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Books > Science & Mathematics > Biology, life sciences > Life sciences: general issues > Genetics (non-medical)
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Future of the Disabled in Liberal Society, The - An Ethical Analysis (Paperback)
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Future of the Disabled in Liberal Society, The - An Ethical Analysis (Paperback)
Series: Revisions: A Series of Books on Ethics
Expected to ship within 12 - 17 working days
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The Future of the Disabled in Liberal Society questions
developments in human genetic research from the perspective of
persons with mental disabilities and their families. Hans S.
Reinders argues that when we use terms such as “disease” and
“defect” to describe conditions that genetic engineering might
well eliminate, we may also be assuming that disabled lives are
deplorable and horrific. Reinders points out that the possibility
of preventing disabled lives is at odds with our commitment to the
full inclusion of disabled citizens in society. The tension between
these different perspectives is of concern to all of us as genetic
testing procedures proliferate. Reinders warns that preventative
uses of human genetics might even become a threat to the social
security and welfare benefits that help support disabled persons
and their families. Reinders also argues that this conflict cannot
be resolved or controlled on the level of public morality. Because
a liberal society makes a commitment to individual freedom and
choice, its members can consider the diagnostic and therapeutic
uses of human genetics as options available to individual citizens.
A liberal society will defend reproductive freedom as a matter of
principle. Citizens may select their offspring in accord with their
own personal values. Reinders concludes that the future of the
mentally disabled in liberal society will depend on the strength of
our moral convictions about the value of human life, rather than on
the protective force of liberal morality. One of the most important
aspects of this book is Reinder’s attention to parents who have
come to see the task of raising a disabled child as an enriching
experience. These are people who change their conceptions of
success and control and, therefore, their conceptions of
themselves. They come to value their disabled children for what
they have to give. Even though disabled children and disabled
adults present parents and society with real challenges, the
rewards are just as real. This powerful critique of contemporary
bioethics is sure to become required reading for those interested
in human development, special education, ethics, philosophy, and
theology.
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