In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs' experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children's rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.

This ground-breaking book aims to take a new and innovative view on how disability and architecture might be connected. Rather than putting disability at the end of the design process, centred mainly on compliance, it sees disability - and ability - as creative starting points for the whole design process. It asks the intriguing question: can working from dis/ability actually generate an alternative kind of architectural avant-garde? To do this, Doing Disability Differently: explores how thinking about dis/ability opens up to critical and creative investigation our everyday social attitudes and practices about people, objects and space argues that design can help resist and transform underlying and unnoticed inequalities introduces architects to the emerging and important field of disability studies and considers what different kinds of design thinking and doing this can enable asks how designing for everyday life - in all its diversity - can be better embedded within contemporary architecture as a discipline offers examples of what doing disability differently can mean for architectural theory, education and professional practice aims to embed into architectural practice, attitudes and approaches that creatively and constructively refuse to perpetuate body 'norms' or the resulting inequalities in access to, and support from, built space. Ultimately, this book suggests that re-addressing architecture and disability involves nothing less than re-thinking how to design for the everyday occupation of space more generally.

Kristin was thrown into a disability at the age of 14, and every day since then has been a struggle to overcome it. She has fought through the unavoidable physical stresses of her condition for over a decade and, even more, the heavy psychological burdens that follow closely behind. Greater Things is a raw perspective on everything from how people react differently to her situation, to learning how to navigate in and through an inaccessible world, to just trying to make the best of a crummy situation.

Disability and the Posthuman is the first study to analyse cultural representations and deployments of disability as they interact with posthumanist theories of technology and embodiment. Working across a wide range of texts, many new to critical enquiry, in contemporary writing, film and cultural practice from North America, Europe, the Middle East and Japan, it covers a diverse range of topics, including: contemporary cultural theory and aesthetics; design, engineering and gender; the visualisation of prosthetic technologies in the representation of war and conflict; and depictions of work, time and sleep. While noting the potential limitations of posthumanist assessments of the technologized body, the study argues that there are exciting, productive possibilities and subversive potentials in the dialogue between disability and posthumanism as they generate dissident crossings of cultural spaces. Such intersections cover both fictional/imagined and material/grounded examples of disability and look to a future in which the development of technology and complex embodiment of disability presence align to produce sustainable yet radical creative and critical voices.

'Urgent, compelling and lyrically, luminously beautiful . . . a brilliant, heart-rending read.' Psychologies Magazine Brown constellates the subjects that define her inside and out: a disabled and conspicuous body, a religious conversion, a missing twin, a life in poetry. As she does, she depicts vividly for us not only her own life but a striking array of sites and topics, among them Mary Shelley's Frankenstein and the world's oldest anatomical theater, Eugenics, and Jerry Falwell's Liberty University. Throughout, Brown offers us the gift of her exquisite sentences, woven together in consideration, always, of what it means to be human: flawed, potent, feeling.

The book examines issues of disabilities in Nigeria focusing on attitudes and reactions to people with disabilities within the context of practices perpetuating the treatment of people with disabilities. It contributes to research in the field by advancing discussions on society's positive engagement with disabilities issues and remediation of negative treatment of people with disabilities. Some of the issues examined in the book include a brief history of discrimination against people with disabilities, beliefs regarding causes of disabilities in Africa and Nigeria, scientific perspectives on causes of disabilities, some cases of disabilities in Nigeria, reactions to disabilities, social implications of non-adaptability to the condition of people with disabilities, remediation for people with disabilities, legal instrument and rights of people with disabilities and protecting the rights of persons with disabilities. Primarily, issues in the book are examined from both a philosophical and social studies contexts, and both the authors of the book are respectively trained in these aspects and subject areas (Edwin Etieyibo in philosophy and Odirin Omiegbe in social studies).

