Over the past two decades, there has been increasing recognition of the ways in which disabled children and adults have been denied human and civil rights that others take for granted. In the year 2000, the Human Rights Act 1998 came into force. This book reviews the implications of the Act for disabled people. The book provides: an overview of key policy and legislative developments in the UK in relation to disabled children and adults in the post war period; an outline of the European Convention on Human Rights, The Human Rights Act 1998 and related procedures; an account of the ways in which disabled people's human rights have increasingly become a matter of concern and the implications of the Human Rights Act in relation to specific issues; a debate about the ways in which public bodies and practitioners within them can engage positively with the provisions of the Human Rights Act to develop better practice. Disabled people and human rights will be of interest to both disabled people themselves and organisations representing their interests, professionals whose work brings them into contact with disabled people, and students of social work, social care, disability studies and law.

Whilst legislation may have progressed internationally and nationally for disabled people, barriers continue to exist, of which one of the most pervasive and ingrained is attitudinal. Social attitudes are often rooted in a lack of knowledge and are perpetuated through erroneous stereotypes, and ultimately these legal and policy changes are ineffectual without a corresponding attitudinal change. This unique book provides a much needed, multifaceted exploration of changing social attitudes toward disability. Adopting a tripartite approach to examining disability, the book looks at historical, cultural, and education studies, broadly conceived, in order to provide a multidisciplinary and interdisciplinary approach to the documentation and endorsement of changing social attitudes toward disability. Written by a selection of established and emerging scholars in the field, the book aims to break down some of the unhelpful boundaries between disciplines so that disability is recognised as an issue for all of us across all aspects of society, and to encourage readers to recognise disability in all its forms and within all its contexts. This truly multidimensional approach to changing social attitudes will be important reading for students and researchers of disability from education, cultural and disability studies, and all those interested in the questions and issues surrounding attitudes toward disability.

Focusing on contemporary childhood disability issues, and relevant to the lived experiences of disabled children and young people and their families, this book addresses themes such as transition, identity, education, inclusion, and service provision. It also includes insightful contributions on participatory research and practice with disabled children and young people, including an emphasis on capability, voice, and communicative spaces for those with life limiting and more severe levels of impairment. The contributions to this book are grounded in a commitment to the rights of disabled children and young people, as explicitly recognised under the United Nations Conventions on the Rights of the Child (1989) and Rights of Persons with Disabilities (2006). However, the authors also draw our attention to the detrimental impact of economic austerity and conflict on the extent to which these rights are being realised, encouraging further consideration of issues relating to social justice, inter-dependence, and participation. Addressing the diversity of disabled children's lives across service domains and international contexts, this book provides an evidence base to support the realisation of the rights of disabled children and young people. This book was originally published as a special issue of Child Care in Practice.

'Patricia Lockwood is the voice of a generation' Namita Gokhale 'A masterpiece' Guardian 'I really admire and love this book' Sally Rooney 'An intellectual and emotional rollercoaster' Daily Mail 'I can't remember the last time I laughed so much reading a book' David Sedaris 'A rare wonder . . . I was left in bits' Douglas Stuart * WINNER OF THE DYLAN THOMAS PRIZE 2022 * * SHORTLISTED FOR THE BOOKER PRIZE 2021 * * SHORTLISTED FOR THE WOMEN'S PRIZE FOR FICTION 2021 * * A BBC BETWEEN THE COVERS BOOK CLUB PICK * ______________________________________________ This is a story about a life lived in two halves. It's about what happens when real life collides with the increasing absurdity of a world accessed through a screen. It's about living in world that contains both an abundance of proof that there is goodness, empathy, and justice in the universe, and a deluge of evidence to the contrary. It's a meditation on love, language and human connection from one of the most original voices of our time. ______________________________________________ 'An utterly distinctive mixture of depth, dazzling linguistic richness, anarchic wit and raw emotional candour' Rowan Williams A 2021 Book of the Year: Sunday Times, Guardian, Daily Mail, Telegraph, Evening Standard, The Times, New Statesman, Red, Observer, Independent, Daily Telegraph

The Paralympic Games is the second largest multi-sport festival on earth and an event which poses profound and challenging questions about the nature of sport, disability and society. The Paralympic Games Explained is the first complete introduction to the Paralympic phenomenon, exploring every key aspect and issue, from the history and development of the Paralympic movement to the economic and social impact of the contemporary Games. Now in a fully revised and updated second edition, it includes new material on hosting and legacy, Vancouver 2010 to Rio 2016, sport for development, and case studies of an additional ten Paralympic nations. Drawing on a range of international examples, it discusses key issues such as: * how societal attitudes influence disability sport * the governance of Paralympic and elite disability sport * the relationship between the Paralympics and the Olympics * drugs and technology in disability sport * classification in disability sport. Containing useful features including review questions, study activities, web links and guides to further reading throughout, The Paralympic Games Explained is the most accessible and comprehensive guide to the Paralympics currently available. It is essential reading for all students with an interest in disability sport, sporting mega-events, the politics of sport, or disability in society.

