More and more women are searching the Internet for medical
information. Women who have been diagnosed with breast cancer
search for information and participate in online communities-groups
that "gather" in established online spaces to interact about their
diagnoses of breast cancer. They share their own struggles and
emotions with their own language: the rhetoric of breast cancer.
They ask questions, share experiences, create friendships, discuss
their disease processes, and present their illness narratives.
However, they also create ethical dilemmas for online researchers
and privacy issues as they share information that is legally
protected through HIPAA. Online communities will only increase as
research of online information expands through big data and
predictive analytics, and more than ever before, women need to be
aware of the information they share. Researchers also need to be
aware, as they share the data they gather, and seek to preserve the
privacy of the creators of the online data that they investigate
and report. The Rhetoric of Breast Cancer provides a discussion of
the complex structures of online communities, particularly those
focused on medical diagnoses, and is a valuable read for patients,
theorists, physicians, and researchers.
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