'Disability on Equal Terms is not a Turgid and difficult book despite its accent on complex and challenging themes. It is a lively and important read' - The Skill Journal, June 2009 `[A] collection of highly readable and scholarly essays that reflect both the theoretical and practical implications of recent developments in the field. This book is essential reading for everyone interested in disability: highly recommended' - Colin Barnes, Centre for Disability Studies, University of Leeds This authoritative collection of writings examines and challenges traditional notions of disability. Edited and written by leading experts in the field, it offers a multidisciplinary approach to disability studies, incorporating perspectives from a wide range of health and social care services, as well as a distinct and unique emphasis on the views, experiences, work and personal testimonies of disabled people themselves. The book is divided into three sections, each of which is prefaced by an editorial introduction which brings together the key themes and issues under discussion. Each section: " Examines the dominant assumptions about disability and impairment and their historical and cultural contexts " Documents the challenges to such presumptions generated by disabled people themselves " Explores the implications of such challenges for professional policy and practice This ground-breaking book will be essential reading for those studying disability studies, social work, nursing, and allied health and social care at all levels. It will also be a thought-provoking and inspiring read for disabled people and activists, professionals and policy makers. John Swain is based in the School of Health, Community and Education Studies at Northumbria Univeristy. Sally French is based at the Open Univeristy. Previous publications include the co-edited Disabling Barriers, Enabling Environments, Second Edition (SAGE, 2004).

This book uses the tools of analytic philosophy and close readings of medieval Christian philosophical and theological texts in order to survey what these thinkers said about what today we call 'disability.' The chapters also compare what these medieval authors say with modern and contemporary philosophers and theologians of disability. This dual approach enriches our understanding of the history of disability in medieval Christian philosophy and theology and opens up new avenues of research for contemporary scholars working on disability. The volume is divided into three parts. Part One addresses theoretical frameworks regarding disability, particularly on questions about the definition(s) of 'disability' and how disability relates to well-being. The chapters are then divided into two further parts in order to reflect ways that medieval philosophers and theologians theorized about disability. Part Two is on disability in this life, and Part Three is on disability in the afterlife. Taken as a whole, these chapters support two general observations. First, these philosophical theologians sometimes resist Greco-Roman ableist views by means of theological and philosophical anti-ableist arguments and counterexamples. Here we find some surprising disability-positive perspectives that are built into different accounts of a happy human life. We also find equal dignity of all human beings no matter ability or disability. Second, some of the seeds for modern and contemporary ableist views were developed in medieval Christian philosophy and theology, especially with regard to personhood and rationality, an intellectualist interpretation of the imago Dei, and the identification of human dignity with the use of reason. This volume surveys disability across a wide range of medieval Christian writers from the time of Augustine up to Francisco Suarez. It will be of interest to scholars and graduate students working in medieval philosophy and theology, or disability studies.

In medieval Europe, the much larger Christian population regarded Jews as their inferiors, but how did both Christians and Jews feel about those who were marginalised within the Ashkenazi Jewish community? In On the Margins of a Minority: Leprosy, Madness, and Disability among the Jews of Medieval Europe, author Ephraim Shoham-Steiner explores the life and plight of three of these groups. Shoham-Steiner draws on a wide variety of late-tenth- to fifteenth-century material from both internal (Jewish) as well as external (non-Jewish) sources to reconstruct social attitudes toward these "others," including lepers, madmen and the physically impaired. Shoham-Steiner considers how the outsiders were treated by their respective communities, while also maintaining a delicate balance with the surrounding non-Jewish community. On the Margins of a Minority is structured in three pairs of chapters addressing each of these three marginal groups. The first pair deals with the moral attitude toward leprosy and its sufferers; the second with the manifestations of madness and its causes as seen by medieval men and women, and the effect these signs had on the treatment of the insane; the third with impaired and disabled individuals, including those with limited mobility, manual dysfunction, deafness and blindness. Shoham-Steiner also addresses questions of the religious meaning of impairment in light of religious conceptions of the ideal body. He concludes with a bibliography of sources and studies that informed the research, including useful midrashic, exegetical, homiletic, ethical and guidance literature and texts from responsa and halakhic rulings. Understanding and exploring attitudes toward groups and individuals considered "other" by mainstream society provides us with information about marginalised groups, as well as the inner social mechanisms at work in a larger society. On the Margins of a Minority will appeal to scholars of Jewish medieval history as well as readers interested in the growing field of disability studies.

This volume of "Research in Social Science and Disability" brings together interdisciplinary scholarship to examine a wide array of issues related to disability and community, a topic of critical importance academically and politically. The evolving and politically contested notions of community sit at the centre of much of the recent research on disability and, as researchers both create and reflect various ideas of membership when defining "disability" and aggregating individuals, their methodological decisions have significant implications for how we come to understand disability and community. This volume also examines a wide range of social institutions and practices such as education, employment, and cultural venues and the extent to which and how they include people with disabilities in the workings of these institutions. It includes research framed by a variety of theoretical perspectives and research methodologies and offers innovative ways to envision inclusive communities and, therefore, enables us to consider how to move forward to create them.

