First published in 1975, this book looks at the place of children with handicaps in society, at that time. It argues that in the thirty years previous, a great deal of progress was made in the field of rehabilitation but that the separation between handicapped people and the community was still a challenge. A strong range of contributors discuss approaches to the problem focusing on education, employment, and daily life. Topics covered include the social aspects of integration, through the problems of the multiple-handicapped child, to a survey of disabled students at universities and polytechnics in Great Britain.

First published in 1986, this book reviews research on the role parents play in fostering the early development of children with mental handicaps. Professionals and parents must work together to give such children the chance of living as ordinary lives as possible and here, the author develops a broadly-based conceptual framework for the involvement of parents as teachers of their young handicapped children. McConachie identifies characteristics of parents which seem of particular relevance to the design and success of intervention programmes. Although written in the 1980s, this book discusses topics that are still important today.

First published in 1984, this book focuses on the support and reassurance needed by parents of children with handicaps. It provides a practical guide in relation to daily care and is equally as relevant to professionals, therapists, teachers, doctors and psychologists who must advise parents. Written by an Occupational Therapist, the book highlights the need to make such children as independent as possible and gives advice on care of a special baby, modifications to the home environment, the needs of a child with a physical handicap, problems of educational handicap, and the place of a child in the family and community.

This is the first book-length study of physical disability in eighteenth-century England. It assesses the ways in which meanings of physical difference were formed within different cultural contexts, and examines how disabled men and women used, appropriated, or rejected these representations in making sense of their own experiences. In the process, it asks a series of related questions: what constituted 'disability' in eighteenth-century culture and society? How was impairment perceived? How did people with disabilities see themselves and relate to others? What do their stories tell us about the social and cultural contexts of disability, and in what ways were these narratives and experiences shaped by class and gender? In order to answer these questions, the book explores the languages of disability, the relationship between religious and medical discourses of disability, and analyzes depictions of people with disabilities in popular culture, art, and the media. It also uncovers the 'hidden histories' of disabled men and women themselves drawing on elite letters and autobiographies, Poor Law documents and criminal court records.

In Approaches to Social Research: The Case of Deaf Studies, Alys Young and Bogusia Temple explore the relationship between key methodological debates in social research and the special context of studies concerning d/Deaf people(s). The book is organized around 7 topics: being d/Deaf as a site of contested identity and representation; epistemology and the boundaries of claims for population specific and plural epistemologies; ethics and the implications of collective identity on standard ethical principles and practices; populations and sampling given the highly heterogeneous nature of d/Deaf people(s); narrative methodologies re-examined in light of the visual nature of signed languages; interpretation, translation and transcription and the context of multiple modalities; and information and communication technologies as transformative epistemologies. Through these themes, new aspects of old debates within social research become evident, and the authors challenge specialist field of studies by, with, and about d/Deaf people. Throughout the volume, the authors also show how the field provides challenges to established ways of thinking and working. The book is of interest to scholars within and outside of research concerning d/Deaf people(s), as well as practitioners in the fields of deaf education, social work and allied health professions.

Research has long substantiated the fact that living with a disability creates significant and complex challenges to identity negotiation, the practice of communication, and the development of interpersonal relationships. Furthermore, individuals without disabilities often lack the knowledge and tools to experience self-efficacy in communicating with their differently-abled peers. So how do these challenges translate to the incorporation of disability studies in a classroom context and the need to foster an inclusive environment for differently-abled students? Bringing together a range of perspectives from communication and disability studies scholars, this collection provides a theoretical foundation along with practical solutions for the inclusion of disability studies within the everyday curriculum. It examines a variety of aspects of communication studies including interpersonal, intercultural, health, political and business communication as well as ethics, gender and public speaking, offering case study examples and pedagogical strategies as to the best way to approach the subject of disability in education. It will be of interest to students, researchers and educators in communication and disability studies as well as scholars of sociology and social policy, gender studies, public health and pedagogy. It will also appeal to anyone who has wondered how to bring about a greater degree of inclusion and ethics within the classroom.

