What happens when a group traditionally defined as lacking the necessary capacities of citizenship is targeted by government programs that have made 'citizenship inclusion' their main goal? Combining theoretical perspectives of political philosophy, social theory, and disability studies, this book untangles the current state of Western intellectual disability politics following the replacement of state institutionalisation by independent and supported living, individual rights, and self-determination. Taking its cue from Foucault's conception of 'biopolitics', denoting the government of the individuals and the totality of the population, its overarching argument is that the ambiguous positioning of people with intellectual disabilities with respect to the ideals of citizenship results in a regime of government that simultaneously includes and excludes people of this group. On the one hand, its members are projected to become ideal-citizens via the cultivation of citizenship capacities. On the other, the right to live independently and by their own choices is curtailed as soon as they are seen as failing with respect to the ideals of reason and rationality. Therefore, coercion, restraints, and paternalism, which were all supposed to end with deinstitutionalisation, are still ingrained in services targeting the group. In equal parts a theoretical work, advancing debates of critical disability theory, social theory, and post-structural philosophy, as well as an empirical engagement with the history of intellectual disability politics and the ways in which present day politics target the group, this book will be of interest to all students and scholars of disability studies, disability politics, and political theory.

This book focuses on two areas of substantial and growing importance to the human development and capability approach: health and disability. The research on disability, health and the capability approach has been diverse in the topics it covers, and the conceptual frameworks and methodologies it uses, beginning over a decade and a half ago in health and more than a decade ago in disability. This book shares a set of contributions in these two areas: the first set of chapters focusing on disability; and the second set focusing on health and the health capability paradigm (HCP), in particular. This book was originally published as a special issue of the Journal of Human Development and Capabilities.

Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.

Children's Understanding of Disability is a valuable addition to the debate surrounding the integration of children with special needs into ordinary schools. Taking the viewpoint of the children themselves, it explores how pupils with severe learning difficulties and their non-disabled classmates interact.
Ann Lewis examines what happens when non-disabled children and pupils with severe learning difficulties work together regularly over the course of a year. She also includes the views of children working in segregated special education. From her findings, she draws implications for developing an inclusive ethos in schools and other communities.

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Increasingly, planners and practitioners are considering setting up a greater level of preventive mental health care at a local level. "Preventing Mental Illness in Practice" aims to inform their decisions by describing characteristics of "good practice", and identifying a number of promising approaches which are described in some detail. The review represents the second stage of a prevention research project set up by MIND (National Association for Mental Health). The criteria used for identifying good practice are that the project: is targetted towards people known to be at high resk of mental illness; makes maximum use of existing natural, voluntary of community support networks; and supports people in a way that enhances their capacity to control their own life circumstances. The projects selected cover the life stages - from pregnancy and early childhood to old age. They are discussed in the context of relevant research findings which give the rationale for the approach. Ten different projects or services are described: what is provided, how the target group is engaged, the resources required, management problems, and evidence of effectiveness.

This book examines new developments in provisions for people with learning disabilities. It establishes the current network of services as a base and reduces aspects of the NHS, Community Care Act (1990) and Disabled Persons Act (1986) to terminology accessible to professionals and others engaged in this area. Building on "Services for the Mentally Handicapped in Britain" (Malin, Race and Jones, 1980), it includes additional chapters such as advocacy/empowerment and recreation and leisure. Other parts of the book consider in more detail concepts engendered in the new legislation: care-management and assessment, quality and inspection, and inter-agency planning. The book aims to provide a broad review of material based on research and local developments in deinstitutionalization and community care, residential, day care, voluntary and educational services. It should be of interest to students and professional staff in psychology, teaching, medicine, nursing, social work and the voluntary sector concerned with people with learning disabilities.

Disability: The Basics is an engaging and accessible introduction to disability which explores the broad historical, social, environmental, economic and legal factors which affect the experiences of those living with an impairment or illness in contemporary society. The book explores key introductory topics including: the diversity of the disability experience; disability rights and advocacy; ways in which disabled people have been treated throughout history and in different parts of the world; the daily realities of living with an impairment or illness; health, education, employment and other services that exist to support and include disabled people; ethical issues at the beginning and end of life. Disability: The Basics aims to provide readers with an understanding of the lived experiences of disabled people and highlight the continuing gaps and barriers in social responses to the challenge of disability. This book is suitable for lay people, students of disability studies as well as students taking a disability module as part of a wider course within social work, health care, sociology, nursing, policy and media studies.

