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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
Hoop Dreams on Wheels is a life-history study of wheelchair athletes associated with a premier collegiate wheelchair basketball program. The book, which grapples with the intersection of biography and history in society, situates the study in broader context with background on the history and sociology of disability and disability sports. It documents the development and evolution of the basketball program and tells the individual life stories of the athletes, highlighting the formative interpersonal and institutional experiences that influenced their agentive actions and that helped them achieve success in wheelchair sports. It also examines divisions within the disability community that reveal both empowering and disempowering aspects of competitive wheelchair athletics, and it explores some of the complexities and dilemmas of disability identity in contemporary society. The book is intended to be read by a general audience as well as by students in college courses on disability, sports, social problems, deviance, medical sociology and anthropology, and introductory sociology. It also will be of interest to scholars in the sociology of disability, sociology of sports, and medical humanities, as well as life-history researchers and professionals in the fields of physical education, therapeutic recreation, and rehabilitative counseling.
As William Roth was taking his first steps, members of his family were caught up in the Nazi Holocaust. At age eight, he began to manifest the symptoms of dystonia, a neurological disease characterized by severe movement disorders. And at age forty-seven, he was diagnosed with squamous cell carcinoma of the tonsil, a cancer that would prove as invasive as his genetic disease and as dreadful as his social persecution.Today, at age 65, Roth is more than a survivor. Mobilizing his courage to spearhead the discipline of disability studies, be active in the Disability Rights Movement, influence government policy toward disability, and found the non-profit Center for Computing and Disability, Roth used his own disability to change the life of disabled people in America. This, his memoir, is the story of three intertwined narratives and the miraculous success that one man carved from them.
This book explores the series of issues that emerge at the intersection of disability, care and family law. Disability studies is an area of increasing academic interest. In addition to a subject in its own right, there has been growing concern to ensure that mainstream subjects diversify and include marginalised voices, including those of disabled people. Family law in modern times is often based on an "able-bodied autonomous norm" but can fit less well with the complexities of living with disability. In response, this book addresses a range of important and highly topical issues: whether care proceedings are used too often in cases where parents have disabilities; how the law should respond to children who care for disabled parents - and the care of older family members with disabilities. It also considers the challenges posed by the UN Convention on the Rights of Persons with Disabilities, particularly around the different institutional and state responsibilities captured in the Convention, and around decision-making for both disabled adults and children. This interdisciplinary collection - with contributors from law, criminology, sociology and social policy as well as from policy and activist backgrounds - will appeal to academic family lawyers and disability scholars as well as students interested in issues around family law, disability and care.
This ground-breaking volume considers what it means to make claims of disability membership in view of the robust Disability Rights movement, the rich areas of academic inquiry into disability, increased philosophical attention to the nature and significance of disability, a vibrant disability culture and disability arts movement, and advances in biomedical science and technology. By focusing on the statement, "We are all disabled", the book explores the following questions: What are the philosophical, political, and practical implications of making this claim? What conceptions of disability underlie it? When, if ever, is this claim justified, and when or why might it be problematic or harmful? What are the implications of claiming "we are all disabled" amidst this global COVID-19 pandemic? These critical reflections on the boundaries of disability include perspectives from the humanities, social sciences, law, and the arts. In exploring the boundaries of disability, and the ways in which these lines are drawn theoretically, legally, medically, socially, and culturally, the authors in this volume challenge particular conceptions of disability, expand the meaning and significance of the term, and consider the implications of claiming disability as an identity. It will be of interest to a broad audience, including disability scholars, advocates and activists, philosophers and historians of disability, moral theorists, clinicians, legal scholars, and artists.
