This book traces the development of paid work for visually impaired people in the UK from the 18th century to the present day. It gives a voice to visually impaired people to talk about their working lives and documents the history of employment from their experience, an approach which is severely lacking in the current literature about visual impairment and employment. By analysing fifty in-depth face-to-face interviews with visually impaired people talking about their working lives (featuring those who have worked in traditional jobs such as telephony, physiotherapy and piano tuning, to those who have pursued more unusual occupations and professions), and grouping them according to occupation and framed by documentary, historical research, these stories can be situated in their broader political, economic, ideological and cultural contexts. The themes that emerge will help to inform present day policy and practice within a context of high unemployment amongst visually impaired people of working age. It is part of a growing literature which gives voice to disabled people about their own lives and which adds to the growing academic discipline of disability studies and the empowerment of disabled people.

Within the past two decades, dramatic advances in medical technology have led to a complete restructuring of medical care services for pregnant women and their newborns. Regionalization provides a full accountant of this new system known as regionalized perinatal care. Perinatologists, epidemiologists, public health administrators, and anyone involved with maternal-child care will find in this book, practical answers to their questions.

The editors of this remarkable volume have collected 18 essays by humanists about Acquired Immune Deficiency Syndrome. AIDS seems to seek out as its victims the weakest and already victimized, writes Albert R. Jonsen, describing the inhumanity of this disease. Jonsen states that scientists have already fashioned a language for describing the disease in objective, clinical terms. What is needed now is a language to describe the human experience and instruct us on how to live humanely while AIDS is among us. To help construct this language, this collection examines AIDS from the perspective of the humanities: History can recall past experience for our instruction, Philosophy can define terms such as welfare, freedom, health, and disease, that guide our discourse, and Literature can reveal the images that shape the social reality of AIDS. Editors Eric T. Juengst and Barbara Koenig begin this study by delineating six interpretations of AIDS. Their aim is to demonstrate the many ways in which AIDS is viewed by society. The book is then divided into three parts. Part One examines how our current knowledge of AIDS was generated and how this knowledge is interpreted. Part Two explores the meaning of AIDS for health professionals and the ethical issues it can raise. Part Three examines public policy and AIDS. The contributors clarify and correct definitions, recall analogous incidents in our history and draw values and principles out of the obscurity of emotions and into the light of reason. divided into three parts. Part One examines the current knowledge of AIDS and how this knowledge is interpreted. Part Two explores the meaning and perceptions of AIDS in the medical community. Part Three examines public policy and AIDS. The contributors clarify and correct definitions, recall analogous incidents in our history and draw values and principles out of the obscurity of emotion and into the light of reason.

This is the first book to challenge the concept of paid work for disabled people as a means to 'independence' and 'self determination'. Recent attempts in many countries to increase the employment rates of disabled people have actually led to an erosion of financial support for many workless disabled people and their increasing stigmatisation as 'scroungers'. Led by the disability movement's concern with the employment choices faced by disabled people, this controversial book uses sociological and philosophical approaches, as well as international examples, to critically engage with possible alternatives to paid work. Essential reading for students, practitioners, activists and anyone interested in relationships between work, welfare and disability.

Disability Servitude traces the history and legacy of institutional peonage. For over a century, public and private institutions across the country relied on the unpaid, forced labor of their residents and patients in order to operate. This book describes the work they performed, in some cases for ten or more hours a day, seven days a week, and the lawsuits they brought in an effort to get paid. The impact of those lawsuits included accelerated de-institutionalization, but they fell short of obtaining equal and fair compensation for their plaintiffs. Instead, thousands of resident and patient-workers were replaced by non-disabled employees. Disability Servitude includes a detailed history of longstanding problems with the oversight of the sub-minimum wage provision in the Fair Labor Standards Act oversight. Beckwith shows how that history has resulted in the continued segregation and exploitation of over 400,000 workers with disabilities in sheltered workshops that legally pay far less than minimum wage.

This book recounts the dramatic story of the transformation of the Iowa Commission for the Blind from a verifiably ineffective service agency to perhaps the most outstanding and effective adult service program in the nation in the span of 10 short years. What happened in Iowa was revolutionary, and the character of work with the blind in America and around the world was altered forever - the alternative civil rights - based service model worked. Using Kenneth Jernigan's own writings of Board meeting minutes, reports, and letters, I present the details of the remarkable story from an activist's point of view.

Within the domains of criminal justice and mental health care, critical debate concerning 'care' versus 'control' and 'therapy' versus 'security' is now commonplace. Indeed, the 'hybridisation' of these areas is now a familiar theme. This unique and topical text provides an array of expert analyses from key contributors in the field that explore the interface between criminal justice and mental health. Using concise yet robust definitions of key terms and concepts, it consolidates scholarly analysis of theory, policy and practice. Readers are provided with practical debates, in addition to the theoretical and ideological concerns surrounding the risk assessment, treatment, control and risk management in a cross-disciplinary context. Included in this book is recommended further reading and an index of legislation, making it an ideal resource for students at undergraduate and postgraduate level, together with researchers and practitioners in the field.

