In the last 30 years, a distinctive intersection between disability studies - including disability rights advocacy, disability rights activism, and disability law - and disability arts, culture, and media studies has developed. The two fields have worked in tandem to offer critique of representations of disability in dominant cultural systems, institutions, discourses, and architecture, and develop provocative new representations of what it means to be disabled. Divided into 5 sections: Disability, Identity, and Representation Inclusion, Wellbeing, and Whole-of-life Experience Access, Artistry, and Audiences Practices, Politics and the Public Sphere Activism, Adaptation, and Alternative Futures this handbook brings disability arts, disability culture, and disability media studies - traditionally treated separately in publications in the field to date - together for the first time. It provides scholars, graduate students, upper level undergraduate students, and others interested in the disability rights agenda with a broad-based, practical and accessible introduction to key debates in the field of disability art, culture, and media studies. An internationally recognised selection of authors from around the world come together to articulate the theories, issues, interests, and practices that have come to define the field. Most critically, this book includes commentaries that forecast the pressing present and future concerns for the field as scholars, advocates, activists, and artists work to make a more inclusive society a reality.

Forty-five contributions from renowned international specialists in the field provide readers with expert analysis of the core issues related to the welfare state, including regional depictions of welfare states around the globe. The second edition of the Routledge Handbook of the Welfare State combines essays on methodologies, core concepts and central policy areas to produce a comprehensive understanding of what 'the welfare state' means around the world. In the aftermath of the credit crunch, the Handbook addresses some of the many questions about the welfare state. This second edition has been thoroughly revised and updated to include an in-depth analysis of societal changes in recent years. New articles can be found on topics such as: the impact of ideas, well-being, migration, globalisation, India, welfare typologies, homelessness and long-term care. This volume will be an invaluable reference book for students and scholars throughout the social sciences, particularly in sociology, social policy, public policy, international relations, politics and gender studies.

How can a deep engagement with disability studies change our understanding of sociology, literary studies, gender studies, aesthetics, bioethics, social work, law, education, or history? Interdisciplinary Approaches to Disability (the companion volume to Manifestos for the Future of Critical Disability Studies) identifies both the practical and theoretical implications of such an interdisciplinary dialogue and challenges people in disability studies as well as other disciplinary fields to critically reflect on their professional praxis in terms of theory, practice, and methods. Topics covered include interdisciplinary outlooks ranging from media studies, games studies, education, performance, history and curation through to theology and immunology. Perspectives are drawn from different regions from the European Union to the Global South with chapters that draw on a range of different national backgrounds. Our contributors who write as either disabled people or allies do not proceed from a singular approach to disability, often reflecting different or even opposing positions. The collection features contributions from both established and new voices in international disability studies outlining their own visions for the future of the field. Interdisciplinary Approaches to Disability will be of interest to all scholars and students working within the fields of disability studies, cultural studies, sociology, law history and education. The concerns raised here are further in Manifestos for the Future of Critical Disability Studies.

Disability studies has engaged with discourse analysis in key works both from the UK and the USA. While the perspectives and analyses of discourse analysis have proved well suited for exploring disability, however, its methods have not been sufficiently developed in a disability studies context. Conversely, discourse analysts have traditionally been concerned with social issues and fields in which asymmetric power relations, marginalization, and discrimination play a central role, e.g. gender, race, ethnicity, and sexual orientation, all of which share many analytical features with disability. But although efforts have been made to integrate disability into the discourse analysis and conversation analysis canon, the link between the two fields needs to be strengthened. This ground-breaking volume contributes to this link by thoroughly applying the analytical vocabulary of discourse analysis to issues that are central to the field of disability studies. It strengthens disability studies by supplying case studies of representations and constructions of disability and disabled people in discourse, theorizes the role played by language in the social construction of disability, and makes disability a more salient topic for discourse analysts.

This work presents the results of a study undertaken by Abraham Monk and Carole Cox, which analyzes how the countries of Argentina, Canada, England, the Netherlands, Norway, and Sweden have responded to the increasing need for home health care. The study, completed with the cooperation of a team of researchers in each country, avoids isolated, fragmented solutions to the problem in favor of a more holistic profile of programs and services, placing them within the general policy and cultural framework of each region. It then examines the applicability of selected aspects of those home care programs deemed most effective to the needs of the United States as it too attempts to deal with a growing older population and the prohibitive costs of institutionalized care.

