At least 50 million people worldwide have epilepsy. Representing Epilepsy, the latest volume in LUP's acclaimed Representations series, seeks to understand the epileptic body as a literary or figurative device intelligible beyond a medical framework. Jeannette Stirling argues that neurological discourse from the late-nineteenth century through to the mid-twentieth century is as much forged by the cultural conditions and representational politics of the times as it is by the science of western medicine. Along the way she explores narratives of epilepsy depicting ideas of social disorder, tainted bloodlines, sexual deviance, spiritualism and criminality in works as diverse as David Copperfield and The X Files. This path-breaking book will be required reading for cultural disability studies scholars and for anyone seeking greater understanding of this common condition. 'Representing Epilepsy offers a clever exploration of the cultural history of this condition, based on an effective interdisciplinary approach. It will be of particular interest to scholars and students in the field of Medical Humanities, as well as to all those involved in the care of people with epilepsy, who wish to improve their understanding of the socio-cultural repercussions of the condition.' Maria Vaccarella, King's College London

What happens when love is no longer enough? Jane Bernstein thought that learning to accept her daughter's disabilities meant her struggles were over. But as Rachel grew up and needed more than a parent's devotion, both mother and daughter were confronted with formidable obstacles. Rachel in the World, which begins in Rachel's fifth year and ends when she turns twenty-two, tells of their barriers and successes with the same honesty and humor that made Loving Rachel, Bernstein's first memoir, a classic in its field. The linked accounts in part 1 center on family issues, social services, experiences with caregivers, and Rachel herself--difficult, charming, hard to fathom, eager for her own independence. The second part of the book chronicles Bernstein's attempt to find Rachel housing at a time when over 200,000 Americans with mental retardation were on waiting lists for residential services. As Rachel prepares to leave her mother's constant protection, Bernstein invites the reader to share the frustrations and unexpected pleasures of finding a place for her daughter, first in her family, and then in the world.

The COVID-19 pandemic has had a profound and potentially ever-lasting impact on our economy, society, and the way that we live. In response to this pandemic there has been a plethora of research published about COVID-19. However, within this fast-growing body of literature there are only scant references made to the impact that this pandemic has had on autistics, their families, and the healthcare professionals who support autistics. Autism and COVID-19 is a concise summary of the research, bridging the gaps in our knowledge about autism and the COVID-19 pandemic. Bennett and Goodall address vaccine hesitancy among autistics and parents raising autistic children, the experiences of autistics living with COVID-19 disease and parenting an autistic child during the COVID-19 pandemic, synthesising the data about the COVID-19 pandemic from the perspective of autistic, their families, and those that provide autistics with medical assistance. Autism and COVID-19 both reviews the existing literature and presents new findings from a survey distributed to autistics and parents of autistics during the pandemic, all of which offer a unique and timely contribution to researchers, academics, practitioners, and those working with autistics and their families.

How should disability justice be conceptualised, not by orthodox human rights or capabilities approaches, but by a legal philosophy that mirrors an African relational community ideal? This book develops the first comprehensive answer to this question through the contemporary literature on African philosophy, which is relied upon to construct a legal philosophy of disability justice comprising of ethical ideals of community, human relationships and obligations. From these ideals, an African legal philosophy of disability justice is offered as a criterion for critically evaluating existing laws, legal and political institutions, as well as providing an ethical basis for creating new ones to ensure that they are inclusive to people with disabilities. In taking an alternative perspective on the subject, the book outlines and emphasises the need for a new public culture of obligations owed to people with disabilities, highlighting both the prospects and difficulties of achieving the ideal of disability justice that continues to elude the lived experiences of millions of Africans today. Oche Onazi's An African Path to Disability Justice is the first book-length exploration of disability in the light of African ethics, as contrasted with the human rights and capabilities frameworks. Of particular interest are Onazi's thoughtful reflections on how various conceptions of community salient in African moral philosophy--including group-based, reciprocal and relational--bear on what we owe to the disabled. --Thaddeus Metz, Distinguished Professor, University of Johannesburg

