* The book is balanced and comprehensive, recognising that both affordability and investment into innovation are necessary * The book is original, using ecological concepts to understand pharmaceutical innovation as an ecosystem. * The book is unique in its research foundation, building on the views of more than 70 expert informants from all parts of the pharmaceutical innovation ecosystem and all sides of the debate about drug pricing.

The COVID-19 pandemic upended the lives of many and taught us the critical importance of taking care of one's health and wellness. Technological advances, coupled with advances in healthcare, has enabled the widespread growth of a new area called mobile health or mHealth that has completely revolutionized how people envision healthcare today. Just as smartphones and tablet computers are rapidly becoming the dominant consumer computer platforms, mHealth technology is emerging as an integral part of consumer health and wellness management regimes. The aim of this book is to inform readers about the this relatively modern technology, from its history and evolution to the current state-of-the-art research developments and the underlying challenges related to privacy and security issues. The book's intended audience includes individuals interested in learning about mHealth and its contemporary applications, from students to researchers and practitioners working in this field. Both undergraduate and graduate students enrolled in college-level healthcare courses will find this book to be an especially useful companion and will be able to discover and explore novel research directions that will further enrich the field.

The COVID-19 pandemic upended the lives of many and taught us the critical importance of taking care of one's health and wellness. Technological advances, coupled with advances in healthcare, has enabled the widespread growth of a new area called mobile health or mHealth that has completely revolutionized how people envision healthcare today. Just as smartphones and tablet computers are rapidly becoming the dominant consumer computer platforms, mHealth technology is emerging as an integral part of consumer health and wellness management regimes. The aim of this book is to inform readers about the this relatively modern technology, from its history and evolution to the current state-of-the-art research developments and the underlying challenges related to privacy and security issues. The book's intended audience includes individuals interested in learning about mHealth and its contemporary applications, from students to researchers and practitioners working in this field. Both undergraduate and graduate students enrolled in college-level healthcare courses will find this book to be an especially useful companion and will be able to discover and explore novel research directions that will further enrich the field.

"Health Disparities Among Under-served Populations: Implications for Research, Policy and Praxis", focuses on a topic of national concern. Both disparities in health status and in health care reflect the continuing power of race, social class, and gender as forces that define the social determinants of health and the social, biological, and physical environments where groups live. Chapters focus on key issues that include substance abuse, psychological coping, trauma, infant mortality, HPV, environmental hazards, teen pregnancy, homeless youth, racism, discrimination, and cultural competence. The scholars who have contributed to this volume showcase their insight and keen analyses of these pressing issues through a variety of lenses, including but not limited to, sociology, economics, psychology, education, public health, history, urban studies, nursing, and environmental activism. This anthology critically examines the devastating impact of race, class, and gender on the health and health care of African Americans, Latinos and American Indians, with particular focus on children and adolescents.

This book analyses the development and use of mathematical models in public health research and policy. By introducing a life cycle metaphor, the author provides a unique perspective on how mathematical modelling techniques have increased our understanding of the governance of infectious risks in society.

This book presents recent work on healthcare management and engineering using artificial intelligence and data mining techniques. Specific topics covered in the contributed chapters include predictive mining, decision support, capacity management, patient flow optimization, image compression, data clustering, and feature selection. The content will be valuable for researchers and postgraduate students in computer science, information technology, industrial engineering, and applied mathematics.

This provocative and timely book examines the current state of primary care practice and outlines a new vision for the delivery of primary care services, primarily in the UK but also internationally. Encouraging a social compact between citizens, governments and the providers of care, the book describes how this will necessitate a redesign of the welfare sector to ensure it is 'fit for purpose' in the digital world. It explores the respective roles of the inverse care law and the rule of halves, systems theory and learning organisations, mutuality and active citizenship, and how these can be applied to improve service delivery. Key Features Offers an alternative approach to thinking and a challenge to leaders within primary care and to those with administrative responsibility for the sector Reflects the multiple challenges facing primary care, including the rise in frail elderly patients, increasing multi-morbidities, the impact of changing demography with migration and much more Sets these challenges in a context of increasing workforce pressures, including changing attitudes to professionalism, burnout and recruitment difficulties Outlines a road map for improvement, responding to current challenges around social care as well as digital/e-health Aimed at, and written for, all those committed to improving the future of the primary care sector in the UK and internationally, this important book will be of interest to students, clinicians, managers, commissioners, policy makers and service users.

