'Fascinating ... compelling ... very funny' Sunday Times 'A defiant call to arms ... affecting ... lingers long in the memory after its final page' Morning Star 'A skilful act of literary witness, sharp, moving and funny' Joanne Limburg 'Christoph Keller ... ranks among the great Swiss writers' Neue Zurcher Zeitung Most stories of disability follow a familiar pattern: Life Before Accident. Life After Accident. For Christoph Keller, it was different: his childhood diagnosis with a form of Spinal Muscular Atrophy only revealed what had been with him since birth. SMA III, the 'kindest one', allows those who have it to live a long life, and it progresses slowly. There is no cure. By the age of 25, he had to use a wheelchair some of the time. 'There were two of me: Walking Me. Rolling Me.' By 32, he could still walk into a restaurant with a cane or on somebody's arm. At 45, 'Rolling Me' took over altogether. Intimate, absurdist and winningly frank, Every Cripple a Superhero is at once a memoir of life with a progressive disorder, and a profound exploration of the challenges of loving, being loved, and living a public life - navigating restaurants, aeroplanes, museums and artists' retreats - in a world not designed for you. Threaded throughout are Keller's own photographs of the unexpected beauty found in puddle-filled 'curb cuts', the pavement ramps that, left to disintegrate, form part of the urban obstacle course. Those puddles become portals into a different, truer city; and, as they do, so this book - told with humour and immense grace - begins to uncover a truer world: one where the 'normal' is not normal, where disability is far more widespread than we might think, and where there always exist, just alongside our own, the lives of everyday superheroes.

A political biography that reveals new sides to Helen Keller Several decades after her death in 1968, Helen Keller remains one of the most widely recognized women of the twentieth century. But the fascinating story of her vivid political life-particularly her interest in radicalism and anti-capitalist activism-has been largely overwhelmed by the sentimentalized story of her as a young deaf-blind girl. Keller had many lives indeed. Best known for her advocacy on behalf of the blind, she was also a member of the socialist party, an advocate of women's suffrage, a defender of the radical International Workers of the World, and a supporter of birth control-and she served as one of the nation's most effective but unofficial international ambassadors. In spite of all her political work, though, Keller rarely explored the political dimensions of disability, adopting beliefs that were often seen as conservative, patronizing, and occasionally repugnant. Under the wing of Alexander Graham Bell, a controversial figure in the deaf community who promoted lip-reading over sign language, Keller became a proponent of oralism, thereby alienating herself from others in the deaf community who believed that a rich deaf culture was possible through sign language. But only by distancing herself from the deaf community was she able to maintain a public image as a one-of-a-kind miracle. Using analytic tools and new sources, Kim E. Nielsen's political biography of Helen Keller has many lives, teasing out the motivations for and implications of her political and personal revolutions to reveal a more complex and intriguing woman than the Helen Keller we thought we knew.

This edited collection offers a nontraditional approach to diversity management, going beyond gender, race, and ethnicity. Examining ageism, disability, and spirituality, the book provides a discussion of different D&I applications and introduces a framework consisting of a diagnostic phase, gap analysis, and an action plan, which can be modified to attend to specific needs of organizations. Researchers and practitioners will learn a viable way to address diversity in global organizations.

The mapping, control and subjugation of the human body and mind were core features of the colonial conquest. This book draws together a rich collection of diverse, yet rigorous, papers that aim to expose the presence and significance of disability within colonialism, and how disability remains present in the establishment, maintenance and continuation of colonial structures of power. Disability as a site of historical analysis has become critically important to understanding colonial relations of power and the ways in which gender and identity are defined through colonial categorisations of the body. Thus, there is a growing prominence of disability within the historical literature. Yet, there are few international anthologies that traverse a critical level of depth on the subject domain. This book fills a critical gap in the historical literature and is likely to become a core reader for post graduate studies within disability studies, postcolonial studies and more broadly across the humanities. The chapters in this book were originally published as articles in Social Identities: Journal for the Study of Race, Nation and Culture.

In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of "debility"-bodily injury and social exclusion brought on by economic and political factors-to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

What is the impact of an infant's diminished hearing on the infant and its parents? How does communication develop in cases of diminished hearing? How does diminished hearing affect social and cognitive development? What types of early interventions can improve communication and development in infants with diminished hearing? The World of Deaf Infants presents the results of a 15-year research study that addresses these questions. Through their research, perhaps the largest, long-term comparison of deaf and hearing infants, Meadow-Orlans's team provides a comprehensive and intimate look into the world of deaf infants. For a core group of 80 families that includs all four combinations of parent-infant hearing status, data was collected longitudinally at 9, 12, 15, and 18 months, and mother-infant interactions were recorded and observed in both structured and unstructured settings. Mothers' facial, vocal, and tactile behaviors during interactions were related to infants' temperament and stress; mothers' linguistic and communication behaviors, as well as their overall responsiveness, were related to children's language; and the effects of support provided to mothers were evaluated and explored. The results were dramatic, particularly those on infant attachment behaviors and the importance of visual attention to the overall development of deaf infants. This comprehensive work provides a foundation on which researchers, teachers, students, and parents can build to improve communication, cognitive and social development, and to enhance the world of deaf infants.