An estimated one billion people around the globe live with a disability; this number grows exponentially when family members, friends, and care providers are included. Various countries and international organizations have attempted to guard against discrimination and secure basic human rights for those whose lives are affected by disability. Yet despite such attempts many disabled persons in the United States and throughout the world still face exclusion from full citizenship and membership in their respective societies. They are regularly denied employment, housing, health care, access to buildings, and the right to move freely in public spaces. At base, such discrimination reflects a tacit yet pervasive assumption that disabled persons do not belong in society. Civil Disabilities challenges such norms and practices, urging a reconceptualization of disability and citizenship to secure a rightful place for disabled persons in society. Essays from leading scholars in a diversity of fields offer critical perspectives on current citizenship studies, which still largely assume an ableist world. Placing historians in conversation with anthropologists, sociologists with literary critics, and musicologists with political scientists, this interdisciplinary volume presents a compelling case for reimagining citizenship that is more consistent, inclusive, and just, in both theory and practice. By placing disability front and center in academic and civic discourse, Civil Disabilities tests the very notion of citizenship and transforms our understanding of disability and belonging. Contributors: Emily Abel, Douglas C. Baynton, Susan Burch, Allison C. Carey, Faye Ginsburg, Nancy J. Hirschmann, Hannah Joyner, Catherine Kudlick, Beth Linker, Alex Lubet, Rayna Rapp, Susan Schweik, Tobin Siebers, Lorella Terzi.

With this illuminating resource, professionals can tap into the best, most current knowledge on helping adults with significant disabilities enjoy active, rewarding, and meaningful daytimes in their communities. Readers will get proven ideas for supporting adults as they find or create employment that fits their goals and desires, pursue their interests and hobbies, participate in postsecondary education, develop social relationships and community connections, explore opportunities for paid self-advocacy and systems change work, and maintain active and healthy lifestyles as they age. Detailed case studies from across the country combine with practical guidelines to show readers how to replicate success stories, and extensive discussion of organizational change helps facilitate the critical shift from facility-based to community-based services.

This book presents a 'Traveller's Guide' to Deaf Culture, starting from the premise that Deaf cultures have an important contribution to make to other academic disciplines, and human lives in general. Within and outside Deaf communities, there is a need for an account of the new concept of Deaf culture, which enables readers to assess its place alongside work on other minority cultures and multilingual discourses. The book aims to assess the concepts of culture, on their own terms and in their many guises and to apply these to Deaf communities. The author illustrates the pitfalls which have been created for those communities by the medical concept of 'deafness' and contrasts this with his new concept of "Deafhood", a process by which every Deaf child, family and adult implicitly explains their existence in the world to themselves and each other.

Employees with an Autism Spectrum Disorder (ASD) may be hugely beneficial to a workforce, but it can be difficult for individuals with no formal training to manage these employees successfully. This definitive guide will help managers and colleagues successfully interact with and support these professionals on the autism spectrum so as to ensure mutual success. Integrate Autism Employment Advisors use their experience advising employers on how to successfully employ professionals on the autism spectrum to identify the everyday challenges faced by employees with ASD in the workplace and sets out reasonable, practical solutions for their managers and colleagues. Barriers to productivity are highlighted, such as the sensory environment, miscommunication, and inadequate training of colleagues. Easy-to-implement strategies to adapt the working environment are provided, such as agreeing on non-verbal cues to signal ending a conversation or establishing parameters for appropriate email length. This book is an essential resource for anyone who works with professionals on the autism spectrum. It will allow them to engage with and support their colleagues on the autism spectrum in a respectful way and help them achieve a greater level of working success.

Women with disabilities face a double discrimination, both in terms of gender and also of their particular disability. For many women their most punishing disability is the attitude taken to them by society. This book examines the situation of women with various types of disability in the Middle Eastern context, and describes the evolution of Oxfam's perspective on working with disabled women. It provides a general overview of the concept of disability and includes several case studies from the Lebanon, Yemen, and the Occupied Palestinian Territories. Each chapter looks at specific aspects of the issue, and personal histories from disabled women and members of organizations for disabled people provide gripping testimony.

