Originally published in 1975, this book traces the problems which arise for families coping with a chronic childhood disease - cystic fibrosis. The discussion of these problems is important for the families of other seriously ill or disabled children, all of whom are faced with similar implications of their situation. The book looks at the stressful situations which face them: mastering the child's treatment technique, assisting them to come to terms with their disease. It deals with the practical problems which arise for the parents and siblings of a sick child and explores the profound repercussions of the loss of a child on the entire family, considering the ways in which many of these families managed to transcend their problems.

Originally published in 1974, and written by paediatricians, social workers, nurses and a parent who cared for her dying child, this book is concerned with pinpointing the problems which exist for parents and those involved in the care of sick children, both in terms of accepting the facts of a child's illness, and in loving supporting and giving them maximum enjoyment within the limits of their condition. The fears and anxieties of such children are examined - separation from parents, fear of pain, an increasing sense of difference and in some cases a very real appreciation of their situation. All these limit the child's happiness, and ways of counteracting them are suggested. Similarly the distress of parents and of medical advisers is discussed.

This classic book, first published in 1992 and again in 2003, has inspired three generations of childbearing people, birth activists and researchers, and birth practitioners-midwives, doulas, nurses, and obstetricians-to take a fresh look at the "standard procedures" that are routinely used to "manage" American childbirth. It was the first book to identify these non-evidence-based obstetric interventions as rituals that enact and transmit the core values of the American technocracy, thereby answering the pressing question of why these interventions continue to be performed despite all evidence to the contrary. This third edition brings together Davis-Floyd's insights into the intense ritualization of labor and birth and the technocratic, humanistic, and holistic models of birth with new data collected in recent years.

In just the past decade, the emergence of digital health has finally become palpable. Enhanced by the pandemic, social justice events, and planetary health urgency, Realizing Digital Health - Bold Challenges and Opportunities for Nursing explores that evolution with a focus on capturing the current state of digital health. Anchored in an introduction to digital health, new technologies, opportunities, and challenges are described. Consideration of the opportunities and challenges of digital health calls for specific attention to ethical considerations. This book includes a current state synopsis of healthcare in the USA, with the inclusion of specific implications for nursing leaders and executives. Engagement of the people (patients, families, communities) working in partnership to enhance health is described. Information management and the necessary definition and access to data are discussed with a particular explication of the function of information management and operational decision-making. The challenges and learnings related to informatics drawn from the experiences of leaders in large health systems shed insight into the current state of informatics-enabled digital health and healthcare. The global example of the integration of technology, nursing, and health systems expands our knowledge of the current state as well as explores possibilities. This book concludes with a commitment to and description of the current state of teamwork and the integral role/functions within informatics, nursing, and healthcare. This book provides the reader with a succinct overview of digital technologies, a reality-anchored description of the current state in the USA and globally and highlights the core foundation and integration of informatics and information management. This book stimulates thought and actions to advance digital health within a full partnership among the people, organizations, systems, and global imperatives including planetary survival. This book lifts up the next era calling for full teamwork, collaboration, and partnership as we emerge into a true global community. Nursing and Informatics for the 21st Century - Embracing a Digital World, 3rd Edition is comprised of four books which can be purchased individually: Book 1: Realizing Digital Health - Bold Challenges and Opportunities for Nursing Book 2: Nursing Education and Digital Health Strategies Book 3: Innovation, Technology, and Applied Informatics for Nurses Book 4: Nursing in an Integrated Digital World that Supports People, Systems, and the Planet

In Nursing in an Integrated Digital World that Supports People, Systems, and the Planet, the leading-edge innovators in digital health applications, global thought leaders, and multinational, cooperative research initiatives are woven together against the backdrop of health equity and policy-setting bodies, such as the United Nations and the World Health Organization. As the authors prepared this book, the world is struggling with the core issues of access to care, access to needed medical equipment and supplies, and access to vaccines. This access theme is reflected throughout the policy and world health chapters with an emphasis on how this COVID-19 pandemic is exposing the fissures, divides, unfairness, and unpreparedness that are in play across our globe. Sustainability and global health policy are linked to the new digital technologies in the chapters that illustrate healthcare delivery modalities that nurse innovators are developing, leading, and using to deliver care to hard-to-reach populations for better population health. A trio of chapters focus on the underlying need for standards to underlie nursing care in order to capture the data needed to enable new science and knowledge discoveries. The authors give particular attention to the cautions, potential for harm, and biases that the artificial intelligence technologies of algorithms and machine learning pose in healthcare. Additionally, they have tapped legal experts to review the legal statues, government regulations, and civil rights law in place for patients' rights, privacy, and confidentiality, and consents for the United States, the United Kingdom, and the European Union. The book closes with a chapter written by the editors that envisions the near future-the impact that the new digital technologies will have on how care is delivered, expanding care settings into community and home, virtual monitoring, and patient generated data, as well as the numerous ways that nurses' roles and technology skill sets must increase to support the global goals of equal access to healthcare. Nursing and Informatics for the 21st Century - Embracing a Digital World, 3rd Edition is comprised of four books which can be purchased individually: Book 1: Realizing Digital Health - Bold Challenges and Opportunities for Nursing Book 2: Nursing Education and Digital Health Strategies Book 3: Innovation, Technology, and Applied Informatics for Nurses Book 4: Nursing in an Integrated Digital World that Supports People, Systems, and the Planet

