A comprehensive assessment of the field of Disability Studies that presents beyond the medical to dig into the meaning From public transportation and education to adequate access to buildings, the social impact of disability has been felt everywhere since the passage of the Americans with Disabilities Act in 1990. And a remarkable groundswell of activism and critical literature has followed in this wake. Claiming Disability is the first comprehensive examination of Disability Studies as a field of inquiry. Disability Studies is not simply about the variations that exist in human behavior, appearance, functioning, sensory acuity, and cognitive processing but the meaning we make of those variations. With vivid imagery and numerous examples, Simi Linton explores the divisions society creates-the normal versus the pathological, the competent citizen versus the ward of the state. Map and manifesto, Claiming Disability overturns medicalized versions of disability and establishes disabled people and their allies as the rightful claimants to this territory.

The fields of Critical Disability Studies and Critical Animal Studies are growing rapidly, but how do the implications of these endeavours intersect? Disability and Animality: Crip Perspectives in Critical Animal Studies explores some of the ways that the oppression of more-than-human animals and disabled humans are interconnected. Composed of thirteen chapters by an international team of specialists plus a Foreword by Lori Gruen, the book is divided into four themes: Intersections of Ableism and Speciesism Thinking Animality and Disability together in Political and Moral Theory Neurodiversity and Critical Animals Studies Melancholy, Madness, and Misfits. This book will be of interest to undergraduate and postgraduate students, as well as postdoctoral scholars, interested in Animal Studies, Disability Studies, Mad Studies, philosophy, and literary analysis. It will also appeal to those interested in the relationships between speciesism, ableism, saneism, and racism in animal agriculture, culture, built environments, and ethics.

Language Deprivation and Deaf Mental Health explores the impact of the language deprivation that some deaf individuals experience by not being provided fully accessible language exposure during childhood. Leading experts in Deaf mental health care discuss the implications of language deprivation for a person's development, communication, cognitive abilities, behavior, and mental health. Beginning with a groundbreaking discussion of language deprivation syndrome, the chapters address the challenges of psychotherapy, interpreting, communication and forensic assessment, language and communication development with language-deprived persons, as well as whether cochlear implantation means deaf children should not receive rich sign language exposure. The book concludes with a discussion of the most effective advocacy strategies to prevent language deprivation. These issues, which draw on both cultural and disability perspectives, are central to the emerging clinical specialty of Deaf mental health.

The rising cost of illness and disability benefits are one of today's biggest social and labour market challenges. The promise of activation-oriented work disability policies was labour market engagement for all people, regardless of illness, injury or impairment. However, the reality has been more complex. The Science and Politics of Work Disability Policy addresses social and political economic contexts driving state work disability reform in 13 countries. In this first attempt to explain the history and future of work disability policy, this book asks new questions about work disability policy design, focus, and effects. It details how work disability policies have evolved with jurisdictions, why these take their current shape, and where they are heading. The well positioned authors draw on their insider knowledge and expertise in law, medicine, and social science to provide detailed case studies of their jurisdictions. This pathbreaking volume will be of interest to social security system policy makers, scholars, and students in the health and social sciences.

Published ten years after the first edition, this new Handbook offers topical, and comprehensive information on the welfare systems of all 28 EU member states and their recent reforms, giving the reader an invaluable introduction and basis for comparative welfare research. Additional chapters provide detailed information on EU social policy, as well as comparative analyses of European welfare systems and their reform pathways. For this second edition, all chapters have been updated and substantially revised, and Croatia additionally included. The second edition of this Handbook is most timely, given the often-fundamental welfare state transformations against the background of the financial and economic crises, transforming social policy ideas, as well as political shifts in a number of European countries. The book sets out to analyse these new developments when it comes to social policy. In the first part, all country chapters provide systematic and comparable information on the foundations of the different national welfare systems and their characteristics. In the second part, using a joint conceptual foundation, they focus on policy changes (especially of the last two decades) in different social policy areas, including old-age, labour market, family, healthcare, and social assistance policies. As the comparative chapters conclude, European welfare system landscapes have been in constant motion in the last two decades. While austerity is not to be seen on the aggregate level, the in-depth country studies show that all policy sectors have been characterised by different reform directions and ideas. The findings not only reveal both change and continuity, but also policy reversal as a distinct type that characterises social policy reform. The book provides a rich resource to the international welfare state research community, and is also useful for social policy teaching.

