There are few things requiring more expertise, delicacy, and
compassion than caring for an infant, child, or young adult with a
life-limiting condition. Written by leading researchers, clinicians
from relevant disciplines, family members, and advocates, this
practical guide provides professionals involved in pediatric
palliative and end-of-life care with comprehensive information in a
single volume.
Thoroughly updated and expanded, this edition includes chapters
addressing the unique challenges facing children with HIV/AIDS and
their families, care in home and ICU settings, difficult
decision-making processes, and the importance of communication with
the child and family, as well as completely new chapters on
spiritual dimensions of care and educational and advocacy
initiatives. Intended for primary care physicians, pediatric
practitioners and specialists, home care and hospice personnel,
pastoral counselors, and affected families, the book includes
useful resource and reference material and practical, hands-on
tips.
With contributions from an international group of expert
educators, clinicians, and parents, this book takes a truly
interdisciplinary approach to pediatric palliative care, presenting
best practices, clear instruction, and the latest information and
research for anyone involved in pediatric palliative and
end-of-life care.
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