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Books > Social sciences > Sociology, social studies > Social issues > Disability: social aspects
Surface Tensions is an expansive, yet intimate study of how people remake themselves after catastrophic bodily change-the loss of limbs, the loss of function, the loss or replacement of organs. Against a sweeping cultural backdrop of art, popular culture, and the history of science and medicine, Manderson uses narrative epistemology based on in-depth interviews with over 300 individuals to show how they re-establish the coherence of their bodies, identities, and biographies. In addition to offering important new insights into the care, rehabilitation, and rehabituation of post-trauma patients, Manderson's work challenges conventional ideas about the nature of embodiment and is an important contribution to medical anthropology, disability studies, and cultural studies.
Many amputees want to know how it feels to be able to cycle, and some even want to be professional amputee cyclists. The disability market offers many options for amputee cycling. This book shows you how to get started and take those exciting first steps on your way to a higher level of mobility and independence. The contributions in this collection are written by some of the best-known amputee cyclists in the world, including Margaret Biggs, Rajesh Durbal, Mark Inglis, and Keira Roche. Their achievements are nothing short of remarkablewhether cycling around a velodrome at the Paralympics or around the world raising funds for charity. This guide offers great advice from experts and ordinary cyclists alike for arm, leg, combination, and all matters of amputee cycling. The book includes tips not only on the vast arrangement of two wheelers, but also tricycles, recumbents, handbikes, tandems, unicycles, electric bikes, and more specialized cycling forms designed for the disability market. The book offers practical tips and stories, imagery, photographs, and much more to help you or a loved one firmly connect with cycling as an activity that can be done despite a disability.
India, officially the Republic of India, is a country in South Asia. It is the seventh-largest country by area, the second-most populous country, and the most populous democracy in the world. In this book we have gathered research papers from India concerned with disability research and prevention issues, health issues, rural health care, childhood immunisation and studies carried out in the slum areas of Delhi. We hope this research will be of interest to the reader.
In this innovative and important study, Heather Tilley examines the huge shifts that took place in the experience and conceptualisation of blindness during the nineteenth century, and demonstrates how new writing technologies for blind people had transformative effects on literary culture. Considering the ways in which visually-impaired people used textual means to shape their own identities, the book argues that blindness was also a significant trope through which writers reflected on the act of crafting literary form. Supported by an illuminating range of archival material (including unpublished letters from Wordsworth's circle, early ophthalmologic texts, embossed books, and autobiographies) this is a rich account of blind people's experience, and reveals the close, and often surprising personal engagement that canonical writers had with visual impairment. Drawing on the insights of disability studies and cultural phenomenology, Tilley highlights the importance of attending to embodied experience in the production and consumption of texts.
Spread out over many years and many different publications, the late author and activist Marta Russell wrote a number of groundbreaking and insightful essays on the nature of disability and oppression under capitalism. In this volume, Russell's various essays are brought together in one place in order to provide a useful and expansive resource to those interested in better understanding the ways in which the modern phenomenon of disability is shaped by capitalist economic and social relations. The essays range in analysis from the theoretical to the topical, including but not limited to: the emergence of disability as a "human category" rooted in the rise of industrial capitalism and the transformation of the conditions of work, family, and society corresponding thereto; a critique of the shortcomings of a purely "civil rights approach" to addressing the persistence of disability oppression in the economic sphere, with a particular focus on the legacy of the Americans with Disabilities Act of 1990; an examination of the changing position of disabled people within the overall system of capitalist production utilizing the Marxist economic concepts of the reserve army of the unemployed, the labor theory of value, and the exploitation of wage-labor; the effects of neoliberal capitalist policies on the living conditions and social position of disabled people as it pertains to welfare, income assistance, health care, and other social security programs; imperialism and war as a factor in the further oppression and immiseration of disabled people within the United States and globally; and the need to build unity against the divisive tendencies which hide the common economic interest shared between disabled people and the often highly-exploited direct care workers who provide services to the former.
