In her latest contribution to the growing field of emotion studies, Deidre Pribram makes a compelling argument for why culturalist approaches to the study of emotional "disorders" continue to be eschewed, even as the sociocultural and historical study of mental illness flourishes. The author ties this phenomenon to a tension between two fundamentally different approaches to emotion: an individualist approach, which regards emotions as the property of the individual, whether biologically or psychologically, and a culturalist approach, which regards emotions as collective, social processes with distinctive histories and meanings that work to produce particularized subjects. While she links a strong preference for the individualist construct in Western culture to the rise of the psychological and psychiatric disciplines at the turn of the twentieth century, Pribram also engages with a diverse set of case studies tied to psychological and aesthetic discourses on emotions. These range from Van Gogh's status as emotionally disordered to the public, emotional aesthetics of 19th century melodrama to the diagnostic categories of the DSMs and the fear of "globalizing" emotional disorders in the 21st century. This genuinely interdisciplinary approach makes for a text with potential application in a wide range of disciplines within cultural studies, including sociocultural and historical analysis of psychiatry and psychology, gender theory, subject and identity theory, popular culture studies, and history and theory of the arts.

Don't Wake Me: The Ballad Of Nihal Armstrong is the unforgettable true story of a mother and her disabled son; a dramatic and poetic testimony of one woman's tireless battles in the struggle for her son's rights. Translating the raw experience of motherhood into a powerful verse monologue, Rahila Gupta reveals the challenges, impediments and frustrations of being repeatedly misunderstood - and of battles won against all the odds.

Educator Patti Lather and psychologist Chris Smithies observed and chronicled support groups for women diagnosed with HIV. Whether black, Latina, poor, or middle class, the women in these groups share the common bond of living with HIV/AIDS, and they describe how it affects their lives in terms full of practical reality and moving poignancy, as they fight the disease, accept, reflect, live and die with and in it.

In the last 30 years, a distinctive intersection between disability studies - including disability rights advocacy, disability rights activism, and disability law - and disability arts, culture, and media studies has developed. The two fields have worked in tandem to offer critique of representations of disability in dominant cultural systems, institutions, discourses, and architecture, and develop provocative new representations of what it means to be disabled. Divided into 5 sections: Disability, Identity, and Representation Inclusion, Wellbeing, and Whole-of-life Experience Access, Artistry, and Audiences Practices, Politics and the Public Sphere Activism, Adaptation, and Alternative Futures this handbook brings disability arts, disability culture, and disability media studies - traditionally treated separately in publications in the field to date - together for the first time. It provides scholars, graduate students, upper level undergraduate students, and others interested in the disability rights agenda with a broad-based, practical and accessible introduction to key debates in the field of disability art, culture, and media studies. An internationally recognised selection of authors from around the world come together to articulate the theories, issues, interests, and practices that have come to define the field. Most critically, this book includes commentaries that forecast the pressing present and future concerns for the field as scholars, advocates, activists, and artists work to make a more inclusive society a reality.

The book approaches the topic of disability, inclusion and inclusive education in a holistic way including both academic and psycho-social perspectives. It also focuses on the contemporary status of disability studies with a multidisciplinary dimension. The experiences and challenges of children with disabilities and the different dimensions of inclusive education have been situated appropriately by including at the outset, a chapter on 'Disability Studies: The Context'. Chapter on 'Sociology of Disability' accentuates the tone and perspective of the presentations of the authors and editor. The research findings presented in the book indicate grounded realities and suggestions for transactional strategies which are plausible in the Indian context. It has never been timely to publish a book that helps professionals who work with schools, special education teachers, and counsellors to analyze disabilities from a socio-psychological perspective keeping the protagonist at the centre. Case narrations situated in the Indian context enrich the presentations giving voice to the marginalized children/adults with disabilities. This work serves as a comprehensive reference for the most prevalent disabilities at school education level covering the conceptual understanding about each disability, their psycho-social perspectives, implications for classroom transactions, suggestions of transactional strategies along with a brief explanation of assistive technology that can be used in case of each disability.With Right to Education Act (2009) in place, a diverse range of readers, from special educators and other teachers in schools, prospective teachers pursuing their pre service teacher education programmes, teacher educators and researchers in the field of disabilities and inclusive education will all find this volume useful, as a reference material with long shelf life.