In the decades following the collapse of state socialism at the end of 1980s, disabled people in Central and Eastern Europe endured economic marginalisation, cultural devaluation and political disempowerment. Some of the mechanisms producing these injustices were inherited from state socialism, while others emerged with postsocialist neoliberalisation. State socialism promised social security guaranteed by the public, and postsocialist neoliberalisation promised independent living underpinned by the market. This book argues that both promises failed as far as disabled people were concerned, drawing on a wide range of scholarly reports and analyses, policy documents, legislation, and historical accounts, as well as on disability studies and social justice theory. Besides differences, the book also illuminates continuities between state socialism and postsocialist capitalism, providing on this basis a more general and historically grounded critique of contemporary neoliberalisation and its impact on individual and collective life. The book will appeal to anyone interested in disability studies and postsocialism, as well as social policy, social movements and critical theory. It will also be of interest to professionals involved in disability-related service provision, as well as to disability activists and policy makers.

The United States is engaged in a critically important and contentious debate on how to overhaul the way it delivers and pays for long-term care. Most families that are confronted with caring for a disabled elderly relative are often guaranteed financial catastrophe. The authors of this book examine a wide range of financing approaches to reforming long-term care and the impacts they would have over the next twenty-five years. The central issues in the debate about reforming long-term care concerns the relative roles of the public and private sectors. The authors urge that private insurance be encouraged and predict it will grow. Nevertheless, they conclude, private insurance will probably play only a modest role in financing nursing home and at-home care. For that reason, careful attention must also be given to reforming public programs. They recommend a strategy that includes expanded social insurance covering more at-home care and some limited nursing home coverage, the liberalization of Medicaid eligibility requirements so that complete impoverishment is not required before benefits are given, and an enhanced role for private insurance to provide asset protection to the upper-middle- income and wealthy elderly. The authors examine the cost of public and private initiatives and who would pay for them. Their answers emerge from a large computer simulation model that the authors developed. This book is accessible to non-specialists and is essential reading for anyone interested in the future of American health care.

Scholars have long recognized the media's role in shaping and reflecting the way we see the world, ourselves, and others. In particular, they have understood that the media plays a vital part in the social and cultural construction of disability. Moreover, as new types of media proliferate, and become increasingly important in our daily lives, addressing the sometimes difficult questions surrounding the relationship between disability and the media is more important than ever. In particular, what is the media's role in the disablement of people with impairments and can it also act as a powerful agent of change? And how are attitudes towards people with disabilities constantly reinscribed through media such as television, film, and the Internet? Now, this new four-volume collection from Routledge's acclaimed Critical Concepts in Media and Cultural Studies series enables users readily to access and make sense of the essential texts of disability-and-media scholarship. The collection is organized into four principal parts: Disability and the Mass Media; Disability and Film; Disability and Popular Culture; and Disability, the Internet, and New Media. Fully indexed and with an introduction newly written by the editors, Disability and the Media is an indispensable reference resource for researchers and students.

This book addresses the impact of genetic deafness/hearing impairment on people' s lives and those around them. It includes the perspectives of those who are deaf or hard of hearing as well as those working in the field. Professional topics include genetic counselling, social science, psychology, social work and - within medicine - audiological and ENT medical and audiological paediatrics. These practitioners are both hearing and hearing impaired.

The impact of deafness on children, those of working age and elderly people is discussed highlighting the specific effect of genetic factors. In particular there are chapters on deafblindness and otosclerosis and NF2 (a potentially lethal condition). The Who definitions and ICF are used as a framework for considering the effect on people' s lives of impairment and their participation in society.

This provides a bridge between the medical and social models of disability. Contributors write from both their professional and personal experience in order to try and address some of the issues raised by the real impact of genetic deafness on everyday life and how these can best be tackled by those working in the field.

The study of disability has traditionally been influenced mainly by medical and psychological models. The aim of this new text, Disability and Society, is to open up the debate by introducing alternative perspectives reflecting the increasing sociological interest in this important topic.Disability and Society brings together for the first time some of the most recent original research in this rapidly expanding area. The contributors, both disabled and non-disabled, are all leading thinkers in their field and suggest new ways of understanding disability, developing policy and challenging current practice.