The onslaught of neoliberalism, austerity measures and cuts, impact of climate change, protracted conflicts and ongoing refugee crisis, rise of far right and populist movements have all negatively impacted on disability. Yet, disabled people and their allies are fighting back and we urgently need to understand how, where and what they are doing, what they feel their challenges are and what their future needs will be. This comprehensive handbook emphasizes the importance of everyday disability activism and how activists across the world bring together a wide range of activism tactics and strategies. It also challenges the activist movements, transnational and emancipatory politics, as well as providing future directions for disability activism. With contributions from senior and emerging disability activists, academics, students and practitioners from around the globe, this handbook covers the following broad themes: * Contextualising disability activism in global activism * Neoliberalism and austerity in the global North * Rights, embodied resistance and disability activism * Belonging, identity and values: how to create diverse coalitions for rights * Reclaiming social positions, places and spaces * Social media, support and activism * Campus activism in higher education * Inclusive pedagogies, evidence and activist practices * Enabling human rights and policy * Challenges facing disability activism The Routledge Handbook of Disability Activism provides disability activists, students, academics, practitioners, development partners and policy makers with an authoritative framework for disability activism.

This book provides a concise guide to international disability law. It analyses the case law of the CRPD Committee and other international human rights treaty bodies, and provides commentaries on more than 50 leading cases. The author elaborates on the obligations of States Parties under the CRPD and other international treaties, while also spelling out the rights of persons with disabilities, and the different mechanisms that exist at both domestic and international levels for ensuring that those rights are respected, protected and promoted. The author also delineates the traditional differentiation between civil and political rights on the one hand, and economic, social and cultural rights on the other. He demonstrates, through analysis of the evolving case law, how the gap between these two sets of rights is gradually closing. The result is a powerful tool for political decisionmakers, academics, legal practitioners, law students, persons with disabilities and their representative organisations, human rights activists and general readers.

Despite decades of activism, resistance, and education, both feminists and gender rebels continue to experience personal, political, institutional, and cultural resistance to rights, recognition, and respect. In the face of these inequalities and disparities, Transgressing Feminist Theory and Discourse seeks to engage with, and disrupt the long-standing debates, unquestioned conceptual formations, and taboo topics in contemporary feminist studies. The first half of the book challenges key concepts and theories related to feminist scholarship by advocating new approaches for theorizing interdisciplinarity, intersectionality, critical race theory, trans studies, and genetics. The second half of the book offers feminist critiques or explorations of timely topics such as the 2017 Women's March and Donald Trump's election as well as non-Western perspectives of family and the absence of women's perspectives in healthcare. Contributors comprise of leading scholars and activists from disciplines including gender and sexuality studies, African American studies, communication studies, sociology, political science, and media. Transgressing Feminist Theory and Discourse is a compelling examination of some of the most high-profile feminist issues today. It hopes to infuse future and current debates and conversations around feminism and feminist theory with intersectional, imaginative, provocative, and evocative ideas, inspiring bold cross-fertilizations of concepts, principles, and practices.

How can or does youth sport reconcile what seems to be a fundamental contradiction between understandings of sport and disability? Has youth sport been challenged in anyway? Have alternative views of sport for disabled people been presented? Examining some of the latest research, this book considers the relationship between sport and disability by exploring a range of questions such as these. Disability and Youth Sport further challenges current thinking and therefore serves to stimulate progressive debate in this area. Drawing on a breadth of literature from sports pedagogy, sociology of sport, disability studies, inclusive education, and adapted physical activity, a socially critical dialogue is developed where the voices of young disabled people are central. Topics covered include: researching disability and youth sport inclusion policy towards physical education and youth sport constructions of disability through youth sport the voices of young disabled people the historical context of disability sport With its comprehensive coverage and expert contributors from around the globe, this book is an ideal text for students at all levels with an interest in youth sport, disability studies, or sport policy.