This book takes a distinctive approach to exploring the experiences and identities of minoritized Latinx mothers who are raising a child who is labeled as both an emergent bilingual and dis/abled. It showcases relationships between families and schools and reveals the myriad of ways in which school-based decisions regarding disability, language and academic placement impact family dynamics. Treating the mothers as experts, this book uses testimonios to explore not only what mothers know but also how they develop funds of knowledge and how they apply them to their child's education. The stories shed light on how mothers perceive their child's disability, how they engage with their child and the value they place on bilingualism. The narratives reveal the complex lives mothers lead and the ways in which they strive to meet the academic and socioemotional needs of their children, regardless of the financial, physical and emotional costs to them. This book has significant implications for researchers and professionals working in bilingual education, special education, inclusive education and disability studies in education.

The book provides multiple perspectives and insights on the area of Inclusion, Equity and Access for people with disabilities and brings together various inclusive effective practices from 21 countries across the world most comprehensively in one book. The book documents perspectives from educational researchers and teacher educators through first-hand experience using cutting-edge research and conceptual understandings, thought processes, and reflections. The book brings together various methodologies to expose scientific truths in the area of disability and inclusion. Chapter authors utilize a self-reflective stance, representing state of the art theory and practice for exploring notions of disability. Authors examine cultural relational practices, common values and beliefs, and shared experiences for the purpose of helping cultural members and cultural strangers better understand interdependent factors. Each chapter is an attempt to unravel a thought provoking, comprehensive, and thorough understanding of the challenges and abilities of individuals with disabilities shaped by their own culture, society and country, re-engaging the promise of scientific research as a generative form of inquiry. The book is designed to be of use to a wide range of professionals; researchers, practitioners, advocates, special educators and parents providing information and or discussions on educational needs, health care provisions, and social services irrespective of country and culture.

Draws on themes of the disability-rights movement to identify people with disabilities as members of a socially disadvantaged minority group rather than as individuals who need to adjust. Highlights the hidden history of people with disabilities in church and society. Proclaiming the emancipatory presence of the disabled God, the author maintains the vital importance of the relationship between Christology and social change. Eiesland contends that in the Eucharist, Christians encounter the disabled God and may participate in new imaginations of wholeness and new embodiments of justice.

Building on David M. Engel and Frank W. Munger's work analyzing the narratives of people with physical and learning disabilities, this book examines the life stories of twelve physically disabled Canadian adults through the prism of the social model of disablement. Using a grounded theory approach and with extensive reporting of the thoughts of the participants in their own words, the book uses narratives to explore whether an advocacy identity helps or hinders dealings with systemic barriers for disabled people in education, employment, and transportation. The book underscores how both physical and attitudinal barriers by educators, employers and service providers complicate the lives of disabled people. The book places a particular focus on the importance of political economy and the changes to the labour market for understanding the marginalization and oppression of people with disabilities. By melding socio-legal approaches with insights from feminist, critical race, and queer legal theory, Ravi Malhotra and Morgan Rowe ask if we need to reconsider the social model of disablement, and proposes avenues for inclusive legal reform.

