With a foreword by Judy Woodruff, The Unexpected Journey of Caring
is a practical guide to finding personal meaning in the 21st
century care experience. Personal transformation is usually an
experience we actively seek out-not one that hunts us down.
Becoming a caregiver is one transformation that comes at us,
requiring us to rethink everything we once knew. Everything
changes-responsibilities, beliefs, hopes, expectations, and
relationships. Caregiving is not just a role reserved for
"saints"-eventually, everyone is drafted into the caregiver role.
It's not a role people medically train for; it's a new type of
relationship initiated by a loved one's need for care. And it's a
role that cannot be quarantined to home because it infuses all
aspects of our lives. Caregivers today find themselves in need of a
crash course in new and unfamiliar skills. They must not only care
for a loved one, but also access hidden community resources,
collaborate with medical professionals, craft new narratives
consistent with the changing nature of their care role, coordinate
care with family, seek information and peer support using a variety
of digital platforms, and negotiate social support-all while
attempting to manage conflicts between work, life, and relationship
roles. The moments that mark us in the transition from loved one to
caregiver matter because if we don't make sense of how we are being
transformed, we risk undervaluing our care experiences, denying our
evolving beliefs, becoming trapped by other's misunderstandings,
and feeling underappreciated, burned out, and overwhelmed. Informed
by original caregiver research and proven advocacy strategies, this
book speaks to caregiving as it unfolds, in all of its confusion,
chaos, and messiness. Readers won't find well-intentioned cliches
or care stereotypes in this book. There are no promises to help
caregivers return to a life they knew before caregiving. No, this
book greets caregivers where they are in their journey-new or
chronic-not where others expect (or want) them to be.
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