In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs' experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children's rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.

Does the state still frame debates about new technology? Can policy-makers ensure the benefits of health developments through genomics while still satisfying the expectations of society and the economic imperatives? In this critique of the new governance agenda for research and innovation in life sciences, the authors discuss the world-wide policy decisions needed, with particular reference to genomics. They suggest the many facets of policy and could be treated as a government-governance continuum, where different aspects of genomics may sit at different points, and co-exist. Their findings offer valuable insights for the future and will help promote a global solution to this problem.

Health care is constantly undergoing change and refinement resulting from the adoption of new practices and technologies, the changing nature of societies and populations, and also shifts in the very places from which care is delivered. Primary Health Care: People, Practice, Place draws together significant contributions from established experts across a variety of disciplines to focus on such changes in primary health care, not only because it is the most basic and integral form of health service delivery, but also because it is an area to which geographers have made significant contributions and to which other scholars have engaged in 'thinking geographically' about its core concepts and issues. Including perspectives from both consumers and producers, it moves beyond geographical accounts of the context of health service provision through its explicit focus on the practice of primary health care. With arguments well-supported by empirical research, this book will appeal not only to scholars across a range of social and health sciences, but also to professionals involved in health services.

Abortion politics are contentious and divisive in many parts of the world, but nowhere more so than in Ireland. Abortion and Nation examines the connection between abortion politics and hegemonic struggles over national identity and the nation-state in the Irish Republic. Situating the abortion question in the global context of human rights politics, as well as international social movements, Lisa Smyth analyses the formation and transformation of abortion politics in Ireland from the early 1980s to the present day. She considers whether or not the shifting connections between morality, rights and nationhood promise a new era of gender equality in the context of nation-state citizenship. The book provides a new sociological framework through which the significance of conflict over abortion and reproductive freedom is connected to conflict over national identity. It also offers a distinctive in-depth consideration of the connection between gender and nationhood, particularly in terms of its impact on women's status as citizens; within the nation-state; within the European Union; and as members of a global civil society.

Critical Interventions in the Ethics of Healthcare argues that traditional modes of bioethics are proving incommensurable with burgeoning biotechnologies and consequently, emerging subjectivities. Drawn from diverse disciplines, this volume works toward a new mode of discourse in bioethics, offering a critique of the current norms and constraints under which Western healthcare operates. The contributions imagine new, less paternalistic, terms by which bioethics might proceed - terms that do not resort to exclusively Western models of liberal humanism or to the logic of neoliberal economies. It is argued that in this way, we can begin to develop an ethical vocabulary that does justice to the challenges of our age. Bringing together theorists, practitioners and clinicians to present a wide variety of related disciplinary concerns and perspectives on bioethics, this volume challenges the underlying assumptions that continue to hold sway in the ethics of medicine and health sciences.

This volume explores the nature of health and health-care experiences in Russia by comparing societies and communities with different socio-cultural conditions. The unique use of longitudinal data collected over ten years, allows the authors to address key questions on Russians individual experiences of health care and their understanding of its influencing factors. They explore the methods of self treatment and illness prevention in combination with the effects poverty and treatment availability can have on the standards of living for the people surveyed. This pertinent issue follows a time of rapidly worsening health status amongst the Russian population and a grave decline in male life expectancy. The findings are set within the context of experience from Finland and the UK, allowing the authors to explore the challenge of the Russian health-care crisis to Western European models of health status and health care.

Since the naming of hepatitis C in 1989, knowledge about the disease has grown exponentially. So too, however, has the stigma with which it is linked. Associated with injecting drug use and tainted blood scandals, hepatitis C inspires fear and blame. Making Disease, Making Citizens takes a timely look at the disease, those directly affected by it and its social and cultural implications. Drawing on personal interviews and a range of textual sources, the book presents a scholarly and engaging analysis of a newly identified and highly controversial disease and its relationship to philosophies of health, risk and harm in the West. It maps the social and medical negotiations taking place around the disease, shedding light on the ways these negotiations are also co-producing new selves. Adopting a feminist science and technology studies approach, this theoretically sophisticated, empirically informed analysis of the social construction of disease and the philosophy of health will appeal to those with interests in the sociology of health and medicine, health communication and harm reduction, and science and technology studies.

Over the past two decades, rates of adult and childhood obesity in the developed world have risen sharply. By the year 2000, 65% of the United States population were overweight, 30% of these obese. Whilst medical treatment has tended to focus on individual habits of diet and exercise, this approach does little to account for globally increasing levels of obesity, and the external, environmental factors that may be responsible. This in-depth study assembles the evidence for a geographical explanation of current obesity trends, and is the first work to examine the ways in which environment and living conditions promote an imbalance of energy intake over energy expenditure. The book calls upon the expertise of geographers, nutritionists, epidemiologists, sociologists and public health researchers, resulting in a broad, multidisciplinary analysis of this important health issue. Cover graphic designed by Georgia Witten-Sage.

