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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
A political biography that reveals new sides to Helen Keller Several decades after her death in 1968, Helen Keller remains one of the most widely recognized women of the twentieth century. But the fascinating story of her vivid political life-particularly her interest in radicalism and anti-capitalist activism-has been largely overwhelmed by the sentimentalized story of her as a young deaf-blind girl. Keller had many lives indeed. Best known for her advocacy on behalf of the blind, she was also a member of the socialist party, an advocate of women's suffrage, a defender of the radical International Workers of the World, and a supporter of birth control-and she served as one of the nation's most effective but unofficial international ambassadors. In spite of all her political work, though, Keller rarely explored the political dimensions of disability, adopting beliefs that were often seen as conservative, patronizing, and occasionally repugnant. Under the wing of Alexander Graham Bell, a controversial figure in the deaf community who promoted lip-reading over sign language, Keller became a proponent of oralism, thereby alienating herself from others in the deaf community who believed that a rich deaf culture was possible through sign language. But only by distancing herself from the deaf community was she able to maintain a public image as a one-of-a-kind miracle. Using analytic tools and new sources, Kim E. Nielsen's political biography of Helen Keller has many lives, teasing out the motivations for and implications of her political and personal revolutions to reveal a more complex and intriguing woman than the Helen Keller we thought we knew.
'Fascinating ... compelling ... very funny' Sunday Times 'A defiant call to arms ... affecting ... lingers long in the memory after its final page' Morning Star 'A skilful act of literary witness, sharp, moving and funny' Joanne Limburg 'Christoph Keller ... ranks among the great Swiss writers' Neue Zurcher Zeitung Most stories of disability follow a familiar pattern: Life Before Accident. Life After Accident. For Christoph Keller, it was different: his childhood diagnosis with a form of Spinal Muscular Atrophy only revealed what had been with him since birth. SMA III, the 'kindest one', allows those who have it to live a long life, and it progresses slowly. There is no cure. By the age of 25, he had to use a wheelchair some of the time. 'There were two of me: Walking Me. Rolling Me.' By 32, he could still walk into a restaurant with a cane or on somebody's arm. At 45, 'Rolling Me' took over altogether. Intimate, absurdist and winningly frank, Every Cripple a Superhero is at once a memoir of life with a progressive disorder, and a profound exploration of the challenges of loving, being loved, and living a public life - navigating restaurants, aeroplanes, museums and artists' retreats - in a world not designed for you. Threaded throughout are Keller's own photographs of the unexpected beauty found in puddle-filled 'curb cuts', the pavement ramps that, left to disintegrate, form part of the urban obstacle course. Those puddles become portals into a different, truer city; and, as they do, so this book - told with humour and immense grace - begins to uncover a truer world: one where the 'normal' is not normal, where disability is far more widespread than we might think, and where there always exist, just alongside our own, the lives of everyday superheroes.
Hearing loss now strikes one in seven people but how to study the impact of hearing loss on relationships has continually baffled researchers. The authors' personal experience with profound hearing loss and her roles as wife, mother, social worker and counsellor, suggest that the complexities involved might be fruitfully explored by using an intensive and repetitive interviewing technique. This book explores and analyses 150 in-depth interviews with hearing impaired people, including eleven couples in committed relationships where one partner is hearing and the other is hearing impaired. Detailed information was obtained about the way each couple managed conflict, decision making, household chores, communication, and perceived the hearing impairment within their relationship. Five major strands emerge: intimate family relationships, social support networks, communication strategies, the nature of care and recommendations for social policy. By drawing from the fields of family therapy, marital therapy, counselling, family sociology, social policy, psychology, social psychology and linguistics as well as disability and deafness, a new broader and more positive picture emerges. This ground-breaking book is aimed at professionals who would like to work more effectively with deaf and hearing impaired people. Although not a 'How to Cope' book, it will also interest hearing impaired people themselves because of the enormous number of insights offered.
The pressures, strains and sometimes joys of looking after a child with autism are increasingly recognized in professional and academic circles. This book presents key findings from a research study conducted by the Family Assessment Unit that involved many long discussions with the parents and siblings of children and young people with autism. The authors provide
For people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumaci draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumaci shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls "activist affordances." Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumaci shows how disabled people's activist affordances present the potential for a more liveable and accessible world for all of us.
