The provision of assistive technology is an important individual and collective service of the welfare state. The state plays a significant role towards linking users and products, and the matching of devices and users is both a science and an art. However, many people feel it is stigmatising to use individually designed assistive technologies as they often, in a subtle way, convey discriminating barriers in society. The major challenges of assistive technology are thus to reduce social exclusion and marginalisation and, importantly, to reduce individual risks and societal costs related to non-use due to deficiencies in usability, aesthetics and design of the technologies. This groundbreaking book discusses the relationships among society, disability and technology by using different empirical examples (e.g., school, everyday life) to show why the combination of disability studies and STS-studies (science, technology and society) is a fruitful approach to understanding and meeting these challenges. The book explores the significance of the technologies for users, society and the field; identifies challenges to designing, adopting and using assistive technologies; and points at theoretical challenges in research as well as professional challenges in assistive technology service provision. The book also scrutinises the role of assistive technology devices, as well as the organisational structure of the assistive technology market, in relation to disabled people's lives. This book will be valuable reading for students, academics, teachers and social educators interested in Disability Studies, STS Studies, Product Design, Sociology, Occupational Therapy and Physiotherapy, as well as engineers working in the field of assistive technology.

R. Leidl, P. Potthoff, and D. Schwefel Health is a most vital resource represented in the degree of our well-being and our ability to conduct active and satisfactory lives. Acute and chronic illnesses diminish such well-being and abilities and may require resources for medical or nursing care. The improvement in health status, a major objective of health policy, requires the measurement of the severity of diseases and their consequences as essential elements of information. In application, the measurement approaches are gaining in relevance as they become more feasible and as more experience is gathered about their implementation and utilization. The feasibility of these new information tools is supported by developments in data processing technologies that permit broadly based empirical applications. Wider applications lead to improvements in the management use of this information. At the European level, better indicator systems of diseases and their various aspects are facing an increasing demand for patient-based health and health system comparisons and analyses. The measurement of health status and its implications can comprise a number of dimensions: various concepts of health and disease, types of diseases, methodological approaches of measurement, purposes of application and states of implementation.

This edited collection uses a critical theory perspective and draws on expertise from a range of contemporary policy and practice areas. Contributors include people with disabilities, family members, researchers, academics and practitioners. This book is an ideal text for students of social work, human services, child and youth care and disability studies. Chapters include first-person accounts from persons with disabilities, perspectives of families and historical perspectives, as well as a critical exploration of demographics, human rights issues, disability legislation and policy in Canada, theoretical approaches to disability, intersectionality and disability, Aboriginal people and disability, mental health disability, principles of anti-ableist practice, advocacy and strategies for change. This book offers as a fresh Canadian perspective on disAbility from a critical lens, challenging and inspiring students and practitioners alike to think outside the box and to examine their own attitudes and values toward disAbility, ensuring that they do not inadvertently impose ableist and oppressive practices on one of Canada s most marginalized populations."

Americans spend more than five billion dollars a year on cosmetics. In such a culture, to be unattractive is to be at a disadvantage; to have a physical abnormality that impairs one's appearance is to be stigmatized and rejected. Destructive to adults, this rejection can be devastating to children.In Beauty is the Beast, Ann Hill Beuf examines the stigmatization of children who deviate from American standards of acceptable physical appearance. Children impaired by birth defects, dermatological disorders, excessive obesity, and similar disorders are frequently regarded as inferior and often repulsive, and they suffer rejection by strangers, peers, the professionals who are supposed to help them, and their own families.Using theory and methodology from sociology, anthropology, and psychology, as well as her own extensive interviews with children and their caretakers, Beuf analyzes both the effects of this stigmatization on children and the strategies they use to cope with it.Beauty is the Beast will interest parents and professionals who work with appearance-impaired children, as well as scholars and graduate students in the fields of nursing, sociology, social work, and psychology.

Diagnosed with Pathological Demand Avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the "scenic route" in order to flourish and reach their full potential. The memoir brings to life Harry's past experiences and feelings, from his torrid time at school to the peaceful and meaningful moments when he is alone with a book, writing or creating YouTube videos. Eloquent and insightful, The PDA Paradox will bring readers to shock, laughter and tears through its overwhelming honesty. It is a turbulent memoir, but it ends with hope and a positive outlook to the future.

