Debating Human Genetics is based on ethnographic research
focusing primarily on the UK publics who are debating and engaging
with human genetics, and related bio and techno-science. Drawing on
recent interviews and data, collated in a range of public settings,
it provides a unique overview of multiple publics as they 'frame'
the stake of the debates in this emerging, complex and
controversial arena.
The book outlines key sites and applications of human genetics
that have sparked public interest, such as biobanks, stem cells,
genetic screening and genomics. It also addresses the 'scientific
contoversies' that have made considerable impact in the public
sphere - the UK police DNA database, gene patenting, 'saviour
siblings', and human cloning. By grounding the concepts and issues
of human genetics in the real life narratives and actions of
patient groups, genetic watchdogs, scientists, policy makers, and
many other public groups, the book exemplifies how human genetics
is a site where public knowledge and value claims converge and
collide, and identifies the emergence of 'hybrid publics' who are
engaging with this hybrid science.
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