Winner, Body and Embodiment Award presented by the American Sociological Association Imagine yourself without a face-the task seems impossible. The face is a core feature of our physical identity. Our face is how others identify us and how we think of our 'self'. Yet, human faces are also functionally essential as mechanisms for communication and as a means of eating, breathing, and seeing. For these reasons, facial disfigurement can endanger our fundamental notions of self and identity or even be life threatening, at worse. Precisely because it is so difficult to conceal our faces, the disfigured face compromises appearance, status, and, perhaps, our very way of being in the world. In Saving Face, sociologist Heather Laine Talley examines the cultural meaning and social significance of interventions aimed at repairing faces defined as disfigured. Using ethnography, participant-observation, content analysis, interviews, and autoethnography, Talley explores four sites in which a range of faces are "repaired:" face transplantation, facial feminization surgery, the reality show Extreme Makeover, and the international charitable organization Operation Smile,. Throughout, she considers how efforts focused on repair sometimes intensify the stigma associated with disfigurement. Drawing upon experiences volunteering at a camp for children with severe burns, Talley also considers alternative interventions and everyday practices that both challenge stigma and help those seen as disfigured negotiate outsider status. Talley delves into the promise and limits of facial surgery, continually examining how we might understand appearance as a facet of privilege and a dimension of inequality. Ultimately, she argues that facial work is not simply a conglomeration of reconstructive techniques aimed at the human face, but rather, that appearance interventions are increasingly treated as lifesaving work. Especially at a time when aesthetic technologies carrying greater risk are emerging and when discrimination based on appearance is rampant, this important book challenges us to think critically about how we see the human face.

In the spirit of The Blind Side and Friday Night Lights comes a tender and profoundly moving memoir about an ESPN producer's unexpected relationship with two disabled wrestlers from inner city Cleveland, and how these bonds-blossoming, ultimately, into a most unorthodox family-would transform their lives. When award-winning ESPN producer Lisa Fenn returned to her hometown for a story about two wrestlers at one of Cleveland's toughest public high schools, she had no idea that the trip would change her life. Both young men were disadvantaged students with significant physical disabilities. Dartanyon Crockett was legally blind as a result of Leber's disease; Leroy Sutton lost both his legs at eleven, when he was run over by a train. Brought together by wrestling, they had developed a brother-like bond as they worked to overcome their disabilities. After forming a profound connection with Dartanyon and Leroy, Fenn realized she couldn't just walk away when filming ended; these boys had had to overcome the odds too many times. Instead, Fenn dedicated herself to ensuring their success long after the reporting was finished and the story aired-and an unlikely family of three was formed. The years ahead would be fraught with complex challenges, but Fenn stayed with the boys every step of the way-teaching them essential life skills, helping them heal old wounds and traumatic pasts, and providing the first steady and consistent support system they'd ever had. This powerful memoir is one of love, hope, faith, and strength-a story about an unusual family and the courage to carry on, even in the most extraordinary circumstances.

Amputation need not always signify castration; indeed, in Jack London's fiction, losing a limb becomes part of a process through which queerly gendered men become properly masculinized. In her astute book, Vulnerable Constitutions, Cynthia Barounis explores the way American writers have fashioned alternative-even resistant-epistemologies of queerness, disability, and masculinity. She seeks to understand the way perverse sexuality, physical damage, and bodily contamination have stimulated-rather than created a crisis for-masculine characters in twentieth- and early twenty-first-century literature. Barounis introduces the concept of "anti-prophylactic citizenship"-a mode of political belonging characterized by vulnerability, receptivity, and risk-to examine counternarratives of American masculinity. Investigating the work of authors including London, William Faulkner, James Baldwin, and Eli Clare, she presents an evolving narrative of medicalized sexuality and anti-prophylactic masculinity. Her literary readings interweave queer theory, disability studies, and the history of medicine to demonstrate how evolving scientific conversations around deviant genders and sexualities gave rise to a new model of national belonging-ultimately rewriting the story of American masculinity as a story of queer-crip rebellion.

Law and Neurodiversity offers invaluable guidance on how autism research can inform juvenile justice policies in Canada and the United States. In Canada, the diversion of youth away from formal processing has fostered community-based strategies for serving those with autism. US policies rely more heavily on formal responses, often employing juvenile custody facilities. Building on a rigorous exploration of how assessment, rehabilitation, and community re-entry differ between the two countries, Law and Neurodiversity offers a much-needed comparative analysis of autism and juvenile justice policies on both sides of the forty-ninth parallel.

What prenatal tests and down syndrome reveal about our reproductive choices When Alison Piepmeier-scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome-died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today's world. Piepmeier takes us inside her own daughter's life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.

