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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
Rather than being evidence-based, the 'everyday' practice of ADHD
health care enacted daily by a multitude of professionals is the
result of the interaction of historical, social, political,
economic and institutional elements. By drawing on several critical
theorists, this book provides an ethnographic investigation of the
nexus of elements that conditioned the possibility for the everyday
social practice of ADHD to be in place within an NHS region in
Scotland. The book develops a critical analytical approach, using
the concepts of 'problematisation' and the 'apparatus' to capture a
two-stage process - the questioning of how and why certain 'things'
become a problem, but also how these 'things' are shaped as the
objects that they become. The object of interest for this project
was young people and the fieldwork was conducted in a small
geographical region in Scotland, consisting of several periods in
health and education services. Ethnographic tools utilised in the
book include observation of clinical appointments, document
analysis, interviews and archival research. The different layers of
qualitative material examined in the study - from individual
clinical appointment to national policy - have allowed for a
reconnection of the discursive field in which the current practice
of ADHD emerged. With a detailed theorisation of the theoretical
concepts, as well as a clear account of application in empirical
research, this book will act as a guide for researchers aiming to
apply these concepts in applied research.
Many critical analyses of disability address important 'macro'
concerns, but are often far removed from an interactional and
micro-level focus. Written by leading scholars in the field, and
containing a range of theoretical and empirical contributions from
around the world, this book focuses on the taken-for-granted,
mundane human activities at the heart of how social life is
reproduced, and how this impacts on the lives of those with a
disability, family members, and other allies. It departs from
earlier accounts by making sense of how disability is lived,
mobilised, and enacted in everyday lives. Although broad in focus
and navigating diverse social contexts, chapters are united by a
concern with foregrounding micro, mundane moments for making sense
of powerful discourses, practices, affects, relations, and
world-making for disabled people and their allies. Using different
examples - including learning disabilities, cerebral palsy,
dementia, polio, and Parkinson's disease - contributions move
beyond a simplified narrow classification of disability which
creates rigid categories of existence and denies bodily variation.
Disability, Normalcy, and the Everyday should be considered
essential reading for disability studies students and academics, as
well as professionals involved in health and social care. With
contributions located within new and familiar debates around
embodiment, stigma, gender, identity, inequality, care, ethics,
choice, materiality, youth, and representation, this book will be
of interest to academics from different disciplinary backgrounds
including sociology, anthropology, humanities, public health,
allied health professions, science and technology studies, social
work, and social policy.
Exploring contemporary theory and practice surrounding loss and
bereavement for people with intellectual disabilities (ID), this
book brings together international contributors with a range of
academic, professional and personal experience. This authoritative
edited book looks at diverse experiences of loss across this
population whether it be loss due to transition, the loss or death
of others, or facing their own impending death. The book begins by
offering theoretical perspectives on loss and compassion,
bereavement, disenfranchised grief, spirituality, and psychological
support. It then addresses contemporary practice issues in health
and social care contexts and explores loss for specific communities
with ID including children, individuals with autism, those in
forensic environments, and those at the end of life. Identifying
inherent challenges that arise when supporting individuals with ID
experiencing loss, and providing evidence and case studies to
support best practice approaches, this book will be valuable
reading for students, academics and professionals in the fields of
disability, health and social care.
Despite the progress of decades-old disability rights policy,
including the landmark Americans with Disabilities Act, threats
continue to undermine the wellbeing of this population. The U.S.
is, thus, a policy innovator and laggard in this regard. In
Politics of Empowerment, David Pettinicchio offers a historically
grounded analysis of the singular case of U.S. disability policy,
countering long-held views of progress that privilege public demand
as its primary driver. By the 1970s, a group of legislators and
bureaucrats came to act as "political entrepreneurs." Motivated by
personal and professional commitments, they were seen as experts
leading a movement within the government. But as they increasingly
faced obstacles to their legislative intentions, nascent disability
advocacy and protest groups took the cause to the American people
forming the basis of the contemporary disability rights movement.
Drawing on extensive archival material, Pettinicchio redefines the
relationship between grassroots advocacy and institutional
politics, revealing a cycle of progress and backlash embedded in
the American political system.
Adopting a predominantly psychological approach, this book provides
carers with up-to-date information and resources to provide
appropriately individualised care to people with learning
disabilities who self-injure. Understanding and Working with People
with Learning Disabilities who Self-Injure synthesises traditional
(behavioural) and newer (psychological) approaches to understanding
self-injury, drawing on psychoanalytic and social theory to provide
practical guidelines for more sustained and effective support. It
suggests that motivations for self-injury may be similar for people
with and without learning disabilities, and draws on case work
examples to suggest person-centred techniques that encourage
communication - particularly important with people who do not use
verbal communication - and recovery. The book covers a range of
specific needs, including people with autism who self-injure, and
emphasises the views of people with learning disabilities
themselves and their families about what has worked best, and why.
