues of adult life such as work, sexuality, marriage, and parenthood. This book will be useful to educators, mental health professionals, vocational counselors, and the families of persons with developmental disabilities. Chapters include specific recommendations for how professionals and family members might help to improve the social and emotional functioning of individuals with mental retardation. The final section of the book focuses on mental health concerns, describing the nature and causes of emotional disturbance in persons with mental retardation and outlining resources for intervention and treatment. This book will be invaluable to educators, mental health profesionals, vocational counselors, and the families of persons with developmental disabilities.

This book brings together scholars from a variety of disciplines to address critical perspectives on Chinese language social media, internationalizing the state of social media studies beyond the Anglophone paradigm. The collection focuses on the intersections between Chinese language social media and disability, celebrity, sexuality, interpersonal communication, charity, diaspora, public health, political activism and non-governmental organisations (NGOs). The book is not only rich in its theoretical perspectives but also in its methodologies. Contributors use both qualitative and quantitative methods to study Chinese social media and its social-cultural-political implications, such as case studies, in-depth interviews, participatory observations, discourse analysis, content analysis and data mining.

Inspired by the author's personal experience of sustaining acquired brain injury (ABI), this path-breaking book explores the (re)construction of identity after ABI. It offers a way of understanding ABI through a social scientific lens, promoting an understanding that is generated through close engagement with the lives and experiences of ABI survivors. The author follows the everyday experiences of six male survivors and critically investigates their identity (re)construction after their ABI. As well as demonstrating identity (re)construction after ABI, the experiences of the participants allow the reader to investigate neurological rehabilitation from their perspective. This book suggests that rehabilitation after ABI is often a continual process that extends beyond the formal, medically prescribed period. It also shows that identity after ABI is often (re)constructed in an unpredictable way; a way that emphasises the importance of reciprocal support and the uncertainty of future life. A Sociological Approach to Acquired Brain Injury and Identity is essential reading for academics and students from a range of social scientific disciplines with an interest in biographical or ethnographic research methods. This book offers a social scientific view of rehabilitation and as such is also essential reading for academics, students and professionals with an interest in health and illness, particularly neurological rehabilitation and brain injury rehabilitation.

One of the perennial political/philosophical questions concerns whether it is ever justifiable for a third party to paternalistically restrict an adult's freedom to ensure their own, or society's, best interests are protected. Wherever one stands on this debate it remains the case that, unlike their non-impaired contemporaries, many intellectually disabled adults are subjected to a paternalistic regime of care. This is particularly the case regarding members of this population exercising more control of their sexuality. Utilizing rare empirical data, Foucault's theory of power and Kristeva's concept of abjection, this work shows that many non-disabled people - including family members - hold ambivalent attitudes towards people with visible disabilities expressing their sexuality. Through a careful examination of the autonomy/paternalism debate this is the first book to provide an original, provocative and philosophically compelling analysis to argue that where necessary, facilitated sex with prostitutes should be included as part of a new regime of care to ensure that sexual needs are met. Intellectual Disability and the Right to a Sexual Life is essential reading for scholars, students and policy-makers with an interest in philosophy, sociology, political theory, social work, disability studies and sex studies. It will also be of interest to anybody who is a parent or a sibling of an adult with an intellectual disability and those with an interest in human rights and disability more generally.

This book contains a series of articles, written by international experts in the fields of intellectual disability and quality of life, that explore a broad range of issues that impact on the quality of life of people with intellectual disabilities and their families. The book commences with a general discussion on defining quality of life and family quality of life and the appropriateness of using these constructs in the field of intellectual disability, and is followed by an analysis on the effects of living arrangements and employment on quality of life. The book concludes with discussions on the unique issues facing children with intellectual disabilities and people living in developing countries and the effect these issues have upon their quality of life.

Within the past two decades, dramatic advances in medical technology have led to a complete restructuring of medical care services for pregnant women and their newborns. Regionalization provides a full accountant of this new system known as regionalized perinatal care. Perinatologists, epidemiologists, public health administrators, and anyone involved with maternal-child care will find in this book, practical answers to their questions.