Gain insight into the importance of advocacy for the disabled within various religious and secular organizations You shall love your neighbor as yourself. (Romans 13:9) Through the years, religious organizations have worked to fulfill this biblical mandate. Disability Advocacy Among Religious Organizations: Histories and Reflections chronicles the progress of different ministries' advocacy for the disabled since 1950 as they worked toward fulfilling this mission. This enlightening history of several religious organizations' efforts charts the trends in advocacy while offering readers insight into ways to assist people with disabilities both within religious organizations and in society. Issues are explored by drawing upon numerous documents, communications, and in-depth reviews of the advocates' work. This book draws together in a single volume the stories of various religious organizations and their struggles to advocate for the disabled. Because of society's tendency to isolate and fear them, special needs individuals such as the mentally and physically disabled have long found it difficult to be accepted, understood, or to receive proper care. However, ministries strive to be advocates for all of their members and their needs, including education, treatment, and appropriate legislation. Disability Advocacy Among Religious Organizations: Histories and Reflections recounts the steps organizations have taken to focus on ending isolation and fear through inclusion and appropriate care of members with various disabilities. These historical accounts examine the depth, breadth, and on-going need for disability advocacy in religious organizations. Disability Advocacy Among Religious Organizations: Histories and Reflections discusses the advocacy backgrounds of: the World Council of Churches the National Council of Churches National Catholic Partnership on Disability National Apostolate for Inclusion Ministry American mainline Protestant denominationsthe American Baptist Convention, Disciples of Christ, the Episcopal Church, the Evangelical Lutheran Church in America, the Presbyterian Church USA, the United Methodist Church, and the United Church of Christ the Christian Reformed Church American Association on Mental Retardation (AAMR) Religion and Spirituality Division Bethesda Lutheran homes and Services, Inc. the Christian Council on Persons with Disabilities (CCPD) Friendship Ministries Joni and Friends the Mennonite advocacy for persons with disabilities the Religion and Disability Program of the National Organization on Disability Disability Advocacy Among Religious Organizations: Histories and Reflections is valuable reading for clergy and laypeople in disability advocacy in religious organizations, educators, students, seminary students preparing for ministries, and religious historians.

Drawing on rich empirical work emerging from core conflict regions within the island nation of Sri Lanka, this book illustrates the critical role that women with disabilities play in post-armed conflict rebuilding and development. This pathbreaking book shows the critical role that women with disabilities play in post-armed conflict rebuilding and development. Through offering a rare yet important insight into the processes of gendered-disability advocacy activation within the post-conflict environment, it provides a unique counter narrative to the powerful images, symbols and discourses that too frequently perpetuate disabled women's so-called need for paternalistic forms of care. Rather than being the mere recipients of aid and help, the narratives of women with disabilities reveal the generative praxis of social solidarity and cohesion, progressed via their nascent collective practices of gendered-disability advocacy. It will be of interest to academics and students working in the fields of disability studies, gender studies, post-conflict studies, peace studies and social work.

Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.

Illness and Authority examines the lived experience and early stories about St. Francis of Assisi through the lens of disability studies. This new approach recentres Francis' illnesses and infirmities and highlights how they became barriers to wielding traditional modes of masculine authority within both the Franciscan Order he founded and the church hierarchy. Members of the Franciscan leadership were so concerned about his health that the future saint was compelled to seek out medical treatment and spent the last two years of his life in the nearly constant care of doctors. Unlike other studies of Francis' ailments, Illness and Authority focuses on the impact of his illnesses on his autonomy and secular power, rather than his spiritual authority. Whether downplaying the comfort Francis received from music to omitting doctors from the narratives of his life, early biographers worked to minimize the realities of his infirmities. When they could not do so, they turned the saint's experiences into teachable moments that demonstrated his saintly and steadfast devotion and his trust in God. Illness and Authority explores the struggles that early authors of Francis' vitae experienced as they tried to make sense of a figure whose life did not fit the traditional rhythms of a founder saint.

Including people with disabilities fully into Canadian society, with the rights enjoyed by non-disabled people, requires a fundamental social transformation, not simply "fixing" some bodies. It requires deep changes in the attitudes, cultural images and policies that make people with disabilities invisible, set them aside, undermine or reject their contributions and value, and justifies their neglect, abuse and death. This shift involves the simple recognition and honouring of the dignity, autonomy and rights of all people, including those who experience disabilities. In the second edition of About Canada: Disability Rights, Deborah Stienstra explores the historical and current experiences of people with disabilities in Canada, as well as the policy and advocacy responses to these experiences. Stienstra demonstrates that disability rights enable people with disabilities to make decisions about their lives and future, claim rights on their own behalf, and participate actively in all areas of Canadian society. Disability rights can and does increase access to and inclusion in critical areas like education, employment, transportation, telecommunications and health care. Additionally, Stienstra identifies new approaches and practices, such as universal design, disability supports and income supports, that can transform Canadian society to be more inclusive and accommodating for everyone.