In Attachments to War Jennifer Terry traces how biomedical logics entangle Americans in a perpetual state of war. Focusing on the Afghanistan and Iraq wars between 2002 and 2014, Terry identifies the presence of a biomedicine-war nexus in which new forms of wounding provoke the continual development of complex treatment, rehabilitation, and prosthetic technologies. At the same time, the U.S. military rationalizes violence and military occupation as necessary conditions for advancing medical knowledge and saving lives. Terry examines the treatment of war-generated polytrauma, postinjury bionic prosthetics design, and the development of defenses against infectious pathogens, showing how the interdependence between war and biomedicine is interwoven with neoliberal ideals of freedom, democracy, and prosperity. She also outlines the ways in which military-sponsored biomedicine relies on racialized logics that devalue the lives of Afghan and Iraqi citizens and U.S. veterans of color. Uncovering the mechanisms that attach all Americans to war and highlighting their embeddedness and institutionalization in everyday life via the government, media, biotechnology, finance, and higher education, Terry helps lay the foundation for a more meaningful opposition to war.

In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of "debility"-bodily injury and social exclusion brought on by economic and political factors-to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

In this book I present a series of eleven essays written between 1978 and 1987 on subjects relevant to the anthropology of health and international health. The issues addressed in these essays were investigated during 38 months of fieldwork in rural southwest peninsular India (197 4-86) and 15 months of fieldwork in southwest Sri Lanka (1983-84 ).;During various periods of this time I conducted ethnographic fieldwork, explored the feasibility of participatory community research, facilitated the development of a postgraduate health education training program, and served as a consultant to various international health organizations. The essays document my ongoing attempts to integrate academic interests in the anthropology of health with applications of anthropology for international health and development. The volume is divided into four sections structured around the themes of: ethnophysiology, illness ethnography, pharmaceutical related behavior, and health communication. Included are studies of fertility and pregnancy (Chapters 1 and 2), states of malnutrition and approaches to nutrition education (Chapters 5 and 11 ), diarrheal disease and water boiling behavior (Chapters 6 and 1 0), and lay perceptions of fertility control methods and medicines (Chapters 3 and 7). Emerging from these studies is a recognition that perceptions of ethnophysiology and contingent health concerns signifi cantly influence health behavior and the use as well as demand for traditional and modern health resources."

Although scholars in the environmental humanities have been exploring the dichotomy between "wild" and "built" environments for several years, few have focused on the field of disability studies, a discipline that enlists the contingency between environments and bodies as a foundation of its scholarship. On the other hand, scholars in disability studies have demonstrated the ways in which the built environment privileges some bodies and minds over others, yet they have rarely examined the ways in which toxic environments engender chronic illness and disability or how environmental illnesses disrupt dominant paradigms for scrutinizing "disability." Designed as a reader for undergraduate and graduate courses, Disability Studies and the Environmental Humanities employs interdisciplinary perspectives to examine such issues as slow violence, imperialism, race, toxicity, eco-sickness, the body in environmental justice, ableism, and other topics. With a historical scope spanning the seventeenth century to the present, this collection not only presents the foundational documents informing this intersection of fields but also showcases the most current work, making it an indispensable reference.

It is not easy to summarize the studies that have dealt with the health effects of un employment on the unemployed. The main problem impeding a comparison of their results is the diversity of theoretical constructs associated with physical and especially mental health and, above all, an apparently inexhaustible variety of op erationalizations of these constructs. It is significant that the six conclusions drawn from the present state of unemployment research by the organizers of a re cent conference on the individual and social consequences of unemployment in cluded the following request: "In view of the relevant constructs, it seems to be most urgent to find or to develop operationalizations which can be agreed upon, in order to guarantee comparability of research results" (Kieselbach and Wacker 1985, p. XX; my translation). Nevertheless, the results of these studies allow the statement that a negative in fluence of job loss on psychological well-being can be regarded as a validated finding. The influence on physical health, however, must be assessed very careful ly and in a differentiated manner. The few investigations dealing with this ques tion arrive at different conclusions; moreover, possibly relieving effects of unem ployment on health come into sight."

