First published in 1979, this book concerns itself primarily with the mothers of mentally handicapped children. It discusses the problems of assistance that they may have experienced from their families, the community, or the available services. Whilst arguing for far more support for mothers when they are the main carer, this book also suggests reasons why some families are more easily able to cope with the problems of caring for severely handicapped children. This study is based on research that was conducted for and funded by the Department of Health and Social Security between 1973 and 1976.

Without access to a public social welfare system in parts of China, some families face invidious decisions about the lives of their children with disabilities. In other places, children with disabilities can now expect to participate in their families and communities with the same aspirations as other children. Understanding how Chinese policy has changed in the places that have addressed these stark situations is vital for the rights of the children and their families who still struggle to find the support they need. This book examines family experiences of child disability policy in China, and is the first to compile research on this area. It applies a child disability rights framework in four domains - care and protection, economic security, development and participation - to investigate families' experiences of the effectiveness of support to fulfil their children's rights. Questioning how families experience the interrelationships between these rights, it also considers what the further implications of the policy are. It includes vivid case studies of families' experiences, and combines these with national data to draw out the likely future policy directions to which the Chinese government has said it is committed. Bringing together a wealth of statistical and qualitative data on children with disabilities, this book will be of great interest to students and scholars of Chinese social welfare, social policy, society and children's studies, as well as policy-makers and NGOs alike.

The Idea of Disability in the Eighteenth Century explores disabled people who lived in the eighteenth century. The first four essays consider philosophical writing dating between 1663 and 1788, when the understanding of disability altered dramatically. We begin with Margaret Cavendish, whose natural philosophy rejected ideas of superiority or inferiority between individuals based upon physical or mental difference. We then move to John Locke, the founder of empiricism in 1680, who believed that the basis of knowledge was observability, but who, faced with the lack of anything to observe, broke his own epistemological rules in his explanation of mental illness. Understanding the problems that empiricism set up, Anthony Ashley Cooper, Lord Shaftesbury, turned in 1711 to moral philosophy, but also founded his philosophy on a flaw. He believed in the harmony of "the aesthetic trinity of beauty, truth, and virtue" but he could not believe that a disabled friend, whom he knew to have been moral before his physical alteration, could change inside. Lastly, we explore Thomas Reid who in 1788 returned to the body as the ground of philosophical enquiry and saw the body as a whole-complete in itself and wanting nothing, be it missing a sense (Reid was deaf) or a physical or mental capacity. At the heart of the study of any historical artifact is the question of where to look for evidence, and when looking for evidence of disability, we have largely to rely upon texts. However, texts come in many forms, and the next two essays explore three types-the novel, the periodical and the pamphlet-which pour out their ideas of disability in different ways. Evidence of disabled people in the eighteenth century is sparse, and the lives the more evanescent. The last four essays bring to light little known disabled people, or people who are little known for their disability, giving various forms of biographical accounts of Susanna Harrison, Sarah Scott, Priscilla Poynton and Thomas Gills, who are all but forgotten in the academic world as well as to public consciousness.

Outlining the key developments of the Disability Hate Crime policy agenda, Seamus Taylor brings together a unique consideration of the theoretical and practical questions at its heart. This book analyses the contributions of activists, politicians, policymakers and criminal justice system practitioners to policy development, and critiques both the under-recognition of disability prejudice fuelled by ableism and the challenge of vulnerability in addressing disability hostility. Concluding that a critically reflective approach on the part of policymakers and practitioners can lead to progress, the author gives clear policy recommendations to address current challenges in the criminal justice system.

Although there is a growing interest in disability studies in art, literature, film, politics, and religion, there is still a dearth of scholarship that explores the intersection between young adult literature and disability, more specifically. This gap in scholarship among young adult literature scholars and teachers is surprising: disability is a growing reality in all of our lives. According to a 2012 report by the United States Census Bureau, ""About 56.7 million people-19 percent of the population-had a disability in 2010, according to a broad definition of disability, with more than half of them reporting the disability was severe."" This is a fruitful time to continue exploring the intersections between literature written for children and teens and disability studies. Whether read in connection to each other or in isolation, readers will find excellent textual analysis, sound pedagogical advice, numerous textual examples, and a thoughtful introduction into the complex (and sometimes complicated) world of connecting students to people (characters and those in real life) that both reflect and contrast the reader's reality. My hope for this book is that it encourages and empowers teachers to expose students to dynamic characters that may or may not be different from them.

