This book presents interdisciplinary scholarship on art and visual culture that explores disability in terms of lived experience. It will expand critical disability studies scholarship on representation and embodiment, which is theoretically rich, but lacking in attention to art. It is organized in five thematic parts: methodologies of access, agency, and ethics in cultural institutions; the politics and ethics of collaboration; embodied representations of artists with disabilities in the visual and performing arts; negotiating the outsider art label; and first-person reflections on disability and artmaking. This volume will be of interest to scholars who study disability studies, art history, art education, gender studies, museum studies, and visual culture.

Traditionally, the public health viewpoint on disability was geared toward primary prevention of disabling conditions or events. More recently, with the movement for disability rights and the emergence of disability studies, the challenge to the field has been to promote positive health outcomes in this underserved community. Such a change in public health culture must start at the educational level, yet training programs have generally been slow in integrating this perspective-with its potential for enriching the field-into their curricula. Public Health Perspectives on Disability meets this challenge with an educational framework for rethinking disability in public health study and practice, and for attaining the competencies that should accompany this knowledge. This reference balances history and epidemiology, scientific advances, advocacy and policy issues, real-world insights, and progressive recommendations, suiting it especially to disability-focused courses, or to add disability-related content to existing public health programs. Each chapter applies awareness and understanding of disabled persons' experience to one of the core curriculum areas, including: Health services administration, Environmental health science and occupational health, Health law and ethics, The school as physical setting, Maternal, child, and family health, Disasters and disability. In Public Health Perspectives on Disability, faculty, researchers, administrators, and students in graduate schools of public health throughout the U.S. will find a worthy classroom text and a robust source of welcome-and much needed-change.

Grouped around four central themes - illness and impairment, disabling processes, care and control, and communication and representations - this collection offers a fresh perspective on disability research, showing how theory and data can be brought together in new and exciting ways. Disability Research Today starts by showing how engaging with issues around illness and impairment is vital to a multidisciplinary understanding of disability as a social process. The second section explores factors that affect disabled people, such as homelessness, violence and unemployment. The third section turns to social care, and how disabled people are prevented from living with independence and dignity. Finally, the last section examines how different imagery and technology impacts our understandings of disability and deafness. Showcasing empirical work from a range of countries, including Japan, Norway, Italy, Australia, India, the UK, Turkey, Finland and Iceland, this collection shows how disability studies can be simultaneously sophisticated, accessible and policy-relevant. Disability Research Today is suitable for students and researchers in disability studies, sociology, social policy, social work, nursing and health studies.

Immigration history has largely focused on the restriction of immigrants by race and ethnicity, overlooking disability as a crucial factor in the crafting of the image of the "undesirable immigrant." Defectives in the Land, Douglas C. Baynton's groundbreaking new look at immigration and disability, aims to change this. In the late nineteenth and early twentieth centuries, Baynton explains, immigration restriction in the United States was primarily intended to keep people with disabilities-known as "defectives"-out of the country. The list of those included is long: the deaf, blind, epileptic, and mobility impaired; people with curved spines, hernias, flat or club feet, missing limbs, and short limbs; those unusually short or tall; people with intellectual or psychiatric disabilities; intersexuals; men of "poor physique" and men diagnosed with "feminism." Not only were disabled individuals excluded, but particular races and nationalities were also identified as undesirable based on their supposed susceptibility to mental, moral, and physical defects. In this transformative book, Baynton argues that early immigration laws were a cohesive whole-a decades-long effort to find an effective method of excluding people considered to be defective. This effort was one aspect of a national culture that was increasingly fixated on competition and efficiency, anxious about physical appearance and difference, and haunted by a fear of hereditary defect and the degeneration of the American race.

The fifth edition of The Disability Studies Reader addresses the post-identity theoretical landscape by emphasizing questions of interdependency and independence, the human-animal relationship, and issues around the construction or materiality of gender, the body, and sexuality. Selections explore the underlying biases of medical and scientific experiments and explode the binary of the sound and the diseased mind. The collection addresses physical disabilities, but as always investigates issues around pain, mental disability, and invisible disabilities as well. Featuring a new generation of scholars who are dealing with the most current issues, the fifth edition continues the Reader's tradition of remaining timely, urgent, and critical.