'Fascinating ... compelling ... very funny' Sunday Times 'A defiant call to arms ... affecting ... lingers long in the memory after its final page' Morning Star 'A skilful act of literary witness, sharp, moving and funny' Joanne Limburg 'Christoph Keller ... ranks among the great Swiss writers' Neue Zurcher Zeitung Most stories of disability follow a familiar pattern: Life Before Accident. Life After Accident. For Christoph Keller, it was different: his childhood diagnosis with a form of Spinal Muscular Atrophy only revealed what had been with him since birth. SMA III, the 'kindest one', allows those who have it to live a long life, and it progresses slowly. There is no cure. By the age of 25, he had to use a wheelchair some of the time. 'There were two of me: Walking Me. Rolling Me.' By 32, he could still walk into a restaurant with a cane or on somebody's arm. At 45, 'Rolling Me' took over altogether. Intimate, absurdist and winningly frank, Every Cripple a Superhero is at once a memoir of life with a progressive disorder, and a profound exploration of the challenges of loving, being loved, and living a public life - navigating restaurants, aeroplanes, museums and artists' retreats - in a world not designed for you. Threaded throughout are Keller's own photographs of the unexpected beauty found in puddle-filled 'curb cuts', the pavement ramps that, left to disintegrate, form part of the urban obstacle course. Those puddles become portals into a different, truer city; and, as they do, so this book - told with humour and immense grace - begins to uncover a truer world: one where the 'normal' is not normal, where disability is far more widespread than we might think, and where there always exist, just alongside our own, the lives of everyday superheroes.
Autism is a rising epidemic that affects 1 in 68 children. When Jennifer Noonan's son was diagnosed in 2009, she refused to accept the conventional wisdom that autism was largely permanent, instead launching a relentless investigation into the very latest dietary, immunological, and metabolic research available. "I certainly had no reason to believe at that time that autism was treatable," she writes, "but somehow I decided, in my classically pigheaded way, that it would be." This spirited audacity gave her not only courage,and ultimately success,in the face of such a devastating diagnosis, but also a self-aware and darkly funny perspective on her own faults and struggles over the next six years.With equal parts defiance, tenacity, and wry humour, No Map to This Country details one family's journey through the modern autism epidemic, and the lengths to which a mother will go to heal her family. Neither a medical manual nor a heartwarming tale of growth, Noonan's ground-breaking yet profoundly relatable memoir seamlessly combines cutting-edge research with a gripping and unapologetic account of her family's fight for recovery.
In this revised and expanded edition of Medicine Stories, Aurora Levins Morales weaves together insights and lessons learned over a lifetime of activism to offer a new theory of social justice. Calling for a politics of integrity that recognizes the complicated wholeness of individual and collective lives, Levins Morales delves among the interwoven roots of multiple oppressions, exposing connections, crafting strategies, and uncovering the wellsprings of resilience and joy. Throughout these twenty-eight essays-twenty-one of which are new or extensively revised-she exposes the structures and mechanisms that silence voices and divide movements. The result is a medicine bag full of techniques and perspectives to build a universal solidarity that is flexible, nuanced, and strong enough to fundamentally shift our world toward justice. Intimately personal and globally relevant, Medicine Stories brings clarity and hope to tangled, emotionally charged social issues in beautiful and accessible language.
Within the domains of criminal justice and mental health care, critical debate concerning 'care' versus 'control' and 'therapy' versus 'security' is now commonplace. Indeed, the 'hybridisation' of these areas is now a familiar theme. This unique and topical text provides an array of expert analyses from key contributors in the field that explore the interface between criminal justice and mental health. Using concise yet robust definitions of key terms and concepts, it consolidates scholarly analysis of theory, policy and practice. Readers are provided with practical debates, in addition to the theoretical and ideological concerns surrounding the risk assessment, treatment, control and risk management in a cross-disciplinary context. Included in this book is recommended further reading and an index of legislation, making it an ideal resource for students at undergraduate and postgraduate level, together with researchers and practitioners in the field.
