The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies-scholarship that spans the social sciences and humanities-and gives serious consideration to the history of disability activism.

Under the Americans with Disabilities Act, organizations that fail to provide reasonable accommodations to employees with mental disabilities may be subject to penalties and punitive damages. The Act does not, however, provide useful guidelines to help organizations comply--a gap that Dr. Fielder's book now fills. This manual shows that compliance is not difficult or expensive. In clear, concise language, it acquaints management with mental diagnoses, impairments, disabilities, the myths of mental illness and its affect on job performance, and provides samples of workplace accommodations and compliance plans. Practical and readable, the book is intended for management of organizations with 15 or more employees, their human resource staffs and employee assistance professionals, and legal counsel.

Amit Patel is working as a trauma doctor when a rare condition causes him to lose his sight within thirty-six hours. Totally dependent on others and terrified of stepping outside with a white cane after he's assaulted, he hits rock bottom. He refuses to leave home on his own for three months. With the support of his wife Seema he slowly adapts to his new situation, but how could life ever be the way it was? Then his guide dog Kika comes along . . .

But Kika’s stubbornness almost puts her guide dog training in jeopardy – could her quirky personality be a perfect match for someone? Meanwhile Amit has reservations – can he trust a dog with his safety? Paired together in 2015, they start on a journey, learning to trust each other before taking to the streets of London and beyond. The partnership not only gives Amit a renewed lease of life but a new best friend. Then, after a video of an irate commuter rudely asking Amit to step aside on an escalator goes viral, he sets out with Kika by his side to spread a message of positivity and inclusivity, showing that nothing will hold them back.

From the challenges of travelling when blind to becoming a parent for the first time, Kika & Me is the moving, heart-warming and inspirational story of Amit’s sight-loss journey and how one guide dog changed his world.

Brantlinger discusses the current medical and legal trends in sterilization with special emphasis on people with disabilities. She explores the issues surrounding sterilization decisions from the perspectives of judges, lawyers, social workers, doctors, family planners, as well as the families and individuals themselves. Woven throughout the book are case studies of individuals ranging from mild to severe retardation.

Brantlinger discusses the current medical and legal trends in sterilization with special emphasis on people with disabilities. She explores the issues surrounding sterilization decisions from the perspectives of judges, lawyers, social workers, doctors, family planners, as well as the families and individuals themselves.

Woven throughout the book are case studies of individuals ranging from mild to severe retardation. She illustrates how ethical issues related to sterilization are framed and which moral values are called upon during decision-making. She ends with guidelines for decision-making. As the most comprehensive and up-to-date work on the subject, this book will be invaluable to professionals in the social services and mental health fields as well as researchers in law, special education, social work, and public health. Individuals confronting these concerns will find the volume instructive as well.

This edited volume foregrounds Disability Critical Race Theory (DisCrit) as an intersectional framework that has informed scholarly analyses of racism and ableism from the personal to the global-offering important interventions into theory, practice, policy, and research. The authors offer deep personal explorations, innovative interventions aimed at transforming schools, communities, and research practices, and expansive engagements and global conversations around what it means for theory to travel beyond its original borders or concerns. The chapters in this book use DisCrit as a springboard for further thinking, illustrating its role in fostering transgressive, equity-based, and action-oriented scholarship. This book was originally published as a special issue of the journal, Race Ethnicity and Education.

Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and 'others', including dyslexics, autistics and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field - neurodiversity studies - will be of interest to people working in all these areas.

A unique manual for managers in health care facilities, this volume contains model policies and procedures found through experience to be useful in helping managers manage their work force while at the same time enhancing the employee relations atmosphere. The policies and procedures are designed so that they can be incorporated into company personnel policy manuals as is or modified and adapted to meet the needs of individual organizations. Included are guidelines for promoting fairness and consistency, as well as those aimed at enhancing employee morale and effectiveness. Throughout, the authors have written the manual with a view toward preventing potential legal problems before they begin.

The volume begins with a section explaining how to use the various sections of the manual, how to customize where necessary to reflect organizational goals, how to develop an employee handbook, and how to add additional information such as organization history and structure. There follow comprehensive sections that deal with virtually every aspect of employment policies, wages and overtime, benefits policies, the employee and his or her job, employee conduct, and safety and security. Included are policies to deal with such increasingly difficult problems as drugs and alcohol abuse, sexual harassment and discrimination, terminations and layoffs, insurance, and employment of minors as well as basic employment policies ranging from recruitment and hiring to vacations and sick leaves.