This book describes an inquiry into the upbringing of young cerebral palsied children. Following the precedent set by John and Elizabeth Newson in their studies of normal children at home; Sheila Hewett visited the mothers of 180 spastic children and obtained their personal accounts of their experiences. There is considerable literature on handicapped children in which the adverse effects of their presence in the family are emphasized. This study is the first to present, not evidence provided by professional people, but that of a large number of mothers of all social classes who have children with all degrees of handicap. They tell in their own words how they meet the problems and anxieties of everyday life and how they strive to maintain the norms of family living in spite of their very real difficulties. A measure of their success is provided by a number of comparisons with the families of normal children. Hewett's nursing experience combined with a social science training and personal experience of parenthood contributed a useful background for this research. Resulting as it does from close collaboration with the Newsons, her work provides an important extension of the main work of the Child Development Research Unit in Nottingham. It will help all those who work with handicapped children to achieve a better understanding of the families to whom they offer their specialist knowledge. To the general public it offers an opportunity to gain insights into a situation, which calls for their support and acceptance but not their pity. For the parents of handicapped children themselves it provides a much-needed opportunity to make their views known and to see that they are not alone in the difficulties, which they face with such stoicism and resourcefulness. This book's last aim has been achieved by using the now extensive information about the upbringing of normal children obtained from Nottingham mothers in the United Kingdom, by John and Elizabeth Newson.
This book addresses the ways in which individualised, market-based models of disability support provision have been mobilised in and across different countries through cross-national investigation of individualised funding (IF) as an object of neoliberal policy mobility. Combining rich theoretical and interdisciplinary perspectives with extensive empirical research, the book provides a timely examination of the policy processes and mechanisms driving the spread of IF amongst countries at the forefront of disability policy reform. It is argued that IF's mobility is not attributable to neoliberalism alone but to the complex intersections between neoliberal and emancipatory agendas and to the transnational networks that have blended the two agendas in new ways in different institutional contexts. The book shows how disability rights struggles have synchronised with neoliberal agendas, which explains IF's propensity to move and mutate between different jurisdictions. Featuring first-hand accounts of the activists and advocates engaged in these struggles, the book illuminates the consequences and risks of the dangerous liaisons and political trade-offs that seemed necessary to get individualised funding on the policy agenda for disabled people. It will be of interest to all scholars and students working in disability studies, social policy, sociology and political science more generally.
This fully updated third edition contains practical and useful advice that will be invaluable for students with dyslexia, their parents and all of those involved in teaching and supporting them in their studies. Including the latest research into dyslexia, changes in legislation and information technology and the real-life experiences of six former Bangor students this book will: - guide students through the process of applying for university, suggesting strategies for general organisation and for particular aspects of study - outline how to get the best personally and academically from higher education - give practical advice on setting up and using support facilities (both human and technological) - be an accessible text for mainstream lecturers and tutors who need to be aware of the implications of the Disability Discrimination Act. New chapters include 'Dyslexia plus', giving information on dyspraxia, attention disorders, Asperger's syndrome, and the more controversial 'dyscalculia'. 'Out of College and into Work' gives advice for students on the challenges they face after graduation.
This fully updated third edition contains practical and useful advice that will be invaluable for students with dyslexia, their parents and all of those involved in teaching and supporting them in their studies. Including the latest research into dyslexia, changes in legislation and information technology and the real-life experiences of six former Bangor students this book will: * guide students through the process of applying for university, suggesting strategies for general organisation and for particular aspects of study * outline how to get the best personally and academically from higher education * give practical advice on setting up and using support facilities (both human and technological) * be an accessible text for mainstream lecturers and tutors who need to be aware of the implications of the Disability Discrimination Act. New chapters include 'Dyslexia plus', giving information on dyspraxia, attention disorders, Asperger's syndrome, and the more controversial 'dyscalculia'. 'Out of College and into Work' gives advice for students on the challenges they face after graduation.
