This collection centres on the experiences of disabled children and young people and aims to develop theories about their childhoods. The powerful first-hand accounts by disabled children, family members and reflections by disabled adults are aimed to inspire the reader to think and, perhaps, act in positive and productive ways about all children's lives. The authors oppose the historical global imposition of problematic views of disability and childhood and offer open discussion of responsive and ethical research approaches. New ways of thinking about disabled children's childhoods in a global context demand poverty reduction and approaches that support families and communities to recognise the contributions disabled children make.

The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader's tradition of remaining timely, urgent, and critical.

'The body of Christ, broken for you.' These are the words almost always shared whenever the communion bread is given. But what do these words mean for women whose bodies have been broken by injustice and violence? This book interweaves feminist theological ideas, Asian spiritual traditions, and the witnesses of comfort women - sex-slaves during World War II - to offer a new approach to a theology of body. It examines the multi-layered meaning of the broken body of Christ from Christological, sacramental, and ecclesiological perspectives, and explores the centrality of body in theological discourse.

Disabled Futures makes an important intervention in disability studies by taking an intersectional approach to race, gender, and disability. Milo Obourn reads disability studies, gender and sexuality studies, and critical race studies to develop a framework for addressing inequity. They theorize the concept of "racialized disgender"-to describe the ways in which racialization and gendering are social processes with disabling effects-thereby offering a new avenue for understanding race, gender, and disability as mutually constitutive. Obourn uses readings of literature and popular culture from Lost and Avatar to Octavia Butler's Xenogenesis trilogy to explore and unpack specific ways that race and gender construct-and are constructed by-historical notions of ability and disability, sickness and health, and successful recovery versus damaged lives. What emerges is not only a more complex and deeper understanding of the intersections between ableism, racism, and (cis)sexism, but also possibilities for imagining alternate and more radically inclusive futures in which all of our identities, experiences, freedoms, and oppressions are understood as interdependent and intertwined.

This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people's quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. 'Quality of life' is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery - for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good 'quality of life' and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.

A comprehensive and practical resource for all speech and language therapists and students, this book covers all aspects of working with this client group. Written by the author of the hugely successful "Talkabout", each section gives the reader a theoretical background of the subject under discussion, practical suggestions and formats for assessment, a guide to intervention as well as a clear and worked-out example. In addition, the author addresses staff training, group therapy, accessing the criminal justice system and working with a multi-disciplinary team.

In Brilliant Imperfection Eli Clare uses memoir, history, and critical analysis to explore cure-the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds. The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure. Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

Caring for people with disabilities often becomes an all-encompassing responsibility for one or more family members. To manage the multifaceted demands, caregivers must possess strong multitasking skills, including the ability to assist with daily life tasks; provide emotional support; help with financial affairs; mediate and advocate with health care providers. Maintaining balance within their own lives can become incredibly challenging for caregivers. More often than not, providing care for family members or loved ones occurs at the expense of the caregivers' well-being. And for caregivers who themselves have disabilities, it further complicates matters.

"Multiple Dimensions of Caregiving and Disability" addresses concerns that have been long familiar to the caregiver population and examines the current state of family care for individuals with disabilities. With a lifespan perspective, this concise reference reviews the literature on specific problems of caregivers and explores which care strategies are effective, promising, or lacking in available resources and support interventions. Contributors also explore the more fluid and subjective aspects of caregiving, such as feelings, spirituality, and family roles. Suggestions for future policy improvements, particularly within the public health sector, are discussed as well.

Topics covered include:

Family dynamics and caregiving for people with disabilities.
Parent caregiving of children with disabilities.
Race, ethnicity, socioeconomic status, and caregiving.
Educational, training, and support programs for caregivers.
Emerging technologies to aid caregivers.
Developing partnerships between caregivers and health care providers.

"Multiple Dimensions of Caregiving and Disability" is a must-have resource for researchers, scientist-practitioners, policy makers, and graduate students across such disciplines as clinical psychology, nursing, social work, public health, medicine, and social and education policy."

Covering the period from Antiquity to Early Modernity, A Historical Sociology of Disability argues that disabled people have been treated in Western society as good to mistreat and - with the rise of Christianity - good to be good to. It examines the place and role of disabled people in the moral economy of the successive cultures that have constituted 'Western civilisation'. This book is the story of disability as it is imagined and re-imagined through the cultural lens of ableism. It is a story of invalidation; of the material habituations of culture and moral sentiment that paint pictures of disability as 'what not to be'. The author examines the forces of moral regulation that fall violently in behind the dehumanising, ontological fait accompli of disability invalidation, and explores the ways in which the normate community conceived of, narrated and acted in relation to disability. A Historical Sociology of Disability will be of interest to all scholars, students and activists working in the field of Disability Studies, as well as sociology, education, philosophy, theology and history. It will appeal to anyone who is interested in the past, present and future of the 'last civil rights movement'.

