Books > Medicine > Clinical & internal medicine > Diseases & disorders > Congenital diseases & disorders
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A Family Disease - A Memoir of Multigenerational Ataxia (Paperback)
Loot Price: R630
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A Family Disease - A Memoir of Multigenerational Ataxia (Paperback)
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Dana Creighton and her mother both were affected by the same
inherited cerebellar degeneration, known as ataxia--a loss of
control over body movements. Both were treated by a healthcare
system that failed them in different ways. Yet their experiences
with ataxia were disparate. Where Creighton eventually found the
right tools to piece together meaning and purpose in her life, her
mother resisted accepting the reality of her condition, in part
because doctors repeatedly said nothing was wrong with her.
Twenty-five years after her mother's suicide, Crieghton's memoir
finds striking similarities and differences in their lives and
traces a lineage of family trauma. Drawing on research in
neuroplasticity, medical records, personal correspondence and
genealogy, her narrative highlights the gap between the lived
experience of debilitating ailment and the impersonal aims of
clinicians, and shows how the stories parents tell themselves about
living with a genetic disorder influences how they communicate it
to their children.
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