This is the first book on working with disabled people to take an aspirational, outcomes-focused approach to professional practice. It forms the first attempt to grapple with the massive legislative and policy shifts in the Disability field in the last 15 years and provides an up-to-date, positive approach to professional practice, based on the social model of disability. Importantly, the book translates both adult and children's' disability legislation and policy guidance into positive, creative, enabling practice methods for professionals in social care, health, employment and independent living. The book takes a practical approach that challenges professionals to confront key issues in disability studies, policy and practice. The key topics covered are: o The Historical Legacy, Legislation, Policy and Guidance o Community Care and Beyond o Pivotal Moments in the development of disability policy o Independent Living, Choices and Rights o Life course Issues o Valuing Diversity o Key Challenges for an aspiring social model practitioner This book is an indispensable resource for all professionals and students working with disabled people.
As a mainstay of modern life, the media industry disseminates information about disability on a global scale. However, media outlets do not always contribute accurate and positive depictions of disability in print and on the screen. Since previous representations of disability have been incomplete, misguided, and unimaginative, our text encourages scholars and allies to refashion media so that it disrupts the status-quo and lends itself toward a more liberatory politics. Images from the media such as film, television, and social media are assessed using critical disabilities studies, media studies, cultural studies, and other interdisciplinary fields. Many of our authors suggest that media itself is a powerful force that can counter the stigma and misrepresentation that oppresses people with disabilities and perpetuates discrimination. Contributors explore new perspectives on disability including analyses of people with disabilities as producers, consumers, and product of media. Moreover, disability is expanded on through disability identity, culture, and intersections with other disciplines such as critical race theory, gender studies, and the other such viewpoints.
This introductory text defines and describes disability, while providing concrete practice guidelines and recommendations for students in the fields of counseling, social work, and the helping professions. Various specialty areas are explored in detail, including marriage and family counseling, adolescent counseling, addictions counseling, LGBTQ concerns, multicultural counseling, and career counseling. The first three chapters lay the foundations by discussing the demand for counseling services by individuals with all types of disabilities; presenting clinical, legal, medical/biological, and personal definitions of disability; and describing physical, cognitive, and psychiatric disabilities. Next, author Julie Smart examines core beliefs about disability using a range of first-person accounts from experienced counselors. The last six chapters focus on practice guidelines for various aspects of disability-including ethical considerations, societal issues, social role demands, and individual responses-and consider new possibilities for disability counseling professions. With rich case studies woven throughout, as well as valuable information on client needs, disability categorizations, and key Models of Disability, this essential textbook will be useful not only to counseling students but also to professional counselors, social workers, and psychologists.
This is the first book to address the issue of ageing after a long life with disability. It breaks new ground through its particular life course perspective, examining what it means to age with a physical or mental disability and what the implications are of 'becoming old' for people who have had extensive disabilities for many years. These people may have had to leave the labour market early, and the book looks at available care resources, both formal and informal. Ageing with disability challenges set ideas about successful ageing, as well as some of those about disabilities. The life course approach that is used unfolds important insights about the impact of multiple disabilities over time and on the phases of life. The book highlights the meaning of care in unexplored contexts, such as where ageing parents are caregivers or regarding mutual care in disabled couples. These are areas of knowledge which have, to date, been totally neglected.
This edited collection is the result of the Voices of Individuals: Collectively Exploring Self-determination (VOICES) based at the Centre for Disability Law and Policy, National University of Ireland Galway. Focusing on the exercise of legal capacity under Article 12 of the UN Convention on the Rights of Persons with Disabilities, the stories of people with disabilities are combined with responses from scholars, activists and practitioners, addressing four key areas: criminal responsibility, contracts, consent to sex, and consent to medical treatment. Sustainable law and policy reforms are set out based on the storytellers' experiences, promoting a recognition of legal capacity and supported decision-making. The perspectives are from across a wide range of disciplines (including law, sociology, nursing, and history) and 13 countries. The volume is a valuable resource for researchers, academics and legislators, judges or policy makers in the area of legal capacity and disability. It is envisaged that the book will be particularly useful for those engaged in legal capacity law reform processes worldwide and that this grounded work will be of great interest to legislators and policy makers who must frame new laws on supported decision making in compliance with the UNCRPD.
Philosophical interest in disability is rapidly expanding. Philosophers are beginning to grasp the complexity of disability-as a category, with respect to well-being and as a marker of identity. However, the philosophical literature on justice and human rights has often been limited in scope and somewhat abstract. Not enough sustained attention has been paid to the concrete claims made by people with disabilities, concerning their human rights, their legal entitlements and their access to important goods, services and resources. This book discusses how effectively philosophical approaches to distributive justice and human rights can support these concrete claims. It argues that these approaches often fail to lend clear support to common disability demands, revealing both the limitations of existing philosophical theories and the inflated nature of some of these demands. Moving beyond entitlements, the author also develops a unique conception of dignity, which she argues illuminates the specific indignities experienced by people with disabilities in the allocation of goods, in the common experience of discrimination and in a wide range of interpersonal interactions. Disability with Dignity offers an accessible and extended philosophical discussion of disability, justice and human rights. It provides a comprehensive assessment of the benefits and pitfalls of theories of human rights and justice for advancing justice for the disabled. It brings the moral importance of dignity to the centre, arguing that justice must be pursued in a way that preserves and promotes the dignity of people with disabilities.