What is the reality of being a midwife in the twenty-first century? What is it like to help and support women throughout pregnancy and childbirth and into motherhood? What roles can midwives play in society? This new edition of the popular text, Becoming a Midwife, explores what it is to be a midwife, looking at the factors that make midwifery such a special profession, as well as some of the challenges. The fully updated chapters cover a variety of settings and several different stages in a woman's pregnancy, including stories from midwives working in hospitals and in the community, as managers, supervisors and educators, and as men, women, mothers and birth activists. All chapters are narrated by contributors who introduce their own theme, recount a vignette that throws light on their understandings of midwifery and reasons for becoming (or not becoming) a midwife and any subsequent career moves. Backed up by commentaries and drawing together these insights, the editors show what it means to be a midwife today. Suitable for those contemplating a career in midwifery and providing an opportunity for reflection for more experienced midwives, this thought-provoking book is an invaluable contribution to midwifery.

Experiences of Health Workers in the COVID-19 Pandemic shares the stories of frontline health workers-told in their own words-during the second wave of COVID-19 in Australia. The book records the complex emotions healthcare workers experienced as the pandemic unfolded, and the challenges they faced in caring for themselves, their families, and their patients. The book shares their insights on what we can learn from the pandemic to strengthen our health system and prepare for future crises. The book draws on over 9,000 responses to a survey examining the psychological, occupational, and social impact of the COVID-19 pandemic on frontline health workers. Survey participants came from all areas of the health sector, from intensive care doctors to hospital cleaners to aged care nurses, and from large metropolitan hospitals to rural primary care practices. The authors organise these free-text responses thematically, creating a shared narrative of health workers experiences. Each chapter is prefaced by a brief commentary that provides context and introduces the the themes that emerged from the survey. This book offers a unique historical record of the experiences of thousands of healthcare workers at the height of the second wave of the pandemic and will be of great interest to anyone interested in the experiences of healthcare workers, and the psychological, organisational, healthcare policy, and social challenges of the COVID-19 pandemic.

Experiences of Health Workers in the COVID-19 Pandemic shares the stories of frontline health workers-told in their own words-during the second wave of COVID-19 in Australia. The book records the complex emotions healthcare workers experienced as the pandemic unfolded, and the challenges they faced in caring for themselves, their families, and their patients. The book shares their insights on what we can learn from the pandemic to strengthen our health system and prepare for future crises. The book draws on over 9,000 responses to a survey examining the psychological, occupational, and social impact of the COVID-19 pandemic on frontline health workers. Survey participants came from all areas of the health sector, from intensive care doctors to hospital cleaners to aged care nurses, and from large metropolitan hospitals to rural primary care practices. The authors organise these free-text responses thematically, creating a shared narrative of health workers experiences. Each chapter is prefaced by a brief commentary that provides context and introduces the the themes that emerged from the survey. This book offers a unique historical record of the experiences of thousands of healthcare workers at the height of the second wave of the pandemic and will be of great interest to anyone interested in the experiences of healthcare workers, and the psychological, organisational, healthcare policy, and social challenges of the COVID-19 pandemic.

This new edition provides an up-to-date and thoughtful guide to supporting women in labour, looking at a range of techniques and approaches that promote a safe and positive experience of birth for women and their families. Across the world, support in labour has been shown to reduce obstetric interventions and improve outcomes for women and babies. Written by two highly experienced midwifery authors, this text draws on a wide range of cutting-edge research on this topic, identifying how the evidence can be applied to everyday practice. Narratives from women and practitioners, including midwives, doulas, childbirth educators and students, are used to illustrate a range of situations where the quality of support is central to the quality of the experience and outcome. Supporting Women for Labour and Birth encourages readers to reflect on their experiences and examine the evidence provided by both research and experiences of women and practitioners in order to explore how this could be incorporated into their practice. The only book to deal directly with the practical and emotional issues associated with labour support, this is an ideal text for student midwives and an important reference for practising midwives, doulas and other childbirth practitioners.