Disability sport is a relatively recent phenomenon, yet it is also one that, particularly in the context of social inclusion, is attracting increasing political and academic interest. The purpose of this important new text - the first of its kind - is to introduce the reader to key concepts in disability and disability sport and to examine the complex relationships between modern sport, disability and other aspects of wider society. Drawing upon original data from interviews, surveys and policy documents, the book examines how disability sport has developed and is currently organised, and explores key themes, issues and concepts including: disability theory and policy the emergence and development of disability sport disability sport development in local authorities mainstreaming disability sport disability, physical education and school sport elite disability sport and the Paralympic Games disability sport and the media. Including chapter summaries, seminar questions and lists of key websites and further reading throughout, Sport, Disability and Society provides both an easy to follow introduction and a critical exploration of the key issues surrounding disability sport in the twenty-first century. This book is an invaluable resource for all students, researchers and professionals working in sport studies, disability studies, physical education, sociology and social policy. Nigel Thomas is Head of Sport and Exercise at Staffordshire University, UK, where his research focuses on the history, mainstreaming, and media coverage of disability sport. He previously worked for ten years with young disabled people as a sports development officer in local authorities and national governing bodies. Andy Smith is Lecturer in the Sociology of Sport and Exercise at the University of Chester, UK. He is a co-editor of the International Journal of Sport Policy, and a co-author of Sport Policy and Development: A Sociological Introduction, and An Introduction to Drugs in Sport: Addicted to Winning? Both books are published by Routledge (2009).

Examining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of "normal" and to establish a social environment in which the expression of full lives will prevail.

Disability and the Posthuman is the first study to analyse cultural representations and deployments of disability as they interact with posthumanist theories of technology and embodiment. Working across a wide range of texts, many new to critical enquiry, in contemporary writing, film and cultural practice from North America, Europe, the Middle East and Japan, it covers a diverse range of topics, including: contemporary cultural theory and aesthetics; design, engineering and gender; the visualisation of prosthetic technologies in the representation of war and conflict; and depictions of work, time and sleep. While noting the potential limitations of posthumanist assessments of the technologized body, the study argues that there are exciting, productive possibilities and subversive potentials in the dialogue between disability and posthumanism as they generate dissident crossings of cultural spaces. Such intersections cover both fictional/imagined and material/grounded examples of disability and look to a future in which the development of technology and complex embodiment of disability presence align to produce sustainable yet radical creative and critical voices.

In Brilliant Imperfection Eli Clare uses memoir, history, and critical analysis to explore cure-the deeply held belief that body-minds considered broken need to be fixed. Cure serves many purposes. It saves lives, manipulates lives, and prioritizes some lives over others. It provides comfort, makes profits, justifies violence, and promises resolution to body-mind loss. Clare grapples with this knot of contradictions, maintaining that neither an anti-cure politics nor a pro-cure worldview can account for the messy, complex relationships we have with our body-minds. The stories he tells range widely, stretching from disability stereotypes to weight loss surgery, gender transition to skin lightening creams. At each turn, Clare weaves race, disability, sexuality, class, and gender together, insisting on the nonnegotiable value of body-mind difference. Into this mix, he adds environmental politics, thinking about ecosystem loss and restoration as a way of delving more deeply into cure. Ultimately Brilliant Imperfection reveals cure to be an ideology grounded in the twin notions of normal and natural, slippery and powerful, necessary and damaging all at the same time.