This comprehensive, interdisciplinary collection, examines disability from a theoretical perspective, challenging views of disability that dominate mainstream thinking. Throughout, social theories of disability intersect with ideas associated with sex/gender, race/ethnicity, class and nation.

Few people these days would oppose making the public realm of space, social services and jobs accessible to women and men with disabilities. But what about access to the private realm of desire and sexuality? How can one also facilitate access to that, in ways that respect the integrity of disabled adults, and also of those people who work with and care for them? Loneliness and Its Opposite documents how two countries generally imagined to be progressive engage with these questions in very different ways. Denmark and Sweden are both liberal welfare states, but they diverge dramatically when it comes to sexuality and disability. In Denmark, the erotic lives of people with disabilities are acknowledged and facilitated. In Sweden, they are denied and blocked. Why do these differences exist, and how do both facilitation and hindrance play out in practice? Loneliness and Its Opposite charts complex boundaries between private and public, love and sex, work and intimacy, and affection and abuse. It shows how providing disabled adults with access to sexual lives is not just crucial for a life with dignity. It is an issue of fundamental social justice with far reaching consequences for everyone.

"This book explores the possibilities and limitations re-theorizing disability using historical materialism in the interdisciplinary contexts of social theory, cultural studies, social and education policy, feminist ethics, and theories of citizenship"--

Since the emergence of disability studies over the last several decades, disability theorists have often settled for sweeping generalizations about "biblical" notions of disability. Yet, academic or critical biblical scholarship has shown that many texts involving disability in the Bible is much more nuanced than a casual reading or isolated proof texting may indicate. A primary goal of this volume is to familiarize a wide audience, including advanced students, scholars, clergy, and interested lay readers, with research on disability and the Bible done by scholars who specialize in biblical studies.

In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of "debility"-bodily injury and social exclusion brought on by economic and political factors-to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

"Don taught us how to be a real independent living center. Nothing was easy; every issue that came up on the road to Don's independence was a challenge and a struggle, but the experience pushed us and we learned from it. We were not going to let Don down; all of us were committed to Don's freedom and independence." --Kathleen Kleinman, Executive Director, TRPIL (Transitional Paths to Independent Living) Profoundly deafened as an infant, Don Fulk didn't learn his name or go to school until the age of ten. When he was eighteen years old and a budding superstar on his football and basketball teams, he broke his neck in a swimming accident, and became paralyzed. After his injury, he was confined to a bed in his parents' home for eight years, unable to move and barely able to communicate. After his family could no longer care for him, he spent nine years in a nursing home where he suffered from abuse and neglect. Yet through a life marred by isolation and frustration, Fulk endured with strength, humor, and grace. He never gave up pursuing his dreams for independence and self-worth, and improving the lives of others. He fought a system that was unfair and discriminatory, and helped pave the way for people with disabilities to live independently. Don Fulk signed his story to author Janet Allen, describing his difficult home life, the incredible friends who changed his life, and his dramatic escape from an abusive nursing home. An Invincible Spirit is a story of hope, empowerment, and the battles people with disabilities have fought--and continue to fight--to improve the quality of their lives.

Albinism is one of the foremost disability and public health issues in Africa today. It often makes headlines in local, national and international medias and forms the basis for intense advocacy at all levels. This is primarily due to the harmful representations of persons with albinism deeply entrenched in African traditions. These deeply rooted ideologies about albinism in African thought have largely promoted the continuous discrimination, stigmatization, harming, killing, commodification and violation of the human rights of persons with albinism in African places. How has albinism emerged as a thick concept in African traditions? What are these deeply entrenched ideas about the ontology of albinism in African thought? What epistemic injustice has been done to persons with albinism in Africa places? Why do harmful beliefs about albinism still persist in modern African societies? How does the African communalistic ethic justify the harm done against persons with albinism? What is the duty to, and burden of, care for persons with albinism? What peculiar existential challenges do persons with albinism in general and females with albinism in particular face in African societies and how can they be overcome? What can be learnt from the education philosophy of reconstructionism and genetic engineering in improving the wellbeing of persons with albinism? African Philosophy and the Otherness of Albinism: White Skin, Black Race digs deep into these philosophical questions revealing fascinating but latent aspects of how albinism is understood in African places as a necessary step to take in improving the wellbeing and integrity of persons with albinism in Africa today. This book will be of interest to scholars and students of African philosophy, sociology, African studies and disability studies.

Performances in hospices and on beaches; cross-cultural myth making in Wales, New Zealand and the US; communal poetry among mental health system survivors: this book, now in paperback, presents a senior practitioner/critic's exploration of arts-based research processes sustained over more than a decade - a subtle engagement with disability culture.

Historically, the diagnosis of deafness in a child has been closely associated with profound disability, including such typical outcomes as unmet potential and a life of isolation. A major shift away from this negative view has led to improved prospects for deaf children.

