This book provides a valuable route map to the development of thinking in disability studies over the last eighteen years. It includes over twenty essential articles from the journal Disability and Society, written by many of the leading authors in the field from the UK, the USA, Australia and Europe. Compiled by the current editors of the journal, it is divided into three sections which mirror the three central themes: disability studies - clearly illustrates the debates and challenges that have emerged within the field over the last two decades policy - offers a snapshot of social policy that has impinged on the lives of disabled people in many parts of the world research issues - reveals the inequalities between disabled and non-disabled people and the advocacy of new methods and research practices. The editors' specially written introduction to each section contextualises the selection and introduces students to the main issues and current thinking in the field. Altogether this book is a rich source of ideas and insights covering conceptual, theoretical, empirical and cross-cultural issues and questions.

This book explores the series of issues that emerge at the intersection of disability, care and family law. Disability studies is an area of increasing academic interest. In addition to a subject in its own right, there has been growing concern to ensure that mainstream subjects diversify and include marginalised voices, including those of disabled people. Family law in modern times is often based on an "able-bodied autonomous norm" but can fit less well with the complexities of living with disability. In response, this book addresses a range of important and highly topical issues: whether care proceedings are used too often in cases where parents have disabilities; how the law should respond to children who care for disabled parents - and the care of older family members with disabilities. It also considers the challenges posed by the UN Convention on the Rights of Persons with Disabilities, particularly around the different institutional and state responsibilities captured in the Convention, and around decision-making for both disabled adults and children. This interdisciplinary collection - with contributors from law, criminology, sociology and social policy as well as from policy and activist backgrounds - will appeal to academic family lawyers and disability scholars as well as students interested in issues around family law, disability and care.

Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabilities.

Family Support and Family Caregiving across Disabilities addresses this significant limitation through cross-categorical and lifespan analyses of family support and family caregiving from the perspectives of theory and conceptual frameworks, empirical research, and frameworks and recommendations for improvements in public policy. The book also examines children with disabilities, children with autism, adults with schizophrenia, and individuals with cancer across the life cycle.

This book was published as a two-part special issue in the Journal of Family Social Work.

Calling on a decade of participant observation at a residence for mentally retarded adults, anthropologist Michael V. Angrosino's riveting and de-mystifying account offers an insider's picture of the lives of the inhabitants of Opportunity House. Using the narrative device of a dozen fictional short stories told in the voices of various community members as well as that of the researcher, Angrosino weaves a life-histories approach to ethnography together with an innovative culture concept to tackle the complexities of representing marginalized subgroups. As opposed to traditional clinical or statistical studies, which have insufficiently conveyed the subjective and experiential perspectives of retarded people themselves, Angrosino presents an intimate and complex picture of a highly functioning community with its cast of entrepreneurs, bullies, victims, and do-gooders. This wonderfully readable and captivating account is therefore an important resource for those interested in mental illness and disability, as well as a model for those experimenting with forms of ethnographic writing.

The appalling story of Hitler's murderous policies aimed at the disabled including tens of thousands of children killed by their doctors. Between 1939 and 1945 the Nazi regime systematically murdered thousands of adults and children with physical and mental disabilities as part of its 'euthanasia' policy. These programmes were designed to eliminate all people with disabilities who, according to Nazi ideology, threatened the health and purity of the German race. Hitler's Forgotten Victims explores the development and workings of this nightmarish process, a relatively neglected aspect of the Holocaust. Suzanne Evans's account draws on the rich historical record, as well as scores of exclusive interviews with disabled Holocaust survivors. It begins with a description of the Children's Killing Programme, in which tens of thousands of children with physical and mental disabilities were murdered by their doctors, usually by starvation or lethal injection. The book goes on to recount the AktionT4 programme, in which adults with disabilities were disposed of in six official centres, and the development of the Sterilisation Law, which allowed the forced sterilisation of at least half a million young adults with disabilities.

This ground-breaking volume considers what it means to make claims of disability membership in view of the robust Disability Rights movement, the rich areas of academic inquiry into disability, increased philosophical attention to the nature and significance of disability, a vibrant disability culture and disability arts movement, and advances in biomedical science and technology. By focusing on the statement, "We are all disabled", the book explores the following questions: What are the philosophical, political, and practical implications of making this claim? What conceptions of disability underlie it? When, if ever, is this claim justified, and when or why might it be problematic or harmful? What are the implications of claiming "we are all disabled" amidst this global COVID-19 pandemic? These critical reflections on the boundaries of disability include perspectives from the humanities, social sciences, law, and the arts. In exploring the boundaries of disability, and the ways in which these lines are drawn theoretically, legally, medically, socially, and culturally, the authors in this volume challenge particular conceptions of disability, expand the meaning and significance of the term, and consider the implications of claiming disability as an identity. It will be of interest to a broad audience, including disability scholars, advocates and activists, philosophers and historians of disability, moral theorists, clinicians, legal scholars, and artists.

