What does it mean to live with life-threatening illness? How does one respond to loss? Freud's Jaw and Other Lost Objects attempts to answer these questions and, as such, illuminates the vulnerabilities of the human body and how human beings suffer harm. In particular, it examines how cancer disrupts feelings of bodily integrity and agency. Employing psychoanalytic theory and literary analysis, Lana Lin tracks three exemplary figures, psychoanalyst Sigmund Freud, poet Audre Lorde, and literary and queer theorist Eve Kosofsky Sedgwick. Freud's sixteen-year ordeal with a prosthetic jaw, the result of oral cancer, demonstrates the powers and failures of prosthetic objects in warding off physical and psychic fragmentation. Lorde's life writing reveals how losing a breast to cancer is experienced as yet another attack directed toward her racially and sexually vilified body. Sedgwick's memoir and breast cancer advice column negotiate her morbidity by disseminating a public discourse of love and pedagogy. Lin concludes with an analysis of reparative efforts at the rival Freud Museums in London and Vienna. The disassembled Freudian archive, like the subjectivities-in-dissolution upon which the book focuses, shows how the labor of integration is tethered to persistent discontinuities. Freud's Jaw asks what are the psychic effects of surviving in proximity to one's mortality, and it suggests that violences stemming from social, cultural, and biological environments condition the burden of such injury. Drawing on psychoanalyst Melanie Klein's concept of "reparation," wherein constructive forces are harnessed to repair damage to internal psychic objects, Lin proposes that the prospect of imminent destruction paradoxically incites creativity. The afflicted are obliged to devise means to reinstate, at least temporarily, their destabilized physical and psychic unity through creative, reparative projects of love and writing.

Through theoretical and empirical examination of legal frameworks for court diversion, this book interrogates law's complicity in the debilitation of disabled people. In a post-deinstitutionalisation era, diverting disabled people from criminal justice systems and into mental health and disability services is considered therapeutic, humane and socially just. Yet, by drawing on Foucauldian theory of biopolitics, critical legal and political theory and critical disability theory, Steele argues that court diversion continues disability oppression. It can facilitate criminalisation, control and punishment of disabled people who are not sentenced and might not even be convicted of any criminal offences. On a broader level, court diversion contributes to the longstanding phenomenon of disability-specific coercive intervention, legitimates prison incarceration and shores up the boundaries of foundational legal concepts at the core of jurisdiction, legal personhood and sovereignty. Steele shows that the United Nations Convention on the Rights of Persons with Disabilities cannot respond to the complexities of court diversion, suggesting the CRPD is of limited use in contesting carceral control and legal and settler colonial violence. The book not only offers new ways to understand relationships between disability, criminal justice and law; it also proposes theoretical and practical strategies that contribute to the development of a wider re-imagining of a more progressive and just socio-legal order. The book will be of interest to scholars and students of disability law, criminal law, medical law, socio-legal studies, disability studies, social work and criminology. It will also be of interest to disability, prisoner and social justice activists.

As prenatal tests proliferate, the medical and broader communities perceive that such testing is a logical extension of good prenatal care -- it helps parents have healthy babies. But prenatal tests have been criticized by the disability rights community, which contends that advances in science should be directed at improving their lives, not preventing them. Used primarily to decide to abort a fetus that would have been born with mental or physical impairments, prenatal tests arguably reinforce discrimination against and misconceptions about people with disabilities.

In these essays, people on both sides of the issue engage in an honest and occasionally painful debate about prenatal testing and selective abortion. The contributors include both people who live with and people who theorize about disabilities, scholars from the social sciences and humanities, medical geneticists, genetic counselors, physicians, and lawyers. Although the essayists don't arrive at a consensus over the disability community's objections to prenatal testing and its consequences, they do offer recommendations for ameliorating some of the problems associated with the practice.

The New Feminist Literary Studies presents sixteen essays by leading and emerging scholars that examine contemporary feminism and the most pressing issues of today. The book is divided into three sections. This first section , 'Frontiers', contains essays on issues and phenomena that may be considered, if not new, then newly and sometimes uneasily prominent in the public eye: transfeminism, the sexual violence highlighted by #MeToo, Black motherhood, migration, sex worker rights, and celebrity feminism. Essays in the second section, 'Fields', specifically intervene into long-constituted or relatively new academic fields and areas of theory: disability studies, eco-theory, queer studies, and Marxist feminism. Finally, the third section, 'Forms', is dedicated to literary genres and tackles novels of domesticity, feminist dystopias, young adult fiction, feminist manuals and manifestos, memoir, and poetry. Together these essays provide new interventions into the thinking and theorising of contemporary feminism.