After a review of existing home care in the United States, and an explanation of the operational model used to collect the data in the study, each country's home health care system is outlined with attention to its organization and operation, its manpower requirements, its place within government policy, and its most successful and innovative practices. The international scope of the work makes its evaluative material and recommendations useful to both health care professionals and international policy makers.

There are individual and professional factors that have the greatest impact on the preservation of work ability for people of advanced age, and people with chronic health issues and disabilities. This text examines the demographic trends in the population and shows that proper functioning in their lives is only possible if people are provided with appropriate psychosocial and physical working conditions. This publication discusses physiological changes that occur with age and influence work performance. It presents the concept of applying the International Classification of Functioning, Disability and Health (ICF) in order to assess the work ability of people with disabilities. It shows, using examples and case studies, that practical activities aimed at appropriate working conditions for people of advanced age, and people with health issues and disabilities, will have excellent work ability. Features Presents a comprehensive approach to workplace tolerance for people with health issues Offers an innovated in-depth evaluation of the Work Ability Index (WAI) Presents applying the International Classification of Functioning, Disability and Health (ICF) to access the work ability of people with disabilities Outlines actions that should be taken to maintain work ability for people of advanced age or with disabilities Provides real case studies and analysis. "Demographic changes, especially those related to aging, belong to the main changes occurring in the contemporary working environment. Thus, preserving work ability in the older population as well as [populations with] health concerns are among the most important challenges of today. Accordingly, the monograph fits into the most recent issues of [this] public health area, focusing on work ability in populations at risk of social exclusion, also occupational exclusion. These are older people, persons with chronic diseases and those with different types of disabilities. In my opinion, highlighting the problem of work ability in the context of aging by the authors, in such a broad understanding, is extremely valuable and useful and the presented research outcome is an authentic and very much expected contribution to the discussion on this issue. The topic has been thoroughly presented, which undoubtedly results from the interdisciplinarity of the group of authors including specialists in work physiology, physicians and physiotherapists. The monograph provides a very measurable and reliable knowledge in this field. Combining the theory with the presentation of the authors' research outcomes is an unquestionable advantage of the monograph...". -Jolanta Walusiak-Skorupa, Nofer Institute of Occupational Medicine, Lodz, Poland

This book investigates how being diagnosed with various disabilities impacts on identity. Once diagnosed with a disability, there is a risk that this label can become the primary status both for the person diagnosed as well as for their family. This reification of the diagnosis can be oppressive because it subjugates humanity in such a way that everything a person does can be interpreted as linked to their disability. Drawing on narrative approaches to identity in psychology and social sciences, the bio-psycho-social model and a holistic approach to disabilities, the chapters in this book understand disability as constructed in discourse, as negotiated among speaking subjects in social contexts, and as emergent. By doing so, they amplify voices that may have otherwise remained silent and use storytelling as a way of communicating the participants' realities to provide a more in-depth understanding of their point of view. This book will be of interest to all scholars and students of disability studies, sociology, medical humanities, disability research methods, narrative theory, and rehabilitation studies.

Looking back at postwar US history, it seems that a telethon accompanied every social ill, disability, disease, and natural disaster. A unique combination of entertainment and charity, this form of fundraising became a fixture in American life not long after NBC broadcast the first one, hosted by Milton Berle, in 1949. Conceived specifically for the new medium of television, the telethon-a portmanteau of "television" and "marathon"-became the fundraising vehicle of choice for the nation's leading charitable organizations. Marshaling two decades' worth of painstaking research, Telethons provides the first cultural history of the popular phenomenon. It charts the rise of the telethon as a result of five influential charities (most notably, the Muscular Dystrophy Association) and profiles the key figures-philanthropists, politicians, celebrities, corporate sponsors, and recipients-involved. The book also serves as a chronicle of disabilty history in the postwar US, as Longmore shows the changing depiction of the disabled-from objects of pity in the Fifties and Sixties to figures of empowerment in the late twentieth century. A significant portion of the book analyzes the various clashes between telethon-producing charities and activists in the disability rights movement that have become increasingly frequent since the 1970s. Throughout, Telethons explores familiar staples of the genre such as "poster children," the comedic emcee, and the concept of "conspicuous contribution."