On 31st January 2010, Trooper Corie Mapp of The Life Guards was driving his armoured vehicle on combat operations in Afghanistan when it ran over an IED. The explosion that followed caused him massive injuries. But this was not the end of his active life but rather the beginning. The next thing Corie remembers was waking in the Queen Elizabeth Hospital, Selly Oak, Birmingham, not realising that he was a double amputee. Two months later, and having made an almost miraculous against-the-odds recovery, Corie was back with his regiment in Windsor, and continued to serve until 2013. Sport was an important part of Corie's life before the explosion and a vital one after. In rehabilitation, he rediscovered his sporting skills, and competed successful in disabled cricket at a national level, and was a member of Team GB for sitting volley ball and athletics at the Warrior and the Invictus Games. However, when he was offered the chance to bobsleigh, his horizons widened considerably. After just one year of training, in 2014 Corie won gold in the inaugural Para Bobsleigh World Cup competition in St Moritz, was second overall in the World Cup 2014/15 season and became the overall World Cup champion in 2018. In the 2021-22 season, he will continue to train and compete at the highest levels in North America and Europe. On the international bobsleigh circuit he is affectionately known 'Black Ice'. This book is Corie Mapp's remarkable story of triumph over adversity.
Religion plays a critical role in determining how disability is understood and how persons with disabilities are treated. Examining the world's religions through the lens of disability studies not only peers deeply into the character of a particular religion, but also teaches something brand new about what it means to respond to people living with physical and mental differences. Disability and World Religions introduces readers to the rich diversity of the world's religions-Buddhism, Judaism, Islam, Christianity, Hinduism, Confucianism, Daoism, and Native American traditions. Each chapter introduces a specific religious tradition in a manner that offers innovative approaches to familiar themes in contemporary debates about religion and disability, including personhood, autonomy, community, ability, transcendence, morality, practice, the interpretation of texts, and conditioned claims regarding the normal human body or mind. By portraying varied and complex perspectives on the intersection of religion and disability, this volume demonstrates that religious teachings and practices across the globe help establish cultural constructions of normalcy. The volume also interrogates the constructive role religion plays in determining expectations for human physical and mental behavior and in establishing standards for measuring conventional health and well-being. Disability and World Religions thus offers a respectful exploration of global faith traditions and cultivates creative ways to respond to the fields of both religious and disability studies.
The two-volume set LNCS 10896 and 10897 constitutes the refereed proceedings of the 16th International Conference on Computers Helping People with Special Needs, ICCHP 2018, held in Linz, Austria, in July2018. The 101 revised full papers and 78 short papers presented were carefully reviewed and selected from 356 submissions. The papers are organized in the following topical sections: Web accessibility in the connected world; accessibility and usability of mobile platforms for people with disabilities and elderly persons: design, development and engineering; accessible system/information/document design; accessible e-learning - e-learning for accessibility/AT; personalized access to TV, film, theatre, and music; digital games accessibility; accessibility and usability of self-service terminals, technologies and systems; universal learning design; motor and mobility disabilities: AT, HCI, care; empowerment of people with cognitive disabilities using digital technologies; augmented and alternative communication (AAC), supported speech; Art Karshmer lectures in access to mathematics, science and engineering; environmental sensing technologies for visual impairment; 3D printing in the domain of assistive technologies (AT) and do it yourselves (DIY) AT; tactile graphics and models for blind people and recognition of shapes by touch; access to artworks and its mediation by and for visually impaired people; digital navigation for people with visual impairments; low vision and blindness: human computer interaction; future perspectives for ageing well: AAL tools, products, services; mobile healthcare and m-health apps for people with disabilities; and service and information provision.