Literature and Disability introduces readers to the field of disability studies and the ways in which a focus on issues of impairment and the representation of disability can provide new approaches to reading and writing about literary texts. Disability plays a central role in much of the most celebrated literature, yet it is only in recent years that literary criticism has begun to consider the aesthetic, ethical and literary challenges that this poses. The author explores: key debates and issues in disability studies today different forms of impairment, with the aim of showing the diversity and ambiguity of the term "disability" the intersection between literary critical approaches to disability and feminist, post-colonial, and autobiographical writing genre and representations of disability in relation to literary forms including novels, short stories, poems, plays and life writing This volume provides students and academics with an accessible overview of literary critical approaches to disability representation.

Disability, Augmentative Communication, and the American Dream is a collaborative effort to tell the life story of Jon A. Feucht, a man who was born with a form of cerebral palsy that left him reliant on a wheelchair for mobility, with limited use of his arms and an inability to speak without an assistive communication device. It is a story about finding one's voice, about defying low expectations, about fulfilling one's dreams, and about making a difference in the world. Sociologist C. Wright Mills famously called for a "sociological imagination" that grapples with the intersection of biography and history in society and the ways in which personal troubles are related to public issues. Disability, Augmentative Communication, and the American Dream heeds this call through a qualitative "mixed-methods" study that situates Feucht's life in broader social context, understanding disability not just as an individual experience but also as a social phenomenon. In the tradition of disability studies, it also illuminates an experience of disability that avoids reading it as tragic or pitiable. Disability, Augmentative Communication, and the American Dream is intended as an analytical and empirical contribution to both disability studies and qualitative sociology, to be read by social science scholars and students taking courses in disability studies and qualitative research, as well as by professionals working in the fields of special education and speech pathology. Written in an accessible style, the book will also be of interest to lay readers who want to learn more about disability issues and the disability experience.

There is a growing concern about the social exclusion of a range of minority groups, including people with learning difficulties. Lifelong learning is seen as one of the central means of challenging the exclusion of this group, but also of enhancing their economic status. This book demonstrates that policy based on human capital premises has produced forms of lifelong learning which exacerbate the marginalisation of people with learning difficulties. The Learning Society and people with learning difficulties: reviews the range of policy fields which increasingly intervene in the lifelong learning arena; maps the agencies involved in service delivery and describes their (sometimes conflicting) ethos; provides in-depth accounts of the lived experiences of individuals with learning difficulties as they navigate lifelong learning options. Its exploration of the links between community care, education, training, employment, housing and benefits policies in the context of lifelong learning is unique. This book makes a significant contribution to debates about how people with learning difficulties may achieve social inclusion, and the part which lifelong learning may play in this. It is therefore invaluable reading for policy makers, practitioners and academics interested in these issues.

Giving Voice to Profound Disability is devoted to exploring the lives of people with profound and multiple learning difficulties and disabilities, and brings together the voices of those best placed to speak about the rewards and challenges of living with, supporting and teaching this group of vulnerable and dependent people - including parents, carers and teachers. Along with their personal insights the book offers philosophical reflections on the status, role and treatment of profoundly disabled people, and the subjects discussed include: Respect and human dignity Dependency Freedom and human capabilities Rights, equality and citizenship Valuing people Caring for others The experience and reflections presented in this book illustrate the progress and achievements in supporting and teaching people with profound disabilities, but they also reveal the challenges involved in enabling them to develop their full potential. It is suggested, also, that these challenges apply not only to this group, but also to people who, through sickness, accident and old age, face equivalent levels of dependency and disability. Giving Voice to Profound Disability will be of interest to all those involved in the lives of severely and profoundly disabled people, including parents, carers, teachers, nurses, therapists, academics, researchers, students and policymakers.

