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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
This book explores what happens to people with profound intellectual and multiple disabilities (PIMD) when they reach adulthood. It provides an examination of various terms and definitions in use and a critical exploration of current UK policies. The author brings a wealth of many years' experience as a family carer, independent consultant and trainer to demonstrate the significant changes that a person-centred, specialised therapeutic and incremental approach can make to an individual's life. Advances in medical science mean more than ever, people with (PIMD) are growing into adulthood. What is this experience like for an adult who needs support in all aspects of their life? How do we include them in planning support when their intellectual disability means they cannot tell us first hand, what they want or need? Too often this group are overlooked or considered as an afterthought in policy and planning. Notions of independence, employment and mainstream inclusion are all problematic policy ideas for this group of people. Within one-size-fits-all service planning this focus means there is less capacity to meet their life-long specialist, complex and individualised needs. Understanding Profound and Intellectual and Multiple Disabilities in Adults is essential reading for anyone who is involved in the lives of adults with profound intellectual and multiple disabilities, whether as a researcher, student, carer or policy-maker.
Inspired by the author's personal experience of sustaining acquired brain injury (ABI), this path-breaking book explores the (re)construction of identity after ABI. It offers a way of understanding ABI through a social scientific lens, promoting an understanding that is generated through close engagement with the lives and experiences of ABI survivors. The author follows the everyday experiences of six male survivors and critically investigates their identity (re)construction after their ABI. As well as demonstrating identity (re)construction after ABI, the experiences of the participants allow the reader to investigate neurological rehabilitation from their perspective. This book suggests that rehabilitation after ABI is often a continual process that extends beyond the formal, medically prescribed period. It also shows that identity after ABI is often (re)constructed in an unpredictable way; a way that emphasises the importance of reciprocal support and the uncertainty of future life. A Sociological Approach to Acquired Brain Injury and Identity is essential reading for academics and students from a range of social scientific disciplines with an interest in biographical or ethnographic research methods. This book offers a social scientific view of rehabilitation and as such is also essential reading for academics, students and professionals with an interest in health and illness, particularly neurological rehabilitation and brain injury rehabilitation.
This book is a case study which narrates the history of the National Organization of the Spanish Blind (ONCE), established in 1937 during the Spanish Civil War. Contrary to other affluent countries where most blind people live on welfare benefits, the Spanish blind enjoy full employment. Furthermore, the average income of the Spanish blind is higher than that of the sighted. Why is this so? Why the blind, and not the deaf mute, or any other group of disabled people? This book shows that ONCE answers these questions. The book explains ONCE'S origins, the shifting strategies that the organization has pursued to adapt to an ever-changing environment, its original goals and the way they have mutated and been interpreted, its conflicting relationship with an authoritarian regime, its struggle to find its place in a democratic regime, and its relations with other groups of disabled people. A historical narrative, the book lies at the intersection between disability and organization studies, history and sociology. It will be of interest to all scholars of disability studies, the sociology of work, the history of medicine and contemporary Spanish history.
A presentation of research on disability in 2003, this text provides extensive coverage on the development of thinking cultures of disability; development of the social model of disability; disability and the politcs of social justice; and media treatement of disability, amongst other issues.
Disability and Social Representations Theory provides theoretical and methodological knowledge to uncover the public perception of disabilities. Over the last decade there has been a significant shift from body to environment, and the relation between the two, when understanding the phenomenon of disabilities. The current trend is to view disabilities as the outcome of this interaction; in short from a biopsychosocial perspective. This has called for research based on frameworks that incorporate both the body and the environment. There is a great corpus of knowledge of the functions of a body, and a growing corpus of environmental factors such as perceptions among specific groups of persons towards disabilities. However, there is a lack of knowledge of the perception of disabilities from a general population. This book offers an insight into how we can broaden our understanding of disability by using Social Representations Theory, with specific examples from studies on hearing loss. The authors highlight that attitudes and actions are outcomes of a more fundamental disposition (i.e., social representation) towards a phenomenon like disability. This book is written assuming the reader has no prior knowledge of Social Representations Theory. It will be of interest to all scholars, students and professionals working in the fields of disability studies, health and social care, and sociology.
Deaf adults and children, like their hearing counterparts, experience a full range of mental health problems. They develop psychoses, sink into deep depressions, abuse alcohol and drugs, commit sexual offenses, or simply have trouble adjusting to new life situations. But when a deaf client appears on the doorstep of an ordinary hospital, residential facility, clinic, or office, panic often ensues. Mental Health Care of Deaf People: A Culturally Affirmative Approach, offers much-needed help to clinical and counseling psychologists, psychiatrists, social workers, nurses, and other mental health professionals--and to their program administrators. The editors, a psychologist and a psychiatrist, and the authors, leading authorities with a variety of expertises, systematically review the special needs of deaf patients, particularly those who regard themselves as "culturally Deaf," and provide professionals with the tools they need to meet those needs. Among these tools is an extensive "library" of pictorial questionnaires and information sheets developed by one of the very few psychiatric units in the country devoted to the deaf. These handouts greatly simplify the processes involved in the diagnosis and treatment of people who in many cases are not good readers--for example, explaining medication and inquiring about side-effects. The handouts are reproduced on downloadable resources, to enable purchasers to print out and use copies in their work. This comprehensive clinical guide and its accompanying downloadable resources constitute vital resources for all those who seek to provide sensitive, effective mental health care to deaf people.