Young, Disabled and LGBT+ brings together the work of an international team interested in exploring the intersection of sexuality, gender identity, and disability in the lives of young people and aims to further develop this area as a distinct area of study. This volume features original research and writing into lives that are often misunderstood, marginalised and under-represented in research. It is framed with artwork, poetry and writing from young disabled LGBT+ people, and centralises the voices and lives of young disabled LGBT+ people throughout. Drawing from disciplines including: sociology, psychology, disability and youth studies, and with contributions from practitioners, it examines experiences and research from a number of perspectives, such as education, personal lives and activism. Featuring work from the UK, Canada, United States, India and Australia, it is a timely and topical book which will appeal to scholars particularly interested in sexuality, gender, disability and youth studies; professionals within health, education, social work and youth work who aim to understand and support young disabled LGBT+ people; and young people themselves.

Disability and Shopping:Customers, Markets and the State provides an examination of the diverse experiences and perspectives of disabled customers, industry and civil society. It discusses how the interaction between the three stakeholders should be shaped at aiming to decrease inequality and marginalisation. Shopping is a part of everyday modern life and yet businesses struggle to adequately meet the needs of 80 million disabled customers in the European Union single market. While there has been extensive research into how individuals engage in customer roles and experience, and how businesses and policies both shape and respond to these, little is known of the same dynamics and practices regarding people with impairments. This book addresses this need by revealing the perspectives, interactions and experiences of disabled customers and their interaction with policy and business. It will be required reading for all scholars and students of disability studies, sociology, marketing and customer relations.

This is a guide which offers advice to individuals, organizations and agencies on how to develop day care programmes for patients with Alzheimer's disease or a related dementia. At the same time, the book offers guidance to those who intend to adapt an established day care programme for the needs of Alzheimer sufferers. A range of programme aspects are covered from administration, financing, fund raising, public relations, client issues, program activities, problems facing participants' families, programme evaluation and supplementary resources.

Learn to interact with families in ways that promote family functioning when a family member is dying. Family-Based Palliative Care is an insightful book that aims to increase professionals'understanding of the family as client. Authoritative contributors who are experienced in working with the terminally ill present the most current theory, practice, and research related to family-based care of hospice patients. Each readable chapter includes a wealth of information that can be applied to health care settings in which holistic care is a priority. The first chapter presents a conceptual framework for caring for families of the terminally ill as well as clinical examples that are used to illustrate the application of the framework in practice. Experts describe four research studies--two qualitative studies that examine sources of stress for caregivers and identify the resources used by families to manage at home; a methodological study that explores the positive and negative aspects of family caregiving; and a case study that evaluates a hospice staff's efforts in providing family- based care.Because little research has been done with family caregivers of terminally ill hospice patients, Family-Based Palliative Care will be essential reading for nurses, social workers, hospice staff, and other professionals whose job it is to care for the dying and their families.

The term 'idiot' is a damning put down, whether deployed on the playground or in the board room. People stigmatized as being 'intellectually disabled' today must confront variants of the fear and pity with which society has greeted them for centuries. In this ground-breaking new study Patrick McDonagh explores how artistic, scientific and sociological interpretations of idiocy work symbolically and ideologically in society. Drawing upon a broad spectrum of British, French and American resources including literary works (Wordsworth's 'The Idiot Boy', Dickens Barnaby Rudge, Conrad's The Secret Agent), pedagogical works (Itard's The Wild Boy of Aveyron, Sequin's Traitement moral, hygiene et education des idiots, and Howe's On the courses of Idiocy), medical and scientific papers (Philippe Pinel, Henry Maudsley, William Ireland, John Langdon Downs, Isaac Kerlin, Henry Goddard) and sociological writings (Mayhew's London Labour and the London Poor, Beames' The Rookeries of London, Dugdal's The Jukes), Idiocy: A Cultural History offers a rich study of the history and representation of mental disability.

Kristin was thrown into a disability at the age of 14, and every day since then has been a struggle to overcome it. She has fought through the unavoidable physical stresses of her condition for over a decade and, even more, the heavy psychological burdens that follow closely behind. Greater Things is a raw perspective on everything from how people react differently to her situation, to learning how to navigate in and through an inaccessible world, to just trying to make the best of a crummy situation.