Giving Voice to Profound Disability is devoted to exploring the lives of people with profound and multiple learning difficulties and disabilities, and brings together the voices of those best placed to speak about the rewards and challenges of living with, supporting and teaching this group of vulnerable and dependent people - including parents, carers and teachers. Along with their personal insights the book offers philosophical reflections on the status, role and treatment of profoundly disabled people, and the subjects discussed include: Respect and human dignity Dependency Freedom and human capabilities Rights, equality and citizenship Valuing people Caring for others The experience and reflections presented in this book illustrate the progress and achievements in supporting and teaching people with profound disabilities, but they also reveal the challenges involved in enabling them to develop their full potential. It is suggested, also, that these challenges apply not only to this group, but also to people who, through sickness, accident and old age, face equivalent levels of dependency and disability. Giving Voice to Profound Disability will be of interest to all those involved in the lives of severely and profoundly disabled people, including parents, carers, teachers, nurses, therapists, academics, researchers, students and policymakers.

This is the first study to examine the representation of illness, disability, and cultural pathologies in modern and contemporary Iberian and Latin American literature. Innovative and interdisciplinary, the collection situates medicine as an important and largely overlooked discourse in these literatures, while also considering the social, political, religious, symbolic, and metaphysical dimensions underpinning illness. Investigating how Hispanic and Lusophone writers have reflected on the personal and cultural effects of illness, it raises central questions about how medical discourses, cultural pathologies, and the art of healing in general are represented. Essays pay particular attention to the ways in which these interdisciplinary dialogues chart new directions in the study of Hispanic and Lusophone cultures, and emerging disciplines such as the medical humanities. Addressing a wide range of themes and subjects including bioethics, neuroscience, psychosurgery, medical technologies, Darwinian evolution, indigenous herbal medicine, the rising genre of the pathography, and the 'illness as metaphor' trope, the collection engages with the discourses of cultural studies, gender studies, disability studies, comparative literature, and the medical humanities. This book enriches and stimulates scholarship in these areas by showing how much we still have to gain from interdisciplinary studies working at the intersections between the humanities and the sciences.

Mental health policy in the United States has involved varying approaches, often reflecting the social and economic conditions of the times. The compelling needs of individuals, however, have consistently demanded attention and some form of public policy response has been necessary, even since the early days. Societal reaction has moved in many differing directions--from institutionalization and deinstitutionalization to the care and costs borne at public expense to the current emphasis on increasing privatization.

Dorwart and Epstein stress that the mental health system must be seen as a system within two other systems--health care and social service--if it is to be effective. They have written an authoritative, comprehensive, and practical analysis of the mental health policy area, offering sound policy recommendations.

Disability is often mentioned in discussions of slave health, mistreatment and abuse, but constructs of how "able" and "disabled" bodies influenced the institution of slavery has gone largely overlooked. This volume uncovers a history of disability in African American slavery from the primary record, analyzing how concepts of race, disability, and power converged in the United States in the first half of the nineteenth century. Slaves with physical and mental impairments often faced unique limitations and conditions in their diagnosis, treatment, and evaluation as property. Slaves with disabilities proved a significant challenge to white authority figures, torn between the desire to categorize them as different or defective and the practical need to incorporate their "disorderly" bodies into daily life. Being physically "unfit" could sometimes allow slaves to escape the limitations of bondage and oppression, and establish a measure of self-control. Furthermore, ideas about and reactions to disability-appearing as social construction, legal definition, medical phenomenon, metaphor, or masquerade-highlighted deep struggles over bodies in bondage in antebellum America.

For too long, disabled people in Britain have been denied access to employment. Now paid work is being presented as the only route out of poverty and dependence on the state. What is the reality? Working for a living? asks: Does paid work bring disabled people the benefits they are led to expect, or does it have hidden disadvantages? Can disabled people who are not able to work expect to enjoy a good standard of living? The author compares the welfare states of Sweden, Germany and Britain on the basis of social policy provision for disabled people of working age, particularly in the area of income maintenance and employment policy, and uses survey data to analyse the living standards of disabled people both in and out of work. Working for a living? shows that both employment and welfare policies have a vital role to play in securing a good standard of living. The report brings together policy and outcomes in all three countries, and examines the implications for policy in Britain.