Increase your awareness of the concerns facing the black disabled community! Disability and the Black Community addresses physical, mental, and learning disabilities experienced across age, gender, and ethics groups by the black race in the United States. This unique book works to increase understanding and awareness of those working with the disabled by mobilizing advocates, providing alternatives for successful intervention and planning, and encouraging research in disability and rehabilitation. A distinguished panel of researchers and practitioners provide commentary on topics that include selected physical disabilities, disabled children learning and program concerns, welfare reform, public housing issues, domestic violence, and disability curriculum contentall in accordance with the broadening of the definition of disability as supported by the American Disabilities Act. Disability and the Black Community raises the level of understanding and awareness of the complex and diverse concerns facing the disabled and their families in the community and the workplace. The book is at once motivational, influential, and empowering, examining social and political issues that compound the ordeals confronting the black disabled. Topics addressed include: learning disabilities, academic achievements, and mental health issues of children health disparities and access to care welfare reform, disability, and race practice, program, and curriculum models and much more! Disability and the Black Community is an essential resource for health professionals and advocates who work with the black disabled. The book keeps practitioners up to date on what is needed in terms of funding, facilities, and resources in order to keep the larger society and significant resource systems appraised of the needs of the disabled.

This is a comparative analysis of the micro and macro characteristics of self-help organizations of people with disabilities (SHOPs) in seven selected countries and territories in Asia, namely China Mainland, Hong Kong, Japan, the Philippines, Taiwan, Thailand, and Vietnam. Since the 1980s, SHOPs have prospered in this region and were given a major role in the United Nations' forum and the International Year of Disabled Persons in 1981. The analysis shows the differences among the SHOPs in terms of the complexity of their structure, government's affirmative policy, legislation, and leadership qualities. These differences are due to the complex interplay among factors at local, national, and international levels.

SHOPs in this region present a rather homogenous perception in their organization, leadership, social inclusion, and globalization, despite the marked differences in their societies. SHOPs tends to be domocratic and consensual in nature, and led by elected members with assistance from paid professional and clerical support. The self-help organizations are positively regarded in these countries.

This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people's quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. 'Quality of life' is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery - for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good 'quality of life' and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.

How can families of children with disabilities plan for lasting financial security at every stage of life? Find clear answers in The Special Needs Planning Guide, a step-by-step companion for parents as they progress through the complexities of planning for the future of their family and their child. Written by two financial planning experts who are also a parent and a sibling of a person with disabilities, and including contributions from a nationally recognized advocate, this bestselling how-to guide is now in its second edition. Revised, reorganized, and carefully updated to reflect current law, this book gives families the real-world advice, strategies, and actions needed to plan for both their future and the well-being and security of their child. With clarity and compassion, the authors guide families in addressing five critical factors involved in special needs planning- family and support, emotional, financial, legal, and government benefits factors-at every stage of their child's life, from birth through adulthood. Throughout the book, readers will learn from the stories and advice of other caregivers, get helpful planning pointers and key questions to answer, and take action with the chapter lists of Next Steps. To help families customize the information in this book for their specific needs, this new edition also offers a complete package of online resources, including a fillable Special Needs Planning Timeline, easy-to-use financial planning worksheets, and an in-depth Letter of Intent template families can use to map out their vision for their child's life. Informed by decades of personal and professional experience, this reader-friendly guidebook will help families educate themselves about financial planning, create a complete action plan for their future, and provide the knowledge and the tools they need to work toward a secure and full life for their child. WHAT'S NEW: Fully revised chapters and online resources A 10-step process that breaks complex planning into manageable tasks Letter of Intent now available as a fillable PDF Excel worksheets for easy planning New chapters on Foundational Financial Strategies and Tools, and Advanced Strategies and Special Circumstances Helpful information on ABLE accounts, housing options, and military Survivor Benefit Plans New planning tips, pointers, and case stories Guidance on creating a Team to Carry On beyond the parents' lifetimes SELECTED TOPICS COVERED: special needs trusts funding * trustee selection * insurance strategies * investment guidance * estate planning * legal settlements * government benefits, such as SSI, SSDI, and housing benefits * goal-setting * advocacy * hiring financial and legal professionals * sibling considerations * contributions of extended support networks * retirement plans * guardianship and less restrictive alternatives

People with intellectual disability often experience challenges in their lives. These may be due to difficulties in social adaptation, but may also be related to a reality of disempowerment whereby they have little role in the decisions central to their lives or in the provision of health, educational and social services. This book argues for alternative and innovative approaches to leadership in intellectual disability service provision. It does this in the light of service scandals including Winterborne View (UK), Oswald D. Heck (USA), Aras Attracta (Ireland) and many others. This book also explores the failed leadership issues underpinning such debacles and then examines how the context for intellectual disability service provision has changed. The authors propose alternative models for service leadership that are contiguous with the changed landscape, emphasizing participatory models of leadership and ending with exemplary vignettes outlining situations where such innovative change is happening.