This book examines the conventional approaches to numerous problems that affect people who are blind (such as education, Braille literacy, economic inequities, stereotyping, job training and employment opportunities, poverty, rehabilitation and social services).

The adoption of the Convention on the Rights of People with Disabilities (CPRD) by the United Nations in 2006 is the first comprehensive and binding treaty on the rights of people with disabilities. It establishes the right of people with disabilities to equality, dignity, autonomy, full participation, as well as the right to live in the community, and the right to supported decision-making and inclusive education. Prior to the CRPD, international law had provided only limited protections to people with disabilities. This book analyses the development of disability rights as an international human rights movement. Focusing on the United States and countries in Asia, Africa, the Middle East the book examines the status of people with disabilities under international law prior to the adoption of the CPRD, and follows the development of human rights protections through the convention's drafting process. Arlene Kanter argues that by including both new applications and entirely new approaches to human rights treaty enforcement, the CRPD is significant not only to people with disabilities but also to the general development of international human rights, by offering new human rights protections for all people. Taking a comparative perspective, the book explores how the success of the CRPD in achieving protections depends on the extent to which individual countries enforce domestic laws and policies, and the changing public attitudes towards people with disabilities. This book will be of excellent use and interest to researchers and students of human rights law, discrimination, and disability studies.

Despite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the wellbeing of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver. By the 1970s, a group of legislators and bureaucrats came to act as "political entrepreneurs." Motivated by personal and professional commitments, they were seen as experts leading a movement within the government. But as they increasingly faced obstacles to their legislative intentions, nascent disability advocacy and protest groups took the cause to the American people forming the basis of the contemporary disability rights movement. Drawing on extensive archival material, Pettinicchio redefines the relationship between grassroots advocacy and institutional politics, revealing a cycle of progress and backlash embedded in the American political system.

Philosophy as Disability and Exclusion examines the history of ideas on arts in the education of people who are blind in England, from 1688 to 2010. This book also examines a number of the earlier influences on the enlightenment, and the international context of this topic. The two hypotheses on which this study is based are: (1) Our understanding of blindness in English intellectual culture is less to do with homologous physical characteristics. Instead it is more to do with an ethical philosophy of human capacity. (2) The arts education of people who are blind through touch tells us much about our psychology of mythologies and the intellectual construction of human thought. Furthermore, the myth that people who are blind are incapable of visual arts and have an enhanced capacity for the musical arts is one of the most engrained modern folklores. It is part of our cultural, intellectual and philosophical conscience. In the process of investigating these hypotheses, this book argues that philosophies have linked immorality, intelligence and physical ability. These have become connected in ways that are unrelated to eyesight in order to fulfill broader cultural processes of developing social theory. In this book, the process of knowledge creation is termed passive exclusion and is analyzed through an epistemological model of examining disability and exclusion.

Sports are ubiquitous in American society, and given their prominence in the culture, it is easy to understand how most youth in the United States face pressure to participate in organized sports. But what does this mean for the hundreds of thousands of Americans who live with one or more physical disabilities and, in particular, those in powered wheelchairs? Located at the intersection of sports and disability, this book tells the story of power soccer - the first competitive team sport specifically designed for electric wheelchair users. Beginning in France in the 1970s, today, over sixty teams compete within the United States Power Soccer Association (USPSA) and the sport is actively played in over thirty countries. Using ethnographic research conducted while attending practices, games, and social functions of teams from across the nation, Jeffress builds a strong case that electric wheelchair users deserve more opportunity to play sports. They deserve it because they need the same physical and psychosocial benefits from participation as their peers, who have full use of their arms and legs. It challenges the social constructions and barriers that currently stand in the way. Most importantly, this book tells the story of some amazing power soccer athletes. It is a moving, first-hand account of what power soccer means to them and the implications this has for society.

