In medieval Europe, the much larger Christian population regarded Jews as their inferiors, but how did both Christians and Jews feel about those who were marginalised within the Ashkenazi Jewish community? In On the Margins of a Minority: Leprosy, Madness, and Disability among the Jews of Medieval Europe, author Ephraim Shoham-Steiner explores the life and plight of three of these groups. Shoham-Steiner draws on a wide variety of late-tenth- to fifteenth-century material from both internal (Jewish) as well as external (non-Jewish) sources to reconstruct social attitudes toward these "others," including lepers, madmen and the physically impaired. Shoham-Steiner considers how the outsiders were treated by their respective communities, while also maintaining a delicate balance with the surrounding non-Jewish community. On the Margins of a Minority is structured in three pairs of chapters addressing each of these three marginal groups. The first pair deals with the moral attitude toward leprosy and its sufferers; the second with the manifestations of madness and its causes as seen by medieval men and women, and the effect these signs had on the treatment of the insane; the third with impaired and disabled individuals, including those with limited mobility, manual dysfunction, deafness and blindness. Shoham-Steiner also addresses questions of the religious meaning of impairment in light of religious conceptions of the ideal body. He concludes with a bibliography of sources and studies that informed the research, including useful midrashic, exegetical, homiletic, ethical and guidance literature and texts from responsa and halakhic rulings. Understanding and exploring attitudes toward groups and individuals considered "other" by mainstream society provides us with information about marginalised groups, as well as the inner social mechanisms at work in a larger society. On the Margins of a Minority will appeal to scholars of Jewish medieval history as well as readers interested in the growing field of disability studies.

The United Nations Convention on the Rights of Persons with Disabilities is the only UN treaty to date in which the people who are its target, that is disabled people, were actively involved in its drafting and the only one which requires the active participation of disabled people in its implementation. This does not, of course, automatically guarantee the direct participation of all disabled people. This is especially so for children with disabilities, whose status as legal minors may inhibit them from participating in decisions affecting their lives. This book focuses on the participation rights of the disabled child with regard to health, education, homelife and relationships, highlighting ways in which these rights are safeguarded and promoted throughout the EU, as well as exploring the factors that put these rights at risk. Finally, this groundbreaking text analyses whether disabled children's needs for assistance in order to realise their participation rights results in fewer opportunities to participate or in an increase in support in order for them to be able to do so.

In Undoing Suicidism, Alexandre Baril argues that suicidal people are oppressed by what he calls structural suicidism, a hidden oppression that, until now, has been unnamed and under-theorized. Each year, suicidism and its preventionist script and strategies reproduce violence and cause additional harm and death among suicidal people through forms of criminalization, incarceration, discrimination, stigmatization, and pathologization. This is particularly true for marginalized groups experiencing multiple oppressions, including queer, trans, disabled, or Mad people. Undoing Suicidism questions the belief that the best way to help suicidal people is through the logic of prevention. Alexandre Baril presents the thought-provoking argument that supporting assisted suicide for suicidal people could better prevent unnecessary deaths. Offering a new queercrip model of (assisted) suicide, he invites us to imagine what could happen if we started thinking about (assisted) suicide from an anti-suicidist and intersectional framework. Baril provides a radical reconceptualization of (assisted) suicide and invaluable reflections for academics, activists, practitioners, and policymakers.

Disabled Futures makes an important intervention in disability studies by taking an intersectional approach to race, gender, and disability. Milo Obourn reads disability studies, gender and sexuality studies, and critical race studies to develop a framework for addressing inequity. They theorize the concept of "racialized disgender"-to describe the ways in which racialization and gendering are social processes with disabling effects-thereby offering a new avenue for understanding race, gender, and disability as mutually constitutive. Obourn uses readings of literature and popular culture from Lost and Avatar to Octavia Butler's Xenogenesis trilogy to explore and unpack specific ways that race and gender construct-and are constructed by-historical notions of ability and disability, sickness and health, and successful recovery versus damaged lives. What emerges is not only a more complex and deeper understanding of the intersections between ableism, racism, and (cis)sexism, but also possibilities for imagining alternate and more radically inclusive futures in which all of our identities, experiences, freedoms, and oppressions are understood as interdependent and intertwined.