Clinical Decision Support and Beyond: Progress and Opportunities in Knowledge-Enhanced Health and Healthcare, now in its third edition, discusses the underpinnings of effective, reliable, and easy-to-use clinical decision support systems at the point of care as a productive way of managing the flood of data, knowledge, and misinformation when providing patient care. Incorporating CDS into electronic health record systems has been underway for decades; however its complexities, costs, and user resistance have lagged its potential. Thus it is of utmost importance to understand the process in detail, to take full advantage of its capabilities. The book expands and updates the content of the previous edition, and discusses topics such as integration of CDS into workflow, context-driven anticipation of needs for CDS, new forms of CDS derived from data analytics, precision medicine, population health, integration of personal monitoring, and patient-facing CDS. In addition, it discusses population health management, public health CDS and CDS to help reduce health disparities. It is a valuable resource for clinicians, practitioners, students and members of medical and biomedical fields who are interested to learn more about the potential of clinical decision support to improve health and wellness and the quality of health care.

In recent years, there has been steady increase in the interest shown in both big data analytics and the use of information technology (IT) solutions to improve healthcare services. Despite the growing interest, there are limited materials, to addressing the needs and challenges posed by the activities and processes including the use of big data. From IT solutions' perspectives, this book aims to advance the deployment and use of big data analytics to increase patients' big data usefulness and improve healthcare service delivery. The book provides significant insights and useful guide on how to access and manage big data, in improving healthcare service delivery. The book contributes a fresh perspective, which primarily comes from the complementary use of analytics approach with actor-network theory (ANT), and other techniques, in advancing healthcare service delivery. Accessing and managing healthcare big data have always been a challenging exercise. Due to the sensitivity of the health sector, the focus on patients' big data is from either technical or social perspective. Thus, the book employs sociotechnical theories, ANT and structuration theory (ST) as lenses to examine and explain the factors that enable and constrain the use of patients' big data for health services. By doing so, the book brings a different dimension and advance health service delivery. Providing a timely and important contribution to this critical area, this book is a valuable, international resource for academics, postgraduate students and researchers in the areas of IT, big data analytics, data management and health informatics.

Unique selling point: Combines theory with practice and applications for advanced intelligent healthcare informatics Core audience: Researchers and academics in healthcare informatics and machine learning Place in the market: Reference work

Protecting Patient Information: A Decision-Maker's Guide to Risk, Prevention, and Damage Control provides the concrete steps needed to tighten the information security of any healthcare IT system and reduce the risk of exposing patient health information (PHI) to the public. The book offers a systematic, 3-pronged approach for addressing the IT security deficits present in healthcare organizations of all sizes. Healthcare decision-makers are shown how to conduct an in-depth analysis of their organization's information risk level. After this assessment is complete, the book offers specific measures for lowering the risk of a data breach, taking into account federal and state regulations governing the use of patient data. Finally, the book outlines the steps necessary when an organization experiences a data breach, even when it has taken all the right precautions.

This volume presents state-of-the-art reporting on how to measure many of the key variables in health communication. While the focus is on quantitative measures, the editors argue that these measures are centrally important to the study of health communication. The chapters emphasize constructs, scales, and up-to-date reports and evidence about key social science constructs and ways of measuring them, whether your interest is in patient-provider dyadic communication, uncertainty management, self-efficacy, disclosure, social norms, social support, risk perception, health care team performance, message design and effects, health and numerical literacy, communication satisfaction, social influence and persuasion, stigma, health campaigns, reactance, or other topics. Students, researchers, and policymakers will find this book an accessible resource for planning and reviewing research studies and proposals.

