Every year in the United States, 12 per cent of all births
are preterm births, 5 per cent of all babies need help to
breathe at birth, and 3 per cent of neonates are born with at
least one severe malformation. Many of these babies are
hospitalized in a neonatal intensive care unit. Annie Janvier and
her husband, Keith Barrington, are both pediatricians who
specialize in the care of these sick babies and are internationally
known for their research in this area. In 2005, when their daughter
Violette was born extremely prematurely, four months before
her due date, they faced the situation "from the other side" as
parents. Despite knowing the scientific facts, they knew nothing
about the experience itself. "Knowing how a respirator works did
not help me be the mother of a baby on a respirator," writes Annie.
She did not know how to navigate the guilt, the uncertainty, the
fears, the predictions of providers, and the responses of friends
and family. In a society obsessed with goals, performance,
efficiency, and high percentages, she discovered that the daily
lack of control that new parents of sick babies face changes their
lives. And that, for physician parents, it also changes the way
they practice medicine. Most of the articles and books written
about premature babies and neonatal intensive care units examine
the technological and medical aspects of neonatology. Breathe,
Baby, Breathe!, however, is written in the voice of a parent-doctor
and tells the story of Violette and her parents, alongside the
stories of other fragile babies and their families with different
journeys and different outcomes. With the story of Violette at the
core of the book, the interwoven stories and empirical articles
provide essential insights into the medical world of premature
birth. This original and clever blend of narrative and evidence
provides a new, experiential view of the way forward during a
parental crisis.
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