A philosophical challenge to the ableist conflation of disability and pain More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy. Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires. The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond.

Disability rights advocates in the United Kingdom and the United States recently embraced new media technologies in unexpected and innovative ways. This book sheds light on this process of renewal and asks whether the digitalisation of disability rights advocacy can help re-configure political participation into a more inclusive experience for disabled Internet users, enhancing their stakes in democratic citizenship. Through the examination of social media content, Web link analysis, and interviews with leading figures in grassroots groups on both sides of the Atlantic, Filippo Trevisan reveals the profound impact that the Internet has had on disability advocacy in the wake of the austerity agenda that followed the 2008 global financial crisis. In Britain, a new, tech-savvy generation of young disabled self-advocates has emerged from this process. The role of social media platforms such as Facebook in helping politically inexperienced users make sense of complex policy changes through the use of personal stories is discussed also. In addition, this book explains why British disability advocates adopted more innovative and participatory strategies compared to their American counterparts when faced with similar policy crises. This book reviews the implications of this unexpected digital transformation for the structure of the disability rights movement, its leadership, and the opportunity for disabled citizens to participate fully in democratic politics vis-a-vis persisting Web access and accessibility barriers. An original perspective on the relationship between disability and the Internet, and an indispensable read for scholars wishing to contextualize and enrich their knowledge on digital disability rights campaigns vis-a-vis the broader ecology of policymaking.

Within the domains of criminal justice and mental health care, critical debate concerning 'care' versus 'control' and 'therapy' versus 'security' is now commonplace. Indeed, the 'hybridisation' of these areas is now a familiar theme. This unique and topical text provides an array of expert analyses from key contributors in the field that explore the interface between criminal justice and mental health. Using concise yet robust definitions of key terms and concepts, it consolidates scholarly analysis of theory, policy and practice. Readers are provided with practical debates, in addition to the theoretical and ideological concerns surrounding the risk assessment, treatment, control and risk management in a cross-disciplinary context. Included in this book is recommended further reading and an index of legislation, making it an ideal resource for students at undergraduate and postgraduate level, together with researchers and practitioners in the field.

The marked increase in life-expectancy in Down syndrome since the 1990s, although a very good sign in itself, raises important questions regarding the health issues, cognitive involution and social and professional inclusion of people with the condition. In this text, a large group of leading specialists have supplied a series of papers on many aspects of this issue, ranging from epidemiology, genetics, medical issues, Alzheimer's disease, cognition and language, to sexual behaviour and contraception, family issues, professional orientation and work experiences.

This book should be of interest to physicians, psychologists, social workers and educators working in the field who wish to provide evidence-based interventions for persons with Down syndrome advancing in age.

Authored by one of the most respected figures in the field of personal ethnographic narrative, this book serves as both a memoir and a sociological study, telling the story of one lesbian couple's lifelong journey together. Are You Two Sisters? is Susan Krieger's candid, revealing, and engrossing memoir about the intimacies of a lesbian couple. Krieger explores how she and her partner confront both the inner challenges of their relationship and the invisibility of lesbian identity in the larger world. Using a lively novelistic and autoethnographic approach that toggles back and forth in time, Krieger reflects on the evolution of her forty-year relationship. She describes building a life together, from sharing pets and travels to getting married. Are You Two Sisters? addresses not only questions of gender and sexuality, but also of disability, as Krieger explores how the couple adapts to her increasing blindness. Krieger's title comes from a question asked by a stranger outside a remote desert bar as she and her partner traveled in the Southwest. Her apprehension about answering that question suggests how, even after the legalization of gay marriage, lesbianism often remains hidden-an observation that makes Krieger's poignant narrative all the more moving.

Social inclusion is often used interchangeably with the terms social cohesion, social integration, and social participation, positioning social exclusion as the opposite. The latter is a contested term that refers to a wide range of phenomena and processes related to poverty and deprivation, but it is also used in relation to marginalized people and places. This book consists of two parts: the first aims to review the domestic and international historical roots and the conceptual base of disability, as well as the expressions of social exclusion of people with disabilities that interfere in their efforts to exercise their rights in society. It offers a comprehensive review of social and legal approaches to social exclusion and inclusion. The second part introduces and analyzes domestic and international social and legal strategies to promote social inclusion for people with disabilities. The closing chapter highlights the role of morality, law, science, and media and technology in achieving inclusion.

