Through the use of dramatic narratives, The Drama of DNA brings to life the complexities raised by the application of genomic technologies to health care and diagnosis. This creative, pedagogical approach shines a unique light on the ethical, psychosocial, and policy challenges that emerge as comprehensive sequencing of the human genome transitions from research to clinical medicine. Narrative genomics aims to enhance understanding of how we evaluate, process, and share genomic information, and to cultivate a deeper appreciation for difficult decisions encountered by health care professionals, bioethicists, families, and society as this technology reaches the bedside.
This innovative book includes both original genomic plays and theatrical excerpts that illuminate the implications of genomic information and emerging technologies for physicians, scientists, counselors, patients, blood relatives, and society. In addition to the plays, the authors provide an analytical foundation to frame the many challenges that often arise.

What could middle-class German supermarket shoppers buying eggs and impoverished Maya farmers in Guatemala harvesting coffee possibly have in common? Both groups are using the market in pursuit of the "good life." But what exactly is the good life? How do we define wellbeing beyond the material standards of living? While we may all want to live the good life, we differ widely on just what that entails. In "The Good Life," Edward Fischer examines wellbeing by exploring very different cultural contexts in an attempt to tease out universal notions of the good life and how best to achieve it.
Building on the work of his earlier best-selling Stanford Press book, "Broccoli and Desire," Fischer seeks to bind his subjects together in webs of desire and material production. Drawing from his research in both Guatemala and Germany, this book is a richly layered attempt to better understand the key elements of the good life, which include aspiration, opportunity, dignity, and purpose. "The Good Life "provides readers with fascinating on-the-ground narratives of Germans' choices regarding the purchase of eggs and cars, and Guatemalans' production of coffee and cocaine--things to which people attach their aspirations and desires for a good life, both extraordinary and mundane.

While we are all familiar with the lives of prominent Black civil rights leaders, few of us have a sense of what is entailed in developing a White anti-racist identity. Few of us can name the White activists who joined the struggle against discrimination, let alone understand the complexities, stresses and contradictions of doing this work while benefiting from the privileges they enjoyed as Whites. This book fills that gap by vividly presenting, in their own words, the personal stories, experiences and reflections of seventeen prominent White anti-racists. They recount the circumstances that led them to undertake this work, describe key moments and insights along their journeys, and frankly admit their continuing lapses and mistakes. They make it clear that confronting oppression (including their own prejudices) - whether about race, sexual orientation, ability or other differences - is a lifelong process of learning. The chapters in this book are full of inspirational and lesson-rich stories about the expanding awareness of white social justice advocates and activists who grappled with their White privilege and their early socialization and decided to work against structural injustice and personal prejudice. The authors are also self-critical, questioning their motivations and commitments, and acknowledging that - as Whites and possessors of other privileged identities - they continue to benefit from White privilege even as they work against it. This is an eye-opening book for anyone who wants to understand what it means to be White and the reality of what is involved in becoming a White anti-racist and social justice advocate; is interested in the paths taken by those who have gone before; and wants to engage reflectively and critically in this difficult and important work.

Is the Death Penalty Dying? provides a careful analysis of the historical and political conditions that shaped death penalty practice on both sides of the Atlantic from the end of World War II to the twenty-first century. This book examines and assesses what the United States can learn from the European experience with capital punishment, especially the trajectory of abolition in different European nations. As a comparative sociology and history of the present, the book seeks to illuminate the way death penalty systems and their dissolution work, by means of eleven chapters written by an interdisciplinary group of authors from the United States and Europe. This work will help readers see how close the United States is to ending capital punishment and some of the cultural and institutional barriers that stand in the way of abolition. Yet, more than that, this book shows how the death penalty has helped define the political and cultural identities of both Europe and the United States.