This book focuses on two areas of substantial and growing importance to the human development and capability approach: health and disability. The research on disability, health and the capability approach has been diverse in the topics it covers, and the conceptual frameworks and methodologies it uses, beginning over a decade and a half ago in health and more than a decade ago in disability. This book shares a set of contributions in these two areas: the first set of chapters focusing on disability; and the second set focusing on health and the health capability paradigm (HCP), in particular. This book was originally published as a special issue of the Journal of Human Development and Capabilities.

Drawing on the work of George Lakoff, this book provides a detailed analysis of the organism metaphor, which draws an analogy between the national or social body and a physical body. With attention to the manner in which this metaphor conceives of various sub-groups as either beneficial or detrimental to the (social) body's overall functioning, the author examines the use of this metaphor to view marginalized sub-populations as invasive or contagious entities that need to be treated in the same way as harmful bacteria or pathogens. Analyzing the organism metaphor as it was employed in the service of social injustice through the nineteenth and twentieth centuries in the United States, Contagion and the National Body focuses on the alarm eras of the restrictive immigration period (1890-1924), the agitation against Chinese and Japanese populations on the West Coast, the eugenic period's targeting of feeble-minded persons and other "defectives," periods of anti-Semitism, the anti-Communist movements, and various forms of racial animosity against African-Americans.

'Prosthesis' denotes a rhetorical 'addition' to a pre-existing 'beginning', a 'replacement' for that which is 'defective or absent', a technological mode of 'correction' that reveals a history of corporeal and psychic discontent. Recent scholarship has given weight to these multiple meanings of 'prosthesis' as tools of analysis for literary and cultural criticism. The study of pre-modern prosthesis, however, often registers as an absence in contemporary critical discourse. This collection seeks to redress this omission, reconsidering the history of prosthesis and its implications for contemporary critical responses to, and uses of, it. The book demonstrates the significance of notions of prosthesis in medieval and early modern theological debate, Reformation controversy, and medical discourse and practice. It also tracks its importance for imaginings of community and of the relationship of self and other, as performed on the stage, expressed in poetry, charms, exemplary and devotional literature, and as fought over in the documents of religious and cultural change. Interdisciplinary in nature, the book engages with contemporary critical and cultural theory and philosophy, genre theory, literary history, disability studies, and medical humanities, establishing prosthesis as a richly productive analytical tool in the pre-modern, as well as the modern, context. This book was originally published as a special issue of the Textual Practice journal.

This book focuses on the clinical treatment of disability from French researchers in the fields of psychology, anthropology, psychiatry, and philosophy. It provides English-speaking readers with an insight into the way French authors raise the relevant issues and implement innovative practices.

Incorporating Compass Computer Access Assessment software, Computer Access for People with Disabilities: A Human Factors Approach provides the information clinicians need to know in order to provide effective alternative computer access solutions to individuals with disabilities. Originally developed for a masters-level course on computer access for rehabilitation engineers and rehabilitation counselors, it provides practical guidance on how to provide computer access services and sufficient background knowledge to allow the reader to interpret the research literature. Presents technology for individuals with physical, cognitive, and sensory impairments, and for older adults Covers text entry devices, pointing devices, switch access, automatic speech recognition, and web accessibility Emphasizes fundamental concepts and principles that remain true regardless of which specific operating system or product is being used Draws on research from the fields of rehabilitation engineering, occupational therapy, and human-computer interaction (HCI)

Native Americans suffer disproportionately from many social and health disparities. High rates of poverty, exposure to environmental toxins, and various forms of violence all increase the risk of health problems, including disabilities, yet there is very little published scholarship concerning Native American experiences with disabilities. In collecting contributions on various aspects of disability in Native American populations in one volume, this book seeks to redress this lack of attention. Writing about regions of the United States, Canada, and Australia, and spanning a diverse range of settings from remote rural areas, to reservations, to college campuses, the authors are attentive to the impact of specific environments on their inhabitants. Taking into account both physical and social environment, and recognizing the importance of cultural context, this book is a good starting point for anyone interested in developing a better understanding of the experience of Native peoples living with disabilities. This book was originally published as a special issue of the Journal of Social Work in Disability & Rehabilitation.