This ground-breaking book provides fascinating insights into the fast-emerging body of research that explores the relationship between sport, theology and disability within a social justice framework. In the shadow of two major sport-faith events that fore-fronted the theology of disability sport, the Vatican's international conference-Sport at the Service of Humanity and the Inaugural Global Congress on Sports and Christianity York St John University, UK, at which Dr Brian Brock led a thematic strand on the topic-this book provides a foundation for further research and practice. This text is a timely and important synthesis of ideas that have emerged in two previously distinct areas of research: (i) 'disability sport' and (ii) the 'theology of disability'. Examples of subjects addressed in this text include: elite physical disability sport-Paralympics; intellectual disability sport-Special Olympics; equestrian sport; church, sport and disability, and; theologies of embodiment, competition and mercy. This book, written by leaders in their respective fields, begins a critical conversation on these topics, and many others, for both researchers and practitioners. The chapters originally published in the Journal of Disability and Religion and Quest.

"Professor Davidson---an accomplished literary critic---offers a focused and balanced analysis of poetry, film, and the arts honed with his excellent knowledge of the latest advances in disability studies. He is brilliant at reading texts in a sophisticated and aesthetically pleasurable way, making "Concerto for the Left Hand" one of the smartest books to date in disability studies."
---Lennard Davis, University of Illinois, Chicago"Moving elegantly among social theorists and cultural texts, Davidson exemplifies and propels an ethical-aesthetic model for criticism. Davidson asks continuously and with a committed intensity 'where a disability ends and the social order begins' . . . this book brings the study of poetry and poetics into the twenty-first century."
---Rachel Blau DuPlessis, Temple University

"Concerto for the Left Hand" is at the cutting edge of the expanding field of disability studies, offering a wide range of essays that investigate the impact of disability across various art forms---including literature, performance, photography, and film. Rather than simply focusing on the ways in which disabled persons are portrayed, Michael Davidson explores how the experience of disability shapes the work of artists and why disability serves as a vital lens through which to interpret modern culture. Covering an eclectic range of topics---from the phantom missing limb in film noir to the poetry of American Sign Language---this collection delivers a unique and engaging assessment of the interplay between disability and aesthetics.

Written in a fluid, accessible style, "Concerto for the Left Hand" will appeal to both specialists and general audiences. With itsinterdisciplinary approach, this book should appeal not only to scholars of disability studies but to all those working in minority art, deaf studies, visual culture, and modernism.

Michael Davidson is Professor of American Literature at the University of California, San Diego. His other books include "Guys Like Us: Citing Masculinity in Cold War Poetics" and "Ghostlier Demarcations: Modern Poetry and the Material World,"

This is the first book to explore the interplay of disability, gender and violence over the life course from researcher, practitioner and survivor perspectives. It gives due weight to the accounts of disabled children and adults who have survived institutional or individual violence, evidencing barriers to recognition, disclosure and reporting. Written by disabled and non-disabled women from around the world, Disability, Gender and Violence over the Life Course addresses the dearth of voices and experiences of disabled women and girls in empirical research, policy and practice on issues of violence, victimisation, protection, support and prevention. Divided into three parts - Childhood, Adulthood and Older Life - this collection offers diverse perspectives on the intersectionality of disability, age, ethnicity, sexuality and violence that have hitherto been absent. This book will be an invaluable resource for students and practitioners of multiple fields of practice and academic studies, including health and social care, nursing, social work, childhood studies, gender studies, disability studies, safeguarding and child protection, equality and human rights, sociology and criminology.