Typically entrenched and systemic, healthcare problems require the sort of comprehensive solutions that can only be addressed by a change in culture and a shift in thinking. Organizations around the world are using Lean to redesign care and improve processes in a way that achieves and sustains meaningful results for patients, staff, physicians, and health systems. This book demonstrates how honest appraisal, intelligent planning, and vigilant follow-up have led to dramatic improvements in a variety of healthcare settings across the world. It teaches us how innovative organizations can find sustainable solutions to seemingly intractable problems by following a path guided by Lean Thinking. Lean methods may not solve every healthcare problem, but as these cases prove, changing a culture rather than personnel results in more effective sustainable change. This multi-authored book provides expert descriptions of Lean methods and their application in healthcare, written by the people who developed and tested the methods in healthcare settings. Each chapter brings together a description of the technique or approach, with examples of application in practice from the author's own practice. Authors use an engaging approach to their narrative, with examples from their personal experience or engagement being described to illustrate the practical application of theoretic approaches. In painting a picture of the environment in which these tools and techniques have been applied, readers will understand the transferability to their own workplace environment. This will be an opportunity to tell real stories of the application of Lean in healthcare and give readers the opportunity to learn from people from across the world, on subjects on which they are acknowledged topic experts, based on day-to-day Lean practice.

Over the past decade or so, we have seen a multitude of improvement programmes and projects to improve the safety of patient care in healthcare. However, the full potential of these efforts and especially those that seek to address an entire system has not yet been reached. The current pandemic has made this more evident than ever. We have tended to focus on problems in isolation, one harm at a time, and our efforts have been simplistic and myopic. If we are to save more lives and significantly reduce patient harm, we need to adopt a holistic, systematic approach that extends across cultural, technological, and procedural boundaries. Patient Safety Now is about the fact that it is time to care for everyone impacted by patient safety, how we need to take the time to care for everyone in a meaningful way and how hospitals need to enable staff time to care safely. This book builds on the author's two previous books on patient safety. Rethinking Patient Safety talked about ways in which we need to rethink patient safety in healthcare and describes what we've learned over the last two decades. Implementing Patient Safety talked about what we can do differently and how we can use those lessons learned to improve the way we implement patient safety initiatives and encourage a culture of safety across a healthcare system. Patient Safety Now unites the concepts, theories and ideas of the previous two books with updated material and examples, including what has been learned by patient safety specialists during a pandemic. Patient Safety Now provides the reader with a unique view of patient safety that looks beyond the traditional negative and retrospective approach to one that is proactive and recognizes the impact of conditions, behaviours and cultures that exist in healthcare on everyone. It is written not only for healthcare professionals and patient safety personnel, but for patients and their families who all want the same thing. Too often when things go wrong, relationships quickly become adversarial when in fact this can be avoided by recognizing that, rather than being in separate camps, there are shared needs and goals in relations to patient safety.

"The authors in this inspiring volume focus on the socially transformative potential narrative has to shape understandings of albinism in Africa. Scholars and activists, they reflect on how traditional beliefs, literary fiction, radio, music, photography, film and the arts can bring about social change, and also educate publics about albinism." (Carli Coetzee, Editor, Journal of African Cultural Studies) "Highly intriguing and skillfully nuanced, this book evaluates several methods of advocacy on behalf of people with albinism from Africa, who often face stigma and physical attacks. The result is a rich commentary on what has worked, what didn't and why. This is recommended reading for anyone engaging in advocacy for any marginalized group in parts of Africa and elsewhere." (Ikponwosa Ero, Former UN Independent Expert on the enjoyment of human rights by persons with albinism) The challenges currently faced by people with albinism in many African countries are increasingly becoming a focus of African writers, storytellers, artists and filmmakers across the continent. At the same time, a growing number of advocates and activists are taking account of the power of cultural representation and turning to the arts to convey important messages about albinism - and disability more broadly - to audiences locally and internationally. This volume focuses on the power of cultural representations of albinism, taking into account their real-world effects and implications. Contributions from academics and albinism advocates range across traditional beliefs, literature, radio, newsprint, the media, film and the arts for public engagement, contending that all forms of representation have an important role to play in building sensitivity to the issues related to albinism amongst national and international audiences. Contributors draw attention to the implications of different forms of cultural representation, the potential of these different forms to open up new discursive spaces for the expression of identities and the articulation or critique of particularly difficult issues, and their potential to evoke far-reaching social change.

Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a reality Medicine has been personal long before the concept of "personalized medicine" became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated for new treatments. Given this history, why has the notion of personalized medicine gained so much traction at the beginning of the new millennium? Personalized Medicine investigates the recent movement for patients' involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare. While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society. Bringing together empirical work and critical scholarship from medicine, public health, data governance, bioethics, and digital sociology, Personalized Medicine analyzes the challenges of personalization driven by patient work and data. This compelling volume proposes an understanding that uses novel technological practices to foreground the needs and interests of patients, instead of being ruled by them.

In nowadays aging society, many people require mobility assistance. Sometimes, assistive devices need a certain degree of autonomy when users' disabilities difficult manual control. However, clinicians report that excessive assistance may lead to loss of residual skills and frustration. Shared control focuses on deciding when users need help and providing it. Collaborative control aims at giving just the right amount of help in a transparent, seamless way. This book presents the collaborative control paradigm. User performance may be indicative of physical/cognitive condition, so it is used to decide how much help is needed. Besides, collaborative control integrates machine and user commands so that people contribute to self-motion at all times. Collaborative control was extensively tested for 3 years using a robotized wheelchair at a rehabilitation hospital in Rome with volunteer inpatients presenting different disabilities, ranging from mild to severe. We also present a taxonomy of common metrics for wheelchair navigation and tests are evaluated accordingly. Obtained results are coherent both from a quantitative and qualitative point of view.

Fully updated edition of the bestselling book in healthcare operations. Practical case studies are used throughout to provide invaluable resources for training students and practitioners in healthcare. An ideal resource for students of healthcare management at both undergraduate and postgraduate levels. It can also be used by practitioners. The book translates complex operational models for busy practising healthcare professionals so that the methods can be easily applied to a workplace scenario.

This book explores the emerging economic reality of health data pools from the perspective of European Union policy and law. The contractual sharing of health data for research purposes is giving rise to a free movement of research data, which is strongly encouraged at European policy level within the Digital Single Market Strategy. However, it has also a strong impact on data subjects' fundamental right to data protection and smaller businesses and research entities ability to carry out research and compete in innovation markets. Accordingly the work questions under which conditions health data sharing is lawful under European data protection and competition law. For these purposes, the work addresses the following sub-questions: i) which is the emerging innovation paradigm in digital health research?; ii) how are health data pools addressed at European policy level?; iii) do European data protection and competition law promote health data-driven innovation objectives, and how?; iv) which are the limits posed by the two frameworks to the free pooling of health data? The underlying assumption of the work is that both branches of European Union law are key regulatory tools for the creation of a common European health data space as envisaged in the Commissions 2020 European strategy for data. It thus demonstrates that both European data protection law, as defined under the General Data Protection Regulation, and European competition law and policy set research enabling regimes regarding health data, provided specific normative conditions are met. From a further perspective, both regulatory frameworks place external limits to the freedom to share (or not share) research valuable data.

Patient mobility across Europe is markedly increasing and new generations will actively ask to be treated by the health-care system that best meets their needs. At a political level, the EU issued the EU Directive no. 24/2011/CE of 9th March 2011 concerning the application of patients' rights in cross-border health care andhas contributed to improving the level of freedom of choice for the European citizen, but it does not seem to have increased actual patient mobility across Europe. Freedom to choose is necessary to grant the people of Europe the same access to public-sector health-care services. The latter is a key instrument for an efficiently functioning "single market" ensuring real mobility within the EU.

