This is a comparative analysis of the micro and macro characteristics of self-help organizations of people with disabilities (SHOPs) in seven selected countries and territories in Asia, namely China Mainland, Hong Kong, Japan, the Philippines, Taiwan, Thailand, and Vietnam. Since the 1980s, SHOPs have prospered in this region and were given a major role in the United Nations' forum and the International Year of Disabled Persons in 1981. The analysis shows the differences among the SHOPs in terms of the complexity of their structure, government's affirmative policy, legislation, and leadership qualities. These differences are due to the complex interplay among factors at local, national, and international levels.

SHOPs in this region present a rather homogenous perception in their organization, leadership, social inclusion, and globalization, despite the marked differences in their societies. SHOPs tends to be domocratic and consensual in nature, and led by elected members with assistance from paid professional and clerical support. The self-help organizations are positively regarded in these countries.

This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people's quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. 'Quality of life' is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery - for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good 'quality of life' and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.

Long Lives Are for the Rich is the title of a silent ominous program that affects the lives of millions of people. In all developed countries disadvantaged and, especially, poor people die much earlier than the most advantaged. During these shorter lives they suffer ten to twenty years longer from disabilities or chronic disease. This does not happen accidentally: health inequalities – including those between healthy and unhealthy life styles – are mainly caused by social inequalities that are reproduced over the life course. This crucial function of the life course has become painfully visible during its neoliberal reorganization since the early 1980s. Studies about aging over the life course, from birth to death, show the inhumane consequences as people get older. In spite of the enormous wealth that has been piled up in the US for a dwindling percentage of the population, there has been growing public indifference about the needs of those in jobs with low pay and high stress, but also about citizens from a broad middle class who can hardly afford high quality education or healthcare. However, this ominous program affects all: recent mortality rates show that all Americans, including the rich, are unhealthier and dying earlier than citizens of other developed countries. Moreover, the underlying social inequalities are tearing the population apart with nasty consequences for all citizens, including the rich. Although the public awareness of the consequences has been growing, neoliberal policies remain tempting for the economic and political elites of the developed world because of the enormous wealth that is flowing to the top. All this poses urgent questions of social justice. Unfortunately, the predominant studies of social justice along the life course help to reproduce these inequalities by neglecting them. This book analyzes the main dynamics of social inequality over the life course and proposes a theory of social justice that sketches a way forward for a country that is willing to invest in its greatest resource: the creative potential of its population.

Universal Design is Selwyn Goldsmith's new authoritative design manual, the successor to his internationally acclaimed Designing for the Disabled. A clear and concise design guide for practising and student architects, it describes and illustrates the differences there are between universal design and 'for the disabled' design Universal Design presents detailed design guidance for architects in an easily referenced form. Covering both public buildings and private housing, it includes informative anthropometric data, along with illustrative examples of the planning of circulation spaces, sanitary facilities, car parking spaces and seating spaces for wheelchair users in cinemas and theatres. It is a valuable manual in enhancing understanding of the basic principles of 'universal design'.The aim - to encourage architects to extend the parameters of normal provision, by looking to go beyond the prescribed minimum design standards of the Part M building regulation, Access and facilities for disabled people.

"This book explores the possibilities and limitations re-theorizing disability using historical materialism in the interdisciplinary contexts of social theory, cultural studies, social and education policy, feminist ethics, and theories of citizenship"--

Three important issues have recently attracted researchers to study the economics of disability. First with the availability of sophisticated "data sets," it has become possible to conduct highly quantative investigations of the relative economic impacts of various types of disabling health problems. Second, the passage of the Americans with Disabilities Act in 1991, and the subsequent implementation of its employment provisions, focused national attention on the continuing scarcity of employment opportunities for disabled persons. The tools of analysis that have been developed over the past several decades to study racial and gender discrimination in labor markets are applied in this book to study the experiences of persons with disabilities. Third, the past several decades have witnessed a rapid growth in the public and private costs of disability support programs. Many economists recognize the need to design such programs that would provide continued economic security, without the work disincentives, high budgetary costs, and efficiency losses of existing programs.

A major purpose of this volume is to bring together empirical studies dealing with all three of the above issues in a single volume. By doing this we can illustrate the breadth of current research in the field and allow the reader to see the connections and common threads that underlie this scope of concerns and research objectives.