At the same time that the pace of science and technology has greatly accelerated in recent decades, our legal and ethical oversight mechanisms have become bogged down and slower. This book addresses the growing gap between the pace of science and technology and the lagging responsiveness of legal and ethical oversight society relies on to govern emerging technologies. Whether it be biotechnology, genetic testing, nanotechnology, synthetic biology, computer privacy, autonomous robotics, or any of the other many emerging technologies, new approaches are needed to ensure appropriate and timely regulatory responses. This book documents the problem and offers a toolbox of potential regulatory and governance approaches that might be used to ensure more responsive oversight.

From natural disaster areas to conflict zones, humanitarian workers today find themselves operating in diverse and difficult environments. While humanitarian work has always presented unique ethical challenges, such efforts are now further complicated by the impact of globalization, the escalating refugee crisis, and mounting criticisms of established humanitarian practice. Featuring contributions from humanitarian practitioners, health professionals, and social and political scientists, this book explores the question of ethics in modern humanitarian work, drawing on the lived experience of humanitarian workers themselves. Its essential case studies cover humanitarian work in countries ranging from Haiti and South Sudan to Syria and Iraq, and address issues such as gender based violence, migration, and the growing phenomenon of 'volunteer tourism'. Together, these contributions offer new perspectives on humanitarian ethics, as well as insight into how such ethical considerations might inform more effective approaches to humanitarian work.

Business as an Instrument for Societal Change: In Conversation with the Dalai Lama is the result of two decades of research and dialogue with His Holiness the Dalai Lama and other leaders in business, government, science and education. Author Sander Tideman, a lawyer and banker who has maintained a friendship with the Dalai Lama over all these years, presents a practical framework and methodology to develop a new kind of leadership - one fit to repurpose the business world and tackle escalating social, economic and environmental needs.The Dalai Lama rarely speaks directly on the topics of business, leadership and economics. Yet in the dialogues recounted here, his wisdom - combined with key insights from business and public leaders -creates a unified shift towards a consciousness of interconnectedness, offering profound insights for practitioners and general readers alike. Tideman unites the scientific worldviews of physics, neuroscience and economics with the positive psychology of human relationships, and ancient spiritual wisdom, to formulate practical business leadership solutions. While recognizing the need for change in external structures and governance, Tideman highlights the importance of opening our minds, and connecting inner and outer spirituality. At the same time, he focuses on concrete practices for winning the hearts and minds of employees, customers, communities, and society at large, while addressing deep-rooted problems such as extreme social inequality and continued financial collapses. At the heart of this book lies the journey to discover our shared purpose. This ignites new sources of value creation for the organisation, customers and society, which Tideman terms 'triple value'. We can achieve triple value by aligning societal and business needs, based on the fundamental reality of interconnection. Business as an Instrument for Societal Change: In Conversation with the Dalai Lama is a readable and intelligent exploration of how leaders can actually help to shape a sustainable global economy by embracing innate human and humane behaviour. It is also Tideman's fascinating personal journey, which brought him to question the underlying motivations and goals of business leadership and to seek a new paradigm for a more sustainable approach. Reflecting Tideman's sharp perceptions and infused with the Dalai Lama's unmistakable joy, this book has the power to change your way of thinking.

Information and Communication Technologies (ICTs) have profoundly changed many aspects of life, including the nature of entertainment, work, communication, education, healthcare, industrial production and business, social relations and conflicts. They have had a radical and widespread impact on our moral lives and hence on contemporary ethical debates. The Cambridge Handbook of Information and Computer Ethics, first published in 2010, provides an ambitious and authoritative introduction to the field, with discussions of a range of topics including privacy, ownership, freedom of speech, responsibility, technological determinism, the digital divide, cyber warfare, and online pornography. It offers an accessible and thoughtful survey of the transformations brought about by ICTs and their implications for the future of human life and society, for the evaluation of behaviour, and for the evolution of moral values and rights. It will be a valuable book for all who are interested in the ethical aspects of the information society in which we live.