Being an 'active citizen' involves exercising social rights and duties, enjoying choice and autonomy, and participating in political decision-making processes which are of importance for one's life. Amid the new challenges facing contemporary welfare states, debate over just how 'active' citizens can and ought to be has redoubled. Presenting research from the first major comparative and cross-national study of active citizenship and disability in Europe, this book analyses the consequences of ongoing changes in Europe - what opportunities do persons with disabilities have to exercise Active Citizenship? The Changing Disability Policy System: Active Citizenship and Disability in Europe Volume 1 approaches the conditions for Active Citizenship from a macro perspective in order to capture the impact of the overall disability policy system. This system takes diverse and changing forms in the nine European countries under study. Central to the analysis are issues of coherence and coordination between three subsystems of the disability policy system, and between levels of governance. This book identifies the implications and policy lessons of the findings for future disability policy in Europe and beyond. It will appeal to policymakers and policy officials, as well as to researchers and students of disability studies, comparative social policy, international disability law and qualitative research methods.

The provision of assistive technology is an important individual and collective service of the welfare state. The state plays a significant role towards linking users and products, and the matching of devices and users is both a science and an art. However, many people feel it is stigmatising to use individually designed assistive technologies as they often, in a subtle way, convey discriminating barriers in society. The major challenges of assistive technology are thus to reduce social exclusion and marginalisation and, importantly, to reduce individual risks and societal costs related to non-use due to deficiencies in usability, aesthetics and design of the technologies. This groundbreaking book discusses the relationships among society, disability and technology by using different empirical examples (e.g., school, everyday life) to show why the combination of disability studies and STS-studies (science, technology and society) is a fruitful approach to understanding and meeting these challenges. The book explores the significance of the technologies for users, society and the field; identifies challenges to designing, adopting and using assistive technologies; and points at theoretical challenges in research as well as professional challenges in assistive technology service provision. The book also scrutinises the role of assistive technology devices, as well as the organisational structure of the assistive technology market, in relation to disabled people's lives. This book will be valuable reading for students, academics, teachers and social educators interested in Disability Studies, STS Studies, Product Design, Sociology, Occupational Therapy and Physiotherapy, as well as engineers working in the field of assistive technology.

First published in 1985, this book considers the financial consequences of parents and other relatives caring for severely disabled children at home. At the time of publication little reliable information was available on the costs incurred by 'informal carers', which this book set to rectify. The volume interweaves hard statistical material about money with the detailed personal responses of parents. It examines the claim that disablement in a child reduces parents' earnings while simultaneously creating an extra expense. The author compares the incomes and expenditure patterns of more than 500 families with disabled children and 700 control families of the time showing that the financial effects of disablement in a child can be far-reaching and pervasive. This book discusses contemporary policy implications of these findings in a chapter dealing with the rational for compensating families with disabled children, and in the final chapter. Although the book was original published in 1985, it references issues that are still important today and, whilst its main concern is families with disabled children, it will also be useful to anyone caring for other kinds of dependent people, such as the elderly.

First published in 1990, this book was the first informed study to focus on care within the voluntary sector. Written with the child in mind, it is a sensitive work which explores the administration, strategy, and problems facing carers in children's homes, at that time. Centring on small, community-based facilities, the authors discuss the processes involved in setting up and running such facilities. They examine the difficulties of evaluating progressive services that are influenced by the philosophy of normalisation, and highlight the lessons from which other providers of services are able to learn. Written by experienced researchers with contributions from service managers, Normalisation in Practice offers pragmatic advice on managing innovation efficiently without neglecting the needs of the child. Detailed interviews are combined with theoretical insight to provide an important guide for students and practitioners and a model for academics undertaking evaluative research. Although written at the start of the 1990s, this book contains discussions and material that are still very relevant to the subject today.

First published in 1986, this study explores the increased public concern with policies of 'community care' and their effects on informal carers, at that time. It looks at the widespread evidence that one particular group of informal carers- parents looking after their severely disabled child- lack information, advice and a co-ordinated pattern of supporting services. The author, who carried out research on disabled children and their families for a number of years, describes in detail a low-cost experimental project in which specialist social workers set out to remedy these shortcomings. Drawing on the results of this particular study, the author argues strongly for widespread assignment of 'key' social workers to this and other groups of informal carers. Despite being written in the mid-1980s, this book discusses topic that will still be of interest and use today.

