Achieving Justice in Genomic Translation - Re-Thinking the Pathway to Benefit (Hardcover, New)

This book explores implicit choices made by researchers, policy makers, and funders regarding who benefits from society's investment in health research. The authors focus specifically on genetic research and examine whether such research tends to reduce or exacerbate existing health disparities. Using case examples to illustrate the issues, the authors trace the path of genetics research from discovery, through development and delivery, to health outcomes. Topics include breast cancer screening and treatment, autism research, pharmacogenetics, prenatal testing, newborn screening, and youth suicide prevention. Each chapter emphasizes the societal context of genetic research and illustrates how science might change if attention were paid to the needs of marginalized populations. Written by experts in genetics, health, and philosophy, this book argues that the scientific enterprise has a responsibility to respond to community needs to assure that research innovations achieve much needed health impacts.

General

Imprint:	Oxford UniversityPress
Country of origin:	United States
Release date:	October 2011
First published:	September 2011
Editors:	Wylie Burke (Professor and Chair) • Kelly A Edwards (Associate Professor, Department of Bioethics and Humanities; Co-Investigator, Center for Genomics and Healthcare Equality) • Sara Goering (Assistant Professor of Philosophy) • Suzanne Holland (Professor of Ethics and Religion) • Susan Brown Trinidad (Qualitative Researcher)
Dimensions:	233 x 152 x 19mm (L x W x T)
Format:	Hardcover - Cloth over boards
Pages:	224
Edition:	New
ISBN-13:	978-0-19-539038-4
Categories:	Books > Medicine > General issues > Medical ethics Books > Medicine > Pre-clinical medicine: basic sciences > Medical genetics Books > Medicine > General issues > Medical equipment & techniques > Medical research
LSN:	0-19-539038-5
Barcode:	9780195390384

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