This third edition of the International Classification of Primary Care (ICPC-3) is indispensible for anyone wishing to use the international classification system for classification of morbidity data in a primary care setting. Distilling the many standards that are applied internationally in primary & community care and public health to offer a telescopic view, the classification has been completely rewritten to reflect the continued shift in the health paradigm of primary care and public health towards the person rather than the disease or provider. The content of ICPC-3 remains closely 'linked' to relevant related international classifications. The ICPC-3 also contributes to the United Nations' Sustainable Development Goals, specifically to Goal 3 and its target of ensuring healthy lives and promoting well-being for all at all ages.

The death of a baby is one of the most painful experiences anyone can imagine. This practical, compassionate text guides professionals in providing the best possible care through the physical and emotional pain of a pregnancy loss from early miscarriage to neonatal death, enabling patients and their families to grieve. Written by two professionals with extensive experience in the field, the book inspires confidence for those confronted with this challenging task. It focuses on common issues that inhibit good care and addresses the traditionally difficult topics. Healthcare staff assisting patients during this time often require support of their own and this is also addressed with constructive, inspirational approaches and ideas for professional training. Perinatal Loss: a handbook for working with women and their families offers insights, information and support for managing pregnancy loss for all professionals and students including nurses, sonographers, midwives, doctors (including obstetricians and general practitioners), chaplains and morticians. 'This is an important and warmly welcomed book which thoroughly endorses the key aims of Sands (Stillbirth & Neonatal Death Society). In particular, it demonstrates a forceful commitment to improving care for bereaved families whilst acknowledging the difficult task that staff undertake when caring for them. This handbook encompasses all aspects of perinatal loss, giving due care and attention to the many different circumstances and exploring the thoughts and feelings which are experienced when a baby dies at any gestation.' From the Foreword by Julia Gray

This book provides an exploration of the ethics of cardiology practice. It provides a variety of frameworks for analyzing ethical issues that arise in cardiovascular medicine. Cardiovascular medicine-the diagnosis and treatment of congenital and acquired diseases of the heart, major arteries, and veins-has seen rapid change in diagnosis, treatment, and the organization of practice in the last half of the twentieth and the beginning of the twenty first century. The complexity of these developments has resulted in increasing subspecialization, and many practitioners are challenged to stay abreast with the latest developments in cardiology. These changes also bring with them various ethical challenges. The chapters in this volume are divided by five broad areas of practice: beginning-of-life, end-of-life, transplantation and allocation of expensive or scarce resources, professionalism, and research. The case-based approach presented across the volume provides a perspective that will allow readers to reason through current and future ethical issues as they arise in this rapidly changing field. Ethical Issues in Cardiovascular Medicine will be of interest to researchers working in bioethics, clinical ethics, and the philosophy of medicine, as well as practicing physicians, nurses, and students who work in cardiovascular medicine.

- Brings together knowledge from academics, scholars and practitioners to address the influence of personal and professional character on nurses and the nursing profession; - Draws on the extensive and unparalleled research data collected by the Jubilee Centre for Character and Virtues at the University of Birmingham, UK to provide new insights for academics and pre- and in-service professionals; - Acts as an educational resource to inform future professional decision-making and practice.

The Routledge Handbook of Anthropology and Reproduction is a comprehensive overview of the topics, approaches, and trajectories in the anthropological study of human reproduction. The book brings together work from across the discipline of anthropology, with contributions by established and emerging scholars in archaeological, biological, linguistic, and sociocultural anthropology. Across these areas of research, consideration is given to the contexts, conditions, and contingencies that mark and shape the experiences of reproduction as always gendered, classed, and racialized. Over 39 chapters, a diverse range of international scholars cover topics including: Reproductive governance, stratification, justice, and freedom. Fertility and infertility. Technologies and imaginations. Queering reproduction. Pregnancy, childbirth, and reproductive loss. Postpartum and infant care. Care, kinship, and alloparenting. This is a valuable reference for scholars and upper-level students in anthropology and related disciplines associated with reproduction, including sociology, gender studies, science and technology studies, human development and family studies, global health, public health, medicine, medical humanities, and midwifery and nursing.