At the end of each chapter, a variety of practical implications for
the provision of support are given. This book is for those
supporting people with learning disabilities who self-injure and
will be a useful resource for social workers, psychologists,
counsellors, learning support workers, nurses and social and health
care students.
The Willowbrook Wars is a dramatic and illuminating account of
the effort to close down a scandal-ridden institution and return
its 5,400 handicapped residents to communities in New York. The
wars began in 1972 with Geraldo Rivera's televised raid on the
Willowbrook State School. They continued for three years in a
federal courtroom, with civil libertarian lawyers persuading a
conservative and conscience-stricken judge to expand the rights of
the disabled, and they culminated in a 1975 consent decree, with
the state of New York pledging to accomplish the unprecedented
assignment in six years.
From 1975 to 1982, David and Sheila Rothman observed this
remarkable chapter in American reform of mental disabilities care.
Would the state live up to its agreement without "dumping"
residents into other nightmarish institutions? Would the lawyers
prove as interested in meeting client needs as in securing client
rights? Could a tradition-bound bureaucracy create a new network of
community services? And finally, would a governor and a legislature
tolerate such outside intervention, and if so, for how long? In
answering these questions,
The Willowbrook Wars takes us behind the scenes to clarify the
role of the judiciary, the fate of the underprivileged, and the
potential for social justice. In their new afterword, the authors
bring the story up to date, describing the results of the closing
of the institution in 1987 from the experiences of integrating the
former residents into communities to the legal battles between the
state of New York and advocates for the mentally handicapped.
Intellectual and Developmental Disabilities provides a unique
contribution not currently available in the professional literature
by addressing the experiences and perspectives of families living
with or raising a child with a disability. Designed for family
therapists, social workers, and other helping professionals, it
provides empirically-based, practical information for working with
families experiencing intellectual and developmental disabilities
of a loved one. This book also provides important information for
navigating the various professional systems of care with which
these families interface: health care providers, early childhood
intervention teams, educational systems, the legal system, and
financial planners.
Inspiring and challenging study that rethinks the Bible's teaching
on disability A theologian whose life experience includes growing
up alongside a brother with Down syndrome, Amos Yong in this book
rereads and reinterprets biblical texts about human disability,
arguing that the way we read biblical texts, not the Bible itself,
is what causes us to marginalize persons with disabilities.
Revealing and examining the underlying stigma of disability that
exists even in the church, Yong shows how the Bible offers good
news to people of all abilities -- and he challenges churches to
become more inclusive communities of faith.
Sensory-being: the enveloping of natural presentness and awareness
in an unfolding sensory moment. Sensory Beings: people whose
experience of the world, and meaning within it, is primarily
sensory. Often these are people who do not have access to language.
If you support someone who understands the world in a primarily
sensory way, for example someone with PMLD or later stage dementia,
you will recognise that they often face periods of time in which
they are left without an activity they can access. This unique,
practical guide helps you to plan and deliver sensory activities
that lead people into a calm, focused state. You are even invited
to let the person you support lead you into a state of sensory
focus. Written by a leading sensory specialist this book will help
you to: View the world as the person you support may view it, and
identify times when a sensory-being activity may be appropriate.
Understand how to select and create the most engaging, low cost,
sensory foci to suit the specific needs of the individuals in your
care. Effectively facilitate sensory-being sessions from start to
finish so that the people you care for receive the full and many
benefits of calm, focused time. Tried and tested in a diverse range
of settings prior to publication, these techniques and practical
tools have already helped many people provide an enriched
experience of life for those in their care. Throughout the book you
will find numerous case studies and insights from parents, carers,
special school practitioners, therapists, research institutions and
more so that you can benefit from this broad body of experience.
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The Story of My Life (1903) is the autobiography of Helen Keller.
Written while she was an undergraduate student at Radcliffe College
in Cambridge, Massachusetts, The Story of My Life was a joint
effort between Keller, her teacher Anne Sullivan, and Anne's
husband John Macy. "Gradually I got used to the silence and
darkness that surrounded me and forgot that it had ever been
different, until she came-my teacher-who was to set my spirit free.