The mapping, control and subjugation of the human body and mind were core features of the colonial conquest. This book draws together a rich collection of diverse, yet rigorous, papers that aim to expose the presence and significance of disability within colonialism, and how disability remains present in the establishment, maintenance and continuation of colonial structures of power. Disability as a site of historical analysis has become critically important to understanding colonial relations of power and the ways in which gender and identity are defined through colonial categorisations of the body. Thus, there is a growing prominence of disability within the historical literature. Yet, there are few international anthologies that traverse a critical level of depth on the subject domain. This book fills a critical gap in the historical literature and is likely to become a core reader for post graduate studies within disability studies, postcolonial studies and more broadly across the humanities. The chapters in this book were originally published as articles in Social Identities: Journal for the Study of Race, Nation and Culture.

What are the unconscious fantasies circulating in representations of disability? What role do these fantasies play in defining the condition of disability? What can these fantasies teach us about human vulnerability writ large? The Fantasy of Disability explores how popular culture texts, such as Degrassi: The Next Generation and Glee, fantasize about what life with a physical disability must be like, while at the same time exerting tremendous pressure on disabled individuals to conform their identity and behaviour to fit within the margins of these societally perpetuated archetypes. Rather than merely engaging with how disability is represented, though, this text investigates how representations of disability reveal their nondisabled producers to be perpetually anxious subjects, doomed to fear not just the disabled subject but the very reality of disability lurking within. Situated at the nexus of disability studies, media studies and psychology, this text presents an innovative way of analyzing representations of disability in popular culture, inverting the psychoanalytic gaze back upon the nondisabled to investigate how disability can become a lens through which to interrogate the normate subject.

An Introduction to Audio Description is the first comprehensive, user-friendly student guide to the theory and practice of audio description, or media narration, providing readers with the skills needed for the effective translation of images into words for the blind and partially-sighted. A wide range of examples - from film to multimedia events and touch tours in theatre, along with comments throughout from audio description users, serve to illustrate the following key themes: the history of audio description the audience the legal background how to write, prepare and deliver a script. Covering the key genres of audio description and supplemented with exercises and discussion points throughout, this is the essential textbook for all students and translators involved in the practice of audio description. Accompanying film clips are also available at: https://www.routledge.com/products/9781138848177 and on the Routledge Translation Studies Portal: http://cw.routledge.com/textbooks/translationstudies/.

Philosophy as Disability and Exclusion examines the history of ideas on arts in the education of people who are blind in England, from 1688 to 2010. This book also examines a number of the earlier influences on the enlightenment, and the international context of this topic. The two hypotheses on which this study is based are: (1) Our understanding of blindness in English intellectual culture is less to do with homologous physical characteristics. Instead it is more to do with an ethical philosophy of human capacity. (2) The arts education of people who are blind through touch tells us much about our psychology of mythologies and the intellectual construction of human thought. Furthermore, the myth that people who are blind are incapable of visual arts and have an enhanced capacity for the musical arts is one of the most engrained modern folklores. It is part of our cultural, intellectual and philosophical conscience. In the process of investigating these hypotheses, this book argues that philosophies have linked immorality, intelligence and physical ability. These have become connected in ways that are unrelated to eyesight in order to fulfill broader cultural processes of developing social theory. In this book, the process of knowledge creation is termed passive exclusion and is analyzed through an epistemological model of examining disability and exclusion.