Disability: The Basics is an engaging and accessible introduction to disability which explores the broad historical, social, environmental, economic and legal factors which affect the experiences of those living with an impairment or illness in contemporary society. The book explores key introductory topics including: the diversity of the disability experience; disability rights and advocacy; ways in which disabled people have been treated throughout history and in different parts of the world; the daily realities of living with an impairment or illness; health, education, employment and other services that exist to support and include disabled people; ethical issues at the beginning and end of life. Disability: The Basics aims to provide readers with an understanding of the lived experiences of disabled people and highlight the continuing gaps and barriers in social responses to the challenge of disability. This book is suitable for lay people, students of disability studies as well as students taking a disability module as part of a wider course within social work, health care, sociology, nursing, policy and media studies.

Championing the liberatory potential of silence to address the fraught disability politics of queerness In queer culture, silence has been equated with voicelessness, complicity, and even death. Queer Silence insists, however, that silence can be a generative and empowering mode of survival. Triangulating insights from queer studies, disability studies, and rhetorical studies, J. Logan Smilges explores what silence can mean for people whose bodyminds signify more powerfully than their words. Queer Silence begins by historicizing silence's negative reputation, beginning with the ways homophile activists rejected medical models pathologizing homosexuality as a disability, resulting in the silencing of disability itself. This silencing was redoubled by HIV/AIDS activism's demand for "out, loud, and proud" rhetorical activities that saw silence as capitulation. Reading a range of cultural artifacts whose relative silence has failed to attract queer attachment, from anonymous profiles on Grindr to ex-gays to belated gender transitions to disability performance art, Smilges argues for silence's critical role in serving the needs of queers who are never named as such. Queer Silence urges queer activists and queer studies scholars to reconcile with their own ableism by acknowledging the liberatory potential of silence, a mode of engagement that disattached queers use every day for resistance, sociality, and survival. Cover alt text: Background detail of a painting on canvas shows a partial view of the upper body and face of a figure, bearded and naked; title in painted script.

Making Rights a Reality? explores the way in which disability activists in the United Kingdom and Canada have transformed their aspirations into legal claims in their quest for equality. It unpacks shifting conceptualizations of the political identity of disability and the role of a rights discourse in these dynamics. In doing so, it delves into the diffusion of disability rights among grassroots organizations and the traditional disability charities. The book draws on a wealth of primary sources including court records and campaign documents and encompassing interviews with more than sixty activists and legal experts. While showing that the disability rights movement has had a significant impact on equality jurisprudence in two countries, the book also demonstrates that the act of mobilizing rights can have consequences, both intended and unintended, for social movements themselves.

Disability offers a new lens through which to view the effectiveness of access to justice, and the inclusiveness of the justice system as a whole. This book analyses the experience of people with disabilities through the entire justice system, from making a complaint, to investigation, and through the court/tribunal process. It also considers the participation of people with disabilities in a variety of roles in the justice system - as witness, defendant, complainant, plaintiff, lawyer, judge and juror. More broadly, it also critically examines the subtle barriers of access to justice which might exist in a given society - including barriers to grassroots disability advocacy, legal education and training, the right to vote and the right to stand for election which may apply to people with disabilities. The book is international and comparative in scope with a focus primarily on examples of legal practice and justice systems in common law countries. The work will be of interest to scholars working in the areas of human rights, equality and non-discrimination, disability rights activists and legal professionals who work with people with disabilities to achieve access to justice.