First published in 1989, this book is about integrating or mainstreaming policies, looking specifically at how to improve circumstances for schoolchildren with disabilities or handicaps, and their teachers. The author draws on her experiences, both within and outside the academic institution, to conceptualise and theorise policy, so as to place this policy in a political framework and locate it in a wider model of social life. This model is then used to disentangle the nature and effects of policy practices surrounding integration and mainstreaming, looking at practice in various parts of Europe, the US and Australia, at that time. Although written at the end of the 1980s, this book discusses topics that are still relevant today.

Music has long been a way in which visually impaired people could gain financial independence, excel at a highly-valued skill, or simply enjoy musical participation. Existing literature on visual impairment and music includes perspectives from the social history of music, ethnomusicology, child development and areas of music psychology, music therapy, special educational needs, and music education, as well as more popular biographical texts on famous musicians. But there has been relatively little sociological research bringing together the views and experiences of visually impaired musicians themselves across the life course. Insights in Sound: Visually Impaired Musicians' Lives and Learning aims to increase knowledge and understanding both within and beyond this multifaceted group. Through an international survey combined with life-history interviews, a vivid picture is drawn of how visually impaired musicians approach and conceive their musical activities, with detailed illustrations of the particular opportunities and challenges faced by a variety of individuals. Baker and Green look beyond affiliation with particular musical styles, genres, instruments or practices. All 'levels' are included: from adult beginners to those who have returned to music-making after a gap; and from 'regular' amateur and professional musicians, to some who are extraordinarily 'elite' or 'successful'. Themes surrounding education, training, and informal learning; notation and ear playing; digital technologies; and issues around disability, identity, opportunity, marginality, discrimination, despair, fulfilment, and joy surfaced, as the authors set out to discover, analyse, and share insights into the worlds of these musicians.

Two cogent arguments about end-of-life careand carefully reasoned responses from experts End-of-Life Care: Bridging Disability and Aging with Person Centered Care features two primary papers on the controversial issue of end-of-life care within the disabled and aging populations. Each paper explainsclearly and honestlythe multitude of issues involved in using person centered care. The first is from a father and nationally known advocate for the disabledRud Turnbullspeaking from a disability perspective about his disabled son. The second is from respected theologian M. J. Iozzio speaking from the aging perspective about her father's Alzheimer's disease. Responses from experts in the field follow, thoughtfully raising further points to consider about policies, ethics, quality of life, and consent. The two central papers from End-of-Life Care focus on person centered, interdependent care using the personal reflections of two close family members and their views about end-of-life care. The responses that follow each are direct, thoughtful, and concentrate on the issues in end-of-life planning using person centered care. This difficult and important issue is discussed in detail by lawyers, theologians, clinical practitioners, and professional service providers, and includes several revealing personal stories about end-of-life experiences. Helpful resources for both policy and practice are also presented to assist the reader to learn more. End-of-Life Care discusses: who, how, and on what grounds end-of-life decisions should be made for the developmentally/intellectually disabled best practices information from Volunteers of America's Last Passages project the unique challenges faced by individuals with disabilities and their families when confronting issues of death and dying the protection of the rights of the disabled from discrimination person centered care for the aging with complicating health conditions like Alzheimer's Disease helping all people to clearly communicate their end-of-life wishes End-of-Life Care explores explores policy, theological, and personal dimensions of end of life care, and the ways that person centered care can bridge the fields of aging and disabilty.

The London 2012 Paralympic Games - the biggest, most accessible and best-attended games in the Paralympics' 64-year history - came with an explicit aim to "transform the perception of disabled people in society," and use sport to contribute to "a better world for all people with a disability." This social agenda offered the potential to re-frame disability; to symbolically challenge "ableist" ideology and to offer a reinvention of the (dis)abled body and a redefinition of the possible. This edited collection investigates what has and is happening in relation to these ambitions. The book is structured around three key questions: 1. What were the predominant mediated narratives surrounding the Paralympics, and what are the associated meanings attached to them? 2. How were the Paralympics experienced by media audiences (both disabled and non-disabled)? 3. To what extent did the 2012 Paralympics inspire social change? Each section of this book is interspersed with authentic "voices" from outside academia: broadcasters, athletes and disabled schoolchildren.