For people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumaci draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumaci shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls "activist affordances." Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumaci shows how disabled people's activist affordances present the potential for a more liveable and accessible world for all of us.
This book promotes a positive message for people with Down syndrome across the world. Living with Down Syndrome is a positive experience for the majority of children and adults with Down syndrome, and for their families. Of course there are difficulties to be faced, but quality of life, from infancy to old age, is determined more by the quality of healthcare, education and social inclusion offered to individuals, than by the developmental difficulties that are associated with Down syndrome. The aim of this book is to bring the latest information on research and good practice to families, practitioners and policy makers in order improve the services available to individuals with Down syndrome in all countries.
Dyslexia is a condition that is widely misunderstood in the world of work. Adult Dyslexia: A Guide for the Workplace shows why small and large employers should be aware of European laws on anti-discrimination and dyslexia. It provides practical advice on how to identify dyslexics in the workplace, how to create the right environment for them to thrive and how organizations can make the transition from a framework that perceives dyslexia as a problem to one that perceives it as a solution. Throughout the book, real-life case studies illustrate the points being made and a number of invaluable practical resources are available including an appendix of useful organizations, an adult dyslexia screening check list and a seven-step procedure for counselling adult dyslexics. Gary Fitzgibbon and Brian O'Connor have varied and extensive experience of both advising organizations on adult dyslexia issues and providing assessment, counselling and training services to adult dyslexics. Their book is an essential resource for disability specialists, occupational psychologists, counsellors, HR managers, teachers/lecturers of adults and importantly, dyslexics and their families.
What happens when a group traditionally defined as lacking the necessary capacities of citizenship is targeted by government programs that have made 'citizenship inclusion' their main goal? Combining theoretical perspectives of political philosophy, social theory, and disability studies, this book untangles the current state of Western intellectual disability politics following the replacement of state institutionalisation by independent and supported living, individual rights, and self-determination. Taking its cue from Foucault's conception of 'biopolitics', denoting the government of the individuals and the totality of the population, its overarching argument is that the ambiguous positioning of people with intellectual disabilities with respect to the ideals of citizenship results in a regime of government that simultaneously includes and excludes people of this group. On the one hand, its members are projected to become ideal-citizens via the cultivation of citizenship capacities. On the other, the right to live independently and by their own choices is curtailed as soon as they are seen as failing with respect to the ideals of reason and rationality. Therefore, coercion, restraints, and paternalism, which were all supposed to end with deinstitutionalisation, are still ingrained in services targeting the group. In equal parts a theoretical work, advancing debates of critical disability theory, social theory, and post-structural philosophy, as well as an empirical engagement with the history of intellectual disability politics and the ways in which present day politics target the group, this book will be of interest to all students and scholars of disability studies, disability politics, and political theory.
First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children's lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.
This book explores the economic situation of disabled people in developing countries focusing on rehabilitation and uses particpatory framework to community development. Although dealing specifically with a case study from Jordan, this needs assessment study provides comparisons with other developing societies. The author considers the prospect for future improvement in disability policy at a time when state budgets are already over stretched by widespread poverty, unemployment and poor health conditions. The book is divided into three parts. Part one explores disability and economic rehabilitation within global context and sets the scene for understanding what disability is and the impact of having disability across cultures with emphasis on the experience of discrimination. Part two deals with disability theory and practice in Jordan in terms of economic policies and provisions available for disabled people. Part three presents concluding remarks on the rise of disability politics in developing countries and the development of a participatory policy agenda.
This book focuses on the clinical treatment of disability from French researchers in the fields of psychology, anthropology, psychiatry, and philosophy. It provides English-speaking readers with an insight into the way French authors raise the relevant issues and implement innovative practices.
Identity (Re)constructions After Brain Injury: Personal and Family Identity investigates how being diagnosed with acquired brain injury (ABI) impacts identity (re)construction in both adults with ABI and their close relatives. To show how being diagnosed with ABI impacts identity (re)construction, this book investigates key patterns of identity construction. Discourse analysis, especially on the concept of positioning, provides an understanding of the changes and developmental processes in these self-narratives. These narrative (re)constructions point to a developmental change of identity in the course of the different phases of the recovery process for both persons with ABI and their relatives, including conflicting voices from society, service providers, relatives, and other adults with ABI. In addition, the (re)construction process is characterized by much ambivalence in both ABI survivors and relatives. Three perspectives are triangulated: (1) an insider perspective from ABI survivors; (2) an insider perspective from relatives; and (3) an outsider perspective from the researchers. This allows us to see how identities are negotiated and constructed in concrete situations. This innovative book will be required reading for all students and academics working in the fields of disability studies, rehabilitation psychology, sociology, allied health, and social care.