Children's Understanding of Disability is a valuable addition to the debate surrounding the integration of children with special needs into ordinary schools. Taking the viewpoint of the children themselves, it explores how pupils with severe learning difficulties and their non-disabled classmates interact. Ann Lewis examines what happens when non-disabled children and pupils with severe learning difficulties work together regularly over the course of a year. She also includes the views of children working in segregated special education. From her findings, she draws implications for developing an inclusive ethos in schools and other communities.

Publicity about neuroscientific research into the dementias spreads quickly compared to the advances made in the field of care-giving. In the absence of cures or treatments for dementia, improving the individual's experience of care and stimulating their capacity for happiness is a more realistic goal than improved cognition. In this comprehensive collection of contributions from America, Australia, Britain and other European countries, the reader can find up-to-date and practical information on research and the latest approaches to care-giving from a multidisciplinary and multiprofessional perspective.

The life of Bruce Frederick Cummings, who wrote under the name of W. N. P. Barbellion, was short, tragically curtailed by multiple sclerosis. He was born in 1889 and died in 1919. Started when he was thirteen, this remarkable journal, described by Ronald Blythe as 'among the most moving diaries ever created', documents the rest of his life. Filled with devastating frankness, keen observation and a sort of stoicism, it is, in the words of the author 'a study in the nude'. One of the last entries can act as his epitaph: 'I am only twenty-eight, but I have telescoped into those few years a tolerably long life: I have loved and married, and have a family; I have wept and enjoyed, struggled and overcome, and when the hour comes I shall be content to die'.

'Some years ago I read the phrase "the spontaneous revulsion to the deformed". The phrase seemed to be both potent and provocative: Was there a spontaneous revulsion to disabilities in children or did such conditions evoke a more compassionate response?' Originally published in 1978, the problems of the disabled were no longer confined to the medical and educational professionals, but had become the concern of the community as a whole. Using terminology very much of the time, the author shows how attitudes towards different kinds of disability had developed at the time; they varied both regionally and by social class, sometimes calling into question the accepted 'facts' about the distribution of a particular condition. Most importantly, the author examines these attitudes together with many other social and psychological factors in relation to their impact on the social behaviour and developing self-image of the disabled child. It becomes clear that the dangers of categorization and the difficulties in overcoming stigma have a profound influence on the education and socialization of disabled children. This book will be of historical interest to students and teachers of psychology, education, social work and rehabilitation; and it will provide insight for parents and all those concerned with the care and development of the disabled child about how far we have come.

First published in 1973, this book considers the differences between mainstream schools and special educational needs schools, for children with learning disabilities. It contains a wealth of research data, case history material and reference to existing literature, designed to answer many questions which parents, heads, and schoolteachers have asked. Questions considered include whether children with disabilities do as well in ordinary schools as children without, whether they are as happy and well adjusted, and how they fit into the social structure of the class. The book also looks at whether much teasing occurs and how practical difficulties can be overcome.

First published in 1987, this book focuses on childhood disability within the family. It examines the very nature of disability itself, as well as many of the fundamental elements of families. The book was written at a time when the meaning level of disability and its effect on family and society were rapidly changing and people with disabilities were starting to benefit from opportunities to compensate for whatever disabilities they may have had. Modern technology and an affluent society afforded advantages to support many of its disabled members. Contributors examine the contemporary context of disability, the cost of disability to families, ethical, philosophical and social issues underlying the treatment and rehabilitation of children with severe disabilities, and the role of professionals, amongst other topics. This book will be of interest to those involved in teaching, research and direct care with families who have children with disabilities. Although written in the late 80s, the work discusses subjects that are still vital today.

First published in 1975, this book looks at the place of children with handicaps in society, at that time. It argues that in the thirty years previous, a great deal of progress was made in the field of rehabilitation but that the separation between handicapped people and the community was still a challenge. A strong range of contributors discuss approaches to the problem focusing on education, employment, and daily life. Topics covered include the social aspects of integration, through the problems of the multiple-handicapped child, to a survey of disabled students at universities and polytechnics in Great Britain.

