As world populations continue to age, the incidence of very
common, ultimately fatal neurodegenerative diseases (some of
medicine's most puzzling illnesses) will increase exponentially.
Neurogenetic Diagnoses, the Power of Hope, and the Limits of
Today's Medicine explores the diverse impacts and intense meanings
of genetic diagnoses for patients suffering from such diseases, and
for their family caregivers and clinicians. Through
richly-textured, often heart-wrenching longitudinal case studies,
Neurogenetic Diagnoses... reveals how extremely difficult it can be
for patients to obtain a definitive diagnosis for the cause of
their symptoms, even with genetic testing; how, with or without
definitive diagnoses, patients and family caregivers strive to come
to terms with their situations; and how they are aided (or not) in
these endeavors by their doctors. The analysis is framed by
increasingly sharp social debate over the consequences of decoding
the human genome -- and the impact of genetic technology on our
lives.
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