Disability studies scholars and activists have long criticized and critiqued so-termed 'charitable' approaches to disability where the capitalization of individual disabled bodies to invoke pity are historically, socially, and politically circumscribed by paternalism. Disabled individuals have long advocated for civil and human rights in various locations throughout the globe, yet contemporary human rights discourses problematically co-opt disabled bodies as 'evidence' of harms done under capitalism, war, and other forms of conflict, while humanitarian non-governmental organizations often use disabled bodies to generate resources for their humanitarian projects. It is the connection between civil rights and human rights, and this concomitant relationship between national and global, which foregrounds this groundbreaking book's contention that disability studies productively challenge such human rights paradigms, which troublingly eschew disability rights in favor of exclusionary humanitarianism. It relocates disability from the margins to the center of academic and activist debates over the vexed relationship between human rights and humanitarianism. These considerations thus productively destabilize able-bodied assumptions that undergird definitions of personhood in civil rights and human rights by highlighting intersections between disability, race, gender ethnicity, and sexuality as a way to interrogate the possibilities (and limitations) of human rights as a politicized regime.

"Sir, your sons have been in a car accident. How quickly can you get here?" Join Pastor Jeremy Freeman as he shares how the harrowing phone call that no parent wants to receive would lead to a miraculous outcome that only God could deliver. When Jeremy and Emily Freeman's teenage son Caleb was in a devastating car accident, doctors gave him a 10 percent chance of survival. Fear of losing a child was all too fresh for the Freemans--their seven-year-old son, Trey, had died just four years earlier from a genetic immunodeficiency. But God had other plans. In #butGod, Jeremy shares the incredible story of Caleb's recovery, the darkness that nearly overtook their family in the waiting, and the #butGod movement that captured the prayers of Christians around the world. #butGod includes heartfelt excerpts from Emily's prayer journal and encouragement from Jeremy that goes beyond platitudes to a hard-won trust in God's goodness. The Freeman family's incredible story offers: Greater understanding of the beauty God can bring through suffering An honest glimpse of how one family grew closer together despite grief, tension, and doubt A powerful example of how God works through the prayers of His people Hope that only God can provide Whatever sorrow you're walking through, #butGod leads you to the sweetness found in trusting God with suffering--and the deeper faith that comes from seeing His purpose in the pain. Praise for #butGod: "Pastor Jeremy Freeman and his family have endured crushing disappointment and heartbreak, but they've also experienced the redemptive and healing power of God. If you are facing significant challenges, Pastor Jeremy's book #butGod will build your faith and equip you with the strength to overcome." --Craig Groeschel, founder and senior pastor of Life.Church and New York Times bestselling author "There are some books that when you start reading you cannot put them down. #butGod is one of those books. This is an amazing story that will captivate you. You will laugh and cry. You will weep for sorrow and weep for joy. And in it all, you will see the amazing grace of God and His sustaining power and love for His children." --Dr. Daniel L. Akin, President, Southeastern Baptist Theological Seminary, Wake Forest, North Carolina

Bioethics and Disability provides tools for understanding the concerns, fears and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children and adults with disabilities, it proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases.

Produced in conjunction with Autism Spectrum Australia (Aspect), Australia's largest provider of services with people on the autism spectrum, this new text explores the experiences, needs and aspirations of adults on the spectrum. The volume utilises the structure of a recent survey (the only one of its type in Australia and one of few conducted internationally) and presents data from the study with contributions from adults on the spectrum to illustrate the findings with first person accounts and case studies. By drawing on these unique experiences, this valuable resource is presented in a way that will be both engaging and accessible for a wide range of readers.

Immigration history has largely focused on the restriction of immigrants by race and ethnicity, overlooking disability as a crucial factor in the crafting of the image of the "undesirable immigrant." Defectives in the Land, Douglas C. Baynton's groundbreaking new look at immigration and disability, aims to change this. In the late nineteenth and early twentieth centuries, Baynton explains, immigration restriction in the United States was primarily intended to keep people with disabilities-known as "defectives"-out of the country. The list of those included is long: the deaf, blind, epileptic, and mobility impaired; people with curved spines, hernias, flat or club feet, missing limbs, and short limbs; those unusually short or tall; people with intellectual or psychiatric disabilities; intersexuals; men of "poor physique" and men diagnosed with "feminism." Not only were disabled individuals excluded, but particular races and nationalities were also identified as undesirable based on their supposed susceptibility to mental, moral, and physical defects. In this transformative book, Baynton argues that early immigration laws were a cohesive whole-a decades-long effort to find an effective method of excluding people considered to be defective. This effort was one aspect of a national culture that was increasingly fixated on competition and efficiency, anxious about physical appearance and difference, and haunted by a fear of hereditary defect and the degeneration of the American race.