Originally published between 1973 and 1990, this collection reissues twelve books that focus on the lives of children with mental and physical disabilities. Together, the books reflect research being done in the period and look at the challenges individuals, families, and professionals faced at that time. Topics covered include caring for children with disabilities, inclusion, and coping with particular disabilities.

This NIH-supported study of HIV's physical and psychosocial impacts offers both practical and inspiring accounts of how individuals living with HIV respond and cope with the disease and its progressive stages and impacts. The longitudinal approach of the research and the rich resources offered by extensive interviews with the persons with HIV and those closest to them avail the reader of insights and responses that should improve others' coping and caring abilities.

The author's professional experience and extensive research informs the work throughout and fashions a remarkable and moving synthesis of the themes that will help those living with AIDS as well as all who relate to them. From the first awareness of infection to coping with bereavement, this book honestly, sensitively, and substantively addresses the essential concerns that any and all who are touched by the HIV pandemic must reflect on.

Nowadays networks, microprocessors, memory chips, smart sensors and actuators are faster, cheaper and smaller than ever. They are becoming available anywhere, anytime. Current advances in such enabling technologies let foresee novel applications and services for improving the life of elderly and disabled people in their home and outside. These conference proceedings present the latest approaches and technical solutions in the area of smart homes, health telematics, and enabling technologies. The first chapter delves into the user perspective to ascertain real needs and design truly useful services. The following chapter explores the enabling technology. Distributed sensors, smart devices and networks appear as the nuts and bolts compulsory to build up smart homes. Chapter three looks at the realization of smart homes. Pervasive computing is emerging as one of the key approaches to organize computations within smart homes. The fourth chapter addresses the issue of using smart home features to design and deliver smart care services to persons with disabilities and elderly people. Finally Chapter five outlines standardization efforts and practical and industrial experiences.I COST aims at creating an active research community dedicated to explore how smart homes in particular and health telematics in general can foster independent living and an enhanced life style for elderly and disabled people. On the one hand, smart homes are augmented environments with embedded computers, information appliances and multi-modal sensors allowing people to perform tasks efficiently by offering unprecedented levels of access to information and assistance from computer. On the other hand, health telematics makes the most of networks and telecommunications to propose health services, expertise and information at distance.

This book examines the state of art in disability studies, focusing on the Indian context, as well as the broader South Asian situation. It presents interdisciplinary perspectives on the basic idea, evolution, practices and challenges of researching and teaching disability studies at various higher education institutions and in other civil society spaces. The chapters address a range of related themes, including activism, development policies, research, pedagogy, spatial and social access, caste and gender representations and rights-based discourses. Given the scope of its coverage, the book is of interest to scholars and students in area of humanities, education, law, sociology and social work, political science development and disability studies.

Drawing upon qualitative material from parents and professionals, including ethnography, narrative inquiry, interviews and focus groups, this book brings together feminist and critical disability studies theories.

Who determines whether persons are disabled and eligible to receive the billions of dollars that are awarded in benefits under federal disability programs today in the United States? What kinds of standards are applied in making awards to millions of applicants? And how are disability determinations made and claims adjudicated? Frank S. Bloch provides a careful study of disability determinations in five major federal programs. His findings, models, and calls for reform, including the greater use of medical personnel, should interest those who want to know more about the medical-legal issues relevant to disability determination, the many factors that impact on disability decisionmaking, and the administrative process for making disability decisions. This survey covers the disability determination process in U.S. social security, railroad retirement, civil service, veteran, and black lung disability programs at the federal level. Dr. Bloch defines various standards, key issues, the current use of medical personnel and models for their fuller use and for reforming the disability determination process.

This book puts the critical into dementia studies. It makes a timely and novel contribution to the field, offering a provocative and thought-provoking critique of current thinking and debate on dementia. Collectively the contributions gathered together in this text make a powerful case for a more politically engaged, deconstructive and critical treatment of dementia and the systems and structures that currently govern and frame it. The book is interdisciplinary and draws together leading dementia scholars alongside dementia activists from around the world. It frames dementia as first and foremost a political category. The book advances both theoretical and methodological thinking in the field as well as sharing learning from empirical research. Outlining the limits to existing efforts to frame and theorise the condition it proposes a new critical movement for the field of dementia studies and practice. The book will be of direct interest to researchers and scholars in the field of dementia studies and wider fields of health, disability and care. It will provide a novel resource for students and practitioners in the fields of dementia, health care and social care. The book also has implications for dementia policymaking, commissioning and community development.