At least 50 million people worldwide have epilepsy. Representing Epilepsy, the latest volume in LUP's acclaimed Representations series, seeks to understand the epileptic body as a literary or figurative device intelligible beyond a medical framework. Jeannette Stirling argues that neurological discourse from the late-nineteenth century through to the mid-twentieth century is as much forged by the cultural conditions and representational politics of the times as it is by the science of western medicine. Along the way she explores narratives of epilepsy depicting ideas of social disorder, tainted bloodlines, sexual deviance, spiritualism and criminality in works as diverse as David Copperfield and The X Files. This path-breaking book will be required reading for cultural disability studies scholars and for anyone seeking greater understanding of this common condition. 'Representing Epilepsy offers a clever exploration of the cultural history of this condition, based on an effective interdisciplinary approach. It will be of particular interest to scholars and students in the field of Medical Humanities, as well as to all those involved in the care of people with epilepsy, who wish to improve their understanding of the socio-cultural repercussions of the condition.' Maria Vaccarella, King's College London

Forty-five contributions from renowned international specialists in the field provide readers with expert analysis of the core issues related to the welfare state, including regional depictions of welfare states around the globe. The second edition of the Routledge Handbook of the Welfare State combines essays on methodologies, core concepts and central policy areas to produce a comprehensive understanding of what 'the welfare state' means around the world. In the aftermath of the credit crunch, the Handbook addresses some of the many questions about the welfare state. This second edition has been thoroughly revised and updated to include an in-depth analysis of societal changes in recent years. New articles can be found on topics such as: the impact of ideas, well-being, migration, globalisation, India, welfare typologies, homelessness and long-term care. This volume will be an invaluable reference book for students and scholars throughout the social sciences, particularly in sociology, social policy, public policy, international relations, politics and gender studies.

Disability offers a new lens through which to view the effectiveness of access to justice, and the inclusiveness of the justice system as a whole. This book analyses the experience of people with disabilities through the entire justice system, from making a complaint, to investigation, and through the court/tribunal process. It also considers the participation of people with disabilities in a variety of roles in the justice system - as witness, defendant, complainant, plaintiff, lawyer, judge and juror. More broadly, it also critically examines the subtle barriers of access to justice which might exist in a given society - including barriers to grassroots disability advocacy, legal education and training, the right to vote and the right to stand for election which may apply to people with disabilities. The book is international and comparative in scope with a focus primarily on examples of legal practice and justice systems in common law countries. The work will be of interest to scholars working in the areas of human rights, equality and non-discrimination, disability rights activists and legal professionals who work with people with disabilities to achieve access to justice.

This volume describes art therapy interventions for particularly dysfunctional families and explains the connections between the process of creating art and the curative process in meeting these families' needs. The first chapter examines distressed family systems, and psychotherapy in relation to the uses of art therapy. Subsequent chapters present a crisis intervention model for family art therapy and demonstrate the applications of this model with single-parent families, families affcetd by alcoholism or sexual abuse, and families of political refugees and disaster victims. More than 70 samples of the art produced by these families are reproduced and analyzed.

This comprehensive ground-breaking southern African-centred collection spans the breadth of disability research and practice. Reputable and emerging scholars, together with disability advocates adopt a critical and interdisciplinary stance to prove, challenge and shift commonly held social understanding of disability in traditional discourses, frontiers and practices in prominent areas such as inter/national development, disability studies, education, culture, health, religion, gender, sports, tourism, ICT, theatre, media , housing and legislation. This handbook provides a body of interdisciplinary analyses suitable for the development of disability studies in southern Africa. Through drawing upon and introducing resources from several disciplines, theoretical perspectives and personal narratives from disability activists, it reflects on disability and sustainable development in southern Africa. It also addresses a clear need to bring together interdisciplinary perspectives and narratives on disability and sustainable development in ways that do not undermine disability politics advanced by disabled people across the world. The handbook further acknowledges and builds upon the huge body of literature that understands the social, cultural, educational, psychological, economic, historical and political facets of the exclusion of disabled people. The handbook covers the following broad themes: * Disability inclusion, ICT and sustainable development * Access to education, from early childhood development up to higher education * Disability, employment, entrepreneurship and community-based rehabilitation * Religion, gender and parenthood * Tourism, sports and accessibility * Compelling narratives from disability activists on societal attitudes toward disability, media advocacy, accessible housing and social exclusion. Thus, this much-awaited handbook provides students, academics, practitioners, development partners, policy makers and activists with an authoritative framework for critical thinking and debates that inform policy and practice in incomparable ways, with the view to promoting inclusive and sustainable development.