A ground-breaking ethnographic study of suckling in the Arabian Gulf , this book reenergises the study of kinship. It analyses the misunderstood and marginalized phenomenon of suckling drawing on ethnographic fieldwork in Qatar over a seven-year period. Fadwa El Guindi situates suckling (often given other names or subsumed under misleading classifications) squarely in the analytical category of kinship, with recognition that kinship is necessarily biological, societal and cultural. The volume takes kinship study beyond origins, nature-culture debates, and social nurturing and relatedness, and challenges claims of deterministic, reductionist formulas. As well as key reading for those involved in milk kinship research, this book is valuable for anthropologists, Middle East scholars and others with an interest in breastfeeding, family and social organisation, and religion.

Banking on Milk takes the reader on a journey through the everyday life of donor human milk banking across the United Kingdom (UK) and beyond, asking questions such as the following: Why do people decide to donate? How do parents of recipients hear about human milk? How does milk donation impact on lifestyle choices? Chapters record the practical everyday reality of work in a milk bank by drawing on extensive ethnographic observations and sensitive interview data from donors, mothers of recipients and the staff of four different milk banks from across the UK, and visits to milk banks across Europe and North America. It discusses the ongoing pressures to do with supply, demand and distribution. An empirically informed "ethnography of the contemporary", where both biosociality and biopower abound, this book includes an exploration of how milk banks evolved from registering wet nurses with hospitals, showing how a regulatory culture of medical authority began to quantify and organize human milk as a commodity. This book is a valuable read for all those with an interest in breastfeeding or organ and tissue donation from a range of fields, including midwifery, sociology, anthropology, geography, cultural studies and public health.

Motherhood, Spirituality and Culture explores spiritual skills that may assist women in changes, challenges and transformations undergone through the transition to motherhood. This study comprises rich, qualitative data gathered from interviews with 11 mothers. Results are analysed by constructing seven unique maternal narratives that elucidate and give voice to the mothers in their transition by in depth exploration of six themes emerging from the analysis. Overall discussion ranges across such realities as: * desires, expectations and illusions for mothering; * birth and spiritual embodied experiences of mothering; * instinctual knowing; identity and crisis, and connections of motherhood; * changes and transformations undergone through motherhood. This study presents a unique framework for qualitative studies of spirituality within motherhood research; by weaving together transpersonal psychology, humanistic psychology, spiritual intelligence and the spiritual maternal literature.This book will appeal to all women who have transitioned to motherhood. It willalso be of assistance to professionals who wish to approach any aspect of maternity care and support from a transpersonal perspective. It will also provideunique insights for academics and postgraduate students in the fields of anthropology, psychology, psychotherapy and feminism studies.

Comprehensive survey of the health communication discipline authored by top scholars in the field. A useful text for use both in graduate seminars in health communication and as a desk reference for career researchers and government and NGO health professionals.

This evidence-based guide educates and informs health professionals about promoting sexual wellbeing in the context of challenges from physical and mental health. Sexuality is an important aspect of quality of life for many people but can be affected by a wide variety of health conditions, such as cardiovascular disease, mental illness, menopause, diseases of ageing, neurological diseases and spinal cord injuries, combat injuries, and cancer. Building readers' confidence in initiating and encouraging open communication on this often-neglected topic, Sexuality and Illness includes case studies that illustrate how to talk about sexuality and support patients with concerns about it. Making recommendations for practice and further reading, it takes into account gender, sexual, race and ethnic diversity. This accessible text demystifies a topic that is sometimes difficult to discuss. It is essential reading for healthcare practitioners interested in providing comprehensive and person-centred care.

This evidence-based guide educates and informs health professionals about promoting sexual wellbeing in the context of challenges from physical and mental health. Sexuality is an important aspect of quality of life for many people but can be affected by a wide variety of health conditions, such as cardiovascular disease, mental illness, menopause, diseases of ageing, neurological diseases and spinal cord injuries, combat injuries, and cancer. Building readers' confidence in initiating and encouraging open communication on this often-neglected topic, Sexuality and Illness includes case studies that illustrate how to talk about sexuality and support patients with concerns about it. Making recommendations for practice and further reading, it takes into account gender, sexual, race and ethnic diversity. This accessible text demystifies a topic that is sometimes difficult to discuss. It is essential reading for healthcare practitioners interested in providing comprehensive and person-centred care.