A memoir by a disability rights activist Such a Pretty Girl is Nadina LaSpina's story-from her early years in her native Sicily, where still a baby she contracts polio, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness; to her adolescence and youth in America, spent almost entirely in hospitals, where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her; to her rebellion and her activism in the disability rights movement. LaSpina's personal growth parallels the movement's political development-from coming together, organizing, and fighting against exclusion from public and social life, to the forging of a common identity, the blossoming of disability arts and culture, and the embracing of disability pride. While unique, the author's journey is also one with which many disabled people can identify. It is the journey to find one's place in an ableist world-a world not made for disabled people, where disability is only seen in negative terms. La Spina refutes all stereotypical narratives of disability. Through the telling of her life's story, without editorializing, she shows the harm that the overwhelming focus on pity and on a cure that remains elusive has done to disabled people. Her story exposes the disability prejudice ingrained in our sociopolitical system and denounces the oppressive standards of normalcy in a society that devalues those who are different and denies them basic rights. Written as continuous narrative and in a subtle and intimate voice, Such a Pretty Girl is a memoir as captivating as a novel. It is one of the few disability memoirs to focus on activism, and one of the first by an immigrant.

Revealing inequalities and sensory hierarchies embedded in the latest medical technologies and global biotechnical marketsWhat happens when cochlear implants, heralded as the first successful bionic technologies, make their way around the globe and are provided by both states and growing private markets? As Sensory Futures follows these implants from development to domestication and their unequal distribution in India, Michele Ilana Friedner explores biotechnical intervention in the realm of disability and its implications for state politics in the Global South. A signing and speaking deaf bilateral cochlear implant user, Friedner weaves personal reflections into this fine-grained ethnography of everyday negotiations, activist aspirations, and the space of the family. She places sensory anthropology in conversation with disability studies to analyze how normative sensoria are cultivated and the pursuit of listening and speaking capability is enacted. She argues that the conditions of potentiality that have emerged through cochlear implantation have, in fact, resulted in ever narrower understandings of future life possibilities. Rejecting sensory hierarchies that privilege audition, Friedner calls for multisensory, multimodal, and multipersonal ways of relating to the world. Sensory Futures explores deaf people's desires to create habitable worlds and grapple with what their futures might look like, in India and beyond, amid a surge in both biotechnical interventions and disability rights activism. With implications for a broad range of disability experiences, this sensitive, in-depth research focuses on the specific experiences of deaf people, both children and adults, and the structural, political, and social possibilities offered by both biotechnological and social "cures."

In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of "debility"-bodily injury and social exclusion brought on by economic and political factors-to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.

Midget, feeble-minded, crippled, lame, and insane: these terms and the historical photographs that accompany them may seem shocking to present-day audiences. A young woman with no arms wears a sequined tutu and smiles for the camera as she smokes a cigarette with her toes; a man holds up two prosthetic legs while his own legs are bared to the knees to show his missing feet. The photos were used as promotional material for circus sideshows, charity drives, and art galleries. They were found on begging cards and in family albums. In Picturing Disability, Bogdan and his collaborators gather over 200 historical photographs showing how people with disabilities have been presented and exploring the contexts in which they were photographed. Rather than focus on the subjects, Bogdan turns his gaze on the people behind the camera. He examines the historic and cultural environment of the photographs to decipher the relationship between the images and the perspectives of the picture makers. In analyzing the visual rhetoric of these photographs, Bogdan identifies the wide variety of genres, from sideshow souvenirs to clinical photographs. Ranging from the 1860s, when photographs first became readily available, to the 1970s, when the disability rights movement became a force for significant change, Bogdan chronicles the evolution of disability image creation. Picturing Disability takes the reader beyond judging images as positive or slanderous to reveal how particular contexts generate specific emotions and lasting depictions.

This edited volume provides a comprehensive analysis of deaf people as a culturally and linguistically distinct minority group within American society. Many educators, linguists, and researchers now favor this position, as opposed to that which states that a deaf person simply has an audiological disability. Contributors to this book include members of the deaf community, as well as prominent deaf and hearing educators and researchers. The text contains three sections, covering research on bilingualism and biculturalism, the impact of cultural and language diversity on the deaf experience, and first-hand accounts from deaf community members that highlight the emotional impact of living in the deaf and hearing worlds.