The major mental health reforms of the last generation in the U.S.A. have given rise to much discussion and often heated debate; but have they actually produced any real changes? This book is the first overview of this controversial subject - and the author's appraisal of the consequences of these reforms is surprising. Changes which were originally aimed at making it more difficult to hospitalize and treat people with mental illness, and easier to punish them, have actually resulted in far less change than was predicted or intended. This stimulating book argues that, when the law contradicted commonsense ideas of how to deal with the mentally ill, it was bent or ignored, whether by judges, medical professionals, or family members.

'A book that'll change your perspective on life. You'll not be able to put it down.' Fearne Cotton 'Everyone should read this book. Sophie Morgan is the epitome of grit and determination. Her writing is thought provoking, honest and in parts hilarious.' Katie Piper OBE 'Wrenchingly honest...eye-opening and deeply moving. *****' Mail on Sunday As seen on 'Living Wild; How to Change your Life' a two-part prime-time series on Channel 4, Loose Women and The Great Celebrity Bake Off for SU2C On the precipice of starting her adult life, aged eighteen, Sophie, a rebellious and incorrigible wild child, crashed her car and was instantly paralysed from the chest down. Rushed to hospital, everything she had dreamed for her life was instantly forgotten and her journey to rediscover herself and build a different life began. But being told she would never walk again would come to be the least of her concerns. Over the next eighteen years, as she strived to come to terms with the change in her body, her relationships were put to the test; she has had to learn to cope with the many unexpected and unpredictable setbacks of living with paralysis; she has had to overcome her own and other people's perceptions of disability and explore the limits of her abilities, all whilst searching for love, acceptance, meaning, identity, and purpose. Driving Forwards is a remarkable and powerful memoir, detailing Sophie's life-changing injury, her recovery, and her life since. Strikingly honest, her story is unusual and yet relatable, inspiring us to see how adversity can be channelled into opportunity and how ongoing resilience can ultimately lead to empowerment. 'Raw, life affirming and gorgeously written - this book is filled with extraordinary honesty, courage and warmth. Sophie's words will make us all braver and more hopeful.' Daisy Buchanan 'A truly astonishing read about the power of never giving up.' Sun 'F***king hell!! This book is absolutely brilliant . . . One of the best memoirs I've ever read. Honest and so blooming human, it's fantastic.' Kathy Burke

Studying people's lives requires acknowledging the multiple entanglements between individual singularity and processes of social patterning. This book testifies how challenging and creative the study of these connections can be. It gathers international contributions that show, in imaginative ways, how a person's life or specific domains of existence can be observed, tackled, and analysed across time. This volume reveals the potential of biographical research in the production of social theory, in the development of methodological innovation, in giving voice and protagonism to people, and in the understanding of the social unfolding of their lives. It is a testimony of a vibrant and youthful field, with a long tradition in social sciences, and with numerous connections with other study areas, namely the life course approach. The different chapters illustrate how the challenges posed by this type of research focused on the individual level of analysis are particular and what creative responses are required to continue analysing the link between biography and society. The chapters in this book were originally published as a special issue of the journal Contemporary Social Science.

This ground-breaking book aims to take a new and innovative view on how disability and architecture might be connected. Rather than putting disability at the end of the design process, centred mainly on compliance, it sees disability - and ability - as creative starting points for the whole design process. It asks the intriguing question: can working from dis/ability actually generate an alternative kind of architectural avant-garde? To do this, Doing Disability Differently: explores how thinking about dis/ability opens up to critical and creative investigation our everyday social attitudes and practices about people, objects and space argues that design can help resist and transform underlying and unnoticed inequalities introduces architects to the emerging and important field of disability studies and considers what different kinds of design thinking and doing this can enable asks how designing for everyday life - in all its diversity - can be better embedded within contemporary architecture as a discipline offers examples of what doing disability differently can mean for architectural theory, education and professional practice aims to embed into architectural practice, attitudes and approaches that creatively and constructively refuse to perpetuate body 'norms' or the resulting inequalities in access to, and support from, built space. Ultimately, this book suggests that re-addressing architecture and disability involves nothing less than re-thinking how to design for the everyday occupation of space more generally.

