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Books > Medicine > General issues > Medical equipment & techniques > Medical research
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G3P - Good Privacy Protection Practice in Clinical Research - Principles of Pseudonymization and Anonymization (Hardcover, Digital original)
Loot Price: R5,007
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G3P - Good Privacy Protection Practice in Clinical Research - Principles of Pseudonymization and Anonymization (Hardcover, Digital original)
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Establishing ethical and privacy protection aspects in scientific
research, especially in medical research, has a long history.
Medical data are usually more sensible than other personal data and
require therefore an even higher degree of protection than other
personal data. In recent research projects genetic evaluations
become more and more important and trigger thereby new and
continuing activities in the context of data protection. Genetic
data as a subset of medical data are the most sensible category of
personal data and require therefore the highest degree of data
protection. The book provides a systematic and itemized approach to
data protection in clinical research including the handling of
genetic material, genetic samples as well as derived genetic data
and the subsequent secure storage of them. The set up of different
kinds of clinical trials having in addition a genetic part, the
concept of a genetic informed consent as well as collection schemes
of samples are described in detail. Technical requirements and
aspects of data protection including pseudonymization and
anonymization procedures taking into account ethics committees
requirements as well as the underlying legal framework are also
presented. Without any exception, all principles and methods
presented are best practices, repeatedly applied in different
clinical environments and by no means theoretical considerations.
General
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