Social Work and Disability offers a contemporary and critical exploration of social work practice with people with physical and sensory impairments, an area that has previously been marginalized within both practice and academic literature. It explores how social work practice can, and indeed does, contribute to the promotion of disabled people s rights and the securing of positive outcomes in their lives. The book begins by exploring the ways in which disability is understood and how this informs policy and practice. Opening with a thought-provoking account of the lived experience of a disabled person using social work services, it goes on to critically analyse theory, policy and contemporary legislative change. Inequality, oppression and diversity are the focus of the second section of the book, while the remainder offers an in-depth exploration of the social work practice issues in disability settings, notably work with children, adults and safeguarding. Service-user and carer perspectives, case profiles, reflective activities and suggestions for further reading are included throughout. Social Work and Disability will be essential reading for social work students and practitioners. It will also be of interest to service users and carers, students on health and social care courses, third-sector practitioners and advocates.

This textbook brings together a wide range of expert voices from the field of disability studies and the disabled people's movement to tackle the essential topics relevant to this area of study. From the outset disability is discussed from a social model perspective, demonstrating how future practice and discourse could break down barriers and lead to more equal relationships for disabled people in everyday life.

An interdisciplinary and broad-ranging text, the book includes 50 chapters on topics relevant across health and social care. Reflective questions and suggestions for further reading throughout will help readers gain a critical appreciation of the subject and expand their knowledge.

This will be valuable reading for students and professionals across disability studies, health, nursing, social work, social care, social policy and sociology.

A Mismatch of Salience brings together a range of Damian Milton's writings that span more than a decade. The book explores the communication and understanding difficulties that can create barriers between people on the autism spectrum and neurotypical people. It celebrates diversity in communication styles and human experience by re framing the view that autistic people represent a `disordered other' not as an impairment, but a two-way mismatch of salience. It also looks at how our current knowledge has been created by non-autistic people on the `outside', looking in. A Mismatch of Salience attempts to redress this balance.

Disabled Futures makes an important intervention in disability studies by taking an intersectional approach to race, gender, and disability. Milo Obourn reads disability studies, gender and sexuality studies, and critical race studies to develop a framework for addressing inequity. They theorize the concept of "racialized disgender"-to describe the ways in which racialization and gendering are social processes with disabling effects-thereby offering a new avenue for understanding race, gender, and disability as mutually constitutive. Obourn uses readings of literature and popular culture from Lost and Avatar to Octavia Butler's Xenogenesis trilogy to explore and unpack specific ways that race and gender construct-and are constructed by-historical notions of ability and disability, sickness and health, and successful recovery versus damaged lives. What emerges is not only a more complex and deeper understanding of the intersections between ableism, racism, and (cis)sexism, but also possibilities for imagining alternate and more radically inclusive futures in which all of our identities, experiences, freedoms, and oppressions are understood as interdependent and intertwined.

A political biography that reveals new sides to Helen Keller Several decades after her death in 1968, Helen Keller remains one of the most widely recognized women of the twentieth century. But the fascinating story of her vivid political life-particularly her interest in radicalism and anti-capitalist activism-has been largely overwhelmed by the sentimentalized story of her as a young deaf-blind girl. Keller had many lives indeed. Best known for her advocacy on behalf of the blind, she was also a member of the socialist party, an advocate of women's suffrage, a defender of the radical International Workers of the World, and a supporter of birth control-and she served as one of the nation's most effective but unofficial international ambassadors. In spite of all her political work, though, Keller rarely explored the political dimensions of disability, adopting beliefs that were often seen as conservative, patronizing, and occasionally repugnant. Under the wing of Alexander Graham Bell, a controversial figure in the deaf community who promoted lip-reading over sign language, Keller became a proponent of oralism, thereby alienating herself from others in the deaf community who believed that a rich deaf culture was possible through sign language. But only by distancing herself from the deaf community was she able to maintain a public image as a one-of-a-kind miracle. Using analytic tools and new sources, Kim E. Nielsen's political biography of Helen Keller has many lives, teasing out the motivations for and implications of her political and personal revolutions to reveal a more complex and intriguing woman than the Helen Keller we thought we knew.