God created all of us for relationship with God and each other. Yet most people have felt left out at some point. For those with visible or invisible disabilities, attitudes and systems of ableism can particularly lead to deep hurt and barriers to fully participating in God's kingdom work. We all miss out when any members of the body of Christ are not included. In this nine-session LifeGuide(R) Bible study, Deborah Abbs guides you to explore the deep love and acceptance of our heavenly Father and what it means for offering love and acceptance to one another. Through Old and New Testament stories and teachings on Christian community, we see how God responds in love to those who are often marginalized and excluded so that we too can welcome people of all different abilities. For over three decades LifeGuide Bible Studies have provided solid biblical content and raised thought-provoking questions--making for a one-of-a-kind Bible study experience for individuals and groups. This series has more than 130 titles on Old and New Testament books, character studies, and topical studies.
This book provides a diverse range of basic information and practical advice for adults with dyspraxia. Colley is able to describe in detail the impact that coordination and motor learning difficulties can have on many everyday activities, including cooking, shopping, sewing, gardening and swallowing medicines. This book provides a very readable, comprehensive and useful resource for adults with dyspraxia and their carers. It might also be useful for clinicians who are new to the field and have limited practical experience.' - British Journal of Occupational Therapy 'This concise and interestingly written handbook is aimed at helping dyspraxic adults to understand their condition and its impact on work, study, social relationships and leisure activities. It contains practical tips on everyday living, including voice control, body language, cooking, study skills, driving and self-care. Especially fascinating are the accounts by four dyspraxic adults of their own experiences. I would recommend the book to teachers and parents, student therapists and clinicians (especially those working in a multidisciplinary setting) who need an insight into developmental dyspraxia as experienced by adolescent and adult clients and an overview of the help available.' - Speech and Language Therapy in Practice For people with Developmental Dyspraxia, everyday life can pose a multitude of problems. Tasks the majority of people would find simple can often be taxing and fraught with difficulty. Living with Dyspraxia was written to help all adults with Dyspraxia tackle the everyday situations that many people take for granted. It is full of practical advice on everything from getting a diagnosis to learning how to manage household chores. Important topics are addressed, such as self-esteem, whether to disclose your condition within the workplace, how to communicate more effectively and also how Dyspraxia often interacts with other conditions, such as Dyslexia, ADHD and Asperger's Syndrome. This practical resource will be of use to adults with Dyspraxia, the professionals and families members who come into contact with them as well as those who simply wish to learn more about Dyspraxia.
Based on in-depth interviews with eighty people who have epilepsy, this book gives a first-hand account of what it is like to cope with a chronic illness, while working, playing, and building relationships. The authors recount how people discover they have epilepsy and what it means; how families respond to someone labeled 'epileptic'; how seizures affect a person's sense of self and self-control. Epilepsy patients explain what they want from their doctors and why the medication practices they develop may not coincide with 'doctor's orders'. The variety of experiences of epilepsy is suggested both by the interviews and by the range of terms for seizures Petit Mal, Grand Mal, auras, fits, absences. The principal difficulty for many people with epilepsy is not the medical condition but the social stigma. A person with epilepsy has to cope with discrimination in obtaining a job, insurance, or a driver's license, and he or she may be cautious about revealing this 'disabling' condition to an employer or even a spouse. People with epilepsy may manage information about themselves and their 'lapses' and look for 'safe places' like restrooms where they can be alone should a seizure begin. Many of those interviewed complained of overreactions to seizures by colleagues or bystanders: epilepsy patients were embarrassed at having provoked a public crisis or were annoyed at waking up in a hospital emergency room. This is a book for people who have epilepsy, for their families and friends; for health care professionals who deal with chronic illnesses; and, for students of medical sociology and the sociology of deviance. Joseph W. Schneider is Associate Professor of Sociology at Drake University. Peter Conrad is Assistant Professor of Sociology at Brandeis University.