The rapid growth of online media has led to new complications in journalism ethics and practice. While traditional ethical principles may not fundamentally change when information is disseminated online, applying them across platforms has become more challenging as new kinds of interactions develop between journalists and audiences.

In "Ethics for Digital Journalists," Lawrie Zion and David Craig draw together the international expertise and experience of journalists and scholars who have all been part of the process of shaping best practices in digital journalism. Drawing on contemporary events and controversies like the Boston Marathon bombing and the Arab Spring, the authors examine emerging best practices in everything from transparency and verification to aggregation, collaboration, live blogging, tweeting and the challenges of digital narratives. At a time when questions of ethics and practice are challenged and subject to intense debate, this book is designed to provide students and practitioners with the insights and skills to realize their potential as professionals.

On April 19, 1995, Timothy McVeigh detonated a two-ton truck bomb that felled the Alfred P. Murrah Federal Building in Oklahoma City, killing 168 people. On June 11, 2001, an unprecedented 242 witnesses watched him die by lethal injection. In the aftermath of the bombings, American public commentary almost immediately turned to "closure" rhetoric. Reporters and audiences alike speculated about whether victim's family members and survivors could get closure from memorial services, funerals, legislation, monuments, trials, and executions. But what does "closure" really mean for those who survive-or lose loved ones in-traumatic acts? In the wake of such terrifying events, is closure a realistic or appropriate expectation? In Killing McVeigh, Jody Lynee Madeira uses the Oklahoma City bombing as a case study to explore how family members and other survivors come to terms with mass murder. The book demonstrates the importance of understanding what closure really is before naively asserting it can or has been reached.

Who are the vulnerable, and what makes them so? Through an innovative application of English School theory, this book suggests that people are vulnerable not only to natural risks, but also to the workings of international society. This replicates the approach of those studies of natural disasters that now commonly present a social vulnerability analysis, showing how people are differentially exposed by their social location. Could international society have similar effects? This question is explored through the cases of political violence, climate change, human movement, and global health. These cases provide rich detail on how, through its social practices of the vulnerable, international society constructs the vulnerable in its own terms, and sets up regimes of protection that prioritize some forms at the expense of others. What this demonstrates above all is that, even if only a 'practical' association, international society inevitably has moral consequences in the way it influences the relative distribution of harm. As a result, these four pressing policy issues now present themselves as fundamentally moral problems. Revising the arguments of E. H. Carr, the author points out the essentially contested normative nature of international order. However, instead of as a moral clash between revisionist and status quo powers, as Carr had suggested, the problem is instead one about the contested nature of vulnerability, insofar as vulnerability is an expression of power relations, but also gives rise to a moral claim. By providing a holistic treatment in this way, the book makes practical sense of the vulnerable, while also seeking to make moral sense of international society.

Asymmetric conflict is changing the way that we practise and think about war. Torture, rendition, assassination, blackmail, extortion, direct attacks on civilians, and chemical weapons are all finding their way to the battlefield despite longstanding international prohibitions. This book offers a practical guide for policy makers, military officers, students, and others who ask such questions as: Do guerillas deserve respect or long jail sentences? Are there grounds to torture guerillas for information or assassinate them on the battlefield? Is there room for nonlethal weapons to subdue militants and safeguard the lives of noncombatants? Who are noncombatants in asymmetric war? What is the status of civilians who shelter and aid guerillas? And, do guerillas have any right to attack civilians, particularly those who aid and shelter members of the stronger army? If one side can expand the scope of civilian vulnerability, then why can t the other? To read and comment on Michael Gross's blog article on the UN Human Rights Council Report on Gaza, click here