Continuity of care in midwifery - the most traditional way of practising - has been overlooked for much of the last century but is re-emerging as an evidence-based model of care, one which is known to benefit women. This book is a vital companion to students and qualified midwives as continuity of care is integrated into midwifery education and services. A practical, easy-to-read guide to practising caseload midwifery, this book outlines the contemporary political and professional context for midwifery care, different models of care, and the evidence and outcomes associated with continuity of carer. It discusses the real-life concerns, challenges and opportunities of working closely with women throughout their pregnancy and birth, covering key issues such as risk assessment, consent, boundaries, time management, documentation, communication, burnout and decision-making. Supporting the development of midwives from students to newly qualified professionals and beyond, it ends with a chapter containing a range of resources for reference, including helpful tools and worksheets. Including vignettes from students, qualified midwives, and women and their partners, this book is designed for anyone new to practising midwifery continuity of care.

This accessible book uses case studies to explore issues around intimacy, sexual function and sexual development over the lifespan, introducing applied principles and practices when working with sexuality-related issues. Introducing an easy-to-use 'Reflect and Respond' model as a framework for interactions, this book discusses a broad selection of topics and life stages, including hidden loss, gender identity, disability, early years experiences and older age. Exposing anonymized real-life experiences of intimacy, sexual function, and sexual development from birth to end of life, this book develops the reader's insight into sexual wellbeing and confidence in communicating about it. The experiential learning and research-based content in readable style will educate and inspire readers with an interest in sexual wellbeing and how this impacts on physical and mental health. Demonstrating how being open to talk about sex and intimacy can change lives, this guide is suitable for a wide range of health and social care professionals, including nurses, doctors, occupational therapists, social workers, psychologists and counsellors.

This accessible book uses case studies to explore issues around intimacy, sexual function and sexual development over the lifespan, introducing applied principles and practices when working with sexuality-related issues. Introducing an easy-to-use 'Reflect and Respond' model as a framework for interactions, this book discusses a broad selection of topics and life stages, including hidden loss, gender identity, disability, early years experiences and older age. Exposing anonymized real-life experiences of intimacy, sexual function, and sexual development from birth to end of life, this book develops the reader's insight into sexual wellbeing and confidence in communicating about it. The experiential learning and research-based content in readable style will educate and inspire readers with an interest in sexual wellbeing and how this impacts on physical and mental health. Demonstrating how being open to talk about sex and intimacy can change lives, this guide is suitable for a wide range of health and social care professionals, including nurses, doctors, occupational therapists, social workers, psychologists and counsellors.

To be at the birth of a baby is special, yet there is an increasing secularisation and reliance on technology in contemporary maternity care, particularly in the western context. Through exploration of experiences at birth this book explores joy at birth, which is often ignored and overlooked beyond the activities that help to ensure survival. This book draws on a collection of stories of birth from mothers, birth partners, obstetricians and midwives, that demonstrate joy at birth across professional groups and in different types of births and locations with or without technological interventions. Each chapter introduces stories of joy that highlight embodied, spatial and relational meanings. Employing the Heideggerian notion of a human being, it sketches out an ontological focus that draws our gaze to the everyday taken-for-granted ways of being at birth. Based on phenomenological experiential data and rigorous interpretive analysis underpinned by seminal philosophical writings, this book calls for readers to attend to the wholeness of birth in all situations and at all births in ways not attempted before. It will be of great interest to midwives, and those working in and studying maternity, obstetrics and neonatology, as well as social and medical anthropology, sociology, cultural, organisational and clinical psychology and spirituality.

Getting Old offers concise advice and practical suggestions for all readers interested in or worried about ageing, either in themselves or in someone they care about. With a focus on a positive view of ageing, it discusses central physical and mental aspects of getting old, as well as the social and psychological aspects such as choosing where to live and becoming more oneself. Rowan Bayne and Carol Parkes take a pragmatic approach to reviewing what is happening in many aspects of your life as you age. Essential topics covered include mobility; diet and digestion; understanding and improving sleep; memory problems and dementia; being an active participant in consultations about your own healthcare; attitudes to getting old; romantic relationships and loneliness; deciding where to live, moving house and choosing other types of living arrangements; and death and grief. They invite readers to focus on their own life and experience, to understand who they are and what they really want now. An important part of self-understanding is the application of personality theory to changes associated with getting old, and readers are encouraged to reflect on what might work for people with their personality characteristics, and how to improve their stress management, communication and decision making. With suggestions for further reading and useful organisations that offer support, Getting Old offers valuable, affirming guidance for all those and their relatives going through this life stage, as well as health, social care and counselling students and professionals.