What prenatal tests and down syndrome reveal about our reproductive choices When Alison Piepmeier-scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome-died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today's world. Piepmeier takes us inside her own daughter's life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.

Including people with disabilities fully into Canadian society, with the rights enjoyed by non-disabled people, requires a fundamental social transformation, not simply "fixing" some bodies. It requires deep changes in the attitudes, cultural images and policies that make people with disabilities invisible, set them aside, undermine or reject their contributions and value, and justifies their neglect, abuse and death. This shift involves the simple recognition and honouring of the dignity, autonomy and rights of all people, including those who experience disabilities. In the second edition of About Canada: Disability Rights, Deborah Stienstra explores the historical and current experiences of people with disabilities in Canada, as well as the policy and advocacy responses to these experiences. Stienstra demonstrates that disability rights enable people with disabilities to make decisions about their lives and future, claim rights on their own behalf, and participate actively in all areas of Canadian society. Disability rights can and does increase access to and inclusion in critical areas like education, employment, transportation, telecommunications and health care. Additionally, Stienstra identifies new approaches and practices, such as universal design, disability supports and income supports, that can transform Canadian society to be more inclusive and accommodating for everyone.

Intellectual and Developmental Disabilities provides a unique contribution not currently available in the professional literature by addressing the experiences and perspectives of families living with or raising a child with a disability. Designed for family therapists, social workers, and other helping professionals, it provides empirically-based, practical information for working with families experiencing intellectual and developmental disabilities of a loved one. This book also provides important information for navigating the various professional systems of care with which these families interface: health care providers, early childhood intervention teams, educational systems, the legal system, and financial planners.

Winner of the Bread and Roses Award for Radical Publishing Award 2021 In 2016, a United Nations report found the UK government culpable for 'grave and systematic violations' of disabled people's rights. Since then, driven by the Tory government's obsessive drive to slash public spending whilst scapegoating the most disadvantaged in society, the situation for disabled people in Britain has continued to deteriorate. Punitive welfare regimes, the removal of essential support and services, and an ideological regime that seeks to deny disability has resulted in a situation described by the UN as a 'human catastrophe'. In this searing account, Ellen Clifford - an activist who has been at the heart of resistance against the war on disabled people - reveals precisely how and why this state of affairs has come about. From spineless political opposition to self-interested disability charities, rightwing ideological myopia to the media demonization of benefits claimants, a shocking picture emerges of how the government of the fifth-richest country in the world has been able to marginalize disabled people with near-impunity. Even so, and despite austerity biting ever deeper, the fightback has begun, with a vibrant movement of disabled activists and their supporters determined to hold the government to account - the slogan 'Nothing About Us Without Us' has never been so apt. As this book so powerfully demonstrates, if Britain is to stand any chance of being a just and equitable society, their battle is one we should all be fighting.

Disabling Barriers analyzes issues relating to disability at different moments in Canadian and American history. In this volume, legal scholars, historians, and disability-rights activists explore how disabled people have been portrayed and treated in a variety of contexts, including within the labour market, the workers' compensation system, the immigration process, and the legal system (both as litigants and as lawyers). The contributors encourage us to rethink our understanding of both the systemic barriers disabled people face and the capacity of disabled people to transform their environment by changing the discourse surrounding disablement.

Drawing on rich empirical work emerging from core conflict regions within the island nation of Sri Lanka, this book illustrates the critical role that women with disabilities play in post-armed conflict rebuilding and development. This pathbreaking book shows the critical role that women with disabilities play in post-armed conflict rebuilding and development. Through offering a rare yet important insight into the processes of gendered-disability advocacy activation within the post-conflict environment, it provides a unique counter narrative to the powerful images, symbols and discourses that too frequently perpetuate disabled women's so-called need for paternalistic forms of care. Rather than being the mere recipients of aid and help, the narratives of women with disabilities reveal the generative praxis of social solidarity and cohesion, progressed via their nascent collective practices of gendered-disability advocacy. It will be of interest to academics and students working in the fields of disability studies, gender studies, post-conflict studies, peace studies and social work.