First published in 1986, this book reviews research on the role parents play in fostering the early development of children with mental handicaps. Professionals and parents must work together to give such children the chance of living as ordinary lives as possible and here, the author develops a broadly-based conceptual framework for the involvement of parents as teachers of their young handicapped children. McConachie identifies characteristics of parents which seem of particular relevance to the design and success of intervention programmes. Although written in the 1980s, this book discusses topics that are still important today.

First published in 1984, this book focuses on the support and reassurance needed by parents of children with handicaps. It provides a practical guide in relation to daily care and is equally as relevant to professionals, therapists, teachers, doctors and psychologists who must advise parents. Written by an Occupational Therapist, the book highlights the need to make such children as independent as possible and gives advice on care of a special baby, modifications to the home environment, the needs of a child with a physical handicap, problems of educational handicap, and the place of a child in the family and community.

Len Barton's intellectual and practical contribution to the sociology of disability and education is highly significant and widely known. The leading scholars in this collection, including his long term collaborators, offer both a celebration and a reassessment of this contribution, addressing the challenge that the social model of disability has presented to dominant medicalised concepts, categories and practices, and their power to define the identity and the lives of others. At the same time the authors build upon some of the key themes that are woven through Len Barton's work, such as his call for a 'politics of hope'. This collection explores a wide range of topics, including: difference as a field of political struggle the relationship of disability studies, disabled people and their struggle for inclusion radical activism: organic intellectuals and the disability movement discrimination, exclusion and effective change inclusive education the 'politics of hope', resilience and transformative actions universal pedagogy, human rights and citizenship debates. The Sociology of Disability and Inclusive Education highlights Len Barton's humane vision of academic work, of the nature of an inclusive and non-discriminatory society, of the role of an education system which addresses the rights, and potential of all participants. It indicates how such a society could be achieved through the principles of social inclusion, human rights, equity and social justice. This book was originally published as a special issue of the British Journal of Sociology of Education.

A third of poor people are disabled in the developing world. How much do we know about their livelihood with hard data? Are they entirely powerless and dependent on family members? How do they earn income? These questions have become more important than ever, now that persons with disabilities (PWDs) in developing countries have awakened to rights and entitlements and that the international community started considering the incorporation of disability into the context of poverty reduction. This book highlights opportunities and challenges faced by PWDs in the developing countries. This book also illustrates the analyses with a case study which was conducted in the Philippines and this case study has made a good progress in legislation for PWDs. A field survey was jointly conducted by the Institute of Developing Economies, Japan, and the Philippine Institute for Development Studies in Metro Manila, the capital city of the Philippines, in 2008. Around 400 PWDs were interviewed, and the data was investigated with econometrics. The book highlights a remarkable disparity in earnings and education among PWDs. The book also examines the positive role of organizations such as Disabled People's Organizations and how empowerment of PWDs is made through dissemination of useful information such as programs given by the central and local governments. The book concludes that all measures, i.e. education, training, DPOs and institutional preferences, must be mobilized harmoniously to boost the livelihood of PWDs sinking in the bottom stratum in income.

In the past the therapy professions concentrated on developing their practice base while social scientists examined the relationships between the practioners and the field of medicine. Neither fully recognized the importance of organisation and management in making the most of scarce and valuable resources. This book calls for a more positive response to the new 'public welfare markets' which are emerging in the UK and elsewhere. Effective organisation and management are essential if the therapy professionals are to secure their futures and ensure effective service delivery.

Disability, Space, Architecture: A Reader takes a groundbreaking approach to exploring the interconnections between disability, architecture and cities. The contributions come from architecture, geography, anthropology, health studies, English language and literature, rhetoric and composition, art history, disability studies and disability arts and cover personal, theoretical and innovative ideas and work. Richer approaches to disability - beyond regulation and design guidance - remain fragmented and difficult to find for architectural and built environment students, educators and professionals. By bringing together in one place some seminal texts and projects, as well as newly commissioned writings, readers can engage with disability in unexpected and exciting ways that can vibrantly inform their understandings of architecture and urban design. Most crucially, Disability, Space, Architecture: A Reader opens up not just disability but also ability - dis/ability - as a means of refusing the normalisation of only particular kinds of bodies in the design of built space. It reveals how our everyday social attitudes and practices about people, objects and spaces can be better understood through the lens of disability, and it suggests how thinking differently about dis/ability can enable innovative and new kinds of critical and creative architectural and urban design education and practice.