Disability-inclusive development is an essential condition for a sustainable future. In 2015, the United Nations adopted the 2030 Agenda for Sustainable Development, pledging to leave no one behind in the global efforts to realize the 17 Sustainable Development Goals. Without the world's one billion persons with disabilities - 15% of the world population - being included as both agents and beneficiaries of development, these Goals will never be achieved. Yet, persons with disabilities are still invisible and often left behind. This United Nations flagship report is the first publication to address, at the global level, the nexus between disability and the Sustainable Development Goals. It is also the first global analysis based on an unprecedented amount of data, legislation and policies from over 100 countries to understand the socio-economic circumstances of persons with disabilities and the challenges and barriers they face in their daily lives. This report examines new areas, like the role of access to energy to enable persons with disabilities to use assistive technology, for which no global research was previously available. And explores the linkages between the Sustainable Development Goals and the Convention on the Rights of Persons with Disabilities as well as other international relevant norms and standards relating to disability. Against the backdrop of all the available evidence, the report identifies good practices and recommends urgent actions to be taken for the achievement of the Sustainable Development Goals by, for and with persons with disabilities. The e-book for this publication has been converted into an accessible format for the visually impaired and people with print reading disabilities. It is fully compatible with leading screen-reader technologies such as JAWS and NVDA.

Phil Fennell's tightly argued study traces the history of treatment of mental disorder in Britain over the last 150 years. He focuses specifically on treatment of mental disorder without consent within psychiatric practice, and on the legal position which has allowed it. Treatment Without Consent examines many controversial areas: the use of high-strength drugs and Electro Convulsive Therapy, physical restraint and the vexed issue of the sterilisation of people with learning disabilities. Changing notions of consent are discussed, from the common perception that relatives are able to consent on behalf of the patient, to present-day statutory and common law rules, and recent Law Commission recommendations. This work brings a complex and intriguing area to life; it includes a table of legal sources and an extensive bibliography. It is essential reading for historians, lawyers and all those who are interested in the treatment of mental disorder.

* This anthology has been curated by a seasoned playwright, academic, director and actor who has lived experience of being deaf. * Would be recommended reading in deaf studies and deaf culture courses across the world. * This book is the first anthology of its kind.

Grouped around four central themes - illness and impairment, disabling processes, care and control, and communication and representations - this collection offers a fresh perspective on disability research, showing how theory and data can be brought together in new and exciting ways. Disability Research Today starts by showing how engaging with issues around illness and impairment is vital to a multidisciplinary understanding of disability as a social process. The second section explores factors that affect disabled people, such as homelessness, violence and unemployment. The third section turns to social care, and how disabled people are prevented from living with independence and dignity. Finally, the last section examines how different imagery and technology impacts our understandings of disability and deafness. Showcasing empirical work from a range of countries, including Japan, Norway, Italy, Australia, India, the UK, Turkey, Finland and Iceland, this collection shows how disability studies can be simultaneously sophisticated, accessible and policy-relevant. Disability Research Today is suitable for students and researchers in disability studies, sociology, social policy, social work, nursing and health studies.

Supporting Change in Autism Services explores the theoretical and practical dimensions of improving service provision for children, young people and adults with autism. The core aim of the book is to identify and critically examine some of the key factors that either facilitate or inhibit the implementation of good autism practice at both practitioner level and workplace level. It shows practitioners and students how to successfully translate autism theory into practice across service contexts and showcases a range of practitioner case studies throughout the text in order to illustrate effective implementation. Topics explored include: controversies and ambiguities in autism policy, theory and discourse; understanding autism in an inclusive context; enabling participation; making sense of behaviour; autism and interprofessionalism; strategic planning for autism friendly services; bridging the implementation gap. This book is essential reading for anyone interested in improving services for people with autism in the education, social care, health and voluntary sectors.

Incorporating scholarship that addresses the social, economic, cultural, and historical facets of the experience of disability in South Asia, this book presents the reader with a comprehensive, cogent, and nuanced view of the constructions of disability in this region. In doing so, it focuses on the lived experiences of people with disabilities and their families, analyzing such disabling barriers as poverty, caste, and other inequities that limit their access to education, employment, equity, and empowerment. It addresses the interpretations of disability within different South Asian contexts including policy, family, educational systems, films, and literary narratives. Situated in an interdisciplinary perspective that spans areas such as cultural studies, law, disability studies in education, sociology, and historiography, South Asia and Disability Studies presents a rich and complex understanding of the disability experience in South Asia. The organization of topics parallels the discourse in areas within disability studies such as identity construction, language, historical constructions of disability, and cultural representations of disability.

