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Books > Health, Home & Family > Family & health > Coping with personal problems > Coping with illness
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Beyond The Pale - Folklore, Family and the Mystery of Our Hidden Genes (Paperback)
Loot Price: R442
Discovery Miles 4 420
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Beyond The Pale - Folklore, Family and the Mystery of Our Hidden Genes (Paperback)
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Loot Price R442
Discovery Miles 4 420
Expected to ship within 12 - 17 working days
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Emily's story begins on St. Stephen's Day, 2010, in St. John's,
Newfoundland when she gives birth to a baby girl named Sadie Jane
with a shock of snow-white hair. Within 3 months Sadie is diagnosed
with albinism, a rare genetic disorder where pigment fails to form
in the skin, hair and eyes, with accompanying maladies such as
photophobia and partial blindness. Emily is drawn to understanding
her child's differences by researching the cultural beliefs
associated with albinism worldwide; a journey that takes her to a
faraway continent, through her own family tree, and all the while
unearthing discoveries that vacillate between beauty, amazement and
horror.
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