In Diminished Faculties Jonathan Sterne offers a sweeping cultural study and theorization of impairment. Drawing on his personal history with thyroid cancer and a paralyzed vocal cord, Sterne undertakes a political phenomenology of impairment in which experience is understood from the standpoint of a subject that is not fully able to account for itself. He conceives of impairment as a fundamental dimension of human experience, examining it as both political and physical. While some impairments are enshrined as normal in international standards, others are treated as causes or effects of illness or disability. Alongside his fractured account of experience, Sterne provides a tour of alternative vocal technologies and practices; a study of "normal" hearing loss as a cultural practice rather than a medical problem; and an intertwined history and phenomenology of fatigue that follows the concept as it careens from people to materials science to industrial management to spoons. Sterne demonstrates how impairment is a problem, opportunity, and occasion for approaching larger questions about disability, subjectivity, power, technology, and experience in new ways. Diminished Faculties ends with a practical user's guide to impairment theory.

This book explores the sex lives of women with disabilities in Nepal, showing that many women suffer more than men despite prevailing disability policies that emphasize nondiscrimination against people with disabilities. It also argues that far from general perceptions of women as asexual, women with disabilities are capable of leading highly creative and fulfilling sexual lives. Using critical sexual theory and postcolonial studies as critical frameworks, the book investigates the narratives of authors with disabilities, exploring policy gaps and the need for supportive gender and sexual policies through the words of those affected. In particular, the book analyzes five female Nepali authors with disabilities: Radhika Dahal, Jhamak Ghimire, Sabitri Karki, Parijaat, and Mira Sahi, demonstrating the need for supportive gender policies to address the emotional and psychological needs of women with disabilities. Overall, the book argues that disciplinary discourses in practice often consider sex or sexuality as taboo, barely recognizing women in the context of marriage and family, and therefore creating gaps between policies and marginalized narratives. This book provides important insights into sex and disability within the context of the Global South, and as such will be of interest not only to researchers working on Nepal but also to scholars across gender studies, disability studies, international development, and postcolonialism.

'Fascinating ... compelling ... very funny' Sunday Times 'A defiant call to arms ... affecting ... lingers long in the memory after its final page' Morning Star 'A skilful act of literary witness, sharp, moving and funny' Joanne Limburg 'Christoph Keller ... ranks among the great Swiss writers' Neue Zurcher Zeitung Most stories of disability follow a familiar pattern: Life Before Accident. Life After Accident. For Christoph Keller, it was different: his childhood diagnosis with a form of Spinal Muscular Atrophy only revealed what had been with him since birth. SMA III, the 'kindest one', allows those who have it to live a long life, and it progresses slowly. There is no cure. By the age of 25, he had to use a wheelchair some of the time. 'There were two of me: Walking Me. Rolling Me.' By 32, he could still walk into a restaurant with a cane or on somebody's arm. At 45, 'Rolling Me' took over altogether. Intimate, absurdist and winningly frank, Every Cripple a Superhero is at once a memoir of life with a progressive disorder, and a profound exploration of the challenges of loving, being loved, and living a public life - navigating restaurants, aeroplanes, museums and artists' retreats - in a world not designed for you. Threaded throughout are Keller's own photographs of the unexpected beauty found in puddle-filled 'curb cuts', the pavement ramps that, left to disintegrate, form part of the urban obstacle course. Those puddles become portals into a different, truer city; and, as they do, so this book - told with humour and immense grace - begins to uncover a truer world: one where the 'normal' is not normal, where disability is far more widespread than we might think, and where there always exist, just alongside our own, the lives of everyday superheroes.

Spread out over many years and many different publications, the late author and activist Marta Russell wrote a number of groundbreaking and insightful essays on the nature of disability and oppression under capitalism. In this volume, Russell's various essays are brought together in one place in order to provide a useful and expansive resource to those interested in better understanding the ways in which the modern phenomenon of disability is shaped by capitalist economic and social relations. The essays range in analysis from the theoretical to the topical, including but not limited to: the emergence of disability as a "human category" rooted in the rise of industrial capitalism and the transformation of the conditions of work, family, and society corresponding thereto; a critique of the shortcomings of a purely "civil rights approach" to addressing the persistence of disability oppression in the economic sphere, with a particular focus on the legacy of the Americans with Disabilities Act of 1990; an examination of the changing position of disabled people within the overall system of capitalist production utilizing the Marxist economic concepts of the reserve army of the unemployed, the labor theory of value, and the exploitation of wage-labor; the effects of neoliberal capitalist policies on the living conditions and social position of disabled people as it pertains to welfare, income assistance, health care, and other social security programs; imperialism and war as a factor in the further oppression and immiseration of disabled people within the United States and globally; and the need to build unity against the divisive tendencies which hide the common economic interest shared between disabled people and the often highly-exploited direct care workers who provide services to the former.