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The Woman Who Walked into the Sea - Huntington's and the Making of a Genetic Disease (Paperback)
Loot Price: R1,185
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The Woman Who Walked into the Sea - Huntington's and the Making of a Genetic Disease (Paperback)
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A groundbreaking medical and social history of a devastating
hereditary neurological disorder once demonized as “the
witchcraft disease” When Phebe Hedges, a woman in East Hampton,
New York, walked into the sea in 1806, she made visible the
historical experience of a family affected by the dreaded disorder
of movement, mind, and mood her neighbors called St.Vitus's dance.
Doctors later spoke of Huntington’s chorea, and today it is known
as Huntington's disease. This book is the first history of
Huntington’s in America. Starting with the life of Phebe Hedges,
Alice Wexler uses Huntington’s as a lens to explore the changing
meanings of heredity, disability, stigma, and medical knowledge
among ordinary people as well as scientists and physicians. She
addresses these themes through three overlapping stories: the lives
of a nineteenth-century family once said to “belong to the
disease”; the emergence of Huntington’s chorea as a clinical
entity; and the early-twentieth-century transformation of this
disorder into a cautionary eugenics tale. In our own era of
expanding genetic technologies, this history offers insights into
the social contexts of medical and scientific knowledge, as well as
the legacy of eugenics in shaping both the knowledge and the lived
experience of this disease.
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