The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader's tradition of remaining timely, urgent, and critical.

From its beginnings in the 1970s and 1980s, interest in the topic of gender and migration has grown. Gender and Migration seeks to introduce the most relevant sociological theories of gender relations and migration that consider ongoing transnationalization processes, at the beginning of the third millennium. These include intersectionality, queer studies, social inequality theory and the theory of transnational migration and citizenship; all of which are brought together and illustrated by means of various empirical examples. With its explicit focus on the gendered structures of migration-sending and migration-receiving countries, Gender and Migration builds on the most current conceptual tool of gender studies-intersectionality-which calls for collective research on gender with analysis of class, ethnicity/race, sexuality, age and other axes of inequality in the context of transnational migration and mobility. The book also includes descriptions of a number of recommended films that illustrate transnational migrant masculinities and femininities within and outside of Europe. A refreshing attempt to bring in considerations of queer theory and sexual identity in the area of gender migration studies, this insightful volume will appeal to students and researchers interested in fields such as sociology, social anthropology, political science, intersectional studies and transnational migration.

Inclusion is primarily discussed in education. With the increasing number of member states of the United Nations ratifying the Convention on the Rights of Persons with Disabilities, academics have vividly discussed inclusion in the context of other areas of life, such as the community at large, as 'social inclusion' in the context of work and employment, and with regard to the aspects addressed by Article 30.5 of the Convention, namely cultural life, recreation, leisure, and sport. This volume is organized around the topic inclusion in sport and has a particular focus on the participation of people with disabilities in sport. Typical barriers for people with disabilities to participate in sport include lack of awareness on the part of people without disabilities as to how to involve them in teams adequately; lack of opportunities and programmes for training and competition; too few accessible facilities due to physical barriers; and limited information on and access to resources. The chapters attribute central importance to the processes and mechanisms of inclusion that operate within sporting environments and to the question of either what happens or could happen to persons with disabilities who enter the playing field. The chapters were originally published in a special issue of Sport in Society.

Disability and Music Performance examines discriminatory social practices in music conservatoria, orchestras, music festivals and music competitions, which limit disabled people's access to music performance at a professional level. Of particular interest are the disabling barriers that musicians with an intellectual, physical, sensory or neurological disability-or an acquired brain injury-encounter in the world of Western classical music, both as students and as professional performers. This book collects data in the form of semi-structured interviews and video and audio recordings to explore the voice, concerns and suggestions expressed by musicians with disabilities. It examines their perceptions of both inclusive and discriminatory practices in music institutions as well as the representation of, and audio-visual recordings by, key musical figures with disabilities. Its findings aim to contribute to the wellbeing of musicians with impairments by challenging disabling social practices that see them as inferior. This publication offers performers, teachers and researchers new perspectives for exploring some of the most common social dynamics in encounters between normative audiences, musicians and music critics, and musicians with disabilities. It invites the reader to recognise disability as a rightful identity category in music performance and to dismantle the disabling barriers that limit the participation of disabled people in music-making.

This is the first book to explore the interplay of disability, gender and violence over the life course from researcher, practitioner and survivor perspectives. It gives due weight to the accounts of disabled children and adults who have survived institutional or individual violence, evidencing barriers to recognition, disclosure and reporting. Written by disabled and non-disabled women from around the world, Disability, Gender and Violence over the Life Course addresses the dearth of voices and experiences of disabled women and girls in empirical research, policy and practice on issues of violence, victimisation, protection, support and prevention. Divided into three parts - Childhood, Adulthood and Older Life - this collection offers diverse perspectives on the intersectionality of disability, age, ethnicity, sexuality and violence that have hitherto been absent. This book will be an invaluable resource for students and practitioners of multiple fields of practice and academic studies, including health and social care, nursing, social work, childhood studies, gender studies, disability studies, safeguarding and child protection, equality and human rights, sociology and criminology.