This volume of "Research in Social Science and Disability" brings together interdisciplinary scholarship to examine a wide array of issues related to disability and community, a topic of critical importance academically and politically. The evolving and politically contested notions of community sit at the centre of much of the recent research on disability and, as researchers both create and reflect various ideas of membership when defining "disability" and aggregating individuals, their methodological decisions have significant implications for how we come to understand disability and community. This volume also examines a wide range of social institutions and practices such as education, employment, and cultural venues and the extent to which and how they include people with disabilities in the workings of these institutions. It includes research framed by a variety of theoretical perspectives and research methodologies and offers innovative ways to envision inclusive communities and, therefore, enables us to consider how to move forward to create them.

'Disability on Equal Terms is not a Turgid and difficult book despite its accent on complex and challenging themes. It is a lively and important read' - The Skill Journal, June 2009 `[A] collection of highly readable and scholarly essays that reflect both the theoretical and practical implications of recent developments in the field. This book is essential reading for everyone interested in disability: highly recommended' - Colin Barnes, Centre for Disability Studies, University of Leeds This authoritative collection of writings examines and challenges traditional notions of disability. Edited and written by leading experts in the field, it offers a multidisciplinary approach to disability studies, incorporating perspectives from a wide range of health and social care services, as well as a distinct and unique emphasis on the views, experiences, work and personal testimonies of disabled people themselves. The book is divided into three sections, each of which is prefaced by an editorial introduction which brings together the key themes and issues under discussion. Each section: " Examines the dominant assumptions about disability and impairment and their historical and cultural contexts " Documents the challenges to such presumptions generated by disabled people themselves " Explores the implications of such challenges for professional policy and practice This ground-breaking book will be essential reading for those studying disability studies, social work, nursing, and allied health and social care at all levels. It will also be a thought-provoking and inspiring read for disabled people and activists, professionals and policy makers. John Swain is based in the School of Health, Community and Education Studies at Northumbria Univeristy. Sally French is based at the Open Univeristy. Previous publications include the co-edited Disabling Barriers, Enabling Environments, Second Edition (SAGE, 2004).

Disability is often described in a way that suggests that it is a permanent and relatively stable state. Even when it is described as being socially constructed, the implication is that impairment leads to a permanent status of being 'disabled'. This volume argues that the relationship between impairment (physical state) and disability is neither fixed nor permanent but is fluid and not easily predicted. Furthermore, if this is true, we need to rethink how we are measuring disability. This volume attempts to reconceptualize disability not as static but a dynamic phenomenon which is related to social, cultural and historical contexts. It is part of the new social science emphasis on fluidity rather than stasis. The papers in the volume examine disability at all levels. Several look at micro-level interactional processes which shape physical conditions into disabilities or impairments into normality, some look at cultural differences over time in what constitutes disability and some look at how social processes and institutions create or deny the status of disability. The papers support the conceptualization of the fluidity of disability and have implications for its measurement.

This textbook brings together a wide range of expert voices from the field of disability studies and the disabled people's movement to tackle the essential topics relevant to this area of study. From the outset disability is discussed from a social model perspective, demonstrating how future practice and discourse could break down barriers and lead to more equal relationships for disabled people in everyday life.

An interdisciplinary and broad-ranging text, the book includes 50 chapters on topics relevant across health and social care. Reflective questions and suggestions for further reading throughout will help readers gain a critical appreciation of the subject and expand their knowledge.

This will be valuable reading for students and professionals across disability studies, health, nursing, social work, social care, social policy and sociology.

The mapping, control and subjugation of the human body and mind were core features of the colonial conquest. This book draws together a rich collection of diverse, yet rigorous, papers that aim to expose the presence and significance of disability within colonialism, and how disability remains present in the establishment, maintenance and continuation of colonial structures of power. Disability as a site of historical analysis has become critically important to understanding colonial relations of power and the ways in which gender and identity are defined through colonial categorisations of the body. Thus, there is a growing prominence of disability within the historical literature. Yet, there are few international anthologies that traverse a critical level of depth on the subject domain. This book fills a critical gap in the historical literature and is likely to become a core reader for post graduate studies within disability studies, postcolonial studies and more broadly across the humanities. The chapters in this book were originally published as articles in Social Identities: Journal for the Study of Race, Nation and Culture.