Universal Design is Selwyn Goldsmith's new authoritative design manual, the successor to his internationally acclaimed Designing for the Disabled. A clear and concise design guide for practising and student architects, it describes and illustrates the differences there are between universal design and 'for the disabled' design Universal Design presents detailed design guidance for architects in an easily referenced form. Covering both public buildings and private housing, it includes informative anthropometric data, along with illustrative examples of the planning of circulation spaces, sanitary facilities, car parking spaces and seating spaces for wheelchair users in cinemas and theatres. It is a valuable manual in enhancing understanding of the basic principles of 'universal design'.The aim - to encourage architects to extend the parameters of normal provision, by looking to go beyond the prescribed minimum design standards of the Part M building regulation, Access and facilities for disabled people.

"This book explores the possibilities and limitations re-theorizing disability using historical materialism in the interdisciplinary contexts of social theory, cultural studies, social and education policy, feminist ethics, and theories of citizenship"--

Winner of the 2016 ICQI Outstanding Qualitative Book Award Acclaimed qualitative scholar Jane Speedy's world was upended completely after suffering a severe stroke when only in her late 50s. After returning home from the hospital, Speedy took to her iPad to write and draw as a way of making sense of her experience and to aid her recovery. The stunning, fragmented, poetic text and images comprising Staring at the Park depict the events of this difficult journey. It provides an alternative model of engaging the self in a research project in an evocative and artistic way. This highly original book: -uses the seemingly ordinary motif of the park opposite the author's house as the catalyst for a wildly creative autoethnography;-includes three narratives of the author's experience of staring at the park-an imagined murder mystery in the park, a realist ethnography of the park, and the life story (both imagined and real) of her facing her illness and recovery; -offers readers a poetic and performative inquiry into the author's new reality.

Three important issues have recently attracted researchers to study the economics of disability. First with the availability of sophisticated "data sets," it has become possible to conduct highly quantative investigations of the relative economic impacts of various types of disabling health problems. Second, the passage of the Americans with Disabilities Act in 1991, and the subsequent implementation of its employment provisions, focused national attention on the continuing scarcity of employment opportunities for disabled persons. The tools of analysis that have been developed over the past several decades to study racial and gender discrimination in labor markets are applied in this book to study the experiences of persons with disabilities. Third, the past several decades have witnessed a rapid growth in the public and private costs of disability support programs. Many economists recognize the need to design such programs that would provide continued economic security, without the work disincentives, high budgetary costs, and efficiency losses of existing programs.

A major purpose of this volume is to bring together empirical studies dealing with all three of the above issues in a single volume. By doing this we can illustrate the breadth of current research in the field and allow the reader to see the connections and common threads that underlie this scope of concerns and research objectives.

Examines current theories and practices relating to disability in 1999. The focus of the work is not disabled people as "objects" of study but rather an analysis of disability as it has been historically and culturally constructed. The chapters cover: language and discourse; the Disabled People's Movement; the "disability" professions; public policy; unconscious investments and interpersonal relationships; knowledge and the politics of disability. The text should be of value to students on the growing number of Disability Studies courses, as well as students, policy-makers and professionals in social policy, social work and nursing.

Deborah Marks examines current theories and practices relating to disability. The focus of the work is not disabled people as 'objects' of study but rather an analysis of disability as it has been historically and culturally constructed and psychically experienced.
The chapters cover:
* language and discourse
* the disabled people's movement
* the 'disability' professions
* public policy
* unconscious investments and interpersonal relationships
* knowledge and the politics of disability.
This text will be essential reading for students on the 0415115175mber of Disability Studies courses, as well as students, policy-makers and professionals in social policy, social work, cultural studies and nursing.