The first book to focus on non-traditional, emerging disabilities and their implications for rehabilitation practice. Emerging disabilities are disabling conditions that are either new to medical science, often medically debated, and lacking in known etiology; or those increasing in prevalence in recent years. This master's level text is the first to eschew traditional disabilities to focus specifically on the unique characteristics and needs of individuals with emerging disabilities (i.e. multiple chemical sensitivity, fibromyalgia, Lyme disease) or those currently increasing in prevalence (i.e. diabetes, autism, PTSD), and explore their implications for rehabilitation counseling practice. The text is also unique in its examination of how disability causes, types, and patterns are changing in response to current medical, social, cultural, and environmental trends and in addressing necessary changes to rehabilitation policies and practices to better serve consumers with emerging disabilities. The book explores important sociological and environmental phenomena such as global warming, pollution, poverty, violence, migration patterns, addiction,and substance abuse, and the changing age demographic of the U.S. that has altered the landscape of disability policy and rehabilitation services in the 21st century. Each chapter provides specific examples of disabling conditions and discusses their medical, psychosocial, and vocational significance. The authors examine implications for rehabilitation assessment, planning and placement, and emphasize changes needed to rehabilitation policy and practice. The text is replete with practical evidence-based strategies for meeting the psychosocial and vocational needs of people with emerging disabilities. Each chapter includes case examples, learning objectives, and discussion questions. An instructor's manual accompanies the textbook. Key Features: Describes disabling conditions either new to medical science or increasing in prevalence in modern society Examines socio-cultural, environmental, and legislative trends that have resulted in emerging disabilities Delivers policy, programming, and research recommendations to improve services and supports for Americans with emerging disabilities Provides practical, evidence-based strategies for meeting the psychosocial and vocational needs of people with emerging disabilities Includes learning objectives, case examples, instructor's manual, Power Points, syllabus, and test bank

Feminist Perspectives on Disability provides a unique introduction to the key debates in relation to both feminism and disability. The author considers contemporary similarities, differences and contentious areas and how concepts drawn from postmodern feminism can be usefully applied to the disability arena. The book explores many important aspects of the field, including: biological debates; issues of power, knowledge, equality, difference, subjectivity and the body; interface of public and private/care and community; medical and social barriers; politics, citizenship and identity. Feminist Perspectives on Disability will be compulsory reading for students of all levels in Women's Studies, Gender Relations, Social Policy, Social Work/Social Care and social Science.

In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs' experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children's rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.

Disability rights advocates in the United Kingdom and the United States recently embraced new media technologies in unexpected and innovative ways. This book sheds light on this process of renewal and asks whether the digitalisation of disability rights advocacy can help re-configure political participation into a more inclusive experience for disabled Internet users, enhancing their stakes in democratic citizenship. Through the examination of social media content, Web link analysis, and interviews with leading figures in grassroots groups on both sides of the Atlantic, Filippo Trevisan reveals the profound impact that the Internet has had on disability advocacy in the wake of the austerity agenda that followed the 2008 global financial crisis. In Britain, a new, tech-savvy generation of young disabled self-advocates has emerged from this process. The role of social media platforms such as Facebook in helping politically inexperienced users make sense of complex policy changes through the use of personal stories is discussed also. In addition, this book explains why British disability advocates adopted more innovative and participatory strategies compared to their American counterparts when faced with similar policy crises. This book reviews the implications of this unexpected digital transformation for the structure of the disability rights movement, its leadership, and the opportunity for disabled citizens to participate fully in democratic politics vis-a-vis persisting Web access and accessibility barriers. An original perspective on the relationship between disability and the Internet, and an indispensable read for scholars wishing to contextualize and enrich their knowledge on digital disability rights campaigns vis-a-vis the broader ecology of policymaking.

Produced in conjunction with Autism Spectrum Australia (Aspect), Australia's largest provider of services with people on the autism spectrum, this new text explores the experiences, needs and aspirations of adults on the spectrum. The volume utilises the structure of a recent survey (the only one of its type in Australia and one of few conducted internationally) and presents data from the study with contributions from adults on the spectrum to illustrate the findings with first person accounts and case studies. By drawing on these unique experiences, this valuable resource is presented in a way that will be both engaging and accessible for a wide range of readers.