In recent years, attending to diversity in the cultivation of embodied identity has been given additional impetus as a result of intersectionality theory. Despite this, a key gap remains in terms of knowledge about masculinity and disability. This book addresses this lacuna through ten empirical chapters organised through the inter-related themes of corporeality, pedagogy and the critique of otherness. Each of the chapters positions the subject of masculinity and disability as a site of cultural pedagogy by affirming different ways of knowing of masculinity beyond dominant ideologies that normalise a particular masculine body and relegate disabled masculinities to the position of abnormal 'Other'. Part One focuses on pedagogy. Through the materialities of 'medicalized colonialism', imprimaturs of 'relational genealogies', 'compounding differences' and an analytical exposition of some of the neo-colonial conditions of the Global South within spatially-considered places of the Global North, Chapter 1 examines the denial of human rights to the Indigenous Anishinaabe community of Shoal Lake 40 in Canada. Chapter 1 theorises masculine corporeality in terms that take seriously First Nations', national and transnational body politics seriously. Chapter 2 examines the ways that movement and affect serve as a form of pedagogy for boys with autism spectrum in schools. Part Two's focus on corporeality includes an examination of the nexus of disability and diagnosis in the context of transgender men's experiences of mental health, and a discussion of the ways that intersex individuals who identify as men and have experienced 'genital normalising surgery' actively negotiate pluralised masculinities. The focus on media in Part Three encompasses a study of the mis-interpellation of the disabled male subject in Australian male literature, research on the discursive strategies utilised in media representations of disabled veterans in Turkey, and an analysis of the political implications of depictions of masculinity, disability and sexualities in a variety television program. Part Four's theme of self-stylisation takes up the questions of men's reconstructions of masculinity in light of Lyme Disease, the potential pleasures of heterosexuality for young men with a hearing disability in the realm of Australian-Rules Football, and the diverse ways that disabled men negotiate patriarchal masculinity in intimate relationships.

Current research in Sociology of Disability has a tendency to assume that very little written in this area until the last 20 years. However, this is not always the case. In part the lack of awareness of older writing occurs because of the ease of computerized searching for recent references or a sense that newer is better. It also reflects the assumption that Sociology as a field has ignored either disability as a social phenomenon or treated it solely as a medical phenomenon. While theorists and introductory textbooks have tended [and still tend] to ignore disability as a non-medical phenomenon and especially as a structured source of inequality, that does not mean that no attention was paid to disability in the earlier years. Rather, interest in disability from a sociological point of view exists as early as the late 1800s. The purpose of this volume is to explore that literature, with an eye towards encouraging current scholars not to ask "the same old" questions but to use the older writings as a basis for revolutionary as well as evolutionary thinking. What do the older writings tell us about what questions we should be asking, and what research we should be doing, today?

The United Nations Convention on the Rights of Persons with Disabilities (CRPD) recognized that people with disabilities should have the right to exercise their legal capacity and identified 'supported decision-making' as a means by which people with disabilities can be directly involved in decisions that impact their lives. Offering an overview of its emergence in the disability field and highlighting emerging research, theory, and practice from legal, psychology, education, and health fields, this volume provides a much-needed theoretical and evidence base for supported decision-making. Evidence and strengths-based frameworks for understanding disability, supports, and their roles in promoting supported decision-making are synthesized. The authors describe the application of a social-ecological approach to supported decision-making, and focus on implications for building systems of supports based on current environmental demands. This volume introduces and explains empirical research on critical elements of supported decision-making and the applications of supported decision-making that enhance outcomes, including self-determination and quality of life.

This honest, to-the-point guide illuminates the experience of young Autistic girls and explores the situations they can easily fall victim to. Powerful case studies show how easily misunderstandings can arise for Autistic girls and help the reader to identify common patterns of abuse. Providing professionals with access to safeguarding strategies that are straightforward to implement and highly effective, this is essential reading for everyone who wants to better understand the challenges faced by this vulnerable group, and ensure they have access to the same opportunities to secure a good education and build safe and happy relationships as their peers.

This volume in "The SAGE Reference Series on Disability" explores health and medical issues for people with disabilities. It is one of eight volumes in the cross-disciplinary and issues-based series, which incorporates links from varied fields making up disability studies as volumes examine topics central to the lives of individuals with disabilities and their families. With a balance of history, theory, research, and application, specialists set out the findings and implications of research and practice for others whose current or future work involves the care or study of those with disabilities, as well as for the disabled themselves. The concise, engaging presentational style emphasizes accessibility. Taken individually, each volume sets out the fundamentals of the topic it addresses, accompanied by compiled data and statistics, recommended further readings, a guide to organizations and associations, and other annotated resources, thus providing the ideal introductory platform and gateway for further study. Taken together, the series represents both a survey of major disability issues and a guide to new directions and trends and contemporary resources in the field as a whole.