Examines current theories and practices relating to disability in 1999. The focus of the work is not disabled people as "objects" of study but rather an analysis of disability as it has been historically and culturally constructed. The chapters cover: language and discourse; the Disabled People's Movement; the "disability" professions; public policy; unconscious investments and interpersonal relationships; knowledge and the politics of disability. The text should be of value to students on the growing number of Disability Studies courses, as well as students, policy-makers and professionals in social policy, social work and nursing.

Eliza Fricker gets it. Describing her perfectly imperfect experience of raising a PDA child, with societal judgements and internal pressures, it is easy to feel overwhelmed, resentful and alone. This book's comedic illustrations explain these challenging situations and feelings in a way that words simply cannot, will bring some much-needed levity back into PDA parenting. Humorous anecdotes with a compassionate tone remind parents that they are not alone, and they're doing a great job. If children are safe, happy, and you leave the house on time, who cares about some smelly socks? A light-hearted and digestible guide to being a PDA parent covering everything from tolerance levels, relationships and meltdowns to collaboration, flexibility, and self care to dip in and out as your schedule allows to help get to grips with this complex condition. This book is an essential read for any parent with a PDA child, to help better understand your child, build support systems and carve out some essential self care time guilt free.

The rubric "Quality of Life" first came to the explicit attention of the medical profession a little over thirty years ago. Despite the undoubted fact that each one of us has his or her own Quality of Life, be it good or bad, there is still no general agreement about its definition, or the manner in which it should be evaluated. Although much has been written about quality of life, this work has been largely concerned with population-based studies, especially in health policy and health economics. The importance of "individual" quality of life has been neglected, in part because of a failure to define quality of life itself with sufficient care, in part perhaps because of a belief that it is impossible to develop a meaningful method of measuring individual variables.
The editors of this book believe that the primary focus of quality of life is and must continue to be the individual, who alone can define it and assess its changing personal significance. The challenge of presenting this belief

Deborah Marks examines current theories and practices relating to disability. The focus of the work is not disabled people as 'objects' of study but rather an analysis of disability as it has been historically and culturally constructed and psychically experienced.
The chapters cover:
* language and discourse
* the disabled people's movement
* the 'disability' professions
* public policy
* unconscious investments and interpersonal relationships
* knowledge and the politics of disability.
This text will be essential reading for students on the 0415115175mber of Disability Studies courses, as well as students, policy-makers and professionals in social policy, social work, cultural studies and nursing.

Jennifer Arnold and Bill Klein have faced some big challenges in their lives. On the way to becoming a preeminent neonatologist and a successful entrepreneur, as well as parents and television stars, these two have faced prejudice, medical scares, and the uncertainty and daily pressures of life with special needs children. Now they share their wisdom and encouragement with everyone who is facing their own challenges. Drawn from their most popular speaking presentation, Think Big is the inspirational guide for dreaming big, setting goals, and taking the steps to get there. Each section includes heartwarming anecdotes full of grace, humor, and wit plus a never-before-seen look inside their personal and professional lives. They have plenty of stories to tell and their unique approach to encountering life's greatest difficulties will inspire a call to action in all of us.

Please note: this book was originally published as Effervescence: A True-Life Tale of Autism and of Courage Please visit Simone's website to view more information, as well as TV and radio appearances: autismembrace.com or effervescentclarity.com An excerpt from Autism: Hot Pink and Zebra-Striped:

Imagine a beautiful little girl, with long curly, wild red hair, spinning in circles, completely delighted by all that she feels She wears a long, blue dress, a replica of the one Cinderella wore to the ball. As you watch her, you get the sense that she isn't dreaming of Cinderella; in her heart and in her body, she is Cinderella.

Now picture the same little girl, lying on her tummy, spinning on a merry-go-round, dipping her beautiful, long red hair in the puddle of mud that encircles the merry-go-round. When it comes to a stop, she savors the wonderful sensation of the cold mud running down her face. She then submerges her entire body in the puddle, as happy as can be and entirely oblivious to the stares of the people around her.

Now picture that same little girl, in her comfortable home, surrounded by a family who love and adore her. Her mom asks a simple question, like: "Sweetie, what kind of cereal would you like?" Instantly, her beautiful face is filled with intense emotion and she screams, more like a wild animal than a child, for five minutes, or it may continue for two hours. The only thing that might interrupt the screaming is her stopping, occasionally, to frantically bite her wrist, hard enough to leave teeth marks.

