Advances in molecular genetics have led to the increasing
availability of genetic testing for a variety of inherited
disorders. While this new knowledge presents many obvious health
benefits to prospective individuals and their families it also
raises complex ethical and moral dilemmas for families as well as
genetic professionals. This book explores the ways in which genetic
testing generates not only probabilities of potential futures, but
also enjoys new forms of social, individual and professional
responsibility. Concerns about confidentiality and informed consent
involving children, the assessment of competence and maturity, the
ability to engage in shared decision-making through acts of
disclosure and choice, are just some of the issues that are
examined in detail.
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