Both health care practitioners and health planners are beginning to recognize the importance of differences between lay and professional concepts of health and illness. The editors of this volume, having themselves worked in this field for many years, have selected and brought together writings by distinguished scholars from Britain, France, the United States, Germany and Poland. What impresses most is the range of problems synthesized from a genuinely international and interdisciplinary perspective. No reader can fail to be fascinated by the often peculiar ways in which different societies have tried to cope with the existential questions of health and illness.

Winner of the Bread and Roses Award for Radical Publishing Award 2021 In 2016, a United Nations report found the UK government culpable for 'grave and systematic violations' of disabled people's rights. Since then, driven by the Tory government's obsessive drive to slash public spending whilst scapegoating the most disadvantaged in society, the situation for disabled people in Britain has continued to deteriorate. Punitive welfare regimes, the removal of essential support and services, and an ideological regime that seeks to deny disability has resulted in a situation described by the UN as a 'human catastrophe'. In this searing account, Ellen Clifford - an activist who has been at the heart of resistance against the war on disabled people - reveals precisely how and why this state of affairs has come about. From spineless political opposition to self-interested disability charities, rightwing ideological myopia to the media demonization of benefits claimants, a shocking picture emerges of how the government of the fifth-richest country in the world has been able to marginalize disabled people with near-impunity. Even so, and despite austerity biting ever deeper, the fightback has begun, with a vibrant movement of disabled activists and their supporters determined to hold the government to account - the slogan 'Nothing About Us Without Us' has never been so apt. As this book so powerfully demonstrates, if Britain is to stand any chance of being a just and equitable society, their battle is one we should all be fighting.

This book sets out to understand how students with disabilities experience higher education and the transition to the workplace. It foregrounds the voices of students and graduates in order to explore identity, inclusion, participation and success of youth with disabilities in higher education, as well as their transition from university to employment. The author proposes a new understanding of disability, considered in terms of a continuum of abilities, balancing empirical data, theory and policy analysis with specific regard to the interests of youth with disabilities, making a unique contribution to discussions on access, inclusion and success in higher education and employment. These discussions inform social development and educational policy planning and implementation, not only in South Africa, but also in countries with a similar context, particularly in terms of remedial courses of action that bring social justice to people with disabilities. Students with Disabilities and the Transition to Work will be of interest to all scholars and students working in the fields of disability studies, particularly those with a focus on critical disability studies and disability in the global south, as well as those working in higher education, sociology, development studies and social policy.

Trusted for four decades by university faculty and relied on by thousands of professionals from diverse fields, Children with Disabilities is the gold-standard text on working effectively with children and families. Now this authoritative resource is in its eighth edition, enhanced with new chapters on critical topics, the latest evidence-based practices, updated instructor materials, and guidance on working with a wide range of professionals to address every aspect of child health and well-being. Spearheaded by senior editor Mark Batshaw, M.D., Chief Academic Officer at Children's National Health System, this new edition is an unparalleled compendium of information about developmental, clinical, family, education, and intervention issues, from birth through adolescence. Every chapter has been meticulously peer-reviewed, and content has been updated throughout to reflect important new research and developments in diverse fields. Comprehensive coverage of contemporary issues makes this volume an indispensable reference for practicing professionals, and the student-friendly features and multimedia instructor materials make it the ultimate textbook for courses on disability. A treasury of essential knowledge from a who's who of today's leading experts and innovators, Children with Disabilities is a cornerstone resource that professionals will use year after year to support their important work and ensure that every child and family thrives. WHAT'S NEW Expanded focus on interdisciplinary care, including practical guidance on how professionals from different fields can effectively collaborate New chapters on key topics: sleep disorders, assessment of physical disabilities, the senses, rehabilitative services, interdisciplinary care, the role of medication, and the effect of health care disparities on child outcomes New Evidence-Based Practice boxes throughout the text, for easy review of recent studies and recommended practices Updated nomenclature based on new developments in the field and recommendations from respected organizations STUDENT-FRIENDLY FEATURES: Students will benefit from chapter overviews, a helpful glossary, case studies that bring key concepts to life, thought questions, a test bank with more than 200 questions for faculty members, resource lists for further reading, and 200 downloadable illustrations. And with the complete package of multimedia instructor materials, instructors will use this textbook effectively in their courses and prepare students for years of successful practice.