As the profile of disability sport has risen, so has the emphasis grown beyond participation to include the development of a high performance environment. This book is the first to take an in-depth look at the role of coaches and coaching in facilitating the professionalisation of disability sport, in raising performance standards, and as an important vector for the implementation of significant political, socio-cultural and technological change. Using in-depth case studies of elite disability sport coaches from around the world, the book offers a framework for critical reflection on coaching practice as well as the reader's own experiences of disability sport. The book also evaluates the vital role of the coach in raising the bar of performance in a variety of elite level disability sports, including athletics, basketball, boccia, equestrian sport, rowing, soccer, skiing, swimming and volleyball. Providing a valuable evidence-based learning resource to support coaches and students in developing their own practice, High Performance Disability Sport Coaching is essential reading for all those interested in disability sport, coaching practice, elite sport development and the Paralympic Games.

As the profile of disability sport has risen, so has the emphasis grown beyond participation to include the development of a high performance environment. This book is the first to take an in-depth look at the role of coaches and coaching in facilitating the professionalisation of disability sport, in raising performance standards, and as an important vector for the implementation of significant political, socio-cultural and technological change. Using in-depth case studies of elite disability sport coaches from around the world, the book offers a framework for critical reflection on coaching practice as well as the reader's own experiences of disability sport. The book also evaluates the vital role of the coach in raising the bar of performance in a variety of elite level disability sports, including athletics, basketball, boccia, equestrian sport, rowing, soccer, skiing, swimming and volleyball. Providing a valuable evidence-based learning resource to support coaches and students in developing their own practice, High Performance Disability Sport Coaching is essential reading for all those interested in disability sport, coaching practice, elite sport development and the Paralympic Games.

This fully revised and expanded second edition of the Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and arranged thematically, it surveys the state of the discipline, examining emerging and cutting-edge areas as well as core areas of contention. Divided in five parts, this comprehensive handbook covers: Different models and approaches to disability. How key impairment groups have engaged with disability studies and the writings within the discipline. Policy and legislation responses to disability studies and to disability activism. Disability studies and its interaction with other disciplines, such as history, philosophy, sport, and science and technology studies. Disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing 15 revised chapters and 12 new chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers, and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work. Chapter 6 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license at https://tandfbis.s3-us-west-2.amazonaws.com/rt-files/docs/Open+Access+Chapters/9781138365308_oachapter6.pdf.

Hotly contested, normality remains a powerful, complex category in contemporary law and culture. What is little realized are the ways in which disability underpins and shapes the operation of norms and the power dynamics of normalization. This pioneering collection explores the place of law in political, social, scientific and biomedical developments relating to disability and other categories of 'abnormality'. The contributors show how law produces cultural meanings, norms, representations, artefacts and expressions of disability, abnormality and normality, as well as how law responds to and is constituted by cultures of disability. The collection traverses a range of contemporary legal and political issues including human rights, mercy killing, reproductive technologies, hate crime, policing, immigration and disability housing. It also explores the impact and ongoing legacies of historical practices such as eugenics and deinstitutionalization. Of interest to a wide range of scholars working on normality and law, the book also creates an opening for critical scholars and activists engaged with other marginalized and denigrated categories, notably contesting institutional violence in the context of settler colonialism, neoliberalism and imperialism, to engage more richly and politically with disability. This book was originally published as a special issue of the Continuum journal.

Winner, Body and Embodiment Award presented by the American Sociological Association Imagine yourself without a face-the task seems impossible. The face is a core feature of our physical identity. Our face is how others identify us and how we think of our 'self'. Yet, human faces are also functionally essential as mechanisms for communication and as a means of eating, breathing, and seeing. For these reasons, facial disfigurement can endanger our fundamental notions of self and identity or even be life threatening, at worse. Precisely because it is so difficult to conceal our faces, the disfigured face compromises appearance, status, and, perhaps, our very way of being in the world. In Saving Face, sociologist Heather Laine Talley examines the cultural meaning and social significance of interventions aimed at repairing faces defined as disfigured. Using ethnography, participant-observation, content analysis, interviews, and autoethnography, Talley explores four sites in which a range of faces are "repaired:" face transplantation, facial feminization surgery, the reality show Extreme Makeover, and the international charitable organization Operation Smile,. Throughout, she considers how efforts focused on repair sometimes intensify the stigma associated with disfigurement. Drawing upon experiences volunteering at a camp for children with severe burns, Talley also considers alternative interventions and everyday practices that both challenge stigma and help those seen as disfigured negotiate outsider status. Talley delves into the promise and limits of facial surgery, continually examining how we might understand appearance as a facet of privilege and a dimension of inequality. Ultimately, she argues that facial work is not simply a conglomeration of reconstructive techniques aimed at the human face, but rather, that appearance interventions are increasingly treated as lifesaving work. Especially at a time when aesthetic technologies carrying greater risk are emerging and when discrimination based on appearance is rampant, this important book challenges us to think critically about how we see the human face.

