Involving avid travelers father jaguar and the cub, and a
supersmart kid Evan Messenger, this book is packed with
descriptions of the rare pediatric diseases that are poorly
attended due to the health insurance constraints: Batten disease,
Carpenter syndrome, Ellis van Creveld syndrome, Fucosidosis,
Gaucher disease, Krabbe disease, Legg-Calve-Perthes disease,
Niemann-Pick disease, and Prune Belly syndrome. An awareness
raising brochure, it is dedicated to the Global Health Humanitarian
Summit that takes place each year at Emory University, Atlanta, GA.
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