"Don taught us how to be a real independent living center. Nothing was easy; every issue that came up on the road to Don's independence was a challenge and a struggle, but the experience pushed us and we learned from it. We were not going to let Don down; all of us were committed to Don's freedom and independence." --Kathleen Kleinman, Executive Director, TRPIL (Transitional Paths to Independent Living) Profoundly deafened as an infant, Don Fulk didn't learn his name or go to school until the age of ten. When he was eighteen years old and a budding superstar on his football and basketball teams, he broke his neck in a swimming accident, and became paralyzed. After his injury, he was confined to a bed in his parents' home for eight years, unable to move and barely able to communicate. After his family could no longer care for him, he spent nine years in a nursing home where he suffered from abuse and neglect. Yet through a life marred by isolation and frustration, Fulk endured with strength, humor, and grace. He never gave up pursuing his dreams for independence and self-worth, and improving the lives of others. He fought a system that was unfair and discriminatory, and helped pave the way for people with disabilities to live independently. Don Fulk signed his story to author Janet Allen, describing his difficult home life, the incredible friends who changed his life, and his dramatic escape from an abusive nursing home. An Invincible Spirit is a story of hope, empowerment, and the battles people with disabilities have fought--and continue to fight--to improve the quality of their lives.

Participatory Case Study Work shows academic co-researchers how to adapt and implement their methods so that data collection and analysis is authentically participatory. At the heart of this text is advocating a participatory approach to case study work, with co-construction as a catalyst for shared understanding and action in advancing ageing studies. Whilst case study research has a relatively long tradition in the canon of research methodologies, little attention has so far been paid to the importance and value of participatory case study work. This is surprising as its egalitarian and democratic value-base naturally lends itself to the co-production and co-creation of personal and collective theory drawn directly from lived experience. The book brings together over 15 years' worth of participatory case study work in ageing studies in which the editors have been actively involved as either front-line researchers or as supervisors to PhD and MPhil studies adopting the methodology, and from where each of the contributors is selected. Real-life case examples are shared in the main chapters of the book and they provide direction as to how learning can be applied to other settings. The chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students as well as postdoctoral researchers interested in fields such as research methods, qualitative methods, ageing studies and mental health studies.

In Cheap Talk: Disability and the Politics of Communication, Joshua St. Pierre flips the script on communication disability, positioning the unruly, disabled speaker at the center of analysis to challenge the belief that more communication is unquestionably good. Working with Gilles Deleuze's suggestion that "[w]e don't suffer these days from any lack of communication, but rather from all the forces making us say things when we've nothing much to say," St. Pierre brings together the unlikely trio of the dysfluent speaker, the talking head, and the troll to show how speech is made cheap-and produced and repaired within human bodies-to meet the inhuman needs of capital. The book explores how technologies, like social media and the field of speech-language pathology, create smooth sites of contact that are exclusionary for disabled speakers and looks to the political possibilities of disabled voices to "de-face" the power of speech now entwined with capital.

Examining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of "normal" and to establish a social environment in which the expression of full lives will prevail.

This sequel to the influential 2016 work DisCrit-Disability Studies and Critical Race Theory in Education explores how DisCrit has both deepened and expanded, providing increasingly nuanced understandings about how racism and ableism circulate across geographic borders, academic disciplines, multiplicative identities, intersecting oppressions, and individual and cultural resistances. Following an incisive introduction by DisCrit intellectual forerunner Alfredo Artiles, a diverse group of authors engage in inward, outward, and margin-to-margin analyses that raise deep and enduring questions about how we as scholars and teachers account for and counteract the collusive nature of oppressions faced by minoritized individuals with disabilities, particularly in educational contexts. Contributors ask readers to consider incisive questions such as: What are the affordances and constraints of DisCrit as it travels outside of U.S. contexts? How can DisCrit, as a critical and intersectional framework, be used to support and extend diverse forms of activism, expanded solidarities, and collective resistance? How can DisCrit inform and be augmented by engagements with other critical theories and modes of inquiry? How can DisCrit help to illuminate agency and resistance among learners with complex learning needs? How might DisCrit inform legal studies and other disciplinary and interdisciplinary contexts? How can DisCrit be a critical friend to interrogations involving issues of citizenship, language, and more? Book Features: Expands the discussion on DisCrit to include issues of language, citizenship, and post-secondary education, and more. Presents a robust engagement with DisCrit that reaches across disciplines, geographies, and temporalities. Highlights the lived experience of people with disabilities as knowledge generators fighting against the collusive power of racism and ableism. Recognizes that disability is complex, multifaceted, and not bound by labels for Black people, Indigenous People, and other People of Color in educational experiences and throughout the lifespan Further explores the discussion on DisCrit while encouraging disability scholars to substantially integrate racism into their analyses, and for race scholars to do the same with ableism.