Extending the ideas presented in the highly successful Health Planning: Qualitative Aspects and Quantitative Techniques (1972), this book looks at practical aspects of implementing primary health care programmes. The book's three sections cover: the policy issues and conceptual framework for planning, implementation, and evaluation; essential methods of planning for effective implementation; and specific tools and techniques in programme management. Part I contains chapters on the planning process itself, as well as management, evaluation, and health systems research. Part II considers the economic, political, epidemiological, demographic, and other disciplinary components of planning that contribute methods for health needs assessment and resources allocation. Specific analytical techniques presented in Part III relate to decision analysis, network analysis, survey techniques, cost-effectiveness appraisal, and many other areas. This practical text, aimed at public health students and administrators, emphasizes the difficult task of providing essential health services to scattered rural populations, in developing countries with limited resources. Health administrators and professio

In September 2018, Professor Sean Davison's peaceful life in the leafy suburbs of Pinelands, Cape Town is shattered. Arrested for the murder of Dr Anrich Burger, a once-fit athlete turned quadriplegic who begged Davison to assist him in ending his life in 2015, the unassuming academic and father of three now finds himself locked up in a prison cell.

Under investigation led by the Hawks, an additional two murders are added to the case for which he now faces a mandatory life prison sentence. Written in compelling detail, The Price of Mercy tracks the extraordinary journey that Davison embarks on to prepare for the gruelling legal challenge that lies ahead.

The desperate cries of many, begging for his assistance to help end their lives of suffering haunt him. Unwavering in his belief that we all have the right to die with dignity, Davison's selfless battle is made more bearable by his friendship with the late and great Archbishop Desmond Tutu.

A book that will change the way you see death.

This book is a succinct and distinctive presentation of current research addressing educational issues in relation to children and young people with disabilities in Southern contexts. Even though people with disabilities are disproportionately over-represented in the majority world, there is a lack of texts which bring together empirical insights highlighting the unique socio-economic and cultural realities of these contexts and the ways in which these have shaped developments in education. This book provides a comprehensive and critical overview of a range of issues, such as the dilemmas in conceptual translations, analysis of international aid and national policies, evaluation of various educational interventions, and issues interrogating the purpose of education. Bringing together various research projects conducted in eight different countries, this book successfully captures a unique spread of cross-cultural issues. It was originally published as a special issue of the International Journal of Inclusive Education.

This book takes a distinctive approach to exploring the experiences and identities of minoritized Latinx mothers who are raising a child who is labeled as both an emergent bilingual and dis/abled. It showcases relationships between families and schools and reveals the myriad of ways in which school-based decisions regarding disability, language and academic placement impact family dynamics. Treating the mothers as experts, this book uses testimonios to explore not only what mothers know but also how they develop funds of knowledge and how they apply them to their child's education. The stories shed light on how mothers perceive their child's disability, how they engage with their child and the value they place on bilingualism. The narratives reveal the complex lives mothers lead and the ways in which they strive to meet the academic and socioemotional needs of their children, regardless of the financial, physical and emotional costs to them. This book has significant implications for researchers and professionals working in bilingual education, special education, inclusive education and disability studies in education.

The client group referred to as the long-term mentally ill, the persistently severely mentally distressed, the chronically psychotic, or people with long-term mental health problems, have generally received a poor deal from the traditional psychiatric services. Help has largely rested on custodial and medical treatments.;With the growing emphasis on community care, it is now time to develop services in the community which are both beneficial and acceptable to the people who receive them. The text calls for more effective collaboration between professionals in health authorities and local authorities, the voluntary sector, the various informal carers at home, and above all the clients themselves.;This book should be of interest to occupational therapists and other members of the multi-health care team.