Would it surprise you to learn that I have just described a high-functioning autistic child?

Now take a peek at the same child at age twelve, entering her classroom each day. Her teacher marvels to herself, as she watches this young girl navigate skillfully, smoothly and seemingly naturally throughout the classroom. Had the teacher not known her student's history of autism, she likely would never have guessed. In her own words, the only time this teacher is aware of the child's autism, is when she reads the amazing stories and illustrations created by this extraordinary girl. She would then muse to herself: "There is no way a "typical" grade-seven student could write and draw like this "

Do you get the feeling that an amazing transformation has taken place? Is the child no longer autistic? Has she grown out of it? Has she learned through behavior management to "manage" it? Was she just "a little bit autistic" and now she's "better?" There is no simple answer; autism is far too complex and diverse a disorder for it to be addressed so simply. But it is a fascinating disorder and this child's life has been an incredible journey Her name is Genevieve.

To the British soldiers of the Great War who heard about it, "shell shock" was uncanny, amusing, and sad. To those who experienced it, the condition was shameful, unjustly stigmatized, and life-changing. The first full-length study of the British "shell shocked" soldiers of the Great War combines social and medical history to investigate the experience of psychological casualties on the Western Front, in hospitals, and through their postwar lives. It also investigates the condition's origin and consequences within British culture.

Cutting across a disciplinary divide, Sociologies of Disability critically reviews and compares the conflicting perspectives on disability and chronic illness found in disability studies and medical sociology. Thomas carefully outlines the historical development of both these approaches, providing readers with a solid understanding of the overlaps and divergences between the two fields. With a fresh interpretation of theoretical traditions in medical sociology, and an informed commentary on major debates in disability studies, this original text is necessary reading for all students of medical sociology and disability studies.

Selwyn Goldsmith's Designing for the Disabled has, since it was first published in 1963, been a bible for practising architects around the world. Now, as a new book with a radical new vision, comes his Designing for the Disabled: The New Paradigm. Goldsmith's new paradigm is based on the concept of architectural disability. As a version of the social model of disability, it is not exclusively the property of physically disabled people. Others who are afflicted by it include women, since men customarily get proportionately four times as many amenities in public toilets as women - and women have to queue where men do not - and those with infants in pushchairs, because normal WC facilities are invariably too small to get a pushchair and infant into. To counter architectural disability, Goldsmith's line is that the axiom for legislation action has to be 'access for everyone' - it should not just be 'access for the disabled', as it presently is with the Part M building regulation and relevant provisions of the 1995 Disability Discrimination Act. In a 40-page annex to his book he sets out the terms that a new-style Part M regulation and its Approved Document might take, one that would cover alterations to existing buildings as well as new buildings. But architects and building control officers need not, he says, wait for new a legislation to apply new practical procedures to meet the requirements of the current Part M regulation; they can, as he advises, act positively now. This is a book which will oblige architects to rethink the methodology of designing for the disabled. It is a book that no practising architect, building control officer, local planning officer or access officer can afford to be without.

This book deals with the narrative discourse--specifically lifestories--of 16 patients suffering from Alzheimer's disease (AD). It attempts to understand the discourse of these patients in contextual terms. Thus far, the dominant explanation for "incoherence" in AD speech has been largely provided by research in psycholinguistics, much of which has understood AD speech in terms of the progressively deteriorating nature of the disease. This study provides a complementary view by examining ways in which some social factors--audiences, setting, and time--influence the extensiveness and meaningfulness of AD talk.
By offering both an examination of interactions across the data as well as analyzing particular cases in detail, this unusual study attempts to juxtapose some general insights regarding AD discourse with case-specific ones. Sociolinguistic analyses of the data demonstrate how certain audiences and particular settings set in motion discourse activities that either facilitate the patients' ability to recall their pasts or impede it. This analysis also includes a critical look at the researcher's contribution in negotiating and reinforcing these activities. Ethnographic details about the social worlds of some of these patients shed light on how larger social contexts at least indirectly contribute to exacerbating the patients' conditions or stabilizing them. The analyses of both context and language provides a more global understanding of the Alzheimer experience. This study also discusses some interactional strategies by which professionals can begin to engage AD patients in meaningful talk as well as ways by which they can better "hear" AD patients' cues at narrating. Throughout, this book underscores the need to factor in social factors when making assessments regarding AD patients' communicative abilities.