People with disabilities are among the most adversely affected during conflict situations or when natural disasters strike. They experience higher mortality rates, have fewer available resources and less access to help, especially in refugee camps, as well as in post-disaster environments. Already subject to severe discrimination in many societies, people with disabilities are often overlooked during emergency evacuation, relief, recovery and rebuilding efforts. Countries party to the UN Convention on the Rights of Persons with Disabilities must take all necessary measures to ensure the protection and safety of people with disabilities during situations of armed conflict, humanitarian emergencies, and natural disasters. Such aid should be designed to support preparedness, response, recovery and rebuilding. This book includes perspectives from around the globe and explores the implications at the policy, programme, and personal level, discussing issues such as: How can national laws, policies, and regulations provide guidance, methods and strategies to integrate and coordinate inclusive emergency management? What should people with disabilities know in order to be prepared for emergency situations? What lessons have we learned from past experiences? What are the current shortfalls (physical and cultural) that put people with disabilities at risk during emergencies and what can be done to improve these situations (e.g. through new technologies and disaster planning)? How does disability affect people's experiences as refugees and other displaced situations; what programmes and best practices are in place to protect and promote their rights during their period of displacement? How must disabled people with disabilities be factored in to the resettlement and rebuilding process; does an opportunity for ensuring universal access exist in the rebuilding process? What is the impact of disasters and conflicts on such special populations as disabled women, disabled children, and those with intellectual disabilities? Spotlighting a pressing issue that has long been neglected in emergency planning fields, this innovative book discusses how to meet the needs of people with disabilities in crises and conflict situations. It is an important reference for all those working in or researching disability and inclusion, and emergency and disaster management, both in developed and developing countries.

The Routledge Handbook of Critical Obesity Studies is an authoritative and challenging guide to the breadth and depth of critical thinking and theory on obesity. Rather than focusing on obesity as a public health crisis to be solved, this reference work offers divergent and radical strategies alongside biomedical and positivist discourses. Comprised of thirty nine original chapters from internationally recognised academics, as well as emerging scholars, the Handbook engages students, academics, researchers and practitioners in contemporary critical scholarship on obesity; encourages engagement of social science and related disciplines in critical thinking and theorising on obesity; enhances critical theoretical and methodological work in the area, highlighting potential gaps as well as strengths; relates critical scholarship to new and evolving areas of obesity-related practices, policies and research. This multidisciplinary and international collection is designed for a broad audience of academics, researchers, students and practitioners within the social and health sciences, including sociology, obesity science, public health, medicine, sports studies, fat studies, psychology, nutrition science, education and disability studies.

The deaf community in the West has endured radical changes in the past centuries. This historical volume tracks the changes in education and the social world of deaf people through the years. Topics covered include the attitudes toward the deaf in Europe and America, the evolution of communication and language and the increasing influence of education. Of particular interest is the way in which deafness has been increasingly humanized, rather than medicalized or pathologized, as it was in the past. Successful contributions to the deaf and non-deaf world by deaf individuals are also highlighted.

This book provides a timely reappraisal of one of the most enduring subjects in the history of art - the naked body. Beginning with reflections on what denuding entails and means, the volume then shifts to a consideration of body politics in the context of Black political empowerment, disability, and queer and Indigenous politics of representation. Themes including the animal nude, the male nude, and nudity in childhood are also considered. The final section examines the nude from the perspective of the artist and the artist's model. The book will be of interest to scholars working in art history, comparative literature, cultural studies, gender studies, queer studies, screen studies, and trans studies.

This volume explores questions about narrative frameworks in disability research. Narrative is a omnipresent meaning-producing communication form in social life that is both cultural and personal. Public understandings of disability tend to follow a medical storyline in which disability is a personal tragedy to be treated through professional intervention - a frame that disempowers and fails to resonate with many disabled people. Scholars in disability studies and the social sciences have proposed an alternative that portrays social structures, forces, and attitudes as the problems to be resolved - a frame that, while empowering, may neglect, or even repress, some kinds of personal disability stories. This volume seeks to answer the call for richer, more diverse understandings of disability. We explore how narrative inquiry can broaden perspectives on disability to include pain, suffering, chronic illness, and episodic disability, as well as the perspectives of family members and caregivers, while also serving as a platform for dismantling prejudice and discrimination in order to promote positive social change.