Bringing to life the voices of children, families, and school personnel, this bestseller describes in detail the school climates and social processes that place many children of color at risk of being assigned inappropriate disability labels. Now in its third edition, this powerful ethnographic study examines the placement of Black and Hispanic students in the subjectively determined, high-incidence disability categories of special education. The authors present compelling narratives representing the range of experiences faced by culturally and linguistically diverse students who fall under the liminal shadow of perceived disability. This edition updates the literature on disproportionality, highlighting the deeply embedded and systemic nature of this decades-old pattern in which reforms represent mere shifts across disability categories, while disproportionality remains. Applying lenses of cultural-historical and critical disability theories, this edition expands on the authors' previous theoretical insights with updated recommendations for improving educational practice, teacher training, and policy renewal.Book Features: A unique examination of the school-based contributors to disproportionality based on research conducted in a large, culturally diverse school district. Holistic views of the referral and placement process detailing students' trajectories across 4 years from initial instruction to referral, evaluation, and placement in special education. An update on the patterns and literature related to disproportionality. Analysis of the cultural-historical nature of disproportionality and the socially constructed nature of the high-incidence disability categories. Recommendations for changing the conceptualization of children's learning difficulties, moving away from the presumption of children's intrinsic deficits toward evaluations based on human variation.

Teaching Music to Students with Autism is a comprehensive practical guide for music eductors who work with students with autism. Authors and veteran music educators Alice M. Hammel and Ryan M. Hourigan offer an approach centered in inclusion designed for music educators, music teacher educators, and all those who have an interest in the education of students with autism. In this second edition, the authors offer fully up-to-date information on the diagnosis of autism, advocating for students and music programs, and creating and maintaining a team-approach when working with colleagues. A significant portion of the book is focused on understanding the communication, cognition, behavior, sensory, and socialization challenges inherent in students with autism and ways to structure classroom experiences and learning opportunities for all students. A chapter of classroom snapshots (vignettes) written by teachers in the field of music education provides additional opportunities to transfer information to 'real life' situations. Finally, the book offers a chapter of print and web resources for further study.

Examine issues of vital importance to you and your disabled clientstoday and in the years to come! This groundbreaking text provides you with up-to-date, authoritative information that will prove to be of critical importance for disability professionals in the coming years. It will leave you better informed about aspects of disability that have not been well covered in the literatureissues surrounding spirituality, civil rights, and the medical model vs. social (or minority) model (of viewing disability) controversy. You'll examine the impact of the Americans with Disabilities Act in the wake of the Supreme Court's narrowing of the Act's powers and explore newly developed theories designed to more accurately define the true meaning of disability. Disability Issues for Social Workers and Human Services Professionals in the Twenty-First Century explores: the currentand potentialroles of spirituality and religion in the rehabilitation process the use of medication in treating disabilitywith a study focusing on children in foster care whose emotional/behavioral disabilities are medically (rather than psychologically) treated Attention-Deficit/Hyperactivity Disorder (ADHD) in college studentshow it impacts them as a disability requiring academic accommodations disability as an aspect of cultural diversitywith suggested methods for educating the non-disabled about people with disabilities limitations on the civil rights of those with disabilitiesand what can be done to eliminate those limitations computer technologies designed to aid people with disabilitieswith an examination of a health promotion Web site for children with disabilities and their families disability and the managed mental health systemwith an examination of the differences in service utilization and satisfaction in rural and urban areas how disability can be viewed as a social construct, rather than something that is inherent to the disabled person Keeping current with new developments is imperative for social workers and other professionals whose work affects people with disabilities. Disability Issues for Social Workers and Human Services Professionals in the Twenty-First Century provides the information you need to stay on the cutting edge of progress in this rapidly evolving field.

"Don taught us how to be a real independent living center. Nothing was easy; every issue that came up on the road to Don's independence was a challenge and a struggle, but the experience pushed us and we learned from it. We were not going to let Don down; all of us were committed to Don's freedom and independence." --Kathleen Kleinman, Executive Director, TRPIL (Transitional Paths to Independent Living) Profoundly deafened as an infant, Don Fulk didn't learn his name or go to school until the age of ten. When he was eighteen years old and a budding superstar on his football and basketball teams, he broke his neck in a swimming accident, and became paralyzed. After his injury, he was confined to a bed in his parents' home for eight years, unable to move and barely able to communicate. After his family could no longer care for him, he spent nine years in a nursing home where he suffered from abuse and neglect. Yet through a life marred by isolation and frustration, Fulk endured with strength, humor, and grace. He never gave up pursuing his dreams for independence and self-worth, and improving the lives of others. He fought a system that was unfair and discriminatory, and helped pave the way for people with disabilities to live independently. Don Fulk signed his story to author Janet Allen, describing his difficult home life, the incredible friends who changed his life, and his dramatic escape from an abusive nursing home. An Invincible Spirit is a story of hope, empowerment, and the battles people with disabilities have fought--and continue to fight--to improve the quality of their lives.