Unlike most histories of the medical profession between 1750 and 1850, which focus on a small handful of famous doctors and their discoveries, this book concentrates on the neglected but far larger group of rank and file practitioners: the surgeon-apothecaries of the late 18th century and the general practitioners of the early 19th century. Delving into an array of manuscript sources, Loudon examines their social and economic status, their background and training, their scientific methods and medical challenges, and their patients and pay-scales. He demonstrates that they actually faced unparalleled intraprofessional rivalry in an overcrowded profession during these years -- the effects of which are still seen in the structure of Britain's medical establishment today.

This book looks anew at the tort remedy and reform proposals surrounding the modern debate on compensation for personal injuries. Arguing that serious distortions underlie the debate because of its focus on victims of traumatic accidents, the author calls for the consideration of other legally neglected but highly publicized sources of disability including man-made health hazards such as asbestos, tobacco, and Agent Orange, and socially-spread diseases such as AIDS. This ground-breaking study demonstrates that attention to such crucial issues explodes much of the conventional wisdom about just how to tackle reform and reveals that a fundamental rethinking of the compensation debate is urgently needed.

Intellectual disability is often overlooked within mainstream disability studies, and theories developed about disability and physical impairment may not always be appropriate when thinking about intellectual (or learning) disability. This pioneering book, in considering intellectually disabled people's lives, sets out a care ethics model of disability that outlines the emotional caring sphere, where love and care are psycho-socially questioned, the practical caring sphere, where day-to-day care is carried out, and the socio-political caring sphere, where social intolerance and aversion to difficult differences are addressed. It does so by discussing issue-based everyday life, such as family, relationships, media representations and education, in an evocative and creative manner. This book draws from an understanding of how intellectual disability is represented in all forms of media, a feminist ethics of care, and capabilities, as well as other theories, to provide a critique and alternative to the social model of disability as well as illuminate care-less spaces that inhabit all the caring spheres. The first two chapters of the book provide an overview of intellectual disability, the debates surrounding disability, and outline the model. Having begun to develop an innovative theoretical framework for understanding intellectual disability and being human, the book then moves onto empirical and narrative driven issue-based chapters. The following chapters build on the emergent framework and discuss the application of particular theories in three different substantive areas: education, mothering and sexual politics. The concluding remarks draw together the common themes across the applied chapters and link them to the overarching theoretical framework. An important read for all those studying and researching intellectual or learning disability, this book will be an essential resource in sociology, philosophy, criminology (law), social work, education and nursing in particular.

The marked increase in life-expectancy in Down syndrome since the 1990s, although a very good sign in itself, raises important questions regarding the health issues, cognitive involution and social and professional inclusion of people with the condition. In this text, a large group of leading specialists have supplied a series of papers on many aspects of this issue, ranging from epidemiology, genetics, medical issues, Alzheimer's disease, cognition and language, to sexual behaviour and contraception, family issues, professional orientation and work experiences.

This book should be of interest to physicians, psychologists, social workers and educators working in the field who wish to provide evidence-based interventions for persons with Down syndrome advancing in age.

Contends that disability is a central but misunderstood element of global austerity politics. Broadly attentive to the political and economic shifts of the last several decades, Robert McRuer asks how disability activists, artists and social movements generate change and resist the dominant forms of globalization in an age of austerity, or "crip times." Throughout Crip Times, McRuer considers how transnational queer disability theory and culture-activism, blogs, art, photography, literature, and performance-provide important and generative sites for both contesting austerity politics and imagining alternatives. The book engages various cultural flashpoints, including the spectacle surrounding the London 2012 Olympic and Paralympic Games; the murder trial of South African Paralympian Oscar Pistorius; the photography of Brazilian artist Livia Radwanski which documents the gentrification of Colonia Roma in Mexico City; the defiance of Chilean students demanding a free and accessible education for all; the sculpture and performance of UK artist Liz Crow; and the problematic rhetoric of "aspiration" dependent upon both able-bodied and disabled figurations that emerged in Thatcher's England. Crip Times asserts that disabled people themselves are demanding that disability be central to our understanding of political economy and uneven development and suggests that, in some locations, their demand for disability justice is starting to register. Ultimately, McRuer argues that a politics of austerity will always generate the compulsion to fortify borders and to separate a narrowly defined "us" in need of protection from "them."

