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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
This book builds upon critiques of development in the disability domain by investigating the necessity and implications of theorising disability from the Global South and how development policies and practices pertaining to disabled people in such contexts might be improved by engaging with their voices and agency. The author focuses on the lived experiences of disabled people in Burkina Faso, while situating these experiences, where necessary, in the wider national and regional contexts. She explores development agencies' interventions with disabled people and the need to re-think these practices and ideologies which are often framed within western contexts. This work will appeal to policy makers, NGOs, academics, students and researchers in the fields of development and disability studies.
Championing the liberatory potential of silence to address the fraught disability politics of queerness In queer culture, silence has been equated with voicelessness, complicity, and even death. Queer Silence insists, however, that silence can be a generative and empowering mode of survival. Triangulating insights from queer studies, disability studies, and rhetorical studies, J. Logan Smilges explores what silence can mean for people whose bodyminds signify more powerfully than their words. Queer Silence begins by historicizing silence's negative reputation, beginning with the ways homophile activists rejected medical models pathologizing homosexuality as a disability, resulting in the silencing of disability itself. This silencing was redoubled by HIV/AIDS activism's demand for "out, loud, and proud" rhetorical activities that saw silence as capitulation. Reading a range of cultural artifacts whose relative silence has failed to attract queer attachment, from anonymous profiles on Grindr to ex-gays to belated gender transitions to disability performance art, Smilges argues for silence's critical role in serving the needs of queers who are never named as such. Queer Silence urges queer activists and queer studies scholars to reconcile with their own ableism by acknowledging the liberatory potential of silence, a mode of engagement that disattached queers use every day for resistance, sociality, and survival.
This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as "Don't Mourn for Us", mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.
This book presents an ethnographic case study of the personal motivations, advocacy, and activation of social capital needed to create and sustain the Immortelle Children's Centre, a private school that has served children with disabilities in Trinidad/Tobago for four decades. Based on narratives by parents from the 1980's, current parents, teachers, community advocates, and the author, who was the founder of Immortelle in 1978, the study views the school within the context of a nation standing in a liminal space between developed and developing societies. It argues that the attainment of equity for children with disabilities will require an agenda that includes a legal mandate for education of all children, increased public funding for education, health and therapeutic services, and an on-going public awareness campaign. Relating this study to the global debate on inclusion, the author shows how the implementation of this agenda would have to be adapted to the social, cultural, and economic realities of the society.
This edited collection brings together keynote articles from the journal Disability & Society to provide a comprehensive and though-provoking exploration of the place of technology in disabled people's lives, documenting and analysing the growing impact of technology on disability and society over recent decades. The authors explore theoretical, empirical and moral dilemmas that arise with the changing relationship between technological change and the lives, aspirations and possibilities of disabled people. The volume is organised into three parts which consider early foundational work connecting disability and technology; key empirical studies related to the optimum use of technologies for independence and inclusion; and new moral and social dynamics thrown up by technological developments for disabled people's lives.
Drawing on her own experiences with late-onset disability and its impact on her sex life, along with her expertise as a cultural critic, Jane Gallop explores how disability and aging work to undermine one's sense of self. She challenges common conceptions that equate the decline of bodily potential and ability with a permanent and irretrievable loss, arguing that such a loss can be both temporary and positively transformative. With Sexuality, Disability, and Aging, Gallop explores and celebrates how sexuality transforms and becomes more queer in the lives of the no longer young and the no longer able while at the same time demonstrating how disability can generate new forms of sexual fantasy and erotic possibility.
This collection provides a broad coverage of recent changes in medical and vocational rehabilitation in Northern Europe. It presents analyses that cut across health sciences, medical sociology, disability studies and comparative welfare state research. Through this interdisciplinary perspective, the book explores the changing roles of patients, caregivers, professionals and institutions, and the wider implications of these changes for social inequalities in health. What obstacles do different groups of patients encounter when negotiating the complex chains of medical and vocational services? Who decides regarding references to specialized treatments, and the provision of comprehensive and coordinated services, and different types of benefits and material support? What is the importance of the resources that patients and caregivers bring to bear in the rehabilitation process?