The editors of this remarkable volume have collected 18 essays by humanists about Acquired Immune Deficiency Syndrome. AIDS seems to seek out as its victims the weakest and already victimized, writes Albert R. Jonsen, describing the inhumanity of this disease. Jonsen states that scientists have already fashioned a language for describing the disease in objective, clinical terms. What is needed now is a language to describe the human experience and instruct us on how to live humanely while AIDS is among us. To help construct this language, this collection examines AIDS from the perspective of the humanities: History can recall past experience for our instruction, Philosophy can define terms such as welfare, freedom, health, and disease, that guide our discourse, and Literature can reveal the images that shape the social reality of AIDS. Editors Eric T. Juengst and Barbara Koenig begin this study by delineating six interpretations of AIDS. Their aim is to demonstrate the many ways in which AIDS is viewed by society. The book is then divided into three parts. Part One examines how our current knowledge of AIDS was generated and how this knowledge is interpreted. Part Two explores the meaning of AIDS for health professionals and the ethical issues it can raise. Part Three examines public policy and AIDS. The contributors clarify and correct definitions, recall analogous incidents in our history and draw values and principles out of the obscurity of emotions and into the light of reason. divided into three parts. Part One examines the current knowledge of AIDS and how this knowledge is interpreted. Part Two explores the meaning and perceptions of AIDS in the medical community. Part Three examines public policy and AIDS. The contributors clarify and correct definitions, recall analogous incidents in our history and draw values and principles out of the obscurity of emotion and into the light of reason.

'Patricia Lockwood is the voice of a generation' Namita Gokhale 'A masterpiece' Guardian 'I really admire and love this book' Sally Rooney 'An intellectual and emotional rollercoaster' Daily Mail 'I can't remember the last time I laughed so much reading a book' David Sedaris 'A rare wonder . . . I was left in bits' Douglas Stuart * WINNER OF THE DYLAN THOMAS PRIZE 2022 * * SHORTLISTED FOR THE BOOKER PRIZE 2021 * * SHORTLISTED FOR THE WOMEN'S PRIZE FOR FICTION 2021 * * A BBC BETWEEN THE COVERS BOOK CLUB PICK * ______________________________________________ This is a story about a life lived in two halves. It's about what happens when real life collides with the increasing absurdity of a world accessed through a screen. It's about living in world that contains both an abundance of proof that there is goodness, empathy, and justice in the universe, and a deluge of evidence to the contrary. It's a meditation on love, language and human connection from one of the most original voices of our time. ______________________________________________ 'An utterly distinctive mixture of depth, dazzling linguistic richness, anarchic wit and raw emotional candour' Rowan Williams A 2021 Book of the Year: Sunday Times, Guardian, Daily Mail, Telegraph, Evening Standard, The Times, New Statesman, Red, Observer, Independent, Daily Telegraph

This book traces the development of paid work for visually impaired people in the UK from the 18th century to the present day. It gives a voice to visually impaired people to talk about their working lives and documents the history of employment from their experience, an approach which is severely lacking in the current literature about visual impairment and employment. By analysing fifty in-depth face-to-face interviews with visually impaired people talking about their working lives (featuring those who have worked in traditional jobs such as telephony, physiotherapy and piano tuning, to those who have pursued more unusual occupations and professions), and grouping them according to occupation and framed by documentary, historical research, these stories can be situated in their broader political, economic, ideological and cultural contexts. The themes that emerge will help to inform present day policy and practice within a context of high unemployment amongst visually impaired people of working age. It is part of a growing literature which gives voice to disabled people about their own lives and which adds to the growing academic discipline of disability studies and the empowerment of disabled people.

How do students with learning disabilities or emotional and behavioral disorders fare in adulthood? Are their rates of employment, graduation from post-secondary schools, living independently similar to their non-disabled peers? What can schools and communities do to teach and support youth and young adults with learning disabilities or emotional and behavioral disorders? This Transition of Youth and Young Adult volume presents eminent scholars discussing critical and timely topics related to the transition of youth and young adults with learning disabilities and emotional and behavioral disorders and provides a comprehensive selection of chapters that address variables, issues, practices, and outcomes related to the broad topic of transition.