This is the only text to examine the experience of disability in relation to theories of human growth and development. It provides a foundational and comprehensive examination of disability that encompasses the intellectual, psychiatric, physical, and social arenas. The second edition is updated to underscore its versatility as an introductory text about the developmental tasks of people with disabilities for all the helping professions. Reorganized to illuminate the book's interdisciplinary focus, it includes new demographics, new case studies and first-person accounts, discussions on cultural aspects of disabilities, family concerns, and more.The text delivers practice guidelines for each of the conventional life stages and describes the developmental tasks of individuals with disabilities (IWDs) and the difficulties they may have in completing them. It emphasizes the positive trend in the perception of individuals with disabilities as normal and underscores the fact that IWDs have the same motivations, emotions, and goals as those without disabilities. Learning activities, suggestions for writing exercises, and websites for further study reinforce learning, as do graphs, charts, and photos to illustrate trends and demographics. New to the Second Edition: Introductory chapter on understanding disability Demographic updates New case studies and first-person accounts Expanded discussions about cultural issues, and intersectionality, trauma related to disability, financial abuse, and psychiatric disabilities New and expanded learning activities to help students apply concepts Updated Instructor's Manual with sample syllabus, suggested guest speakers, Test Bank, and PowerPoints Key Features: Examines the conventional stages of human growth and development from the perspective of individuals with disabilities Integrates disability concepts with developmental theories and stages of the lifespan Addresses common ethical issues to illuminate the real-world implications faced by individuals with disabilities and their families Includes learning activities, suggestions for writing exercises, and websites for further study

This sequel to the influential 2016 work DisCrit-Disability Studies and Critical Race Theory in Education explores how DisCrit has both deepened and expanded, providing increasingly nuanced understandings about how racism and ableism circulate across geographic borders, academic disciplines, multiplicative identities, intersecting oppressions, and individual and cultural resistances. Following an incisive introduction by DisCrit intellectual forerunner Alfredo Artiles, a diverse group of authors engage in inward, outward, and margin-to-margin analyses that raise deep and enduring questions about how we as scholars and teachers account for and counteract the collusive nature of oppressions faced by minoritized individuals with disabilities, particularly in educational contexts. Contributors ask readers to consider incisive questions such as: What are the affordances and constraints of DisCrit as it travels outside of U.S. contexts? How can DisCrit, as a critical and intersectional framework, be used to support and extend diverse forms of activism, expanded solidarities, and collective resistance? How can DisCrit inform and be augmented by engagements with other critical theories and modes of inquiry? How can DisCrit help to illuminate agency and resistance among learners with complex learning needs? How might DisCrit inform legal studies and other disciplinary and interdisciplinary contexts? How can DisCrit be a critical friend to interrogations involving issues of citizenship, language, and more? Book Features: Expands the discussion on DisCrit to include issues of language, citizenship, and post-secondary education, and more. Presents a robust engagement with DisCrit that reaches across disciplines, geographies, and temporalities. Highlights the lived experience of people with disabilities as knowledge generators fighting against the collusive power of racism and ableism. Recognizes that disability is complex, multifaceted, and not bound by labels for Black people, Indigenous People, and other People of Color in educational experiences and throughout the lifespan Further explores the discussion on DisCrit while encouraging disability scholars to substantially integrate racism into their analyses, and for race scholars to do the same with ableism.

In Cheap Talk: Disability and the Politics of Communication, Joshua St. Pierre flips the script on communication disability, positioning the unruly, disabled speaker at the center of analysis to challenge the belief that more communication is unquestionably good. Working with Gilles Deleuze's suggestion that "[w]e don't suffer these days from any lack of communication, but rather from all the forces making us say things when we've nothing much to say," St. Pierre brings together the unlikely trio of the dysfluent speaker, the talking head, and the troll to show how speech is made cheap-and produced and repaired within human bodies-to meet the inhuman needs of capital. The book explores how technologies, like social media and the field of speech-language pathology, create smooth sites of contact that are exclusionary for disabled speakers and looks to the political possibilities of disabled voices to "de-face" the power of speech now entwined with capital.