Featuring contributed chapters from experts within the discipline, Fundamentals of Clinical Rehabilitation Counseling provides readers with a vast range of knowledge and skills to help them work effectively with individuals with disabilities. The text familiarizes readers with chief concepts and prepares them to move into expanded explorations of these topics as they continue their education and training within the field. The textbook opens with an overview of the historical context of clinical rehabilitation counseling, relevant rehabilitation legislation, a global perspective of disability, the impact of abuse and neglect on persons with disabilities, and the applicability of ethical concepts in clinical rehabilitation counseling. Additional chapters introduce the concepts of vocational rehabilitation, work and disability, as well as the role of assessment, case management, independent living, assistive technology, and forensic rehabilitation within the discipline. Readers are presented with applicable concepts that speak to the challenges clinical rehabilitation counselors are called upon to champion when aiding people with disabilities to improve their quality of life on a global scale. Fundamentals of Clinical Rehabilitation Counseling is an exemplary textbook for courses in clinical rehabilitation counseling and clinical mental health counseling.
This Companion analyzes the representation of disability in literatures in English, including American and postcolonial writing, across all major time periods and through a variety of critical approaches. Through the alternative ideas of mind and embodiment generated by physiological and psychological impairments, an understanding of disability narrative changes the way we read literature. With contributions from major figures in literary disability studies, The Cambridge Companion to Literature and Disability covers a wide range of impairments, including cognitive difference, neurobehavioral conditions, and mental and chronic illnesses. This book shows how disability demands innovation in literary form and aesthetics, challenges the notion of a human 'norm' in the writing of character, and redraws the ways in which writing makes meaning of the broad spectrum of humanity. It will be a key resource for students and teachers of disability and literary studies.
In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women's Health Project alongside interviews with contemporary Black disabled cultural workers, Schalk identifies common qualities of Black disability politics, including the need to ground public health initiatives in the experience and expertise of marginalized disabled people so that they can work in antiracist, feminist, and anti-ableist ways. Prioritizing an understanding of disability within the context of white supremacy, Schalk demonstrates that the work of Black disability politics not only exists but is essential to the future of Black liberation movements.
Introduces key ideas and offers a sense of the new frontiers and questions in the emerging field of disability media studies Disability Media Studies articulates the formation of a new field of study, based in the rich traditions of media, cultural, and disability studies. Necessarily interdisciplinary and diverse, this collection weaves together work from scholars from a variety of disciplinary homes, into a broader conversation about exploring media artifacts in relation to disability. The book provides a comprehensive overview for anyone interested in the study of disability and media today. Case studies include familiar contemporary examples-such as Iron Man 3, Lady Gaga, and Oscar Pistorius-as well as historical media, independent disability media, reality television, and media technologies. The contributors consider disability representation, the role of media in forming cultural assumptions about ability, the construction of disability via media technologies, and how disabled audiences respond to particular media artifacts. The volume concludes with afterwords from two different perspectives on the field-one by disability scholar Rachel Adams, the other by media scholars Mara Mills and Jonathan Sterne-that reflect upon the collection, the ongoing conversations, and the future of disability media studies. Disability Media Studies is a crucial text for those interested in this flourishing field, and will pave the way for a greater understanding of disability media studies and its critical concepts and conversations.
Challenging existing approaches to autism that limit, and sometimes damage, the individuals who attract and receive the label, this book questions the lazy prejudices and assumptions that can surround autism as a diagnosis in the 21st Century. Arguing that autism can only be understood through examining 'it' as a socially or culturally produced phenomenon, the authors offer a critique of the medical model that has produced a perpetually marginalising approach to autism, and explain the contradictions and difficulties inherent in existing attitudes. They examine and dispute the scientific validity of diagnosis and 'treatment', asking whether autism actually exists at the biological level, and question the value of diagnosis in the lives of those labelled with autism. The book recognises that there are no easy answers but encourages engagement with these essential questions, and looks towards service provision and practice that moves beyond a reliance on all-encompassing labels. This unique contribution to the growing field of critical autism studies brings together authors from clinical psychiatry, clinical and community psychology, social sciences, disability studies, education and cultural studies, as well as those with personal experiences of autism. It is essential and challenging reading for anyone with a personal, professional or academic interest in 'autism'.
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