Disability is an increasingly vital contemporary issue in British social policy and particularly so in the area of education. "Education, Disability and Social Policy" brings together for the first time unique perspectives from leading thinkers including senior academics, opinion formers, policy makers and school leaders to explore these issues. Key issues included are: the implications of the law and international human rights frameworks; what these developments in policy will mean for schools and school leaders; how Governments can ensure that disabled children and young people are benefiting from wider efforts to tackle inequalities in the education system, such as widening access to higher education; what changes are needed in the design of the curriculum and qualifications; and, what needs to be done for children who are being failed by the current education system, including those with uncertain futures or children with Autism. The book is a milestone in social policy studies, of enduring interest to students, academics, policy makers, parents and campaigners alike.

This novel treats the two themes of incurable diseases and euthanasia at various levels to bring into focus a web of dense arguments legal and medical woven together that never tire the readers in their attempts to grapple with issues of human suffering, disease and death and its over-arching subject of sympathy, pity and humanity. To lend credence to all the impressive arguments, the novel draws parallels from real life situations and cases that made possible a debate on physician-assisted suicides and importance of human dignity and right to life and death.

In this accessible introduction to the study of Disability Arts and Culture, Petra Kuppers foregrounds themes, artists and theoretical concepts in this diverse field. Complete with case studies, exercises and questions for further study, the book introduces students to the work of disabled artists and their allies, and explores artful responses to living with physical, cognitive, emotional or sensory difference. Engaging readers as cultural producers, Kuppers provides useful frameworks for critical analysis and encourages students to explore their own positioning within the frames of gender, race, sexuality, class and disability. Comprehensive and accessible, this is an essential handbook for undergraduate students or anyone interested in disabled bodies and minds in theatre, performance, creative writing, art and dance.

View the Table of Contents. Read the Introduction.

"The writings of Rubin, Mukhopadhyay, and all of the contributors are testament to the need to embrace a 'disability consciousness' in seeking educational and therapeutic options for autistic persons so that they can achieve their full potential. While Biklen refrains from extensive analysis of his contributors' words, his book is truly valuable in its straightforward presentation of the voices of autistic persons speaking not only for but as themselves."
--"Disability Studies Quarterly"

"Disagrees with the common picture of autism, presenting chapters written by those with autism themselves--including those considered most severely disabled within the world of autism--to present a personalized view of how autism is experienced by those diagnosed. . . . A 'must' for any who understand the autistic experience."
--"Bookwatch"

"Biklen's tenacity is to be admired."
--"CHOICE"

aThe prevailing view of autism and disability is redefined in this beautifully written book. Can you ask for more than to inform, inspire, challenge, and help to create new ways of understanding? "Autism and the Myth of the Person Alone" forces us to confront misunderstanding, misperceptions, and lack of knowledge, and to rethink disability and autism. It demands that we embrace people who act, communicate, and socialize differently. I love this book!a
--Jan Nisbet, Director, Institute on Disability

aAustism and the Myth of the Person Alone is one of those rare professional books that causes one to pause and consider what it tells us about our literature, our field, and, perhaps, ourselves...Biklen has given us a fascinating, thoughtful and, most important, essential book by including insights, experiences, and perspectives of individuals with autism to add to the canon.a
--"American Association on Mental Retardation"

Autism has been defined by experts as a developmental disorder affecting social and communication skills as well as verbal and nonverbal communication. It is said to occur in as many as 2 to 6 in 1,000 individuals. This book challenges the prevailing, tragic narrative of impairment that so often characterizes discussions about autism.

Autism and the Myth of the Person Alone seriously engages the perspectives of people with autism, including those who have been considered as the most severely disabled within the autism spectrum. The heart of the book consists of chapters by people with autism themselves, either in an interview format with the author or written by themselves. Each author communicates either by typing or by a combination of speech and typing. These chapters are framed by a substantive introduction and conclusion that contextualize the book, the methodology, and the analysis, and situate it within a critical disability studies framework. The volume allows a look into the rich and insightful perspectives of people who have heretofore been thought of as uninterested in the world.

This volume examines the shift toward positive and more accurate portrayals of mental illness in entertainment media, asking where these succeed and considering where more needs to be done. With studies that identify and analyze the characters, viewpoints, and experiences of mental illness across film and television, it considers the messages conveyed about mental illness and reflects on how the different texts reflect, reinforce, or challenge sociocultural notions regarding mental illness. Presenting chapters that explore a range of texts from film and television, covering a variety of mental health conditions, including autism, post-traumatic stress disorder (PTSD), depression, and more, this book will appeal to scholars of sociology, cultural and media studies, and mental health.