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Books > Social sciences > Politics & government > Central government > Central government policies
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The Right to Try (Paperback)
Loot Price: R529
Discovery Miles 5 290
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The Right to Try (Paperback)
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Loot Price R529
Discovery Miles 5 290
Expected to ship within 10 - 15 working days
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Why should you need the government's permission to save your own
life?Jenn McNary's two sons, Max and Austin, were diagnosed with
Duchenne muscular dystrophy--a fatal disorder that leads to muscle
degeneration and eventually death. In a cruel and unnecessary
twist, Max received access to a clinical trial; Austin didn't. As a
result, Max was able to get out of his wheelchair and play on his
school soccer team while Austin continued to deteriorate until he
could not even feed himself.The FDA takes as long as fifteen years
to approve a new drug, demanding near-absolute proof of
effectiveness before allowing commercial distribution. But this
ignores the urgent plight of millions of terminally ill Americans
who have run out of approved options--and are running out of time.
These patients are not looking for a 100 percent guarantee that a
treatment will work for them. They are looking for a fighting
chance.Why can't they have that chance? Why don't they have the
right to try . . . the right to save their own lives?Author and
activist Darcy Olsen, president of the Goldwater Institute, tells
the remarkable story behind the Right to Try movement, the national
campaign to give dying Americans access to cutting-edge treatments
that are under study but still years away from receiving the FDA's
green light. The men, women, and children featured in these pages
are our own family members, friends, and neighbors. Their
heartbreaking, triumphant, and inspirational stories prove the
necessity for Right to Try laws. Because everyone deserves the
Right to Try.
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