A unique work that brings together a number of specialist disciplines, such as archaeology, anthropology, disability studies and psychiatry to create a new perspective on social and physical exclusion from society. A range of evidence throws light on such things as the causes and consequences of social exclusion stigma, marginality and dangerousness.
It is an important work that breaks down traditional academic disciplinary boundaries and brings a much needed comparative approach to the subject.

Despite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the wellbeing of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver. By the 1970s, a group of legislators and bureaucrats came to act as "political entrepreneurs." Motivated by personal and professional commitments, they were seen as experts leading a movement within the government. But as they increasingly faced obstacles to their legislative intentions, nascent disability advocacy and protest groups took the cause to the American people forming the basis of the contemporary disability rights movement. Drawing on extensive archival material, Pettinicchio redefines the relationship between grassroots advocacy and institutional politics, revealing a cycle of progress and backlash embedded in the American political system.

The adoption of the Convention on the Rights of People with Disabilities (CPRD) by the United Nations in 2006 is the first comprehensive and binding treaty on the rights of people with disabilities. It establishes the right of people with disabilities to equality, dignity, autonomy, full participation, as well as the right to live in the community, and the right to supported decision-making and inclusive education. Prior to the CRPD, international law had provided only limited protections to people with disabilities. This book analyses the development of disability rights as an international human rights movement. Focusing on the United States and countries in Asia, Africa, the Middle East the book examines the status of people with disabilities under international law prior to the adoption of the CPRD, and follows the development of human rights protections through the convention's drafting process. Arlene Kanter argues that by including both new applications and entirely new approaches to human rights treaty enforcement, the CRPD is significant not only to people with disabilities but also to the general development of international human rights, by offering new human rights protections for all people. Taking a comparative perspective, the book explores how the success of the CRPD in achieving protections depends on the extent to which individual countries enforce domestic laws and policies, and the changing public attitudes towards people with disabilities. This book will be of excellent use and interest to researchers and students of human rights law, discrimination, and disability studies.

Sports are ubiquitous in American society, and given their prominence in the culture, it is easy to understand how most youth in the United States face pressure to participate in organized sports. But what does this mean for the hundreds of thousands of Americans who live with one or more physical disabilities and, in particular, those in powered wheelchairs? Located at the intersection of sports and disability, this book tells the story of power soccer - the first competitive team sport specifically designed for electric wheelchair users. Beginning in France in the 1970s, today, over sixty teams compete within the United States Power Soccer Association (USPSA) and the sport is actively played in over thirty countries. Using ethnographic research conducted while attending practices, games, and social functions of teams from across the nation, Jeffress builds a strong case that electric wheelchair users deserve more opportunity to play sports. They deserve it because they need the same physical and psychosocial benefits from participation as their peers, who have full use of their arms and legs. It challenges the social constructions and barriers that currently stand in the way. Most importantly, this book tells the story of some amazing power soccer athletes. It is a moving, first-hand account of what power soccer means to them and the implications this has for society.

This book examines the conventional approaches to numerous problems that affect people who are blind (such as education, Braille literacy, economic inequities, stereotyping, job training and employment opportunities, poverty, rehabilitation and social services).

Disability offers a new lens through which to view the effectiveness of access to justice, and the inclusiveness of the justice system as a whole. This book analyses the experience of people with disabilities through the entire justice system, from making a complaint, to investigation, and through the court/tribunal process. It also considers the participation of people with disabilities in a variety of roles in the justice system - as witness, defendant, complainant, plaintiff, lawyer, judge and juror. More broadly, it also critically examines the subtle barriers of access to justice which might exist in a given society - including barriers to grassroots disability advocacy, legal education and training, the right to vote and the right to stand for election which may apply to people with disabilities. The book is international and comparative in scope with a focus primarily on examples of legal practice and justice systems in common law countries. The work will be of interest to scholars working in the areas of human rights, equality and non-discrimination, disability rights activists and legal professionals who work with people with disabilities to achieve access to justice.

This book focuses on the clinical treatment of disability from French researchers in the fields of psychology, anthropology, psychiatry, and philosophy. It provides English-speaking readers with an insight into the way French authors raise the relevant issues and implement innovative practices.