Bridging the chasm between the disabled and a just and fair society takes skill, dedication, and a deep understanding of the issues. Disability and Social Work Education: Practice and Policy Issues presents leading social work experts providing insightful, effective strategies to address the current gaps in the system between social work and those individuals with disabilities. Diverse perspectives on all levels of social work practice are integrated with the basic tenets of social justice, accessibility to services, and human rights. Specific challenges and issues are addressed in work with disabled populations. Disability and Social Work Education: Practice and Policy Issues examines the social construction of disability that connotes inferiority and highlights practical strategies for change. This creative resource gives social work educators, students, and practitioners the opportunity to embrace diverse and creative ways for integrating a generalist social work model in their work with various size systems that are related to disability. Chapters include extensive references, appendixes, tables, and figures to clearly illustrate topics. Topics in Disability and Social Work Education: Practice and Policy Issues include: model curriculum on disabilities that incorporates diverse perspectives of social work practice with individuals who have physical, cognitive, and psychiatric disabilities protecting the legal rights of children and the Individuals with Disabilities Education Act (IDEA) empowering disabled individuals for civil rights to have access to community living the academic process of helping students who are disabled achieve their academic goals components of the Americans with Disabilities Act-and key decisions made by the Supreme Court strategies of intervention for macro change historical overview of family policy and practice as it relates to children and adolescents who are disabled the biopsychosocial framework as an assessment tool to develop interventions the use of the therapeutic relationship and psychodynamic and ecological approaches to social work practices helping clients with disabilities develop adaptive religious and spiritual beliefs disability protests and movements and their implications on social work practice the Capacity Approach and the International Classification of Functioning, Disability and Health as social work tools basic guidelines for undertaking research about and with people who have disabilities Disability and Social Work Education: Practice and Policy Issues is a valuable, unique resource for social work educators, students, and practitioners.
Cultural Heritage, Ageing, Disability, and Identity examines the effects of disability and ageing on engagement with cultural heritage and associated cultural identity formation processes. Combining theory with detailed case study research, it unpicks both the current state of play and future directions. The book is based upon detailed case example research on both the self-reported individual experiences of people with disabilities engaging with cultural heritage, and the accessibility approaches of cultural heritage institutions themselves. Hayhoe grounds the analysis in a theoretical and historical overview of disability and inclusion. He interrogates the various ways in which identity is formed through interaction with cultural heritage, and considers the differences in engagement with cultural heritage amongst those who develop disabilities early in life compared to those who acquire disabilities later in life. His conclusions offer insights that can help improve the provision of cultural heritage engagement to all people, but particularly those with disabilities. Cultural Heritage, Ageing, Disability, and Identity is key reading for students and scholars of cultural heritage, visitor studies, and disability studies, and will also be of interest to other subject areas engaging with issues of accessibility. It should also be read by institutions looking to improve their accessibility strategy to engage broader audiences.
This book on Relationality addresses our growing "crisis of connection" by foregrounding the multi-faceted ways in which we are interconnected with each other and the world in which we live. When Niobe Way and her collaborators first proclaimed such a "crisis" in their 2018 book The Crisis of Connection: Roots, Consequences, and Solutions, they could not have foreseen the extremes of isolation and disconnection that Covid-19 would unleash just a couple of years later. Importantly, what such experiences of impaired and compromised relationality impress upon us-now more powerfully than ever-is just how fundamentally we are intertwined with each other and the world we inhabit. The ten scholarly chapters assembled here, combined with ten specially commissioned poems, emphasise the significance of these relational entanglements. They draw on a range of thinkers (with Emmanuel Levinas playing a particularly prominent role) to bring relationality into conversation with an array of contemporary paradigms and areas of political concern: the Anthropocene, post-humanism, neoliberalism, disability studies, and postcolonialism (to name but a few). Tracing the various challenges and opportunities associated with our relational existence, they collectively consider the role relationality plays, or might play, in our increasingly less-than-relational lives. The chapters and poems in this book were originally published as a special issue of Angelaki.
With contributions from distinguished authors in 14 countries across 5 continents, this book provides a unique transnational perspective on intellectual disability in the twentieth century. Each chapter outlines different policies and practices, and details real-life accounts from those living with intellectual disabilities to illustrate their impact of policies and practices on these people and their families. Bringing together accounts of how intellectual disability was viewed, managed and experienced in countries across the globe, the book examines the origins and nature of contemporary attitudes, policy and practice and sheds light on the challenges of implementing the UN Convention on the Rights of Persons with Disabilities (UNCPRD).