This book addresses the ways in which individualised, market-based models of disability support provision have been mobilised in and across different countries through cross-national investigation of individualised funding (IF) as an object of neoliberal policy mobility. Combining rich theoretical and interdisciplinary perspectives with extensive empirical research, the book provides a timely examination of the policy processes and mechanisms driving the spread of IF amongst countries at the forefront of disability policy reform. It is argued that IF's mobility is not attributable to neoliberalism alone but to the complex intersections between neoliberal and emancipatory agendas and to the transnational networks that have blended the two agendas in new ways in different institutional contexts. The book shows how disability rights struggles have synchronised with neoliberal agendas, which explains IF's propensity to move and mutate between different jurisdictions. Featuring first-hand accounts of the activists and advocates engaged in these struggles, the book illuminates the consequences and risks of the dangerous liaisons and political trade-offs that seemed necessary to get individualised funding on the policy agenda for disabled people. It will be of interest to all scholars and students working in disability studies, social policy, sociology and political science more generally.

In Diminished Faculties Jonathan Sterne offers a sweeping cultural study and theorization of impairment. Drawing on his personal history with thyroid cancer and a paralyzed vocal cord, Sterne undertakes a political phenomenology of impairment in which experience is understood from the standpoint of a subject that is not fully able to account for itself. He conceives of impairment as a fundamental dimension of human experience, examining it as both political and physical. While some impairments are enshrined as normal in international standards, others are treated as causes or effects of illness or disability. Alongside his fractured account of experience, Sterne provides a tour of alternative vocal technologies and practices; a study of "normal" hearing loss as a cultural practice rather than a medical problem; and an intertwined history and phenomenology of fatigue that follows the concept as it careens from people to materials science to industrial management to spoons. Sterne demonstrates how impairment is a problem, opportunity, and occasion for approaching larger questions about disability, subjectivity, power, technology, and experience in new ways. Diminished Faculties ends with a practical user's guide to impairment theory.

Disability and New Media examines how digital design is triggering disability when it could be a solution. Video and animation now play a prominent role in the World Wide Web and new types of protocols have been developed to accommodate this increasing complexity. However, as this has happened, the potential for individual users to control how the content is displayed has been diminished. Accessibility choices are often portrayed as merely technical decisions but they are highly political and betray a disturbing trend of ableist assumption that serve to exclude people with disability. It has been argued that the Internet will not be fully accessible until disability is considered a cultural identity in the same way that class, gender and sexuality are. Kent and Ellis build on this notion using more recent Web 2.0 phenomena, social networking sites, virtual worlds and file sharing. Many of the studies on disability and the web have focused on the early web, prior to the development of social networking applications such as Facebook, YouTube and Second Life. This book discusses an array of such applications that have grown within and alongside Web 2.0, and analyzes how they both prevent and embrace the inclusion of people with disability.

This book explores the position of Islamic theology and jurisprudence towards people with disabilities. It investigates how early and modern Muslim scholars tried to reconcile their existence with the concept of a merciful God, and also looks at how people with disabilities might live a dignified and productive life within an Islamic context.

In his analysis of Islamic Theology, Ghaly pays attention to how theologians, philosophers and Sufis reflected on the purposes behind the existence of this phenomenon, and how to reconcile the existence of disability with specific divine attributes and an All-Merciful God. Simultaneously exploring the perspective of Muslim jurists, the book focuses on how people with disabilities can lead a dignified life in the financial and non-financial sense, in an extensive analysis of topics such as the human dignity of people with disabilities and the role of Greek physiognomy, their employability, medical treatment, social life with main focus on marriage-related issues, financial life and means of living.

Investigating the topic of disability from early and modern Islamic perspectives, the author provides an analysis of Muslim discussions on various bioethical questions. As such, this book will be of great relevance to current heated debates on human rights of people with disabilities, as well as providing a valuable resource for courses on Multicultural bioethics, Islamic theology, Islamic law and medical anthropology.