Efforts to reduce discrimination and increase diversity on campuses, coupled with shrinking budgets causing administrators to devote more resources toward recruiting and retaining students with disabilities, are fuelling an explosion of research in the area of inclusive education. An important focus that has been largely neglected is the place of teachers with disabilities in academe. International Perspectives on Teaching with Disability brings together 25 multi-disciplinary scholars with disabilities from Africa, Canada, the Caribbean, the UK, Israel and the United States to share their struggles and successes in teaching with disability. The 18 chapters are written largely from autoethnographic perspectives grounded in solid academic research but full of anecdotes and self-reflexive narratives that provide insights into the lived experiences of the authors. Woven into the narratives are discussions of the complexities of self-disclosure and self-advocacy; the varied-and often problematic-ways disability is experienced, perceived and discussed in society and in the classroom; the challenges of navigating academe with disability, the value of disability pedagogy, the positive student outcomes achieved by teaching through disability, as well as practical applications and lessons learned that will benefit educators, administrators and students preparing to become teachers. This book is written to champion the integral place and role of disabled educators in academe. Current educators with disability will be affirmed. Those with disability aspiring to become teachers will be encouraged. Temporarily able-bodied administrators and educators will be challenged. Everyone will be informed. This book will be a welcome addition to reading lists in a wide array of academic fields including: Education, Pedagogy, Disability Studies, Human Resources Management, and Sociology.

Many critical analyses of disability address important 'macro' concerns, but are often far removed from an interactional and micro-level focus. Written by leading scholars in the field, and containing a range of theoretical and empirical contributions from around the world, this book focuses on the taken-for-granted, mundane human activities at the heart of how social life is reproduced, and how this impacts on the lives of those with a disability, family members, and other allies. It departs from earlier accounts by making sense of how disability is lived, mobilised, and enacted in everyday lives. Although broad in focus and navigating diverse social contexts, chapters are united by a concern with foregrounding micro, mundane moments for making sense of powerful discourses, practices, affects, relations, and world-making for disabled people and their allies. Using different examples - including learning disabilities, cerebral palsy, dementia, polio, and Parkinson's disease - contributions move beyond a simplified narrow classification of disability which creates rigid categories of existence and denies bodily variation. Disability, Normalcy, and the Everyday should be considered essential reading for disability studies students and academics, as well as professionals involved in health and social care. With contributions located within new and familiar debates around embodiment, stigma, gender, identity, inequality, care, ethics, choice, materiality, youth, and representation, this book will be of interest to academics from different disciplinary backgrounds including sociology, anthropology, humanities, public health, allied health professions, science and technology studies, social work, and social policy.

Disabled women represent one of the most marginalised minority groups in the world, hence they are largely silent while their sexuality is ignored, suppressed, forbidden and buried underneath the carpet. Until recently, most of the Global Northern published literature on the subject of the sexuality of disabled women has predominantly been constructed from hearsay and second-hand narratives in studies which draw from the perspectives of parents, service providers and advocates, without much consultation of the relevant women. By facilitating the voice of disabled women in Zimbabwe and illuminating their experiences of sexuality, this book hopes to shift the experiences of sexuality of disabled women from the periphery of society to the fore. Disability and Sexuality in Zimbabwe presents original research on an issue that is thus far not found in local research data. Whilst addressing the paucity of literature on the subject, the book informs policy and practice and enhances the existing body of knowledge by making recommendations towards the development of a disability and sexuality framework that is rooted in the African context. This book is of interest to students and scholars of African studies, disability studies, sociology, psychology, social work, nursing, education studies, geography, women's and gender studies and interdisciplinary studies. Additional audiences include a wide range of health, social care, and educational professionals and practitioners, as well donors, disabled people's organisations, charities, government departments, NGOs, supranational organisations, and policy makers