How do you become an 'amputee', 'war-wounded', 'victim' or 'disabled' person? This book describes how an amputee and war-wounded community was created after a decade long conflict (1991-2002) in Sierra Leone. Beginning with a general socio-cultural and historical analysis of what is understood by impairment and disability, it also explains how disability was politically created both during the conflict and post-conflict, as violence became part of the everyday. Despite participating in the neoliberal rebuilding of the nation state, ex-combatants and the security of the nation were the government's main priorities, not amputee and war-wounded people. In order to survive, people had to form partnerships with NGOs and participate in new discourses and practices around disability and rights, thus accessing identities of 'disabled' or 'persons with disabilities'. NGOs, charities and religious organisations that understood impairment and disability were most successful at aiding this community of people. However, since discourse and practice on disability were mainly bureaucratic, top-down, and not democratic about mainstreaming disability, neoliberal organisations and INGOs have caused a new colonisation of consciousness, and amputee and war-wounded people have had to become skilled in negotiating these new forms of subjectivities to survive.

Whilst legislation may have progressed internationally and nationally for disabled people, barriers continue to exist, of which one of the most pervasive and ingrained is attitudinal. Social attitudes are often rooted in a lack of knowledge and are perpetuated through erroneous stereotypes, and ultimately these legal and policy changes are ineffectual without a corresponding attitudinal change. This unique book provides a much needed, multifaceted exploration of changing social attitudes toward disability. Adopting a tripartite approach to examining disability, the book looks at historical, cultural, and education studies, broadly conceived, in order to provide a multidisciplinary and interdisciplinary approach to the documentation and endorsement of changing social attitudes toward disability. Written by a selection of established and emerging scholars in the field, the book aims to break down some of the unhelpful boundaries between disciplines so that disability is recognised as an issue for all of us across all aspects of society, and to encourage readers to recognise disability in all its forms and within all its contexts. This truly multidimensional approach to changing social attitudes will be important reading for students and researchers of disability from education, cultural and disability studies, and all those interested in the questions and issues surrounding attitudes toward disability.

Focusing on contemporary childhood disability issues, and relevant to the lived experiences of disabled children and young people and their families, this book addresses themes such as transition, identity, education, inclusion, and service provision. It also includes insightful contributions on participatory research and practice with disabled children and young people, including an emphasis on capability, voice, and communicative spaces for those with life limiting and more severe levels of impairment. The contributions to this book are grounded in a commitment to the rights of disabled children and young people, as explicitly recognised under the United Nations Conventions on the Rights of the Child (1989) and Rights of Persons with Disabilities (2006). However, the authors also draw our attention to the detrimental impact of economic austerity and conflict on the extent to which these rights are being realised, encouraging further consideration of issues relating to social justice, inter-dependence, and participation. Addressing the diversity of disabled children's lives across service domains and international contexts, this book provides an evidence base to support the realisation of the rights of disabled children and young people. This book was originally published as a special issue of Child Care in Practice.

What are the unconscious fantasies circulating in representations of disability? What role do these fantasies play in defining the condition of disability? What can these fantasies teach us about human vulnerability writ large? The Fantasy of Disability explores how popular culture texts, such as Degrassi: The Next Generation and Glee, fantasize about what life with a physical disability must be like, while at the same time exerting tremendous pressure on disabled individuals to conform their identity and behaviour to fit within the margins of these societally perpetuated archetypes. Rather than merely engaging with how disability is represented, though, this text investigates how representations of disability reveal their nondisabled producers to be perpetually anxious subjects, doomed to fear not just the disabled subject but the very reality of disability lurking within. Situated at the nexus of disability studies, media studies and psychology, this text presents an innovative way of analyzing representations of disability in popular culture, inverting the psychoanalytic gaze back upon the nondisabled to investigate how disability can become a lens through which to interrogate the normate subject.

Representing Youth with Disability on Television is a complex and multidimensional mainstream cultural discourse that examines specific stereotypes in fictional programming. The book draws attention to the group labeled as disabled, which is often marginalized, misrepresented, and misunderstood in the media, by analyzing the popular television programs Glee, Breaking Bad, and Parenthood. To obtain a more rigorous account of the way that youth (9-18 years of age) with disability are framed on television, this analysis examines the following issues: how research on popular culture is contextualized within social theory; the theoretical perspectives on representations of disability in popular culture; and the various contexts, genres, media, representations, and definitions of youth with disability in popular culture. The text also outlines the historical growth of disability, which is crucial for a discussion regarding the changing dimensions of popular culture. Critical hermeneutics, content analysis, and methodological bricolage are the melange of methodologies used to closely examine the dominant models of disability (social vs. medical) used in the portrayal of disabled youth on television today.