Examining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of "normal" and to establish a social environment in which the expression of full lives will prevail.

A memoir by a disability rights activist Such a Pretty Girl is Nadina LaSpina's story-from her early years in her native Sicily, where still a baby she contracts polio, a fact that makes her the object of well-meaning pity and the target of messages of hopelessness; to her adolescence and youth in America, spent almost entirely in hospitals, where she is tortured in the quest for a cure and made to feel that her body no longer belongs to her; to her rebellion and her activism in the disability rights movement. LaSpina's personal growth parallels the movement's political development-from coming together, organizing, and fighting against exclusion from public and social life, to the forging of a common identity, the blossoming of disability arts and culture, and the embracing of disability pride. While unique, the author's journey is also one with which many disabled people can identify. It is the journey to find one's place in an ableist world-a world not made for disabled people, where disability is only seen in negative terms. La Spina refutes all stereotypical narratives of disability. Through the telling of her life's story, without editorializing, she shows the harm that the overwhelming focus on pity and on a cure that remains elusive has done to disabled people. Her story exposes the disability prejudice ingrained in our sociopolitical system and denounces the oppressive standards of normalcy in a society that devalues those who are different and denies them basic rights. Written as continuous narrative and in a subtle and intimate voice, Such a Pretty Girl is a memoir as captivating as a novel. It is one of the few disability memoirs to focus on activism, and one of the first by an immigrant.

This book seeks to explore how disability is understood and the position and experiences of disabled people both within and across different societies. The authors explore the question of politics in relation to specific struggles, providing a wealth of insights and ideas, and examine the nature and value of a social model of disability. They criticize exclusionary barriers while advancing a more democratic and participatory society based on principles of equality, offer cross-cultural insights and present stimuli for debate and further research. The text is accessible, topical, and provides new and innovatory thinking. This book will appeal to undergraduate and postgraduate students, lecturers and researchers with interests in education, social policy, sociology and disability studies.

In After War Zoe H. Wool explores how the American soldiers most severely injured in the Iraq and Afghanistan wars struggle to build some kind of ordinary life while recovering at Walter Reed Army Medical Center from grievous injuries like lost limbs and traumatic brain injury. Between 2007 and 2008, Wool spent time with many of these mostly male soldiers and their families and loved ones in an effort to understand what it's like to be blown up and then pulled toward an ideal and ordinary civilian life in a place where the possibilities of such a life are called into question. Contextualizing these soldiers within a broader political and moral framework, Wool considers the soldier body as a historically, politically, and morally laden national icon of normative masculinity. She shows how injury, disability, and the reality of soldiers' experiences and lives unsettle this icon and disrupt the all-too-common narrative of the heroic wounded veteran as the embodiment of patriotic self-sacrifice. For these soldiers, the uncanny ordinariness of seemingly extraordinary everyday circumstances and practices at Walter Reed create a reality that will never be normal.

The 2006 United Nations Convention on the Rights of Persons with Disabilities (UN CRPD) is the first human rights treaty to explicitly acknowledge the right to education for persons with disabilities. In order to realize this right, the convention's Article 24 mandates state parties to ensure inclusive education systems that overcome outright exclusion as well as segregation in special education settings. Despite this major global policy change to tackle the discriminations persons with disabilities face in education, this has yet to take effect in most school systems worldwide.Focusing on the factors undermining the realization of disability rights in education, Julia Biermann probes current meanings of inclusive education in two contrasting yet equally challenged state parties to the UN CRPD: Nigeria, whose school system overtly excludes disabled children, and Germany, where this group primarily learns in special schools. In both countries, policy actors aim to realize the right to inclusive education by segregating students with disabilities into special education settings. In Nigeria, this demand arises from the glaring lack of such a system. In Germany, conversely, from its extraordinary long-term institutionalization. This act of diverting from the principles embodied in Article 24 is based on the steadfast and shared belief that school systems, which place students into special education, have an innate advantage in realizing the right to education for persons with disabilities. Accordingly, inclusion emerges to be an evolutionary and linear process of educational expansion that depends on institutionalized special education, not a right of persons with disabilities to be realized in local schools on an equal basis with others. This book proposes a refined human rights model of disability in education that shifts the analytical focus toward the global politics of formal mass schooling as a space where discrimination is sustained.