Hearing loss now strikes one in seven people but how to study the impact of hearing loss on relationships has continually baffled researchers. The authors' personal experience with profound hearing loss and her roles as wife, mother, social worker and counsellor, suggest that the complexities involved might be fruitfully explored by using an intensive and repetitive interviewing technique.

This book explores and analyses 150 in-depth interviews with hearing impaired people, including eleven couples in committed relationships where one partner is hearing and the other is hearing impaired. Detailed information was obtained about the way each couple managed conflict, decision making, household chores, communication, and perceived the hearing impairment within their relationship. Five major strands emerge: intimate family relationships, social support networks, communication strategies, the nature of care and recommendations for social policy. By drawing from the fields of family therapy, marital therapy, counselling, family sociology, social policy, psychology, social psychology and linguistics as well as disability and deafness, a new broader and more positive picture emerges.

This ground-breaking book is aimed at professionals who would like to work more effectively with deaf and hearing impaired people. Although not a 'How to Cope' book, it will also interest hearing impaired people themselves because of the enormous number of insights offered.

This introductory text defines and describes disability, while providing concrete practice guidelines and recommendations for students in the fields of counseling, social work, and the helping professions. Various specialty areas are explored in detail, including marriage and family counseling, adolescent counseling, addictions counseling, LGBTQ concerns, multicultural counseling, and career counseling. The first three chapters lay the foundations by discussing the demand for counseling services by individuals with all types of disabilities; presenting clinical, legal, medical/biological, and personal definitions of disability; and describing physical, cognitive, and psychiatric disabilities. Next, author Julie Smart examines core beliefs about disability using a range of first-person accounts from experienced counselors. The last six chapters focus on practice guidelines for various aspects of disability-including ethical considerations, societal issues, social role demands, and individual responses-and consider new possibilities for disability counseling professions. With rich case studies woven throughout, as well as valuable information on client needs, disability categorizations, and key Models of Disability, this essential textbook will be useful not only to counseling students but also to professional counselors, social workers, and psychologists.

A philosophical challenge to the ableist conflation of disability and pain More than 2,000 years ago, Aristotle said: "let there be a law that no deformed child shall live." This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy. Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires. The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond.

This edited collection is the result of the Voices of Individuals: Collectively Exploring Self-determination (VOICES) based at the Centre for Disability Law and Policy, National University of Ireland Galway. Focusing on the exercise of legal capacity under Article 12 of the UN Convention on the Rights of Persons with Disabilities, the stories of people with disabilities are combined with responses from scholars, activists and practitioners, addressing four key areas: criminal responsibility, contracts, consent to sex, and consent to medical treatment. Sustainable law and policy reforms are set out based on the storytellers' experiences, promoting a recognition of legal capacity and supported decision-making. The perspectives are from across a wide range of disciplines (including law, sociology, nursing, and history) and 13 countries. The volume is a valuable resource for researchers, academics and legislators, judges or policy makers in the area of legal capacity and disability. It is envisaged that the book will be particularly useful for those engaged in legal capacity law reform processes worldwide and that this grounded work will be of great interest to legislators and policy makers who must frame new laws on supported decision making in compliance with the UNCRPD.

Over the last few decades disability studies has emerged not only as a discipline in itself but also as a catalyst for cultural disability studies and Disability Studies in Education. In this book the three areas become united in a new field that recognises education as a discourse between tutors and students who explore representations of disability on the levels of everything from academic disciplines and knowledge to language and theory; from received understandings and social attitudes to narrative and characterisation. Moving from late nineteenth to early twenty-first-century representations, this book combines disability studies with aesthetics, film studies, Holocaust studies, gender studies, happiness studies, popular music studies, humour studies, and media studies. In so doing it encourages discussion around representations of disability in drama, novels, films, autobiography, short stories, music videos, sitcoms, and advertising campaigns. Discussions are underpinned by the tripartite model of disability and so disrupt one-dimensional representations. Cultural Disability Studies in Education encourages educators and students to engage with disability as an isolating, hurtful, and joyful experience that merits multiple levels of representation and offers true potential for a non-normative social aesthetic. It will be required reading for all scholars and students of disability studies, cultural disability studies, Disability Studies in Education, sociology, and cultural studies.