The rubric "Quality of Life" first came to the explicit attention of the medical profession a little over thirty years ago. Despite the undoubted fact that each one of us has his or her own Quality of Life, be it good or bad, there is still no general agreement about its definition, or the manner in which it should be evaluated. Although much has been written about quality of life, this work has been largely concerned with population-based studies, especially in health policy and health economics. The importance of "individual" quality of life has been neglected, in part because of a failure to define quality of life itself with sufficient care, in part perhaps because of a belief that it is impossible to develop a meaningful method of measuring individual variables.
The editors of this book believe that the primary focus of quality of life is and must continue to be the individual, who alone can define it and assess its changing personal significance. The challenge of presenting this belief

Jennifer Arnold and Bill Klein have faced some big challenges in their lives. On the way to becoming a preeminent neonatologist and a successful entrepreneur, as well as parents and television stars, these two have faced prejudice, medical scares, and the uncertainty and daily pressures of life with special needs children. Now they share their wisdom and encouragement with everyone who is facing their own challenges. Drawn from their most popular speaking presentation, Think Big is the inspirational guide for dreaming big, setting goals, and taking the steps to get there. Each section includes heartwarming anecdotes full of grace, humor, and wit plus a never-before-seen look inside their personal and professional lives. They have plenty of stories to tell and their unique approach to encountering life's greatest difficulties will inspire a call to action in all of us.

Please note: this book was originally published as Effervescence: A True-Life Tale of Autism and of Courage Please visit Simone's website to view more information, as well as TV and radio appearances: autismembrace.com or effervescentclarity.com An excerpt from Autism: Hot Pink and Zebra-Striped:

Imagine a beautiful little girl, with long curly, wild red hair, spinning in circles, completely delighted by all that she feels She wears a long, blue dress, a replica of the one Cinderella wore to the ball. As you watch her, you get the sense that she isn't dreaming of Cinderella; in her heart and in her body, she is Cinderella.

Now picture the same little girl, lying on her tummy, spinning on a merry-go-round, dipping her beautiful, long red hair in the puddle of mud that encircles the merry-go-round. When it comes to a stop, she savors the wonderful sensation of the cold mud running down her face. She then submerges her entire body in the puddle, as happy as can be and entirely oblivious to the stares of the people around her.

Now picture that same little girl, in her comfortable home, surrounded by a family who love and adore her. Her mom asks a simple question, like: "Sweetie, what kind of cereal would you like?" Instantly, her beautiful face is filled with intense emotion and she screams, more like a wild animal than a child, for five minutes, or it may continue for two hours. The only thing that might interrupt the screaming is her stopping, occasionally, to frantically bite her wrist, hard enough to leave teeth marks.

Would it surprise you to learn that I have just described a high-functioning autistic child?

Now take a peek at the same child at age twelve, entering her classroom each day. Her teacher marvels to herself, as she watches this young girl navigate skillfully, smoothly and seemingly naturally throughout the classroom. Had the teacher not known her student's history of autism, she likely would never have guessed. In her own words, the only time this teacher is aware of the child's autism, is when she reads the amazing stories and illustrations created by this extraordinary girl. She would then muse to herself: "There is no way a "typical" grade-seven student could write and draw like this "

Do you get the feeling that an amazing transformation has taken place? Is the child no longer autistic? Has she grown out of it? Has she learned through behavior management to "manage" it? Was she just "a little bit autistic" and now she's "better?" There is no simple answer; autism is far too complex and diverse a disorder for it to be addressed so simply. But it is a fascinating disorder and this child's life has been an incredible journey Her name is Genevieve.

To the British soldiers of the Great War who heard about it, "shell shock" was uncanny, amusing, and sad. To those who experienced it, the condition was shameful, unjustly stigmatized, and life-changing. The first full-length study of the British "shell shocked" soldiers of the Great War combines social and medical history to investigate the experience of psychological casualties on the Western Front, in hospitals, and through their postwar lives. It also investigates the condition's origin and consequences within British culture.

Cutting across a disciplinary divide, Sociologies of Disability critically reviews and compares the conflicting perspectives on disability and chronic illness found in disability studies and medical sociology. Thomas carefully outlines the historical development of both these approaches, providing readers with a solid understanding of the overlaps and divergences between the two fields. With a fresh interpretation of theoretical traditions in medical sociology, and an informed commentary on major debates in disability studies, this original text is necessary reading for all students of medical sociology and disability studies.

- Coverage of deaf people and cognition, neuroscience, bimodal/bilingualism, and education technology - Strong multicultural focus - Case studies from authors' clinical and educational practices - Three deaf and one hearing author-a deaf/hearing bilingual team