Richard III will always be central to English disability history as both man and myth-a disabled medieval king made into a monster by his nation's most important artist. In Richard III's Bodies from Medieval England to Modernity, Jeffrey Wilson tracks disability over 500 years, from Richard's own manuscripts, early Tudor propaganda, and x-rays of sixteenth-century paintings through Shakespeare's soliloquies, into Samuel Johnson's editorial notes, the first play produced by an African American Theater company, Freudian psychoanalysis, and the rise of disability theater. For Wilson, the changing meanings of disability created through shifting perspectives in Shakespeare's plays prefigure a series of modern attempts to understand Richard's body in different disciplinary contexts-from history and philosophy to sociology and medicine. While theorizing a role for Shakespeare in the field of disability history, Wilson reveals how Richard III has become an index for some of modernity's central concerns-the tension between appearance and reality, the conflict between individual will and external forces of nature and culture, the possibility of upward social mobility, and social interaction between self and other, including questions of discrimination, prejudice, hatred, oppression, power, and justice.
The modern concept of disability did not exist in the Romantic period. This study addresses the anachronistic use of 'disability' in scholarship of the Romantic era, providing a disability studies theorized account that explores the relationship between ideas of function and aesthetics. Unpacking the politics of ability, the book reveals the centrality of capacity and weakness concepts to the egalitarian politics of the 1790s, and the importance of desert theory to debates about sentiment and the charitable relief of impaired soldiers. Clarifying the aesthetics of deformity as distinct from discussions of ability, Joshua uncovers a controversy over the use of deformity in picturesque aesthetics, offers accounts of deformity that anticipate recent disability studies theory, and discusses deformity and monstrosity as a blended category in Frankenstein. Setting aside the modern concept of disability, Joshua cogently argues for the historical and critical value of period-specific terms.
The New Feminist Literary Studies presents sixteen essays by leading and emerging scholars that examine contemporary feminism and the most pressing issues of today. The book is divided into three sections. This first section , 'Frontiers', contains essays on issues and phenomena that may be considered, if not new, then newly and sometimes uneasily prominent in the public eye: transfeminism, the sexual violence highlighted by #MeToo, Black motherhood, migration, sex worker rights, and celebrity feminism. Essays in the second section, 'Fields', specifically intervene into long-constituted or relatively new academic fields and areas of theory: disability studies, eco-theory, queer studies, and Marxist feminism. Finally, the third section, 'Forms', is dedicated to literary genres and tackles novels of domesticity, feminist dystopias, young adult fiction, feminist manuals and manifestos, memoir, and poetry. Together these essays provide new interventions into the thinking and theorising of contemporary feminism.
Dementia is a term that encompasses a wide range of symptoms. In Europe alone about 10 million people live with dementia. Where health policy and medical approaches reach their limits, art and design strategies can open up new perspectives for people living with dementia - in terms of their abilities and circumstances and their social environment. This interdisciplinary handbook is aimed at people working and researching in the field of dementia. It offers insights into the possibilities and limitations of artistic and art-related interventions in relation to dementia. This publication brings together contributions from the disciplines of design, architecture, and art, music, and museum education, providing a variety of insights into this multifaceted syndrome.
Children and teenagers are different. Some have more differences than others and may have difficulties with things such as participating in group activities, or really understanding how other people see things and how they think. Some of these young people want to do things in their own way, and some of them have a particular interest which fills their lives. Many of those who are special in this way have Asperger Syndrome or high functioning autism. Gunilla, who is now an adult, received her diagnosis several years ago. She has written this book for all children and teenagers who have similar difficulties. It's an important book - in fact, it's the only one of its kind. Gunilla's book should be read by all young people who receive a diagnosis of Asperger Syndrome, PDD or high functioning autism. It can also be read by their peers in school, siblings, and other children with whom they have contact. Adults may read it too, the better to understand the person with autism or Asperger Syndrome.' - Christopher Gillberg, MD and Professor of Child and Adolescent Psychiatry
Living with a Brother or Sister with Special Needs focuses on the intensity of emotions that brothers and sisters experience when they have a sibling with special needs, and the hard questions they ask: What caused by sibling's disability? Could my own child have a disability as well? What will happen to my brother or sister if my parents die? Written for young readers, the book discusses specific disabilities in easy to understand terms. It talks about the good and the not-so-good parts of having a brother or sister who has special needs, and offers suggestions for how to make life easier for everyone in the family. The book is a wonderful resource, not just for siblings and their parents but also for teachers and other professionals who work with children with special needs. This revised and updated edition includes new sections on attention deficit hyperactivity disorder, fetal alcohol syndrome, fragile X syndrome, traumatic brain injuries, ultrasound, speech therapy, recent legislation on disabilities, and an extensive bibliography.