Language is integral to our social being. But what is the status of those who stand outside of language? The mentally disabled, "wild" children, people with autism and other neurological disorders, as well as animals, infants, angels, and artificial intelligences, have all engaged with language from a position at its borders. In the intricate verbal constructions of modern literature, the 'disarticulate'--those at the edges of language--have, paradoxically, played essential, defining roles. Drawing on the disarticulate figures in modern fictional works such as Billy Budd, The Sound and the Fury, Nightwood, White Noise, and The Echo Maker, among others, James Berger shows in this intellectually bracing study how these characters mark sites at which aesthetic, philosophical, ethical, political, medical, and scientific discourses converge. It is also the place of the greatest ethical tension, as society confronts the needs and desires of "the least of its brothers." Berger argues that the disarticulate is that which is unaccountable in the discourses of modernity and thus stands as an alternative to the prevailing social order. Using literary history and theory, as well as disability and trauma theory, he examines how these disarticulate figures reveal modernity's anxieties in terms of how it constructs its others.

Drawing upon vivid and harrowing life history narratives of people labelled intellectually disabled, this book examines the ways in which disabled subjects are constituted, regulated, governed, and violated through an account of abjection. Extending interdisciplinary dialogues and approaches, it abandons a construct of violence (which by law requires a stable notion of a victim and a perpetrator) and moves to a theorisation of abjection to explore the ways in which disabled subjects are (re)produced, constituted, and treated through time. Deploying a wide range of interdisciplinary approaches, this book sits at the intersections of criminology and sociology, re-thinks notions of dis/ability, violence, and subjectivity, and utilises crip and queer theory to imagine dis/ability differently. It will be of interest to all scholars and students of disability studies, sociology and criminology, and specifically those working the areas of life history work, post-structuralism, hate crime, and post-modern criminology.

The UN Convention on the Rights of Persons with Disabilities has facilitated the understanding that disability is both a human rights and development issue. In order to achieve the Sustainable Development Goals by 2030, the focus on disability inclusion has become increasingly important in the discourse of international and national efforts for "leaving no one behind", the motto of the SDGs. This book discusses pertinent and emerging themes such as disability rights, globalization, inequalities, international cooperation and representation. Evidence which has been obtained tends to show that persons with disabilities have been disproportionately left behind without proper representation, participation and inclusion. This book critically investigates the gaps at different levels, from top to bottom, and as importantly, within the global disability movement, for the realization of global disability rights, and theorizes the intersection of disability, globalization and human rights. Empirical case studies from different countries and contexts are introduced to deepen analysis on theories of critical disability studies from a global perspective. Co-edited by a disability researcher and the former United Nations Special Rapporteur on Disability, this book will be of interest to all students, academics, policy makers and practitioners working to advance the cause of disability rights around the world.

Building on work in feminist studies, queer studies and critical race theory, this volume challenges the universality of propositions about human nature, by questioning the boundaries between predominant neurotypes and 'others', including dyslexics, autistics and ADHDers. This is the first work of its kind to bring cutting-edge research across disciplines to the concept of neurodiversity. It offers in-depth explorations of the themes of cure/prevention/eugenics; neurodivergent wellbeing; cross-neurotype communication; neurodiversity at work; and challenging brain-bound cognition. It analyses the role of neuro-normativity in theorising agency, and a proposal for a new alliance between the Hearing Voices Movement and neurodiversity. In doing so, we contribute to a cultural imperative to redefine what it means to be human. To this end, we propose a new field of enquiry that finds ways to support the inclusion of neurodivergent perspectives in knowledge production, and which questions the theoretical and mythological assumptions that produce the idea of the neurotypical. Working at the crossroads between sociology, critical psychology, medical humanities, critical disability studies, and critical autism studies, and sharing theoretical ground with critical race studies and critical queer studies, the proposed new field - neurodiversity studies - will be of interest to people working in all these areas.

This much-needed volume fills an overlooked gap in adult safeguarding - the digital arena - in providing a comprehensive overview of policy and practice in supporting vulnerable adults online. Providing an essential analysis illustrated by recent court rulings and case studies, the authors advocate for the effective support of adults with learning disabilities and/or mental capacity issues in their digital lives without compromising their privacy and participation rights. The text balances a theoretical exploration of the tensions between participation and protection, legislation, human rights, professional biases and social wrongs. It encourages a critical approach in adopting both a practical and realistic understanding for policy makers, professionals and students in social work, law and adult social care.