Testing for genetic diseases or traits is a rapidly developing practice, the most widely used form of testing currently in use being newborn screening. Based on a five-year research project and winner of the Prix 'Le Monde' for academic research in France, The Birth of a Genetics Policy analyses the three dimensions - scientific, political and moral - of the social issues raised by a policy of screening for the genetic disease of cystic fibrosis amongst babies. Drawing on extensive interview material and observational research, it explores the conditions under which a screening policy is decided upon and implemented, the types of political logic underlying it, and the effects it has on norms and values. Revealing the ties that exist between forms of biomedical knowledge and political techniques, whilst showing how the notion of biomedical abnormality is being extended, this book sheds light on judgements surrounding the idea of the 'quality (of) life'. A rigorous examination of the discourses and practices of medical genetics in the early twenty-first century, The Birth of a Genetics Policy will appeal to sociologists and anthropologists with interests in medicine and the body, evidence-based care and questions of biopolitics and governmentality.

What is the relationship between politics and health policy in the UK? How are the interests of the medical profession, civil society and the state weighed and balanced in the making of health policy? Health Policy and Politics offers a sophisticated critical analysis of policy-making in the National Health Service. The team of contributors comprises established academics who have been actively involved in both research and policy-making in this field. They examine the 'macro' level of policy-making at governmental level, and then consider professional institutional relationships and struggles, and interpersonal decision-making and power relations within small organizations and departments. Unique in the variety of perspectives and topics covered, the volume will be required reading for those teaching and studying on a range of courses in health, social care and public policy, and for health professionals within the NHS.

This volume brings together researchers from different European countries and disciplines who are involved in Clinical Ethics Consultation (CEC). The work provides an analysis of the theories and methods underlying CEC as well a discussion of practical issues regarding the implementation and evaluation of CEC. The first section deals with different possible approaches in CEC. The authors explore the question of how we should decide complex cases in clinical ethics, that is, which ethical theory, approach or method is most suitable in order to make an informed ethical decision. It also discusses whether clinical ethicists should be ethicists by education or rather well-trained facilitators with some ethical knowledge. The second chapter of this book focuses on practical aspects of the implementation of CEC structures. The analysis of experienced clinical ethicists refers to macro and micro levels in both developed and transitional countries. Research on the evaluation of CEC is at the centre of the final chapter of this volume. In this context conceptual as well as empirical challenges with respect to a sound approach to judgements about the quality of the work of CECs are described and suggestion for further research in this area are made. In summary this volumes brings together theorists and healthcare practitioners with expertise in CEC. In this respect the volume serves as good example for a multi- and interdisciplinary approach to clinical ethics which combines philosophical reasoning and empirical research.

There is a strong case today for a specific focus on mental public health and its relation to social and physical environments. From a public health perspective, we now appreciate the enormous significance of mental distress and illness as causes of disability and impairment. Stress and anxiety, and other mental illnesses are linked to risks in the environment. This book questions how and why the social and physical environment matters for mental health and psychological wellbeing in human populations. While putting forward a number of different points of view, there is a particular emphasis on ideas and research from health geography, which conceptualises space and place in ways that provide a distinctive focus on the interactions between people and their social and physical environment. The book begins with an overview of a rich body of theory and research from sociology, psychology, social epidemiology, social psychiatry and neuroscience, considering arguments concerning 'mind-body dualism', and presenting a conceptual framework for studying how attributes of 'space' and 'place' are associated with human mental wellbeing. It goes on to look in detail at how our mental health is associated with material, or physical, aspects of our environment (such as 'natural' and built landscapes), with social environments (involving social relationships in communities), and with symbolic and imagined spaces (representing the personal, cultural and spiritual meanings of places). These relationships are shown to be complex, with potential to be beneficial or hazardous for mental health. The final chapters of the book consider spaces of care and the implications of space and place for public mental health policy, offering a broader view of how mental health might be improved at the population level. With boxed case studies of specific research ideas and methods, chapter summaries and suggestions for introductory reading, this book offers a comprehensive introduction which will be valuable for students of health geography, public health, sociology and anthropology of health and illness. It also provides an interdisciplinary review of the literature, by the author and by other writers, to frame a discussion of issues that challenge more advanced researchers in these fields.