Nearly 20% of the population has a disability. Despite this, mainstream research often does not explicitly address the methodological and practical issues that can act as barriers to disabled people's participation in social research. In this book, Aidley and Fearon provide a concise, practical introduction to making it easier for everyone to take part in research. Requiring no prior knowledge about accessible research methods, the book: * explains how removing barriers to participation will improve the quality of the research; * covers the research process from design, to collecting data, to dissemination and publication; * includes checklists and further reading, as well as useful examples and vignettes to illustrate how issues play out in practice. This book will be invaluable to researchers from a variety of backgrounds looking to increase participation in their research, whether postgraduate students, experienced academic researchers, practitioners or professionals.

This impressive volume presents a thorough examination of all aspects of physical impairment and disability in medieval Europe. Examining a popular era that is of great interest to many historians and researchers, Irene Metzler presents a theoretical framework of disability and explores key areas such as:

• medieval theoretical concepts
• theology and natural philosophy
• notions of the physical body
• medical theory and practice.

Bringing into play the modern day implications of medieval thought on the issue, this is a fascinating and informative addition to the research studies of medieval history, history of medicine and disability studies scholars the English-speaking world over.

Disability is a thorny and muddled concept - especially in the field of disability studies - and social accounts contest with more traditional biologically based approaches in highly politicized debates. Sustained theoretical scrutiny has sometimes been lost amongst the controversy and philosophical issues have often been overlooked in favour of the sociological. Arguing about Disability fills that gap by offering analysis and debate concerning the moral nature of institutions, policy and practice, and their significance for disabled people and society.

This pioneering collection is divided into three sections covering definitions and theories of disability; disabled people in society and applied ethics. Each contributor - drawn from a wide range of academic backgrounds including disability studies, sociology, psychology, education, philosophy, law and health science - uses a philosophical framework to explore a central issue in disability studies. The issues discussed include personhood, disability as a phenomenon, social justice, discrimination and inclusion.

Providing an overview of the intersection of disability studies and philosophical ethics, Arguing about Disability is a truly interdisciplinary undertaking. It will be invaluable for all academics and students with an interest in disability studies or applied ethics, as well as disability activists.

A unique work that brings together a number of specialist disciplines, such as archaeology, anthropology, disability studies and psychiatry to create a new perspective on social and physical exclusion from society. A range of evidence throws light on such things as the causes and consequences of social exclusion stigma, marginality and dangerousness. It is an important text that breaks down traditional academic disciplinary boundaries and brings a much needed comparative approach to the subject.

This book on Relationality addresses our growing "crisis of connection" by foregrounding the multi-faceted ways in which we are interconnected with each other and the world in which we live. When Niobe Way and her collaborators first proclaimed such a "crisis" in their 2018 book The Crisis of Connection: Roots, Consequences, and Solutions, they could not have foreseen the extremes of isolation and disconnection that Covid-19 would unleash just a couple of years later. Importantly, what such experiences of impaired and compromised relationality impress upon us-now more powerfully than ever-is just how fundamentally we are intertwined with each other and the world we inhabit. The ten scholarly chapters assembled here, combined with ten specially commissioned poems, emphasise the significance of these relational entanglements. They draw on a range of thinkers (with Emmanuel Levinas playing a particularly prominent role) to bring relationality into conversation with an array of contemporary paradigms and areas of political concern: the Anthropocene, post-humanism, neoliberalism, disability studies, and postcolonialism (to name but a few). Tracing the various challenges and opportunities associated with our relational existence, they collectively consider the role relationality plays, or might play, in our increasingly less-than-relational lives. The chapters and poems in this book were originally published as a special issue of Angelaki.

Offering readings of a range of fictional and biographical texts, including work by Richard Selzer, Nathaniel Hawthorne, Gaston Leroux, Willa Cather, Natalie Kusz, and Lucy Grealy, this book examines reactions to facially disfigured people on the basis of Emmanuel Levinas' ethics of the face. Drawing on Levinas' concern with the holistic dimension of the face as an encounter with the other's "whole person" and the sense of moral obligation that this instils in us-a sense that disfigurement disrupts by drawing our attention to the disfigurement as a "spectacle" and threatening to limit our view of that individual-the author explores how we react to the facially disfigured and how we ought to react.

Religion and Disability presents three keynote addresses from the national symposium, "Ministry Perspectives on Disability." In the opening essay, noted scripture scholar Donald Senior identifies certain themes often associated with scripture-such as the distinction between clean and unclean, and the notion that sin and guilt somehow cause sickness and disability-that contribute to non-welcoming attitudes to the disabled. In the second essay, John Macquarrie draws upon both theological reasoning and personal experience in reflecting upon the dignity of all persons and how this principle applies especially to our dealings with the disabled. Finally, Stanley Hauerwas invokes the ideals of the Church in calling for a response of love toward persons with mental handicaps. He helps us imagine a church community enriched by members who are disabled.