Despite the progress of decades-old disability rights policy, including the landmark Americans with Disabilities Act, threats continue to undermine the wellbeing of this population. The U.S. is, thus, a policy innovator and laggard in this regard. In Politics of Empowerment, David Pettinicchio offers a historically grounded analysis of the singular case of U.S. disability policy, countering long-held views of progress that privilege public demand as its primary driver. By the 1970s, a group of legislators and bureaucrats came to act as "political entrepreneurs." Motivated by personal and professional commitments, they were seen as experts leading a movement within the government. But as they increasingly faced obstacles to their legislative intentions, nascent disability advocacy and protest groups took the cause to the American people forming the basis of the contemporary disability rights movement. Drawing on extensive archival material, Pettinicchio redefines the relationship between grassroots advocacy and institutional politics, revealing a cycle of progress and backlash embedded in the American political system.

Constructing the (M)other is a collection of personal narratives about motherhood in the context of a society in which disability holds a stigmatized position. From multiple vantage points, these autoethnographies reveal how ableist beliefs about disability are institutionally upheld and reified. Collectively they seek to call attention to a patriarchal surveillance of mothering, challenge the trope of the good mother, and dismantle the constructed hierarchy of acceptable children. The stories contained in this volume are counter-narratives of resistance-they are the devices through which mothers push back. Rejecting notions of the otherness of their children, in these essays, mothers negotiate their identities and claim access to the category of normative motherhood. Readers are likely to experience dissonance, have their assumptions about disability challenged, and find their parameters of normalcy transformed.

Constructing the (M)other is a collection of personal narratives about motherhood in the context of a society in which disability holds a stigmatized position. From multiple vantage points, these autoethnographies reveal how ableist beliefs about disability are institutionally upheld and reified. Collectively they seek to call attention to a patriarchal surveillance of mothering, challenge the trope of the good mother, and dismantle the constructed hierarchy of acceptable children. The stories contained in this volume are counter-narratives of resistance-they are the devices through which mothers push back. Rejecting notions of the otherness of their children, in these essays, mothers negotiate their identities and claim access to the category of normative motherhood. Readers are likely to experience dissonance, have their assumptions about disability challenged, and find their parameters of normalcy transformed.

This project draws together the diverse strands of the debate regarding disability in a way never before combined in a single volume. After providing a representative sampling of competing philosophical approaches to the conceptualization of disability as such, the volume goes on to address such themes as the complex interplay between disability and quality of life, questions of social justice as it relates to disability, and the personal dimensions of the disability experience.

By explicitly locating the discussion of various applied ethical questions within the broader theoretical context of how disability is best conceptualized, the volume seeks to bridge the gap between abstract philosophical musings about the nature of disease, illness and disability found in much of the philosophy of medicine literature, on the one hand, and the comparatively concrete but less philosophical discourse frequently encountered in much of the disability studies literature. It also critically examines various claims advanced by disability advocates, as well as those of their critics.

In bringing together leading scholars in the fields of moral theory, bioethics, and disability studies, this volume makes a unique contribution to the scholarly literature, while also offering a valuable resource to instructors and students interested in a text that critically examines and assesses various approaches to some of the most vexing problems in contemporary social and political philosophy.

Disability is an increasingly vital contemporary issue in British social policy especially in education. Education, disability and social policy brings together for the first time unique perspectives from leading thinkers including senior academics, opinion formers, policy makers and school leaders. Key issues covered include: law and international human rights frameworks; policy developments for schools and school leaders; educational inequalities for disabled children and young people and curriculum design and qualifications changes for children who are being failed by the current education system. The book is a milestone in social policy studies, of enduring interest to students, academics, policy makers, parents and campaigners alike.

Neurodiversity in the workplace can be a gift. Yet only 15% of adults with an autism spectrum condition (ASC) are in full-time employment. This book examines how the working environment can embrace autistic people in a positive way. The author highlights common challenges in the workplace for people with ASC, such as discrimination and lack of communication or the right kind of support from managers and colleagues, and provides strategies for changing them. Setting out practical, reasonable adjustments such as a quiet room or avoiding disruption to work schedules, this book demonstrates how day to day changes in the workplace can make it more inclusive and productive for all employees. Autism in the Workplace is intended for any person with an interest in changing working culture to ensure equality for autistic people. It is an essential resource for employers, managers, trade unionists, people with ASCs and their workmates and supporters.