Asymmetric conflict is changing the way that we practise and think about war. Torture, rendition, assassination, blackmail, extortion, direct attacks on civilians, and chemical weapons are all finding their way to the battlefield despite longstanding international prohibitions. This book offers a practical guide for policy makers, military officers, students, and others who ask such questions as: Do guerillas deserve respect or long jail sentences? Are there grounds to torture guerillas for information or assassinate them on the battlefield? Is there room for nonlethal weapons to subdue militants and safeguard the lives of noncombatants? Who are noncombatants in asymmetric war? What is the status of civilians who shelter and aid guerillas? And, do guerillas have any right to attack civilians, particularly those who aid and shelter members of the stronger army? If one side can expand the scope of civilian vulnerability, then why can t the other? To read and comment on Michael Gross's blog article on the UN Human Rights Council Report on Gaza, click here

This book explores the increasing altruistic impulse of the design community to address some of the world's most difficult problems including social, political, environmental, and global health causes at the local, national, and global scale. Each chapter strategically combines theory and practice to examine how to identify causes and locate accurate data, truth and integrity in information design, the information design/data visualization process, understanding audiences, crafting meaningful narratives, and measuring the impact of a design. A variety of international case studies and interviews with practitioners illustrate the challenges and impact of designing for social agendas. These range from traditional media outlets like The New York Times and The Guardian, popular science organizations like National Geographic and Scientific America, to health institutes like The World Health Organization and The Center for Disease Control. This book allows the novice information designer to create compelling human-centered information narratives which make a difference in our world.

The U.S. Supreme Court decision in "Roe v. Wade" stands as a historic victory for abortion-rights activists. But rather than serving as the coda to what had been a comparatively low-profile social conflict, the decision mobilized a wave of anti-abortion protests and ignited a heated struggle that continues to this day.
Picking up the story in the contentious decades that followed "Roe," "The Street Politics of Abortion" is the first book to consider the rise and fall of clinic-front protests through the 1980s and 1990s, the most visible and contentious period in U.S. reproductive politics. Joshua Wilson considers how street level protests lead to three seminal Court decisions--"Planned Parenthood v. Williams, Schenck v. Pro-Choice Network of Western N.Y.," and "Hill v. Colorado." The eventual demise of street protests via these cases taught anti-abortion activists the value of incremental institutional strategies that could produce concrete policy gains without drawing the public's attention. Activists on both sides ultimately moved--often literally--from the streets to fight in state legislative halls and courtrooms.
At its core, the story of clinic-front protests is the story of the Christian Right's mercurial assent as a force in American politics. As the conflict moved from the street, to the courts, and eventually to legislative halls, the competing sides came to rely on a network of lawyers and professionals to champion their causes. New Christian Right institutions--including Pat Robertson's American Center for Law and Justice and the Regent University Law School, and Jerry Falwell's Liberty University School of Law--trained elite activists for their "front line" battles in government. Wilson demonstrates how the abortion-rights movement, despite its initial success with "Roe," has since faced continuous challenges and difficulties, while the anti-abortion movement continues to gain strength in spite of its losses.

Disclosure is a frequently used but rarely interrogated concept in health and social welfare. Abuse, disability, sexuality and health status can be 'disclosed' to peers and professionals, and on some occasions, disclosure is a requirement and not a choice. This innovative collection examines the new social and political implications of disclosure practices in health and illness. We make our identities and our connections with others by sharing life stories, experiences and innermost desires and are often asked to disclose facts about our lives, bodies and minds, at times with unintended consequences. Yet how and what, why and when people 'disclose' - and perceive, question and expose - and in what ways, has rarely received critical analytic attention. The contributors take up these problems by foregrounding the many shades of disclosure: from the secret, through the telling of diagnosis, to the more prosaic sharing of narratives from everyday life. The processes and implications of disclosing are addressed in areas such as: illness trajectories and end-of-life decisions; ethical research practices; medical procedures; and interpersonal relationships. Exploring the idea of disclosure as a moral imperative and a social act, this book offers a diverse range of empirical case studies, social theories and methodological insights to show how dominant and normative understandings of social relationships and their obligations shape our understanding of acts of disclosure, enquiry and exposure. It will be of interest to students and academics with an interest in narrative studies, medical anthropology, bioethics, health psychology, health studies and the sociology of health and illness.