As the baby boom generation ages, it is crucial that designers understand all they can about bringing this group, as well as all others, design that will offer function, aesthetics, and quality of life. Full of examples and illustrated with pictures of good design, Universal Design: Principles and Models details how the principles of universal design (UD) can be used to evaluate all products and places. Universal design is ubiquitous; therefore good examples are essential to understanding. This book includes more than 50 case studies that demonstrate successful applications of UD principles and helps professors develop curriculum and teaching strategies. More than 300 color photographs and drawings further illustrate the principles and best practices. The book includes topics ranging from the development of ergonomic chairs for home and office to the unique environmental concerns of those sensitive to electronic and chemical emissions. The examples illustrate a variety of user/groups in different situations and clearly demonstrate the design directives for meeting their needs. The author explores the many definitions of UD, enabling readers to identify those most meaningful to large portions of the population. Universal design (UD) facilitates the comfort and navigation of those with failing eyesight or restricted mobility, and the family members and professionals who care for them. Whether at home, work, or a public place, people appreciate the beautiful and the practical. This book takes a vital and meaningful approach, going beyond the basics and delving into details. It gets to the heart of UD and supplies an understanding of design from a greater perspective.
'GORGEOUS, VIVIDLY ALIVE' NEW YORK TIMES 'BOLD, HONEST AND SUPERBLY WELL-WRITTEN' ANDRE ACIMAN, AUTHOR OF CALL ME BY YOUR NAME 'GRACEFUL AND SOUL-BARING' MELANIE REID, THE TIMES 'WHAT A GIFT . . . HAS THE RIGOR AND PRECISION OF JOAN DIDION AND MAGGIE NELSON AND A FORTHRIGHT HUMOR AND NAKED TRUTH ALL OF ITS OWN.' SARAH RUHL, AUTHOR OF SMILE I am in a bar in Brooklyn listening to two men, my friends, discuss whether or not my life was worth living. So begins Chloe Cooper Jones's bold account of moving through the world in a body that looks different than most. Born with a rare congenital condition called sacral agenesis, she must contend not only with her own physical pain, but the emotional discomfort of others. It is only when she unexpectedly becomes a mother that she confronts the demand to live life fully, propelling her on a journey across the globe, reclaiming the spaces she'd been denied, and denied herself. From Roman sculptures to a Beyonce concert, from a tennis tournament to the Cambodian Killing Fields, Jones interrogates the myths of beauty with spiky intelligence, aesthetic philosophy, love and humor, inviting us to find a new way of seeing.
Until the recent recognition of Deaf culture and the legitimacy of signed languages, majority societies around the world have classified Deaf people as "disabled," a term that separates all persons so designated from the mainstream in a disparaging way. Damned for Their Difference offers a well-founded explanation of how this discrimination came to be through a discursive exploration of the cultural, social, and historical contexts of these attitudes and behavior toward deaf people, especially in Great Britain. Authors Jan Branson and Don Miller examine the orientation toward and treatment of deaf people as it developed from the 17th century through the 20th century. Their wide-ranging study explores the varied constructions of the definition of "disabled," a term whose meaning hinges upon constant negotiation between parties, ensuring that no finite meaning is ever established. Damned for Their Difference provides a sociological understanding of disabling practices in a way that has never been seen before.
The content of news has not changed much over the last century-politicians, celebrities, wars, crime, and sports dominate past and present headlines. Yet, the ways in which journalists both gather and disseminate information have been turned on their head. Gone are the days of editors assigning stories to writers, who then research, inquire, and present what they found in a compelling yet accurate fashion. Today's journalists are coding, programming, running analytics, and developing apps. These "news nerds" are industry professionals working in jobs at the intersection of traditional journalism and technologically intensive positions that were once largely separate. Consequently, news nerds have changed the institutionalized view of journalism, which now accounts for these professionals. News Nerds explores how technological, economic, and societal changes are impacting the institutionalized profession of journalism. Allie Kosterich draws on a mixed-methods research design that blends interviews, social network analysis of LinkedIn data, job postings, and industry publications to make sense of how skills and practices become entrenched throughout the news industry. Taken together, these data reveal the ways in which the profession is evolving to incorporate new technological skillsets and new routines of production. In telling these stories and sharing these findings, Kosterich directly confronts what happens when new skillsets and new ways of understanding and producing news start to collide with the old routines of journalism. News Nerds introduces the notion of institutional augmentation-a process of institutional change that is not restricted to the expected binary outcome of the reinstitutionalization of something new or failure as a fleeting fad. Instead, as in the case of news nerds and journalism, there exists an alternative possibility in the coexistence of supplementary institutions. News Nerds provides a timely and relevant analysis of contemporary journalism and a model for understanding how industries react to the emergence of new career trajectories and new categories of employment.
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