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Dignity for Deeply Forgetful People - How Caregivers Can Meet the Challenges of Alzheimer's Disease (Hardcover)
Loot Price: R1,488
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Dignity for Deeply Forgetful People - How Caregivers Can Meet the Challenges of Alzheimer's Disease (Hardcover)
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For caregivers of deeply forgetful people: a book that combines new
ethics guidelines with an innovative program on how to communicate
and connect with people with Alzheimer's. How do we approach a
"deeply forgetful" loved one so as to notice and affirm their
continuing self-identity? For three decades, Stephen G. Post has
worked around the world encouraging caregivers to become more aware
of-and find renewed hope in-surprising expressions of selfhood
despite the challenges of cognitive decline. In this book, Post
offers new perspectives on the worth and dignity of people with
Alzheimer's and related disorders despite the negative influence of
"hypercognitive" values that place an ethically unacceptable
emphasis on human dignity as based on linear rationality and
strength of memory. This bias, Post argues, is responsible for the
abusive exclusion of this population from our shared humanity. With
vignettes and narratives, he argues for a deeper dignity grounded
in consciousness, emotional presence, creativity, interdependence,
music, and a self that is not "gone" but "differently abled." Post
covers key practical topics such as: * understanding the experience
of dementia * noticing subtle expressions of continuing selfhood,
including "paradoxical lucidity" * perspectives on ethical
quandaries from diagnosis to terminal care and everything in
between, as gleaned from the voices of caregivers * how to
communicate optimally and use language effectively * the value of
art, poetry, symbols, personalized music, and nature in revealing
self-identity * the value of trained "dementia companion" dogs At a
time when medical advances to cure these conditions are still out
of reach and the most recent drugs have shown limited
effectiveness, Post argues that focusing discussion and resources
on the relational dignity of these individuals and the respite
needs of their caregivers is vital. Grounding ethics on the equal
worth of all conscious human beings, he provides a cautionary
perspective on preemptive assisted suicide based on cases that he
has witnessed. He affirms vulnerability and interdependence as the
core of the human condition and celebrates caregivers as advocates
seeking social and economic justice in an American system where
they and their loved ones receive only leftover scraps. Racially
inclusive and grounded in diversity, Dignity for Deeply Forgetful
People also includes a workshop appendix focused on communication
and connection, "A Caregiver Resilience Program," by Rev. Dr. Jade
C. Angelica.
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