Poverty, inequality, violence, environmental degradation, and tyranny continue to afflict the world. Ethics of Global Development offers a moral reflection on the ends and means of local, national, and global efforts to overcome these five scourges. After emphasizing the role of ethics in development studies, policy-making, and practice, David A. Crocker analyzes and evaluates Amartya Sen's philosophy of development in relation to alternative ethical outlooks. He argues that Sen's turn to robust ideals of human agency and democracy improves on both Sen's earlier emphasis on 'capabilities and functionings' and Martha Nussbaum's version of the capability orientation. This agency-focused capability approach is then extended and strengthened by applying it to the challenges of consumerism and hunger, the development responsibilities of affluent individuals and nations, and the dilemmas of globalization. Throughout the book the author argues for the importance of more inclusive and deliberative democratic institutions.

The death penalty landscape has changed considerably since the first edition of this book was published in 1998. For example, five states that had the death penalty in 1998 - Connecticut, Illinois, New Jersey, New Mexico and New York - no longer impose the punishment. Some of the changes set out in this second edition involve discussions of all of the significant cases decided by the United States Supreme Court after 1998, including Roper v. Simmons, 543 U.S. 551 (2005); Atkins v. Virginia, 536 U.S. 304 (2002); Schriro v. Smith, 126 S.Ct. 7 (2005); Harbison v. Bell, 129 S.Ct. 1481 (2009); Holmes v. South Carolina, 126 S.Ct. 1727 (2006); Kansas v. Marsh, 126 S.Ct. 2516 (2006); Ring v. Arizona, 536 U.S. 584 (2002); Sattazahn v. Pennsylvania, 537 U.S. 101 (2003). This new edition includes 13 new chapters. Areas covered by some of the new chapters include Capital felon's defense team; Habeas corpus, coram nobis and section 1983 proceedings; the Innocence protection act and post-conviction DNA testing; Challenging the death sentence under racial justice acts; Inhabited American territories and capital punishment; and the Costs of capital punishment.

From natural disaster areas to conflict zones, humanitarian workers today find themselves operating in diverse and difficult environments. While humanitarian work has always presented unique ethical challenges, such efforts are now further complicated by the impact of globalization, the escalating refugee crisis, and mounting criticisms of established humanitarian practice. Featuring contributions from humanitarian practitioners, health professionals, and social and political scientists, this book explores the question of ethics in modern humanitarian work, drawing on the lived experience of humanitarian workers themselves. Its essential case studies cover humanitarian work in countries ranging from Haiti and South Sudan to Syria and Iraq, and address issues such as gender based violence, migration, and the growing phenomenon of 'volunteer tourism'. Together, these contributions offer new perspectives on humanitarian ethics, as well as insight into how such ethical considerations might inform more effective approaches to humanitarian work.

What is important to ethical consumers when thinking about going on holiday and how do they incorporate their lifestyle choices into these holidays? What values inform their lifestyles and how do they satisfy these values on holiday? Do ethical consumers automatically become ethical tourists or is the situation a little more complex than this? In an attempt to answer these questions, this book explores: The ethical dilemmas associated with tourism The concerns and motivations of ethical consumers on holiday The role and importance of values in holiday decision-making This book offers a highly original contribution to the debate surrounding the demand for ethical and responsible holidays. It explores the consumption concerns of ethical consumers and their motivational values, and offers a detailed examination of how they manage these values on holiday. This book offers a new and challenging perspective to the study of responsible tourism by providing a unique empirical insight into how responsible tourists incorporate their norms and values into their holiday decisions. The text will be of interest to undergraduates, postgraduates and tutors on courses that have tourism and the tourist at their centre, and to academics in other disciplines such as marketing and consumer behaviour. It will also be highly relevant to the global tourism industry.