Disability and Contemporary Performance presents a remarkable challenge to existing assumptions about disability and artistic practice. In particular, it explores where cultural knowledge about disability leaves off, and the lived experience of difference begins. Petra Kuppers, herself an award-winning artist and theorist, investigates the ways in which disabled performers challenge, change and work with current stereotypes through their work. She explores freak show fantasies and 'medical theatre' as well as live art, webwork, theatre, dance, photography and installations, to cast an entirely new light on contemporary identity politics and aesthetics.
This is an outstanding exploration of some of the most pressing issues in performance, cultural and disability studies today, written by a leading practitioner and critic.

Whose lives count as fully human? The answer matters for everyone, disabled or not. The ancient Greek ideal linked physical wholeness to moral wholeness - the virtuous citizen was "beautiful and good." It's an ideal that has all too often turned deadly, casting those who do not measure up as less than human. In the pre-Christian era, infants with disabilities were left on the rocks; in modern times, they have been targeted by eugenics. Much has changed, thanks to the tenacious advocacy of the disability rights movement. Yesteryear's hellish institutions have given way to customized educational programs and assisted living centers. Public spaces have been reconfigured to improve access. Therapies and medical technology have advanced rapidly in sophistication and effectiveness. Protections for people with disabilities have been enshrined in many countries' antidiscrimination laws. But these victories, impressive as they are, mask other realities that collide awkwardly with society's avowals of equality. Why are parents choosing to abort a baby likely to have a disability? Why does Belgian law allow for euthanasia in cases of disability, even absent a terminal diagnosis or physical pain? Why, when ventilators were in short supply during the first Covid wave, did some states list disability as a reason to deny care? On this theme: - Heonju Lee tells how his son with Down syndrome saved another child's life. - Molly McCully Brown and Victoria Reynolds Farmer recount their personal experiences with disability. - Amy Julia Becker says meritocracies fail because they value the wrong things. - Maureen Swinger asks six mothers around the world about raising a child with disabilities. - Joe Keiderling documents the unfinished struggle for disability rights. - Isaac T. Soon wonders if Saint Paul's "thorn in the flesh" was a disability. - Leah Libresco Sargeant reviews What Can a Body Do? and Making Disability Modern. - Sarah C. Williams says testing for fetal abnormalities is not a neutral practice. Also in the issue: - Ross Douthat is brought low by intractable Lyme disease. - Edwidge Danticat flees an active shooter in a packed mall. - Eugene Vodolazkin finds comic relief at funerals, including his own father's. - Kelsey Osgood discovers that being an Orthodox Jew is strange, even in Brooklyn. - Christian Wiman pens three new poems. - Susannah Black profiles Flannery O'Conner. - Our writers review Eyal Press's Dirty Work, Steve Coll's Directorate S, and Millennial Nuns by the Daughters of Saint Paul. Plough Quarterly features stories, ideas, and culture for people eager to apply their faith to the challenges we face. Each issue includes in-depth articles, interviews, poetry, book reviews, and art.

Isabella Bertmann investigates the connection between disability, poverty, and quality of life, and how social protection measures can influence this relationship. The focus of this study is on South Africa. On the basis of qualitative interviews conducted with individuals affected as well as with local disability and social policy professionals, the author provides enlightening insights into the contemporary discourse on inclusive social protection systems. By combining theoretical considerations on well-being and quality of life (based on the Capability Approach) with her empirical data, she opens new perspectives on the multidimensionality of poverty, social inclusion, and self-determined living.

This introductory text defines and describes disability, while providing concrete practice guidelines and recommendations for students in the fields of counseling, social work, and the helping professions. Various specialty areas are explored in detail, including marriage and family counseling, adolescent counseling, addictions counseling, LGBTQ concerns, multicultural counseling, and career counseling. The first three chapters lay the foundations by discussing the demand for counseling services by individuals with all types of disabilities; presenting clinical, legal, medical/biological, and personal definitions of disability; and describing physical, cognitive, and psychiatric disabilities. Next, author Julie Smart examines core beliefs about disability using a range of first-person accounts from experienced counselors. The last six chapters focus on practice guidelines for various aspects of disability-including ethical considerations, societal issues, social role demands, and individual responses-and consider new possibilities for disability counseling professions. With rich case studies woven throughout, as well as valuable information on client needs, disability categorizations, and key Models of Disability, this essential textbook will be useful not only to counseling students but also to professional counselors, social workers, and psychologists.