"Resilience in Deaf Children" emphasizes not only the capability of deaf individuals to withstand adversity, but also their positive adaptation through interactions with parents, peers, school, and community. In this engaging volume, leading researchers and professionals pay particular attention to such issues as attachment, self-concept, and social competence, which are crucial to the development of all young people. In addition, the volume offers strategies for family members, professionals, and others for promoting the well-being of deaf children and youth.

Coverage includes: Attachment formation among deaf infants and their primary caregivers.Deaf parents as sources of positive development and resilience for deaf infants.Enhancing resilience to mental health disorders in deaf school children.Strength-based guidelines for improving the developmental environments of deaf children and youth.Community cultural wealth and deaf adolescents' resilience.Self-efficacy in the management of anticipated work-family conflict as a resilience factor among young deaf adults.

"Resilience in Deaf Children" is essential reading for researchers, clinicians, and graduate students in clinical child, school, and developmental psychology as well as for allied researchers and professionals in such disciplines as school counseling, occupational therapy, and social work.

In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs' experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children's rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.

As the profile of disability sport has risen, so has the emphasis grown beyond participation to include the development of a high performance environment. This book is the first to take an in-depth look at the role of coaches and coaching in facilitating the professionalisation of disability sport, in raising performance standards, and as an important vector for the implementation of significant political, socio-cultural and technological change. Using in-depth case studies of elite disability sport coaches from around the world, the book offers a framework for critical reflection on coaching practice as well as the reader's own experiences of disability sport. The book also evaluates the vital role of the coach in raising the bar of performance in a variety of elite level disability sports, including athletics, basketball, boccia, equestrian sport, rowing, soccer, skiing, swimming and volleyball. Providing a valuable evidence-based learning resource to support coaches and students in developing their own practice, High Performance Disability Sport Coaching is essential reading for all those interested in disability sport, coaching practice, elite sport development and the Paralympic Games.

This project draws together the diverse strands of the debate regarding disability in a way never before combined in a single volume. After providing a representative sampling of competing philosophical approaches to the conceptualization of disability as such, the volume goes on to address such themes as the complex interplay between disability and quality of life, questions of social justice as it relates to disability, and the personal dimensions of the disability experience.

By explicitly locating the discussion of various applied ethical questions within the broader theoretical context of how disability is best conceptualized, the volume seeks to bridge the gap between abstract philosophical musings about the nature of disease, illness and disability found in much of the philosophy of medicine literature, on the one hand, and the comparatively concrete but less philosophical discourse frequently encountered in much of the disability studies literature. It also critically examines various claims advanced by disability advocates, as well as those of their critics.

In bringing together leading scholars in the fields of moral theory, bioethics, and disability studies, this volume makes a unique contribution to the scholarly literature, while also offering a valuable resource to instructors and students interested in a text that critically examines and assesses various approaches to some of the most vexing problems in contemporary social and political philosophy.

This book contains a series of articles, written by international experts in the fields of intellectual disability and quality of life, that explore a broad range of issues that impact on the quality of life of people with intellectual disabilities and their families. The book commences with a general discussion on defining quality of life and family quality of life and the appropriateness of using these constructs in the field of intellectual disability, and is followed by an analysis on the effects of living arrangements and employment on quality of life. The book concludes with discussions on the unique issues facing children with intellectual disabilities and people living in developing countries and the effect these issues have upon their quality of life.

Today, healthy ageing and active, meaningful lives are core values and aims for international and national health policies. Health services are challenged to ensure that the recipients of their services are active participants in their own care and beyond. Participation allows patients to become less dependent on healthcare providers, increasing their control over their own treatment and health. Increasingly, the idea of 'participation' is shifting, from participation in services to participation in mainstream society. This book examines the concept of participation, as well as the different meanings it takes on in the context of health and welfare services. It asks how services can enable and stimulate participation outside of those services. The contributions in this volume particularly focus on participation as engagement in daily life and 'everyday life' in order to develop the field of participation beyond the sphere of health and social care services. This book will appeal to researchers in the fields of health and social care, social services, occupational therapy and the sociology of health and illness. It will be of interest to practitioners of health and welfare services.

This empirically-grounded text examines the policy, planning, development and implementation of disability sport events. It draws insights from a major international comparative study of different types of large multi-national sporting events: integrated events where able-bodied athletes and athletes with a disability compete alongside one another, and non-integrated events where athletes with a disability are separated by time but occurring in the same location. Guided by a critical disability studies perspective, the book highlights the strategic opportunity of sporting events to influence social change around community participation, and attitudes and awareness about disability more broadly. It also challenges assumptions about positive event legacies and suggests a need for a multi-lateral approach to planning. An important read for students, researchers and scholars in the fields of sport policy, sport development, disability sport, sport management, disability studies and event studies.