Almost fifteen per cent of the world's population today experiences some form of mental or physical disability and society tries to accommodate their needs. But what was the situation in the Roman world? Was there a concept of disability? How were the disabled treated? How did they manage in their daily lives? What answers did medical doctors, philosophers and patristic writers give for their problems? This, the first monograph on the subject in English, explores the medical and material contexts for disability in the ancient world, and discusses the chances of survival for those who were born with a handicap. It covers the various sorts of disability: mental problems, blindness, deafness and deaf-muteness, speech impairment and mobility impairment, and includes discussions of famous instances of disability from the ancient world, such as the madness of Emperor Caligula, the stuttering of Emperor Claudius and the blindness of Homer.

The pressures, strains and sometimes joys of looking after a child with autism are increasingly recognized in professional and academic circles. This book presents key findings from a research study conducted by the Family Assessment Unit that involved many long discussions with the parents and siblings of children and young people with autism. The authors provide

• a unique approach dealing specifically with the needs of families
• informed interventions for helping the family units

The authors demonstrate how autism affects parents, siblings and carers. They provide case studies that examine their experiences as individuals and as family units over the life course of their son or daughter, brother or sister with autism. They identify various stressors from this study and an examination of previous research in this area. For example, families often face enormous stress in having the disorder diagnosed. There is also the complex stress associated with increasing social and behavioural difficulties, and guilt arising from others labelling the parents’ ‘mismanagement’ of the children. The authors examine the diagnostic process from the viewpoint of parents and primary carers and chart the developments that have taken place in research and practice with families. They develop strategies for supporting and empowering families to better assist their children with autism, including contingency management approaches. Supporting the Families of Children with Autism is a valuable resource for a wide range of professionals who work with autistic children and their families, including health visitors, specialist teachers, social workers and paediatricians. It will be of interest to educational psychologists and families of children with autism.

This is the first book on working with disabled people to take an aspirational, outcomes-focused approach to professional practice. It forms the first attempt to grapple with the massive legislative and policy shifts in the Disability field in the last 15 years and provides an up-to-date, positive approach to professional practice, based on the social model of disability. Importantly, the book translates both adult and children's' disability legislation and policy guidance into positive, creative, enabling practice methods for professionals in social care, health, employment and independent living. The book takes a practical approach that challenges professionals to confront key issues in disability studies, policy and practice. The key topics covered are: o The Historical Legacy, Legislation, Policy and Guidance o Community Care and Beyond o Pivotal Moments in the development of disability policy o Independent Living, Choices and Rights o Life course Issues o Valuing Diversity o Key Challenges for an aspiring social model practitioner This book is an indispensable resource for all professionals and students working with disabled people.

This is the first book to address the issue of ageing after a long life with disability. It breaks new ground through its particular life course perspective, examining what it means to age with a physical or mental disability and what the implications are of 'becoming old' for people who have had extensive disabilities for many years. These people may have had to leave the labour market early, and the book looks at available care resources, both formal and informal. Ageing with disability challenges set ideas about successful ageing, as well as some of those about disabilities. The life course approach that is used unfolds important insights about the impact of multiple disabilities over time and on the phases of life. The book highlights the meaning of care in unexplored contexts, such as where ageing parents are caregivers or regarding mutual care in disabled couples. These are areas of knowledge which have, to date, been totally neglected.

Representing Youth with Disability on Television is a complex and multidimensional mainstream cultural discourse that examines specific stereotypes in fictional programming. The book draws attention to the group labeled as disabled, which is often marginalized, misrepresented, and misunderstood in the media, by analyzing the popular television programs Glee, Breaking Bad, and Parenthood. To obtain a more rigorous account of the way that youth (9-18 years of age) with disability are framed on television, this analysis examines the following issues: how research on popular culture is contextualized within social theory; the theoretical perspectives on representations of disability in popular culture; and the various contexts, genres, media, representations, and definitions of youth with disability in popular culture. The text also outlines the historical growth of disability, which is crucial for a discussion regarding the changing dimensions of popular culture. Critical hermeneutics, content analysis, and methodological bricolage are the melange of methodologies used to closely examine the dominant models of disability (social vs. medical) used in the portrayal of disabled youth on television today.

In Undoing Suicidism, Alexandre Baril argues that suicidal people are oppressed by what he calls structural suicidism, a hidden oppression that, until now, has been unnamed and under-theorized. Each year, suicidism and its preventionist script and strategies reproduce violence and cause additional harm and death among suicidal people through forms of criminalization, incarceration, discrimination, stigmatization, and pathologization. This is particularly true for marginalized groups experiencing multiple oppressions, including queer, trans, disabled, or Mad people. Undoing Suicidism questions the belief that the best way to help suicidal people is through the logic of prevention. Alexandre Baril presents the thought-provoking argument that supporting assisted suicide for suicidal people could better prevent unnecessary deaths. Offering a new queercrip model of (assisted) suicide, he invites us to imagine what could happen if we started thinking about (assisted) suicide from an anti-suicidist and intersectional framework. Baril provides a radical reconceptualization of (assisted) suicide and invaluable reflections for academics, activists, practitioners, and policymakers.