Poverty, inequality, violence, environmental degradation, and tyranny continue to afflict the world. Ethics of Global Development offers a moral reflection on the ends and means of local, national, and global efforts to overcome these five scourges. After emphasizing the role of ethics in development studies, policymaking, and practice, David A. Crocker analyzes and evaluates Amartya Sen's philosophy of development in relation to alternative ethical outlooks. He argues that Sen's recent turn to robust ideals of human agency and democracy improves on both Sen's earlier emphasis on 'capabilities and functionings' and Martha Nussbaum's version of the capability orientation. This agency-focused capability approach is then extended and strengthened by applying it to the challenges of consumerism and hunger, the development responsibilities of affluent individuals and nations, and the dilemmas of globalization. Throughout the book the author argues for the importance of more inclusive and deliberative democratic institutions.

Our world and the people within it are increasingly interpreted and classified by automated systems. At the same time, automated classifications influence what happens in the physical world. These entanglements change what it means to interact with governance, and shift what elements of our identity are knowable and meaningful. In this cyber-physical world, or 'world state', what is the role for law? Specifically, how should law address the claim that computational systems know us better than we know ourselves? Monitoring Laws traces the history of government profiling from the invention of photography through to emerging applications of computer vision for personality and behavioral analysis. It asks what dimensions of profiling have provoked legal intervention in the past, and what is different about contemporary profiling that requires updating our legal tools. This work should be read by anyone interested in how computation is changing society and governance, and what it is about people that law should protect in a computational world.

Few ethical issues create as much controversy as invasive experiments on animals. Some scientists claim they are essential for combating major human diseases, or detecting human toxins. Others claim the contrary, backed by thousands of patients harmed by pharmaceuticals developed using animal tests. Some claim all experiments are conducted humanely, to high scientific standards. Yet, a wealth of studies have recently revealed that laboratory animals suffer significant stress, which may distort experimental results. a Where, then, does the truth lie? How useful are such experiments in advancing human healthcare? How much do animals suffer as a result? And do students really need to dissect or experiment on animals? What are the effects on their attitudes towards them? Bioethicist and veterinarian Andrew Knight presents more than a decade of groundbreaking scientific research, analysis and experience to provide evidence-based answers to a key question: is animal experimentation ethically justifiable?

This 2002 book provides a major survey of representations of adultery in later seventeenth- and early eighteenth-century England. Bringing together a wide variety of literary and legal sources - including sermons, pamphlets, plays, diaries, periodicals, trial reports and the records of marital litigation - it documents a growing diversity in perceptions of marital infidelity in this period, against the backdrop of an explosion in print culture and a decline in the judicial regulation of sexual immorality. In general terms the book charts and explains a gradual transformation of ideas about extra-marital sex, whereby the powerfully established religious argument that adultery was universally a sin became increasingly open to challenge. The book charts significant developments in the idiom in which sexually transgressive behaviour was discussed, showing how evolving ideas of civility and social refinement and new thinking about gender difference influenced assessments of immoral behaviour.

The influence of professional, adult sport on youth sport is now a global concern. Children are involved in high-stakes competitive sport at national and international levels at an increasingly young age. In addition, the use of sport as a medium for positive youth development by governments and within the community has fuelled ambitious targets for young people s participation in sport at all levels. In this important study of ethical issues in and around youth sport, leading international experts argue for the development of strong ethical codes for the conduct of youth sport and for effective policy and pedagogical applications to ensure that the positive benefits of sport are optimized and the negative aspects diminished.

At the heart of the discussion are the prevailing standards and expectations of youth sport in developed societies, typically consisting of the development of motor competence, the development of a safe and healthy lifestyle and competitive style, and the development of a positive self-image and good relationship skills. The book examines the recommendations emerging from the Panathlon Declaration and the debates that have followed, and covers a wide range of key ethical issues, including:

Ethics in Youth Sport is focused on the application of ethical policy and pedagogies and is grounded in practice. It assumes no prior ethical training on the part of the reader and is essential reading for all students, researchers, policy makers and professionals working with children and young people in sport across school, community and professional settings.