From the moment the first machine gun rang out over the Western Front, one thing was clear: mankind's military technology had wildly surpassed its medical capabilities. The war's new weaponry, from tanks to shrapnel, enabled slaughter on an industrial scale, and given the nature of trench warfare, thousands of soldiers sustained facial injuries. Medical advances meant that more survived their wounds than ever before, yet disfigured soldiers did not receive the hero's welcome they deserved. In The Facemaker, award-winning historian Lindsey Fitzharris tells the astonishing story of the pioneering plastic surgeon Harold Gillies, who dedicated himself to restoring the faces - and the identities - of a brutalized generation. Gillies, a Cambridge-educated New Zealander, became interested in the nascent field of plastic surgery after encountering the human wreckage on the front. Returning to Britain, he established one of the world's first hospitals dedicated entirely to facial reconstruction in Sidcup, south-east England. There, Gillies assembled a unique group of doctors, nurses and artists whose task was to recreate what had been torn apart. At a time when losing a limb made a soldier a hero, but losing a face made him a monster to a society largely intolerant of disfigurement, Gillies restored not just the faces of the wounded but also their spirits. Meticulously researched and grippingly told, The Facemaker places Gillies's ingenious surgical innovations alongside the poignant stories of soldiers whose lives were wrecked and repaired. The result is a vivid account of how medicine and art can merge, and of what courage and imagination can accomplish in the presence of relentless horror.

The London 2012 Paralympic Games - the biggest, most accessible and best-attended games in the Paralympics' 64-year history - came with an explicit aim to "transform the perception of disabled people in society," and use sport to contribute to "a better world for all people with a disability." This social agenda offered the potential to re-frame disability; to symbolically challenge "ableist" ideology and to offer a reinvention of the (dis)abled body and a redefinition of the possible. This edited collection investigates what has and is happening in relation to these ambitions. The book is structured around three key questions: 1. What were the predominant mediated narratives surrounding the Paralympics, and what are the associated meanings attached to them? 2. How were the Paralympics experienced by media audiences (both disabled and non-disabled)? 3. To what extent did the 2012 Paralympics inspire social change? Each section of this book is interspersed with authentic "voices" from outside academia: broadcasters, athletes and disabled schoolchildren.

This comprehensive collection provides a fascinating summary of the debates on the growth of institutional care during the nineteenth and twentieth centuries. Revising and revisiting Foucault, it looks at the significance of ethnicity, race and gender as well as the impact of political and cultural factors, throughout Britain and in a colonial context. It questions historically what it means to be mad and how, if at all, to care.

In "The Family Fund," first published in 1980, Bradshaw discusses the introduction of The Family Fund- a grant given to families in response of the discovery of the damages caused by the Thalidomide drug. He examines all aspects of the Fund including its origins, aims, publicity and its future. This text is ideal for students of sociology.

Self-organised user groups of social and health care services are playing an increasingly significant part within systems of local governance. Based on detailed empirical work looking at the user and 'official' perspective, this report includes studies of user groups and officials in two policy areas - mental health and disability. The authors examine both the strategies user groups adopt to seek their objectives, and explore conceptual issues relating to notions of consumerism and citizenship. Unequal partners thus contributes to our understanding of the role of user self-organisation in empowering people as consumers, and in enabling excluded people to become 'active' citizens. The authors discuss the way in which self-organisation may be supported without being controlled by officials in statutory agencies, highlighting the need to understand and distinguish between user self-organisation and user involvement. The report concludes that if policy makers are genuinely committed to greater user involvement in design, planning and delivery of services, then user self-organisation needs to be both encouraged and supported materially, without being 'captured' or incorporated into management. The research points to the significance of 'user groups' in challenging the exclusion of disabled citizens from all aspects of social, economic, political and cultural life. Unequal partners is essential reading for health and social care policy makers and practitioners, lobby and pressure groups, students and academics in health and social policy and local government studies, and users.