Offering readings of a range of fictional and biographical texts, including work by Richard Selzer, Nathaniel Hawthorne, Gaston Leroux, Willa Cather, Natalie Kusz, and Lucy Grealy, this book examines reactions to facially disfigured people on the basis of Emmanuel Levinas' ethics of the face. Drawing on Levinas' concern with the holistic dimension of the face as an encounter with the other's "whole person" and the sense of moral obligation that this instils in us-a sense that disfigurement disrupts by drawing our attention to the disfigurement as a "spectacle" and threatening to limit our view of that individual-the author explores how we react to the facially disfigured and how we ought to react.
"Reading Victorian Deafness "is the first book to address the
crucial role that deaf people, and their unique language of signs,
played in Victorian culture. Drawing on a range of works, from
fiction by Charles Dickens and Wilkie Collins, to poetry by deaf
poets and life writing by deaf memoirists Harriet Martineau and
John Kitto, to scientific treatises by Alexander Graham Bell and
Francis Galton, "Reading Victorian Deafness" argues that deaf
people's language use was a public, influential, and contentious
issue in Victorian Britain.
First published in 1999, this volume examines the inclusion of disabled children as a category of children in need under the Children Act 1989 and as eligible for assessments of need under the NHS and Community Care Act 1990 has drawn renewed attention to the plight of these children and their families. This book presents the findings from a study of parents whose child has cerebral palsy. The research undertaken at the cost of social policy change focuses on the apparent gap between the well-argued proposals for community care and the experiences of carers. A bewildering picture emerges of inadequate services and treatments from the health, education and social services in the public, voluntary and private sectors. Parents experience isolation and stress as they explore ways to improve the quality of their children's lives by experimenting with unregulated and under-researched treatments for an incurable physical condition. The conclusion that there has been deterioration in provision for these families is a serious indictment on current social policy direction.
This volume brings together two parallel fields of interest. One is the understanding among psychologists and other social scientists of the limits to psychometric measurement, and the challenges in generating information about quality of life and wellbeing that enable comparison across time and place, at both individual and population levels. The second is the interest among anthropologists and others in the lived experience of chronic illness and disability, including the unpredictable fluctuations in perceived health and capability. Chronic conditions and physical impairments are assumed to impact negatively on people's quality of life, affecting them psychologically, socially and economically. While some of these conditions have declined in prevalence, as a result of prenatal diagnosis, early successful interventions, and changes in medical technology and surgery, many of these conditions are on the increase as a consequence of improved life-saving medication and technology, and greater longevity. 'Quality of life' is often used as an indicator for successful and high quality health services, and good access to medical attention and surgery - for hip replacements or laser surgery to improve vision, for instance. But it is also used as an argument against interventions, when such interventions are seen to prolong life for its own sake. Yet we also know that people vary their idea of quality as a result of the context of fluctuations in their own health status, the presence or absence of pain or discomfort, and as a result of variations in social and economic contextual factors. In exploring these questions, this volume contributes to emerging debates related to individual health outcomes, but also to the social and other individual determinants that influence everyday life. Understanding these broader contextual factors will contribute to our knowledge of the kinds of services, support systems, and infrastructure that provide people with good 'quality of life' and a sense of wellbeing, regardless of their physical health, capability and functioning. The volume includes scholars from all continents who have been encouraged to think critically, and to engage with the descriptive, methodological, social, policy and clinical implications of their work.
This book provides a valuable route map to the development of
thinking in disability studies over the last 18 years. It includes
over 20 seminal articles from the journal Disability and Society,
written by many of the leading authors in the field from the UK,
the USA, Australia and Europe.
The award-winning creators of Intensive Interaction bring this groundbreaking book up to date with new material covering inclusion and emotional literacy. The book also includes:
This book has been updated to include the new SEN Disability Act (SENDA), and developments in new technology.