Using data from more than 40,000 soldiers of the Union army, this book focuses on the experience of African Americans and immigrants with disabilities, investigating their decision to seek government assistance and their resulting treatment. Pension administrators treated these ex-soldiers differently from native-born whites, but the discrimination was far from seamless - biased evaluations of worthiness intensified in response to administrators' workload and nativists' late-nineteenth-century campaigns. This book finds a remarkable interplay of social concepts, historical context, bureaucratic expediency, and individual initiative. Examining how African Americans and immigrants weighed their circumstances in deciding when to request a pension, whether to employ a pension attorney, or if they should seek institutionalization, it contends that these veterans quietly asserted their right to benefits. Shedding new light on the long history of challenges faced by veterans with disabilities, the book underscores the persistence of these challenges in spite of the recent revolution in disability rights.

The pressures Asian Americans feel to be socially and economically exceptional include an unspoken mandate to always be healthy. Nowhere is this more evident than in the expectation for Asian Americans to enter the field of medicine, principally as providers of care rather than those who require care. Pedagogies of Woundedness explores what happens when those considered model minorities critically engage with illness and medicine whether as patients or physicians. James Kyung-Jin Lee considers how popular culture often positions Asian Americans as medical authorities and what that racial characterization means. Addressing the recent trend of writing about sickness, disability, and death, Lee shows how this investment in Asian American health via the model minority is itself a response to older racial forms that characterize Asian American bodies as diseased. Moreover, he pays attention to what happens when academics get sick and how illness becomes both methodology and an archive for scholars. Pedagogies of Woundedness also explores the limits of biomedical "care," the rise of physician chaplaincy, and the impact of COVID. Throughout his book and these case studies, Lee shows the social, ethical, and political consequences of these common (mis)conceptions that often define Asian Americans in regard to health and illness.

Risk Assessment in People with Learning Disabilities, Second Edition reflects legislative updates made over the past decade while continuing to demystify the process of assessing risk for people with intellectual impairment (previously called 'learning disabilities'). * Revisits techniques of risk assessment outlined in First Edition in light of the recent legislative changes, most notably the 2005 Mental Capacity Act * Covers methods of assessing a person's capacity to consent in a range of situations, from the everyday, to complex medical or psychological scenarios * Covers implications of new guidelines issued in relation to the Care Programme Approach (CPA)

Much has been written about cognitive development in those who are cognitively impaired. Much is written about attachment for people who don't have disabilities. Yet people with disabilities have suffered discrimination and neglect of their emotional needs, perhaps because the pain of difference cannot be tolerated, perhaps because of lack of will or lack of knowledge. This book aims to help to fill the knowledge gap and to encourage others to overcome their resistance to facing the pain, and will be an important contribution to our understanding of the world of disability and emotional deprivation. In this book - a result of over twenty years experience with people who have disabilities and additional distress as a result of traumatic life experiences - an attempt is made to bring together what we know about early emotional development and the consequences of failure to provide an emotionally nurturing experience, and the results are then applied to people with disabilities.