Rethinking the Sociology of Mental Health is a collection of original papers introducing new ways of thinking sociologically about the terrain of mental health. There are more general papers about mental health and mental health policy and papers about specific types of mental illness and particular policy issues such as dangerousness.
Transform Your Life and Create Harmony from Within! Imagine falling from a horse and waking up a week later...unable to speak. That's exactly what happened to Sharon Campbell-Rayment. When she finally regained her ability to talk, she spoke with an accent from a part of the world she had never even visited! This made Sharon one of only 60 documented cases of Foreign Accent Syndrome. Soon she was declared completely disabled and diagnosed with an acquired brain injury. However, Sharon was not about to accept this fate. Falling into the Rhythm of Life shares her remarkable story of healing, while revealing life-changing strategies she used to overcome despair and find a powerful new life purpose. Beginning with a moving foreword by New York Times bestselling author Peggy McColl, this life-enhancing book teaches guiding principles that empower you to... * Overcome obstacles that are eroding your self-esteem * Gain newfound inner strength, confidence and awareness * Navigate emotionally difficult situations with dignity * Recognize significance and meaning in every action you take You'll also learn Sharon's four key B.E.S.T. principles that enable you to flow through challenges each day with grace and ease. "The only thing as amazing as Sharon Campbell-Rayment's inspiring story is the incredible lessons and principles she shares in, Falling into the Rhythm of Life . If you've ever suffered a setback and have struggled to get through it and if you are finally ready to claim victory, this is the book you absolutely must read!" Steve Lowell, CSP International Professional Speaker, Mentor to Professional Speakers Worldwide Sharon Campbell-Rayment holds a Bachelor of Science degree in Nursing, a Master's degree in Divinity, and she is Founder of the Creating Harmony Within Ranch. Sharon speaks internationally and has helped hundreds of people overcome trying challenges in their lives. She is also author of the book, Creating Harmony Within, and international bestselling co-author of the book, Unwavering Strength. Visit www.creatingharmonywithin.com
In the decades following the collapse of state socialism at the end of 1980s, disabled people in Central and Eastern Europe endured economic marginalisation, cultural devaluation and political disempowerment. Some of the mechanisms producing these injustices were inherited from state socialism, while others emerged with postsocialist neoliberalisation. State socialism promised social security guaranteed by the public, and postsocialist neoliberalisation promised independent living underpinned by the market. This book argues that both promises failed as far as disabled people were concerned, drawing on a wide range of scholarly reports and analyses, policy documents, legislation, and historical accounts, as well as on disability studies and social justice theory. Besides differences, the book also illuminates continuities between state socialism and postsocialist capitalism, providing on this basis a more general and historically grounded critique of contemporary neoliberalisation and its impact on individual and collective life. The book will appeal to anyone interested in disability studies and postsocialism, as well as social policy, social movements and critical theory. It will also be of interest to professionals involved in disability-related service provision, as well as to disability activists and policy makers.
The Dyslexic Adult: Living in a non-dyslexic world is aimed at teachers, employers, careers advisers, counsellors and any others who work with, support or live with dyslexic adults. Using case studies and adult "voices" to illustrate and elaborate their points, the authors explore a range of issues affecting dyslexic adults. The book approaches the understanding of dyslexia through the perspective of the dyslexic adult and through examining the dyslexic "cognitive style" approaches an understanding of the lives of dyslexic adults through examining their cognitive style and its impact on how this affects them in their personal, academic educational (academic doesn't have the same general meaning in Britain where it is used to oppose vocational) and work lives. It explores the importance of diagnosis and discusses many of the contentious issues surrounding the assessment of in assessing dyslexic adults. It suggests strategies and creative solutions for dyslexic difficulties as well as ways of exploiting? capitalising on? using? dyslexic strengths. Finally, it takes a look into the future, suggesting that changes in the 21st century may alter perceptions of dyslexia and the opportunities for role which dyslexic adults play in society, and encourages the non-dyslexic world to value the contributions which dyslexic adults can make.
Media representation of and for the disabled has been recharged in recent years with the expansion of new media worldwide. Interactive digital communications--such as the Internet, new varieties of voice and text telephones, and digital broadcasting--have created a need for a more innovative understanding of new media and disability issues. This engaging analysis offers a global perspective on how people with disabilities are represented as users, consumers, viewers, or listeners of new media, by policymakers, corporations, programmers, and the disabled themselves.
Anti-Racist Practice (ARP), Anti-Discriminatory Practice (ADP) and
Anti-Oppressive Practice (AOP) form a trinity of concepts, nested
into one another, which have evolved in welfare services over the
last fifteen years. They tend to have developed as forms of
practice panaceas and as a result have been subject to both
unrealistic expectations and, at times, to political ridicule. This
book clarifies the distinctions between three key concepts - ARP,
ADP and AOP. Critically and constructively analysing these three
approaches to practice it reappraises their potential in the light
of emerging equality issues in the health service |
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