But during the first nineteen months of my life I had caught
glimpses of broad, green fields, a luminous sky, trees and flowers
which the darkness that followed could not wholly blot out. If we
have once seen, 'the day is ours, and what the day has shown.'"
After losing her hearing and sight as an infant, Helen Keller
received a life-changing education from her dedicated teacher Anne
Sullivan, herself vision impaired. As she learned to communicate
through signs, she found an innate determination to surpass the
expectations of those around her, eventually becoming the first
deafblind person to obtain her Bachelor of Arts. Her autobiography
is a rich retelling of the first twenty-one years of Keller's life,
a period marked by tragedy and miracle alike, shaping her into one
of the twentieth century's leading civil rights activists and
public speakers. With a beautifully designed cover and
professionally typeset manuscript, this edition of Helen Keller's
The Story of My Life is a classic of American literature reimagined
for modern readers.
Many people find themselves without the experience or skills to
deal with individuals with behaviour they do not like or find
threatening. This much- needed new text provides insights and
access to a range of therapeutic interventions. The book is divided
into three sections. The first provides theoretical background,
addresses legal and ethical issues, and raises questions about the
language we use to describe behaviour we find difficult to
understand. This is followed by the main part of the book and
descriptions of seven different approaches and interventions. The
third section of the book discusses the problematic nature of
evidence for choosing particular interventions and therapies.
Attractively presented, the book includes: case studies reader
activities lists of resources, such as annotated bibliographies,
addresses of organisations and website addresses This text will be
of benefit to anyone working in health and social services,
educational, and independent settings, as well as students, parents
and carers. Written and edited by an interdisciplinary group of
expert contributors, this book provides a unique resource that
details a wide range of therapeutic interventions in one
text.Accessible exploration of what constitutes behavioural
distress Range of therapies covered includes arts therapies, gentle
teaching, and behavioural interventionsUnique chapter on examining
the evidence based for these therapies Colour plate sectionCase
studies, reader activities and resource lists including web sites
In this new edition, the editors and contributors update and expand
on the educational framework that was introduced in the first
edition for rethinking disability in public health study and
practice and for attaining the competencies that should accompany
this knowledge. The second edition highlights key areas of research
that have emerged since the first edition was published. This
edition includes new and updated chapters that have particular
relevance for public health practice: Disability,
Intersectionality, and Inequity: Life in the Margins Disability and
Health Programs: Emerging Partners Children with Special Healthcare
Needs Disasters and Disability: Rhetoric and Reality
Inter-relationship of Health Insurance and Employment for People
with Disabilities Public Health, Work, and Disability Actions to
Prepare a Competent Workforce Public Health Perspectives on
Disability: Science, Social Justice, Ethics, and Beyond, 2nd
Edition, is an essential resource for public health educators and
practitioners as well as students in graduate schools of public
health throughout the United States.
Nurses and others in the front-line(paramedics, ambulance staff,
hospital and GP receptionists, social workers etc) are reporting an
increasing incidence of violence and aggression from
patients/clients. Some of these outbursts have resulted in
permanent injury, even death, to the health care worker. The book
is structured so that the notion of violence becomes more explicit
with each succeeding chapter, until finally the violent outburst
arrives. It offers practical prevention and management strategies,
based on sound research, and provides a comprehensive view of the
problem which will be of value to people working in a variety of
clinical situations.Topical, vital subject Excellent mix of theory
and practiceWide appeal to a variety of nurses and other
professionals
For almost sixty years, media technologies have promised users the
ability to create sonic safe spaces for themselves-from bedside
white noise machines to Beats by Dre's "Hear What You Want" ad
campaign, in which Colin Kaepernick's headphones protect him from
taunting crowds. In Hush, Mack Hagood draws evidence from
noise-canceling headphones, tinnitus maskers, LPs that play ocean
sounds, nature-sound mobile apps, and in-ear smart technologies to
argue the true purpose of media is not information transmission,
but rather the control of how we engage our environment. These
devices, which Hagood calls orphic media, give users the freedom to
remain unaffected in the changeable and distracting spaces of
contemporary capitalism and reveal how racial, gendered, ableist,
and class ideologies shape our desire to block unwanted sounds. In
a noisy world of haters, trolls, and information overload, guarded
listening can be a necessity for self-care, but Hagood argues our
efforts to shield ourselves can also decrease our tolerance for
sonic and social difference. Challenging our self-defeating
attempts to be free of one another, he rethinks media theory, sound
studies, and the very definition of media.