In After War Zoe H. Wool explores how the American soldiers most severely injured in the Iraq and Afghanistan wars struggle to build some kind of ordinary life while recovering at Walter Reed Army Medical Center from grievous injuries like lost limbs and traumatic brain injury. Between 2007 and 2008, Wool spent time with many of these mostly male soldiers and their families and loved ones in an effort to understand what it's like to be blown up and then pulled toward an ideal and ordinary civilian life in a place where the possibilities of such a life are called into question. Contextualizing these soldiers within a broader political and moral framework, Wool considers the soldier body as a historically, politically, and morally laden national icon of normative masculinity. She shows how injury, disability, and the reality of soldiers' experiences and lives unsettle this icon and disrupt the all-too-common narrative of the heroic wounded veteran as the embodiment of patriotic self-sacrifice. For these soldiers, the uncanny ordinariness of seemingly extraordinary everyday circumstances and practices at Walter Reed create a reality that will never be normal.

In The Family Fund, first published in 1980, Bradshaw discusses the introduction of The Family Fund- a grant given to families in response of the discovery of the damages caused by the Thalidomide drug. He examines all aspects of the Fund including its origins, aims, publicity and its future. This text is ideal for students of sociology.

The United Nations Convention on the Rights of Persons with Disabilities is the only UN treaty to date in which the people who are its target, that is disabled people, were actively involved in its drafting and the only one which requires the active participation of disabled people in its implementation. This does not, of course, automatically guarantee the direct participation of all disabled people. This is especially so for children with disabilities, whose status as legal minors may inhibit them from participating in decisions affecting their lives. This book focuses on the participation rights of the disabled child with regard to health, education, homelife and relationships, highlighting ways in which these rights are safeguarded and promoted throughout the EU, as well as exploring the factors that put these rights at risk. Finally, this groundbreaking text analyses whether disabled children's needs for assistance in order to realise their participation rights results in fewer opportunities to participate or in an increase in support in order for them to be able to do so.

""Bending Over Backwards" is a welcome dismemberment of all that was unknowingly artificial from the start."
--"The Minnesota Review"

a[Its] uniqueness of thought is this collectionas strength as it makes for an interesting and proactive read.a
--American Journal of Occupational Therapy

"Davis's work offers creative and challenging examples that may be useful to our discipline and particularly to Disability historians. "Bending Over Backwards" remains an important and useful work for historians as a template for examining the myriad ways disability and Deafness infiltrate vital aspects of our identity, including laws, cultural icons, literature, and citizenship."
--"H-Net Reviews"

"Taken all together, the chapters offer an important, theoretically rich introduction to disability issues."
--"Novel"

"It is crucial, if at times uncomfortable, reading for medical professionals and scholars in the medical humanities alike. . . . Daring to mix the literary and the medical, the symbolic and the instrumental, the interpretive and the interventionist, Davis demonstrates what disability can teach us about the life that awaits any human baby."
--"Literature and Medicine"

"This superlative book is highly recommended for undergraduates, scholars, and researchers in the fields of disability studies, sociology, psychology, anthropology, ethics, and cultural studies."--"Choice"

"Lennard Davis is history in the making; for he is one of the foremost proponents of "disability studies," the newest theoretical kid on the block, noteworthy in part because it brings together scholars from the humanities and the medical sciences."
--Stanley Fish, in "Chicago Tribune"

aA collection of essays written over several years for different audiences, it contains fascinating traces of Davisas intellectual journey from novel theorist and Foucauldian to disability studeis scholar and memoirist.a--"American Literature"

With the advent of the human genome, cloning, stem-cell research and many other developments in the way we think of the body, disability studies provides an entirely new way of thinking about the body in its relation to politics, the environment, the legal system, and global economies.

Bending Over Backwards reexamines issues concerning the relationship between disability and normality in the light of postmodern theory and political activism. Davis takes up homosexuality, the Americans with Disabilities Act, the legal system, the history of science and medicine, eugenics, and genetics. Throughout, he maintains that disability is the prime category of postmodernity because it redefines the body in relation to concepts of normalcy, which underlie the very foundations of democracy and humanistic ideas about the body.

Bending Over Backwards argues that disability can become the new prism through which postmodernity examines and defines itself, supplanting the categories of race, class, gender, and sexual orientation.