If you work with older adults who are developmentally disabled and are seeking ways to incorporate exercise, arts activities, and other activities into your program, this is the book for you! Older Adults With Developmental Disabilities and Leisure will help you improve your ability to instruct exercise and other fitness activities and, at the same time, increase your knowledge about aging and mental retardation and developmental disabilities. This combination of skills and knowledge is important to your understanding of your clients and their needs. You will assist them in leading a more active, structured life that will result in a higher sense of satisfaction in their daily living and health benefits that will speak for themselves.Older Adults With Developmental Disabilities and Leisure gives you specific guidelines for establishing fitness programs as well as ideas for offering clients goals and incentives that will evoke and maintain their enthusiasm to participate. Using a proven model, the Arts/Fitness Quality of Life Activities Program, the authors show how careful planning and sequencing can produce successful results, such as peer interaction, flexible thinking, self-expression, and improved mental health. As you learn about the key factors for programming for this group of clients, you will also learn about: the demographics of this population leisure education training and cross-training with aging specialists and mental retardation staff community integration and for whom it is appropriate inactivity in later life and the complications it causes life satisfaction and leisure participation differences in physical and cognitive functioning among this population consumer satisfaction among older adults with developmental disabilitiesIt is never too late to introduce leisure activities into the lives of those with developmental disabilities. With encouragement and careful guidance, you can lead your elders/clients into a more active and healthy life. Use Older Adults With Developmental Disabilities and Leisure as a guide to find activities and exercise programs that are appropriate, fun, and worthwhile!

CONTRIBUTIONS TO THE SOCIOLOGY OF LANGUAGE brings to students, researchers and practitioners in all of the social and language-related sciences carefully selected book-length publications dealing with sociolinguistic theory, methods, findings and applications. It approaches the study of language in society in its broadest sense, as a truly international and interdisciplinary field in which various approaches, theoretical and empirical, supplement and complement each other. The series invites the attention of linguists, language teachers of all interests, sociologists, political scientists, anthropologists, historians etc. to the development of the sociology of language.

This book reports on the second congress organised by TIDE (Technology Initiative for Disabled and Elderly People), a Community Programme dealing with subjects that were part of the European Union's Fourth Framework Programme of research technological development and demonstrations. The books covers three major areas: the R&D activities and the effectiveness of Assistive Technology products and services; dealing with selected factors of paramount importance for the harmonious progress of the AT market and related services in Europe, social, legal and economic factors, information and service delivery, industrial interaction, co-operation and transfer, market issues and technology trends; advanced research and development projects and methodological innovations. Other areas are: multimedia, virtual reality, sensors, alternative displays, augmentative and alternative communication, hearing and speech, orientation and navigation, robotics, electronic documents, intelligent environments, telecommunications and broadcasting and gesture analysis.

Individuals with disabilities are often "desexualized" in our society, yet they have the same need for intimacy, self-worth, and social belonging as people without disabilities. Sexuality and Disabilities addresses persons with physical, sensory, intellectual, and cognitive disabilities and their concerns in the areas of intimacy, family issues, sexuality, and sexual functioning. It offers suggestions for professionals who work with persons with these disabilities to help them work more competently with disabled persons in the sexuality arena. These concrete ideas are excellent for staff training and education and for enhancing professional development for those working with persons with physical disabilities.The contributing authors create an awareness that all people need individualized consideration and that the special needs of all individuals are important, especially for those who may have previously been left to discover things on their own--usually unsuccessfully. Sexuality and Disabilities focuses on a wide range of disabilities, including physical, developmental, and learning disabilities, mental retardation, and conditions that may have an impact on people later in life such as strokes, heart disease, or other chronic illness. Chapters discuss education and support issues for both practitioners and clients. Some of the topics examined include: components of a staff training program on sexuality and disability specific recommendations for sexuality education and counseling with people with spinal cord injuries and other acquired severe neurological disabilities a program model serving parents with mental retardation and their children specific ways educational programming, social work intervention, and policy efforts can address the special learning needs of people with cognitive impairments sources of support and stress for families caring for developmentally disabled children an analysis of special vulnerabilities and challenges relating to sexual victimization that confront people with disabilitiesAn extremely helpful tool for human service practitioners, Sexuality and Disabilities is also a valuable resource for graduate and undergraduate students who have an interest in working with people with physical, cognitive, or mental disabilities and helping them explore this basic facet of their lives.