The aim of this book is to study the current European health care market and discuss the hypothesis of a European right of citizenship with reference to health-care services. It examines patients' mobility from several perspectives: determinants of patient mobility, governance of cross-border mobility at EU level as concerns patients and health-care professionals, policy implications, and case studies. It is intended for health researchers, decision-makers and professionals concerned with health-care provision and patient mobility. The goal is to provide, through scientific and methodological rigor, new informative tools useful for the implementation of new policies in the health-care sector in order to implement effective health-care integration in the European Union."

In this history of American political culture, Keith Wailoo examines how pain has defined the line between liberals and conservatives from just after World War II to the present. From disabling pain to end-of-life pain to fetal pain, the battle over whose pain is real and who deserves relief has created stark ideological divisions at the bedside, in politics, and in the courts. Beginning with the return of soldiers after World War II and fierce medical and political disagreements about whether pain constitutes a true disability, Wailoo explores the 1960s rise of an expansive liberal pain standard along with the emerging conviction that subjective pain was real, disabling, and compensable. These concepts were attacked during the Reagan era, when a conservative backlash led to diminished disability aid and an expanding role of courts as arbiters in the politicized struggle to define pain. New fronts in pain politics opened nationwide as advocates for death with dignity insisted that end-of-life pain warranted full relief, while the religious right mobilized around fetal pain. The book ends with the 2003 OxyContin arrest of conservative talk show host Rush Limbaugh, a cautionary tale about deregulation and the widening gaps between the overmedicated and the undertreated.

The rise and spread of Covid-19 in the beginning of 2020 presents a once-in-a-century challenge and opportunity for decision makers, managers, scholars, and citizens to understand the risks, mitigate its impact and prepare for future crises. Drawing on a global network of scholars, this book presents a comparative analysis of ten nations' response to a global pandemic, while operating nominally under the framework of the World Health Organization. The book introduces the concept of 'collective cognition' as an analytic lens for examining the nations' response to Covid-19 during the first six months of the emerging pandemic (January - June 2020) and draws out insights for improving systems of global risk management. This book addresses four primary audiences: policy-makers and leaders in nations struggling to contain viruses while guiding their societies under threat; academic researchers, students, and educators engaged in preparing the next generation of professionals committed to investigating emerging risk: managers of non-profit and private organizations that operate and maintain the networks of social, technical, and economic services that are essential to functioning communities; and the informed general public interested in understanding this extraordinary sequence of events and in managing the novel risk of COVID-19 in a more informed, responsible way.

This contributed volume draws a vital picture of the health care sector, which, like no other is affected by technology push and stakeholder pull. Innovative product and service solutions emerge, which have to integrate different stakeholders' interests. This book studies current challenges in health care management from different perspectives. Research articles analyze the situation in the health care sector and present solutions in the following areas: the health care system; hospitals; teams in health care; patients' perspectives; assessment of technologies and innovations; and toolkits for organizing health care. All these contributions summarize pressing hot topics in the health care sector, analyze their future potential, and derive managerial implications. Outstanding best practices throughout Europe are presented in the case study section of the book. Consequently, the book closes the gap between science and practical application by addressing not only readers from academia but also practitioners working in the health care industry.

The desperate need for a vast part of the global population to access better medicines in more certain ways is one of the biggest concerns of the modern era.
"Pills for the Poorest" offers a new perspective on the much-debated issue of the links between intellectual property and access to medication. Using ethnographic case studies in Djibouti and Ghana, and insights from actor-network theory, it explores the ways in which TRIPs and pharmaceutical patents are translated in the daily practices of those who purchase, distribute, and use (or fail to use) medicines in sub-Saharan Africa. It suggests that focusing on routine practices and the material deployment of intellectual property significantly enriches our understanding of the complex dynamics that animate the field of access to medicines and helps relocate the role of law within those processes. It demonstrates how intellectual property affects access to medicines in ways that are often discreet, indirect and forgotten. By exploring these complex mechanisms, it seeks to ask questions about the modes of actions of pharmaceutical patents, but also, more generally, about the complexity of legal objects.

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