There are around 5,000 patients in the UK living with Motor Neuron
Disease (amyotrophic lateral sclerosis), and many others
shouldering the burden of their care. This fatal neurodegenerative
disease leads to progressive muscle weakness and wasting, and there
is currently non effective treatment. Managing these patients from
their initial presentation, through confirmation of diagnosis and
throughout their disease journey is challenging for all healthcare
professionals. It requires a multi-disciplinary approach involving
neurologists, general practitioners, palliative care physicians,
specialist nurses, physiotherapists, occupational therapists, and
speech and language therapists. Each member of the team has
different priorities to effectively manage the myriad of symptoms
and other practical difficulties, both emotional and financial,
that the MND patient may experience.
This book is a comprehensive guide to the complexities of care for
the patient with Motor Neuron Disease, written by experienced
members of a large care center. It has been specifically written
and designed to provide comprehensive, easily accessible advice for
all healthcare professionals involved in the care of patients with
this challenging condition, including diagnostic, prognostic,
physical, emotional, and practical challenges. The entire care
pathway from presentation to diagnosis to symptom management and
end of life issues is addressed in detail, but in a highly
structured, easily accessible format that allows the reader to find
practical answers rapidly. This book is an invaluable resource for
neurologists (including those in training), neurology wards and
specialty nurses, physiotherapists, occupational therapists, speech
and language therapists, respiratory and gastroenterology
departments providing NIV or PEG support, palliative care teams,
and all healthcare professionals with an interest in MND patients.
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