In austerity Britain, disabled people have been recast as worthless
scroungers. From social care to the benefits system, politicians
and the media alike have made the case that Britain's 12 million
disabled people are nothing but a drain on the public purse. In
Crippled, journalist and campaigner Frances Ryan exposes the
disturbing reality, telling the stories of those most affected by
this devastating regime. It is at once both a damning indictment of
a safety net so compromised it strangles many of those it catches
and a passionate demand for an end to austerity, which hits hardest
those most in need.
A much needed practical nursing text addressing the complex
problems posed by the growing number of elderly people with mental
health problems. The book can be used as an everyday companion for
qualified nurses or for teaching health care assistants and
students about practical interventions, therapeutic approaches and
for developing knowledge and attitudes. Wider issues are
considered, including the care continuum through acute to
continuing care, and different care environments. * Practical
advice for dealing with every-day problems * Examines common mental
health problems in depth, to develop nurses' understanding of
clients' needs * Positive approach, challenging stereotypical views
and giving guidance for good care practices
The shift in the care of people with serious mental illness to
community-based care has been the subject of intense policy,
educational and research activity, yet the provision of effective
services remains problematic. This book brings together experts
from a range of disciplines to provide a comprehensive and
contemporary account of community services. Section I: Contemporary
Issues in Community Health Care Services provides an informed and
critical overview of the effect of policy framework, organizational
structures, economic issues and the principles of 'good' practice
in the provision of community services for people with serious
mental health problems. Section II: Specific Intervention
strategies summarises much of the work to date on working
effectively with people who have serious mental health problems. It
combines research evidence and practical illustrations of
approaches and interventions with informed comment on their
efficacy and implementation in routine clinical practice. Chapters
include key points, case studies, questions for reflection and
discussion and suggested further reading. Relevant research and
evidence is cited throughout and the need for further research in
this area are emphasised. All students and practitioners involved
in planning, providing and evaluating services for people who have
serious mental health problems will find this book an invaluable
source of information for developing and delivering effective
services.Leading editors and contributors Multidisciplinary
perspectives, includes contributions from nurses, social workers,
OTs and clinical psychologistsEvidence-based First book to provide
a comprehensive and practical overview of strategies for working in
this areaFocuses on practice through case-studies
The first book to cover the entirety of disability history, from
pre-1492 to the present
" "
Disability is not just the story of someone we love or the story of
whom we may become; rather it is undoubtedly the story of our
nation. Covering the entirety of US history from pre-1492 to the
present, "A Disability History of the United States" is the first
book to place the experiences of people with disabilities at the
center of the American narrative. In many ways, it's a familiar
telling. In other ways, however, it is a radical repositioning of
US history. By doing so, the book casts new light on familiar
stories, such as slavery and immigration, while breaking ground
about the ties between nativism and oralism in the late nineteenth
century and the role of ableism in the development of democracy.
"A Disability History of the United States" pulls from
primary-source documents and social histories to retell American
history through the eyes, words, and impressions of the people who
lived it. As historian and disability scholar Nielsen argues, to
understand disability history isn't to narrowly focus on a series
of individual triumphs but rather to examine mass movements and
pivotal daily events through the lens of varied experiences.
Throughout the book, Nielsen deftly illustrates how concepts of
disability have deeply shaped the American experience--from
deciding who was allowed to immigrate to establishing labor laws
and justifying slavery and gender discrimination. Included are
absorbing--at times horrific--narratives of blinded slaves being
thrown overboard and women being involuntarily sterilized, as well
as triumphant accounts of disabled miners organizing strikes and
disability rights activists picketing Washington.
Engrossing and profound, "A Disability History of the United
States" fundamentally reinterprets how we view our nation's past:
from a stifling master narrative to a shared history that
encompasses us all.
This "Handbook" represents the first comprehensive collection of
research on communication and people with disabilities. The editors
have brought together original contributions focusing on the
identity, social, and relationship adjustments faced by people with
disabilities and those with whom they relate. Essays report on
topics across the communication spectrum--interpersonal and
relationship issues, people with disabilities in organizational
settings, disability and culture, media and technologies,
communication issues as they impact specific types of
disabilities--and establish a future agenda for communication and
disability research. Each chapter provides a state-of-the-art
literature review, practical applications of the material, and
keywords and discussion questions to facilitate classroom use.
In providing an outlet for current research on communication and
disability issues, this unique collection contributes to the lives
of people with and without disabilities, helping them to improve
their own communication and relationships. Intended for readers in
communication, psychology, sociology, rehabilitation, social work,
special education, gerontology, and related disciplines, this
handbook is certain to augment further theory and research, as well
as offer insights for both personal and professional
relationships.
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