This collection identifies the key tensions and conflicts being debated within the field of critical disability studies and provides both an outline of the field in its current form and offers manifestos for its future direction. Traversing a number of disciplines from science and technology studies to maternal studies, the collection offers a transdisciplinary vision for the future of critical disability studies. Some common thematic concerns emerge across the book such as digital futures, the usefulness of anger, creativity, family as disability allies, intersectionality, ethics, eugenics, accessibility and interdisciplinarity. However, the contributors who write as either disabled people or allies do not proceed from a singular approach to disability, often reflecting different or even opposing positions on these issues. Containing contributions from established and new voices in disability studies outlining their own manifesto for the future of the field, this book will be of interest to all scholars and students working within the fields of disability studies, cultural studies, sociology, law, history and education. The concerns introduced here are further explored in its sister volume Interdisciplinary approaches to disability: looking towards the future.

"This was several times with that damn cribbage board. I hate cribbage boards to this very day. They never beat us on the arms or legs or stuff, it was always on the bottom of the feet, I couldn't figure it out." Brian L., Huronia Regional Centre Survivor Over the past two decades, the public has borne witness to ongoing revelations of shocking, intense, and even sadistic forms of violence in spaces meant to provide care. This has been particularly true in institutions designed to care for people with disabilities. In this work, the authors not only describe institutional violence, but work to make sense of how and why institutional violence within care settings is both so pervasive and so profound. Drawing on a wide range of primary data, including oral histories of institutional survivors and staff, ethnographic observation, legal proceedings and archival data, this book asks: What does institutional violence look like in practice and how might it be usefully categorized? How have extreme forms violence and neglect come to be the cultural norm across institutions? What organizational strategies in institutions foster the abdication of personal morality and therefore violence? How is institutional care the crucial "first step" in creating a culture that accepts violence as the norm? This highly interdisciplinary work develops scholarly analysis of the history and importance of institutional violence and, as such, is of particular interest to scholars whose work engages with issues of disability, health care law and policy, violence, incarceration, organizational behaviour, and critical theory.

Disability and Neoliberal State Formations explores the trajectory of neoliberalism in Australia and its impact on the lives of Australians living with disability, including Aboriginal and Torres Strait Islander peoples. It examines the emergence, intensification and normalisation of neoliberalism across a 20-year period, distilling the radical changes to disability social security and labour-market law, policy and programming, and the enduring effects of the incremental tightening of disability eligibility carried out by Australian governments since the early 2000s. Incorporating qualitative interviews with disabled people, disability advocates, services and the policy elite, alongside extensive documentary material, this book brings to the fore the compounding effects of neoliberal reforms for disabled people's wellbeing and participation. The work is of international significance as it illustrates the importance of looking beyond the UK, EU and the USA to critically understand the historical development and policy mobility of disability neoliberal retraction from smaller economies, such as Australia, to the global economic centre.

Philosophical interest in disability is rapidly expanding. Philosophers are beginning to grasp the complexity of disability-as a category, with respect to well-being and as a marker of identity. However, the philosophical literature on justice and human rights has often been limited in scope and somewhat abstract. Not enough sustained attention has been paid to the concrete claims made by people with disabilities, concerning their human rights, their legal entitlements and their access to important goods, services and resources. This book discusses how effectively philosophical approaches to distributive justice and human rights can support these concrete claims. It argues that these approaches often fail to lend clear support to common disability demands, revealing both the limitations of existing philosophical theories and the inflated nature of some of these demands. Moving beyond entitlements, the author also develops a unique conception of dignity, which she argues illuminates the specific indignities experienced by people with disabilities in the allocation of goods, in the common experience of discrimination and in a wide range of interpersonal interactions. Disability with Dignity offers an accessible and extended philosophical discussion of disability, justice and human rights. It provides a comprehensive assessment of the benefits and pitfalls of theories of human rights and justice for advancing justice for the disabled. It brings the moral importance of dignity to the centre, arguing that justice must be pursued in a way that preserves and promotes the dignity of people with disabilities.