"Treating the Dental Patient" "with a Developmental Disorder "provides a basic understanding of patients with developmental and intellectual disorders and offers help in communicating with and treating these patients. The book opens with an overview of the major types of developmental disabilities-autism spectrum disorders, Down Syndrome, attention deficit, cerebral palsy-and others such as spina bifida and learning difficulties. Following chapters also discuss how to gather personal information, medical histories, dental experiences, and oral habits; determine family dynamics; and understand how to communicate with patients and model desired patient behavior. The authors also cover aspects of the dental exam and hygiene appointment, and restorative treatment, both in the office and hospital setting. A review of follow-up care and the long-term impact on the practice, the patient, and the families when caring for these patients is covered. "Treating the Dental Patient" "with a Developmental Disorder "is a must-have book for practicing and student pediatric dentists, general dentists, and dental hygienists whose patients include families with developmentally or intellectually disabled members.

This SpringerBrief provides readers with a comprehensive snapshot of contemporary research about autistics and their experiences and insights of sexual behaviours and interests. The authors use a scoping review approach to canvass the diverse literature on this topic. This approach shows many gaps in scholarly understanding about autistics and their experiences and insights of sexual interests and behaviours. Some of the gaps relate to sex education, gender dysphoria and gender reassignment surgery, pregnancy and childbirth, and domestic violence experiences of autistics. The book addresses these gaps and provides explanations and recommendations for further research.

Dyslexia is a complex condition that affects not only learning but every part of life. Experience or fear of social stigma can lead people with dyslexia to camouflage the difficulties they face, to withdraw and to adopt negative coping strategies, particularly if they lack adequate support, identification and intervention. This can have lasting impact on their emotional health. Neil Alexander-Passe is an experienced researcher and a special needs teacher in secondary mainstream education. He also has dyslexia. Neil uses his personal and professional experience to shed light on the complexities surrounding dyslexia and examines psychological theories such as ego-defence mechanisms and learned helplessness that reveal how people deal with its emotional impact. He offers guidelines and advice, illustrated with real life examples, about how to help people with dyslexia avoid harmful coping strategies and learn to deal with stress, anxiety and low self-esteem in more effective and psychologically positive ways. This book will help educational and clinical psychologists, teachers, mental health specialists, counsellors and therapists understand the emotional complexities of dyslexia.

'GORGEOUS, VIVIDLY ALIVE' NEW YORK TIMES 'BOLD, HONEST AND SUPERBLY WELL-WRITTEN' ANDRE ACIMAN, AUTHOR OF CALL ME BY YOUR NAME 'GRACEFUL AND SOUL-BARING' MELANIE REID, THE TIMES 'WHAT A GIFT . . . HAS THE RIGOR AND PRECISION OF JOAN DIDION AND MAGGIE NELSON AND A FORTHRIGHT HUMOR AND NAKED TRUTH ALL OF ITS OWN.' SARAH RUHL, AUTHOR OF SMILE I am in a bar in Brooklyn listening to two men, my friends, discuss whether or not my life was worth living. So begins Chloe Cooper Jones's bold account of moving through the world in a body that looks different than most. Born with a rare congenital condition called sacral agenesis, she must contend not only with her own physical pain, but the emotional discomfort of others. It is only when she unexpectedly becomes a mother that she confronts the demand to live life fully, propelling her on a journey across the globe, reclaiming the spaces she'd been denied, and denied herself. From Roman sculptures to a Beyonce concert, from a tennis tournament to the Cambodian Killing Fields, Jones interrogates the myths of beauty with spiky intelligence, aesthetic philosophy, love and humor, inviting us to find a new way of seeing.