This is a provocative look at writing by and about people with
illness or disability--in particular HIV/AIDS, breast cancer,
deafness, and paralysis--who challenge the stigmas attached to
their conditions by telling their lives in their own ways and on
their own terms. Discussing memoirs, diaries, collaborative
narratives, photo documentaries, essays, and other forms of life
writing, G. Thomas Couser shows that these books are not primarily
records of medical conditions; they are a means for individuals to
recover their bodies (or those of loved ones) from marginalization
and impersonal medical discourse.
This impressive volume presents a thorough examination of all aspects of physical impairment and disability in medieval Europe. Examining a popular era that is of great interest to many historians and researchers, Irene Metzler presents a theoretical framework of disability and explores key areas such as:
Bringing into play the modern day implications of medieval thought on the issue, this is a fascinating and informative addition to the research studies of medieval history, history of medicine and disability studies scholars the English-speaking world over.
Disability and Digital Television Cultures offers an important addition to scholarly studies at the intersection of disability and media, examining disability in the context of digital television access, representation and reception. Television, as a central medium of communication, has marginalized people with disability through both representation on screen and the lack of accessibility to this medium. With accessibility options becoming available as television is switched to digital transmissions, audience research into television representations must include a corresponding consideration of access. This book provides a comprehensive and critical study of the way people with disability access and watch digital TV. International case studies and media reports are complimented by findings of a user-focused study into accessibility and representation captured during the Australian digital television switchover in 2013-2014. This book will provide a reliable, independent guide to fundamental shifts in media access while also offering insight from the disability community. It will be essential reading for researchers working on disability and media, as well as television, communications and culture; upper-level undergraduate and postgraduate students in cultural studies; along with general readers with an interest in disability and digital culture.
Being Disabled, Becoming a Champion is an accessible presentation of current European research on the most recent evolutions in sports for people with disabilities, demonstrating knowledge developed from the field of sports practices of people with disabilities. It covers three interrelated themes. First, it covers the different facets of the history of sports organizations set up during the 1950s for athletes with motor or intellectual impairments. The second part focuses on the athletes themselves. Voices are given to the top-level athletes in adapted sports: people with intellectual impairment; the pioneers of wheelchair racing who invented a new discipline, off-road wheelchair racing; and a former Paralympic athlete who has become a researcher and a defender of specific sports practices. Finally, the third part interrogates the way support for disabled people can modify the existing definitions and conceptions of the body, of disability, of what is human, and of sports performance. This is an ideal text for students and researchers studying and working in the areas of Disability Studies, Sport Sciences and Paralympic Studies. This book was originally published as a special issue of Sport in Society.
Disability and Shopping:Customers, Markets and the State provides an examination of the diverse experiences and perspectives of disabled customers, industry and civil society. It discusses how the interaction between the three stakeholders should be shaped at aiming to decrease inequality and marginalisation. Shopping is a part of everyday modern life and yet businesses struggle to adequately meet the needs of 80 million disabled customers in the European Union single market. While there has been extensive research into how individuals engage in customer roles and experience, and how businesses and policies both shape and respond to these, little is known of the same dynamics and practices regarding people with impairments. This book addresses this need by revealing the perspectives, interactions and experiences of disabled customers and their interaction with policy and business. It will be required reading for all scholars and students of disability studies, sociology, marketing and customer relations.
Affirmative Action and the Law analyses the practical application of affirmative action measures and their efficacy in achieving substantive equality through the lenses of the United Nations human rights machinery and the legal regime and policies implemented in China, India, Central and South America, South Africa and the United Kingdom. The product of a joint research project involving academics from the Brazil, Chile, Mexico, India, Spain and the United Kingdom, the findings identify and reflect on trends emerging from State practice across the world in eradicating structural inequality through special measures for certain designated groups. The book seeks to provide a coherent and systematic approach to the analysis of special measures in the targeted countries. It also comprises two case-studies with in-depth insights on gender diversity on the boards of public listed companies in the UK and the European Union and the access of persons with disabilities to higher education in Brazil. The book will be a valuable resource for students and academics in the field of human rights, law, sociology and politics. It will also provide a source of good practice for states and policy makers in the framing of responses to increased inequality at national and international level; and for civil society actors seeking to explore meaningful interaction with a highly controversial topic in society. |
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