It is becoming recognized that the multiple and complex problems of children with emotional and behavioral problems and their families exceed the capacity of any single service system. Emerging School-Based Approaches for Children With Emotional and Behavioral Problems presents educators and social service practitioners with innovative programs and practices for these children while in school with emphasis on inter-service collaboration. The book fulfills a growing need for an organized discussion of how the integrated service paradigm can be applied in the context of school settings. Special consideration is given to the issues and problems that are idiosyncratic to schools as institutions. Emerging School-Based Approaches for Children With Emotional and Behavioral Problems shows school administrators, teachers, and child service providers conceptual, practice, and research aspects of integrated service programs in school settings. Professionals gain insight for planning organizational change as prominent experts and practitioners share their work across a range of issues and geographic sites. They explore these topics: systems of care for children and families schools as health delivery sites parent involvement for students with emotional and behavioral disorders program planning and evaluation planned organizational changeChapters provide readers with general information about the features of an integrated approach, provide practical examples of exemplary programs, and consider organizational change issues that can facilitate or impede movement toward a more collaborative approach. Programs presented focus on the development of more broad-based community services, less restrictive child placement, prevention of hospitalization and out-of-home placement, interagency collaboration, flexible and individualized services, and cost containment and efficiency. The integrated service movement in children s services holds much promise as a means to create more comprehensive and coordinated school-based systems of care for children and families. Special education teachers and administrators, school and child clinical psychologists, and school counselors will find Emerging School-Based Approaches for Children With Emotional and Behavioral Problems fundamental to their understanding of the integrated systems approach and a helpful guide as they undergo their own organizational changes.

In Matthew, Disability, and Stress: Examining Impaired Characters in the Context of Empire, Jillian D. Engelhardt examines four Matthean healing narratives, focusing on the impaired characters in the scenes. Her reading is informed by both empire studies and social stress theory, a method that explores how the stress inherent in social location can affect psychosomatic health. By examining the Roman imperial context in which common folk lived and worked, she argues that attention to social and somatic circumstances, which may have accompanied or caused the described disabilities/impairments, destabilizes readings of these stories that suggest the encounter with Jesus was straightforwardly good and the healing was permanent. Instead, Engelhardt proposes various new contexts for and offers more nuanced characterizations of the disabled/impaired people in each discussed scene, resulting in ambiguous interpretations that de-center Jesus and challenge able-bodied assumptions about embodiment, disability, and healing.

Our book examines the role of three factors, God, Money, and Politics, in the epistemological theory of blindness, (the theory of the construction of knowledge on blindness and touch by social and cultural change). This book also illustrates this development has, in the main, been motivated by an attempt to assert or gain power and why the study of blindness in conventional academic subjects such as psychology, history and sociology is so important. We do this by presenting the main theories of disability and blindness that have informed the writing of this book, and a frame of reference for the historical story. Which places the book in the broad context of theories of disability and blindness, within an academic and symbolic context of physical impairment and the social mythologies that accompany such understanding.

Disability Studies and the Inclusive Classroom integrates knowledge and practice from the fields of disability studies and special education to provide readers with a comprehensive understanding of inclusive education. Now in its third edition, this critical volume has been revised and updated to include expanded discussion of disability models and contemporary perspectives on disability. Each chapter features a dilemma to capture the complexities of the field of educational practice to inspire critical thinking and contemplation of inclusive education.

This book explores what happens to people with profound intellectual and multiple disabilities (PIMD) when they reach adulthood. It provides an examination of various terms and definitions in use and a critical exploration of current UK policies. The author brings a wealth of many years' experience as a family carer, independent consultant and trainer to demonstrate the significant changes that a person-centred, specialised therapeutic and incremental approach can make to an individual's life. Advances in medical science mean more than ever, people with (PIMD) are growing into adulthood. What is this experience like for an adult who needs support in all aspects of their life? How do we include them in planning support when their intellectual disability means they cannot tell us first hand, what they want or need? Too often this group are overlooked or considered as an afterthought in policy and planning. Notions of independence, employment and mainstream inclusion are all problematic policy ideas for this group of people. Within one-size-fits-all service planning this focus means there is less capacity to meet their life-long specialist, complex and individualised needs. Understanding Profound and Intellectual and Multiple Disabilities in Adults is essential reading for anyone who is involved in the lives of adults with profound intellectual and multiple disabilities, whether as a researcher, student, carer or policy-maker.