Bringing together scholars from around the world to research the intersection between media and disability, this edited collection aims to offer an interdisciplinary exploration and critique of print, broadcast and online representations of physical and mental impairments. Drawing on a wide range of case studies addressing how people can be 'othered' in contemporary media, the chapters focus on analyses of hateful discourses about disability on Reddit, news coverage of disability and education, media access of individuals with disabilities, the logic of memes and brain tumour on Twitter, celebrity and Down Syndrome on Instagram, disability in TV drama, the metaphor of disability for the nation; as well as an autoethnography of treatment of breast cancer. Providing a much-needed global perspective, Disability, Media, and Representations examines the relationship between self-representation and representations in either reinforcing or debunking myths around disability, and ways in which academic discourse can be differently articulated to study the relationship between media and disability. This book will be of interest to students and researchers of disability studies and media studies as well as activists and readers engaged in debates on diversity, inclusivity and the media.

Paul W. Ogden has dedicated his life to educating young deaf and hard of hearing people and raising awareness of what it means to be deaf in a hearing world. He has taught and mentored a generation of teachers, and his classic volume, The Silent Garden, has served as a guide for parents and educators for over thirty years. Now he tells his personal story of challenges faced and lessons learned, revealing that the critical, guiding factors for him have always been language and successful communication. Born in a time when many deaf children had no access to language, Paul learned spoken and written language skills at a young age through the painstaking efforts of his mother. His tight-knit family, which included one deaf and two hearing older brothers, facilitated open and constant communication using a variety of methods. His father was a pastor who was involved in the civil rights movement. Despite the family's closeness, his father struggled with depression, an illness that would take the life of one of Paul's brothers. As a student at a residential deaf school where the use of American Sign Language (ASL) was suppressed, Paul continued to build on the speech and lipreading skills he had learned at home. He returned home for high school and graduated as co-valedictorian unaware of the standing ovation he received as he walked to the podium. Following a rewarding experience as an undergraduate at Antioch College, Paul went on to earn a PhD from the University of Illinois, a rare accomplishment for a deaf person at that time. During his graduate studies, he finally had the opportunity to learn ASL. As an award-winning professor of Deaf Studies at California State University, Fresno, he successfully petitioned for the university to recognize ASL as a language, and he established the Silent Garden program, which has grown into a flourishing provider of training and resources to support the Deaf community. In My Life of Language, Paul offers eloquent reflections on both the joyful and difficult periods of his life as he navigated relationships, faced discrimination, questioned his faith, and found great happiness in his marriage.

Introduces key ideas and offers a sense of the new frontiers and questions in the emerging field of disability media studies Disability Media Studies articulates the formation of a new field of study, based in the rich traditions of media, cultural, and disability studies. Necessarily interdisciplinary and diverse, this collection weaves together work from scholars from a variety of disciplinary homes, into a broader conversation about exploring media artifacts in relation to disability. The book provides a comprehensive overview for anyone interested in the study of disability and media today. Case studies include familiar contemporary examples-such as Iron Man 3, Lady Gaga, and Oscar Pistorius-as well as historical media, independent disability media, reality television, and media technologies. The contributors consider disability representation, the role of media in forming cultural assumptions about ability, the construction of disability via media technologies, and how disabled audiences respond to particular media artifacts. The volume concludes with afterwords from two different perspectives on the field-one by disability scholar Rachel Adams, the other by media scholars Mara Mills and Jonathan Sterne-that reflect upon the collection, the ongoing conversations, and the future of disability media studies. Disability Media Studies is a crucial text for those interested in this flourishing field, and will pave the way for a greater understanding of disability media studies and its critical concepts and conversations.

The first international, cross-disciplinary book to explore and understand the lives of parents with intellectual disabilities, their children, and the systems and services they encounter * Presents a unique, pan-disciplinary overview of this growing field of study * Offers a human rights approach to disability and family life * Informed by the newly adopted UN Convention on the Rights of Persons with Disabilities (2006) * Provides comprehensive research-based knowledge from leading figures in the field of intellectual disability