In Bodyminds Reimagined Sami Schalk traces how black women's speculative fiction complicates the understanding of bodyminds-the intertwinement of the mental and the physical-in the context of race, gender, and (dis)ability. Bridging black feminist theory with disability studies, Schalk demonstrates that this genre's political potential lies in the authors' creation of bodyminds that transcend reality's limitations. She reads (dis)ability in neo-slave narratives by Octavia Butler (Kindred) and Phyllis Alesia Perry (Stigmata) not only as representing the literal injuries suffered under slavery, but also as a metaphor for the legacy of racial violence. The fantasy worlds in works by N. K. Jemisin, Shawntelle Madison, and Nalo Hopkinson-where werewolves have obsessive-compulsive-disorder and blind demons can see magic-destabilize social categories and definitions of the human, calling into question the very nature of identity. In these texts, as well as in Butler's Parable series, able-mindedness and able-bodiedness are socially constructed and upheld through racial and gendered norms. Outlining (dis)ability's centrality to speculative fiction, Schalk shows how these works open new social possibilities while changing conceptualizations of identity and oppression through nonrealist contexts.

A comprehensive and practical resource for all speech and language therapists and students, this book covers all aspects of working with this client group. Written by the author of the hugely successful "Talkabout", each section gives the reader a theoretical background of the subject under discussion, practical suggestions and formats for assessment, a guide to intervention as well as a clear and worked-out example. In addition, the author addresses staff training, group therapy, accessing the criminal justice system and working with a multi-disciplinary team.

In this thought-provoking book, Jan Walmsley and Kelley Johnson discuss participative approaches to research and provide an up-to-date account of inclusive practice with individuals with learning disabilities. Drawing on evidence from two major studies, they explain how lessons learnt from inclusive research in the learning disability field are applicable to others working with marginalized groups. The authors examine the origins and the process of inclusive research, describing: * how and why it takes place * who carries it out * who funds it * how it is designed * how it relates to policy and practice. They look at the challenges inherent in this work, such as balancing the voice of the researcher with that of disabled participants and clarifying roles within research projects, and explore how it can become more inclusive and empowering. Providing valuable information and advice to researchers, policy makers and students as well as other health and social care professionals, this book presents a comprehensive examination of participative research in social care.

Working futures? looks at the current effectiveness and future scope for enabling policy in the field of disability and employment. By addressing the current strengths and weaknesses of disability and employment policy, the book asks Is the dichotomy of 'work for those who can and support for those who cannot' appropriate to the lives of disabled people? Does current and recent policy reduce or reinforce barriers to paid employment? What lessons from other welfare regimes can we draw on to further disabled people's working futures? The book is original in bringing together a wide range of policy insights to bear on the question of disabled people's working futures. It includes analyses of recent policy initiatives as diverse as the Disability Discrimination Act 1995, Draft Disability Bill, the benefits system, New Deal for Disabled People, job retention policy, comparative disability policy, the role of the voluntary sector and 'new policies for a new workplace'. Contributions from academics, NGOs, the OECD and the disabled peoples' movement bring multiple theoretical, professional and user perspectives to the debates at the heart of the book.

Social Work and Disability offers a contemporary and critical exploration of social work practice with people with physical and sensory impairments, an area that has previously been marginalized within both practice and academic literature. It explores how social work practice can, and indeed does, contribute to the promotion of disabled people s rights and the securing of positive outcomes in their lives. The book begins by exploring the ways in which disability is understood and how this informs policy and practice. Opening with a thought-provoking account of the lived experience of a disabled person using social work services, it goes on to critically analyse theory, policy and contemporary legislative change. Inequality, oppression and diversity are the focus of the second section of the book, while the remainder offers an in-depth exploration of the social work practice issues in disability settings, notably work with children, adults and safeguarding. Service-user and carer perspectives, case profiles, reflective activities and suggestions for further reading are included throughout. Social Work and Disability will be essential reading for social work students and practitioners. It will also be of interest to service users and carers, students on health and social care courses, third-sector practitioners and advocates.