What does it mean to live with life-threatening illness? How does one respond to loss? Freud's Jaw and Other Lost Objects attempts to answer these questions and, as such, illuminates the vulnerabilities of the human body and how human beings suffer harm. In particular, it examines how cancer disrupts feelings of bodily integrity and agency. Employing psychoanalytic theory and literary analysis, Lana Lin tracks three exemplary figures, psychoanalyst Sigmund Freud, poet Audre Lorde, and literary and queer theorist Eve Kosofsky Sedgwick. Freud's sixteen-year ordeal with a prosthetic jaw, the result of oral cancer, demonstrates the powers and failures of prosthetic objects in warding off physical and psychic fragmentation. Lorde's life writing reveals how losing a breast to cancer is experienced as yet another attack directed toward her racially and sexually vilified body. Sedgwick's memoir and breast cancer advice column negotiate her morbidity by disseminating a public discourse of love and pedagogy. Lin concludes with an analysis of reparative efforts at the rival Freud Museums in London and Vienna. The disassembled Freudian archive, like the subjectivities-in-dissolution upon which the book focuses, shows how the labor of integration is tethered to persistent discontinuities. Freud's Jaw asks what are the psychic effects of surviving in proximity to one's mortality, and it suggests that violences stemming from social, cultural, and biological environments condition the burden of such injury. Drawing on psychoanalyst Melanie Klein's concept of "reparation," wherein constructive forces are harnessed to repair damage to internal psychic objects, Lin proposes that the prospect of imminent destruction paradoxically incites creativity. The afflicted are obliged to devise means to reinstate, at least temporarily, their destabilized physical and psychic unity through creative, reparative projects of love and writing.
This book is based on the premise that counseling and psychotherapy services are useful and effective interventions with the mental retardation and borderline populations. The chapters focus on issues relevant to intervention (assessment, characteristics of emotional problems), specific techniques and adaptations of techniques for use with this population. The outstanding contributors are all scholars and practitioners with experience in working with individuals with mental retardation and borderline intelligence. The volume provides a comprehensive overview of issues and applications and will serve as the standard counseling and therapy reference work in this area.
Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change. The structure of care, Nishida writes, is deeply embedded in and embodies the cruel social order-based on disability, race, gender, migration status, and wealth-that determines who survives or deteriorates. Simultaneously, many marginalized communities treat care as the foundation of activism. Using interviews, focus groups, and participant observation with care workers and people with disabilities, Just Care looks into lives unfolding in the assemblage of Medicaid long-term care programs, community-based care collectives, and bed activism. Just Care identifies what care does, and asks: How can we activate care justice or just care where people feel cared affirmatively and care being used for the wellbeing of community and for just world making?
Disabled people are routinely assumed to lack the capabilities and capacities to embody and experience sexuality and desire, as well as the agency to love and be loved by others, and build their own families, if they so choose. Centring on the sexual, intimate and erotic lives of disabled people, this book presents a rare opportunity to understand and ask critical questions about such widely held assumptions. In essence, this book is a collection of sexual stories, told by disabled people on their own terms and in their own ways. Stories that shed light on areas of disability, love and life that are typically overlooked and ignored. A sociological analysis of these stories reveals the creative ways in which disabled people manage and negotiate their sexual and intimate lives in contexts where these are habitually denied. In its calls for disabled people's sexual and intimate citizenship, stories are drawn upon as the means to create social change and build more radically inclusive sexual cultures. In this ground breaking feminist critical disability studies text, The Intimate Lives of Disabled People introduces and contributes to contemporary debates around disability, sexuality and intimacy in the 21st century. Its arguments are relevant and accessible to researchers, academics, and students across a wide range of disciplines - such as sociology, gender studies, psychology, social work, and philosophy - as well as disabled people, their families and allies, and the professionals who work with and for them.