Against a background of debate around global ageing and what this means in terms of the future care need of older people, this book addresses key concerns about the nature and site of care and care-giving. Following a critical review of research into who cares, where and how, it uses geographical perspectives to present a comprehensive analysis of how the intersection of informal care-giving within domestic, community and residential care homes can create complex landscapes and organizational spatialities of care. Drawing on contemporary case studies largely, but not exclusively from the UK, the book reviews and develops a theoretical basis for a geographical analysis of the issue of care. By relating these theoretical concepts to empirical data and case studies it illustrates how formal and informal care-giver responses to the changing landscape of care can act to facilitate or constrain the development of inclusionary models of care.

There has been a general assumption in the international debate surrounding organ procurement that Presumed Consent (opting-out) systems produce better results than Express Consent (opting-in) systems. This study uses the French case to challenge this widely held assumption and argues that the French presumed consent systems coexist with patterns of behaviour that in practice do not mobilize the law. It explores four key areas to current research in socio-legal studies focussing on the state and nature of social solidarity, social engineering and the changing nature of the citizen-state relations, state intervention in the event of death and discretion in use of corpses and recent modifications of the status of medical professionals as figures of authority and agents of state policy. Using material based on interviews with medical professionals, this title will be a valuable resource for researchers, academics, policy-makers and practitioners with an interest in this complex and topical subject.

With the World Health Organization estimating that nearly four percent of global deaths are due to alcohol, alcohol misuse can be an extremely damaging social problem, and one that governments around the world have endeavored to address through a range of policy strategies. Regulating Alcohol around the World explores historical and contemporary case studies in multiple countries to gain a richer understanding of the political, economic, and other forces that influence alcohol-related policymaking. The case studies presented in the book investigate a range of different kinds of alcohol policies, including prohibition strategies, general efforts to reduce alcohol's social harms, and more targeted policies. The explanatory value of leading theories from political science, policy studies, anthropology, and other fields is assessed, with particular reference to the influence of cultural and historical factors on approaches to alcohol regulation. The book adopts a global perspective and offers guidance for students, researchers, practitioners, policymakers, and other stakeholders about the lessons that can be learned from previous efforts to change alcohol policies. As such, it will be of interest to practitioners in the fields of health and alcohol abuse prevention, as well as scholars and students of social policy, criminology, and the sociology of health, addiction, and social problems.

Exploring the value of photography and video as legitimate forms of social enquiry, An Applied Visual Sociology: Picturing Harm Reduction constitutes a guidebook for conducting applied visual sociology within health related or social science research projects, providing a full account of the visual research journey and presenting a tested template for conducting theoretically-driven, sociologically-informed research. Against the background of the growing popularity of visual methods, this book goes beyond using photographs for illustrative and descriptive purposes, to emphasise the importance of sociological, epistemological and analytical theory, together with methods of data collection and the presentation of images for applied purposes. As such, An Applied Visual Sociology: Picturing Harm Reduction offers a template for considering visual data as applied research, providing a full account of the manner in which visual methods can inform research and specific interventions, together with opportunities for students and practitioners to consider applied visual sociology in a series of practical or self-study tasks . It will therefore appeal not only to students and researchers involved in social and health-related qualitative research, or those seeking to conduct innovative visual projects within the social sciences, but also to scholars interested in research methods, visual ethnography and harm reduction approaches to drug use.

The last twenty years have witnessed an important movement in the aspirations of public policy beyond meeting merely material goals towards a range of outcomes captured through the use of the term 'wellbeing'. Nonetheless, the concept of wellbeing is itself ill-defined, a term used in multiple different contexts with different meanings and policy implications. Bringing together a range of perspectives, this volume examines the intersections of wellbeing and place, including immediate applied policy concerns as well as more critical academic engagements. . Conceptualisations of place, context and settings have come under critical examination, and more nuanced and varied understandings are drawn out from both academic and policy-related research. Whilst quantitative and some policy approaches treat place as a static backdrop or context, others explore the interrelationships of emotional, social, cultural and experiential meanings that are both shape place and are shaped in place. Similarly, wellbeing may be understood as a relatively stable and measurable entity or as a more situation-dependent and relational effect. The book is structured into two sections: essays that explore the dynamics that determine wellbeing in relation to place and essays that explore contested understandings of wellbeing both empirically and theoretically.

This book examines donor conception and the search for information by donor-conceived people. It details differing regulatory approaches across the globe, including those that provide for 'open-identity' or anonymous donation, or that take a 'dual-track' approach. In doing so, it identifies models regarding the recording and release of information about donors that may assist in the further development of the law, policy and associated practices. Arguments for and against donor anonymity are considered, and specifically critiqued. The study highlights contrasting reasoning and emphasis upon various interests and factors that may underpin secrecy, anonymity or openness. The book will be of value to academics, students and legal practitioners involved with this area. It is also relevant to policy makers, health practitioners and anyone with an interest in the subject.