With contributions from distinguished authors in 14 countries across 5 continents, this book provides a unique transnational perspective on intellectual disability in the twentieth century. Each chapter outlines different policies and practices, and details real-life accounts from those living with intellectual disabilities to illustrate their impact of policies and practices on these people and their families. Bringing together accounts of how intellectual disability was viewed, managed and experienced in countries across the globe, the book examines the origins and nature of contemporary attitudes, policy and practice and sheds light on the challenges of implementing the UN Convention on the Rights of Persons with Disabilities (UNCPRD).

This book takes as its starting point the concept of 'the good life' and the challenge of ensuring people with intellectual disabilities are included in 'the good life.' The book explores the values underpinning current discourses of disability, analyzes their strengths and limitations, and proposes some alternative approaches to theory and practice. It deconstructs key concepts, theories, and practices within the learning disability field in the post institution era, and it identifies the values, strengths, and limits of these approaches. The book explores the boundaries around those included in the category 'disabled,' those on its margins, and those who move in and out of this category. It also proposes some alternative formulations to existing theories and practices, and explores their practical implications for the lives of people with intellectual disabilities. Using evidence from the UK, Australia, Bangladesh, and the Republic of Ireland, People with Intellectual Disabilities bu

Covering the period from Antiquity to Early Modernity, A Historical Sociology of Disability argues that disabled people have been treated in Western society as good to mistreat and - with the rise of Christianity - good to be good to. It examines the place and role of disabled people in the moral economy of the successive cultures that have constituted 'Western civilisation'. This book is the story of disability as it is imagined and re-imagined through the cultural lens of ableism. It is a story of invalidation; of the material habituations of culture and moral sentiment that paint pictures of disability as 'what not to be'. The author examines the forces of moral regulation that fall violently in behind the dehumanising, ontological fait accompli of disability invalidation, and explores the ways in which the normate community conceived of, narrated and acted in relation to disability. A Historical Sociology of Disability will be of interest to all scholars, students and activists working in the field of Disability Studies, as well as sociology, education, philosophy, theology and history. It will appeal to anyone who is interested in the past, present and future of the 'last civil rights movement'.

Encarnacion takes a new look at identity. Following the contemporary movement away from the fixed categories of identity politics toward a more fluid conception of the intersections between identities and communities, this book analyzes the ways in which literature and philosophy draw boundaries around identity. The works of Gloria Anzaldua, Cherrie Moraga, and Ana Castillo, in particular, enable us to examine how identities shift and intersect with others through processes of "incarnation." Since the 1980s, critics have come to equate these writers with Chicana feminist identity politics. This critical trend, however, has been unable to account for these writers' increasing emphasis on bodies that are sick, disabled, permeable, and, oftentimes, mystical. Encarnacion thus turns our attention to aspects of these writers' work that are usually ignored-Anzaldua's autobiographical writings about diabetes, Moraga's narrative about her premature baby's medical treatments, and Castillo's figure of a polio-afflicted flamenco dancer-to explore the political and cultural dimensions of illness. Concerned equally with the medical-surgical interventions available in our postmodern age and with the ways of understanding bodies in the Native American and Catholic traditions these writers invoke, Encarnacion develops a model for identity that expands beyond the boundaries of individual bodies. The book argues that this model has greater utility for feminism than identity politics because it values human variability, sensation, and openness to others. The methodology of the study is as permeable as the bodies and identities it analyzes. The book brings together discourses as disparate as Mesoamerican anthropology, art history, feminist spirituality, feminist biology, phenomenology, postmodern theory, disability studies, and autobiographical narrative in order to expand our thinking beyond what disciplinary boundaries allow.

In The Right to Maim Jasbir K. Puar brings her pathbreaking work on the liberal state, sexuality, and biopolitics to bear on our understanding of disability. Drawing on a stunning array of theoretical and methodological frameworks, Puar uses the concept of "debility"-bodily injury and social exclusion brought on by economic and political factors-to disrupt the category of disability. She shows how debility, disability, and capacity together constitute an assemblage that states use to control populations. Puar's analysis culminates in an interrogation of Israel's policies toward Palestine, in which she outlines how Israel brings Palestinians into biopolitical being by designating them available for injury. Supplementing its right to kill with what Puar calls the right to maim, the Israeli state relies on liberal frameworks of disability to obscure and enable the mass debilitation of Palestinian bodies. Tracing disability's interaction with debility and capacity, Puar offers a brilliant rethinking of Foucauldian biopolitics while showing how disability functions at the intersection of imperialism and racialized capital.