This is the first book to challenge the concept of paid work for disabled people as a means to 'independence' and 'self determination'. Recent attempts in many countries to increase the employment rates of disabled people have actually led to an erosion of financial support for many workless disabled people and their increasing stigmatisation as 'scroungers'. Led by the disability movement's concern with the employment choices faced by disabled people, this controversial book uses sociological and philosophical approaches, as well as international examples, to critically engage with possible alternatives to paid work. Essential reading for students, practitioners, activists and anyone interested in relationships between work, welfare and disability.

Disability Servitude traces the history and legacy of institutional peonage. For over a century, public and private institutions across the country relied on the unpaid, forced labor of their residents and patients in order to operate. This book describes the work they performed, in some cases for ten or more hours a day, seven days a week, and the lawsuits they brought in an effort to get paid. The impact of those lawsuits included accelerated de-institutionalization, but they fell short of obtaining equal and fair compensation for their plaintiffs. Instead, thousands of resident and patient-workers were replaced by non-disabled employees. Disability Servitude includes a detailed history of longstanding problems with the oversight of the sub-minimum wage provision in the Fair Labor Standards Act oversight. Beckwith shows how that history has resulted in the continued segregation and exploitation of over 400,000 workers with disabilities in sheltered workshops that legally pay far less than minimum wage.

This book recounts the dramatic story of the transformation of the Iowa Commission for the Blind from a verifiably ineffective service agency to perhaps the most outstanding and effective adult service program in the nation in the span of 10 short years. What happened in Iowa was revolutionary, and the character of work with the blind in America and around the world was altered forever - the alternative civil rights - based service model worked. Using Kenneth Jernigan's own writings of Board meeting minutes, reports, and letters, I present the details of the remarkable story from an activist's point of view.

This NIH-supported study of HIV's physical and psychosocial impacts offers both practical and inspiring accounts of how individuals living with HIV respond and cope with the disease and its progressive stages and impacts. The longitudinal approach of the research and the rich resources offered by extensive interviews with the persons with HIV and those closest to them avail the reader of insights and responses that should improve others' coping and caring abilities.

The author's professional experience and extensive research informs the work throughout and fashions a remarkable and moving synthesis of the themes that will help those living with AIDS as well as all who relate to them. From the first awareness of infection to coping with bereavement, this book honestly, sensitively, and substantively addresses the essential concerns that any and all who are touched by the HIV pandemic must reflect on.

Originally published between 1973 and 1990, this collection reissues twelve books that focus on the lives of children with mental and physical disabilities. Together, the books reflect research being done in the period and look at the challenges individuals, families, and professionals faced at that time. Topics covered include caring for children with disabilities, inclusion, and coping with particular disabilities.

Nowadays networks, microprocessors, memory chips, smart sensors and actuators are faster, cheaper and smaller than ever. They are becoming available anywhere, anytime. Current advances in such enabling technologies let foresee novel applications and services for improving the life of elderly and disabled people in their home and outside. These conference proceedings present the latest approaches and technical solutions in the area of smart homes, health telematics, and enabling technologies. The first chapter delves into the user perspective to ascertain real needs and design truly useful services. The following chapter explores the enabling technology. Distributed sensors, smart devices and networks appear as the nuts and bolts compulsory to build up smart homes. Chapter three looks at the realization of smart homes. Pervasive computing is emerging as one of the key approaches to organize computations within smart homes. The fourth chapter addresses the issue of using smart home features to design and deliver smart care services to persons with disabilities and elderly people. Finally Chapter five outlines standardization efforts and practical and industrial experiences.I COST aims at creating an active research community dedicated to explore how smart homes in particular and health telematics in general can foster independent living and an enhanced life style for elderly and disabled people. On the one hand, smart homes are augmented environments with embedded computers, information appliances and multi-modal sensors allowing people to perform tasks efficiently by offering unprecedented levels of access to information and assistance from computer. On the other hand, health telematics makes the most of networks and telecommunications to propose health services, expertise and information at distance.