Disability rights advocates in the United Kingdom and the United States recently embraced new media technologies in unexpected and innovative ways. This book sheds light on this process of renewal and asks whether the digitalisation of disability rights advocacy can help re-configure political participation into a more inclusive experience for disabled Internet users, enhancing their stakes in democratic citizenship. Through the examination of social media content, Web link analysis, and interviews with leading figures in grassroots groups on both sides of the Atlantic, Filippo Trevisan reveals the profound impact that the Internet has had on disability advocacy in the wake of the austerity agenda that followed the 2008 global financial crisis. In Britain, a new, tech-savvy generation of young disabled self-advocates has emerged from this process. The role of social media platforms such as Facebook in helping politically inexperienced users make sense of complex policy changes through the use of personal stories is discussed also. In addition, this book explains why British disability advocates adopted more innovative and participatory strategies compared to their American counterparts when faced with similar policy crises. This book reviews the implications of this unexpected digital transformation for the structure of the disability rights movement, its leadership, and the opportunity for disabled citizens to participate fully in democratic politics vis-a-vis persisting Web access and accessibility barriers. An original perspective on the relationship between disability and the Internet, and an indispensable read for scholars wishing to contextualize and enrich their knowledge on digital disability rights campaigns vis-a-vis the broader ecology of policymaking.
Teaching Students with Learning Disabilities at Beacon College is a collection of essays written by professors and learning specialists (educational support personnel) at Beacon College, an accredited four-year institution for students with learning disabilities, ADHD, and other learning differences. The purpose of this book is to help fill the massive gap in the literature on teaching students with learning disabilities at the college level. The attrition rate of students with learning disabilities at traditional colleges and universities is very high. With a 70% four-year graduation rate, Beacon College is well-positioned to be an instructional model for other institutions. The essays discuss institutional practices, alternative teaching strategies, and personal instructor experiences.
A comprehensive assessment of the field of Disability Studies that presents beyond the medical to dig into the meaning From public transportation and education to adequate access to buildings, the social impact of disability has been felt everywhere since the passage of the Americans with Disabilities Act in 1990. And a remarkable groundswell of activism and critical literature has followed in this wake. Claiming Disability is the first comprehensive examination of Disability Studies as a field of inquiry. Disability Studies is not simply about the variations that exist in human behavior, appearance, functioning, sensory acuity, and cognitive processing but the meaning we make of those variations. With vivid imagery and numerous examples, Simi Linton explores the divisions society creates-the normal versus the pathological, the competent citizen versus the ward of the state. Map and manifesto, Claiming Disability overturns medicalized versions of disability and establishes disabled people and their allies as the rightful claimants to this territory.
This edited volume includes chapters on disability studies organized around three themes: Theory, Philosophy and Critique. Informed by a range of scholars who may or may not fashion their work beneath the banner of disability studies in explicit terms, it draws connections across a range of identities, knowledges, histories, and struggles that may, on the face of the text seem unrelated. The chapters are cross-categorical and interdisciplinary for purposes of complicating disability studies across international contexts and multiple locations that consider practice-oriented and intersectional approaches for analysis and advocacy. This integrative approach heralds more powerful ways to imagine disability and the conversation on disability.
A memoir by a disability rights activist Such a Pretty Girl is Nadina LaSpina's story-from her early years in her native Sicily, where still a baby she contracts polio, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness; to her adolescence and youth in America, spent almost entirely in hospitals, where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her; to her rebellion and her activism in the disability rights movement. LaSpina's personal growth parallels the movement's political development-from coming together, organizing, and fighting against exclusion from public and social life, to the forging of a common identity, the blossoming of disability arts and culture, and the embracing of disability pride. While unique, the author's journey is also one with which many disabled people can identify. It is the journey to find one's place in an ableist world-a world not made for disabled people, where disability is only seen in negative terms. La Spina refutes all stereotypical narratives of disability. Through the telling of her life's story, without editorializing, she shows the harm that the overwhelming focus on pity and on a cure that remains elusive has done to disabled people. Her story exposes the disability prejudice ingrained in our sociopolitical system and denounces the oppressive standards of normalcy in a society that devalues those who are different and denies them basic rights. Written as continuous narrative and in a subtle and intimate voice, Such a Pretty Girl is a memoir as captivating as a novel. It is one of the few disability memoirs to focus on activism, and one of the first by an immigrant.
In Undoing Suicidism, Alexandre Baril argues that suicidal people are oppressed by what he calls structural suicidism, a hidden oppression that, until now, has been unnamed and under-theorized. Each year, suicidism and its preventionist script and strategies reproduce violence and cause additional harm and death among suicidal people through forms of criminalization, incarceration, discrimination, stigmatization, and pathologization. This is particularly true for marginalized groups experiencing multiple oppressions, including queer, trans, disabled, or Mad people. Undoing Suicidism questions the belief that the best way to help suicidal people is through the logic of prevention. Alexandre Baril presents the thought-provoking argument that supporting assisted suicide for suicidal people could better prevent unnecessary deaths. Offering a new queercrip model of (assisted) suicide, he invites us to imagine what could happen if we started thinking about (assisted) suicide from an anti-suicidist and intersectional framework. Baril provides a radical reconceptualization of (assisted) suicide and invaluable reflections for academics, activists, practitioners, and policymakers. |
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