In this innovative and important study, Heather Tilley examines the huge shifts that took place in the experience and conceptualisation of blindness during the nineteenth century, and demonstrates how new writing technologies for blind people had transformative effects on literary culture. Considering the ways in which visually-impaired people used textual means to shape their own identities, the book argues that blindness was also a significant trope through which writers reflected on the act of crafting literary form. Supported by an illuminating range of archival material (including unpublished letters from Wordsworth's circle, early ophthalmologic texts, embossed books, and autobiographies) this is a rich account of blind people's experience, and reveals the close, and often surprising personal engagement that canonical writers had with visual impairment. Drawing on the insights of disability studies and cultural phenomenology, Tilley highlights the importance of attending to embodied experience in the production and consumption of texts.

The first deaf baseball player joined the pro ranks in 1883. By 1901, four played in the major leagues, most notably outfielder William "Dummy" Hoy and pitcher Luther "Dummy" Taylor. Along the way, deaf players developed a distinctive approach, bringing visual acuity and sign language the sport. They crossed paths with other pioneers, including Moses Fleetwood Walker and Jackie Robinson. This book recounts their great moments in the game, from the first all-deaf barnstorming team to the only meeting of a deaf batter and a deaf pitcher in a major league game. The true story-often dismissed as legend-of Hoy, together with umpire "Silk" O'Loughlin, bringing hand signals to baseball is told.

Disabled people are routinely assumed to lack the capabilities and capacities to embody and experience sexuality and desire, as well as the agency to love and be loved by others, and build their own families, if they so choose. Centring on the sexual, intimate and erotic lives of disabled people, this book presents a rare opportunity to understand and ask critical questions about such widely held assumptions. In essence, this book is a collection of sexual stories, told by disabled people on their own terms and in their own ways. Stories that shed light on areas of disability, love and life that are typically overlooked and ignored. A sociological analysis of these stories reveals the creative ways in which disabled people manage and negotiate their sexual and intimate lives in contexts where these are habitually denied. In its calls for disabled people's sexual and intimate citizenship, stories are drawn upon as the means to create social change and build more radically inclusive sexual cultures. In this ground breaking feminist critical disability studies text, The Intimate Lives of Disabled People introduces and contributes to contemporary debates around disability, sexuality and intimacy in the 21st century. Its arguments are relevant and accessible to researchers, academics, and students across a wide range of disciplines - such as sociology, gender studies, psychology, social work, and philosophy - as well as disabled people, their families and allies, and the professionals who work with and for them.

"[My life] is so rich with blessings-an immense capacity of enjoyment, books, and beloved friends. . . . Most earnestly I pray the dear Heavenly Father that I may sometime make myself far more worthy of the love shown to me than I am now." -April 22, 1900 letter from Helen Keller to John Hitz, AFB When Helen Keller died in 1968, at the age of eighty-eight years old, she was one of the most widely known women in the world. The overnight success of her biography, The Story of My Life, written at age twenty-three, made it obvious to Keller that she was endowed with a gift for writing and speaking. As she got older, she increasingly began to do both on a variety of subjects extending beyond her own disability, including social, political, and theological issues. Helen Keller: Selected Writings collects Keller's personal letters, political writings, speeches, and excerpts of her published materials from 1887 to 1968. The book also includes an introductory essay by Kim E. Nielsen, headnotes to each document, and a selected bibliography of work by and about Keller. The majority of the letters and some prints, all drawn from the Helen Keller Archives at the American Foundation for the Blind in New York, are being published for the first time. Literature, education, advocacy, politics, religion, travel: the many interests of Helen Keller culminate in this book and are reflected in her spirited narration. Also portrayed are the individuals Keller inspired and took inspiration from, including her teacher Annie Sullivan, her family, and others with whom she formed friendships throughout the course of her life. This often charming collection revels in and preserves Keller's public and private life, coming to us in the year which marks the 125th anniversary of her birthday.

This briefs offers a comprehensive view of the journey of grandparents of children with disabilities by employing a wide range of theoretical approaches such as intergenerational relationships, positive psychology, psychoanalytic views and models of stress. It presents a multidimensional view of grandparents, which begins with the general role of grandparents in the family and the transition to grandparenthood, as a major life event. The briefs moves on to discuss grandparents' roles under unique circumstances such as illness or disability in the family and then deals with perspectives of parents of children with disabilities on the role of grandparents. Finally, it reviews attitudes of professionals toward grandparents and concludes with suggested intervention strategies for working with families on intergenerational relationships.