This book explores the position of Islamic theology and jurisprudence towards people with disabilities. It investigates how early and modern Muslim scholars tried to reconcile their existence with the concept of a merciful God, and also looks at how people with disabilities might live a dignified and productive life within an Islamic context.

In his analysis of Islamic Theology, Ghaly pays attention to how theologians, philosophers and Sufis reflected on the purposes behind the existence of this phenomenon, and how to reconcile the existence of disability with specific divine attributes and an All-Merciful God. Simultaneously exploring the perspective of Muslim jurists, the book focuses on how people with disabilities can lead a dignified life in the financial and non-financial sense, in an extensive analysis of topics such as the human dignity of people with disabilities and the role of Greek physiognomy, their employability, medical treatment, social life with main focus on marriage-related issues, financial life and means of living.

Investigating the topic of disability from early and modern Islamic perspectives, the author provides an analysis of Muslim discussions on various bioethical questions. As such, this book will be of great relevance to current heated debates on human rights of people with disabilities, as well as providing a valuable resource for courses on Multicultural bioethics, Islamic theology, Islamic law and medical anthropology.

Re-Presenting Disability addresses issues surrounding disability representation in museums and galleries, a topic which is receiving much academic attention and is becoming an increasingly pressing issue for practitioners working in wide-ranging museums and related cultural organisations.

This volume of provocative and timely contributions, brings together twenty researchers, practitioners and academics from different disciplinary, institutional and cultural contexts to explore issues surrounding the cultural representation of disabled people and, more particularly, the inclusion (as well as the marked absence) of disability-related narratives in museum and gallery displays. The diverse perspectives featured in the book offer fresh ways of interrogating and understanding contemporary representational practices as well as illuminating existing, related debates concerning identity politics, social agency and organisational purposes and responsibilities, which have considerable currency within museums and museum studies.

Re-Presenting Disability explores such issues as:

• In what ways have disabled people and disability-related topics historically been represented in the collections and displays of museums and galleries? How can newly emerging representational forms and practices be viewed in relation to these historical approaches?

• How do emerging trends in museum practice designed to counter prejudiced, stereotypical representations of disabled people relate to broader developments in disability rights, debates in disability studies, as well as shifting interpretive practices in public history and mass media?

• What approaches can be deployed to mine and interrogate existing collections in order to investigate histories of disability and disabled people and to identify material evidence that might be marshalled to play a part in countering prejudice? What are the implications of these developments for contemporary collecting?

• How might such purposive displays be created and what dilemmas and challenges are curators, educators, designers and other actors in the exhibition-making process, likely to encounter along the way?

• How do audiences disabled and non-disabled respond to and engage with interpretive interventions designed to confront, undercut or reshape dominant regimes of representation that underpin and inform contemporary attitudes to disability?

This text is a critical and empirically-based introduction to disability studies. It offers a comprehensive, book-length analysis of disability through the lens of Science and Technology Studies (STS), and presents a practice-oriented discussion of how bodies, senses and things are linked in everyday life and configure "enabling" and "disabling" scenarios. Relevant to a broad spectrum of medical practitioners and practicing social service workers, the book will also be essential reading in the fields of disability studies, sociology of the body/senses, medical sociology and STS.

Tanzanian Women in Their Own Words is a compilation of oral histories by Tanzanian women living with disabilities or chronic illnesses. Beginning with their earliest childhood memories, the narrators weave their life stories through adulthood, telling of the hardships and support systems in their daily lives. A rich knowledge of Tanzanian culture is embedded in each story; for instance the pivotal role tribal affiliation, polygamy, and poverty play in society is addressed. HIV/AIDS, cancer, polio, female circumcision, and TB are just a few of the health issues covered; Feinstein and D'Errico make a concerted effort to include the major medical challenges facing this developing country, including an interview with an albino woman that introduces the little discussed atrocity of albinos being murdered for body parts to be used in ritual medicine practices. In spite of the abuse and exclusion many of the women suffer, eventually each learns to live in harmony with her reality. This makes their lives inspiring and gives perspective to those facing physical challenges. Tanzanian Women in Their Own Words encourages readers to consider issues of health care, transportation, ignorance, polygamy, gender discrimination, and rural isolation. Through learning about the health challenges faced by Tanzanian women, students are introduced to the lifeways and concerns of Tanzanian culture, the challenges faced by many developing countries, and the intimate and evocative level of detail that can only be discovered through intensive ethnographic fieldwork.