This book reinforces the need for understanding and support for children with dyslexia from parents and teachers, but also the importance of the children's own understanding of their strengths and weaknesses in order to fulfil their potential. It should be recommended reading for all those involved in dyslexia. - Professor Angela Fawcett, Director of the Centre for Child Research, Swansea University What is it like living with dyslexia on a day-to-day basis? Based on interviews with dyslexic children and their families, this insightful book presents first-hand accounts of how dyslexia affects the children themselves and the people around them. Living with Dyslexia, Second Edition places the original fascinating findings within the context of current research and practice in the UK, Europe, Australia and the USA. The author: examines issues of confidence and self-esteem; explores the coping strategies adopted by children and adults with dyslexia; investigates the concept of dyslexia-friendly schools; studies how children were first identified as having dyslexia, and the social and emotional difficulties they encountered; offers guidance on how teachers and parents can best support children with specific learning difficulties; considers the cognitive, educational, social and emotional perspectives in order for teachers and parents to gain a better understanding of dyslexia. This new edition provides an updated account of cognitive research and examines important changes in relation to Special Educational Needs policy and practice in the last ten years, including the Revised SEN Code of Practice (2001), Removing Barriers to Achievement (2004) and the National Literacy Strategy (2006). Living with Dyslexia recognises that the voices of children with dyslexia are increasingly important in developing good educational practice and makes an important contribution to the literature on dyslexia.

A crucial contemporary dynamic around children and young people in the Global North is the multiple ways that have emerged to monitor their development, behaviour and character. In particular disabled children or children with unusual developmental patterns can find themselves surrounded by multiple practices through which they are examined. This rich book draws on a wide range of qualitative research to look at how disabled children have been cared for, treated and categorised. Narrative and longitudinal interviews with children and their families, along with stories and images they have produced and notes from observations of different spaces in their lives - medical consultation rooms, cafes and leisure centres, homes, classrooms and playgrounds amongst others - all make a contribution. Bringing this wealth of empirical data together with conceptual ideas from disability studies, sociology of the body, childhood studies, symbolic interactionism and feminist critical theory, the authors explore the multiple ways in which monitoring occurs within childhood disability and its social effects. Their discussion includes examining the dynamics of differentiation via medicine, social interaction, and embodiment and the multiple actors - including children and young people themselves - involved. The book also investigates the practices that differentiate children into different categories and what this means for notions of normality, integration, belonging and citizenship. Scrutinising the multiple forms of monitoring around disabled children and the consequences they generate for how we think about childhood and what is 'normal', this volume sits at the intersection of disability studies and childhood studies.

There are over thirty million disabled people in Russia and Eastern Europe, yet their voices are rarely heard in scholarly studies of life and well-being in the region. This book brings together new research by internationally recognised local and non-native scholars in a range of countries in Eastern Europe and the former Soviet Union. It covers, historically, the origins of legacies that continue to affect well-being and policy in the region today. Discussions of disability in culture and society highlight the broader conditions in which disabled people must build their identities and well-being whilst in-depth biographical profiles outline what living with disabilities in the region is like. Chapters on policy interventions, including international influences, examine recent reforms and the difficulties of implementing inclusive, community-based care. The book will be of interest both to regional specialists, for whom well-being, equality and human rights are crucial concerns, and to scholars of disability and social policy internationally.

Revealing inequalities and sensory hierarchies embedded in the latest medical technologies and global biotechnical marketsWhat happens when cochlear implants, heralded as the first successful bionic technologies, make their way around the globe and are provided by both states and growing private markets? As Sensory Futures follows these implants from development to domestication and their unequal distribution in India, Michele Ilana Friedner explores biotechnical intervention in the realm of disability and its implications for state politics in the Global South. A signing and speaking deaf bilateral cochlear implant user, Friedner weaves personal reflections into this fine-grained ethnography of everyday negotiations, activist aspirations, and the space of the family. She places sensory anthropology in conversation with disability studies to analyze how normative sensoria are cultivated and the pursuit of listening and speaking capability is enacted. She argues that the conditions of potentiality that have emerged through cochlear implantation have, in fact, resulted in ever narrower understandings of future life possibilities. Rejecting sensory hierarchies that privilege audition, Friedner calls for multisensory, multimodal, and multipersonal ways of relating to the world. Sensory Futures explores deaf people's desires to create habitable worlds and grapple with what their futures might look like, in India and beyond, amid a surge in both biotechnical interventions and disability rights activism. With implications for a broad range of disability experiences, this sensitive, in-depth research focuses on the specific experiences of deaf people, both children and adults, and the structural, political, and social possibilities offered by both biotechnological and social "cures."

The award-winning creators of Intensive Interaction bring this groundbreaking book up to date with new material covering inclusion and emotional literacy. The book also includes: a brand new section looking at the program's implementation in preschool settings the particular benefits of Intensive Interaction for children who have Autistic Spectrum Disorders a 'how to do it' chapter including ideas for assessment case studies to help practitioners get to grips with the realities of using Intensive Interaction. This book has been updated to include the new SEN Disability Act (SENDA), and developments in new technology.

