Zilinskas and Balint and their contributors examine the
divisions between minority groups and the scientific community,
particularly in the area of medical and genetic research.
Minorities have reasons to be skeptical of medical research in
general and genetics research in particular. The sad history of the
Tuskegee experiment, in which black men with syphilis were left
untreated so that the course of the disease could be studied,
undermined confidence in the ethics of medical researchers. More
recently, publication of "The Bell Curve" reanimated controversy
over purported genetic distinctions among the races that could have
powerfully negative social implications.
In contrast, as the essays make clear, the Human Genome Project,
conducted in accordance with the highest ethical standards, has the
potential to make dramatic positive contributions to the health of
all human beings. Members of minority communities in
particular--who statistically are at high risk of adverse health
outcomes in the United States--have much to gain from innovative
medical diagnostics and therapies that will result from the study
of human genetics. Therefore, if we are to benefit fully from this
new knowledge, it is vital that the distrust, skepticism, and
misconceptions relating to genetics research be overcome. This is a
provocative collection for scholars, students, researchers, and
community leaders involved with minority and public health
issues.
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