This comprehensive volume explores various forms of violence in health care settings. Using a broad range of critical approaches in the field of anthropology, cultural studies, gender studies, political philosophy and sociology, it examines violence following three definite yet interrelated streams: institutional and managerial violence against health care workers or patients; horizontal violence amongst health care providers and finally, patients' violence towards health care providers. Drawing together the latest research from Australia, Canada, the UK, and the US, (Re)Thinking Violence in Health Care Settings engages with the work of critical theorists such as Bourdieu, Butler, Foucault, Latour, and Zizek, amongst others, to address the issue of violence and theorise its workings in creative and controversial ways. As such, it will be of interest to sociologists and anthropologists with research expertise in health, medicine, violence and organisations, as well as to health care professionals.

With increasing recognition of the international market in health professionals and the impact of globalism on regulation, the governance of the health workforce is moving towards greater public engagement and increased transparency. This book discusses the challenges posed by these processes such as improved access to health services and how structures can be reformed so that good practice is upheld and quality of service and patient safety are ensured. With contributions from regulators, academics, lawyers and health professionals, this book presents arguments from multiple perspectives. Of global relevance, it brings together concerns about access, quality and safety within the framework of the health workforce governance continuum and will be of interest to policy makers, regulators, health professionals, academics legal practitioners, insurers, students and researchers.

This book provides a comprehensive portrait of the experience of poverty among Mexican Americans and Mexican immigrants in the US. Given that these two groups experience some of the highest rates of poverty of any ethnicity and that it persists even while a majority work and reside in dual parent households, it becomes imperative that we explore a multitude of related factors. This book offers a systematic empirical analysis of these groups in relation to other ethnic groups, explores the individual and contextual factors associated with the determination of poverty via the use of logistic and multi-level models, details the historical context associated with Mexican immigrants, and discusses the major policies that have impacted them. It discusses the newest destinations of Mexican immigrants and also provides a discussion of undocumented migrants. Further, it details the current measure of poverty in the United States and offers a number of alternatives for modeling and measuring it.

A prevailing excitement can be discerned in the medical and public health literature and popular media concerning the apparent 'disruptive' or 'revolutionary' potential of digital health technologies. Most of the wider social implications are often ignored or glossed over in such accounts. Critical approaches from within the social sciences that take a more measured perspective are important - including those that focus on risk. The contributors to this volume examine various dimensions of risk in the context of digital health. They identify that digital health devices and software offer the ability to configure new forms of risk, in concert with novel responsibilities. The contributions emphasise the sheer volume of detail about very personal and private elements of people's lives, emotions and bodies that contemporary digital technologies can collect. They show that apps and other internet tools and forums provide opportunities for health and medical risks to be identified, publicised or managed, but also for unvalidated new therapies to be championed. Most of the authors identify the neoliberal 'soft' politics of digital health, in which lay people are encouraged ('nudged') to engage in practices of identifying and managing health risk in their own interests, and the victim-blaming that may be part of these discourses. This book was originally published as a special issue of Health, Risk and Society.

Serenity is becoming alarmingly absent from our daily existence, especially within the urban context. Time is dense and space is tumultuous. The idea of the serene has gained currency in postmodern discussions, and when combined with urbanism conjures questions, even contradictions, as the two ideas seem improbable yet their correspondence seems so inherently desirable. Integrated, these two constructs present design challenges as they manifest in differing ways across the rural-urban transect. In response, Part I of this book establishes the theoretical framework through different contemporary perspectives, and concludes with a clear explanation of a theory of serene urbanism. The positive characteristics of urbanism and beneficial qualities of the serene are explored and related to sustainability, biophilia, placemaking and environmental design. Both principles and examples are presented as compelling portraits for the proposal of these new urban landscapes. Part II of the work is an in-depth exploration and analysis of serene urban ideas related to the intentional community being created outside of Atlanta, Georgia, USA. "Serenbe" is the name given to this place to commemorate the value and nuance between the serene and urban.

Supporting People with Dementia at Home details a groundbreaking study of an intensive care management scheme designed for older people with dementia that are at risk of entry into residential care. The authors use a quasi-experimental approach to compare how the individuals on the mental health team in one community were matched to a similar community without the service. They analyze the evidence focusing on the eventual placement of the individual suffering, the quality of care they receive, and also the needs of their carers. This book offers valuable evidence about the factors which can maximize the independence and well being of older people with dementia, from the perspective of older people and their carers. For those who commission services, it is highly relevant to service models for the National Dementia Strategy in England.

Twentieth century Europe went through a dramatic transition from low income populations experiencing hunger and nutritionally inadequate diets, to the recent era of over-consumption and growing numbers of overweight and obese people. By examining the trends in food history from case studies across Europe, this book offers a historical context to explain how and why this transition has occurred and what we can learn in order to try and address the vitally important issues arising from obesity in contemporary Europe.