Demands for excellence and efficiency have created an ableist culture in academia. What impact do these expectations have on disabled, chronically ill and neurodivergent colleagues? This important and eye-opening collection explores ableism in academia from the viewpoint of academics' personal and professional experiences and scholarship. Through the theoretical lenses of autobiography, autoethnography, embodiment, body work and emotional labour, contributors from the UK, Canada and the US present insightful, critical, analytical and rigorous explorations of being 'othered' in academia. Deeply embedded in personal experiences, this perceptive book provides examples for universities to develop inclusive practices, accessible working and learning conditions and a less ableist environment.

A political biography that reveals new sides to Helen Keller Several decades after her death in 1968, Helen Keller remains one of the most widely recognized women of the twentieth century. But the fascinating story of her vivid political life-particularly her interest in radicalism and anti-capitalist activism-has been largely overwhelmed by the sentimentalized story of her as a young deaf-blind girl. Keller had many lives indeed. Best known for her advocacy on behalf of the blind, she was also a member of the socialist party, an advocate of women's suffrage, a defender of the radical International Workers of the World, and a supporter of birth control-and she served as one of the nation's most effective but unofficial international ambassadors. In spite of all her political work, though, Keller rarely explored the political dimensions of disability, adopting beliefs that were often seen as conservative, patronizing, and occasionally repugnant. Under the wing of Alexander Graham Bell, a controversial figure in the deaf community who promoted lip-reading over sign language, Keller became a proponent of oralism, thereby alienating herself from others in the deaf community who believed that a rich deaf culture was possible through sign language. But only by distancing herself from the deaf community was she able to maintain a public image as a one-of-a-kind miracle. Using analytic tools and new sources, Kim E. Nielsen's political biography of Helen Keller has many lives, teasing out the motivations for and implications of her political and personal revolutions to reveal a more complex and intriguing woman than the Helen Keller we thought we knew.

This edited collection offers a nontraditional approach to diversity management, going beyond gender, race, and ethnicity. Examining ageism, disability, and spirituality, the book provides a discussion of different D&I applications and introduces a framework consisting of a diagnostic phase, gap analysis, and an action plan, which can be modified to attend to specific needs of organizations. Researchers and practitioners will learn a viable way to address diversity in global organizations.

As a mainstay of modern life, the media industry disseminates information about disability on a global scale. However, media outlets do not always contribute accurate and positive depictions of disability in print and on the screen. Since previous representations of disability have been incomplete, misguided, and unimaginative, our text encourages scholars and allies to refashion media so that it disrupts the status-quo and lends itself toward a more liberatory politics. Images from the media such as film, television, and social media are assessed using critical disabilities studies, media studies, cultural studies, and other interdisciplinary fields. Many of our authors suggest that media itself is a powerful force that can counter the stigma and misrepresentation that oppresses people with disabilities and perpetuates discrimination. Contributors explore new perspectives on disability including analyses of people with disabilities as producers, consumers, and product of media. Moreover, disability is expanded on through disability identity, culture, and intersections with other disciplines such as critical race theory, gender studies, and the other such viewpoints.

This edited collection is the result of the Voices of Individuals: Collectively Exploring Self-determination (VOICES) based at the Centre for Disability Law and Policy, National University of Ireland Galway. Focusing on the exercise of legal capacity under Article 12 of the UN Convention on the Rights of Persons with Disabilities, the stories of people with disabilities are combined with responses from scholars, activists and practitioners, addressing four key areas: criminal responsibility, contracts, consent to sex, and consent to medical treatment. Sustainable law and policy reforms are set out based on the storytellers' experiences, promoting a recognition of legal capacity and supported decision-making. The perspectives are from across a wide range of disciplines (including law, sociology, nursing, and history) and 13 countries. The volume is a valuable resource for researchers, academics and legislators, judges or policy makers in the area of legal capacity and disability. It is envisaged that the book will be particularly useful for those engaged in legal capacity law reform processes worldwide and that this grounded work will be of great interest to legislators and policy makers who must frame new laws on supported decision making in compliance with the UNCRPD.