Anna Ott died in the Wisconsin State Hospital for the Insane in 1893. She had enjoyed status and financial success first as a physician's wife and then as the only female doctor in Madison. Throughout her first marriage, attempts to divorce her abusive second husband, and twenty years of institutionalization, Ott determinedly shaped her own life. Kim E. Nielsen explores a life at once irregular and unexceptional. Historical and institutional structures, like her whiteness and laws that liberalized divorce and women's ability to control their property, opened up uncommon possibilities for Ott. Other structures, from domestic violence in the home to rampant sexism and ableism outside of it, remained a part of even affluent women's lives. Money, Marriage, and Madness tells a forgotten story of how the legal and medical cultures of the time shaped one woman-and what her life tells us about power and society in nineteenth century America.

This book seeks to explore how disability is understood and the position and experiences of disabled people both within and across different societies. The authors explore the question of politics in relation to specific struggles, providing a wealth of insights and ideas, and examine the nature and value of a social model of disability. They criticize exclusionary barriers while advancing a more democratic and participatory society based on principles of equality, offer cross-cultural insights and present stimuli for debate and further research. The text is accessible, topical, and provides new and innovatory thinking. This book will appeal to undergraduate and postgraduate students, lecturers and researchers with interests in education, social policy, sociology and disability studies.

The 2006 United Nations Convention on the Rights of Persons with Disabilities (UN CRPD) is the first human rights treaty to explicitly acknowledge the right to education for persons with disabilities. In order to realize this right, the convention's Article 24 mandates state parties to ensure inclusive education systems that overcome outright exclusion as well as segregation in special education settings. Despite this major global policy change to tackle the discriminations persons with disabilities face in education, this has yet to take effect in most school systems worldwide.Focusing on the factors undermining the realization of disability rights in education, Julia Biermann probes current meanings of inclusive education in two contrasting yet equally challenged state parties to the UN CRPD: Nigeria, whose school system overtly excludes disabled children, and Germany, where this group primarily learns in special schools. In both countries, policy actors aim to realize the right to inclusive education by segregating students with disabilities into special education settings. In Nigeria, this demand arises from the glaring lack of such a system. In Germany, conversely, from its extraordinary long-term institutionalization. This act of diverting from the principles embodied in Article 24 is based on the steadfast and shared belief that school systems, which place students into special education, have an innate advantage in realizing the right to education for persons with disabilities. Accordingly, inclusion emerges to be an evolutionary and linear process of educational expansion that depends on institutionalized special education, not a right of persons with disabilities to be realized in local schools on an equal basis with others. This book proposes a refined human rights model of disability in education that shifts the analytical focus toward the global politics of formal mass schooling as a space where discrimination is sustained.

The Open Access version of this book, available at https://www.taylorfrancis.com/books/9780429352775 has been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license. No city environment reflects the meaning of urban life better than a public place. A public place, whatever its nature-a park, a mall, a train platform or a street corner-is where people pass by, meet each other and at times become a victim of crime. With this book, we submit that crime and safety in public places are not issues that can be easily dealt with within the boundaries of a single discipline. The book aims to illustrate the complexity of patterns of crime and fear in public places with examples of studies on these topics contextualized in different cities and countries around the world. This is achieved by tackling five cross-cutting themes: the nature of the city's environment as a backdrop for crime and fear; the dynamics of individuals' daily routines and their transit safety; the safety perceptions experienced by those who are most in fear in public places; the metrics of crime and fear; and, finally, examples of current practices in promoting safety. All these original chapters contribute to our quest for safer, more inclusive, resilient, equitable and sustainable cities and human settlements aligned to the Global 2030 Agenda for Sustainable Development.

Through a series of critical essays this book concerns the relationships and possibilities in and between "prose" and "disability". It covers a diverse range from the role of the disability memoir, the effect of disablement on soldiers, phantom limb syndrome and the suspicion of 'faking it' that sometimes surrounds.

While the loss of sight-whether in early modern Japan or now-may be understood as a disability, blind people in the Tokugawa period (1600-1868) could thrive because of disability. The blind of the era were prominent across a wide range of professions, and through a strong guild structure were able to exert contractual monopolies over certain trades. Blind in Early Modern Japan illustrates the breadth and depth of those occupations, the power and respect that accrued to the guild members, and the lasting legacy of the Tokugawa guilds into the current moment. The book illustrates why disability must be assessed within a particular society's social, political, and medical context, and also the importance of bringing medical history into conversation with cultural history. A Euro-American-centric disability studies perspective that focuses on disability and oppression, the author contends, risks overlooking the unique situation in a non-Western society like Japan in which disability was constructed to enhance blind people's power. He explores what it meant to be blind in Japan at that time, and what it says about current frameworks for understanding disability.