The social position of learning disabled people has shifted rapidly over the last 20 years, from long-stay institutions, first into community homes and day centres, and now to a currently emerging goal of "ordinary lives" for individuals using person-centred support and personal budgets. These approaches promise to replace a century and a half of "scientific" pathological models based on expert assessment, and of the accompanying segregated social administration which determined how and where people led their lives, and who they were. This innovative volume explains how concepts of learning disability, intellectual disability and autism first came about, describes their more recent evolution in the formal disciplines of psychology, and shows the direct relevance of this historical knowledge to present and future policy, practice and research. Goodey argues that learning disability is not a historically stable category and different people are considered "learning disabled" as it changes over time. Using psychological and anthropological theory, he identifies the deeper lying pathology as "inclusion phobia", in which the tendency of human societies to establish an in-group and to assign out-groups reaches an extreme point. Thus the disability we call "intellectual" is a concept essential only to an era in which to be human is essentially to be deemed intelligent, autonomous and capable of rational choice. Interweaving the author's historical scholarship with his practice-based experience in the field, Learning Disability and Inclusion Phobia challenges myths about the past as well as about present-day concepts, exposing both the historical continuities and the radical discontinuities in thinking about learning disability.

Disability is a widespread phenomenon, indeed a potentially universal one as life expectancies rise. Within the academic world, it has relevance for all disciplines yet is often dismissed as a niche market or someone else's domain. This collection explores how academic avoidance of disability studies and disability theory is indicative of social prejudice and highlights, conversely, how the academy can and does engage with disability studies. This innovative book brings together work in the humanities and the social sciences, and draws on the riches of cultural diversity to challenge institutional and disciplinary avoidance. Divided into three parts, the first looks at how educational institutions and systems implicitly uphold double standards, which can result in negative experiences for staff and students who are disabled. The second part explores how disability studies informs and improves a number of academic disciplines, from social work to performance arts. The final part shows how more diverse cultural engagement offers a way forward for the academy, demonstrating ways in which we can make more explicit the interdisciplinary significance of disability studies - and, by extension, disability theory, activism, experience, and culture. Disability, Avoidance and the Academy: Challenging Resistance will interest students and scholars of disability studies, education studies and cultural studies.

People with disabilities are among the most adversely affected during conflict situations or when natural disasters strike. They experience higher mortality rates, have fewer available resources and less access to help, especially in refugee camps, as well as in post-disaster environments. Already subject to severe discrimination in many societies, people with disabilities are often overlooked during emergency evacuation, relief, recovery and rebuilding efforts. Countries party to the UN Convention on the Rights of Persons with Disabilities must take all necessary measures to ensure the protection and safety of people with disabilities during situations of armed conflict, humanitarian emergencies, and natural disasters. Such aid should be designed to support preparedness, response, recovery and rebuilding. This book includes perspectives from around the globe and explores the implications at the policy, programme, and personal level, discussing issues such as: How can national laws, policies, and regulations provide guidance, methods and strategies to integrate and coordinate inclusive emergency management? What should people with disabilities know in order to be prepared for emergency situations? What lessons have we learned from past experiences? What are the current shortfalls (physical and cultural) that put people with disabilities at risk during emergencies and what can be done to improve these situations (e.g. through new technologies and disaster planning)? How does disability affect people's experiences as refugees and other displaced situations; what programmes and best practices are in place to protect and promote their rights during their period of displacement? How must disabled people with disabilities be factored in to the resettlement and rebuilding process; does an opportunity for ensuring universal access exist in the rebuilding process? What is the impact of disasters and conflicts on such special populations as disabled women, disabled children, and those with intellectual disabilities? Spotlighting a pressing issue that has long been neglected in emergency planning fields, this innovative book discusses how to meet the needs of people with disabilities in crises and conflict situations. It is an important reference for all those working in or researching disability and inclusion, and emergency and disaster management, both in developed and developing countries.

Literature and Disability introduces readers to the field of disability studies and the ways in which a focus on issues of impairment and the representation of disability can provide new approaches to reading and writing about literary texts. Disability plays a central role in much of the most celebrated literature, yet it is only in recent years that literary criticism has begun to consider the aesthetic, ethical and literary challenges that this poses. The author explores: key debates and issues in disability studies today different forms of impairment, with the aim of showing the diversity and ambiguity of the term "disability" the intersection between literary critical approaches to disability and feminist, post-colonial, and autobiographical writing genre and representations of disability in relation to literary forms including novels, short stories, poems, plays and life writing This volume provides students and academics with an accessible overview of literary critical approaches to disability representation.