The Christian gospel compels humanity to embrace deeper ways of being human together that will overcome false divisions and exclusions in search of flourishing and graced communities. Presenting both short narratives emerging out of theological reflection on experience and analytical essays arising from engagement in scholarly conversations Theology and the Experience of Disability is a conscious attempt to develop theology by and with people with disabilities instead of theology about people with disabilities. A mixture of academic, professional, practical, and/or lived experience is brought to the topic in search of constructive multi-disciplinary proposals for church and society. The result is an interdisciplinary engagement with the constructive possibilities that emerge from a distinctly Christian understanding of disability as lived experience.

This book builds upon critiques of development in the disability domain by investigating the necessity and implications of theorising disability from the Global South and how development policies and practices pertaining to disabled people in such contexts might be improved by engaging with their voices and agency. The author focuses on the lived experiences of disabled people in Burkina Faso, while situating these experiences, where necessary, in the wider national and regional contexts. She explores development agencies' interventions with disabled people and the need to re-think these practices and ideologies which are often framed within western contexts. This work will appeal to policy makers, NGOs, academics, students and researchers in the fields of development and disability studies.

This groundbreaking volume introduces readers to the key concepts and debates in deaf studies, offering perspectives on the relevance and richness of deaf ways of being in the world. In Open Your Eyes," leading and emerging scholars, the majority of whom are deaf, consider physical and cultural boundaries of deaf places and probe the complex intersections of deaf identities with gender, sexuality, disability, family, and race. Together, they explore the role of sensory perception in constructing community, redefine literacy in light of signed languages, and delve into the profound medical, social, and political dimensions of the disability label often assigned to deafness. Moving beyond proving the existence of deaf culture, Open Your Eyes" shows how the culture contributes vital insights on issues of identity, language, and power, and, ultimately, challenges our culture's obsession with normalcy. Contributors: Benjamin Bahan, Gallaudet U; Douglas C. Baynton, U of Iowa; Frank Bechter, U of Chicago; MJ Bienvenu, Gallaudet U; Brenda Jo Brueggemann, Ohio State U; Lennard J. Davis, U of Illinois, Chicago; Lindsay Dunn, Gallaudet U; Lawrence Fleischer, California State U, Northridge; Genie Gertz, California State U, Northridge; Hilde Haualand, FAFO Institute; Robert Hoffmeister, Boston U; Tom Humphries, U of California, San Diego; Arlene Blumenthal Kelly, Gallaudet U; Marlon Kuntze, U of California, Berkeley; Paddy Ladd, U of Bristol; Harlan Lane, Northeastern U; Joseph J. Murray, U of Iowa; Carol Padden, U of California, San Diego. H-Dirksen L. Bauman is professor and director of the graduate program in Deaf Studies at Gallaudet University. He is coeditor of Signing the Body Poetic: Essaysin American Sign Language Literature," executive editor of the Deaf Studies Digital Journal," and executive producer and codirector of the documentary film Audism Unveiled,"

This book presents an ethnographic case study of the personal motivations, advocacy, and activation of social capital needed to create and sustain the Immortelle Children's Centre, a private school that has served children with disabilities in Trinidad/Tobago for four decades. Based on narratives by parents from the 1980's, current parents, teachers, community advocates, and the author, who was the founder of Immortelle in 1978, the study views the school within the context of a nation standing in a liminal space between developed and developing societies. It argues that the attainment of equity for children with disabilities will require an agenda that includes a legal mandate for education of all children, increased public funding for education, health and therapeutic services, and an on-going public awareness campaign. Relating this study to the global debate on inclusion, the author shows how the implementation of this agenda would have to be adapted to the social, cultural, and economic realities of the society.

This edited collection brings together keynote articles from the journal Disability & Society to provide a comprehensive and though-provoking exploration of the place of technology in disabled people's lives, documenting and analysing the growing impact of technology on disability and society over recent decades. The authors explore theoretical, empirical and moral dilemmas that arise with the changing relationship between technological change and the lives, aspirations and possibilities of disabled people. The volume is organised into three parts which consider early foundational work connecting disability and technology; key empirical studies related to the optimum use of technologies for independence and inclusion; and new moral and social dynamics thrown up by technological developments for disabled people's lives.

This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as "Don't Mourn for Us", mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.