First published in 1979, this book concerns itself primarily with the mothers of mentally handicapped children. It discusses the problems of assistance that they may have experienced from their families, the community, or the available services. Whilst arguing for far more support for mothers when they are the main carer, this book also suggests reasons why some families are more easily able to cope with the problems of caring for severely handicapped children. This study is based on research that was conducted for and funded by the Department of Health and Social Security between 1973 and 1976.

First published in 1975, this book looks at the place of children with handicaps in society, at that time. It argues that in the thirty years previous, a great deal of progress was made in the field of rehabilitation but that the separation between handicapped people and the community was still a challenge. A strong range of contributors discuss approaches to the problem focusing on education, employment, and daily life. Topics covered include the social aspects of integration, through the problems of the multiple-handicapped child, to a survey of disabled students at universities and polytechnics in Great Britain.

First published in 1987, this book focuses on childhood disability within the family. It examines the very nature of disability itself, as well as many of the fundamental elements of families. The book was written at a time when the meaning level of disability and its effect on family and society were rapidly changing and people with disabilities were starting to benefit from opportunities to compensate for whatever disabilities they may have had. Modern technology and an affluent society afforded advantages to support many of its disabled members. Contributors examine the contemporary context of disability, the cost of disability to families, ethical, philosophical and social issues underlying the treatment and rehabilitation of children with severe disabilities, and the role of professionals, amongst other topics. This book will be of interest to those involved in teaching, research and direct care with families who have children with disabilities. Although written in the late 80s, the work discusses subjects that are still vital today.

First published in 1985, this book considers the financial consequences of parents and other relatives caring for severely disabled children at home. At the time of publication little reliable information was available on the costs incurred by 'informal carers', which this book set to rectify. The volume interweaves hard statistical material about money with the detailed personal responses of parents. It examines the claim that disablement in a child reduces parents' earnings while simultaneously creating an extra expense. The author compares the incomes and expenditure patterns of more than 500 families with disabled children and 700 control families of the time showing that the financial effects of disablement in a child can be far-reaching and pervasive. This book discusses contemporary policy implications of these findings in a chapter dealing with the rational for compensating families with disabled children, and in the final chapter. Although the book was original published in 1985, it references issues that are still important today and, whilst its main concern is families with disabled children, it will also be useful to anyone caring for other kinds of dependent people, such as the elderly.

First published in 1990, this book was the first informed study to focus on care within the voluntary sector. Written with the child in mind, it is a sensitive work which explores the administration, strategy, and problems facing carers in children's homes, at that time. Centring on small, community-based facilities, the authors discuss the processes involved in setting up and running such facilities. They examine the difficulties of evaluating progressive services that are influenced by the philosophy of normalisation, and highlight the lessons from which other providers of services are able to learn. Written by experienced researchers with contributions from service managers, Normalisation in Practice offers pragmatic advice on managing innovation efficiently without neglecting the needs of the child. Detailed interviews are combined with theoretical insight to provide an important guide for students and practitioners and a model for academics undertaking evaluative research. Although written at the start of the 1990s, this book contains discussions and material that are still very relevant to the subject today.

First published in 1986, this study explores the increased public concern with policies of 'community care' and their effects on informal carers, at that time. It looks at the widespread evidence that one particular group of informal carers- parents looking after their severely disabled child- lack information, advice and a co-ordinated pattern of supporting services. The author, who carried out research on disabled children and their families for a number of years, describes in detail a low-cost experimental project in which specialist social workers set out to remedy these shortcomings. Drawing on the results of this particular study, the author argues strongly for widespread assignment of 'key' social workers to this and other groups of informal carers. Despite being written in the mid-1980s, this book discusses topic that will still be of interest and use today.

First published in 1989, this book is about integrating or mainstreaming policies, looking specifically at how to improve circumstances for schoolchildren with disabilities or handicaps, and their teachers. The author draws on her experiences, both within and outside the academic institution, to conceptualise and theorise policy, so as to place this policy in a political framework and locate it in a wider model of social life. This model is then used to disentangle the nature and effects of policy practices surrounding integration and mainstreaming, looking at practice in various parts of Europe, the US and Australia, at that time. Although written at the end of the 1980s, this book discusses topics that are still relevant today.