Against a background of debate around global ageing and what this means in terms of the future care need of older people, this book addresses key concerns about the nature and site of care and care-giving. Following a critical review of research into who cares, where and how, it uses geographical perspectives to present a comprehensive analysis of how the intersection of informal care-giving within domestic, community and residential care homes can create complex landscapes and organizational spatialities of care. Drawing on contemporary case studies largely, but not exclusively from the UK, the book reviews and develops a theoretical basis for a geographical analysis of the issue of care. By relating these theoretical concepts to empirical data and case studies it illustrates how formal and informal care-giver responses to the changing landscape of care can act to facilitate or constrain the development of inclusionary models of care.

This book reinforces the need for understanding and support for children
with dyslexia from parents and teachers, but also the importance of the
children's own understanding of their strengths and weaknesses in order
to fulfil their potential. It should be recommended reading for all
those involved in dyslexia. - Professor Angela Fawcett, Director of the Centre for Child Research, Swansea University

What is it like living with dyslexia on a day-to-day basis?

Based on interviews with dyslexic children and their families, this insightful book presents first-hand accounts of how dyslexia affects the children themselves and the people around them.

Living with Dyslexia, Second Edition places the original fascinating findings within the context of current research and practice in the UK, Europe, Australia and the USA. The author:

• examines issues of confidence and self-esteem;
• explores the coping strategies adopted by children and adults with dyslexia;
• investigates the concept of dyslexia-friendly schools;
• studies how children were first identified as having dyslexia, and the social and emotional difficulties they encountered;
• offers guidance on how teachers and parents can best support children with specific learning difficulties;
• considers the cognitive, educational, social and emotional perspectives in order for teachers and parents to gain a better understanding of dyslexia.

This new edition provides an updated account of cognitive research and examines important changes in relation to Special Educational Needs policy and practice in the last ten years, including the Revised SEN Code of Practice (2001), Removing Barriers to Achievement (2004) and the National Literacy Strategy (2006).

Living with Dyslexia recognises that the voices of children with dyslexia are increasingly important in developing good educational practice and makes an important contribution to the literature on dyslexia.

"A patient is standing in the middle of the river. He gazes across the water to the city and the mountain above where the sun is setting. His back is turned to the hospital. The nurses are waiting for him patiently on the river bank. He seems uncertain whether to cross the river or to return. There is no danger. He is on the edge, in an in-between space, as is the hospital where I have worked as a specialist psychiatrist for over twenty-five years."

For many of us, what lies beyond conventional portrayals of mental illness is often shrouded in mystery, misconception and fear. Dr Sean Baumann spent decades as a psychiatrist at Valkenberg Hospital and, through his personal engagement with patients’ various forms of psychosis, he describes the lived experiences of those who suffer from schizophrenia, depression, bipolar and other disorders.

The stories told are authentic, mysterious and compelling, representing both vivid expressions of minds in turmoil and the struggle to give form and meaning to distress. The author seeks to describe these encounters in a respectful way, believing that careless portrayals of madness cause further suffering and perpetuate the burden of stigma.

Baumann argues cogently for a more inclusive way of making sense of mental health. With sensitivity and empathy, his enquiries into the territories of art, psychology, consciousness, otherness, free will and theories of the self reveal how mental illness raises questions that affect us all.

Madness is illustrated by award-winning artist Fiona Moodie.

Being Disabled, Becoming a Champion is an accessible presentation of current European research on the most recent evolutions in sports for people with disabilities, demonstrating knowledge developed from the field of sports practices of people with disabilities. It covers three interrelated themes. First, it covers the different facets of the history of sports organizations set up during the 1950s for athletes with motor or intellectual impairments. The second part focuses on the athletes themselves. Voices are given to the top-level athletes in adapted sports: people with intellectual impairment; the pioneers of wheelchair racing who invented a new discipline, off-road wheelchair racing; and a former Paralympic athlete who has become a researcher and a defender of specific sports practices. Finally, the third part interrogates the way support for disabled people can modify the existing definitions and conceptions of the body, of disability, of what is human, and of sports performance. This is an ideal text for students and researchers studying and working in the areas of Disability Studies, Sport Sciences and Paralympic Studies. This book was originally published as a special issue of Sport in Society.