Over the last few decades disability studies has emerged not only as a discipline in itself but also as a catalyst for cultural disability studies and Disability Studies in Education. In this book the three areas become united in a new field that recognises education as a discourse between tutors and students who explore representations of disability on the levels of everything from academic disciplines and knowledge to language and theory; from received understandings and social attitudes to narrative and characterisation. Moving from late nineteenth to early twenty-first-century representations, this book combines disability studies with aesthetics, film studies, Holocaust studies, gender studies, happiness studies, popular music studies, humour studies, and media studies. In so doing it encourages discussion around representations of disability in drama, novels, films, autobiography, short stories, music videos, sitcoms, and advertising campaigns. Discussions are underpinned by the tripartite model of disability and so disrupt one-dimensional representations. Cultural Disability Studies in Education encourages educators and students to engage with disability as an isolating, hurtful, and joyful experience that merits multiple levels of representation and offers true potential for a non-normative social aesthetic. It will be required reading for all scholars and students of disability studies, cultural disability studies, Disability Studies in Education, sociology, and cultural studies.

Hearing loss now strikes one in seven people but how to study the impact of hearing loss on relationships has continually baffled researchers. The authors' personal experience with profound hearing loss and her roles as wife, mother, social worker and counsellor, suggest that the complexities involved might be fruitfully explored by using an intensive and repetitive interviewing technique.

This book explores and analyses 150 in-depth interviews with hearing impaired people, including eleven couples in committed relationships where one partner is hearing and the other is hearing impaired. Detailed information was obtained about the way each couple managed conflict, decision making, household chores, communication, and perceived the hearing impairment within their relationship. Five major strands emerge: intimate family relationships, social support networks, communication strategies, the nature of care and recommendations for social policy. By drawing from the fields of family therapy, marital therapy, counselling, family sociology, social policy, psychology, social psychology and linguistics as well as disability and deafness, a new broader and more positive picture emerges.

This ground-breaking book is aimed at professionals who would like to work more effectively with deaf and hearing impaired people. Although not a 'How to Cope' book, it will also interest hearing impaired people themselves because of the enormous number of insights offered.

"To think of PDA as merely involving demand avoidance is to me akin to thinking of tigers as merely having stripes." This book is a unique window into adult Pathological Demand Avoidance (PDA), exploring the diversity of distinct PDA traits through the voices of over 70 people living with and affected by the condition. Sally Cat, an adult with PDA, has successfully captured the essence of a popular online support group in book form, making the valuable insights available to a wider audience, and creating a much-needed resource for individuals and professionals. Candid discussions cover issues ranging from overload and meltdowns, to work, relationships and parenting. This is a fascinating and sometimes very moving read.

Intersex and/as/is/with disability. The connections between intersex and disability deserve nuanced attention if we are to strengthen intersex human rights claims and understand the experiences of intersex people living with the disabling consequences of medical intervention. Cripping Intersex explores three key themes: the medical management of people with intersex characteristics; the mainstream fascination with sport sex-testing policies; and the eugenic implications of preimplantation genetic diagnosis. This necessary work offers radical new understandings of intersex-with-disability by investigating how intersex and interphobia intersect with disability and ableism, and pushes analyses of intersex experience further than feminist or queer theory can do alone.

The pressures, strains and sometimes joys of looking after a child with autism are increasingly recognized in professional and academic circles. This book presents key findings from a research study conducted by the Family Assessment Unit that involved many long discussions with the parents and siblings of children and young people with autism. The authors provide

• a unique approach dealing specifically with the needs of families
• informed interventions for helping the family units

The authors demonstrate how autism affects parents, siblings and carers. They provide case studies that examine their experiences as individuals and as family units over the life course of their son or daughter, brother or sister with autism. They identify various stressors from this study and an examination of previous research in this area. For example, families often face enormous stress in having the disorder diagnosed. There is also the complex stress associated with increasing social and behavioural difficulties, and guilt arising from others labelling the parents’ ‘mismanagement’ of the children. The authors examine the diagnostic process from the viewpoint of parents and primary carers and chart the developments that have taken place in research and practice with families. They develop strategies for supporting and empowering families to better assist their children with autism, including contingency management approaches. Supporting the Families of Children with Autism is a valuable resource for a wide range of professionals who work with autistic children and their families, including health visitors, specialist teachers, social workers and paediatricians. It will be of interest to educational psychologists and families of children with autism.